TRIPLE POSITIVE GROUP
Comments
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I feel like I just crawled from the pits of hell, got a nice chemo tan and lost 5lbs in 12 hrs. I had my last FEC yesterday and I have to say I'm so happy that is over. I start T in 3 weeks and good news I can start the herceptin at the same time. Only problem I have to spend the night at the hospital. I'm just glad FEC is over
Halfway feels good. ***Tracy 0 -
oandtolivo congrats to being halfway, doing something special in your three week break to celebrate, and then fight like a girl!
Question? When I went into chemo-pause i was having hot flashes several times a day and almost hourly during the night, intense! Now i have started Tamoxifen and the hot lfashes have almost subsided or not noticeable. the onc said to me "I hope it is working" well I am assuming I am still in menopause, no periods. i s there a test to make sure i am in menopause and that the tamox is working? He said if it is not working he will switch me to something else, how will he know? Thanks
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carberry
There must be a blood test they can do to check hormone levels. Everyone's se's are different, It can take 3 or more months for some se's to kick in on Tamoxifen. It dosen't mean it's not working. I often feel like I've handed my life over to the SPECIALIST's and I've got to have faith they know what thier doing. I often don't have a clue
Good luck and keep fighting. ***Tracy0 -
Carberry-there is a test to see how you are metabolizing tamoxifen. I am sure that is what your Dr. will do.
fwiw-I had tons of hotflashes in chemopause and when chemo ended, they subsided considerably. I am a little past a year of my last chemo and they have come back. They didn't totally subside, but happened considerably less for about a year. Now, I get them 2-3 times a day. I hate them, but figure it is probably a good sign that they have returned.
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oandtolivo my onc tested my follicle stimulating hormone for 6 months PFC.0
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I originally had a lot of hot flashes and night sweats on AC. Now on taxotere, they are much less. I used to feel them in my whole body, now I just feel them in my head, and I haven't even felt that in quite a while now. I think I'm starting Tamoxifin after I finish chemo some time (which will be on Monday, yay!). I have read that women who get hot flashes on Tamoxifin are less likely to recur than those who don't. Also read that eating right (getting 5 servings of fruits and veggies) helps women who don't get hot flashes more and makes the recurrence percentages equal. Not sure what to make of that.
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All of the hormone therapies are know to cause hot flashes. I'm on Anastrozole (generic Arimidex). I find my hot flashes diminished after chemo even though I am on Anastrozole. I only got them at night and not the real sweaty kind. The only time I might get a litte warm is when I eat spicy food but I'm not sure it's even a flash. I also hear coffee (caffeine), sugar and alcohol can increase hot flashes. I don't do coffee, stopped diet soda, hardly ever drink so I can't comment on that. I can't say I've removed sugar from my diet but I'm sure I eat less that most folks (except for diabetics).0
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As of yesterday, I have cut out sugary items from my diet, etc, no pop, no chocolate, cakes and muffins............. i feel better but man the craving is bad. Im getting my sugar fix from fruit!
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I've cut out the sugar too after reading that it feeds cancer. It's amazing how much sugar is in most of what we eat. If it says sugar free it has mannitol or some junk in it. I've become a label reader. Geez, no wonder there are so many diabetics around.
tuckertwo
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Christean I had that feeling that my BRAC would be positive, but I was negative, so don't borrow bad news. Relax and take it one day at a time,
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Hi ladies, just wanted to post that I had my first round of taxotere, carboplatin, and herceptin on thursday.. went back today for my neulesta shot. No major SE's yet ..had some slight fatigue after work yesterday.. but I think with the heat and all that, it probably wasn't even from the chemo. Oh and I have lost any kind of appetite.. that's strange for me, because I'm always craving something or other!! stay well everyone!
Amy
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Amy you could be one of those who get little to no SE. I knew a gal who didn't get anything till after her last TX and it was still very minor stuff. She had the same cocktain as us. (She has the same onc and at the same treament center as me too). Some people are lucky. I was pretty spacy after my first tx between the emmend and zytec. I finally got used to the zyrtec.0
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yes today, I feel spacey, tired, bloated, and constipated... this normal??? oh well.. all are completely manageable though. Oh and I'm hot alot! especially when I try to sleep. God this sucks.
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So my period is back. I had one while in chemo and started on Friday. This worries me.
Is it bad to have AF visit? I mean, there is really no reason that I shouldn't be menustrating. But I've had PCOS for a long time and I have irregular periods because of it. But with being ER+, is this a bad sing prognostically?
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Amy that is how I felt. The Emmend made me spacey for a few days. Bloating and constipation started right after chemo for 3 days. I started treating the big C the day of chemo with stool softener and Metamucil. Milk of Magnesia didn't work for me but does for others. Stool soften is key. I would do this until things were normal again.
My first tx the constipation was so bad. Never had it that bad again because I started medicating before I had the issue. This is why it's good to keep a calendar of when the SE start.
pejkug3 Talk to your onc about that. The tamoxifen might be fine for you.
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aimska Good luck with the chemo lets hope you are sypmtom free for the whole journey
Question? does anyone have a natural way of fending off mosquitos? I am outside alot in the evening and the little buggers love me! Dont feel good about spraying those chemicals all over my body. maybe should direct this question to the natural thread?
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HI - you ladies can see me hair now it started growing late FEB
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Anyone know how long "taxotears" last? It started after the 4th tx and it is worse in the right eye? Please tell me it won't be permanent!!! I can't put mascara or eyeliner on because it runs off shortly after. Not a good look
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Hey Lago, what is your take on Black Cohosh for PFC Hot Flashes? My FSH is 127 so I way into MP. Thank You
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nmoss - check out the Hot Flash Forum! thread. We have a long discussion about all kinds of things to do with hot flashes, including menopret (black cohosh) if you are interested. Did you ever ask about doing the last two chemos?0
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Hey Omaz Thanks for the Link:) I did ask finally yesterday at my H TX and he returned from vacation. My onc said no, he was very concerned about permanant damage and would not reccommend it.
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Bucky I had the taxotere. They did eventually go away after chemo but I dont remember when. I think it took 5-8 weeks. I did get them again in one eye a couple of weeks ago but I think it was just an irritation. Hot compresses and eye drops got rid of them in a few days this time.
nmoss My hot flashes were not so bad on chemo. Just some at night and not really sweaty. They stopped after a few months after chemo even though I started Anastrozole 6 weeks PFC. I actually do not have flashes anymore so I'm not a good person to ask.
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Bucky: I had the taxotears something awful and they began after TX#2. After my final treatment, they continued for 2 weeks and then just stopped. Mine were so bad that I could barely see and there was no sense even wearing eye makeup. They were worse when I went outside. They will go away.
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Bucky I also had taxotears so bad that my eyes were running almost 24/7. It continued for several weeks after the final TCH and I even went to the eye doctor because I was concerned. He assured me that it is usually transient and should taper off (if it doesn't it can be a problem and you definitely need to see the eye doctor). Mine gradually improved and by 4 or 5 weeks out I only had the tears in the morning and then it completely disappeared...0
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Bucky, I had the taxotears too during treatment & they lasted about 3 months afterwards. They're finally gone now but I still have the runny nose. My eye doc suggested Systene Ultra drops am & pm and it helped a little during tx but helped a lot after the treatments ended.
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Fitz: Forgot about the runny nose...mine is still running off and on. Can't wait for all the drippies to go away.
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Just wanted to update..am back in Ohio from a trip to Dallas...I didn't wear a sleeve and had no problems at all. I called the LE specialist and she told me the sleeve can actually CAUSE LE in women who use it while flying when they don't have LE already....
I dunno about that .. haven't researched it a lot. All I know is everything went ok this trip with flying....hopefully that will continue into the future.
Now I'm playing catch up (new roof and windows, kid's summer camp, state fair, etc) all before my next trip in 3 weeks. lol
Oh well. It's so good to be free of rads every day!!
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yay tonlee on the end of rads! Check out your cute hair! Glad you had no issues flying. I just had an assesment yesterday with the rehab (LE certified) folks at Moffitt. I am starting 2 times per week, mostly exercises to improve ROM and deal with the cords, which are there but mild. They don't do fitting for sleeves but I will ask about what they recommend for flying if you don't yet have LE.
Ladies - have had a scary few days. Intractable pain deep inside the area behind the breast and under the armpit of the new TE breast. Could not stand up or sit up without pain. Only comfortable position was laying down (no gravity). Then spiked a 101.5 temp on Sunday night. Called the PS, he was in surgery all day but staff said to come to the office at 3:30. My rehab appt was at 1:00. I had been taking Vicodin around the clock from Friday to Mon. morning (not like me at all) and then it suddenly went away. Fever decreased but didn't go away until last night. I went to the rehab appt and then to the PS office, they sent me down the street to the ambulatory center. I just figured that was where he was all day and it was easier to meet him there. Not so. He was ready to take me back to surgery. They had it all set up! I said the pain had gone but he put me on an antibiotic and I have my regular post-op with him on Thurs. with instructions to call immediately if the pain comes back. I was really scared! Things have been OK today. The theory we are working on is that something was being pinched or pressed and now that the swelling from last week's surgery has decreased it stopped being painful. Just in time, right! I so want to keep this TE, I am so happy it is back in I want it to stay there.
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I am triple +. I had my scan before and I am glad I did...thats how they found my liver mets. I had no symptoms and lesions everywhere-so I am glad that I had it done before.
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