TRIPLE POSITIVE GROUP
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Linda will repost . Thought it wasn't working!
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Tig Notaro. Hope you are not offended. Please let me know and I will remove it:)
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You just have to copy and paste - it isn't coming up as a link - but easy to see anyway. I love it and stole it and posted to a friend's page on FB as she has the same sense of humor as me lol
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Asha and others not sure if you caught this one:
http://www.breastcancer.org/research-news/hercepti...
"At 10 years after treatment, overall survival was better in women who were treated with Herceptin:
- 84% of the women who received chemotherapy plus Herceptin were alive
- 75.2% of the women who received chemotherapy alone were alive
This means that overall survival was 37% better in women who got Herceptin plus chemotherapy compared to women who got only chemotherapy.
At 10 years after treatment, disease-free survival also was better in women who were treated with Herceptin:
- 73.7% of the women who received chemotherapy plus Herceptin were alive without the cancer growing
- 62.2% of the women who received chemotherapy alone were alive without the cancer growing
This means that disease-free survival was 40% better in women who got Herceptin plus chemotherapy compared to women who got only chemotherapy."
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Lago
Thx . No I hadn't seen it !
All of us Her2 pos girls have a great deal to be thankful for and optimistic about.
And all the new treatments are piggybacking off herceptin.
Grateful me:)
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thanks Lago and ashla for the good news articles!!
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Can always find something positive from the ladies who faithfully post here each day. Thanks a million.
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Thanks ashla and lago, that is such encouraging news!
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Howdy ladies. Have not posted in a long time, but I have to thank lago for sharing the study re: better survival rate for HER+2 gals, a decade later, who received both Herceptin and chemo. Got fed up with SE of Tamoxifen 2 weeks ago and tossed the bottle to the back of the cupboard. This news, for some reason, has made me realize that is most likely a silly decision.
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Hi Gratitutedforlife. Good seeing you. Have you discussed maybe getting your ovaries suppressed and taking one of the AIs?
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Just had my 3rd herceptin only infusion yesterday. Like you ladies suggested, I had it given over a 90 minute period, instead of 30 minutes. Once again, I did not get sick like I did the 1st time when it was given over a 30 minute period. I was wondering though if anyone else experiences body aches and a slight headache the evening/night after their herceptin infusion.
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Lago, I meet with my MO in March 2015. Blood tests will be done to determine if I am in true-blue menopause. I do not want to have any more surgery plus removing my ovaries may leave me feeling even more flat/bland than I do now while taking Tamoxifen.
Re: question regarding how I felt after each Herceptin session, it was similar to having the flu: sore body, elevated temp., alternated between feeling cold and sweating profusely. I felt like that for 3 days, then bounced back each time.
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Gratitutedforlife not remove ovaries but suppress them with drugs like Luprin.
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lago, thanks for the clarification re: using medication rather than having my ovaries removed surgically. At my meeting in March 2015, if it is determined that I am now officially post-menopausal, I will ask my MO to prescribe an AI as they are reported in medical literature to be more effective than Tamoxifen in preventing BC occurrence in post-menopausal gals. For me, the Tamoxifen years have not been terrific, yet I realize I am lucky that there is such a drug.
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Hi Blownaway I have had that the evening after herceptin only infusion but not everytime - I have had about 3 months of herceptin only infusions and had a headache and achy a couple of times. My biggest SE is the runny nose which I have on and off the whole 3 weeks.
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blow away...flu like symptoms for me too. My first time of herceptin by itself was awful. I came in and told them I felt worse on that alone that my whole three months of chemo and herceptin together. They slowed it to 90 minutes.mhe also said I could have come in weekly or every two weeks, that as far as he was concerned, it wasn't how much you got but that you got it.
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So tomorrow-I have an appointment to get extensive genetic testing. I came up negative for the Brac, but have so much cancer in my family, everyone was suprised. Anybody else go thru this? I am not quite sure what to expect. They didnt tell me to fast or anything-not sure if they are pulling blood or what. I am anxious to see what they find.
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gratitudeoflife - while I don't recommend going off tamoxifen, I do have a friend that went off 8 yrs ago...after 3 months of taking it. Thankfully she hasn't had a recurrence and was stage lla as well.
I actually will be starting Tamoxifen in a couple of weeks. I'm praying I don't have many s/e's....since I didn't with chemo. With Herceptin, I just get a runny nose.... I also plan to do complementary medicine to lower my estrogen levels....such as take grapeseed extract and DIM.
Next up....t/e swap for implants on 11/25...can't wait!!
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vettegirl, I went thru the testing for 17 gene mutations, they use a saliva sample where I went, you have to fill these 2 little containers, I'd say 3 teaspoons total, was easy test, lol, compared to everything else I've been thru! The results take about3-4 weeks to come back. I don't have any history of breast cancer in my family, but because of my age, it was recommended I have it done.
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Had a moment yesterday that only you guys can understand.
My first chemo was 3 years ago this week and the hair was gone a bit more than a month later. I've had a heckuva time with growing it back and finding a style. The texture, color and length of time growing it in has been a challenge. Kept cutting it off & starting all over.
Yesterday ... For the first time in 3 years... I had to brush the hair out of my eyes......:)
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ashla, I can totally relate! My chemo was 2 years ago, and I am also struggling to find a style and color. I was blonde all my life, but after chemo it came in brown. Heading for yet another cut and hi-lights tomorrow. Glad I am not the only one who can't seem to figure this out
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Oh my, years later and hair is still an issue! I'm only a couple months out from chemo, and at this point I'm just happy it is growing. Its still 'old man short', although the secretary at my school calls it 'Amber Rose sexy' (love you Mercedes). I'm really reluctant to cut it. My DH mentioned I had a few longs hairs over my ears, I should trim them. "No way, I'm not cutting anything", was my response.
Has anyone tried extensions? How long does your hair have to be?
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Debiann
Not everyone has hair issues this far out. Some grow their hair back quickly without the drama:)
Important reminder that we each have different reactions to our treatments.
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Bren & Ashla - What about your hair texture and thickness? Any changes?
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Blownaway, when my hair first came in it had some body and was a little thicker than before chemo. (My picture was taken 1 year after starting chemo) The body and wave didn't last, and I am back to the same texture (fine & straight) that I always had. With consistent Minoxidil use I now have about the same amount of hair as I had before chemo.
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For me most everything is different. Here is a pic from late summer. Hair is much, much darker. A dull very dark brown.. Never had much gray and now I have less. Most people seem to come in grey. Problem is that my hair,although always fine and straight it was strong but is now very, very fine & fragile. And it has a very distinctive curl which is difficult to manage .Finally, it seems to be manageably straight. Think I'm gonna try some hi lighting because the color is too dark for my complexion. Hope it holds up.
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Thanks Rose. After sitting down and charting my whole family tree of cancer, they sent me to get blood work. Looks like a 3 to 4 week wait here too. Anxious to see if they come up with anything. I am getting my ovaries out on Dec 5 regardless. My Onc wants them out and he says he never suggests for people to do that, but is suggesting for me. My aunt died of ovarian-I dont want to play with it. I will be 50 tomorrow and period has been gone one year due to chemo. Started Tomaxifan one month ago-but will prob switch to Aremidex after ovaries are out.
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vettegirl
Very interesting about your genetic testing. This is the first time I remember hearing about it in the forum .
I had Mammaprint which is a 70 gene assay but it is of the tumor.
Things are moving forward on the genetic level. Best wishes to you as you move forward:)
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That's interesting about your hair Bren. I've always been super blonde but my hair is coming in brown. I guess i will have to wait until spring to see if it starts to lighten up or will stay this color. I can't wait to post a picture when I'm all done!
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Sigh. At least you ladies have some hair, no matter the color or texture! I've still got NUTHIN. No eyebrows, no eyelashes, nothing on my head, nothing elsewhere.... I finished up AC on 9/3, but have been doing Taxol/Herceptin(weekly)/Perjeta (every three weeks) since then. I wonder if it's the Perjeta.... MO had earlier told me that my hair should start to grow back in during Taxol, but I'm still cue ball bald. Anyone have hair growing during Perjeta?
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http://m.youtube.com/watch?v=SW3i9cU96OU
