I'm sure this might be discussed elsewhere but I cant find it. Applogies.
One nipple has turned black, seems "flat" against the breast. I'm afraid to go to my PS tomorrow.
History here is - Initially invasive duct. carc. in left breast, oncologist didnt like the way something in the right side felt so sent me for an MRI of both sides. Even though the mamogram found what I found in the left side, and said no evidence of malignancy in right breast. MRI did find something in the right side, biopsy confirmed. I did chemo first, started in July. Dose dense schedule, A/C every two weeks, 4X, followed by taxol every week. "Clips" placed mid point. Done Nov. 29. Had what they called "complete clinical response".
The docs still wanted to remove tumor bed, BC runs in my family and always comes back so I opted for bilateral "skin and nipple sparing" mast. (Second surgeon I found told me about, and I was candidate for) Did not like the first surgeon who wanted to just chop. Would not do radiation, it messed up my mom.
Did the BMX 01/03/11. Not as bad as I thought it was going to be but no picnic. TE placed and 100cc put in each one at time of surgery. So I woke up with lumpy small foobs. One week post op two of the four drains came out, and I felt much better. I'm very thin and was not big busted to begin with.
Two week post op visit the breast surgeon thought things looked good. Next appointment, oncologist, he was very positive. Third appointment of the day, plastic surgeon. I was looking forward to the remaining two drains comming out. No. He did not like the way things looked at all, next thing I knew I was being given a local, sliced open, a small bit of skin removed from each side of each incision to get to fresh hide and stiched/glued back shut. I was confused because the breast surgeon liked the way things were looking- PS said sure if you dont care what it looks like down the road. I have one slice about three inches long on the outer side of each breast. Did not slice into the nipple, stops about 1/2 inch from the nipple.
The PS I picked was also the second one, first one was horrible. Told me I was to picky and at 48 it really didnt matter... This one was more of a geeky perfectionist and his pictures looked much better...
Week three the remaining two drains came out- MUCH better.
I am supposed to see the PS tomorrow, he wants to start filling. I'm afraid he is going to look at the black nipple and mess with that. The breast surgeon (last week) said to just give it time and not pick at it. Apply gooey antibiotic ointment 2x per day. The black "stuff" surrounding the nipple has started to flake off/come off in the shower, raw looking skin underneath, but the nipple itself is still very black. Hard crustlike, like a little shell, stuck, black.
Has anyone else had this happen? The other side (nipple) looks almost like it did before surgery. Did have some black crustiness but that came off.
I'm also afraid of the fill idea. When he resliced two weeks ago, he took 50cc of fluid out first. I was expecting relief so it really suprised me to suddenly feel like a railroad spike had been placed on my chest with a cement block balancing on top of it. I dont think it was a muscle thing, more my ribs that hurt so much. Hard time just breathing! He did not refill after reslicing. The ride home and the next few days were more painfull that comming home from the initial surgery. Felt like I was knocked back to square one recovery wise.
I am just starting to feel functional again, work at a very small business and have had to go back like it or not or we go out of business. Only last a few hours a day, just enough to get the paperwork part done. Cant afford in many ways to get knocked back to square one again.
Almost wondering if this is worth it. In the back of my mind I am thinking if they want to do anymore slicing (nipple) I am going to tell him to take these expander things out and call it good. I'll droop like I'm 90 but am starting to think I might not care. My other half starts to yell at me when I am in pain so I really dont want to go there again.
If anyone else has had this black nipple or had fluid taken out then put back in I'm all ears for any advice, so flipped out about tomorrows appointment I might not go. I guess I am really concerned about the still black nipple, but also wondering if the fill process is going to be as painful as removing the fluid was.