Survivors who have used only alternative treatments
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Reporting is for chickens.
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5-foot metal chickens.
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Looks like reinforcements were called in because all 4 reports were within a few minutes of each other, according to the time on my email account. Seriously, how did I offend that many people with my post? I don't think I broke any rules, just stated the truth. Wow, just wow!
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sweetbean: Sounds like you have some great friends, including the hot 23 year old,
speaking of hot guys, everyone, I hear that George Clooney is single now. Thought I would share that good news.
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I report no one unless I state that I do and why.
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Nancy - I'd be very suspicious of newbies aka sock puppets
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Barbara -- And that should be the RULE here, IMO.
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Reposting this as it got lost in the reporting issue posts
Sunflowers - you said
"I agree with you, I think we need a place where women who CHOOSE to have chemotherapy, and also use natural supplements can go for advice too. I've suggested a Forum called Integrative Approach - that is one that uses ALL available options."
Well this forum is called "Alternate, Complementary and Holistic" and we have every right to post here. I have previously posted the definition of Complementary here and that wasn't welcome.
With regards to this actual thread - it was about a woman with HER2+ve bc - a lot of people who have questioned chemo etc and who have posted on here are NOT HER2+ve and do NOT know how serious that diagnosis is. So they should be the ones to back off, as others like Lago and I DO have HER2+ve bc and we DO know how serious that is.
BTW Luan - you say your report button has gone - well that seems to be a new feature that takes away this right from people who have been abusing the report button.
Sue
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PattyS wrote:
Shirley, thanks for the invite but I'm not sure there is much to be learned over there.
You may be very surprised.
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Shirley .. there is NOTHING interesting on that other website. Nothing to learn and nothing new to read. It's boring and tiresome .. I gave up reading it a long time ago.
Bren
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Interesting...Are hits down for that website? Last I knew we were not welcome. Can I come over? Can I post?
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i started following this thread when it first started..why? because i was scared of my stage IV dx, unsure of chemo and what it/stats offer me..searching for information on treatments that could help me. Not her2+, but youngish, with a child, and knowing i have one chance, right now, to do it right. I supported a stage IV woman here, against an 'alt' blog, and probably made a few 'alt' enemies then.( have been told im considered suspicious by a couple of 'alt girls') i recently supported an 'alt' person, and probably made a few enemies in the so called 'conv gang'...so what the f$#k can i do?and why do i have to 'choose a side'? as it seems many are doing...asking others "can i join you?".....it really is, as someone said, like walking up to strangers and asking if you can hang out, this side of the school yard or that side?, by the water taps?...and to be honest, i am scared of some posters...tough women for sure, and an attribute in some areas of life maybe, but here?..not sure...i keep reading, waiting for information that may help me, i havent posted in months, just writing this makes me nervous.....it is horrible that people stay silent when they need answers, and sometimes quickly...so i am very much in support of the new forum idea mentioned earlier. ftr: im not a sock puppet, or a troll, i am a frightened stage IV lurker looking for an informative overview i suppose, waiting for the heat to die down on this thread, but i think it is never going to end, round and round and round we go....months of it.
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delete
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Wow! Is all I can say.
I've been signed on but I haven't been reading here for all that time in case anyone wants to check my login and log out.
BinVA wrote:
Shirley .. I got a PM from another member, copying a PM she had received that was slamming ME to hilt. The very same PM also slammed Blue and Angel.
Talk about not knowing the history of the boards. I know the name of the person who was doing all that slamming. Sadly .. it didn't surprise me at all. All I will say is that it is a member who posts regularly on Breastcanswer.com. It's a sad state of affairs when people are sending hate PM's to one another about other members on this site. Is that the history of relationships on this board you're talking about?
No, the history I refer to goes waaaaaaaaaaaaaaaaay back and I believe you know what I mean.
Why don't you PM me with the name from the person at BCA? I have no idea what who you are referring to.
bluedahlia wrote:
Shirley, I didn't fall off a turnip truck and I hate when someone lies to me, to my face (pm) when that person was logged on at the time of the reporting and told me she wasn't, actually hadn't been on for hours. Outright lie.
Again, I am clueless. I really, blue, do not know what you are talking about. But I can guarantee you the Mods do. they can deal with it. Go tell them about it. I just can't bring myself to "tattle". It's just not in me.
bluedahlia wrote:
Add that to the pm that was revealed and BINGO! The other two, janeluvsdogs and veggiegal....well I know who they are. No surprises there either.
No, blue, I do not know who janeluvsdogs or veggiegal is. I'm really out of the loop.
Is there a gang mentality around here?
bluedahlia wrote:
Can't question anything either, over there, Patty, cause if your opinion differs, you WILL be banned, which is what they are hoping for around here too.
That's not true. Give the true reason.
summertyme wrote:
It didn't take long. The truth can't be talked about! Shirley, come again?
You are to fast for me. What are you referring to?
BinVA wrote:
Well sonovagun .. just had another one reported. What the heck is going on here.
Bren
It's not us. You guys need a better "sherlock".
Who are the new mods?
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delete
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nancy, i suppose, in a forum combining all beliefs and treatments, to keep it calm and intelligent we need to remember, or be reminded, in the header maybe, that all treatments and side effects are experienced differently by all of us, that to ARGUE the point from personal experience is rhetoric, but by posting a caring, friendly description of what you personally experienced, it becomes extra info in our personal 'data banks' so to speak. What i would find really helpful is this : people like me, who arrive newly diagnosed, are in a bit of a tail spin. and are probably, like me, needing information fast! regardless of stage...the amazing people here who have a wealth of experience, have finished treatment, or have statistical minds, could help direct to trustworthy sites/relevant sites, alternative or conventional or complementary findings. for people who sit in the middle, unsure of conv, unsure of alt, informative info and stats and research articles are brilliant. personal experience is also very helpful...the debate can even be helpful!...but kindness should prevail...we need to remember who we are talking to..people with cancer.
edited to add, yes sue, new thread looks good !
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Shirley....really? After what That's-life just posted, you want to keep the not-so-nice exchanges going?
That's-life.... I am so sorry, you are feeling this way. You should not be afraid to come here looking for answers and support. Like Caerus said "ALL OF US DESERVE any support and information we can share with each other." After all, that is why we are all here.
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thatslife, Im really sorry you have been reluctant to post. I too was drawn to this thread because of its title, "Survivors who have used only alternative treatments" and because the poster was Her2+ as I also am. I was hoping to offer her support (because other than a lumpectomy, my treatments fall into the alternative category) and learn from WOM her ideas and methods. Unfortunately, from the beginning, people came here to inform her they were very worried about her choice of treatment and that basically she was wrong in her choice. That is when the fighting started. I know from talking to WOM, this thread was causing a great deal of stress and I have a feeling that is why she has left.
You ladies who have stressed the importance of conventional treatments here.... I know you are probably coming from a good place because you believe in them but you have ignored WOM's OP and chose to thrust your opinions upon her and those of us wishing to legitimately discuss the issue at hand. Her last sentence was this; "I am hoping to hear from some others who may have done the alternative approach as after everything my MD's have put me through I fear going back."
If this isn't you, why then do you all post here? Many of you seem very knowledgeable regarding those conventional studies and any side effects of those treatments. It would seem much more supportive and helpful if you would find a thread where someone is needing support in an area where you have experience and believe in. Instead, you wish to remain here. What conclusions can be drawn?
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Impositive wrote:
If this isn't you, why then do you all post here? Many of you seem very knowledgeable regarding those conventional studies and any side effects of those treatments. It would seem much more supportive and helpful if you would find a thread where someone is needing support in an area where you have experience and believe in. Instead, you wish to remain here. What conclusions can be drawn?
I got drawn to this thread to see if there were any long term survivors that only did alternative methods and to learn about the methods they used so that maybe I could put them to use. However, when you get down to the nuts and bolts - there were no responses. WOM alluded to the fact that there were people that only went the alternative route and she knew this from PM's. However, I can't recall anybody speaking up in this thread. There were also statements that most of the people that chose this type of treatment were dead. I am still waiting for someone to speak up that only did alternative therapy that is HER2+, Grade 3 and when I say alternative I mean no surgery, no conventional - strictly alternative - 100% alternative and maybe they did absolutely nothing at all - in that case when were they diagnosed with this type of cancer?
That is my conclusion and I am sticking to it.
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That's-life.... I am so sorry, you are feeling this way. You should not be afraid to come here looking for answers and support. Like Caerus said "ALL OF US DESERVE any support and information we can share with each other." After all, that is why we are all here.
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Shirley
I agree with your last sentence.
Now can we all just chill out. There can only be a fight if more than one person chooses to fight. We all come here looking for support. We are here NOW looking for support NOW. The stress of holding on to things that go way back is not good for us.
I have visited that other site and changed my mind. Shirley never mind, I don't want to post there. It is not my style.
I wish people could keep the number of identities down. Two or three if you are banned or forget a password is one thing but there is at least one person who has over ten. Man oh man.
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Shirley -
I have to confess, I've been around for a while but under a separate name. Why did I change my name? Because I knew, Shirley, I KNEW, that you and your friends would rejoice in my disease progression, and I didn't want to give you the satisfaction. I know this because I've seen what you and your friends have done to others. Remember Amy?
Past behavior predicts future behavior. People don't change.
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"You ladies who have stressed the importance of conventional treatments here.... I know you are probably coming from a good place because you believe in them but you have ignored WOM's OP and chose to thrust your opinions upon her and those of us wishing to legitimately discuss the issue at hand. Her last sentence was this; "I am hoping to hear from some others who may have done the alternative approach as after everything my MD's have put me through I fear going back."
Impositive, I believe the reason she didn't hear from anyone similar back is because her prognosis is very serious and it wouldn't be wise to suggest she go all holistic in the Stage 3, HER2+ and young category. I don't know why people are having such a hard time with that.
I feel a kinship with her because she is YOUNG, as am I. As you may know, young survivors are considered to have the most aggressive cancer. Which is why I said that anyone suggesting she go all naturopathic who isn't her profile really is doing something horrible in my mind.
I would love to talk alternatives. But you have to remember that new readers will see her post first, then have to dive into a lot of back and forth on the issue. My vote is to start a new topic. Honestly, I think this one should be shut down. It gives me chills thinking someone like WOM might come here someday and feel validated to go all natural. There is no debate here: someone with that profile going all natural would have a much higher chance of dying early.
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enjoyful wrote:
I have to confess, I've been around for a while but under a separate name. Why did I change my name? Because I knew, Shirley, I KNEW, that you and your friends would rejoice in my disease progression, and I didn't want to give you the satisfaction. I know this because I've seen what you and your friends have done to others. Remember Amy?
Past behavior predicts future behavior. People don't change.
If you think that anyone here would rejoice in anyone's disease progression, you are mistaken.
That you would deny yourself the full support of everyone on these boards because you didn't want to "give them the satisfaction" of knowing that you had progression speaks volumes about you.
I hope that your last line is wrong and that people are able to change. Everyone deserves to feel supported by everyone here, not just a small circle of people.
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Yes, Patmom. I've read your version of support on your other website. That I can do without.
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In response to a post from Patzee that I can't go back and quote because the whole thread has been removed because it was so volitile, I did send her a PM telling her that you found her "exciting", told her what thread to read to see how you interact on a regular basis, and warned her that one of her comments might be viewed as insensitive in light of KK's passing.
If you have copied that PM that has you so up in arms as to attack me, and call me names, and defame my character, change the word pack to group.
I guess there's not a lot of change happening yet.
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3) I see that the pack has chosen to come onto your thread to pick a fight. Understand that they do it all over the boards. Your thread happens to be their current target. You should feel special, they find you exciting.
Blue has a "I say yes, you say no or People are Strange" thread that is their main gathering place. You can always tell when they don't have a good response to a post because they start talking about their dinner menu.
As I said, change the word pack to group, and then tell me what is wrong with that Private Message that was never meant to be made public, only to comfort someone who felt hurt by several people posting to her. If you are hurt or embarassed by an accurate description of your actions, you have the power to change them.
The words you quoted in bold are not mine!!!!!
I don't know whose they are, but you apparently copied it incompletely and got some things messed up.
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I didn't use the word gang. Google doesn't have the original PM, only what Patzee posted.
I have sent the entire original PM to the Moderators, and I can send it to you too if you would like. Patzee copied and pasted at least 3 different PM's into one post. That may well be where the mix up started.
I stand by what I did. I take resposibility for my words and actions, but frankly I don't have any control over anyone else's. Do you?
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summertyme, I finally figured out who you are. I didn't realize you had been kicked off again. I'll be looking to see you as blue soon I hope.
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PatMom: I suggest that the mods expect all members to be adult, polite, kind and respectful to each other. I doubt the mods would appreciate the sort of behaviour exhibited by those who choose to denigrate members and their "gangs', "packs" or whatever in private emails. Probably best not to engage in that behaviour at all.
I recall your sending me a pmail some time ago, "warning" me of someone (can't remember who). I ignored it because I felt I should be able to decide for myself. As should everyone, I think.
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