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After Radiation

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  • jo1955
    jo1955 Member Posts: 7,545
    Kantalope - Always glad to see you in a good mood.  I am like you in a lot of ways.  Just when I think I have it bad and start whining like a little girl - I think of all the gals that have had a much harder journey.  That is when I have to pull up the big girl panties and get on with life.  I just need to get through the next 6 weeks.  Then I will know how the rest of the summer will be.
  • Sherryc
    Sherryc Member Posts: 4,503

    Jo hope you can find some peace with this upcoming mammo.  I don't know why mine did not really bother me all that bad, but probably because my tumor did not show on my mammo to begin with with.  When I have my mri in 6 months I will probably be freaking out at that point.  go to the train tonight and have a big old stiff drink.  I left one waiting for you.

  • jo1955
    jo1955 Member Posts: 7,545

    Sherry - My tumor was found on my screening mammo and also showed up on my compression mammo and US.  Guess that is why I am starting to freak out.  I also left something for you on the train.  Go see what it is.

  • FireKracker
    FireKracker Member Posts: 5,858

    JO JO---do the breathing exercise...it helps a lot...sista you dont need any more stress....the weekend is comin..do something nice for yourself...prayin for you and all the rest of us...PLEASE GOD WE NEED TO FIND THE CURE/VACINE...hugggggggggggs kantalope

  • Sherryc
    Sherryc Member Posts: 4,503

    Jo, yoga breathing is great for stress.  Try to find you a yoga class it does wonders for you.

    I did see what you left on the train and I added to it. You'll have to go see.

  • chabba
    chabba Member Posts: 3,600

    I'm starting to get stressed out about my mammo on June 3rd.  It will be my first one since the one a year ago next week that confirmed the lump I had found.  Not only am I worried about the results but I am dreading the experience as well.  My breast is still tender and last years memo was brutal.  They compressed me so much my breasts hurt for a week.  Not looking forward to it.  And scared.

  • Sherryc
    Sherryc Member Posts: 4,503

    chabba be sure and tell the tech that you are still tender.  I told mine a few weeks ago and she was very gently with me.

  • chabba
    chabba Member Posts: 3,600

    I will but probably won't help if it is the same one as last time.  When I yelped and told her that really hurts  she just kicked the pressure up higher.

  • FireKracker
    FireKracker Member Posts: 5,858
    im goin for my first mammo in aug.and my BS already told me to expect it to hurt.oouch..thats the reason i hardly ever went for them in the first place...maybe i had 3 or 4 in my lifetime.i found my lump myself.im not lookin forward to it either but i swear i will not stress over it.i guess ill be doin a lot of breathing before.....cystic dense breasts do not go hand in hand with mammos.YA GOTTA DO WHAT YA GOTTA DO..remind me when aug.comes.ha.Lets just pray we all get the results we want B9....then its all worth it...hugggggggggs kantalope.
  • Sherryc
    Sherryc Member Posts: 4,503

    she sounds mean. maybe you should request someone else, ouch

  • FireKracker
    FireKracker Member Posts: 5,858
    maybe she needs a slap in the face....there are good techs and bad techs...you are payin their salary...i always think of that if they say just one thing i dont like.tell your Dr.you dont want that tech....period...Chabba sista show her who is the boss.please..
  • Beanius
    Beanius Member Posts: 1,494

    Hi Rad Friends,

    This pain in my side is getting worse. It's on the left under my rib cage and above my hip...has anyone else had this? Any ideas what it could be???

    Thanks for your help!

  • FireKracker
    FireKracker Member Posts: 5,858
    BEANIUS----GO TO THE DOCTOR!!!!!!!!
  • GabbyCal
    GabbyCal Member Posts: 46

    Chubba  - I too encourage you to ask for a different tech. When I was diagnosed in Dec., I got copies of all my mammogram films to take to the BS so I looked at them. They were done by three different techs. I remembered that two of them made the whole experience as good as possible but that the third had made it harder than it should have been. She was rough, clumsy and needed multiple takes to get it right.

    When I looked at the films, the images from the good two tech were better than the ones by the tech that made it hard. 

    I made a note of the names and had planned to request one of the "good" ones next time.

    Of course, going forward my MO wants my mammograms done by her own people. 

    The facility knows who the better techs are and you have every right to request whoever they consider the best.

    Take care and good luck. 

  • FireKracker
    FireKracker Member Posts: 5,858
    im gonna get the best tech in my breast center.I already told my BS that im friends with the head tech...she just raised her eyebrows.but she did say expect it to hurt no matter who does it....thanks doc.
  • painterly
    painterly Member Posts: 266

    Hi Grannydukes,

    I know we are all different....but my mammo didn't hurt one bit!

    I have a friend who told me that her mammo was very painful. So when I had mine, I said to the tech, can you do the good boob first to prepare me. Okay says she. And then she proceeded with the next boob.  I froze waiting for the pain to begin, and then she said....okay we are done.....oh says I,......I thought I was going to feel terrible pain.

    Just to let you know...we are all different.

  • FireKracker
    FireKracker Member Posts: 5,858

    well you are the lucky one...yes there is a GOD....are you small breasted?dense breasted?cystic breasted?the reason im asking is that my friend the tech told me that no matter how hard they try not to hurt large breasted ladies its kinda hard.And sometimes it has to be done over.well thats really great.My friend was watching them do mine and she had the tech do 1 or 2 over because she knew the dr.would request it.again its the luck of the draw....PAINTERLY....I sure wish you could go for my mammo.lol.

  • Sherryc
    Sherryc Member Posts: 4,503

    Joyce good luck on your scan and hope it is B9.

    Granny my mammo was not all that bad. I asked the tech to be gentle and she was. I was 3 months post rads and u remember all the pain I have been in. Now I will say that I am very small breasted so that might make a difference don't know. But granny if u need me to come and sey those techs straight u just let me know. I got your back

  • painterly
    painterly Member Posts: 266

    My friend who suffered severe pain is an A cup, 34A to be exact, while I am 38B.

  • FireKracker
    FireKracker Member Posts: 5,858

    Joyce---we will be doin the HAPPY DANCE WITH YOU...please keep us posted.

    Sherry---I do remember all the problems you had.and yes i would like you to come all the way from texas to hold my hand.that would be sooo cool.ha.

    Painterly----so i guess its the luck of the draw.huh??????im a 34DD....they sure squeeeeze the shit out of my boobs.im prepared for it to hurt.and if it dont(please GOD) then ill consider myself one of the lucky ones....Aug.is a long way away.i have enuf to stress about with this damn edema.one thing at a time.

    huggggggggggs everyone.Kantalope

  • painterly
    painterly Member Posts: 266

    I deleted my comments because they were just too silly LOL.

  • torigirl
    torigirl Member Posts: 748

    HOLA CHICAS!

    Yes, I've been MIA for a few days...I'm so sorry...many things going on this week, and I have to admit...I SUCK AT TIME MANAGEMENT...

    So, here I am, trying to catch up on everyone and everything...I'm sorry folks are having ugly issues still after active treatment...it's the pits that is for sure....it makes us all feel better to talk, vent and get it off our chests, right?   But, what is everyone doing when they are feeling good?  I hope you are all doing fun stuff...getting your nails/toes done, seeing a good movie, taking a long walk, eating something you love...sometimes those things can make such a huge difference, especially after all the "crapola" we have all been through...

    My sister in Germany, just called me...she's heading to the hospital to have my new nephew...so excited...please say a  prayer for her that all goes well....thanks!

    Hubby will be home the first week in June...so less than 3 weeks...hard to believe that he has been gone 13 weeks already....geez...

    Just a little over 4 weeks post rads and I'm starting to feel better...skin is all healed, although I'm still tanned...On the caca side of things.....I'm still carrying the extra weight I put on during chemo though..UGH!!!  

    I have my first followup appt with my RO next Tuesday.  We will discuss when I will have my first mammogram...everyone seems to have doctors that have differing opinions of when to have the first mammogram after rads...when do most go?  Is everyone still doing self breast exams?   

    I had my 6 appointments with my PT for my LE and I'm done with him for 3 months....doing my own massages and so far, all seems to be going well...I'm not looking forward to wearing my sleeve when I get it..especially when it's friggin' hot out...but I gotta do what I gotta do, right?

    I love the word FUGLY...love it...love it....love it...just a fun word to say... I like the "F" word even better some days...it just fits so many moods, so many situations and can be used as a noun, verb, adjective, etc...so versatile!  :)

    There is a song out now....it's by Cee Lo Green...for the radio, it's called "Forget You"..but the real song is called, "F&*# You"...and I love that version...I sing it at the top of my lungs sometimes and makes me feel better...it's the little things....  :) 

    Yes, I'm being silly..but we need to remember to bring the silliness back in every once in awhile...especially when we have our difficult days...laughter is pretty good medicine in my book!

    Praying for all you girlies....praying that scans come back clean, praying that mammograms don't hurt our boobies, praying that all the treatment we have all endured has done it's job of eliminating, eradicating, and destroying every last, friggin' cancer cell in our bodies...praying for a cure....

    Have a great weekend all!

    Tori 

  • jo1955
    jo1955 Member Posts: 7,545

    Chabba - I also have my first mammo on June 3rd.  What time is yours?  I get mine at 8:30 am.  I will hold our hand if you will hold mine.  I am going to have the rad tech do the good boob first to prepare me for the other one.  I have been going to the same facility for many years and they are pretty gentle but you never know who you are going to get.  I only go once a year so you never know about staff turnover.  We will have to compare notes.

    Sherry & Granny - Feeling a bit better today.  Have lots to do today.  We lost power at 5:00pm last night and it was not restored until 12:30am.  Hot and humid in the house - got no sleep until the air conditioning came back on.  Went swimming yesterday afternoon and that was a nice treat.  I have access to a pool whenever I want but don't use it much.

                                  

  • chabba
    chabba Member Posts: 3,600

    Jo, my mammo is scheduled for 10:15 pacific time.  And yes, I'll be there to hold your hand---considering the time zones lucky I'm an early riser.  I will definitely appreciate having you hold mine.

    I've always been a pretty laid-back person, but I have to admit this disease has me really stressed.  When I was first diagnosed I thought I was handling it well, being very philosophical.  After all, I barely beat death in 1999 when I had pancreatitis.  I should know how to handle the fear.  Now I realize I was just in a state of shock.  Once that faded the stress started building.

    At least so far none of the pain involved in my fight with BC has even approached the intensity of that associated with that experience.  And I'm not in a nursing home again or using a wheel chair because I'm to weak to walk.

  • chabba
    chabba Member Posts: 3,600

    Have a nice weekend!

  • jo1955
    jo1955 Member Posts: 7,545
    chabba - I can not imagine what you experienced with pancreatitis but the rest of your story sounds just like me.  I am originally from Southern California and considered myself a laid back person.  When BC hit, I too thought I was handling it well only to discover I was in such a state of shock that when the reality of it finally hit me the stress has been overwhelming at times.  I am hoping once I get through the 3 June appts I have, I can begin to relax a bit more.  We will have to post our results here and compare notes.
  • Teklya
    Teklya Member Posts: 362

    As so many of you have asked, I am fine.  I live in the city of Winnipeg and the flooding is more rural and Northwest of me, (Brandon, Portage la Prairie).  We have not had this siutation in the past with two major rivers (the Red and the Assiniboine) being so swollen.  The Emergency Measures group had to open up a portion of the dike (95 meters) to enable the water to flow thru and not harm 850+ homes and farmsteads while doing this will mean at least 150 homes and farmsteads will be flooded intentionally by this process.  The military are here dilgently helping folks sand bag their prorperties and build dikes in the attempt to save what they are able to.  Devastating, and yet the spirit of Manitoba is such that neighbours and strangers are working like mad together, in groups and moving onto their neighbours to help them and so on.  Folks have been supplying the workers with food and beverages, the young teens are coming out in droves to do what they can.  Amazing to witness. 

    Thank you all for your concern and your prayers.

    Teklya

  • Sherryc
    Sherryc Member Posts: 4,503

    Teykla glad u r safe

    Jo- yikes no electricity in south Texas

    Hope every one is having a good weekend. I meet a lady from BCO today. It was nice to put a face with someone I met off the threads. Maybe someday I will get to meet some of u. I spent the afternoon trying to update my mothers computer, which she will probably never use. Haha. The last couple of days I have really been having lots of pain in my breast despite the meds my BS gave me. I may have to breakdown and get the nerve block. I was really hoping to avoid it as something about sounds painful and scary. I'll see how the next couple of days go

  • FireKracker
    FireKracker Member Posts: 5,858

    just got a message from Tori she is an aunt---everything went fine with her sista....congrats honey...

    Chabba---saying prayers right now for you and Teklya---glad you survived that mess unharmed.how is the shingles?

    JO JO---damn you sure are havin one bad week.glad the electric is back on...speaking of backs how is yours now????

    Damn does anyone have any good news EXCEPT FOR OUR LITTLE TORIGIRL???

    and where is CHEVY?????I have been doin a lot of research on the lymphedema/edema and the more i read the worst i feel.One of the sistas was quoted in the Washington Post as saying Lymphedema is CANCERS LITTLE SECRET...thats just great.

    Please girls if anyone has the slightest sign of it please go have it checked.it seems that the white coats make very light of it as they dont have much training in that field.I think the onco.knows best altho my RO did own up to the fact that it does come from the rads.And it can be controlled but it always has to be watched.

    something is always lurking with this damn bc.....where is the damn cure/vacine....

    huggggs to everyone.if i forgot anyone please forgive me...remember I pray everyday for all of us fighting this giant monnster that refuses to leave us alone.

    hugggggggggs Kantalope

  • jo1955
    jo1955 Member Posts: 7,545
    Kantalope - The back is so much better.  I still can't go play golf with hubby - maybe in a few more weeks.  Been having a good weekend so far.  Getting lots of things done and feeling like I found some of my energy I seemed to be missing.  The upcoming week looks good so far.  My new office help has already started and is learning fast.  The one that up and quit on me is leaving on Thursday and not a day soon enough for me.  Wish she would go now but then again I don't have to work with her anymore.  Like all things, this too shall pass.