After Radiation
Comments
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Hey girls, I have a question. I looked through all the available threads and didn't find one but maybe I overlooked something.
What was your experience with Taxol? Well, mine was the generic, paxlitaxol (however you spell it) and my toenails are black, some of them and now, almost 4 months after last Taxol tx, more toenails are getting black. I would think the damage from chemo would be ending by now. My taste buds are fouled up again after all this time too.
The big toenail on my right foot has a drainage coming from under the toenail. The toenail was black but is now turning a cloudy white, like the big toenail on the other foot (it did the same thing). The toe or toenail do NOT hurt. I couldn't begin to wear sandals as bad as these look.
My Onc says he doesn't think I will lose my toenails but I've already lost one and several of the other ones look like they are a toenail on top of a toenail? What has been your experience and should I be seeing a podiatrist?
Juanita
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Juanita - I did not go through chemo but it sounds like you need to see someone about the toes. That doesn't sound like it should be happening. Maybe a referral to a podiatrist is definitely in order. Perhaps someone else will come along with an answer. (((HUGS)))
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Morning Juanita! I just googled it! Seems as though this is a pretty comon side-effect of Taxol. There are about 5-6 different web-sites that talk about this. Here is one...
http://csn.cancer.org/node/212297
Your Oncologist might not be telling you the truth, or maybe he just doesn't know. Tell HIM that you have researched this, & maybe he could "cut down the dose"... I printed off a LOT of things, when I was having so much trouble with my hearing & Tamoxifen!
Sometimes we have to be our own advocate, cause these Docs just can't keep up with everything. Best of luck kiddo......xoxoxoxo
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Jwatrlily: When I had my chemo (Taxotere) I was provided with neoprene mitts and boots that were straight out of the freezer!! It was sooooo uncomfortable, but it worked. Though my nails truend very dark, bluey and gray, I did not lose one! Keeping the nail areas this cold prevented the drug for reaching that far, penetrating and doing damage.
I do know some gals who lost nails and it was not pretty, nor was it without pain. Good luck to you.
Teklya
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I also iced my nails during infusion and it has kept my nails fine... Nail damage is a common side effect of Taxol and Taxotere... And from what I understand, if you get the damage it can take months to heal... but should eventually... Go to the taxtotere is a nightmare thread and read about people's nail issues... Taxol and taxotere are cousin drugs, so it should be pertinent.
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Granny no I said that my out of pocket expense on a contrasting breast MRI is about 2K. Cancer is expensive, geez
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Princess Kantalope! I was reading the posts under Lymphedema, & found this! There are several web-sites that the women on here are sharing! Might want to check them out! Maybe be good for Edema also? xoxoxoxo
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Chevyboy - Where is Princess Kantalope? Sleeping again? How much beauty sleep does she need?0
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Granny has been up today. Not to worry we PM'd each other back and forth today. She is in shock over my insurance.
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Just heard from Granny - got a PM from her. Now I know she is okay.
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Chevyboy - I propose a toast - to better days!!!
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Here's to you too Jo! Like someone always said....Don't sweat the small stuff. Gotta keep it going kiddo..... It's all about attitude..... Tomorrow has GOT to be a better day, right? That's what we are here for....support & caring.
Here's to us!
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Great news! Just got off the phone with surgeon's nurse and she said results of mammogram, " no evidence of malignancy"
YAY!!!!!!!!!!! thanks for all your prayers and support - look at the outcome!
still breathing. . .
Teklya
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That is great news Tekly I am doing the Happy Dance for you!!!!!!!!!!!!!!
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Teklya - DOING THE HAPPY DANCE
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WELL WELL WELL!!!!!!DOIN THE HAPPY DANCE FOR TEKLYA....Dance with NED my sista.
I know i have been AWAL for a few days soooo im tryin to catch up but Teklya comes first...see its the breathing girls.ha.
Tomorrow im finally goin to a surgical supply place who i spoke to #5 that seems to have what i need.I will never ever order them from the internet again.what a royal screwing i got.but long story short i called my credit card co.and they credited me $85.00.for the 2 pieces of crap i was sent and it was marked DD with a magic marker.could you believe with a no return policy.yea right....
gonna read back a few pages and try to catch up...huggggggs to everyone.
Sherry im gonna have to pay out of pocket for the bras.ha.
love my sistas.Kantalope
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granny I bet it will be cheaper than my MRI.haha
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it sure will be.the first bra the PT recc.was with a discount because im a senior was $224.50.screw you..this lady told me she had compression bras starting at $40.00 to $100.00.I never wore cheep bras being a DD so ill try to get something in between.right now ill take anything.i need at least2 more.imagine havin a temper tantrum over thes damn bras.ha.WE DO HAVE BIGGER FISH TO FRY.0
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granny I need a middle age discount, Do you think I can find one somewhere???
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Congrats Tekyla! Doing the happy dance for you too! Adding a bit of salsa music to it too!
Tori
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sherry---middle age gets nuthin.work work save save spend spend and hope there is S.S.$$$$ when you retire.
TORI----the music is callin me....you know how much i love salsa.gonna start dancin again.thanks for reminding me...
big YAY again for Teklya-this dance is for you...
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Granny - Sounds like my life's story. Work, try to save, spend when I have to and hope there is sometihing for retirement. Thank goodness I do get a retirement pension from the Air Force.
I see you salsa dancing and you are quite good. Maybe you could teach me a few dance steps.
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come on over.be glad to teach you.i have all the music.even my dancin shoes are real comfortable sooooooooo lets go!!!!!!!!!!!
COME ONE COME ALL.THE MUSIC IS ON!!!!!!!
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Granny - Can I wear flats? I don't think my kness will let me wear any kind of heels.
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YES----and everyone is invited!!!!!!!!come now...ok?0
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Okay! I brought dancing shoes for everyone.
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Omg ill take the silver ones.put my old ones away.get me a size 51/2 and im good to go.NOW WHEN ARE YOU COMIN AND WHO IS COMIN WITH YA??????0
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Granny - you wear a 51/2? I"ll take the red ones in a 10!
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Omaz you got the red ones.yes i take between a 5-51/2 shoe.funny story i couldnt find black boots that i liked this yr.i went to the kids dept and found a kids size 5 that fits me great.im a little person 5ft. with a big mouth.ha.
come dance with me?????there was a spanish movie with Vanessa Williams and Chayanne my all time favorite latin singer...if you want to hear good music check out that movie.i was workin then.i took the day off to see it.
soooooooooo come dance with me.not tonite.gonna shut this puter down now.my feet hurt.get a head count and ill be waiting for you OK?nite all.xoxoxokantalope
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granny that is the story of my life, work, work, work, save, save, spend on medical bills and hope something is left for later. so guess I better get back to work. Looks like I missed some dancing last night.
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