After Radiation
Comments
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Joyce - Keeping fingers crossed for B9 results. Will be thinking about you tomorrow.
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Joyce - You are absolutely right - before BC most of this testing crap I wouldn't have given a second thought to either. How this changes our perspective on things.
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joyce I am praying for B9 results for you
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Since this is an after radiation thread, just wondering if anyone had cording prior to going into rads, then it either worsened or turned into LE?
I was not supposed to require external rads after chemo as I had a procedure known as IORT. It is internal radiation delivered directly to the tumor site immediately following surgical removal. Due to path the actual tumor size, over 2 cm, I fell out of protocol and the RO is going to recommend external rads, the IORT will replace the boost.
I am however, suffering from very bad cording for which I am currently undergoing PT. I am worried it will turn into full blown LE if I proceed with rads. I am considering an MX as I worry about this possibility.
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Oh my ... well I've just read an eye full! (Now that I can!!) Four visits to the Opthomologist and 5 weeks with steroidal drops in my eyes, my cracked corneas have healed, and surprise - surprise my vision has returned to its previous 'normal' ... all rads related. So ... I have a new dilemma... and I figured I might find confirmation here - since my regular Doc disagrees. Anybody have their cholesterol checked since completing rads? I had mine checked just before BC and it has since gone up 70pts. I've been on statins for many years and have had little fluctuation. Meanwhile since BC, my weight is down and my diet has improved substantially .... So I ask; is this yet another SE that the RO's don't mention & it may return to normal after some time? (They want to double my meds .... ) I've been on tamoxifen for 3 months now but it higher cholesterol levels doesn't show as an SE for that drug... Thoughts??
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Joyce praying for you too!
Debbie I have no idea on the cholesterol, I really don't even want to ask right now....I'm having full labs in July.
Debrox ~I have a friend that had IORT as well. I had some swelling right after rads in my arm and breast and a seroma where the lumpectomy was preformed, but no experience with cording. Did IORT wipe you out? My friend must have slept for about a week...
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BlueLily I had my cholesterol checked last April before bc I always run very high on my good choleserol and low on my bad. I had it check this April after finishing rads and even though my numbers are still good by good is not as high as it has been and my low was higher than it had been. Did not even occur to me that it might be rads related. I have always stayed on top of this because my dad died at the age of 49 of a heart attach. I just turned 49. Something to ponder.
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Sagina: yes the IORT wiped me out. I was exhausted for at least a week. But as a say that I asked my hb, he feels that I was exhausted due to emotion of dx, making life decisions, surgery etc. I received good and bad news after surgery. The bad news took its toll emotionally.
While I did rest more and have extra fatigue following surgery, I'm not sure if the fatigue was psychological or due to IORT. I guess we will never know. All this has been such a roller coaster ride.0 -
BlueLily - I have been on statins for several years now and was doing well until I started Tamoxifen. My numbers have been up and the doctor has tried me on several different ones. This last appt a couple of weeks ago, he doubled the dose and I will have it rechecked in 3 months. Even though my numbers are up, they are not in any "danger zones" but need to be watched.0
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Well---this is gonna be a long one.
Sherry--first we think its the rads,then we blame the tamox.the drs.sure dont tell us even if they know which they dont.Im not on any meds so i blame everything on the rads.During the rads my eyes were so abnormally dry it felt like i had sand in them.now they are back to normal.was it the rads????I do need to go to get my eyes checked tho.Its been about 4 yrs.shit.
Joyce...prayin for B9
BlueLilly-My cholesterol went up when i was on the Als for only 3 weeks.AND YES ITS ONE OF THE SE OF THOSE PILLS.
And the beat goes on!!!!!!huggggggggggggs K
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Hey guys ............2 weeks today from Rad completion....................I have this funky taste in my mouth, more so right after I eat.....................Now what the hell is that....................never had it before....................just had Rads, nothing else........................did anyone else get this.............what a pain in the ass............its horrible...............................does the shit ever stop............really
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ducky - It really does eventually end. I did not have the experience with the funky taste. It took me almost 6 months for someone to figure out I had nerve damage in the BC boob from rads. Oh, the things we are not told. For me, life is finally good again. Hang in there - you will get past this.
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OH JOYCE----Thank you GOD...ive been prayin for you like crazy.....have a wonderful nites sleep with wonderful dreams.love ya sista.
Ducky----i remember reading on one of the rads threads about a funny taste in the mouth.I never had it but im sure someone did.and of course the drs daid it has nothing to do with the rads....i wanna know what does??????according to them its only the fatigue and possibly burns.yeah right.This too shall pass.
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Joyce - Congrats on the B9 results. Doing the happy dance with you.
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Joyce congrats on B9 woohoo!!!!!!!!!!!!!!!!!!!!
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Sherry---you are next....waiting to hear that you are doing betta and can finally eat some real food....i feel your pain...as you know i have many many stomach issues.the shit has to stop.lol
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Granny I am much better today but still not back to normal. Am having to eat really light foods. They are not digetsting well at all.
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Sherry - Chicken soup always made me feel better.
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Joyce: That is just wonderful news! So nice to see some GOOD news!
I'm 5 weeks out of rads - skin has healed nicely, the shooting pains have stopped, it only hurts if I get hugged too tightly! Some stomach issues for awhile, but they seemed to have stopped as well...Am I just lucky or do I just heal quickly? Dunno - all I know is I have gotten a lot of energy back...Feeling better every day...
Hugs to all,
Rita
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ritaz - Isn't it nice to be done with rads? I had fatigue for a couple of months after but and full of energy now. I am 6 months out of rads.
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Jo thanks for the soup looks delic and something my tummy can handle
Rita that is grea that you are healing so quickly. I usually do as well, but have had some complications.
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Hi Ladies,
I am also 5 weeks out of rads.Doing better everyday.I have some ache in my collarbone.
But not to bad.Started taking my pills 3 weeks ago.We will see how that goes.Everyone have a great holiday weekend.I think I'll make soup today....looks so good!:)
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yeah Joyce!!!!!!!!!!!!!!!!!! Wonderful news!!!!!!!!!!!!!!!!
I have to get my medi port in July - an in office procedure???? Any advice?
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Sherry, don't know if this will help, I'm sure you've had more suggestions then you care to count! But i will share anyway!! My bluecross nurse gave me a couple suggestions that helped so much when my stomach/digestive tract came alive! She said to eat something small, light every two hours so your stomach doesn't get into a cycle of producing more acid because no food is filling up the stomach, and don't drink right away after eating,and the one that helped the most is to eat yogurt everyday...never liked yogurt..never ate a full container of yogurt until this stomach thingy. I have been great since, no problems with nuts, popcorn any foods that used to kill me!!
Hope things work out for you soon, you deserve a break.
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msjag that is pretty much what I have been doing. It is getting better each day just not back to normal. I take 8 billion culture acidophillius every day and have for years. No way I can eat that much yogurt though I do like yogurt.
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Sherry - I have been taking 1 billion acidophills for about 4 years now. I love yogurt but don't seem to buy it often enough.
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Hi all,
I was wondering if any of you have had problems with swelling by your collarbone if you got radiation there (I don't think this counts as lymphedema or does it?) . My rads included the superclav area andall the way up to my neck and the small area right above the collarbone is now swollen and doesn't seem to want to go down. I' finished rads end of April and my RO saw me a month after. She didn't seem concerned about the swelling being anything bad but I'm wondering...how long before muscles & tissues recover from the rads? That area is really painful at times. I'm icing it and trying not to use my arm too much. Any suggestions?
Thanks, Lee
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Well well well we made over 1000 posts....thats just great...I know this thread has helped soooo many sistas after the rads......
welcome new sistas....Lee----I dont know anything about what you have but im sure some of the sistas can help you....I dont know if you should ice either.Perhaps you should check out the i hate lymphedema thread....Binney and Kira are experts...
Sherry---i hope you are doin better with those damn stomach issues....I started to take benefiber and its helping along with Activia,Align,Nexium and a tsp.of coconut oil.oh i forgot in between when ever thing else the good old fashioned Pepto....My stomach Dr.told me the Acidophillius is only good if you buy the one you have to refrigerate....very expensive...also aloe is supposed to help altho i never tried it....and yes 6 meals a day...small ones....and i still watch what ever i eat.cannot blame that on the bc...
congrats again everyone for keeping this thread alive.huggggggggggs K
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GAK! I can't seem to get in here and post as things are crazy in my life. Elderly parents health issues. Spent the day yesterday getting my 84 y.o. Dad an MRI that didn't happen and had to have a CT scan instead. I read all your posts as I have it set to email but I can't seem to slow things down for me.
I'm 2+ months out of rads and I know some of you have talked about it but I have off and on breast pain in the rads breast and sometimes it still feels a bit tender and swollen and a lot of itching of the breast. Is all this pain off and on, itching and swelling, normal? No lymphedema issues, he's checked me for that. But he too is one of those rad onc's that says rads only affect the skin and any pain I'm having is from the surgery (back on Aug. 9, 2010)?
About the stomach issues? I am off and on constipated and was throughout chemo. It's still happening and I have to take stool softeners and Mira Lax pretty darned regular. Stool softeners every night (and sometimes that doesn't work) and Mira Lax 2-3 times a week. This constipation issue started about 2 months before I got my diagnosis, just out of the blue. It hasn't stopped since. I would be the one that instead of diarrhea, I'd get constipation during chemo. Bleeding hemorrhoids and the whole nine yards. That's all better now but has the cancer being there, then the chemo and now the rads caused all this? Oooorrrr is it the fact that I turn 60 in 3 weeks and my system has just changed with ageing?
Take care and huge hugs to all of you. I'll be back.
Juanita
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Juanita don't know about the constipation other than trying to add fiber into your diet. My FIL takes benefiber every day in his coffee. I would say some pain and itching is normal but if it is burning type pains and stabbing pains that don't really want to go away that is nerve damage.
Lee I did not get rads that high up but I finished the end of jan and my breast is still swollen from rads so I would say it is from rads. I used ice at first and it helped but then stopped helping. I have been reading about castor oil pacs I am thinking about giving it a try. You soak a clothe in castor oil, but wring it out, put on the area and wrap the best you can with plastic wrap. Then put a heating pad on for 20 to 25 minutes. This is suppose to help with swellling and inflamation. I saw it on Dr. Oz the other day and then googled it.
Granny I had a tomotoe for supper, woohoo I am on the mend
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