After Radiation
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GMA---hope today finds your head in a better place.We all know how you feel and thats why we are here sista.
I am still juggling bras.ha....after 7 months...it gets to be a joke after a while....That should be our biggest problem AFTER RADS!!!!!!.When I look at that harness I had to wear 24/7 i crack up....never thought i would ever graduate to anything different...IT DOES GET BETTA!!!!!!!!!
hugggggggggggs K
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Hugs and prayers for you Gma!0
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Thanks Ladies for your ideas - When I go north maybe I Will look at target.... The bras I have are just too tight so if I can find something comfortable to get me by that would great... I am in better spirits today - think going to the relaxation therapist at the cancer center helped.... Love all of you and thanks for the prayers...
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GMA Foley
The bras are in the maternity dept of Target.That shows how desperate I was to find something
I go tomorrow for my first mammo after my surgery. .Hope it doesn't hurt too bad.:( Then several appointments next week with all my doctors for follow ups.
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I finished rads in late Jan and ended up with permanent nerve damage. I am taking meds for it and for the most part they work pretty good and keep it under control. However once every week or two I have a really bad day and have to resort to the narcotics. Well last night I took my meds and about an hour later I ended up with the sever stabbing pains in my breast that just make me loose my breath they are so bad. Took a narcotic but that takes a little while before it starts working. Practiced my yoga breathing trying to work through the pain. I think I just ended up passing out from the meds before the pain stopped but woke up this morning and all is fine. I am just getting so tired of it. I won't be having my MX for 6 months and this pain is getting old. But looking on the bright side it is not every day so it could be worse.
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GMAFoley~~~~~~~~~~ hugs first~~~~~~~~ now, I'm gonna lay this out there for the whole world to know~~~~I'm a big girl, everywhere, all the way around. I can tell you that I'm a triple D, not like Diners Dives and Drive ins, the REAL triple DDD, so real little Victoria can keep her secrets....those bras are small.....If you want comfort during this time of boob healing, and who said healing was gonna hurt this much?? by the way??? try a Women's size store, Catherine's, Lane Bryant, Avenue, they don't know HOW to make small bras.....Just for now you might be able to find one there, cotton as well, that has a little more room on the sides, a little more comfortable on the bands, and padded shoulder straps even.....
I can't wear my beautiful expensive (cause they have to use more material for mine! lol) underwire balconette they pick you up and leave you up bras right now.....I can't BREATHE in them....Between my one huge boob, and my lumpectomy oh wait it filled with fluid so it's filled out and tighter than tight and hurts to sleep, move, type etc, bras have quickly become the enemy, the necessary enemy....oooo I feel a new journal entry coming on....the necessary enemy!
Feel better GMAFoley, giggle and laugh a little, even when it hurts.....hugs.
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Hi Everyone! I am not sure if this is the proper thread for me and where i am at this stage og the game(i use that word loosly) but ive tried everywhere on bco,even started a thred but noresponse so maybe this is where you all are? Anyways i had left mx with t/e's nov 2010 started rads jan-march waited till june had implants placed.
implant is very uncomfortable,still tight up on my chest pulls mt torso and arm when i reah. i have had tons of pt ,got almost full rom but still extremely tight chest muscles and my aerm pit is like a ball .I feel like im wearing an iron bra on that side actually alot like the darn t/e. so far i have had 2 second opinions and both said the implant were to large (YES i do not cosmetically like being this big either) but also they nee to be placed lower ect....Both of there thoughts sound good to me BUT is it going to take the discomfort away ?? no promises im sure but i have read alot about different procedures for b/crad pts that work alot better with the radiated skin, alot of bco ladies have had it love it but none had radiationso i would like to hear from all kinds of b/c rads ladies that have had there final reconstruction done and are now living with it HOW are you ? thanks
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beacher sorry I can't help you. I am going to have a BMX in March but will be doing DIEP. My PS says that I am not a good candidate for implants because I have alot of rads damage. Also I build lots of scar tissue. Maybe someone else can help. Have you tried talking to Whiptomom and see if she know anyone you can speak to.
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SHERRYc, thats exactly what i wanted to hear..from people that have had rads and what they are doing for reconstruction thanks you! so it look like you had a lumpectomy and now having a bmx why is that? with the lumpectmy u had rads and left alot of scar tissue,so u know implants would not be good for you,is this correct ? am i understanding you correctly thanks so much
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beacher - Welcome to the After Radiation thread - Sorry I can't help you either - I had lumpectomy. Hang with us and I am sure someone will come along and help you. The gals here are great.
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beacher I had a B9 lumpectomy 14 years ago and developed alot of scar tissue in fact my tumor did not show on mammo because of this. So this time cancer another lumpectomy, old scar tissue was removed but more has developed. I also ended up with permanent nerve damage from the rads. So am on medication from that. BS says that with a MX they can severe my nerves so that I can get rid of the pain. PS says I need to have BMX because I am not a good implant candidate and he can only due diep once so if I were to get it again in the other breast he would have to use tissue from another part of my body so I have decided on the BMX. I finished rads the end of Jan and have alot of damage. PS says my body is not ready for surgery. I go to see him again next week so will see what he has to say. At least some of the swelling has finally started going away in the last month. I really cannot be out of work between mid Jan and mid March so we have kinda decided to wait until March which with my damage my PS feels much better about waiting and giving my body plenty of time to heal. He says my outcome will be much better. So if I can just handle the pain between now and then. Which for the most part the meds control but I do have some bad days that it is narcotics and go to bed. The rads really messes with your pectoral muscles and mine are still very stiff. I do yoga twice a week to try to keep them stretch. So I can only imagine how uncomfortable I would be if I had implants under the muscle. I do remember how uncomfortable you were during rads.
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Hi Beacher---Gosh I wish i could help you but i only did the rads.Did you try I hate the LE thread?????those gals know everything...yes everything.Im praying someone on this thread comes on here to help you out...let us know if you dont get any answers.There has to be an answer....sending you a big huggggggggggg
Sherry---sista/friend this bc sure does suk.feel betta...everyday not only once in a while.
GmaF..it does get betta
Gina---thanks for the chuckle...I hate being a DD...I feel your pain.
waiting for the day that I come on this thread and everyone is doin just great!!!!!!!!
hugggggggggggs K
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My work called today and they have to cut my hours tomorrow...kinda worked out for the better because I can have another day with the grandsons... I will be leaving after my walk in the morning...3.5 hour drive - gives me lots of time to think...hubby actually has a little work so he is not going with me.... then sunday night i travel to my son's house where I will be training for my new computer job... When I am decently trained, I will be heading home... Somewhere between Weds and Friday of next week... Have a great weekend and week!!! Love you Gals...Hopefully, I will have time to look for those brass at Target...
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Ladies, wonder if anyone can offer advice here. I ended chemo in March, rads the end of May, and did not have a MX. Got over the tightness in my left pecks and chest, no other issues. But last week I started having really painfull areas just above the inside of my elbow. If I try to extend my arm all the way it feels like I am tearing something. Haven't seen this on the boards yet and wondered if anyone else has had this SE.
Aimee
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Hey all,
I started another thread today called, " The most ENCOURAGING things said to you during your journey". I thought we needed to hear some good things and I hope you can all stop by and check it out and add some words of your own.
Thanks!
Tori
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AimeeMac-I'm sorry I cannot offer any advice, but I"m sure someone will be along shortly that can give you an idea of what may be going on and how to fix it!
{{{{HUGS}}}}}Tori
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AimeeMac- It sounds like either cording (which can extend even down to your wrists if left untreated), or because the scar tissue or radiation/surgery site was tight before, you may need to consult with a lymohedema specialist/therapist. No one else quite understands these things- how the treatments we have all had will affect us and how all of these parts are connected and affect each other. You could also have the starting of lymphedema or of cording which has traveled- I am having therapy for it that very thing and it helps a lot. The elbow is VERY painful.
Hope you will be able to get this reolved soon.
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Tired of being a Dolly Parton on the right, and a small Jane Russel on the left..............tired of bra bands that by 5pm feel the shrunk during the daytime, but most of all.............sick and tired of taking my bra off and looking like its still on, on the right side.
Was told yesterday I have to start the LE therapist 2 days a week again, because she sees swelling on the right side of my boob, ...............not my back, down the side about 4 inches under my armpit............................does this shit ever end................
Went last night with my grandaughters bridesmaids, and other daughters for a mani, and a pedi. Had a facial earlier in the day.............I said "you guys should start doing make-up in here, that would bring in a lot of business.............................the girl taking care of me said "I do makeup"..............."who do you want to look like", "Holly Berry"..................I just looked at her and laughed.............then said..............................
If you think make-up is all it will take to make me look like Holly Berry, your a dreamer............then I said "you would have to start at the top of my head, go down to my feet, and I'd still come out looking more like "Holly Bush", lthen Holly Berry.........................well that got a huge laugh ......................HOLD ON DAMN IT, IF THEY LAUGHED, THAT MEANS THEY ALL AGREED.........................Holy shit, where's the Vodka.
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ducky you always make me laugh
AimeeMac welcome to the thread I am sorry that I can't help you with your question.
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Oh Ducky, I'm so worn out and exhausted, like the last week of rads.....I needed that good out loud laugh! you're wonderful!!!!!!!!!!!!!!!!!!!!!!!!!!!
Aimeemac ~ I've always had arm issues radiating from the elbow for 20 plus years - severe tendinitis....I'm noticing now that my periods have come back, that the pms water ballooning is real, and that's when my arm, elbow etc start hurting the most. My chest up into the clavicle is still tight and painful....i finished rads in June.
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ok..i guess it didnt work..i was hoping to hear only good things.YEAH RIGHT.the only good thing i read is the new thread TORI started.cannot wait to go on it....BUT business first.
GMAF---go and have some fun...you will find those bras...EVENTUALLY....just dont buy too many..i bought at least 10 and most of them are all wrong now...
Ainee-welcome...sorry you have to be here and i really cannot help you BUT you should 1- call your DR.2- go on the I hate LE thread.they are the pros.on all of these issues.
Ducky....sista/friend....you always always keep us laughing...no matter how bad things are there is always a joke at the end...You know that the PT does wonders and it works...and it does feel sooo good afterwards....Ill have that drink with you!!!!!come on over..are you in PA or NJ????
Pain free days sistas.huggggggggs K
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Granny - You should know by now that as long as someone has to go through rads - it will never be all good news on here. All we can hope for is that there is more good news and less bad news. This is a great place to vent and talk about all the things that happen to our poor bodies.
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All im asking for is just ONE day!!!!!!why cant we all have just one day of all good news???
Today none of my bras feel comfortable.ha.is that good news??????I only bought about 15....not one feels good except an old sports bra i paid 3 bucks for....
ARE WE HAVIN FUN YET????????
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Granny I am actually not hurting today so that is good news. Wed was a different story, had to resort to the narcotics and to bed.
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Granny - I had a a wonderful day today. No complaints, no aches, no pains. In fact, if I was doing any better I would be perfect. Does that count????
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Thank you Sherry and JO JO...nice to hear.Keep the good news comin...0
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Hey Granny girl..................I am from Pa.........................primary home..........a vacation home in N.J.....................
My Pa. home is in Delaware county............it is a town right outside of Philly , but I will never own up to loving this place more then Philly...........I am Philly born and raised...........we have a saying here..........you can take the girl out of the city ...........but you can't take the city out of the girl.....................
My N.J. home is in an area between North Cape May, and the Villas..............They named it Cape May Beach, because they didn't like the fact that we pay more taxes then everyone else..................Like the name change makes a friggin difference..................It is a really nice area, quiet when you want quiet, but just close enough (5miles) from the noise, if you feel frisky...
My Pa. home is in Drexel Hill..........I originated in Philly, then Yeadon, then Springfield, and finally bought a ranch (downsized) in Drexel Hill.............some of my boys are builders, and completely gutted the house, floor to roof, and put everything in brand new................it is gorgeous, but can't get used to 1 floor.............I back up to a historical spot called Collenbrook Farm......there is a stream behind my house, and it is all wooded.............peaceful, quiet, you know the kind of "shit" that drives you nuts when you hate quiet.
Tomorrow is my grandaughters wedding......I was told today I am the first one walking into the reception because I am the one who started the whole family........................you know I'm just overjoyed with that....................my feet are already hurting and I didn't even put shoes on yet..................I walk like I'm 90, and trust me not graceful at all.................I will be wearing "heels".................not good................haven't had those "puppies" on since my daughter got married, and I walked ehr down the aisle in 1994............think I'll skip my medicine start drinking at 7am, so if I do fall on my ass, at least I can blame the booze...................
actually think I'll start now...............gotta find that vodka.
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Grannydukes
I had my follow -up mammogram today.6 months after surgery,Came back NORMAL. I was soooooooo relieved and happy.I didn't care if my bra was uncomfortable or not today....It was a wonderful day!Have a great weekend:)
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Ducky---it dooesnt look like we will have that drink after all.ha.I live in Old Bridge NJ.where ever that is.ha.I come from Brooklyn NY and right now im glad im not there with all the crazy stuff goin on...My other home is in Honesdale PA foot hill of the Poconos.soooo we are not neighbors anywhere....Put your dancin shoes on and dance your ass off tomorrow.You will probably pay for it the next day but that will be a good pain(if there is such a thing).just enjoy.
Saying a special prayer for all the people who are traveling tonite in NY.HI SECURITY.Bomb threat.my son and GS both are goin to work tonite.please remember them and everyone else as 9/11 is right around the corner.
If its not one thing its another...
at least im not complaining about bc.....altho it sure does suk!!!!!huggggs K
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Walley - Congrats on the mammo - such a good feeling isn't it. I was elated when I got my results back.
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