After Radiation
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Congrats Gina and Barb on the good news!
Sandi praying for the same results for you!
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I finally got home...open my puter and see all the good news....congrats sistas.......hope its the last stop for all of us...its supposed to be right??????
Sherry-----just want to hear something reall good from you sista......your ride was quite bumpy....ya gotta catch a break!!!!!!
to all the rest of my sistas...as always i say a prayer for all of you NED FOREVER!!!!!!!!
im dead tired...just tryin to catch up a little today.hugggggggs K
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fantastic news barbe and gina
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I'm hoping and praying that you get good news tomorrow too Sandi!
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I'm glad to hear that you're back home grannydukes. Enjoy the peace and quiet!0
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Granny so glad you are home. And actually things are going pretty good. Been doing PT for 6 weeks and just got approved for another 4 weeks. I almost have my range of motion back so I feel pretty sure I will have it back by the end. Also the stretching is not hurting like it was. I can still feel it but it is nothing like before so PT has definalty helped me out. I also went for a 3rd opinion on a PS and DH and I really like this guy and he is willing to do the implants on me instead of the diep. So I will be having it at the end of March. He still wants me to meet my one year post rads before doing the BMX. He says I am at high risk for failure but that he has done others in my situation and has not had a failure yet so I am praying I will not be the first. If the implants fail then we will look at flap options. He also thinks he can save my nipples which I had given up hope for and did not even ask him about it. He was the one that brought it up. So things are actually looking up for me for a change. And I cannot tell you how relieved I was after deciding on him and making my decision. It is like a hugh weight has been lifted off of me. This BMX will bring my local recurrance rate down to like 2-3% and my distance recurrance will stay at 14%. But I feel like I can live with those numbers. Much better than my current high risk for local recurrance. Now if I can just get my hot flashes under control!! haha
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Yaaay!!! Congrats Gina and Barb!!! So nice to get good news 0
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granny - So glad you are home.
Gina & Barb - Great News! Doing the happy dance with you two.
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(((((((((((((((((((((((((((((Sandi)))))))))))))))))))))))))))))) even tho im exhausted im with ya honey!!!0
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Welcome home granny.\
Congratulations on the good news. Prayers for all those facing tests.
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thanks for the info SherryC. For some reason I feel like I should just be recovered within a week or two of everything. I guess that comes from never having a serious illness in my life. I thought radiation was supposed to be the easy tx! I swear I am getting more swollen and my skin is tight and feels sunburned. I'm about to finish my TE fills and I had extra skin removed on my MX. Maybe that is what is causing all the discomfort. I'm doing PT twice a week trying to get my frozen shoulder fixed. To top it all off I have a patch of itchy bumps. I'm tired of whining!
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Hi everyone, I just finished today. Yay!! I had a question about a rash that I have. Has anyone else had this? It's a dotty red rash all over my treated breast and extending about 3 inches below the breast, 1 inch above it and also onto my untreated breast. It's itchy and looks like tiny raised bumps.
My RO looked at it twice; the first time he said "just give it some time" and then two days later he said he didn't know what it was. He told me to stop using all the creams I had been using (Miaderm and 1% hydrocortisone ointment, plus Dove moisturizing body wash) and only use triamcinolone ointment. I started that last Friday. The rash looks a tiny bit better but is still really itchy. He also gave me a prescription for prednisone but I haven't started it yet.
Any idea what it might be?
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dawmson - Sounds like the same thing I had. I read the Nov rad thread and took some advice from some of the gals there. I insisted my RO give me a script for Topicort cream. It is almost like hydrocortisone but so much better. I used it for about 3 days and the rash was gone. Ask about this. It really is a wonder cream.
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I have something similar. Although, it isn't on the breast, but all around it. The RO said it was a reaction to radiation where I'd been sunburned before, so maybe it isn't what you have. During tx, I was using hydrocortisone cream, and it was helping. I seem to have noticed after tx, it was making it more pronounced, or maybe it was the eucerin cream I was using. So I have stopped using any lotions for now, and it seems to be away. As soon as I put lotion on, it comes back. I am just going to stay away from anything for a while and see how it goes.
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Dawmson-I also had the rash. Used all the over the counter stuff the RO said to use and nothing worked. I looked around inside my medicine cabinet and pull out a prescription steroid lotion I had for poison Ivey called Clobex. That cleared it up. I doubt you could talk your RO into giving it to you as mine was kinda freaked when I told him what I used. But hey it worked and I continued to use it off and on during rads when I became so miserable. But several months after rads I broke out again in a rash (not as bad as during rads). This time went to the dematologist who said this can happen for several years off and on after rads. He gave me 1% Triamcinolone Ointment and it worked. My rash was come and go for a couple of months and now have not had any for about 5 months.
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I had the same thing, my RO told me it was radiation dermatitus, he gave me a script for a hydrocortisone cream. After a couple of days it was gone!
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Yay! My mammogram is clear! Doing the happy dance! 0
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Yay Panmars!!! I'm happy for your good news!!!0
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My mother-in-law was diagnosed with breast cancer in 2004 and fought it for 7 years until it finally won last month. She was very courageous during those years and of positive high spirits. During that difficult time for our family, my father-in-law, who is an experienced Pharmacist in Canada, developed the "over the counter" skin treatment called "Radia Kit" to help his wife. The cream/gel kit is formulated with all natural ingredients to restore skin damaged from radiation. The gel/cream kit is applied before and after radiation and the cream is sold separately for those who already completed radiation. It is patent pending in Canada and the USA (patent pending 2639525) and we have sold it mostly in Canada and Europe. Now it is available here in the USA to help minimize the side effects of skin damage from radiation. My mother-in-law was the first to try it years ago and it really helped her to live a better live which made us proud. We hope others will discover it too. It is only available online at www.skin-safety.com. We don't want to only sell a product, but we want to hear from you. Please feel free to send us any questions you may have about improving damaged skin and we'll be glad to respond to your inquiries.
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yay Panmars doing the happy dance for you. woohoo
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Thanks everyone for the rash advice. I had a rough night last night -- way more itchy than the past couple nights, and the rash seemed to have spread when I woke up. I took an antihistamine (Zyrtec) and slathered on the triamcinolone and now it doesn't itch at all. Bizarre. Scary to hear the rash might come and go, though. I had poison oak earlier this year - one tiny spot on my wrist turned into giant hives all up and down my arm. I had to do two courses of prednisone to get rid of it. Hope the ointment does the trick with this rash!
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Hooray Panmars!
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Triamcinolone is what I used, I couldn't remember the name.
Panmars YEAH!!!! Happy Dance for you!
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Dawmson: i understand how annoying this rash can be.... can swear by Evozac spray to help you get relief.... hope it helps...
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Congrats Panmars!!! So happy for u!!!
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I bought some Solaray Reacta-c to boost my immune system. Anyone else tried this?
It contains indole-3carbinol as well
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Congrats on the Mammo Panmars!!! Great News!!!
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Hi everyone!! I took a break from the posts since i returned to work 5 weeks ago!!! 5 weeks post radiation, all the burns are healed, still some redness and warmth to that breast.
6 month post op mammo is TOMORROW cant believe it!!! Keeping my fingers crossed, i have a feeling it will b emotional!!
I agrre that doctors that say rads is easy r clueless!!!!! Everyone reacts differently, i was ok til end of week 4 when fatigue set in, i cut back on work hours then by week 6 was having a lot of burning and pain which lasted for a week, lived on vicodin.....but made it through and had taken the last 3 weeks and 1 week post to recover...fatigue dwindled but trying not to overexert myself. Take it one day at a time, it is a temporary time in your life and can b emotional these boards are awesome for info and strength from women who have lived it!!
Been on zoladex injections and femara for one month now, no major SE occ hot flashes that are shorr lived so far...
Take care everyone and will be in touch again soon!!
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White blood counts are up from 3.1 to 4.1 after two weeks of using high dose C and liposomal glutatione. Now if I could just regiseter about an 8 on the next lab....
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just wanted to let everyone know i still have brain fog but im reading all the posts.....i read an article that not only do you get brain fog from chemo you also get it from the rads......now if i could only remember where i read it.I did read it aloud to my GD cause she always tells me i lost it....well now i showed her the proof......
yeah its the last stop all right but i sure wish i could leave all the s/e behind.....
still prayin for all of us fightin this ugly battle.hugggggggs K
FIND A DAMN CURE!!!!!!!
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