After Radiation
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Hi everyone, Please look at the thread " Let's draft a letter to Washington", we need your input!
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Merilee-----i just saw it....count me in!!!!!!!!
keep us posted on details and if you need my help you know where to find me...damn im everywhere!!!!!!!!!
This is really long overdue.....come on sistas....step right up!!!!!!
gonna follow you around Merilee.....cheering you on...
hugggggggs K
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Well for starters we need to keep the thread active so that it stays at the top of the Active topic list-so that everyone can see it and join in.
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im gonna keep bumping it up...if i could only keep my big mouth shut....you cant post and then bump.im workin on it.......sure hope it happens...please join and when you got a minute pray.
hugggggggs K
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I finished radiation in July but I still get very tired. Is this normal to go on this long. If so how long might I be looking at this exhaustion..... Didn't get tired during radiation..
Thanks
Cindy0 -
Hi Crog234- What are your blood counts looking like? Radiation really zapped mine.
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Crog----the rads zap you on and off for quite some time....everyone is different...it does go away...treat yourself real nice and when you are sleepy or tired rest or sleep...its healing...your body just took some beating....take care of YOU.
huggggggggs K
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Thanks for the responses. My blood counts were fine last time they were done.. I guess I just needed reassurance that it is probably still due to the radiation. It does come and go... Today just seemed like it lasted longer....
Cindy0 -
I finished rads in August and I still get very tired off an on. I find I have the energy to do something like decorate the house for Christmas, but I am totally exhausted when it is done.
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Hey I finished in June, and i can get wiped out at the drop of a hat.....................of course it could be because I'm older then "dirt", and it come with the territory...........................hmmmmm, or maybe its the Vodka..............................................
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I finished in August and I still get tired too! Sometimes I will take two naps....one in the late morning and one in the late afternoon. My BS told me it could take a year for me to feel like myself...
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I finished rads Dec 3, 2010 and I still do not have the stamina I had before all this crap. Maybe ducky is on to something - it could be the vodka or old age - I hate it when that happens.0
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Thanks Elizabeth.. Glad to know it is not just me. Sometimes my exhaustion will come and I haven't done anything that would make me tired...
Cindy0 -
I don't know about that Jo, when you came to SA you ran circles around me! and your picture doesn't do you justice - you are vivacious and fun and probably younger than me if you don't count years!!!!
Radiation fatigue is real - I'm going to give myself the same amount of time to stop hurting from it. I figure when I'm not sore anymore, I shouldn't be tired! lol.
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It took me quiet a few months to get my energy back. I finished last Jan and I finally have all my energy back. I changed a few things that I think really helped and one is my diet. I eat much healthier now. More fresh and not processed stuff and I have given up sugar and caffeine. I think those two things have helped the most. The other thing is all during radiation and after I never quit yoga and I do believe that it helped me. I had so many issues with rads and ended up with permanent nerve damage. I finally went to PT 7 weeks ago and boy has that made a difference in my pain. They have worked at stretching my pec muscle which had really tightened up and was causing lots of pain despite my yoga. Probably would have been worse had I not been doing yoga. Anyway now much better I have 5 weeks left to go and they are working on strengthening now because through radiation I lost quiet a bit of weight and lost muscle in my shoulders so trying to work at building up my shoulder muscles so that my alignment stays in place. Right now my shoulders don't line up the way they are suppose to. It is amazing how PT looks at things. Much different than the Dr's. BUT I am feeling so much better, if any of you are having those pains or bad soreness I highly recommend going to PT. If I had known how much good it was going to do me I would have gone three months after rads when it was really starting to hurt me instead of waiting as long as I did. I go twice a week for 45 minutes.
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Me too. Pt has made a great improvment in my quality of life
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I too am still feeling the effects of the rads....some morning i cannot get out of bed.And if I use that arm too much with repeat movement it hurts still.my last surgery was Sept 2010 and finished rads in feb....yesterday and today my arm is killing me and my breast is a little swollen....back to the Genie bra!!!!!!!just wondering when this gift is gonna stop givin?????0
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I finished in feb too and still get that rads tired feeling at times. It's just a weird tiredness, like it's naptime NOW!
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I am so glad you ladies are here to confirm this rad fatigue. I don't think my friends and DH really believe me when I complain, or they are just tired of hearing it. I asked my MO to refer me to a PT, he said to ask my PCP. I feel that even he did not believe me that I am still in pain. Rads ended July, but still tired and painful. I am scared that my heart or lungs are affected. Time will tell.
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Stage 1 I complained for 6 months that I was hurting and no one suggested PT. But when I told my MO I was tired of being in pain and wanted a script for PT he did not hesitate. But I too wonder if just thought I was exagerrating.
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I feel very fortunate. I finished rads on September 19, and didn't get much fatigue, and I am totally back to normal. Just a little stiffness in the muscle when I swing my arm back. But I don't do that too often anyway.
The most tiring thing about rads for me was going to the cancer center every day. But everyone was so nice, including my RADONC, it made it easier.
Jane
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Thanks Sherry. I will get PT, but the MO wants my PCP to refer me. Protocol, MO think it might be my fibromyalgia back, but I think it is all due to BC. Just give me PT, I don't care who refers me!
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Stage 1~ I finished in June and you can run your fingers over my muscles below the clavicle to the top of the breast and I will jump out of my skin, that's how painful. I just saw my MO the other day and she said the soreness is normal. I see my RO for my 6 month follow up Jan 12th. He's pretty good at telling it like it is. I am going to ask him as well. As for my fibromyalgia, this pain is so much different. Sad part is if you asked for pain meds for the pain, they'd write a script no questions asked, but asking for PT they want to hesitate....doesn't make much sense....
I had a HUGE field of radiation, when they drew on my and I looked in the mirror that night, I cried....it seemed like half my body was getting radiated. He said my tumor size at dx dictated the radiation field, etc.
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OMG, sagina, sounds like you went thro ****. You are so right! Drugs are easy to get, but time from a physical therapist will cost $$$$... I think drs who refer too much, doesn't look good for him. Ya think? but glad to hear from you about soreness being normal. Just trying to sleep on the right side all the time, has stiffened my neck...and back/shoulder blades are bad. I will email my PCP tomorrow to get PT.
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Stage 1 ~ I went through the norm....really on the better side of side effects etc. I started seeing a chiropractor last month. She has done wonders for me. I never had seen one before but I was at a "it just can't hurt" moment in my life. My shoulders had always been rock hard, and my neck always hurt, as well as the normal fibro points. Now I now what it feels like to not hurt....weird. I bought a water pillow for side sleeping, it is very contouring. I still can't lay on the bad boob side, it makes my ribs hurt.
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Hi everyone
I am just finishing u about 8 months of PT. It has helped a great deal. I never expected radiation to have such a huge affect after the fact. Took me by surprise. I was in PT during my lst chemo and stopped for 30 days during rads. When I returned, I was like the clock had been turned back and all the issues I went in with were much worse after rads. My favorite part of PT is that she is able to check my spine and straighten it. She also works on the giant stress knot I carry on my right rear shoulder. On 2 different occasions she was able to see that I had ribs out of place and gently move them back. As soon as she did it I could breath much easier. Had not even noticed the difficulty in breathing until I felt the difference.
PT is for sure something I would recommend.
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sagine: Off subject I know, but I have a DD who's 20 now but diagnosed with Juvenile Fibromyalgia at the age of 15. She's tried all the typical pain meds but they don't seem to work and the same with sleeping meds, but she started going to a orthopaedic chiropractor a while back and it's been great for her - she also gets medical massages (paid by insurance) through his office which helps with the neck tenderness and headaches.
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I have never heard of juvenile fibro...I had mine start with meopause, and after suffering many years, they gave me elevil, and the pain subsided. Maybe they can give your daughter something like elevil to get her thru the pain.
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Can you get lympodema when only one node (SN) was removed? I have tingling and numbness in the arm on that side and it has been 9 years. My BS thought that this would end within a year, but it never did. I do not take blood pressure or blood work on the left side just in case.
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Hi Cherrie- I don't have the answer to your question, just wanted to say that I see you are a 9 year survivor and wanted to say "Way to go girl!"
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