ER-, PR-, Her2+ Roll call
Comments
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@grammie2 Yes to the mouthwash. For me, it's mostly the mucositis/thrush…I don't really have a sore mouth or mouth sores. I'm more upset about my taste. I told the hubs this morning I am going to gain so much weight when I can taste again because I'm gonna eat ALL the good foods…lol! I'm sticking with the healthy stuff right now. No sense in eating the really goodgood-tasting stuff that's bad for you when you can't even taste it. I'm really wanting some pizza, but bread/crust is yuck to me right now. It just tastes like goo. I will admit, a local store bakes and sells banana bread that is so yummy and I can taste that, so I've been keeping it on hand. Is it wrong of me to start planning my "Hallelujah, I got my taste buds back!" meal already? So many things to choose from…steak, pasta, bbq….ahhh so many choices!
On a side note, my leg swelling went down. I just needed to move around more. I'm definitely investing in some compression socks and sleeves when I go to the store today. Y'all enjoy your extra hour today!
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Hi everyone! 💐
@aborayis sorry, I hope it's easy to solve! It must be really annoying to have something like this happen, although it's not serious, it could lead to extra surgery 😔
@grammie2 I'm glad you packed so many shoeboxes! how wonderful 😊 I'm very relieved that it's a seroma! I hope you can do the radiation anyway. Seromas are quite common, so doctors are used to them and will know what to do.
@beekaycro24 swollen legs are annoying, but you can always try wearing knee-high compression socks to help. Walking and keeping your legs elevated also seem like great ideas. I'm sorry you still have mucositis. I saw my MO last week and apparently what I have is not mucositis but xerostomia, that is, very dry mouth. This causes pain in the mouth and throat and a very dry and bleeding nose. And since I don't have sores, blisters or wounds, she did not doubt that it was xerostomia. I can continue the nystatin to actually prevent mucositis and I can also use magic mouthwash to relieve the pain. She prescribed me an elixir for dry mouth (Xerolacer, it has helped a lot!) and a toothpaste for dry mouth, as I was no longer tolerating normal toothpaste. And yes, I also have a list of things I want to eat when I recover 😁
Take care!
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@djschmidt1 that is so cool that this site was on there! I don't remember how I found it, but so thankful I did! Remind me what stage you are at in treatment. I'm right at 3 months since the last chemo, but still struggling with edema. It seems to get better then I will have a few days that it's worse (not as bad as during chemo though). It's always mentioned when I go for the targeted therapy ever three weeks and so far they don't seem concerned I'm still dealing with it.
I'm getting a little nervous about the first radiation treatment tomorrow 😕 I did fine with the breath holds during simulation but afraid I will be a little anxious knowing it's "the real thing" and goof up.
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@grammie2 I am 6 months past chemo (wow) 5months past surgery and now 2months past radiation. The radiation was scary but easy. It didn’t start bothering me until 2+ weeks in. It bothered me most after it ended (I only had 20). The first two weeks is a breeze. Apply aquaphor after and often. Best wishes.
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Off for TCHP #3 tomorrow guys 🫠
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@jessybessy best of luck, you've got this girl!
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Good luck @jessybessy! I'm having my third TCHP on Wednesday 😥
Think you're getting closer and closer to finishing chemo!
As for me, I have felt that with each treatment I deal better with the side effects, and for me, the first treatment of each one (AC and TCHP) has always been the worst so far.1 -
@grammie2 I hope everything goes well for you today! Then come and tell us how it goes and how you feel 😉
@djschmidt1 what a relief to read this, I'm terrified of the radiation but it's good to know that the first few weeks should be calm. What did you find worst about the entire treatment? Chemo, surgery (or recovery)?
Have a great week guys!!! It's been really hot here, people have been going to the beaches because it's hotter than some summer days! 25ºC here (77ºF) in November! It's not normal 🙄
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Bonne chance lovely lady. Me too - I did find #2 easier than #1, but do find that the drugs mess with my brain chemistry between days 3-8 and get quite depressed.
You're going to smash this x
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@jessybessy Thinking of you today! Today is day #4 after chemo #3, which means it should be my sleepy day. I also find it's easier dealing with the side effects at this point, since we know what to expect. I just am one who will always get thrush after chemo. It's the most annoying thing! But, at least I know how to deal with all of my digestive issues and they aren't even a bother now. I'm thankful I am still able to be as close to normal except for one or two days in between treatments!
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@djschmidt1 thanks for the info! And woohoo on being that far out from the treatments!!!
@jessybessy praying today will go smoothly and also the days after.
Hope everyone has a good week!!
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@catarina_fm by far it has been chemo. I had a rough go of it but better than some i saw at the cancer center. Mostly because it had all the sode effects. Surgery (lumpectomy) was a breeze and radiation really “bothered me” (skin discomfort and fatigue) at the end - frankly, after I was all done.
I still deal with some fatigue and get overheated in the florida heat pretty easily now but I'm told that improves more all the time. My hair is growing in curly so that’s weird to me but happy to have hair!!
I have no idea what to do with it!!! 🩷🩷🩷🩷
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I love it tbh!
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@djschmidt1 Look at all that hair!! I think it looks great!! I had a Brazilian straightening done two visits ago and it helped my “shorts” tame down a lot and blend in better with my “longs” that stayed because of the cold capping.
Cheers to you both, @jessybessy and @beekaycro24 for being halfway done with chemo! Chemo was the hardest part for me for sure.
@grammie2 Great big giant hug and whewww!
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@jessybessy thank you! I hope you don't feel so depressed this time, I've noticed that the side effects aren't always exactly the same 😊 hang in there!
@beekaycro24 for me, the 4th and 5th day after chemo are also the worst, despite the mouth problems persisting for longer. Let's see now if this next time the medication for dry mouth will help anything. I wish you a speedy recovery! You already know that soon you will feel better🌷
@djschmidt1 that's good to know. I'm not just going to have a lumpectomy because I'm going to need axillary dissection, I believe it will be worse, but I also think it won't be worse than chemotherapy. Your hair looks great! So long already 😊 I had curly hair and I hope it comes back the same because I don't know how to take care of straight hair either 😅 Although they say that sometimes there are changes in the hair texture after a few months.
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@djschmidt1 love your hair!!!! Gosh! Mine is just now starting to show and it is super thin with a few spots with nothing but fuzz. It's dark (I was light to medium brown) and my husband says my head looks "dirty" from a distance LOL.
@catarina_fm will be thinking of you Wed!!
@beekaycro24 I forgot to tell you that I had a super dry throat about 5-7 days post chemo. It would feel like the sides of my throat was sticking together which made cough and choke! Drinking water when that happened helped, but it was so aggravating.
I was really emotional at my radiation appt today. The girl took me into a room they would be in during treatment and there were several monitors showing my scans and info. She showed the area they would be treating but I am not sure I totally grasped the picture. They said it took longer the first time because they have to do some extra scans. They said I did good with the breathing but there were three longer breath hold times that were way longer that I had to let a little air out but was able to still hold the breath. I think the breath holding was harder because I was so nervous and felt like I was breathing harder than normal. Hopefully tomorrow I will be more calm and it will be easier. I'm still pretty freaked out about the radiation though.
Thanks to everyone sharing their experiences! It really helps!!!
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@grammie2 sending you love, yes day2+ is easier. I’m hoping you can get comfortable…i didn't hold my breath after the first treatment…..
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