Single life after a mastectomy
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E- I pray your sister gets the help she needs. I hope you can get a break for a bit with focusing on your class work.
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hi ladies my MRI is Friday October 06. 5pm.
I just saw what happens in las Vegas and I am so sorry the world is just a nightmare
Hope you are all ok and have no families there is so sad.
Good night yes waiting is the worse but hope is still with me . Hope she ll pull through this crap.
G night
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E- thanks for thinking of us here in the US. We have a serious problem with gun violence here but this is not news either. Just another chapter in a never ending horror story. Between the devestating hurricances and this, the US is hurting big time right now.......
I did not know anyone in Vegas for that concert as far as I know, despite many of us here in NM go there pretty regularly as it is close and also pretty fun. There was a woman from Gallup NM who lost her life and a number of others who were there and unharmed and back in the city talking about it. I had to just turn off the endless coverage on this right now. It feels like 911 again with the sensationalizing of yet another tragedy no one will understand. I feel for the families who have been most affected by this.
Good luck with your apt on Friday and wishing some better news for your sister as well. Keep us posted on everything else going on too.....
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it's full of chaos, in a bigger sense and in our personal world level.....
E - we are here for you.....if you are too stressed out, don't hide, come out and vent....we're listening
BB - i agreed w you....
jazzy - that's good you didn't know anyone in the LV incident....
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BB- do yourself a favor and keep the news coverage turned off now. They are sensationalizing this just like they did 911 and I hate it. Playing the videos over and over with the gunshots, etc. It helps nothing. It makes it worse for the families who were injured in the attack. I have no doubt a lot of young people died, because usually that is who goes to concerts like that.
Also, I read something awhile back that said the US lived with a very false sense of security for a long time. In other countries, the problems we now see are the norm. I am sure June and Enerva know only too well, Lily too. Our world is indeed full of chaos (per June).
E- thinking of you and like June said, we are here.
I am dealing with endless broken things right now (1st world problems) and got a flat today on my convertible, and will now be chasing down a new tire tomorrow, along with trying to get a lot more done with things planned today.
I don't know about the rest of you but I am not liking this week much at all.......
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jazzy - these few weeks (3 weeks for me) have been pretty chaotic to me....last week was the worst. and it's too early to tell about this week. and a guy from work yelled at me yesterday already. so it looks promising that this week will top last week.
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June- ugh, people who yell at us. At my local client site, that behavior is not too uncommon (been yelled at by a few doctors and other crazy people). It is so professionally unacceptable. Wishing you a better day today sister.
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jazzy - your doctors yelled at you?? that's not a nice bedside manner....
the best part of the yelling story was he took me to a small conf room to raise his voice...i guess he thought he could intimidate me?! i was told that's his tactic.....
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June- not my doctors who provide care, but doctors at client work sites who I am doing projects with. I remember one in particular, but he later came back and apologized to me. He was frustrated with the organization, and told him I understood his frustration, but that he needed to understand I was in to do a scope of work, I was NOT part of the decision making. But I also know he also beat up hard on one of the nurses there who was running the new program I helped to form. The let him go after awhile, rageaholic.
It is hard to stay centered in those situations June when someone is yelling at you. I know how awful it feels. A lot of people use yelling to intimidate others. Just makes them look like a fool and in this day and age of workplace violence, most orgs don't want people who cannot control their emotions.
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Regarding the news on LV, I do like watching the survivor stories, the non-medical/police heroes and seeing the victims so nicely remembered. They wouldn't have a photo of a deceased loved one if the fam didn't want everyone to know what the world is missing now. Every victim has a photo so I do my part in watching and silently wishing each victim shown and their fams peace and love.
As for the shooting parts, they need to disclose what they have to the public. We all know they wear body cameras nowadays. I don't think it's to sensationalizing it but people have questions, esp the fams. I heard one fam who wants to see/hear more on what happened to try and understand and for eventual closure.
So it's all there for those who want to see/hear everything and those who don't, turn off the news when it comes on.
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BB- I understand your frustration and had my own rants yesterday. This week has not been a good one with all that has gone on nationally, but my own challenges to deal with broken things, punctured things, etc. I have had a good month of things breaking and get one thing fixes and another goes kapooey! I finally pushed through some things today on the technology and car front today. Comcast problems were part of that too.
Artista- I think sharing about the heros and lives lost is fine. Helps people to cope. I dislike them playing the same videos of the shooting noises over and over. That is the part I don't think helps.
I hope you are continuing to heal from the recon?
Off to a two day healthcare conference tomorrow. Have a good rest of the week friends!
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BB - i totally understand what it's like.....how are you today?
E - good luck with tomorrow's MRI
Jazzy - have fun at the conference.
Artista - how are you? hope the recovery is still treating you well....
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BB- keep breathing and you will get through this.
Conference today was really good. In an arena with some different people than I normally am and learning much to fill some gaps in my healthcare industry knowledge. Day 2 coming up tomorrow.
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hi hi some good news finally
So sister started a treatment yesterday evening finaly and she is able to breath better. The new dr. Seems good at least gave her a treatment and requested more blood test and scans so we are in better hands? As per her future we don't know ; ( but at least she is breathing better now. ?
Tmw my MRI is past 12 am and I need to hey up at 5am good night ll post from the hospital I ll arrive to it earlier .
Appointment is at 5pm
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BB- yes, I want to do yoga at some point down the line but cannot support myself as a yoga teacher.
I am really thinking about getting more involved in the data analytics/big data movement to work more as a data scientist in the next few years. Learned about that at an IT conference last week and a big topic at this conference too.
E- good to hear your sister is getting treatment and already breathing better. Let us know how the US goes.....
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E - sending you good vibes.
jazzy - teaching yoga?? wow.....i am jealous. i can't do yoga anymore because it gave me lymphadema
BB - i am sorry to hear what you're going through....must be emotional taxing to deal w the court paper work.
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Good afternoon friends- had a great experience at the conference. Gave me some good ideas!
June- I want to get certified to teach breast cancer patients yoga. But I told myself I would not even begin to think about it until I was past my five years (next March) and it also requires time to do the core cert course and then take the extra classes for certification to work with cancer patients. I know someone here in town who is a nurse who had bc and is certified. I need to get to one of her classes to really see what it is about. It is not something one makes a living at though. I would do it to give back and help other sisters coming through recovery.
I am sorry you got the L from yoga. That is a bummer. What are you able to do for exercise?
BB-sending you hugs.
E- thinking of you and hope the US went okay?
Artista and anyone else here, wishing you a good evening and great weekend!
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hi ladies I am home now. I was supper lucky cuz I worked till 1pm then I walk over to the hospital off course I never thought I was going to be seen before my time but I went there any way. I figure I could just sit there and wait do my homework. So the nurse at the front desk looked at me and said I don't think we can take you this early. I smiled and said oh no don't worry I know I am supper early but I will just sit here and wait I have no choice . Then she said ok you can fill in these formulary etc. I took it and filled out then I sat took my papers out of my bag and started doing homework. So guess what 30 minutes later I hear my last name lol and yes they pull me in lol so this was interesting they gave me a baccinne in my arm and that hurtled a lot they told me it is something to prevent my poo from moving in my colon? Wth? Any way they say is a rutine thing . Also told me the ink will be given toward the end of the mRI. Any way I was in and out very fast and I asked when can I get my images ? They say now and yap I got my cd . since I was so hungry grabbed a bite and now I am home in my bed and I looked at the images and honestly it looks bad. But again I don't know how to interpret this crap. If any of you can tell me I apreciate it
Here is the tumor I sent clear but I can't figure out size or malignancy
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E- Went straight to your latest post. So glad that treatments seem to be working for your sis. Continued t's and p's. Hope you can relax some and have a good weekend. Got to take care of yourself too. xxx
BB- Wow. So much you are dealing with. So sorry to read. Going from Obamacare to Medicaid (Medi-Cal here) and back is ALWAYS a nightmare.
In 2013 my state disability ended and I was put on Medi-Cal from Obamacare since my income was now 0. It took 3 months for my Medi-Cal to become effective. Thankfully no major issues. Just wound up paying for my psych cash as they don't do back pay even though I was supposed to have insurance after a couple weeks effective.
Then came this doozy in March 2016. I had my last chemo scheduled for 3/1. On 2/28 I went to pay my Obamacare BC premium. Account closed. WHAT??!! I'm having my LAST chemo day after tomorrow! So on Mon 2/29 I was on the phone. Didn't get anywhere. You are now on Medi-Cal. My only focus at that time was to get my chemo the next day and worry about the mess after that. So I can use it? Yes. It's effective 3/1 so you can go have your chemo done. You have BC Medi-Cal. What?? My doc/hospital don't take this Medi-Cal. They take the Alameda Alliance Medi-Cal! So they guessed wrong as that's what they did, guess. They of course didn't look back to 2013 when I was on Medi-Cal to see I had selected AA Medi-Cal! Great! So now what. Well find a facility who takes it for your last chemo. Obviously they don't know how this works. My MO has priveledges with this hospital only and she can't just write orders to some facility. And I'm not going to find an MO for just this 1 last infusion. Will be late anyway.
So for a couple weeks I was bounced between Medi-Cal that's what it says and talk to Covered CA to Covered CA where that's what we show too. I have income. I don't even qualify for Medi-Cal. That's the funniest part. My income hasn't changed all of the sudden. It's been the same for over a year now! Finally I got the number to BC and decided to try them even though they can't change it, it is between Covered CA and Medi-Cal to fix it. By then I had written my 2 representatives in email on their site telling my story and needing my last infusion asap, it's already late. My whole journey has been late. I started chemo 30 days out from sx due to infection and anemia, 30 days is the borderline of chemo being effective if it's going to be for me. So I worried about that. Now we are past mid-March and my last chemo is late and counting. The cs agent I got at BC said let me transfer you to a supervisor. Maybe she'll have an idea. So I get Patty. Such a caring, kind person who was livid after hearing my story. It helped that she is a bc survivor and is now planning on getting tats for nipples. Yes! Yes! She tried calling Covered CA for me but can't do it without me so 3 way. Didn't get far with some ding dong dude giving us the run around. After almost a week of this we were upon the weekend. It was Friday evening and basically we didn't know what else to do. I don't know who was angrier. It was either Medi-Cal or Covered CA's mistake as I have income that doesn't allow me to be on Medi-Cal anymore. The best we could do, I should say Patty, was to get them to re-instate me effective 4/1 which I knew we could do but then as such I would lose all the premium and oop max $ I had already put in and would be starting over like I did in Jan. We were both upset. We chatted about our bc stuff for awhile and she apologized profusely for not being able to fix this sooner and the part of my having to pay $2800 again as I had met my $ in just 2 mo of chemo in Jan and Feb.
On Mon afternoon I get a call. It's Patty. She couldn't rest all weekend. She called Covered CA since they are the ones who need to fix it and kicked ass!. Turns out someone had set my income to 0. Why? Who knows. Clerical error. So she not only got me re-instated end of March but got them to do so without starting me over at 0 paid! I was thrilled. Told her if she's ever in the Bay Area to let me know and I'll buy her lunch.
So long story long, I understand the pains of insurance, especially Medicaid/Medi-Cal where no one wants to do anything. I hope you happen upon an angel too BB. I"m no longer on Obamacare as I'm now on Medicare but Patty told me to keep her email for as long as I have BC and to just go straight to her for issues. I had one a couple months later can't remember what but she fixed it quick. Nothing like having someone who cares in your health insurance company. Just as important as having medical providers who care.
I'm doing well with recovery. No infection but I don't count it out since last round it was 5 mo po where I got an infection in my radiated side. Keeping busy with my very fun active loving guinea pig, Bella!
It's going to be very warm here in the bay area again for us anyway but nothing like the heat wave that killed my Mooshy guinea pig by those people who said they would keep close watch on her since no ac, and did not. I mourn her all the time and always will. She held my hand through all my cancer stuff and kept me going when there were times I thought why bother. She is my hero and is terribly missed.
Wishing you all a great weekend.
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E- I can't tell either what the images mean. Try to have a relaxing weekend and wait until the dr visit for the interpretation, and go from there. Sending you love and hugs. xxx
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E- think you need the radiologist to tell you what they see here. Looks like you have some done in profile as well as looking down. I have no idea what is normal or not either. I think it is interesting that they give you the films on CD in your country to look at, here in the US, they don't do that routinely, they always have you talk to the radiologist or get a printed report.
And the only way to confirm malignancy will likely be with a biopsy (been hoping they would have done this by now). But the looks of the image may tell them more if it is needed. They biopsied mine to rule out cancer back in 2007.
Please don't stress friend until you talk to a doctor about this. My assumption is if there is anything wrong, you will hear soon?0 -
jazz yes . If something to worry I should heard from her soon. Another thing I wanted to tell you even now Google it. You are entitled to all the images of any of your MRI or scans. It is available to you at the images department at the hospital where they where taken. Some hospita ask for $10.00 per cd some don't. But it is not given you must ask. And if they ask where is it going you say it is going to my family Dr. If they ask if not you don't usually they just need to know if another dr will review . But it is available I didn't know this till a friend told me about it. Now I request all my images even when my mom had a stroke I had the images. I figure I can manage in youtube to figure out cuz I hate waiting for the dame dr to make a history . So I want a copy of the mRI report which is done by the radiologist which is sent to the dr. Usually they tell you verbally but I always say. May I have a copy of that report ? And since by law we are entitled I get it. So even now if you go to your hospital and say you need all the images you had in that place they ll provide.
I am sure the same rule is in place in usa. Google or ask you family Dr about it next time you talk to her .
I am only concern cuz of my history and bad luck in the past where dr don't want to look deeper and I have cancer behind what is in the surface? But my hands are tide at this time they won't offer a biopsy here I ll have to go to vzla or another country to have it done. ; (
So no possible I just hope they d but I am at a point I am about to give up I don't care anymore ?
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E- I do believe we have the right to our complete medical chart, including images. I always get my reports and sometimes discuss them with my sister too. I pray you can get some answers quickly as I know you have been worried about this for some time.
I hope your sister continues to get better every day.
BB- hey sister, hope your day is going okay.
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ahhh I just got home . Today I got up at 10am lol I was so surprised bb I haven't slept till 10 in months lol I was supper brain dead .yesterday was a hard day then the MRI .but today I got up I went to the gym and work out then I went to see my friend enzo's parents they are a lovely Italian old couple who I have shown you before they are the once with a lovely garden and vegetables in their back yard and I am using their space to do a project for school. Anyway they were gone for a month to Italy I went there to water their plants wile they were gone . I brought them some pastries and had a coffee with them. I will visit them again tomorrow cuz I had my groceries in the car and needed to stop just quick to say hi and tell them I am happy they are back lol
Came home and went to bring my laundry down now . One of the dryer eat my $ bit did not start ahhhhh lost $1.25 lol
Anyway regarding the bribroid humm well even if it is no cancer it gives me pain and that is what bothers me. I wish a biopsy could be done but out of my control. I will keep searching maybe there is a natural remedies I can try not sure yet.
I wont let it get in my head I keep searching in the internet since there are very good videos of similar scans maybe I ll find one close enough to determine what the hell it is. But i ll fucus on school is the only thing that confort ne these days?
I found good vegetales today and tmw I ll cook a chicken from the organic supermarket and pretend is turkey lol every body her is eating turkey cuz it is our thanks giving weekend.
Elizabeth is better at least she can breath which was very scary to know she was not able to breath normal. And lots of blood test done now and the new doctor seems to be an expert on that millieliti deseas so we shall see. I just hope she can eventually walk again? I was so scare she could have cancer my heart was in a chock every day.
Bb here is what my little project for school looks like
Bb pm me your email address again so I can send you all I am doing at school is so much fun lol
Love you all I send you a big hug I don't think you are having turkey? Is not thanks giving in the state I think we have it earlier or yours is past?
Oh yesterday I saw grace anathomy the new season started do any of you watch that show?
I love it
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jazz we were posting at the same time lol
Jazz I ll email you later so much to chat girlfriend lol
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E- sure thing. Busy week here but home tonight. Love to catch up!
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E - what's that? looks like a plan? are you studying landscape architecture??
Jazzy - the balloon fiesta looks awesome. wish i could float in one of those....
i recently got obsessed in tarot card...so just bought two decks, because one deck was so pretty....thought it might be a fun thing to do. i need some distraction in life....
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June- I kinda like tarot too! I used to see this woman in Taos who did the most amazing/right on readings for me. I think it is another way to tap in to our intuition. Have fun with it sister.
The balloons can be a fun ride, but also a bit dangerous and a bit pricey too. So far, the year is going well with the launches and no accidents thus far. I have never flown in one, issues with heights but the cost too. I have some cousins who want to come do the fiesta some time and told them if I did, we could all go in and get someone to talk us as a group. Many people here crew here during the fiesta so they can go up for free as part of the deal. Almost like a national holiday week here when this is going on!
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hi girls. So I survived another day lol
June I am taking garde design and if all goes well I will graduate next year. Lol is the fun course I enrolled back a year ago. I have been doing it slowly but I enjoy it a lot.
Jazz the air balloon looks amazing humm I am afraid of been up high so no sure I could enjoy it but I love to watch from the ground .
June tarot cards ? I wish I could read them so many people say they tell our future I never had them read to me but I heard about it back home people belive in those and had readers too.
If you get good at it please read me lol
Sister finish the vein treatment now wed some blood results will come in so maybe another set of drugs ll follow .
Kids are doing well in France now. Little claritza is existed to receive my parcel I sent this morning with all gloves hots and winter things .
They have a great oportunity now and they will take advantage of all Europe has to offer I am so so happy about that.
Now only old relatives are in vzla and they at least know how to survive.
Sending you all big hug
Simplicity hope you are ok
Arista when are your drains out?
All looks good ?
Bb how is your back? And your mom?
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