is it neuropathy or brain mets? FACE NUMB
I was diagnosed with IBC in August 2010. I was treated with 6 months of chemo, followed by a double mastectomy, followed by 6 weeks of recuperation and then 6 1/2 weeks of radiation.
So far, no lymphedema! But...I did develop neuropathy. At first I had no idea what was wrong with my feet. They just hurt every time I stood up, whether I was sitting for 5 minutes or two hours! I hadn't had much neuropathy during treatment. Just a little sensory loss in the tips of a few fingers and major dropsies.
Suddenly I have these really sore feet. Anyhow, I was diagnosed with peripheral neuropathy. It's in my hands and feet, and occasionally it shoots up my shins and onto my knees--a feeling like rug burn. Ok, so I'm dealing with that. None too happily because I want to get back to normal and lose some of my treatment weight, and the meds for neuropathy tend to make you swell and gain weight.
Ok. So yesterday I realize half my face is numb. Top half of my tongue is numb. My lips are somewhat numb, like I'm coming out of a dental appointment. I can lift my eyebrow and scrunch my face, but not completely. Not to the extent I can with the other side of my face. I can curve my lips into a smile, but the numb side doesn't curve up all the way. I feel weird.
Last night I taped my eye shut using gauze and medical tape to keep my eye from opening in the night and drying out. I can't close my eye on the numb side and keep the non-numb side eye open.
Has anyone else had this type of neuropathy? My primary physican (non-oncologist) suggested I have Bell's Palsy. But from what I've read, I should look like I've had a stroke and be dribbling out the numb side. If you don't know me, I look normal.
I called my neurological oncologist and learned he is on vacation!! But his "on call" replacement dr ordered a brain mri for me today. I go in tomorrow to go over the results.
I'm scared. Do I have Brain mets? Has anyone heard of such symptoms for brain mets? And if not, has anyone had this kind of neuropathy (facial)? and if so, how long did it last and how bad did it get?
SPeaking of neuropathy, how is it going for any folks out there who have it/had it?
Thanks. Hope my post isn't too long.