All about Xeloda

claireinaz

I’ll be starting xeloda soon. Leaving verzenio behind though it worked well on ER/PR posit mets. I have skin mets that are triple neg. Why the heck these flipped to negative I’ll never know. But I will be taking 3000 mg a day for 14 then off 7. I’ll still get monthly fulvestrant injections too.

I spoke to integrative oncologist and oncology pharmacist at Mayo . They told me to avoid any supplements with folic acid but not to worry about folate in food. I have IBS and don’t eat a lot of leafy greens or gas producing veg but I do eat a lot of nuts for protein and calories.

Pharm also told me that using voltaren gel morning and night on feet and hands was a game changer for avoiding hand and foot problems, which sound awful. I also have a 40% urea cream I’ll be using too.

If I can’t hike and do yoga, I’ll just lose even more hope since it keeps me sane. I’m horrified by the awful stories about peeling extremities.

Anyone have an okay experience on this drug? I hate to stop Versenio but I need a better dam to hold back all progression.

AJ

@claireinaz , I’m on Xeloda and use Voltaren, urea cream and aquaphor religiously. I have HFS but am managing it. I figured out that I can walk up to 2 ½ miles. I don’t have a problem with yoga and go to Zumba classes with no issues. I went to a running store and got some good shoes and good socks. I don’t really have a problem with food, a little bloating and gastric reflux. I keep tums handy. The good thing about it is that I can pretty much live a normal life and the drug works!

denny123

I have been on Xeloda for 7 years and I am glad that the pharmacist warned you about Folic Acid. BUT I had severe hand and foot infections from eating foods with folic acid. I was guilty of eating large spinach and avocado salads and broccoli almost every day, etc. You can eat those in moderation, though. If you eat a handful of nuts daily, they might not cause a problem.

I did stop taking my multivitamins since they have folic acid.

I do use Aquaphor at night with socks on my feet and food service gloves on my hands. During the day, I use Aquaphor and socks, and Gold Bond diabetic cream on my hands.

So now my hands and feet are only dry and never sore. I don't agree with using Voltaren, though. Even the literature with it says that it can damage your liver. If you watch what you ingest, you probably won't have sore feet.

You should still be able to do yoga, but I don't know about hiking, since I don't do so.

I am on 2,500 a day at 7/7, and that is the standard dose. So if you do have problems, you might ask for a reduction.

I tried Urea, but it made my feet worse, so use it cautiously.