All about Xeloda
Comments
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@dawn68 My red cells are always at the lowest possible without falling off the chart. My foot peeling was much better when I used Aquaphor and silicone socks at night. But the socks kept stretching and it was hard to make my multiple bathroom trips. So I went back to Aquaphor and socks. But now my feet are way too dry and I just ordered new silicone socks on eBay. when I sued the silicone socks, they hardly peeled at all. So just be aware that they might get worse.
@dulcea Udderly smooth never worked very well for me. But I am glad that it works for you! I am always very tired, but my nurses just tell me that it is because I have been on chemo for almost 23 years. Oh well
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@soldanella Glad that you are doing better, but that still is a very high dose. If I have light liver pains, I attribute it to my fatty liver, which I was never nefore told to worry about. My diet is so darned restricted now, but I guess that I have to cut back on my sweets even farther.
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@denny123 Thanks for your encouragement. Since yesterday I decided to do without Primperan and Zofran and even if I still have a smear I think it's better and I sleep less. I see my MO today and will talk to him again about the dosage. I hope it will be better for your feet with the silicone socks. If I follow your advice of junk food (which works quite well) I think I will continue the sweets. ;-)
@dulcea Congratulations on your 3rd cycle. Personally, I don't like being tired and having my head in a hole at all. I will see today if my blood test already shows a decrease in red blood cell. It's true that my M/F are wonderfully sweet, I also discover that I could have taken care of them earlier! This is a positive point in this whole adventure! I remember that you started the X with a high dose, what is it now, and are you still taking it 14/7?
@ces68 : I am happy for you that your stomach pain has calmed down and I hope it goes well for your next cycles. Thanks for the idea of the banana in the morning, I was afraid that it would not be enough but I did it yesterday and this morning and everything is fine. I have less nausea and my stomach is less heavy too.
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@denny123 23 years? Wow! I know seven of it is Xeloda, but what other treatments have you had? That is amazing. You are very lucky.
@soldanella I am taking 3,000 mg per day on the 14/7 schedule. My local MO wanted to start me at 4,500 or something close to that but my second opinion doctor intervened and suggested 3,000 to start and she referenced studies and a lot of real life data. Thank goodness! How did your blood work turn out?
I seem to be experiencing another side effect: constipation. Great. It’s listed as a side effect so I’m assuming it’s from X. It’s better than D though which almost killed me a few times on previous treatments. Lots of remedies out there for C.
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Just putting in a plug for Xeloda. Since I started it in April my tumor markers have plummeted!
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