Starting Chemo in Nov. 2011...anyone else?
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I have 3 fish so I will name them all of the above, Big Mac, noodle, and burger it is, thanks, love that!
I finally got my burger today, a double bacon cheese fat burger with chili cheese fries with bacon, wow, heaven! My mom didn't bat an eye, she finally gets me!
Had brain radiation 13 today, went well since I'm off the steroids, never again!0 -
Wow, you went all out. Makes my mouth water. I love your fish's names, too. That's so cute.
You're movin right along. Only 7 more brain radiation to go! You're gonna beat this.
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GrandmaV, u know I will!
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Julie,
Hungry just thinking about your burger! Keep moving forward.
Be well
Nel
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Did you guys notice my new pic, meet Magic Kim, a new addition to our family. I went to Petco Sunday after church to buy some fish for our fishtank, since my mom won't let us have a dog, puppy, cat, kitten, rabbit, you get the picture, she doesn't like animals. They didn't have any fish, but they were having adoption day with 3 adorable dogs and 1 sweet kitten. I knew the dogs were too much, so I decided to adopt the kitten. He is a 5 month old Tabby named, "Magic," he was so lonely looking and my girls fell in love and I never knew I was a cat person, but here he is, my magical kitty. Isn't he so cute! I promised I would keep him away from my mom, so she caved, hahahaha! I am the ruler of the universe! My sister-in-law was upset cause she thinks he might get me sick. I'm going to insist to my Drs that I need him to fight this difficult fight, so everyone at home will be ok with me keeping him. I hope all works out. All you cat people out there, its ok to have a cat dring treatment, right?
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Julie ~ So happy you got to have your ooey, gooey, delicious burger and chili fries! It took awhile, but glad you prevailed! I am also glad you adopted Magic Kim. I, too, am not really a cat person, but my BFF has a cat named Dino that I could take home. He behaves more like a dog and that's probably why I love him! I hope your doctor doesn't say you can't have the cat during chemo. When I was diagnosed, we had just adopted our Gracie (she is a shit-teri (my husband's description!)...but looks like Toto from the Wizard of Oz, after we lost our Daisy the month before. Gracie was my my constant companion during chemo (my "Chemo-Sabe) and we both stayed in bed a lot on my bad days. I would have been so lonely without her since my husband had to work. There is nothing like a pet in my mind. I never even told my doctor, I figured my dog lives inside and is clean, so what the heck. And by the way, I feel flattered that you took my suggestions for fish names! Glad your radiation is almost finished and after that...onward and upward!
Nel ~ Good to hear from you and I hope things are going well for you.
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Wow, I have missed so much and had to catch up! I am hearing upbeat updates and that is great! We have had so much going on. I dreamed the other night that I was dead. I felt dead and it was peaceful. I said if this is the way I am going to leave this earth, it's the way I want to go. I had to have some prednisone. When I exercise, I overdo it. I use my arms too much and my chest hurts...a lot! It feels as if my heart hurts. My cousin has heart problems since she had her chemo treatments. Of course, this is always in the back of my mind. I had to stop exercising for a while but have decided to start up again. I just need to learn how to slow down.
I also fear another diagnosis. I am not feeling my best right now but I am seeing my onc on 10/16. I am going back to Indiana for the babiez birthday in October and don't want any news until I celebrate their first year. My daughter is texting me and she called me once. I told her my plans when I visit. My husband skyped with her yesterday and I saw one of the babiez walking. It hurt me so much to know that she wouldn't call and share the news that they were taking their first steps. I am dealing but I am so sad.
My husband and I are going to start watching what we eat and exercise more. I am so happy he is doing this with me.
Take care and enjoy the nice days my friends!
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Julie, that's a cute little kitten. He'll be a lot of comfort for you during chemo.
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Beth, I'm so glad you get to see the twins. There's nothing like grandkids.
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Beth ~ Glad you are making the visit to see your twinsies! I hope your daughter opens up a bit while you are there. It's hard to "fix" something when you have no idea what needs fixing. Thinking positive thoughts that the visit leads to more communication. Enjoy those babies!
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Where is everyone? Hope all is OK. It's almost Friday...hooray!
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I'm here. Work is busy these days, but a good distraction. Go for my 2nd herceptin on Friday and taing the tykerb everyday. Generally feel Ok.. Really struggling with the stage 4 thing (dx) See my onc at infusion tommorrow - he has his work cut out for him to convince me this treatment is going to work. Just really having a day -it will pass.
Hope everyone is well
Nel
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Nel, I'm glad you're feeling ok. On one of the other threads perjeta has been mentioned. It's another targeted therapy for her+. I think it can be given in conjunction with herceptin, but I'm not sure. Could ask you're onc. I'm so sorry you were diagnosed stage IV. I can't imagine how it makes you feel.
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Linda, How are you? I finally got in to see my pcp for my "well woman" exam. I really like her, so it's worth the wait. Had a pap, breast exam, and she poked and prodded everywhere. Won't know any results for a while. She whooped and hollered about my clear mammo. (She's so down to earth) She ordered an x-ray for my lower back and a sonogram for a lump on my hip. She thinks it's a fatty tumor, but you know where my mind went. My mom had a fatty tumor on the back of her head about the size of a baseball and I always kidded her about having an extra brain. So I guess my extra brain is in my hip. No wonder I'm forgetful. The pap was very unconfortable and I asked her if she found my tonsils. I'm glad I don't have to do that very often. Yowch!
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Nel ~ I am hoping your MO can give you some encouraging news. Cancer is such a nasty, rotten, sneaky disease and it makes me so angry that anyone has to deal with all of it's negative crap. I can not imagine how you feel, but it sounds like working is probably the best for you right now. I am so thankful I am working because there are some days that I can't think of anythng but the C and I find myself looking up survival statistics and other stuff that really can put me over the edge. Please remember we are here for you.
Grandma ~ I saw my pcp on Wednesday. She didn't do a pap as I had one not too long ago. Apparently, after 60 (damn I am old) they don't do them as often. I know that if I ask she will do it every year. Not sure if I even want to this year. I hate getting them, especially since every bit of estrogen is gone "down there" and it is not comfortable just as you said. I will be praying that your extra brain is just that! And yes, I definitely know where your mind went. I do the same thing for every ache and pain I have. If I had an extra brain maybe my chemo brain would clear. I have the hardest time remembering names of people and sometimes names of items. I guess getting older is a part of that as well.
On a positive note, it's Friday and I wish you all a wonderful, relaxing weekend. No matter what our stage of illness is, I am hoping we can enjoy every single day and be happy we can share the time with those we love. Take care and hugs to everyone!
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Good morning all,
Had herceptin infusion yesterday and met with my onc. He continues to be so reassuring. The ache, that I had convinced my self was the tumor growing, he assured my was just an ache in my back, (literally a pain in my a**) probably arthritis. The ache is no where near my adrenal gland. My knowledge of the human body and where all the parts are located, apparently not so good. I am tolerating the tylerb/herceptin well and he readily agreed to do a first scan at the 9 week mark and not wait until 12. So a great appointment. My emotions have all been right at the surface the few days pior, so this was a great relief. It is amazing what you can convinve yourself of - have to stop that.
Grandma - any word yet on the bump on the hip? I have one on my foot, doc tells me fat globule. OK now and I get where your mind went. Hope you have results soon.
Julie, How are you? Any good plans for the weekend?
Bethu - Enjoy the twins.
Hope all have a wonderful weekend
Be well
Nel
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Nel ~ Glad to hear you had such a reassuring visit. I tend to freak out when I have any unusual ache or pain. I honestly think I talk myself into feeling it when it's not even there anymore. Does that even make sense? This sh** can really make a person go crazy! I am happy that you are tolerating the drugs well, that's a relief I'm sure. It's great that your MO agreed to the earlier date for the scan. Only thinking positively for the results you will receive.
Grandma, Beth & Julie ~ How are you guys doing? Hope all is well and you had a great weekend.
Take care...Linda
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Hi sisters, thanks for asking about me. Still waiting to hear when the sonogram will be done on the lump on my hip. Other than freaking a little about waiting, I still feel really good. I hate waiting. We went to see my husbands folks over the weekend. They're both in their 80's and not doing too well. My husband's sister is living with them and taking care of them. It was nice to have a change in scenery for a couple days. They live 2 hours away in a small town (population about 1600) that has very little crime. They only recently started locking their doors at night. It was so peaceful. Wichita crime has always been bad, but lately it seems to have tripled. People breaking into houses in the daytime, while the homeowners are home. Purse snatchings on a daily basis, even in grocery stores. It's very scary. I don't realize how much stress it is until we leave for a couple days.
Nel, I think about you everyday, hoping that the treatment does what it's suppose to.
Julie, Hope all is well. I think of you everyday, too.
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Good morning ladies. Today I'm packing for my trip to TX for radiation. I have three days worth of appointments starting on Monday. All the scans to check for progression. Ha! There IS NO progression. They better do the scans right so they don't see anything. I want the GOOD scans. No messing around this time!
I'm sick of treatment! Numb/then burning hands and feet. Bald head that is growing hair in on the sides but NOT on the top! WTH is up with that!?? The only good thing about that is that I'm 5' 10" and not many people can see the top of my head. Still occasional nausea, and my colon is still messed up, and sleep is a joke. That is WITH meds. Sheesh, I'm done I tell you, done!
Well, except for 3 days of appts and then rads. Maybe I'm just a big sissy. But really, 10 months of treatment each year for 2 years. Enough already! Hahahahah, I AM a big sissy. I know others have been through much more. I admire their stamina and heart. Like Nel and Julie.
I know we each have our own road and we have to navigate in our own ways. Me, I'm just busy kicking the big damn rocks out of my way.
Thank you all for listening to my rant. You're amazing. Please use the "block" feature if you must.
Phyllis
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Phyllis, Congratulations for being done with chemo (again). You certainly are not a sissy. You've taken your treatments and have not lost your sense of humor. You, Nel, and Julie are the amazing ones. Hope all goes well in Texas.
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Phyllis,
I love the vision of you kicking rocks out of your way. You are not alone, I jsut wish some didn't feel and look like boulders.
Be well
Nel
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Hello Everyone! I started taking vitamin b12 for my depression and I have been feeling so much better. I had a major breakdown before I started taking it. I stood line yesterday for 7 hours so Nicholas Sparks could sign his new book. I bought 5 copies and I am giving 4 away. I think will read mine and then give it away. My daughter is speaking to me now and I don't want to blow it. I am going to Indiana to spend 2 weeks and hopefully all will be well. She is in charge of a benefit for her father in law so she is stressed too.
Phyllis, rant anytime you need to. This is the best place to do it. We have been through so much together and I am sorry you are going through even more. Each of us fear a scan result. Each lump or new pain brings fear back into our lives. I hate it. I see my oncologist on October 16. I have a lot of questions for her.
Hugs to each of you and I wish you pain free days!
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Beth ~ I am so happy that things are better with your daughter. I hope your visit is wonderful and you spend lots of quality time with the babies. It is always good to get away and get refocused. Have a great visit!
Phyllis ~ I don't think you should ever worry about letting off steam here. We all have our "days" where everything seems like a pile of crap! You certainly are NOT a sissy. This group understands where you are coming from and it is a safe place to say things that "outsiders" can't understand. Hope things are better for you soon.
Nel & Grandma ~ Just wanted to say hi and hope you guys are doing well, too.
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OK, Ladies, I refuse to have our topic anywhere but near the top so here I am! Hoping you are all going to have a wonderful weekend and are feeling fabulous. Hugs to all!
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Linda, Thanks for keeping us near the top. I don't have anything new to report. Still haven't heard when my sonogram will be. I'm getting a little disgusted with them. I called and left a message at the doctor's office and still haven't heard anything. So, I wait. I will call them first thing Monday and everyday after that, until I get someone to call back. I'm feeling really well. Hope you are too. I hope you have a wonderful weekend, too.
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Hi all,
Hope eveyone is doing well. The non-profit I manage held our yearly conference today. I am exhausted and but barely thought of cancer all day. Eveything went well, and I am happy to be home, in my sweats with a glass of wine and dinner (take out) in the oven. I am grateful to be working and hope I continue to feel well enough to be part of this conference next year. Tho I think thee should be a staute of limitations when you are approaching 60, about how much time you spend on you feet in a day, how many boxes you cary etc!
Julie -where are you?
Be well -everyone enjoy the weekend
Nel
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Nel, I'm worried we haven't heard from Julie, too. She hasn't posted to her Caring bridge blog either for a couple weeks. Last I knew she was about to finish radiation. I keep looking at her last post on the 9th for some clue and she seemed really upbeat about getting her new kitty. I do hope everything is ok.
It's good to hear that you can put cancer out of your mind for a while. Hope you have a wonderful weekend, too.
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Hope everyone keeps doing well and we hear from Julie soon. I'll be praying for her. Take care of yourselves.
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Grandma ~ Hope you get your results soon...like today!
Nel ~ Glad you were able to be at your yearly conference. Being 61 (but certainly not looking or acting like it...LOL!) I totally agree with how long we can be on our feet and carry boxes. I, too, am very thankful that I am back at work because working at a school keeps me on my toes and I love the kids and especially the staff I work with.
Beth ~ It's good to hear from you. I hope you had a great weekend.
I, too, will be praying for Julie. It is so odd that she hasn't posted anywhere. I am hoping she has made it through radiation and is OK. She was in such good spirits the last time she posted. Hope we hear from her soon. I am also hoping Phyllis is doing well and hope she gets in touch very soon. To all, take care and have a good week!
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Hi Linda, I called my doctors office again and got to speak to the nurse. She said my records show someone called and left a message that my appointment is for October 4 for the sonogram for my hip, but they had the wrong side. Nobody called my phone, so I don't know who got my message. So at least I now have an appointment and hopefully they sono the left side like they're suppose to. I see my BS on sept 30 and I know they do sonograms in the office, maybe they'll do it.
Beth, like Linda said it's good to hear from you.
I think Phyllis is at MD Anderson for radiation, so maybe we'll hear something soon.
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