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Comments

  • moth
    moth Member Posts: 3,293
    edited January 2020

    Hi Charlie & welcome :) Sorry you find yourself here.

  • Charliebug
    Charliebug Member Posts: 96
    edited January 2020

    Thanks Moth! Obviously I wouldn't have chosen this path but I sure have "met" some nice people here :)

  • moth
    moth Member Posts: 3,293
    edited February 2020

    I'm in a dark place. I've had a lingering cough since early December. Saw the dr this week & she said oh it's probably nothing but let's just do a chest xray. I'd barely got home from the lab when my dr called to say that they don't like the xray and need me to have a chest CT. It's booked for this upcoming Thurs. Dr was very vague about the xray and said let's wait for the ct results.
    I have a bad feeling about all this. Everyone jumping on it fast and while I guess it's possible it's still something else (like I don't know what? TB? fungal pneumonia? I'd take either of those), the simplest answer is most likely :( I'm sad now

  • dearlife
    dearlife Member Posts: 634
    edited February 2020

    Oh Moth I am sorry you have to worry about this. But your docs have been quick off the mark. They seem to check everything thoroughly and I hope this is another example of careful monitoring. I am sending good results vibes your way and hope it will turn out to be something minor. Will be thinking of you.

    Heart

  • dearlife
    dearlife Member Posts: 634
    edited February 2020

    Welcome Charliebug to our support group. I am sorry you have to go down this road but you will find lots of good information here.

  • adagio
    adagio Member Posts: 713
    edited February 2020

    Moth - I am in the exact same boat as you - felt wretched last weekend with weird tightness in my chest and lots of coughing. Went for chest x-ray and they said there is opacity in my left lung - I had a CT scan done on Thursday - it is terrifying. I know what kind of bad feelings you will be having - me too - now the waiting starts again. So sorry you have to go through this - it is not easy.


  • runor
    runor Member Posts: 1,615
    edited February 2020

    Moth, I am so sorry to hear this. Life Dearlife said, your docs seem to be on the ball, and that's a good thing. I want to spout off all sorts of things that sound reassuring. But I know that when you are where you are, feeling like you might be dragged in front of the firing squad again, that 'comforting' things are just annoyances and perhaps false hope. I DO hope this is nothing. SOmething stupid, like an allergy. Or that rotten bad cough that is going around (Hub coughed for almost 8 weeks before finally getting antibiotics, but it was NASTY!). Even though you know all this... you are still in that dark place. We all know that place. I hope with you that this is just medical conscientiousness and not anything more. Hugs. 

  • Neamster
    Neamster Member Posts: 7
    edited February 2020

    I live in Lake Country , half way between Kelowna and Vernon. I had a double mastectomy Jan 21 for ILC, ER+/PR+, HER2 neg. Both right and left breast had cancer, the right had two lumps.One out 4 sentinel nodes as well, according to surgeon. Don't know next steps, as have not been contacted by Cancer Clinic yet.

    Staples are out, one drain to go.

    I would be interested in your experience with the Kelowna cancer clinic Charliebug. My surgeon is away next week, and am really hoping I hear from them before he gets back. I would like to find out next steps.

  • marianelizabeth
    marianelizabeth Member Posts: 1,156
    edited February 2020

    Moth, that f**king waiting game again is so rough. I know that saying they are on it is good but waiting for the CT Thursday then waiting for the results is not good nor fun. I do hope they rush the results of the CT. School has to keep you busy which is better than laying around but I know the head game too. I will be waiting and hoping for pneumonia!

    Neamster, welcome to our thread no matter the reason. It has been a godsend for so many of us and I hope we can be of help now and as you move on through the process. Often it takes up to three weeks for pathology and those were the hardest weeks for me. I did not get an appointment with the cancer agency (Vancouver then) until after pathology but every cancer agency is different.

  • Charliebug
    Charliebug Member Posts: 96
    edited February 2020

    Hi Neamster! I am so sorry you're going through this. I hope you're healing well from your surgery. The cancer clinic I go to is at the Vernon Jubilee Hospital. To say the staff there are amazing would be an understatement. I don't look forward to chemo itself but I actually enjoy my time at the clinic if that makes sense.

    Waiting to hear about next steps is so hard. I hope you hear from someone soon. I found that I was either waiting for news or inundated with calls for appointments before my treatment started. It was a lot to handle for sure. You are in good hands with your cancer team though. I am thoroughly impressed with the treatment I've received so far.

    You can do this!

    Charlie

  • cathy67
    cathy67 Member Posts: 411
    edited February 2020

    Oh moth,

    So sorry to hear that! I know how dreadful to wait for the report, thinking of you every day. Will go to BC cancer tomorrow for my radiation follow up, hopefully my last visit. Pray for negative report, for everybody in this thread.

  • Pots
    Pots Member Posts: 189
    edited February 2020

    Sending you warm hugs moth, waiting is hard. Remember it’s all just information so don’t get too far ahead of yourself. Please keep us posted.

    An

  • elderberry
    elderberry Member Posts: 1,068
    edited February 2020

    Moth: I thought I'd just pop into the British Columbia board. I am so sorry to find you in your current state. My thoughts are with you. Waiting is terrible. Even though we are all here for you, it is still a lonely place to be. It was such a pleasure meeting you in November and I wish you the best news possible.


    Hugs

  • runor
    runor Member Posts: 1,615
    edited February 2020

    Neamster, I was in Kelowna, stayed at the lodge for my radiation treatment. I was so impressed with the way that place functions. As I told CharlieBug, best medical treatment I've ever received. Those people were a well oiled machine. 

    The waits we are routinely subject to are grueling. If you have waited a month and not heard anything, call them. Don't sit on it. Pick up that phone and say' hello, I was just wondering where things are at.'  I had to do that and discovered that I had fallen through some bookkeeping crack. Had I not made a call, I'd still be waiting! At times you might have to be your own advocate so don't be shy. Make that call. This is your health we're talking about!

    Hugs and strength to all who need it. 

  • moth
    moth Member Posts: 3,293
    edited February 2020

    My news is bad. large mass in lung and another in axilla.

    blood work today & they're trying to schedule an abdomen CT to check the liver asap, and MO is wanting a biopsy and is hoping to get it done & resulted before I see her on the 19th.

    I'm just numb as everything is crashing down. What am I supposed to be doing right now?

  • Pots
    Pots Member Posts: 189
    edited February 2020

    moth, so sad to see your news. Ugh! When I got the news that I had a progression in 2017, I wanted to run away...as if I could outrun this dreaded disease. So cry, rage, sleep...and don’t forget to breathe! I think I went into shock for several weeks.

    What helped me was to tell myself over and over that step 1 is just information, that’s what you got with the CT scan. Step 1A is biopsy for more information. Step 2 is a treatment plan. Don’t get too far ahead of yourself. The MO and system will move quickly based on what they find. Remember to breathe!

    Please keep us updated, we’re walking with you.

    An

  • dearlife
    dearlife Member Posts: 634
    edited February 2020

    Moth I am so sorry that you have to deal with this. As Wrenn says, it is not fair. Not at all. I will be thinking about you in the days and weeks ahead. I am sending you hugs and strength.

  • sadiesservant
    sadiesservant Member Posts: 1,875
    edited February 2020

    Oh Moth,

    I don’t post on this thread often but keep an eye on everyone here. I’ve been checking, hoping, praying that the news would not be this. I’m so sorry. There are just no words.

    There are no right or wrong answers regarding what to do but An’s advice is sound. Above all else, breathe. Your medical team seems to be on top of things and while there is no doubt your world has been turned upside down, a treatment plan will help you move forward.

    Sending a virtual hug and a shoulder from the Island.

    Pat.

  • cathy67
    cathy67 Member Posts: 411
    edited February 2020

    Oh moth,

    These days, I have been here several times to see if you are back. Unfortunately, finally it turns out this! I don't know what I can do, a virtual hug!

    I will be always staying with you, in the past half year, you gave me and others so detailed info and help, you well deserved an effective treatment!

    Thinking of you, praying for you.

  • Charliebug
    Charliebug Member Posts: 96
    edited February 2020

    I am sorry to hear your news Moth. Please keep us posted on the results of the biopsy. We are with you in spirit through this. Stay strong

  • runor
    runor Member Posts: 1,615
    edited February 2020

    Moth, that is devastating news. I am so sorry.

  • marianelizabeth
    marianelizabeth Member Posts: 1,156
    edited February 2020

    Moth, one step at a time as Ann says. I finally did some breathing and mediation myself and then read your news and am trying to slow my breathing down again. Your nurse daughter is probably helping you and family and close friends will help I am hoping too. XXOO Maria

  • GG27
    GG27 Member Posts: 1,308
    edited February 2020

    moth, i'm sorry to read about your news. hoping you get a good plan on the 19th when you see your MO.


  • elderberry
    elderberry Member Posts: 1,068
    edited February 2020

    moth: I am devastated for you. I know your world is crashing in around you. I had so hoped to hear it was something else. If there is anything to collective prayers and wishes then you are surrounded by them; may they hold you up and give you strength and courage.


  • bluesky1969
    bluesky1969 Member Posts: 80
    edited March 2020

    Moth;

    Not effing fair Moth. I am holding space for you and sending love, **hug**

  • marianelizabeth
    marianelizabeth Member Posts: 1,156
    edited March 2020

    Moth I sent you a PM. Please know how much I am caring ag hoping for best treating.

  • bluesky1969
    bluesky1969 Member Posts: 80
    edited March 2020

    Hi all;

    If anyone needs help w groceries, pharmacy runs, dr office trips, treatment appts, please msg me. I'm healthy (ish) and happy to adopt any protocol that makes you comfortable.

    I'm available-please reach out! Happy to help.

  • marianelizabeth
    marianelizabeth Member Posts: 1,156
    edited March 2020

    I have always been a communicator and I hope that now more than ever that we can share with each other. Some of you are on active treatment, some having to travel distances for treatment, some waiting for appointments or phone calls from doctors. Please share especially if you want to connect here or by email or even telephone. We can also share ideas on how we are getting things done. Love to you all, Marian

  • cathy67
    cathy67 Member Posts: 411
    edited March 2020

    I have routine appointment next month, it is for injection and refills, will be the end of April.

    Thanks God my radiation was scheduled last December, at the time I was worried about the skytrain strike, the time I felt the whole world crashed. I never thought the other patients will experience much harsh situations in a few months. God bless every body!

  • Mk1118
    Mk1118 Member Posts: 4
    edited April 2020

    hi everyone, I hope you are all keeping well! I talked to my MO last week and she said right now they are not booking any non essential ct scans. I usually get my scan every 3 months to check if my treatment is still working. I’m currently on 3rd line in a year so these scans are quite important to me as it can fail without any symptoms. Has anyone heard that they are stopping scans? Are you all still getting scheduled for scans? Thanks and take care ❤️❤️

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