CONSTIPATION--problem with so many of our drugs
This thread will talk about constipation. The nemesis of cancer patients. If you post helpful information make sure to identify that all recommendations should be cleared with your doctor. Preferably, your Gastroenterologist (GI doc) or Primary Care Physcisin PCP). Cancer docs, I would say that this isn't there strong suit.
Page 44 . Description of Squatty Potty https://www.squattypotty.com/unicorn-c/
Description of normal defecation
https://www.youtube.com/watch?v=p7pf0uFRfTQ
Page 10 description of Laxatives, emollients, stool softners, and usage dangers: https://community.breastcancer.org/forum/6/topics/781867?page=10
Page 12 has a Question list & treatment plan to discuss with doc. Used several times as reference, I decided page 12 had so much info on it, I'd link it here.
https://community.breastcancer.org/forum/6/topics/781867?page=12
NIH National Cancer Institute : Gastrointestinal Complications–for health professionals (PDQ®)
http://www.cancer.gov/about-cancer/treatment/side-effects/constipation/GI-complications-hp-pdq
Link to rectal Issues thread: http://community.breastcancer.org/topic_post?foru...
Link to main BCO board thread: http://www.breastcancer.org/treatment/side_effects... http://www.breastcancer.org/tips/nutrition/during_...
Amusing 
Five Constipated Men
Puns are welcome, not often we get such a situation that is more worthy.
Comments
-
You can try steeping it for half the suggested time or drink only half a cup. I think Smooth Moves is very gentle. I once tried one of the slimming/diet teas and it was harsh on my system.
Caryn0 -
Good suggestion. I will look for it in the store tomorrow. Thanks, Caryn
0 -
OK...I would appreciate some opinions here. I NEVER have constipation issues unless drugs/anaesthesia is involved. BUT for about 2 weeks, things seem a little slow. I am vegetarian and drink green juice with loads of kale, spinach, celery etc daily. Nothing new is in my diet and I am over a year out from chemo etc. So why am I having these issues all of a sudden? I got a box of senna tea today and drank a cup a few hours ago. How long will that take to kick in? I used to hear about people griping and I would think...OH geez, just drink green juice and get some more fiber...but NOPE!! Must be a little more to it. I of course am a little panicky that something more might be at play : (
0 -
geewhiz how old are you? Did chemo put you in chemo-pause? Are you middle aged. Constipation and digestive issues are not unusual to start up in your 40's. My IBS started at 45. I found I have trigger foods. In my case it's high fat animal products like red meat, cheese or chicken skin. For you it might be something else.
0 -
Yep!! Middleaged and darn happy to be so
I am almost 46 and yes, hit chemopause on my first tx, November 2009. I honestly haven't changed anything in my diet, or exercise routine. Maybe there is a trigger I am not thinking about...
0 -
The green drink is very good, but the fiber is left in the juicer, so along with my green drink, eat whole fruit and veggies too. I think cabbage or turnip in your juice will work. I did that a long time ago and it really went through me fast. Try the chia powder in steel cut oats. I am looking for a happy medium, I am trying differnt ways, I still need to go about life without having sudden problems
I will try the senna tea. 0 -
Thanks, Stage1. I do have what's called a "masticating" juicer...so I get lots of pulp in the glass. I will try turnips...I use lots of red and green cabbage, bok choy etc already. I eat steel cut oats for breakfast daily, so will try some chia in them tomorrow
0 -
Popcorn does the trick for me - with lots of real butter, and sometimes tabasco sauce.
0 -
Gewizz-------try everyones >>>>>solver------you mave find a keeper--------- I did
0 -
Gewizz-add in some flax seed to your green juice. Works for me.
0 -
Sas. I love this thread! Here's something that works for me. I was bitching to my mom about constipation and she told me that when I was a baby, she put dark Karo syrup in my bottle and it worked every time. So, I purchased some at the grocery store and sweetened my coffee with two teaspoons of it. VIOLA! I'm also taking more fish oil. Thanks for all the great info. MOVING ON, LADIES!
0 -
It's such a good place to get those little puns in Like"moving on" and "solver"
I have been made a believer in Miralax. At the store just now forgot the prunes
Ro, Uou won't believe what the fish oil or flaxseed oils will do for your hair and skin too, wish all drugs had that kind of side effect LOL.
Geewhiz-------sudden unexplained changes in bowel movements can be a reason to get a colonoscopy. This isn't meant to panic you. Rules for women are 50 years old for first scope unless there is a "medically necessary reason". BC is not considered under that category. So, get yourself to a GI doc asap to get the change documented. That allows then for the test. Having the test is a great mind reliever. I, personnally, believe it should be done for all BC women. So look at this change as a positive.. It's not a time to keep the stiff upper lip. SHOW them how worried you are and how this is such a DRAMAtic change for you. DUH was that clear.
0 -
Been off my calcium supplements for 2 weeks....getting more cal in foods. Also taking metamucil on a regular basis. It has not helped at all. Starting today I will leave off my Vita C supplements. I bought a bag of oranges so I will see what happens.
0 -
Hi Linda54,
I'm a daily Miralax user also :P Tamoxifen really has done a number on me! I put it in my morning coffee every day and it's working, thank God!
Vikki
0 -
To all the ladies that added suggestions......I thank you.
Donna
0 -
Linda don't leave off your Vita C unless you are getting it from another source.
Lets make a plan for you and see if it works---------you can modify it however. Take your metamucil as usual
1Wake at the same time everyday
2. drink 2-3 glass warm water with lemon or mix your miralax in your coffee as someone suggested, but still drink 2-3 glasses of water
3walk, but only so many houses in each direction and so many in the other direction-.3-4. Close enough that you can get back to the house in quick time. Make sure the door doesn't lock behind you LOL. or you have friendly neighbors or private bushes LOL
4Salad or broccoli--------greens at least once a day-------MY personal hardest thing to do
5General mills fiber one-------try a half cup in the morning with all the water stuff, Sprinkle acidophilus powder on the cereal. Might even try a 1/4 to a 1/3 of cereal cup with each meal.
try for 7 days. The reason is you are training your bowel to go at a certain time. That's what it's called BOWEL TRAINING.--------Problem with that even on your days off you have to do it.--sorry.
0 -
I have been seriously watching my water intake ever since we started this thread-------I have found that I am under drinking the table ---opps wrong story. Underdrinking by at least half of what I should be. Then I upped it , but not by enough to see the change yet Had MRI today so washing it out---------realized ________I do not drink enough fluids even though I preach it.
Reminds me of My Dear Mary(relative). "Oh yes , I drink water all day long" I said we would measure it. I had her pick the glass she used all Day long to drink her water. She did ,turned out it was a 4 oz glass that she would fill in the morning. Leave on the counter and when she'd go by she would take a sip. She had morning tea/coffee and early mid afternoon supper with tea/coffee. Neither cup did she finish. We did this for a couple of days, without me making a comment , just observing.
She was getting approximately, 4+ 4+4---------16oz's a day-----she had Chf,but should have been getting at least the usual 8 -8 oz a day unless restricted by her doc.It all changed after that. Lots of details -----not pertinent to now Even with CHF --if the body doesn't have enough fluids , the heart and vascular system are going to compensate by working harder.
Sugesstion to all Tabulate what you are drinking to get a real clue on hydration.
0 -
Okay this is going to sound very different, But when I was taking spoonfuls of acidophilus to counter resistant thrush. I had stool that were 12-15 inches long----------That's it no other description--------other than I wasn't constipated and these were formed stools not diarrhea
0 -
sas-schatzi that is a poop made in heaven....the poop of my dreams!!!....lol
I do wake up the same time just about everyday...except Mon & Wed...get up at 4:30 for Spin class at 5:30a.....cannot change that because I work and cannot go later
I mix the metamucil with 8oz warm water....have a cup of coffee....start my exercise (have a treadmill at home) and have plenty of water to drink...pretty much room temp water. So that is another 3 cups of water. A cup of warm green tea with breakfast.
I eat FiberOne cereal and also Oatmeal usually mix homemade yogurt with my FiberOne so that takes care of the acidophilus.....as far as the greens..that is the problem....summer I eat lots but in the winter I do not. Got to incorporate that into my routine...
I usually don't buy oranges but I did get a bag because of leaving off the C......
thanks for your advice....I think I am doing most of it.
Before my BC diagnosis I went every morning....I would have a cup of java with a banana...look at the morning paper then it would hit like clockwork......after my first surgery things have never been the same.
0 -
Linda , I agree after the 4 surgeries plus 1 almost killer cheno----------nothing has been moving right since. The things I suggested to you have to be almost OCD things normal.The tortuous part is the routine of getting up at the same time of the morning -------------horrible even on off day
If your out, use the seat things, there has been a great rise in contact dermatitis----------just do it.---------no matter how clean it looks.
Linda they gave you antibiotics pre-op and post-op-------------messes up good bacteri in the small intestine and large intestine.That's why you just can't go to the local grocery. Go to a health food store that has a solid reputation, Know what your buying and use it daily. I would suggeston the higher end stores versus of the local grocery and add either fish oil/ or flax oil
BARLEANS FOR THE FISH OIL AND BLUEBP0NNETT FOR THE FLAX OIL/............ THOSE THAT WANT TO DO THERE OWN RESEARCH ENCOURAGE you to do so.
Big question on the fish oil is does the company guarantee that contaminents are removed? Flax question is it organic?
0 -
Linda ___- 'poop made in heaven '------glad it made you laugh . The things we write about.
0 -
okay poop-de-doo have we run out of suggestions or puns?
0 -
Improved stewed prunes:
1cup prunes
Scant 1/4 cup water
Zest from 1 Meyer lemon
Juice from 1/2-1 Meyer lemon, depending on taste
Stew as usual. Enjoy warm or room temp.
Caryn0 -
Caryn, a real pooper of a recipe---------sounds like it should keep things moving Thanks sheila
0 -
I am sorry to hear about your troubles,I never had any either til the effin bc. Then nothing was moving for a week even the home health nurse was concerned. I had my surg on Mon. I was taking EX Lax every day and nothing so I went native. What people in other countries where constip is seldom heard of....they squat. We obviously cant do that since we are not the bear in the woods. So I get my little footstool out stuff myself with calf select dried pitted prunes,steel cut oatmeal,lots of fresh homemade guac,dill and cilantro and organic baby carrots and the Colace stool softener and wait for nature to come a callin. And come a callin she did. felt much better but then had to get the yellow goopy hemmor ointment and the Tucks. Things were going so good,I had to eat a little rice to slow down the train. If all that doesnt work...you should seek professional help from a medical doctor. Oh well.its a wk later and I be all normal now ya'll. I really dont speak Southern but I think it means that the plan was a success.
0 -
A lot of people have IBS-C and don't realize it. I've struggled with it my whole life, it's not an age-related thing.
That said, I hate drinking water, so I'm going to be better. I swear.
0 -
What about the hemorrhoids that come with the bouts of constipation? I've had painful internal and external hemorrhoids for over a month now. I've been able to get on top of the constipation with a high fiber diet (for now, treatment 4 is today so fully expect another bout of constipation in a couple of days) but NOTHING seems to help the hemorrhoids! I've tried Prep H sup and ointment, Annu-cort RX, Tucks pads, sits bath, and acupuncture. What else is out there that might shrink and heal these devils? I will go see my GI doc but I don't want to do anything that would delay chemo treatments. I want to get this over with!
0 -
NC beach gal----------liquid----measure what you are drinking--------in a previous post , I --even the advocator of 8-12 oz----total 64 0z to 96 oz a day was not doing what I preached once, I started to measure based on what I recommended. Do the same. Start the day with 2-4 glasses of water as described before. Constipation occurs b/c of many things ---------The biggest cause is lack of liquids. we think we drink enough. Nada--------
Have on hand will going through chemo several fleets enemas amd otc glucerin suppositories,
BUT YOUR BEST FRIEND will be drinkining enough water.
0 -
NC beach gal--------I should have added you need to see a GI doc for evaluation. Please read all the reasons to see a doc that I have previously written. Need to add a doc's eval will also consider that your rhoids are just what you think they are. They will also make sure they are not tumors. Please make sure you follow up on this. You do not want surprises , you already have been through enough.
0 -
Thanks sas- I have an appointment with my GI doc Thursday. I'm not expecting a huge revelation or immediate cure but perhaps peace of mind that these are only hemorrhoids and they WILL eventually go away. I can't believe I've followed every known treatment with only minimal relief and zero healing of the damaged tissue. I thought once the constipation was under control, the healing could begin. Not so far! Maybe my GI doc will at least give me hope.
0 -
Also, eat a lot of fruit. Water is VERY important - most important, IMO, though.
0 -
I made special chemo cookies to combat this problem. I took dried fruit (anything will do, raisins, figs, dates ...) and put them in the food processor, made them into a paste with olive oil, orange juice, orange zest, a couple of eggs, then some nuts and whole wheat flour and some extra bran for good measure. I would make the dough stiff enough to make into a log, then slice and bake.
0 -
Thanks Momine, I will try your recipe 0
-
momine - those sound great. I'm going to try them.
0 -
Constipation has been a problem for me since my early 20's and with bc treatment and drugs, it's become the biggest nightmare for me! I've tried everything from a-to-z and I've never had anything work for more than 1 day, except for now! I bought the organic chia seeds at Costco last week and it's been absolutely, life-changing amazing!!! I add a scoop-full with my protein breakfast shake in the morning and It's changed everything (excuse me if I'm being too candid here), but the size, shape and frequency makes me feel that I'm regular again for the first time in years....and the scales have been dropping the pounds too! I definitely have a "new best friend"! 0
-
collie-flower... love the name!!.....I am like you, maybe one day it will be normal then the very next day it will be hard again. I wonder what could be causing that change so quickly???? I have been thinking of getting some chia seeds for health purposes so now I will definately get some to try for my "problem".....We do not have a Costco close by...I wonder if Sams carries them?.....thanks for the info....I pray chia works as well for me.0
-
Balneol was suggested to me from a very kind person. If any one is experiencing pain with BMs, give it a try. So far it has produced temporary relief from pain. I just got it yesterday, so I can't speak to any healing properties. I found it at Walgreens. It's kind of expensive ($16.99 for 3 oz bottle) but if it works, who cares.? I found a $2.00 coupon on the manufacturers website, so that helped.
The product is easy to deal with, not messy or greasy and has a nice smell. I hope this is a solution!0 -
NCbeachgal, my DH found Baleneol for me after my first chemo (T/C). It has been a lifesaver, combined with gentle cleansing wipes, Miralax and colace. Good luck.
0 -
miralax in tea before bedtime, I drink talus tea, no caffiene at that time. Works in the morning, but I have concerns about long term use.
Good to know that Costco is carrying chia seeds, I have been buying the powder at Whole Foods, kinda expensive, but I like the powder in steel cut oats, and yes, that helped my constipation, too.
0 -
I just found (the hard way - no pun intended) that cinnamon REALLY can cause constipation - BADLY. So, if anyone is addicted to cinnamon, you may want to remove it from your diet...
0 -
w that receipe sounds yummy gonna get some of that...between my fiance's meds as a heart patient and my bc stuff we got the colace and the tucks and the cottonelle and the fiber one bars and eat enuff prunes and granola to kill a large rat. Now if I could just figure out how the PS is gonna do my fills next week when I already fill like my little alien muffin tops aka tissue expanders are gonna pop out like the monster in the movie with Capt Ridley. Is there anything we can take to relax the muscle or help the skin stretch? Dont forget the old standby an oldie but a goodie when the person comes back from the restroom and you're out in public announce "Hey did everything come out ok?" LOL....
0 -
collie-flower, I bought some organic chia seeds yesterday and last night mixed 2T with a glass of water and let it sit for about 10mins....it got thick but was easy to drink. Mine did not come with a scoop. How much does your scoop hold?....is 2Tbs enough?.....I did have a BM this morning but don't know if it was because of the chia....you think it was too soon to hope that it was?...this morning I added some to my oatmeal. Praying it works for me!!0
-
On the subject of Chia - found this today.
Chia seeds. They contain 500% more calcium than milk and have the same amount of omega-3 fatty acids as salmon. They also help stabilize blood sugar levels, as opposed to causing the spikes and falls that can occur when you eat sugars and refined carbohydrates. You can sprinkle them into recipes or into yogurt, or try one of my favorite recipes:
Chia Muffins
- 1 tablespoon chia seeds, ground (use a coffee or spice grinder)
- 11/2 cups whole wheat or whole grain flour
- 2 teaspoons cinnamon
- 1/2 teaspoon nutmeg
- 2 teaspoons baking soda
- 1/2 teaspoon salt or salt and pepper to taste
- 16-ounce can organic pumpkin (make sure there is only pumpkin listed in the ingredients list)
- 2 egg whites
- 1/4 cup high-quality canola oil
- 1/2 cup agave nectar
- 1 tablespoon vanilla
- 1/2 cup of chopped walnuts
Preheat oven to 350°F. Mix dry ingredients together in a bowl. In a separate bowl, mix all wet ingredients. Fold the wet ingredients and nuts into the dry ingredients, stirring only until dry ingredients are moistened (don’t overmix). Spoon into paper-lined or greased (with canola oil) muffin tins. Bake for 25 to 30 minutes, or until a toothpick inserted into the middle of a muffin comes out clean. Store completely cooled muffins in resealable plastic bags in the freezer. Makes about a dozen.
0 -
Minus two, Recipe sounds good.
0 -
Layla. With your fills . If it's too tight --wait a week or even two. There is no rule that says you have to have them every week. Don't let the doc hurry you.
Collie flower- great news on chia seeds Thanks.
Linda ----the chia seeds could have that quick of an affect. Remember it all going forward. think of it as the caboose pushing the engine forward.
0 -
Another thing to avoid if you are constipated or are wondering why all of a sudden is too many eggs as they will bind you up.
There really are some vey good healthy ideas here to keep things moving and I'm going to try some, in particular the cookies. They sound absolutely delicious!
0 -
MinusTwo.... thanks for the recipe
What I have read about Chia seeds is that it is a SUPERFOOD!!!!...Don't know why everyone is not consuming Chia and why it took me so long to jump in there....
0 -
Okay, dumb question--Are these chia seeds the same as the "Chia, chia chia pets" that you grow?
0 -
weety.... yes, the same Chia seeds. I just watched a you tube video on how to make your own chia pet. Think I will make one since I have the seeds. You can use the trimmings from the chia pet in salads.....
update:....I made a Chia pet today. I cannot wait for it to grow hair. I did not have eyes to hot glue on it so I just used blue buttons for the eyes and red for the mouth.
0 -
Weety - Gee I never thought of that. Gave me a good laugh. I'm sure glad Linda was able to clarify.
0 -
I used to have a lot of (medical) constipation even before BC. I did get a great tip on another thread and it works wonders for me now. I have tea each night prior to bed and I now put one prune in the tea to soak and soften. I does not affect the taste of the tea but does get nice and soft and easy to eat. I let it go down with the last of the tea and by mid-morning the next day, voila! No constipation since. Kitty
0 -
Well, today I went to my GI doc to discuss my constipation (which has resolved somewhat with a high fiber diet) and what I thought were hemorrhoids. It seems the constipation has led to anal fissure. The treatment is a compounded ointment called Nifedipine. If you google the drug, it's for heart issues. If you google anal fissure, the drug is a common treatment when compounded into an ointment. One dose, so far, so good. So glad I went to visit my GI. My MO just took my word for it that I had hemorrhoids and said fiber, Miralax, colace, tucks, anu-cort, sitz bath, etc. My GI took a look and prescribed what he thought would relieve the pain and promote healing. God, I hope it works!
I hate anal fissures and cancer....0 -
Hi Ladies,
Too funny.....every time I take out my chia seeds...that darn song keeps playing in my head too....."chia chia chia chia pet"....it's driving me crazy! But it's been 2 whole weeks and all I can say it's been a great success! Linda....I think the scoop I have is about 1 tablespoon, how are you doing with the chia seeds? I hope you're moving right along girl!......
0 -
NC Beach gal-------nifedipine----is the first drug in the classification of slow channel calcium blockers. When this drug came out it was a major breakthrough, Then some of the subsequent drugs were pulled off the market. Never knew it was offered as an ointment. It has abtihypertensive job to tdo primarily------ never knew it had anything to do with your use of it. AMAZING.
0 -
I never understood those commercials until I started chemo and taking all of my meds, and going through instant menopause at 40. I finally bought a bottle of stool softner but then never ended up using it. I found that eating a couple of sun dried tomatoes dry out of the package, or some dates and figs (as well as a a prune once in a while) really helped. The sun dried tomatoes worked quickly and gently, but be sure to drink a big glass of fluid, any kind. Spicy foods also really did the job, although sometimes a bit too well.
Yet another surprise from our nemisis, cancer. I never thought I'd discuss constipation with strangers or anyone for that matter.
0 -
I have suffered from constipation for many years .. have serious diverticulosis .. my GI dr. put me on Miralax, once a day. The first few days after chemo constipation is a little worse. The Miralax plus eating more fiber is a big help. Miralax is expensive, but you can get a prescription for Polyethylene Glycol 3350 (generic Miralax) at less cost if you have a prescription plan. My plan is $10.00 for a 3 month supply. Worth a try!!
0 -
Bouncing betties---------yes I get the things we talk about-----NEVER------But a reality of the drugs that we take during cancer and other things cause constipation or obstipation. Either causes severe effects to the colon. The effects to the colon has many effects. Loss of certain absorption of nutrients, water. If you review the first page I thought I was going to make a Market Something b/c I knew what Entereg would do.
The colon does not like drugs. Try probiotics------powder TBL in yogurt or cottage cheese. Or By mouth if you have thrush.=============cancer drugs interfere with all normal things in our bodies---------we just have to find out how to over counter the side effects. The word I just used does not mean over the counter drugs, It means as I said --we have to not let the drugs take over counter what they cause as problems to our systems.
0 -
I doubt anyone has the particular problem that I currently have.
I am suffering from haemhorroids which is odd considering I have a stoma bag. This means that to all intents and purposes, my rear end no longer works. I have been having strong urges to 'go' which I don't understand. The first time this happened on the New Years long weekend, I kept running to the toilet but, after nothing happened on the umpteenth time, I didn't run and then proceeded to embarrass myself by messing my pants. It wasn't faeces as such but a jelly like substance which the professionals said was 'normal' for some people. Eventually, it went away and I haven't had it again until this week. I will probably have to ring my stoma nurse tomorrow if the usual cream and pushing them back inside doesn't work.
Any advice anyone, all options would be gratefully received,
Sheila.
0 -
AussieSheila: Until you get some answers from your nurse, you might use Light Day Panty Liners (or whatever generic available there). I'm 68 and well past menopause, but I still keep them around the house for those "special occasions" when I find myself at the opposite pole from this thread. And I'm not talking only about pre-colonoscopy "purges".
0 -
Aussie Sheila , you've probably had a response from your Ostomy nurse. Wouldn't hurt to be seen by your GI doc. It's a change. Could be an expected change that only those folks that are intimately involed with the anus and rectum know about. Could be simple, could be complex. When answers can't be easliy found or given---THAT'S THE TIME TO CALL THE DIRECT PROFESSIONAL FOR THAT BODY PART or disease.
Please, if you feel comfortable sharing the answer, it would be appreciated. Sheila(USA)
0 -
Sheila, I had to go for two scans on Thursday (body and bone) to clear me of progression or the surgeon will not do a reversal in case I have to have chemo. By the time I got home about 5 hrs later, I had a very uncomfortable rear end, so I applied some o.t.c. medication, hoping it would work while I lay down for a while. When I woke up it was after 4 pm and my nurse had packed up for the day and is off til Monday. I bought some cream that contains anaesthetic today and as the pushing urge seems to be waning, I am keeping my fingers crossed that the contractions down there will 'pass.' If not, I will go to my local hospital like the last time. Thanks for your concern Sheila, I appreciate having the benefit of your many years of experience.
Sheila.
How often so you get to start and end a post with the same name?
0 -
I have the opposite problem but it's because of diverticulitis. This attack has been coming and going for 3 months and I'm on my 2nd round of antibiotics. Please, someone HELP!
0 -
Ro, do you drink any alcohol or smoke. If so stop all for about a month. After a few days to one week b/c you want to see what the response is.. At the end of first test period, add probiotic powder Tbl spoon mixed in with yogurt or gottage cheese, or cereal. 2-3 tx's a day. after 2-3 days to evaluate tollerance i.e no s.e.'s. Get the superdophilus at a health food store. Next Add stewed prunes or appricots as previously described by other in previous posts. Then start to add fiber1-2 gms per day( this one clear with your doc). Work up to 25-30 gms of fiber a day. Preferably, by food, but if you must use a product ask your doc--there are many OTC products--Metamucil, citracell. For any constipation keep miralax and glycerin sypositories on hand. The key to the above is these are basically all natural products--excluding Miralax.and suppositories.
You could start faster if you want>>quit alcohol/smoking>start probiotics same day>> prunes same day>>and fiber (Fiber needs to be clear with doc this is a must during active diverticulitis). But if you start everything at once, you won't know which one is changing things. You could say I don't care, I want relief now. I get that. Had diverticulitis twice, lost part of the Colon. Not just quoting out of a book here. My second bout with d-itisis was b/c of celebrex.
What drugs are you on?----------Good luck and let us all know what works
If you have time to read from the beginning you make find something you over read before. Worthe a try.0 -
Aussis Sheila, I laugh every time we post together and then there is Seyla sheila. That's why I some time ad USA sheila LOL
0 -
So glad to find this thread!! Pre BMX I was a smoker and NEVER had a problem with regularity. Now almost one year after BMX and three reconstructive surgeries as well as quitting smoking, I only go once a week!!! I also attribute my weight gain to lack of movement.
Adding lots of fiber and trying to drink more water............
0 -
I should add that fiber is not an innocuous, harmless thing. In a colon that is not used to working the fiber through b/c a colon used to a low fiber diet or also known as low residue , the muscle layer of the colon is weak. If too much fiber is introduced too fast, it can actually cause an OBSTRUCTION. If tic's are present, it may cause a blowout. So, just b/c you hear eat lots of fiber. Doesn't make it totally true. 1-2 gms per week to whip that colon into shape. Then keep it up the rest of your life. Please read water section 1st page. Too much fiber without enough water(liquid)can make cement. TRY and poop that out. Effectively that's how adobe mud houses are made
."The Joys of POOP". WE all should write a book.
It's time for some Poop jokes. Of course they can't be clean.
0 -
Hey Ingoo. I just added a thing on fiber. Then posted and there was your post . This was meant for you babe.LOL. above
SAS
0 -
ingoodcompany is right. Drinking more water defiintely helps. I know that physical activity helps but that's not always easy for us. I've had a few days of issues, but I do know that drinking DanActive has helped my stomach. So many new and fun experiences with breast cancer
0 -
Please, oh, please, Read from the beginning . there is so much good info written by everyone. The nurses in the group or that fly by try do add info about safe things. Pay attention to the safe recommendations. They will help keep you from getting a Blowout. I will periodically, post this in case someone drops in that bypasses the beginning
0 -
Does taking docusate sodium (stool softener) on a regular basis hurt anything? That plus about a gallon of water finally broke up my log jam. I think it's the calcium. Perhaps that's why I've never been able to take it regularly.
0 -
Wren I think the taking dulcolax question should be answered by your GI doc or pharmasist. Over time your body will become less responsive, which then you need to find a new routine.
Calcium is a sure bet on constipation. Trying some of the things recommended from the beginning would be worth a try. How much Ca++ a day. Less likely to get constipated if you take it through your food. Using Ca++ to prevent osteopenia/osteoporosis.?Induce by AI's?
0 -
Thanks for the info, Sas. I can always count on you! I don't drink or smoke and the only med. I take is the generic Arimidex. I take probiotics every day and I will take your advice on slowly adding fiber. I'm drinking so much water, I feel like a camel! I just bought the Splenda with 1 gram of fiber per serving. I'll get some apricots tomorrow. Thanks again, I'll let you know how things progress. I'm hoping this too shall pass (that was my poop joke!).
0 -
Ro don't take your probiotic within two hours of anti bx. b/c it will just kill it. Take probiotics at least 3-4 times a day while on antibx. You're likely on Keflex which is cephlahexin. Taken usualy 4 tx's aday with D-tic. So. it's a real trick to keep evrything 2 hours apart.
It's time to have the serious sitdown with your GI doc about getting that stretch of colon out. Rationale. It's reared it's ugly head twice. Now with this bout the timing has been very long or protracted. Being on prolonged antibx's can mess with your immune system and have long term consequences. Each doc has.there approach. He presented it to me almost as I presented it to you. Except the finale rationale was you could avoid a rupture. Once tic's rupture, there is no way to predict until it's all over ,with how the course of events is going to go. My choice at the time was to get the offending portion out. What I would change is, I would have done it sooner. I delayed things for several weeks b/c of a family reunion.
Left big thought out after re-reading your post. If your tics are causing you pain, during those periods you should be on clear liquids until the pain goes away. Pain worsen's--get yourself to the ER.
0 -
Sas - Taking calcium because I have osteopenia and have just started aromatase. I have been taking it 2 x day because I read you can only absorb 500 at a time. I got the citrate because it's a little easier on the tummy. My food intake is limited by lactose intolerance - not severe, but can't just drink milk. I'm going to try the dried plums. I love dried apricots, but have never noticed a change when I eat them. I used to keep dried apricots and almonds on hand for a good snack.
0 -
Sas, did you have to have a colostomy after resection and if so, for how long?
0 -
Ro ---No I didn't have a colostomy. There was a minimal possibility that I would, but that's why I choose the ELECTIVE COLON RESECTION. I didn't want to risk a rupture. My Gi doc recommends after two bouts , an elective be considered b/c of rupture risk. So, it's a hard decision. Like I said have a sit down with your GI doc.----GOOD LUCK
Wren---consider rice milk , lactose free, estrogen free, loaded with calcium. There is also , almond milk and some others. Anyone interested on the estrogen in our cow's milk google key words. Risks of cow's milk and estrogen.
0 -
I drink almond milk, but rice is good also. 0
-
Ptdreamer, I chose rice milk simply b/c I was allergic to the others. I think the key is once people read about the dangers of USA milk they will switch to an alternative. Plus they load them with Calcium, which we all need b/c of the AI;s and tamox causing osteo. Oral pill calcium is sooooooooo constipating
0 -
If anyone is experiencing anal fissures due to the constipation, try manuka honey. My acupuncturist told me about it and it, along with nifedipine, seems to be working. It has antibiotic properties that seem to help a number of skin and digestive disorders. It's expensive, but if it works-it's worth every penny!
I believe if I can keep my stool soft, very soft, these fissures will heal with the help of these products. They have so far worked to minimize the pain throughout the day. BMs are still somewhat painful but that's to be expected until these fissures completely heal.0 -
NCB---------had a very long involved piece that went to the computer netherworld. Couldn't rewrite. Except when fissures are involved be very careful not to stick up anything up the anus unless specifically instructed by the GI doc. Could be dangerous. There is one drug I can think that they might recommend, but again please , don't do it without express orders. Good luck.
0 -
Bump, I will bump this weekly or so, their are so many good suggestions from folks I don't want it to get lost.
0 -
Bump----read thead from beginning, has much info from many giving people sheila
0 -
Never had issues with this until chemo and all of these drugs. So most days I take two gummy "Fiber Well" chews. Not something recommended by my doctor, just something I saw at the pharmacy. Trust me, it works. I've figured out all of the best restrooms on the route from my daughter's school back to our house in the morning.
I used to eat Kashi-Go-Lean cereal every day, but it has soy and isn't organic, so I stopped eating it. My hair stylist called it Kashi-Go-Poop! In any event, there must be some really good organic cereals with fiber, would love some recommendations.
0 -
JENILEE HAVE TO WRITE IN CAPS RIGHT NOW, EYE TROUBLE.
TRY A HEALTH FOOD STORE FIRST, THEN DO COMPARISON SHOPPING AT LOCAL STORE.. i'M ALWAYS WARY OF STANDARD STORES TRUTH TELLING ABOUT ORGANIC. THERE ARE SO MANY WAYS THE GOVERNMENT HAS ALLOWED GETTING AROUND WHAT IS TRUTH IN THE PACKAGE.
0 -
check on amazon.com. They have EVERYTHING!
0 -
BUMP
0 -
There was just a report on the Kashi cereal that said that it was not the "organic food" that they claim...I have boxes in my pantry so thinking of throwing them out. I am going to check google and get more info on this report before I do that.
0 -
Uncle Sam cereal is very good and packed with fiber. The only negative is the flax seeds are whole and get caught in my teeth! I mail order a great supplement from Europe called Fruit and Fibre made by Oris. It is a chewable all natural and works like a dream for me. Wish I could buy in the states
0 -
Just wanted to share with you something that has saved my sanity. I have diverticulitis and have been sick since December. My onc said my BC treatment had probably made my condition worse. I was on several antibiotics which worked for a few days and then the fever would come back. I got a sinus infection in April and was given Clarithromycin (sp?). Of course, it caused another case of thrush on my tongue. ARRGH! I went to GNC to get some strong probiotics and a lady came up to me and asked me if I was taking the probiotics for stomach problems so of course we got into a discussion of our tummy troubles. I told her I was looking at either an intestinal blowout or surgery. She suggested I try taking 8 ounces of Aloe Vera juice with fruit juice daily. She said she'd been drinking it for years and it had cured her GERD. (Oh by the way, she was buying Bert's Bees lotion.) I figured what the heck and started drinking it. And it WORKED! No more stomach pain, nausea or diarrhea! It's been a month now and so far so good. I need to hang out in GNC more often. I don't know if this will help anyone else, but I used Aloe gel on my radiation burn with awesome results and now I'm getting the same by using Aloe on the inside.
0 -
I think I have tried everything to help me "go" on a regular basis and nothing seems to work except a supplement for digestive health. It is Cascara Sagrada 450 mg. I do not take it everyday...maybe 2-3 times a week. Every time I take one by the evening I go and then I go the next morning. I told my husband that a good BM is better than sex...LOL
do you research on this supplement and also you might want to ask your doctor about it if you are on medication....
0 -
Ok everybody get ready for this tip. If it's mentioned earlier, then take this as another endorsement.
Everyone needs to try CHIA SEEDS! It works! I have had an anal fissure since chemo --ouch. Could not get regular, but voila! Success.
Lot's of positives for chia seeds:
Has a favorable soluble/insoluble fiber ratio. It is one of the few plant based sources of omega 3s (also has good omega 3/6 ratio). It's shelf stable, doesn't go rancid or need to be ground. When soaked in water, it absorbs 9 times it's weight in water and forms a gel like substance that actually helps you retain hydration longer. And, reportedly helps block or slow the absorption of carbohydrates.
Whew, it's a superfood. You can even cook with the gel, where it can replace fats, sugars in recipes.
It is a little awkward to take. I do one tablespoon a day and holy sh*t -- literally!. Only you ladies can truly understand the relief I'm talking about.
Seriously, get at whole foods, google it and go for it! (put in smoothies, sprinkle on cottage cheese, shove it in your mouth, just DO IT,,,,,,)
Amanda0 -
I have been taking 1 tablespoon of Chia Seeds in my green tea for 2 months now...it is a superfood but did nothing for my going problem...like I said in the above post, only Cascara Sagrada helped me. I will continue with the chia seeds...they are super!!
0 -
Yesterday I had the colonoscopy that I told you I was having earlier in this thread, and the doctor says he can't find a thing wrong with me, and I don't have to go back for 10 years. It's really good news, especially as the problem that bothered me originally after my breast cancer surgery was already getting better. Being told there's nothing wrong with you when you feel awful can be worse than being told you're sick, because when you know what's wrong, something will be done about it. The doctor suggested that I have a consultation with my regular family doctor.
I hope constipation isn't a side effect of any of the sedatives that I got. I was given Fentanyl and Versed. If constipation is a side effect of either of these, could someone let me know so I can start taking a stool softener?
0 -
I believe that all sedatives (and pain killers) have a side-effect of diminishing the work of your intestines - which in turn leads to constipation. I don't know anything factual about either of those two in particular, though.
0 -
Gardengrumby--the opiates interfere with the MU receptors in the intestines. There has been a drug approved that prevents this , but it is under very strict guidelines by the FDA--it's name is Entereg. Not available outside of hospitals. When it was in development-trials, I actually bought stock . But lost money and sold it. Subsequently was approved.
Sedatives can cause constipation , but don't know the route b/c I haven't studied it. As a young nursing student learning drugs, one of the things that the older nursing students passed on was when quizzed on your drugs by the instructors always start with " nausea/ vomiting, diarrhea, constipation". That got you four to start with.
0 -
It's three days now since the colonoscopy and it's still a bit too soon, I think, to know if I've got a problem. Yesterday I didn't feel any bowel activity at all, but today I"m feeling a bit bloated and passing some gas. Something should come out within a day or two, I should think. I'll know i have problems if I get a really strong urge (hasn't happened yet) and it's stuck in there.
Doctors shouldn't use drugs that can cause constipation when they're doing a test like that. After going through that prep, I've had enough trouble with that part of my body and want things to get back to normal. I've been drinking lots of water. That should help.
0 -
Booboo2---You did a total colon clean-out with the prep. Depending what you ate since, and the working of you gastrointestinal tract, 3 days after a colonoscopy, it isn't considered that abnormal to not pass anything. Check in with your GI doc. If you are taking drugs that delay gastric motility meaning slows every thing down for example, pain medicine and or other drugs, It's not the drugs they used for the scope. It may be what you are using on a daily basis and what you are eating or not eating.
0 -
Bump- or bum in this case- to poop or not to poop that is the question?
0 -
I am a recent adapter to a magnesium supplement called Natural Calm. Helps with the bowels and I also notice it helps with some toe cramping I was experiencing.
0 -
i drink a senna diet tea.. works goods for me because i can have a little cup or just a couple sips.
celery, an apple, dried cherries.. (oh yeah,, they're the best with dried apricots and apples)
0 -
Bump
0 -
The following link was sent by SpecialK --defiinitely worth a read.
Here is a prune and bone health link:
http://www.fyiliving.com/health-news/why-your-bones-love-prunes/
0 -
Bump for more comfortale butts.
0 -
Bump for plugged up butts
0 -
I have been taking gummies, called Fiber Well by Vitafusion. Got them at Costco. They are working, finally feeling normal. They are 5 grams of fiber per serving. Does anyone know of any negative issues with taking supplements in this form? I also take the calcium and multi in this gummie form. Makes it easier than swallowing all those pills.
0 -
I think the only thing with gummies would be to brush your teeth afterwards. I think the stickiness might contribute to cavities.
0 -
Another vote here for the Uncle sam cereal.
0 -
Brownies work for me every time whether I have a problem or not!
0 -
Hlb--so what's in the brownies?
0 -
Corn on the cob is helpful. Probably due to the fiber.
0 -
Bump for a better go......
0 -
Bump for honeybair
0 -
Avocado! As long as I eat one or two a week, I'm good.
0 -
I had a horrible time with this while on my FEC regime, it was probably my worst SE, and no matter what I did, I didnt go for about 4-5 days after each treatment. I am a vegetarian and always ate lots of veg's and fibre, and I took stool softener during treatment, but it was like someone flipped a switch and everything shut down. IMO it didn't matter so much what I was eating because the muscle contractions to "move" things along weren't there. By week's end I typically looked like I was several months pregnant.
I did find licorice tea somewhat helpful, and as for the fallout from the constipation I have two words for you:
WITCH HAZEL
Following a tip I'd found somewhere, I purchased a full bottle of witch hazel and a plastic container of unscented baby wipes. Open the container and pour a large quantity of the witch hazel in there, and keep those on hand for cleaning. I also used gauze or what not soaked in witch hazel against my skin down there when things got really bad. It did help.
0 -
I have always had irritable bowel syndrome with constipation, but have noticed that for the 3 1/2 years I've been on tamoxifen, it has gotten worse, to the point that I "go" only one good "go" maybe once a week, and the rest of the time, when I do "go", it's pellets. I take daily fiber, magnesium and prune or apple juice. I eat lots of natural fiber in fruits and veggies. Drink lots of water. The only thing that helps is either casgarda sagrada (spelling?) or stool softener. It's been getting worse, so 2 days ago I used magnesium citrate, and spent that evening and the following morning with explosive diarreah. I am going to my GP for a routine exam next week and am going to ask him what to do, because I forsee being on tamox for a while still. It's so frustrating!!!
0 -
Bump
0 -
Bump for me
0 -
OMG, this has been a huge problem for me during chemo. A couple weeks ago, I seriously considered going to the hospital because I was in so much pain trying to have a BM. I have a hemorroid too, which made it worse, and of course it bleeds every time I'm constipated. I felt like I was giving birth through my butt! I tried mineral oil, prunes, lots of fruit juice, coffee, etc. Finally got some relief, but it's a recurring problem. I seem to alternate between constipation and diarrhea. Ugh...
0 -
My oncologist told me to start Miralax every day as soon as I started chemo. I didn't want to take it so I didn't and got into some serious problems with constipation, I was miserable but finally I listened to her and it did the job...I was afraid it would be "too strong" but it was gentle and easy and I had no problems once I got started. I am still taking it as I continue to recover from the side effects of the chemo, she told me it would be 6 months to a year before I would be "back to normal" so I am trying to be patient...I'm so sorry you are going thru this (((spartygirl))), I hope you find an answer that helps you...(((Hugs))) Maureen
0 -
So glad to have found this thread!
Post-surgery I had extreme issues. I didn't go for... 9 days? And even after that it was little teeny rocks. It took at least 2-3 weeks for me to start having bowel movements that even vaguely resembled "normal." More than once I was stuck on the toilet for 1-2 HOURS, worse than childbirth, really was traumatic!
For me it was the anti-nausea meds, I think, plus a bit of narcotics didn't help, but once I stopped taking any meds I started getting back on track. In the meantime, all the colace and veggies and prunes and senna and probiotics and stuff did nothing to get me going.
So I'm starting chemo in just over a week and terrified I will have similar results! But also worried that if I take something preventatively, I'll be the one to end up with diarrhea instead, and complicate things by taking stool softners. I just want the first round to go as smoothly a possible. So do I take something the day before/day of? Wait and see how I respond first? (I am getting TCx4.) Some of my nausea meds are the same ones I took after surgery so I'm really worried. What would be most gentle & effective without causing the opposite problem?
0 -
indenial, I had major constipation issues with my chemo, same painfully traumatic toilet experiences as you! I would highly recommend starting a stool softener the day before chemo (they are gentle, something like colace) and continuing throughout the chemo. Drink lots of water, don't be afraid of Metamucil, and keep a gentle (senokot) laxative on hand. I needed to use all of the above on a daily (sometimes twice daily) basis and finally the only thing that ended up helping in the end was the addition of lactulose syrup. I had never had this problem in my life before so I couldn't believe how many bowel meds I ended up on, but my MO said you have to do what you have to do. I'm now 3+ months post chemo and all is good again with no meds whatsoever
(didn't take too long either, only a couple of weeks) good luck!0 -
Ducky, colon ulceration generally starts with "something" , a cellular change, bacterial, viral( I'd have to google but sounds plausible as viruses attack many things). The bacterial(possible viral) change can cause a diarrhea with a pass through of intestinal contents from the small intestine through to the large intestine also known as the colon. The contents of the small intestine are a different pH than the large intestine. The large intestine/colon the lining can be inflammed, craters or ulcers can occur. The inflamation can be so severe that passing of stool can be interferred with. The lining can be ulcerated or lost. When this happens bleeding can occur. If the ulcer is near a blood vessel, depending on size of the vessel, bleeding can range from small to severe. This is known as a GI bleed-gastrointestinal(stomachintiestine) bleed. If the intestinal wall is breached b/c of ulceration or break , it is known as a perforation. A perforation is an acute medical emergency s/s's increasing abdominal pain,'fever, board like abdomen. Google for further info b/c that's not the problem now.
There are conditions of the colon that the problem originates in the colon versus as a result of stool from the small intestine. The management can be the same or different-- depends. BUT big BUT for you (YEAH) the pain has reduced since you started the med. So, as your doc has said continuing the med appears good until you are seen by GI doc. The reduction in pain confirms that the intestinal environment is likely less inflamed. Otherwise, there would be no change in your symptoms. The right sided pain can mean it's still the colon nearest anus as anatomically there are variations, but could be over to right colon. Google keywords "picture of colon" or "anatomy of colon". What to report: symptoms change or worsen. Check each stool for blood can vary from bright red to black. Different reasons for the color reasons, the key is to report the change b/c it identifies a condition change and management changes.
Skin care of rectal area. As the colon can be inflammed , the tissue around the rectum can feel as if it's burned when freguent diarrhea occurs. Some suggestions. 1. Use a squezze bottle filled with water to spray on area before wiping. 2. Wipe gently or PAT clean, using Tucks can be good --place in fridge to keep cold. Very soothing on a burning butt. 3. Apply a soothing rectal ointment once skin clean. Ask doc for recommendation, many products on market or availble by prescription. MY personal favorite is Bag Balm. 4. Careful handwashing with an antibacterial soap is good. In severe situations using gloves even for your own bottom is good, then still wash hands thoroughly. 5. In woman care must be taken to not contaminate the vagina and urinary opening. I think this is the only thing that guys have, that's an advantage.
Ducky going to transfer this to my teaching library and my constipation thread. I write about such fun stuff LOL. I'll bring back the links for the constipation thread, and the diarrhea thread that Jill(?) started. You may find some pearls or nuggets(pun) on either. Sassy/sheila
0 -
Good Morning-friends, have been working on an issue with a member. Wanted to share with you all the note below b/c of it's importance. Hope you find it useful Sassy
(members name deleted) Glad the link helped. If you get the AARP magazine this months issue (probably dated may 2013) , there is a story about the safest hospitals and what safety procedures that are in place that cause them to be safe. The article cites that 180,000 people die a year due to medical/surgical errors AND 400,000 drug errors are made a year. The articles states that these numbers are likely higher b/c these are the ones that are reported. I agree. I know you've seen where I've said on the threads "Sorry etc for too much info, just want too make you(BCO memebers) safer". Guess I should stop apologizing for writing stuff in this regard. These numbers are higher then the last set of numbers that I had known. The problem is either getting worse OR there is better reporting. I'll go with better reporting.
It cited that one of the safety items was having an ICU Intensivist. It cited that only 35% of hospitals had Intensivist. I was dismayed at this percentage since residencies for Critical Care Medicine have been available since the 1980's. Truly thought by now that the "industry" would have been driven by demand for better care that this statistic would be 70 to 80%. ICU medicine is absolutely in need of a specially trained doc. Just as in all subspecialties of the American Medical Association(AMA), the knowledge and skills of this subspecialty are critical to survival when a patient is at this level of need.
I'm going to post this on the threads, I'll take off identifiers. My hope is those seeing this will locate a copy of the AARP article. Read it throroughly. Then question there local hospitals on each item. Based on what they elicit re:safety of each facility, they can choose the safest hospital near them for care. It can mean the difference between life and death, and or avoidable complications. Spreading the word to others regarding this may save lives.
Your description of where your friends daughter is now is typical. So, the care may have been fine or she recovered in spite of them. I'll go with the care b/c of your description of how she appears now. What was truly lacking here was the communication in lay terms to the family of was what was going on with the patient. All the lay person then can do observing is assume, as in this patients case, there appeared to be fractured care delivery and choas. What can the untrained person concluded observing this. As in all care, communication is the center of it all. Very often even the care givers question what the recovery will be. AND then the patient pulls through. Continuing with evaluating the records will lend a lot to the understanding of this event.
0 -
Here's how I was feeling yesterday. slightly better today!
0 -
Repost from another thread in response to Phgraham,
Went to get constipation link, and see that you've been there, 8 pages talking poop, if you can't find sumpin to get you going let me know and i'll do a search. BTW your taking calcium because of? Calcium as you likely know is a constipator, add that to opiods-narcotics, it's like mixing cement. If your taking the calcium b/c of ostopenia/osteoporosis, a talk with your doc is in order to see what they recommend. The problem is not just the pain and discomfort of constipation. Prolonged and or severe constipation puts to much stress on the colon wall. Can lead to troubles like diverticulitosis(condition of pouches on colon wall) diverticulitis(inflammation of the pouches). Pg 1 on C thread I did a thing on divertic. Not recommending you change tx w/o talking to doc, but chat with them about not taking the two on the same day, or reducing calcium dose when taking narc. Watch your diet for things that can bind like cheese i.e high calcium foods. Is there any food in your past that only caused loose stools that you removed from your diet? Cabbage soup for me is a true thing to cause diarrhea Ugh. So, the thought being if you had a food trigger that caused diarrhea in the past that isn't contraindicated( definition--Do not use) with present drugs, re-add that to your diet and see what the outcome(pun intended) is. Actually measure for several days how much fluid your drinking. Calcium+ narcs+ to little fluids= reinforced concrete. Discussion of high fiber diets has fallen into disfavor by the American Society of Gastroenterologists. BUT BUT it does not mean that all GI docs agree with it. This position is very contraversial at this point.Good luck with outcome sassy---Transferring this to constipation thread
0 -
sas - I read through all 8 freekin' pages! I read them through the last time I had chemo also. I was thinking it might be the senna-s that was causing the cramping (and not working all that well) so I quit taking it. I have always had cramping with any kind of laxative. Once before I had tried room temp prune juice followed by hot tea with the senna-s and that sorta worked.
Yesterday I went with my fiber supplement, warm prune juice and hot tea. The good news is that I was able to poop! The bad news is that I still had the same sicky cramping in my belly. I'm thinking that a 10 foot python lives in there now and is still trying to get comfy.
Today I'm going with the fiber and half of the prune juice and hot tea and see where we get. I will also monitor my water intake. I've always been able to drink LOTS of water - between 2-3 liters a day, but with my taste buds dying, I might have been slacking. I'll check it. And yes, I cut out the calcium until MO yells about it. She and I had a mild argument last fall, after treatment, about whether EVERY WOMAN in the world needs it. I think I'm special - no osteopenia, no osteoporosis and no signs of such. She got all technical on me and I lost the thread of the conversation, except that I was supposed to take the calcium
I really might be able to stand this forking chemo if I can just get my gut to go along with it.
Thanks for you help here. You are the BEST!!!
Phyllis
0 -
Hi, I'm learning a lot thru this topic. Thank you all!
About adequate water intake: a registered dietician told me to examine the color of my urine. If I am getting enough water, my urine should be the color of light lemonade. Anything deeper yellow means your water intake is not enough.
Tried it for several days, some of which I was able to drink a lot of water and other days I didn't. Quite a difference in the color of my urine.
Question: Pre, during, and post mastectomy I treated myself to Fiji water. The best bottled water I've ever tasted, absolutely no after taste like I get with other waters.
Now it's time to get real with the budget. Fiji is the most expensive water around. Has anyone found a bottled water with no after taste that's reasonably priced?
Peggy0 -
One more thing. A doctor I know recommended cooking up a batch of dried prunes, dried apricots, and any other tasty dried fruit in your grocery. Add slices of lemon which you will discard at the end of stewing these fruits in water (she left it to me to figure out the amount of water, since it was her grandmother's recipe and she hadn't made it in some time.)
It worked but i have two concerns about using it frequently: 1. It takes a lot of time to make up a batch of this and 2. We're supposed to be cutting back on sugar and these dried fruits contain a lot of sugar.
Today I need to go. I look pregnant. Going to try some of your suggestions.
Peggy0 -
Peggy, I can sometimes drink tea, but I've always liked water better plus it's easier on your kidneys. Now though with chemotastebuds, I'm having a harder time. Doesn't seem to matter whether filtered or bottled for me. Good luck!
0 -
Thanks ph, I'll never forget the chemo taste buds. Every thing tasted like cardboard to me except for McDonald's strawberry jam. Only McDonalds serves it (it is made specifically for this chain restaurant) and my DH would go to different McDonalds trying to buy a case of it and some days he would come home with three packets for $0.15 cents and other days he'd hit the jackpot and bring a bag home free.
Does anything taste good to you now?
Peggy0 -
Peggy, great addition about checking urine color. I bet if you contacted McDonalds , they would send you a bunch. Love your doc's GM's recipe. The overall opinions in the first eight pages, identified apricots and prunes and lemon as the best to get things moving. It just seems logical with that in mind that putting them together would really work well. Probably at least 12 to 18 oz's of water would give enough for two days. Adding Ginger would help with nausea. (Avoid ginger if on coumadin/warfarin).
0 -
Phyll, if that cramping doesn't straighten out check-in with your doc. or let us know when you pass that python. Glad you cleaned out some. Reading so many pages on pooping is not something any of ever thought we do! That's why I say any pun that comes to mind alleviates some of the serious thinking about such an uncomfortable topic. We should get Chevy here for a few posts . Her wit would certainly help!
0 -
Saw this on active thread, don't know if this has been suggested: I go to Costco and get their LARGE bag of pitted prunes. Use about 8, add water, lemon juice, or lime juice, microwave for a minute or so - and eating them MOISTENED is important, work faster. Also HYDRATION is crucial, drink more water than you ever thought you'd be able to drink. good luck.
eta: NO CHEESE when you are constipated - it will only add to the problem.
0 -
Sunflower Thanks, all have been discussed, but each are so important, rementioning them always has value.
0 -
Note on hydration, Previous post mention the average amount an adult should drink--arrorximatly 2 liters a day. We just had a discussion re: measuring what you actually drink versus what you think your drinking. And then looking at urine color. Pale to clear urine idicates --well hydrated. Dark yellow indicates poor hydration. This is medically referred to as concentrated urine.
Would like to add if you determine your hydration status indicates you need more fluids. Add these fluids slowly over several days till you reach your goal of the amount you want to maintain daily. The important reason for this is you want your body to adjust. The kidney is responsible for maintaining fluid balance. The kidney just like any organ needs time to "recognize" changing levels. It will then change how it controls these levels. If too much is added at one time, it may not adjust fast enough. This would then stress the heart. Just as too much fiber added to the diet in a short period of time can lead to blockage or obstruction, too much fluid can lead to problems. The key is moderation when initiating something new
0 -
I haven't read all pages so maybe its mentioned but, magnesium 500 mg a day. I tried a lot of things that just didn't work but this was the magic bullet for me. But it had to be 500 not 250. I have to take calcium because of being on XGEVA. I think its good to take the mag with the calcium for absorbtion anyway. Try it out. Just plain cheap mag oxide pills.
0 -
Apr 30, 2013 09:52 PM, edited Apr 30, 2013 11:17 PM by sas-schatzi
Scottie and Cami and all, I reviewed multiple articles with changing keywords. Keywords as we all know change what we pull as responses. The words I put about the immunocomprimised person are the same. I did find a nicely written article about "Rectal Administration of Medication"
www.healthline.com/galecontent...
The significance of this article is that is directed at nurses as to how to do it correctly. For us as patients, it gives us a guide to know what is correct. For those of us that need to have a home guide, it is valuable for self use, or training someone to do this for us. The ideal would be to have a nurse train both you and helper to do this. Again what I like about this internet article is it covers all the basics , just like I learned it.
______________________________________________________________________
www.mayoclinic.com/health/drug...
The significance of this article by Mayo clinic is they teach about the drugs by name and then talk about use. Trying to keep the name of the drug attached to it's use is hard let alone how it works. These instruction pages do a good job. FYI, I didn't use keyword Mayo Clinic, but Mayo should be a first go to site for info on all things medical. They have teaching info on everything. Analogy, BCO main board is a first go to site for all things BC, thats what Mayo is to all other stuff(glad I can use slang versus prettified language).
Tired now, no more searching. Please review links, if they don't satisfy your need to know question, post question
sassyLast thought about use of enemas and suppositories, The doc technical papers all stated not to use in "a reduced immune state". All referrenced neutriplils and WBC's being below normal as a reason to not use. None refferenced that are immune systems are altered when using things like AI's and Tamox. So, discuss with doc , I suppose the MO is the most qualified. Lastly when using , lubricate well and be very gentle with insertion.
Your review of these links and the questions you pose ARE IMPORTANT, it will identify flaws in the search. Once no other questions are received , I will then add this to the Constipation thread.
0 -
sass - I had 76 oz of water (about my usual intake) yesterday plus juice and tea so I may be in the ballpark on fluid intake. And my pee is very light yellow. You're right, I had some relief but today I'm back to square one. My python is still there, but seems to be sleeping this morning.
0 -
this one looks better!
0 -
OMG Phyll, that stawberry snake is soooo cute and yummy looking. A nice visual diversion here. Measuring your fluid intake has been valuable. Figuire 8 oz to a glass, you are at 8 plus glasses a day, urine indicates well hydrated. So, constipation is not from lack of fluids. Good thing to know. Allows you to concentrate on finding a remedy that works for you:)
Note on abdominal cramping: can be normal individual response when colon working. Can be abnormal when blockage or obstruction present. Generally, if cramping becomes intense or exceedingly painful, prolonged in time, doubles you over, takes your breath away that is a warning to seek medical evaluation.
0 -
Hallelujah!! We have achieved poopage! Two days in a row...and the python may be sleeping. Abdomen still doesn't feel normal but it's WAY better than the python fight.
Current treatment is 6 oz room temp prune juice followed by hot tea followed by breakfast followed by Xeloda.0 -
Congratulations! Lol!! I just remembered something and again, sorry if its already been mentioned. If you search youtube there are instructions for massaging the abdomen and I found that sometimes it really works. At the time I think I was half going off the deep end over it and that was just contributing to the problem, so I laid down and did the massage very slowly and thoroughly which really helped me to relax mentally as well. I starting imagining I would have to go to the ED to get disimpacted and how utterly mortified I would be, then I thought, even worse, I could have an obstruction and need surgery and a colostomy and just really turned it into a total nightmare in my mind! Lol
0 -
Hi Ladies,
I just started my chemo treatments and by far the worst SE (except for bone pain) was the constipation. Like most of you, I've tried the senna-S, 3 litres of water daily, bran buds, yogurt, etc, but my bowel was still lacking the stim it needed to push things along. I used Microlax to get things moving after the 3rd day because I didn't want to become impacted.
Because I've always had IBS-C, I've used Microlax on occasion throughout the years. It has always worked without issue to stimulate a movement and acts as a laxative through its faecal softening and lubricant properties. It comes in a box of 12 and I have had to use it twice daily when I swore I was trying to pass a softball
It may be something to ask your doctor about. It's available OTC in Canada. 0 -
Congratulatios to all you poopers!!!!!!!!
found sthis old post I did on PORT placement thread eaons ago. Is applicable here as we all have so many surgeries.
Jul 2, 2011 05:53 PM, edited Jul 5, 2011 08:17 AM by sas-schatzi
Post -op hydration or the taking in of oral fluids is very important to avoid dehydration. That was discussed a couple of posts ago.
BUT solid food you have to be careful with. The meds used during surgery can slow down the working wave like motion of the intestinal tract. Introducing too much food, too fast post-op can cause the intestinal tract to go to sleep. The medical term is an ileus. It's as if the intestine is saying "I'm not ready yet". You can avoid this problem post-op by starting first with clear liquids.
Clear liquids include anything you can see through--clear broths , jello, tea/coffee,Popsicles. If you tolerate the clear liquids i.e no nausea or vomiting,abd pain, bloating, burping, then you can move onto full liquids.
Full liquids include milk or anything made with milk --like ice cream,custards. If full liquids are tolerated, again no N/V-bloating, burping, then move to a soft low residue foods.
Soft low residue diet is easily digested and doesn't irritate the intestinal tract. The hyperlink below is a very complete listing of what is include on this diet-www.nlm.nih.gov/medlineplus/en...
Again , if there are no abdominal complaints----N/V, bloating, pain, burping, The BIGGEST question of all, is are you passing gas from the rectum. This is important because it tells us the intestinal tract is awake and moving in the right direction-------Yeah And a first bowel movement is to be applauded.
The exact amount of time at each level cannot be predicted. The key is no symptoms/ passing gas/ and bowel movement.
Time to move to a regular diet------this means there are no dietary/food restrictions. Start with small portions, and may be 4-5 small meals for a day or so.
This is a limited outline of how to avoid an ileus. Googling ileus will give you more info. I've put this here, to make you aware of how to protect yourself from this complication of surgery. I suggest further reading and discussion of this with your doctor.
In general with IV conscious sedation, also known as twilght, you would not expect an ileus to happen, but being careful to avoid it can prevent allot of problems, So, have a little patience waiting for the positive passing of the gas and poop -er BM.
0 -
HLB - I responded to your post yesterday, but can't find what I wrote. Or remember for that matter! anyway, I'm going to check out YouTube. Who knew stuff like that would be posted? Amazing!
Tunerville, thanks for the tip. Right now things are working but you never know when you'll need something new.
As for you miss sassy - I love you to pieces!
Phyllis
0 -
Phyll, Love you back sweetie sassy,
Turner, your post was a DUH moment. Yes abd massage has been around for ever, BUT you are the first to post of it here. THANK YOU! GREAT ADDITION!
0 -
Bump
0 -
I've had hemorrhaging diverticulosis for more than 10 years. I have been hospitalized once or twice a year. I have had 4 blood transfusions' every test they can give you and colonoscopies for each hospitalization. However, although I bleed a lot, my doctors have not been able to find the source of the bleed. Several times,it got real bad. Ended up in intensive care twice. They considered taking my whole colon but was afraid the bleed could've been in my small intestines. My last hospitalization was September 2012- shortest stay which was 4 day. The bleeds have managed to stop by themselves after bed rest. I was diagnosed with Cancer in February and since all I have worried about is going into another bleed. I made it through the Mastectomy but now I find the hormone therapy or the pain meds are constipating me. I am now in the process of my reconstruction but need to get back regular. So happy through I made it through the mastectomy Now I am glad to have gotten to my treatment but do not want to go back in the hospital for the diverticulosis. I am a teacher and could not work the last 7 weeks of school. With the reconstruction process going on through the summer, I am afraid that if I start another bleed- then I may miss more work. My job is very important to me so I need to do whatever I can to get back regular. I read some of your suggestions. Hope something works for me.
0 -
Dwilli its hard to know exactly what to do because I don't know what things might aggravate the bleed. Have you read back through the posts on this thread? There a lot of good ones but if you don't have time for that a what I use is 500 mg magnesium every day. Its good because most people do not get enough magnesium. I also use generic ex lax pills. The ingredients say sennosides. The pills are blue and I take two of them which works really well, but since I started the magnesiun daily I have not taken them. I also learned on youtube how to massage my abdomen which works well and is relaxing. Try to walk a bit every day. I would check with the doctor about anything you try due to the bleeds that you get. When I had surgery I woke up with a big lump on one side of my belly. I didn't realize what it was at first, then after a few days of pain pills it got so bad I had to use an enema.
0 -
HLB, thanks! I think I will look into the magnesium. I've been using the generic ex lax about every 4 days but am afraid it may trip off a bleed. All I am trying to do is get through one illness at a time. My gastrointestinal doctor called me to set up an appointment and I told her I was going through cancer treatment. She seemed surprised and asked me what kind when I told her it was BC she seemed somewhat relaxed and asked me to make an appointment at a later time. I've had a colon rectal surgeon who having been following me the entire time. I haven't even told her I have BC. Sometimes it seems overwhelming to manage these illnesses.
0 -
Here is a link to one of the. massage videos:
http://m.youtube.com/watch?v=N39GIWquhWg&desktop_uri=%2Fwatch%3Fv%3DN39GIWquhWg0 -
Dwill, don't need to tell you your case is quite odd. You've lived through it. Ex lax can actually change the lining of the colon. This usually occurs with more frequent use than what you do i.e. daily. Have they ever tried one of those cameras that you swallow? It sounds like you've got good docs, have either sought a 2nd opinion up the doc chain?
0 -
Bump
0 -
I have stopped taking tamoxifen due to a lengthening list of cumulative side effects after only 3 years on it the drug, and since I stopped taking it (with my onc's approval), I have NOT been constipated since the end of April. It is very weird having daily or regular movements that I don't have to "encourage". Still dealing with cramping and bloating occasionally, but that goes with the territory of having chronic IBS, and I can deal with that.
0 -
bump for those that can't find this----------review from the beginning. So many have offered ideas:)
0 -
Everything you explained makes a lot of sense. Is it better to have a lot of liquids like juicing in the morning? And eating a lot of raw green?
0 -
Dwilli... One things that I have seen help so many people including myself with stomach problems is drinking japanese ionized water.. I can't stress how important it is to properly hydrate your body. As you know we are 75+% water. Our government says we are suppose to have 8 glasses per day. What doesn't make sense tho is if someone who is a vegan and weights 95 pounds suppose to drink the same as a body builder who weighs 250 pounds?. After doing much research I have realized who much alkaline water can improve overall health and energy. Another great thing to do is to Start Juicing... Every morning make sure you take out the juicer and replace your breakfast with a nutrient rich glass of organic green vegetables. Spinach,kale,celery,carrots,chia seeds,avocadoect..
as for the water you should be drinking 1 liter of alkaline micro clustered water for every 33 pounds of body weight per day. I know that sounds difficult and believe me I felt the same way because of what I was used to. What I realized was the bottle water and brita water I was drinking every day was soooooo bad for me. I had no idea, I was shocked to discover this. Since discovering this my life has changed for the better and it is absolutely incredible. Energy came back, my stomach problems went away, sleeping like a baby, and so on.
check out these links to get more information on ways to naturally improve your health. One is for a juicer that is being used in the states to help reverse cancers. The other is a Japanese ionizer which will change anyone for the better.
www.norwalkjuicers.com
www.globalkangensolutions.com0 -
HeaLthetc, we are not here to promote your job, If this sounds insulting , sorry, But please, since you are supporting unknown STUFF. please link it to evidence based research. All forward to this has fallen into accepted known natural based products used over centuries or FDA approved products. I grew up with juicing in the 60's when it was considered quackery, but what you have written creates in me concern.
0 -
I was reading something just yesterday about "the water cure" and it said take your weight in lbs, divide in half and that's how many oz you should drink each day. So 100 lbs is 50 oz. There's lots of foods that are supposed to work but when you are constipated from drugs they don't always work. I was eating nothing but fruit and veggies and nuts and nothing worked except ex-lax. Then I doubled my magnesium and that really worked for me, every day.
0 -
Bump for our friends that our stuck, please read from the beginning, then chose what may work to make you work
0 -
sas: I've been following this thread & can't resist sharing a potential chuckle. I've been constipated most of my life - so was really vigilent getting ready for extensive problems. Turns out after 3 chemo treatments, I only get diarrhea - and boy do I. I resisted treating the first time since I didn't want to reverse the action. By #2 I knew better. Here's the kicker. I now need iron pills - and everybody knows they cause constipation. Not me - more of the "big D". I'll still stay with this thread. Great information and assistance. Thanks for keeping it going.
0 -
Have found a more natural remedy for constipation after surgery with pain meds being the culprit. It's called Dr. Schulzes Intestinal Formula No. 1.
I wouldn't use it during chemo before checking the ingredients with your MO since the herbs might interfere or complicate chemo. I discovered it after chemo.
Peggy
PS. check out the reviews on Amazon to see how it has worked for others!0 -
One of those recent epiphanies for me. Had a craving for oatmeal. Used the 1 minute kind. Now eating it evry day or every other day.
And used Bolax . About every 3rd day, before i restarted using oatmeal. It's primarily senna with some other herbs. Between the two, I'm regular now like I haven't been in decades. I'm still using pain meds and sleepers, so ordinarilly still plugged.
I don't think it's been said before, but maybe it has and I forget. Peggys suggestion about checking with doc(i'll add Pharmacist too). Before using herbals b/c even though they are considered natural, they are a drug. Thanks peggy for making or reminding us of that VERY IMPORTANT point.
0 -
What side effects do people experience when taking Miralax, Senokot-s or even prune juice? My mom is experiencing debilitating belching and feeling of fullness, and since she just started all her meds at the same time (morphine, letrozole, Miralax, Senokot S), we are not sure which one of them is causing the belching/burping/uncomfortable feeling plus extreme constimpation? Aside from the obvious risk of diarrhea, does anyone find that these laxative type products can cause gas/bloating/belching?
0 -
Hi Ladies,
I'm back on this thread.. I started Tamoxifen about 6 weeks ago noticed right away the constipation issue, I was able to keep it under control until now.. Oh my gosh stomach cramps and back pain.. This is worse than chemo.
Any suggestions???
Carla
0 -
Carlads- Ask your doc
, if you can use citrus of magnesia. When your constipation is as bad as you describe, it's putting allot of internal pressure on the colon wall. This can lead to other problems i.e.diverticulosis. 1 bottle should do a fairly good cleanout. 2 bottles would be enough for a colonoscopy prep. Once you see the stool looking like sand, the whole colon's cleaned out. You may not have a bowel movement for several days b/c there's nothing in there. Check with doc about how often to use. Hope this helps sassy0 -
meghar - Sorry this is so late. I see you asked a few days ago. I have GERD and take omeprazole everyday for reflux. When I'm doing chemo, I can drink the prune juice most days but the belching afterward is VERY foul! Ick, so I don't use it on the bad days.
I had been taking Senna-S as recommended by both my MO and my PCP. For me it was doing almost nothing. Not so much gas or bloating as ..... nothing. I have not taken Miralax in years but I don't remember bloating or belching as a side effect. Senna S can cause abdominal cramping - not sure about bloating.
I have to say that each chemo is different and each patient is different. I had bad constipation with T/FAC and got through it with Senna S and a lot of pain and discomfort. This time I am on Ixempra and Xeloda and it is even worse. It's like the chemo just makes my colon shut down for a week or more. The first 3 rounds of IX/X were very painful and uncomfortable. It was like I had a stupid python in my gut that would not move....then when he did, it was awful! I finally (with sassy's help) kept a log of how much senna S I took on which days and which days I had bowel movements. I also charted pain with constipation alongside other pain from chemo. That finally got my doc's attention.
As sassy says above about magnesium citrate, ask your doc. This last chemo round I did one dose of mag citrate the day prior to chemo and a dose the day of chemo to make sure there was nothing that was going to sit in my colon for the week my colon was on vacation. I also ate a low residue diet for that week. After looking at my pain and potty chart at my appointment the morning before chemo, my MO prescribed lactulose and Senna S. Even with the Lactulose and Senna S, it took almost 4 days to have another bowel movement. BUTT (haha, a joke) there was no pain associated with it. A miracle! I have had a lot of bloating with the Lactulose, but that is a side effect that is stated in the pkg insert or maybe on line at dailymeds.org. I've had belching with lactulose also, but not as foul as the prune juice!
Hope this helps someone. I think that the key for me was the chart that I made. It helped me speak the doctor's language in a way that got his attention. PM me if you want more details on that.
If you have poop jokes, post them here!
0 -
The tamoxifen constipated me so bad. The three weeks off of it before surgery were wonderful. After bmx surgery, the pain meds took their toll. The hospital gave,e colace...no relief. I had ought some Emergen-c drink mix to aid in healing after surgery. I drank one and in less than an hour, no more constipation. I will take Vit. C in much lower doses from now on....:-)
0 -
Feb 4, 2012 09:50 PM sas-schatzi wrote:
To all -we are doing GREAT----each one of you have offered a suggestion that worked for you. THAT IS HUGE. Anyone coming to this site may go through so many of the suggestions and they don't work----THEN they come to your suggestion and it works. Yay. So, anyone who thinks they have heard it all and tried all, don't give up. TOO many of us have been through it not to have an idea that works Yeah for Moving things Forward and OUT !!!!!!!!!!!
Just a reminder to read from the beginning if you are new here
0 -
I finally found an herbal formula that works. You'll need to check with onc about the herbs but it is called "Dr. Schulzes intestinal formula number 1. It contains about ten herbs and is gentle. You start with one pill at dinner. If that doesn't work you go to two. You can go to three but I have never had to.
Hugs,
Peggy0 -
This is a lifelong problem for me, even without the meds. Tamoxifen, Fosamax, calcium and biotin definitely have been a challenge. The biotin seems to be working, so I don't want to give it up.
That said, some improvements:
Water, as much as you can drink (hate pushing it all day, but it really makes a difference)
Tea for me is an absolute no-no--I have anti-oxidant sensitivity, and apparently that = constipation in my case
No more than 2 cups of coffee a day
Not mixing sugar, alcohol, and coffee all on the same day (my favorite food groups ; )
New breakthroughs: chia seeds PRESOAKED in morning papaya smoothie. Papaya enzyme is great.
Curamin, a turmeric based pain reliever, also helps.
Magnesium remains my go-to, it is the only sure-fire in my book.
0 -
I know i am lucky don't have the problem at all ..maybe cause gallbladder is out. But i take prescription fish oil, Lovaza, it's for high trigs. But OTC fish oil, even 2 a day, also helps my inflammation from rheumatoid arthritis. I was taking flax seed oil capsule at night time, i could restart it, it's inexpensive, if i need it...As soon as breakfast is over, and i drank my 1 cup of coffee, anbout 30 minutes later, i go, and i am usually done for the day..Which is nice, not having to go to a public bathroom
I have a sensitive stomach, and eating an apple i cannot do, but that is one thing an apple a day keeps the doctor away.
If i was in the hospital, and got pain meds, such as Vicodin, oh boy, then i use 2 stool softerners, maybe twice a day, works for me. Right now if i need a pain pill, i have Norco, doesn't do that to me. But yes anytime, coming home from the hospital, have to have a plan ready to deal with not going!...
0 -
You ladies are awesome!! Thank you so much for all you advice.. Isn't it crazy the things we have to worry about..
Thanks again,
Carla
0 -
The magnesium citrate sounds like something I would like to try! I wonder if its good to do every so often, like once a week drink a bottle. I didn't know that about it looking like sand when you are cleaned out. I want to get cleaaned out til my poop looks like sand!!
0 -
HLB, be sure you check with your doctor before you try a schedule like that.
0 -
I actually didn't know about senna tea... I'll look for it at the grocer's. I've been taking prescription Tylenol for neuralgia type pain due to chemotherapy. I'm afraid I neglected the constipation issue until I realized that about 3 days had passed without any activity in that area. So I began taking a presription senna laxative I had on hand. Within about 12 hours, I was okay again. But, I must say that what happened today (about 24 hours after beginning to take the laxative) was not very gentle. I wonder if the tea enables a bit more controlled, calm resolution. Maybe being prone to irritable bowel issues should be considered when choosing a constipation solution. Thankfully, I decided to stay away from the stool softener. The laxative prescription was plenty.... but now I will definitely look for the tea!
0 -
Christesta, you're right, IBS changes the equation. Pre-chemo I had to be very careful with any laxative. Now - just need a howitzer. Hahaha, not really, but sometimes feels like it!
Hlb, let us know how you do with the mag citrate.
Phyllis0 -
Ferrous sulfate caused me problems. My
gastro doc told me to take psyllium capsules. I take 3 a day and 1 fish oil cap. No more problems!!0 -
What I want to accomplish in this post is to discuss: A. Dangers of using laxatives, and B. Define the different types of laxative's, give some examples, and provide links for more information.
This following link is to the free dictionary. The seven "dangers of laxatives" was taken from the free dictionary, but I lost the direct link. OH WELL. I hope it's not too confusing, but I'm going to edit in my comments in parenthesis and italized print. I am starting with the dangers first, as I clearly would like everyone to realize drugs used to change constipation are NOT without consequences when used improperly.
http://medical-dictionary.thefreedictionary.com/laxatives
A. Dangers of Laxatives.
1. Laxatives should be used only with the advice of a health care provider. Sassy:(New onset changes of bowel habits should be discussed with doc. Once a cause is found for bowel changes, then follow the plan you and your doc agree to. If you want to change bowel plan--BE SAFE--talk with your doc. If the cause for the constipation is not found prior to taking a drug like a laxative, it may have life threatening consequences. For example, if a bowel obstruction is present and a stimulant/purgative laxative is taken it may lead to a rupture of the intestine. Please, heed this warning
2. Constipation may be a symptom of serious organic illness as well as the result of improper diet, habits, and Sassy(use of other drugs, we know this one very well)
3. Laxatives taken regularly tend to deprive the colon of its natural muscle tone and thus can be the cause of chronic constipation rather than its cure. Sassy(simple straight forward statement)
4. Mineral oil taken regularly interferes with the absorption of certain vitamins, especially those that are fat soluble. Sassy(A,D,E,K.)
5. Purgative salts(saline laxatives) can produce dehydration. Sassy(Dehydration is not seen with use of the recommended dose under usual circumstances. Again supports why you should discuss a plan with your doc)
6. Laxatives that produce bulk may cause stonelike balls (bezoars) to develop. Sassy(Not sure where this author thought bezoar applied here, it DOES NOT. I left it in sequence for anyone reading the original material might not know, that the word bezoar was an incorrect use of the word)
7. A strong cathartic such as castor oil can have fatal results if used when there is nausea, vomiting, abdominal pain, or other symptoms of appendicitis. It is also dangerous to use during pregnancy. Children cannot use as large dosages or as strong laxatives as adults. Sassy( the thought here is an incomplete list of diagnosis problems. I will list more so that you realize that not all bowel stoppage is related to constipation. List: Stomach emptying problems, small intestinal blockage, colon blockage. Rotation of colon on itself--volvulous, intussuception-like a collapsing telescope, Ileus the wavelike or snakelike movement of the GI tract stops. the term for this wavelike or snakelike movement is peristalsis. The KEY is that Appendicitis is not the only thing that can cause the symptoms described above. As well, castor oil is not the only cathartic that can cause problems
B. Types of laxatives: The following links are from medicine.net. After searching many different threads, I feel medicine.net was the easiet to use. It doesn't however give absolutely complete information. But it does give you a place to start. This is not a complete list of products and this is not meant to be an endorsement or recommendation of any individual product. Many laxatives use a combination of more than one drug to accomplish an evacuation.
1. Bulk-forming laxative: Promotes bowel evacuation by increasing fecal volume. the following link describes how to use them, s.e.'s to watch for, and other percautions. Examples of bulk producing agents are: Psyillium-Metamucil, methylcellulose-Citrucel. polycarbophil-Fiberco, Benefiber.
http://www.medicinenet.com/laxatives_for_constipation/page3.htm
2. Stool softners: Called emollient laxatives, prevent hardening of the feces by adding moisture to the stool. Some examples of stool softners are Docusate sodium, Colace, ducolax.
http://www.medicinenet.com/laxatives_for_constipat...
3. Lubricant laxative: Promotes softening of the stool and facilitates passage of the feces through the intestines by its lubricant effect. Some examples of lubricant products are mineral oil, glycerin, Milk of magnesia. The hyperosmotic laxatives are glycerin, Miralax, Nulytely, Colyte lactulose (Chronulac, Duphalac), all of which act by holding water within the intestine. Lactulose may also increase peristaltic action of the intestine. The following link to medicine.net describes mineral oil and it's probems and percautions.
http://www.medicinenet.com/laxatives_for_constipation/page5.htm#lubricant_laxatives
4. Saline laxative: The active ingredients in saline laxatives are mostly magnesium, sulfate, citrate, and phosphate ions. These ions draw water into the intestines. The additional water softens the stool, increases pressure within the intestines, and increases intestinal contractions resulting in the discharge of softer stool. Fleet Phospho-Soda, milk of magnesia, and magnesium citrate are examples of saline laxatives.
http://www.medicinenet.com/laxatives_for_constipation/page7.htm
5. Stimulant laxative: Induces bowel movements by increasing the contraction of muscles in the intestines, and are effective when used on a short-term basis. Examples of stimulant laxatives include aloe, cascara, senna compounds, bisacodyl, and castor oil. Bisacodyl (Dulcolax, Correctol)
http://www.medicinenet.com/laxatives_for_constipation/page6.htm#stimulant_laxatives
Cautionary note:
1. Enemas and suppositories should never be used in a low immune state or while under care for your cancer without the explicit instruction of your MO.
2. As always consult your doc on any information discussed here.
Please, take the time to read thread from the beginning. So, many have offered great suggestions
Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride" SAS
0 -
Chrisesta, b/c of your IBS/IBD how you respond to any of the drugs under the laxative class are going to cause your bowels to respond differently then expected. Sorry. Start with the lowest dose of any laxative. Check in on IBS/IBD web sites for suggestions
0 -
BUMP
0 -
I haven't read through all the posts, so I apologize if someone has already mentioned this. I had issues with constipation before cancer due to frequent long distance travel---jumping time zones can mess up your body's routines. But I have had success with acupressure. There are no needles involved, and you can do it yourself. The main points are (1) 1-2 inches below the navel, (2) at the base of the webby part of your hand between the thumb and index finger [NOTE: everything I've read says pregnant women should NOT use this one], (3) just past the elbow crease when you bend your arm and put your hand on your chest, (4) at the base between the big toe and second toe. I try to press and maintain pressure for ten deep breaths at each point two times a day---before I get out of bed in the morning and when I get into bed at night. The schedule is not important, just doing some every day.
Please note that I am not an expert. I got this info from books and tried it on myself. I hope you find it helpful.
0 -
Snorkler, no one has mentioned this here before, and it fits totally b/c we all travel. Even under normal conditions many people complain of constipation associated with leaving home. I put a link on the insomnia thread about resetting the circadian rhythm after air travel. Which would help the GI tract. IF i can locate it, I will add it below. Thanks for adding this
0 -
I finally went through all the posts and found lots of helpful information. Thanks to everyone for keeping this thread active!
I don't think anyone mentioned chicory or dandelion. When these roots are roasted and ground you can make beverages from them. I'm not exactly sure how they work; I think they stimulate the liver which gets the whole digestive tract going. Also, since everything we ingest (including medications) is processed by the liver, it makes sense to keep it in good shape.
In other countries these products are more common. Here in the US I found a coffee substitute called Pero in one of the local supermarkets; it is a mix of roasted grains plus chicory. It is water soluble so can be easily added to regular coffee if you're not crazy about the taste. The dandelion root tea I got from drugstore.com. It has a mild, almost nutty flavor. There is a coffee substitue called Dandyblend that has both chicory and dandelion. When I go through what I've bought already I'll probably try it.
One last thing before I forget: fresh ginger. I add a nickel-size piece to either the dandelion tea or regular black tea once or twice a day. You can also just pour hot water over it with a squirt of lemon and/or lime juice. It's supposed to be good for the digestive system in general. Best of luck to everyone!
0 -
A pebble dropping in water creates and untold wave.
0 -
Thanks for all of the good advice.
0 -
Try Miralax. I use unflavored. By second day, able to poop. Other meds for producing bm make me very nauseas. Good luck. Drink LOTS of water. 64 oz.
0 -
I'm starting this post with a link back to another post that I wrote about my Pain and Poop Chart. http://community.breastcancer.org/topic_post?forum_id=6&id=781867&page=9 I also want to say that I tried MANY of the suggestions on this thread and none of them worked during my chemo weeks. I'm not saying that they aren't good or reasonable normally, just that they didn't work for me and that's why I was in a mess.
What I did not write about was the fact that the constipation may have been affecting my WBC. I had not been able to finish a whole round of my oral Xeloda (I also get Ixempra by infusion) since the very first round in April because my WBC would always tank. Even the first round I had to have neupogen shots. This was coupled with severe pain and severe constipation.
On Round 4 of 6, my MO put me on a Fentanyl pain patch and prescribed a combination of Lactulose and Senna S for the constipation. You can see the prep that I did for that round in the link above. The results were kind of amazing! I didn't automatically get regular bowel movements. (that may NEVER happen) But I did not have hard, dry, very painful stool that could have been causing microtears in the lining of my bowel and rectum.
There is evidence that microtears can cause the body to send white cells there to stem infection in the area. I believe that the microtears and my body trying to prevent infection was part of the problem with my low WBC during chemo. The combination of microtears and chemo dropped my counts too low.
I had labs the week after infusion (when I also began oral Xeloda). Counts were down and I had one neupogen shot. Stopped the Xeloda. Had labs one week later and counts were up - no neupogen and started 2 more weeks of Xeloda at a reduced dose. I was skeptical that my counts would be good enough after 2 weeks of Xeloda to do the next infusion but was hopeful since the Lactulose/Senna S combo seemed to be working.
Round 5 of 6 rounds of Xeloda/Ixempra - I had a dose of mag citrate 2 days before chemo (Sunday) since it takes a long time to work in me, to be sure that my colon was reasonably cleaned out.
Had labs the day before chemo (Monday) and they were NORMAL!! For the first time since starting chemo. And this is after two full weeks of Xeloda. I had chemo the next day (Tuesday) and for the first time ever since starting chemo I had a bowel movement on chemo day. Then again on Wednesday.
All of that is to say that, in my opinion, we should not discount the role that pooping plays in our treatment and health. They are not two separate things, they are intricately interrelated. I know that some of the success with my WBC is due to lowering the dose of Xeloda, but I also know that some of the success is due to getting my colon working again. Poop Power!
Another note: some chemotherapy drugs, like Ixempra, are metabolized and excreted in the feces. There can be a small portion of the drug that is NOT metabolized and is excreted in the feces. If the feces are hanging around in your colon for 3 - 5 days, it is not a GOOD thing. I found this information on dailymeds.org that sassy recommends.
I hope you were able to slog through this long post and that there is something in here that might help you during your treatment.
0 -
bump
0 -
Bump
0 -
To all, we all have discussed chemo/ anethesia brain. We now can call it anesthesia/chemo/drug brain. This article is in AARP magazine. It discusses the drug classifications that can cause memory loss. It describes why each drug class can cause memory loss. It gives specific names of drugs. It gives alternative drugs that can be substituted. I would suggest reviewing it with your prescribing doc if you have concerns regarding any of your meds. I also suggest you put it in your favorite places on your computer. Also, printing it off for future referrence if you have a printer. Please, pass this on to other BCO friends, friends etc.
sassywww.aarp.org/health/brain-heal...
Haven't been here much in alongggggg time, but this artcle is a MUST SHARE type with those I care about
0 -
BUMP
0 -
Not sure if this has been mentioned- but blackstrap molasses helped me 100% when it came to my hemmeroids and the consitpation that happened. I wrote a blog post about my experience if no one minds that I post it. Be advised it is not suitable for work or more sensitive dispositions. http://www.super-crush.com/blahblahblah/?p=153
0 -
JWoo - blackstrap molasses helped me too!! I was skeptical since I'm not a folksy remedy type person, but after one spoonful I felt reduction in less than a day. I only had to do a spoonful a day for about a week before they went away. Now I do Miralax to keep me regular but at least I don't have to deal with the hemorrhoids anymore!
0 -
Cougarlicious-
It was a lifesaver for sure! I actually stopped taking anything else after about a week. No issues at all with constipation anymore and I really think it is mostly the molasses that is doing it. Sometimes grandma really does know best and those old folk remedies are the best thing! (Obviously checking with all your doctors first before proceeding of course.)
It probably helps that I am a vegetarian (though not having FRESH veg to eat has been a huge part of the problem and also just torture for someone that loves crunchy veg) but I am ovo/lacto, with a huge love of cheese and still eat plenty of it.
Meat is digested mostly by the bacteria that used to live in your intestines, so, if anyone is a big meat eater, maybe cut down a little to see if that helps?
I do drink a smoothie a few times a week with prune juice and unsweetened Bulgarian yogurt in the mix, so that is helpful as well.
Anyhow- I hope this info might help someone, and best of health, luck and love to everyone!
0 -
I have never had any luck with laxative find a right, um, balance. Once I started adding Chia seed in my diet I really never had a problem. Adding a heaping tsp to a 10-12 oz smooth had the desired effect and I didn't feel nervous about when it would hit
0 -
Now almost to my last chemo T/C. My most hideous constipation happened when I had to take narcotics for surgical pain due to a bad staph infection. That was solved with Colace and Benefiber.
Now how I handle the big C is tons of hydration, 2 teaspoons of benefiber in my morning coffee, a Colace, stewed prunes (I cook a lb with a half cup of water on low with one Equal and a bit of cinnamon; about a half hour tip a nice sauce forms, if it gets sticky during cooking at a bit add a little water). Just 4 prunes a day is fine. I might add an Activate light yogurt. The walk my dog to get things moving literally. Works great!
,0 -
Does anybody else have an oncologist that pushes Miralax? Mine told me to start taking it daily, and then told me, "Don't stop taking it!" She said that people have terrible problems with obstruction when they stop it. She said, "It really is a miracle laxative." But I'm thinking, how miraculous is it if people become dependent on it? Is anybody else getting this advice from their doctor? Basically, she's telling me to take it for the rest of my life.
0 -
Got to warn you all, particularly stride. Now the silly T/C regimen has me on the other spectrum, diarrhea. For that reason I would advise more of a wait and see before you load up on everything, particularly a daily laxative. Now I'm taking Imodium and I have never had this problem before! Ugh.
0 -
It depends on if you get constipated. I was severely constipated and my MO said to take Colace. It didn't really help that much so she added Miralax daily along with the Colace. It has helped so much! I know that the Taxol causes my constipation so I see nothing wrong with needing the Miralax. We all need different things to help with the side effects of the various drugs we're on so if I get "addicted" to Miralax at this time in my life so be it. However, I'd wait if I were you just in case you have the opposite problem because some people do. Good luck and hoping your chemo gives you no SEs.
0 -
Colace did nothing for me either, my OB recommended I try Miralax, saying it was the best aid to constipation out there. And so far she's right! But I don't plan on taking it the rest of my life, just through chemo as I never had constipation issues until now.
0 -
Bump
0 -
bump0
-
Recently read the October issue of Life Extension magazine which has an article about constipation which recommends effervescent vitamin c and magnesium crystals - saying that fiber/bulk doesn't work for many people.
http://www.lef.org/magazine/mag2013/oct2013_Immediate-Relief_01.htm0 -
Bump---I watch this thread and bump every few days to keep it active. Thanks to all that post. All your posts are helping others in a very relieving way0 -
Doc has me eating pears. Dried are more effective and dont make me as gassy as prunes.0 -
Pears also worked for me, in addition to cooling my tongue and and one of a very few foods that relieved the metal mouth taste.0 -
half a cap of miralax a day and 3 prunes0 -
I found an herbal supplement that helped after surgery (but was not allowed during treatment (chemo). It's called Dr. Schulzes Intestinal Formula Number 1. You can get it on Amazon. Works more gently than most laxatives but you have to experiment with how many pills are right for you personally.
Hope this helps someone here.
Hugs,
Peggy0 -
I live on Miralax and Ducolax. The maximum dosage of both each day. I made a mistake of skipping the Miralax for a couple of days and didn't go for three days...I will never do that again.0 -
bump0 -
bump
0 -
Well, shit. I have nothing to add, other than to say this is a pretty shitty conversation yall are having. : )0 -
Doctor gave me a recipe
Fruit Paste Recipe
DOSE: 1-2 tablespoons per day
1 pound prunes
1 pound raisins-pitted
1 pound figs
4 oz senna tea
1 cup brown sugar
1 cup lemon juice
Prepare tea using about 2 1/2 cups boiled water. Steep 5 minutes.
Strain tea to remove tea leaves and add only 1 pint tea to a large pot, then add fruit. Boil fruit and tea for 5 minutes.
Remove from heat and add sugar & lemon juice. Allow to cool.
Use mixer or food processor to blend fruit mixture into smooth paste.
Place in plastic container and place in freezer.
Remove what you need each day, paste doesn't freeze solid.
Spread it on toast, eat off a spoon or add hot water and make a drink.
Senna BARS
In a food processer mix the following ingredients:
12 oz. raisins
12 oz. dates
12 oz. prunes
8 oz. figs
2 oz. senna leaves or ground senna (in health food stores).
Spread in a greased 8"x12" pan and press to 1" deep. Top with graham cracker crumbs. Cut into 1 inch by 1 inch bars and they can be frozen.
Try 1 bar a day to start. May be able to reduce to 1/2 bar later on.
Use both of the recipes only on approval of a physician.0 -
Foley, some recipe, sounds good.
Ziggypop, OMG you get this thread. Please, please, become a routine bumper, and add what ever pops out of your trunk as a thought. It so eases the pain of whatever isn't passing. A poop or pun here or there is a mercy we pray for
0 -
Bumping for a better go
sassy0 -
Ok sassy - on that note I'll go take a Colace and drink some prune juice.
0 -
So two months and two weeks out of chemo. Also through with rads. Why am I still singing the constipation blues?
0 -
Lisa--chemo/ rads alters the normal bacteria flora of the colon. Miralax and other drugs help with the constipation problem, but don't correct it. Please, study Probiotics.
In my worst case scenario, I found when I used them to re-establish normal flora I had to use the powder by the tablespoon, but this was with an oral thrush and colon problem. My situation was unresponsive to magic mouthwash and twice a day diflucan 100mg for two weeks. Doc finally said Probiotics.
I've been a believer in probiotics since the 70's. The name probiotics wasn't coined until 1995. Before that we just called them good bacteria.
Please, discuss this with your docs /pharmacist, and nutritionist. Chemo alters our immune response. Probiotics are good bacteria necessary for normal colon , mouth bacteria, Gastrointestinal function. BUT, nonetheless, they are bacteria. If you can please, read from the beginning. Many members have offered pearls of ideas. Good Luck sassy
0 -
Minus two--------cute, other people talk Champagne, a good Vodka, A smooth scotch, or fragrant wine. We talk Colace, prunes, miralax, magnesium citrate, appricots , and oatmeal. Then we celebrate the passing Sheesh.
0 -
http://www.youtube.com/watch?v=8cNRkQJcnUk
A Christmas song for all my crappy friends. Sing it with me now..
there were, five, five, constipated men in the bible...
0 -
Ziggy I'm sensing that this is an outlet for you LOL. I'll stand aside. Those elephant poops could be a drowner.
BTW "Hey Nunnie Nunnie" will be added to my late night viewing along with Jeff Dunham.
0 -
Ziggy - great laugh for the day. Thanks.
Sassy - so it looks like we'll be planning a similar menu for toasting on new years eve. But truly - I used to drink Gin & tonic before chemo. The gin really did keep me regular. Juniper berries? I'd forgotten that & maybe need to add that back into my diet - of course in moderation.
0 -
ziglet - too funny! I'll be singing that song on the way to the toiletten - "And Eve passed an apple" At least it wasn't a bowling ball!
Phyllo
0 -
Sassy I had a college professor (biology) who insisted I take lactobacillus caps from the pharmacy (1973). I think he thought and probably rightly the cause was stress related and the lacto. would help. Refrigerated then and I think just called that. Told me it would help my cold sores. Lol. Don't know that it did but funny how things of old become mainstream now.
I've been trying to remember my 5 prunes a day for constipation and bone health. I believe I have a box now that lists for bone health on the panel.
I think I may be singing about constipated Biblical men while doing housecleaning shortly. DH came up to see what I was laughing about.
0 -
Prunes, yes, must remember prunes.
Lmg HI nice to see you. No own gave it a name---then a n article was published in1995, Cool. Pro-promotes, anti-against. works well together.
LISA Lactobacillus colonizes the small intestine. Bifidus and the rest colonizes the large intestine. A combo should be considered to cover all. I only buy refrigerated stock. But the market is producing non-refrigerated product.
0 -
Ziggypop, great video, I will go back & watch some more of there's when time allows...
Any Catholics here ? Has anyone seen " Late night Cathetisim " it is a fantastic play, spoof on Catholics, in a respectful way, done by nuns ( actresses ) it plays in Seattle. I am not a Catholic, but DH is.....
Back to the topic, I did start back on my probiotics...should buy some prunes....not my fav...I do eat raw carrots daily, do they count?
Also, can someone tell me what Magic Mouthwash is?
Golf girl
0 -
Golf girl Combo drug tree items used for thrush. It a swish(hold) and swallow thingy liquid.
EEWWWWWWHHHHHHHH carrots---DD had us drink carrot & celery juice every morning. Sometimes there were surprises like beets, apple, the worst onion.
0 -
HoleinOne - The magic mouthwash I was prescribed is a specially compounded Rx of liquids - lidocane, nystatin & benedryl. I've heard of different combos on other threads. Luckily I didn't have to use it much since I really didn't like my lips going numb from the lidocane.
0 -
Bumping
0 -
Bump
0 -
Got off my pain med and now I'm the other way.. darn darn darn.
0 -
Foley, It'll take awhile for your digestive track to figure things out. Probiotics can help, check with doc before using
sassy0 -
BUMP
0 -
Bump
0 -
bump
0 -
SAS - My last chemo was 12/11 & I haven't taken any meds except my normal vitamin supplements since then. Now all of a sudden I'm having BIG C problems. Seems if i don't take a Collace every couple of days for a couple of days, the stools are so big & hard I feel like I'm being split in two. (sorry for the graphic - TMI, but...) Drinking prune juice at least 2 days a week too. I'm not eating that much yet since my taste is still off - but I'm sure confused what might be causing this constipation. BTW - all through both sets of chemos, I had Big D instead of Big C. Go figure. The Collace is from my first surgery in 2011 since I know anesthesia causes me problems, but I hate to keep taking it. Any thoughts?
THIS IS A WONDERFUL THREAD. Glad you keep bumping.
0 -
OH MY Minus Two I'm so sorry , I haven't been watching. God lord I hope you didn't rupture something.
First thoughts, check in with your doc...reason you have had a new onset change. I'll think or try to think of what to ask and plan. But I do think wityh any new onset change the safe practice is a doc check in. In this case if you have a GI doc that would be good. But your PCP is good to.I would go first to my PCP, but I also call her Saint PCP. I don't necessarily think MO's are good for this b/c they may not cover all the basics. I'll type this so you can cut and paste or print and fill in the answers to take with you for doc visit
History of present problem: New onset constipation
When did it start?
Description of stools ?
How often? How many days between stools?
Abdominal Pain with stools?
How much liquid do you drink a day?(take a couple of days and actually measure)
Location of pain?
Does pain in abdomen remain after stools?
What cause you to finely evacuate? (you've continued taking colace, but if you don't take it you have large hard stools--did I get that right?)
other things used to promote evacuation?(prunes)
Physical description of stools?
Change in medications?when?what?
Pain meds? Change? How many per day?
Talk to PCP about following plan:
1. Miralax daily.
2.Stewed prunes/apricots warm with some lemon in am..
3.Probiotics-tsp to a tablespoon a day for a week.
4. Colace PRN
5. Emergency plan: meaning what do you do if your regular plan isn't working and you need to poop.
6. Develop a bowel retraining plan: basically using the 1-4 working it through overtime until your bowel functions again on it's own.
This plan is a mix of recommendation from the gastroenterology guidelines--miralax daily. Stewed prunes or apricots-- common SUCCESSFUL method here. Warm water and lemon another common plan----so if you put them together it may make it all come out in the end very smoothly and easily
Probiotics, something may have disrupted the good bacteria that you aren't aware of. Colace the common doc go to med, but you want to wean away from all drugs eventually.Have an emergency plan i.e. no BM in ____days what can you use? My go to drug is a bottle of magnesium citrate, but the aftermath is the squirts for a few days. Sometimes unpredictable. For me severe constipation can occur after I've used oxy for a couple of days when I have a bone/joint/ muscle flare.
The key here is you 've involved your doc. Reread the first page on my posts about diverticulosis/itis. The doc is going to ask questions to assure you haven't got something going on. You said the thread is wonderful---tells me you've read it. Many wonderful ideas here. If there's something from here you like, add it to the plan above.
What I like about walking into the doc's office with a plan, is it causes them to focus on what you are saying, They can see it in writing, this further focuses their attention. They then can say yay or nay to each item.
You're then able to leave the office with a clear plan with all the bases covered. I'll cut and paste this to you in a PM. If you need me in the future and I haven't responded, please, PM.
0 -
Thanks SAS. I re-read the first page. Oh, I miss Apple. I KNOW I'm not getting enough fluids. I forced them to give me a full litter today at the infusion center before they started Herceptin. I'm seeing a new PCP/Internal Med doc on Monday so I'll keep up Colace until then. I have your list of questions printed.
0 -
Minus Two, glad the post and PM helped. You have identified a major element in function of the colon. Liquid. So, much of what occurs with constipation can start with a change in moisture of the stool. Hmmmmmm I write about such fascinating things LOL. So if you will bear with me, I'll write a few more thoughts.
I'm delighted. I checked back on the first page. The very thoughts I was thinking of to write to you, were there YAY. I don't have to think too hard(pun) to describe how important liquid is to the smooth workings (pun) of the colon. I'm cutting and pasting those thought to here. If I have any new thoughts I'll bold them or add a note at the bottom.
Pg1---"Backing up for a moment-----the large colon has several functions. One is related to the absorption of some nutrients, but that is not cogent to this conversation-------so I will bypass it.
The colon stores stool and reabsorbs water. Stool exits the small intestine on the right side lower quadrant, at that point it is the consistency of sand. It then travels up the right side across the top part of the abdomen , then goes down the left side, The last portion of the large colon is called the sigmoid colon. It generally has a shape that could be described as a "s". In truth, it's shaped differently to a degree in each of us. As the stool moves along this path more water is absorbed from it. By the time it reaches the sigmoid colon it becomes formed.
If the core body lacks enough water, it draws more fluid out of the stool. In this case then the stool that reaches the last part of the colon will be very dry-------constipated------hard. The muscles of the colon wall have a very hard time pushing it forward. If this occurs the stool in the rectal vault-the portion just above the anus becomes very hard and difficult to pass. and painful. They look like little hard rocks. In pushing this hard stool out, the pressure causes the blood vessels to dilate. These dilated blood vessels are called hemorrhoids.
They are analogous to varicose veins of the legs or esophageal varices of the esophagus, or aneurysms.The point being when blood vessels in the body are put under too much pressure in the body , they will dilate. Eventually they will burst and bleeding will occur. The larger the blood vessel when it bursts the greater the bleeding.
The needs of the body for fluids are dependent on climate to a great degree. Each individual has a different need. Your doc and reading will describe range. 8-12 oz glasses a day. But again each body is different. Plus there may be other conditions that can influence how much you can drink i.e heart and kidney disease.
Using two supplements can work to your advantage and also promote health of the rest of the body. Omega 3 OIL either Flaxseed or fish. Buy a good brand from a healthfood store. Some brands should never be exposed to heat and need refrigeration. I would never buy off the super market shelf. The second is superdohilous -it has acidopilous and multiple other strains of normal colon bacteria. The quality again is based on where you buy it. Of course discuss this with your doc.
SO, the plan to train the colon:
1.In the morning allow enough time to take a proper poop. That may mean adding ten to 15 minutes to your morning routine.
2 Immediately upon awakening drink the warm water 8 -16 oz's. That will begin the process that gets the trained colon to be prepared to function within a short time. Continue with usual routine shower / shave etc. As soon as the colon signals it's ready to go. Don't delay, go. If you delay the body starts to reabsorb that water from the stool at the end colon. Too much of a delay can lead to constipation.
3. Keep the colon healthy by eating between 25-35 grams of fiber a day-average 30gms.The amount needed is being changed by science in these last few years, so, don't be surprised when you read different numbers. General Mills Fiber One has the highest cereal fiber content in the smallest amont of food . I swear they stole my phrase taste like cardboard. "No longer tastes like cardboard". Definitely has improved over last few years. If you started off each day with a 1/3 bowl you can meet a 1/3 of the days requirements. The average American only gets 12-13 gms of fiber a day.
4 Drink enough fluids otherwise you will become constipated. 8-12 glasses a day.
5 Consider adding omega 3 (flax or fish) and acidophilous to diet(more than what yogurt offers) which colonizes the last portion of the small intestine, and bifidius and many more colonizes the large intestine. Superdophilous is a probiotic that includes many of the good bacteria. Should be purchased through a reputable nutritional store. There is still much debate about Probiotics. If you wish to google it, please, use the following search term "Evidence based researech probiotics".
6 Be aware of the things that alter bowel function------PAIN meds, alcohol, antibiotics, other prescription meds. Dehydration. Illness. Overuse of antibiotics. Some medications can affect the motility of the gastrointestinal tract. This means it slows down or speeds up the way the muscular layer of the GI tract works. Other drugs kill off the good bacteria of the GI tract.
This covers the basics, great topic eh?
ADDITION TODAY 2/72014: A bit repetitive LOL, but I am consistent.
0 -
Minus Two: I have posted this last paragraph on multiple other threads. , please, put the link in your storage area. For you, I would suggest studying all your meds before your visit with your new doc Monday. Concentrating on the gastrointestinal affect for each drug. In your case Herceptin. Also, take a look at Colace.
One thing that I've learned about drugs over time is------just when you think you know it all about a drug, re-look at it when something changes. Something that may not have meant much in a previous reading may jump out at you b/c of the new change
In case you don't have this link. It's a drug site that is great even though it was done by the government. Why is it GREAT! 1. after putting the drug name in the search box and the list is pulled up,the first drug manufacturer is the one that originated the drug. 2. importance---all the pre-approval clinical trial documentation is there 3. all post marketing data is there 4. hyperlinks throughout to connect within the report for easy referencing between topics.
0 -
Minus Two-----------I miss Apple too, when I read older post areas and see her smiling face, she brings back so many happy memories of the great lady she was.
0 -
SAS - the radiation oncologist today approved adding back in Omega 3. Hooray. I've been w/o it since last March since the MO said to cut for chemo. In addition to colon & bowels, it sure makes my knees bend easier. No antioxidants during rads so no Vit. E, but I'll settle for the fish oil for now.
I'm not in "dire straights". One Colace a day is keeping me soft enough for government work. Actually it reverted back the other way tonight. I'll post here too that before cancer, the juniper berries in the Gin & Tonics I drank always did a wonderful job of keeping me regular. Regular for me for 50/60/70 years was always one bowel movement every two or three days. I've never been a 'once a day' girl, but not for lack of my Mother's nagging.
You're right about the water. I really need to start concentrating on that since I'm starting radiation severely under weight & already dehydrated.
I'll look into the acidophilous. Thanks for all the posts. They're so helpful
0 -
MinusTwo, I had horrible C when I was on chemo. I actually ended up in the ER with a bowel impaction. They prescribed something called GoLightly which really cleaned out my bowels. Before that I was taking two collace, senna and prunes everyday. After the impaction I started eating fiber one cereal with a glass of plum smart every morning. I also try to have a pear everyday and drink lots of water. Made all the difference for me. I know everyone is different, but I was able to get off of the colace and senna. After awhile those things just didn't work for me. Good luck, I hope it gets better for you.
0 -
SDB's I think you'll get a laugh out of this. Back in the 90's I had a bowel problem presenting symptoms constipation and pain left side. I worked in a center that had some great GI doc's. Was scheduled for colonoscopy. The clean out was "so much fun" Pain left, but we proceeded with scope.
But the experience made me think. I asked my Gi doc if a study had ever been done to evaluate how many patients with the same presenting symptoms, had all symptoms disappear after go-lightly. He just smiled---no answer. I pondered. My conclusion was "if a high percentage of patients had all symptoms disappear after go-lightly , and there was a high percentage of these same patients that had negative scopes, would a reasonable safe first approach be to simply use go-lightly as a first intervention without a scope, and monitor progress" Study would include--hemacults on stool and evaluating and adjusting for risk factors and age. Post go-lightly adjust diet/fluids, and re-establish normal bacterial flora with probiotics.
I then realized if that approach was taken the reduction of scopes could likely be substantially reduced.
Also, if you look at the different historical cultural practices of many societies, there was a use of "something" in the spring and fall to clean the colon----Interesting? USA as a cultural group did this up till about the 60-'s. Then it essentially stopped. It was carried on by smaller ethnic groups , but overall it was something no longer done.
From then on I talked my GI doc into giving me go-lightly once a year for myself, DH, DS. I voluntarily took it. DH and DS thought I was killing them.
0 -
Go-lightly counterparts are NU-lytely, and Tri-lytley. My phrase for them is go-lotley. They are covered by insurance for specific reasons only. My thing of the yearly clear out had to stop b/c insurance wouldn't cover it b/c it didn't meet their criteria for use. But with a script they can be purchased. $45-60$. An alternative that is inexpensive is magnesium citrate. 2-4$ a bottle have found though that I do have squirts for a few days after mag citrate.. BUT when I choose to use it, it's b/c the constipation is threatening the pre-existing diverticulosis to act up.
With the go-lytlley nu & tri,, I have NOT experienced the after squirts Keep in mind if you use these products you won't have a BM for several days -----b/c there's no stool in the system
0 -
sas, Actually I think you may be on to something there. Ten years ago I had a colostomy and a reversal. Since then I've always had a hardening around where they sewed up the colostomy. I was told by my doctors that it was just scar tissue left over from the surgery. After taking the GoLightly it went away. I notice it slowly coming back, although not as bad. It really was unbelievable how well it worked. Interesting assessment.
Edit: just saw your Go-alotly. Hahaha - I said the same thing - also Go-Quickly. Great minds!
0 -
SDB If you do the go/nu or tri let me know what you think of the outcome LOL. Love how this subject is so easy to make a double entendre about. Seriously, though the go/nu/tri is so superior to mag it's amazing. I would be doing it today. The whole system functions better for months and months. I figured what it helped in doing was wipe any negative over growth of bad bacteria. No proof, but if something feels so good and functions so much better-----somethings different.
0 -
hahaha - good one! I think a once a year cleaning is an excellent idea. Kinda like cleaning out our closets.
0 -
I have never had chemo, have a system that only functions when my schedule is regular and all the stars align. Given that I work full time, in a job where I just can't leave to use the bathroom, I find my constipation problems worsening. Ironic as for almost 30 years I never had a problem due to multiple cases of amoebic dysentery and giardiasis when I was in the Peace Corps. Colace is not working, prunes no longer work,I take probiotics, eat lots of fiber and only drink water. Off to pick up some Miralax, dried pears and senna tea!
0 -
EXBR---HOLY CHIT! those are some bad bugs---worse that having to watch "Married with Children" every morning with the new BF. Bad joke. Not what you signed up for when you listened to JFK's speech.
Exbr, we know each other from other threads. I know you are very knowledgeable and proactive RE: your health. Knowing you I would guess that b/c of the change you've been evaluated by your doc, in particular, Gastroentrologist. For others reading new onset changes should always be evaluated by your doc.
Exbr:The only thing in your plan that's not working is really not part of your plan. Evacuating your colon when it signals, not when the job does. In colon retraining which complete methods can be found on the net. Two key components are necessary : 1. recognition of the signals that the colon is ready to evacuate and 2. responding to the signal by having a bowel movement. If the signals to evacuate are ignored over time things don't signal well. Too simplistic and okay, or not making sense?
Work isn't cooperating,...................Chit, I hate when that happens. It's Like Oliver Twist.
Look at spinal cord injured bowel training programs. This is a shot in the dark. The routines are generally done every three days. Particularly, if daily caretakers aren't involved. A CNA goes in inserts the suppositories, leaves for a couple other calls, then returns and completes the routine of stool removal.
My thought being that you could pick apart this type of program and see what you can apply to yourself.
This again supports why the GI doc eval. You are describing a gastric motility problem versus other i.e obstruction. Is the motility problem a primary cause i.e nerve, or 2ndary timing.
0 -
re: colonsopies - and a more conservative approach.... colonoscopes are hard to clean: http://www.cnbc.com/id/100798338 and in fact can spread disease from one patient to another.... also I know someone who had a perforated colon and peritonitis and nearly died from one.... a fecal occult blood test can detect 70-80% of cancers, and has no risk.....
0 -
boy can i relate
0 -
Colace 100mg 2 tabs twice a day and senokot 2 tabs twice a day. Neither one will your body become dependent on. Colace brings water from the bowel into the stool to keep it soft. You must drink a full glass of water when you take the pills. The senna is a natural vegetable laxative that will not cause cramping.
0 -
SDB--------CONGRATULATIONS AND MANY MORE PASSINGS IN YOUR FUTURE
0 -
I was under the impression that one could become dependent on senna. Sas?
0 -
Flavia--------How I respond---dunno. The article states the problem correctly. As one of my duties in a surgery center that also did scopes and many other procedures, was to monitor the patient under IV Conscious Sedation. A qualified nurse needs to be on that side of the table. The person assisting the doc with the scope on the other side of the table can be a RN, LPN, or GI technician. I was always very happy that I didn't need to learn that side of the table. Actually, it was the only job in the building that I didn't do.
Not just anyone can assist the doc or clean the scopes. The training is extensive. The responsibility is taken very seriously.
There is risk. Everything has risk. It would take a textbook of time writing here for me to explain. I'm staring at the computer hoping for words to come forth out of my fingertips that can help all understand that while the article states the risk, depending on hemacults to be anywhere near the usefullness of a colonoscopy is risking your life. By the time you have a positive fecal sample for blood, the cancer may be to advanced to do anything or must be treated with surgery/chemo/radiation.
Yes, fecal stool samples can detect 70-80% of the cancers, but again it's because the cancer is much further in it's growth. What the hemacult is testing is for blood. By the time a lesion causes blood, there has been something that caused enough tissue disruption to allow blood cells to mix with stool and be evacuated.
A scope can catch a growth in the earliest stage, where cutting it off is simple like a skin lesion, and that tissue/lesion is NOT considered cancerous.
But if left to grow quietly , uninterrupted because it can't be seen, then one day this noncancerous lesion/growth crosses the line in it's cellular growing and becomes cancer.
0 -
EX working the problem check back for my answer. I have an answer, but searching for evidence based resaerch
While I'm gathering some info to complete my thoughts, please read my post on page 10 re:laxatives
Starting to construct an answer please be patient:
YOOHOO HERE I AM---THERE ARE 328 EVIDENCE BASED CONSTIPATION ARTICLES IN PUB MED. i'VE GOT THROUGH 60 SOME. i'M TIRED OF READING ABOUT POOPING AND LAXATIVES. MY LEGS ARE SWOLLEN AND MY SWEETIE IS HOME. i WILL REVISIT THE SUBJECT SOON.
I HAVE FOUND ARTICLES THAT SAY YES AND NO TO THE QUESTION. SO, MANY MORE ARTICLES NEED TO BE LOOKED AT. FOR THOSE NOT USED TO SEARCHING , NOT UNCOMMON TO LOOK AT 100-200 ABSTRACTS. THEN NARROWING IT DOWN TO 20-25 BEST. THEN LOOKING AT THOSE TO SEE WHAT THE PROS AND CONS ARE ON THE QUESTION. ANYONE BASING IT B/C THEIR DOC SAID SO CAN DO THAT, BUT....................
I HAVE BEEN READING FOR HOURS AND i HAVE THREE OUT OF 60 SOME ABSTRACTS THAT I COPIED HERE. I DID HOWEVER BREAK TO LET THE DOGS RUN BY THE FARM SO THEY COULD POOP.
J Clin Gastroenterol. 2003 May-Jun;36(5):386-9.
Is chronic use of stimulant laxatives harmful to the colon?
Author information
Abstract
Although stimulant laxatives cause structural damage to surface epithelial cells that is of uncertain functional significance, there is no convincing evidence that their chronic use causes structural or functional impairment of enteric nerves or intestinal smooth muscle. Nor are there reliable data to link chronic use of stimulant laxatives to colorectal cancer and other tumors. The risks of laxative abuse have been overemphasized, and this has minimized their rational use by physicians. Stimulant laxatives may be used chronically when patients fail to respond adequately to bulk or osmotic laxatives alone. These can be combined with bulk or osmotic laxatives in sufficient amounts to soften the stool, or they can be used alone, according to clinical circumstances. The dose of such agents should be titrated to effect. Bisacodyl may be used if anthraquinone laxatives are unsatisfactory.
- PMID:
- 12702977
- [PubMed - indexed for MEDLINE]
----------------------------------------------------------------------
-
J Clin Gastroenterol. 1998 Jun;26(4):283-6.
Alterations in colonic anatomy induced by chronic stimulant laxatives: the cathartic colon revisited.
Joo JS, Ehrenpreis ED, Gonzalez L, Kaye M, Breno S, Wexner SD, Zaitman D, Secrest K.
Author information
Abstract
Cathartic colon is a historic term for the anatomic alteration of the colon secondary to chronic stimulant laxative use. Because some have questioned whether this is a real entity, we investigated changes occurring on barium enema in patients ingesting stimulant laxatives. Our study consisted of two parts. In part 1, a retrospective review of consecutive barium enemas performed on two groups of patients with chronic constipation (group 1, stimulant laxative use [n=29]; group 2, no stimulant laxative use [n=26]) was presented to a radiologist who was blinded to the patient group. A data sheet containing classic descriptions of cathartic colon was completed for each study. Chronic stimulant laxative use was defined as stimulant laxative ingestion more than three times per week for 1 year or longer. To confirm the findings of the retrospective study, 18 consecutive patients who were chronic stimulant laxative users underwent barium enema examination, and data sheets for cathartic colon were completed by another radiologist (part 2). Colonic redundancy (group 1, 34.5%; group 2, 19.2%) and dilatation (group 1, 44.8%; group 2, 23.1%) were frequent radiographic findings in both patient groups and were not significantly different in the two groups. Loss of haustral folds, however, was a common finding in group 1 (27.6%) but was not seen in group 2 (p < 0.005). Loss of haustral markings occurred in 15 (40.5%) of the total stimulant laxative users in the two parts of the study and was seen in the left colon of 6 (40%) patients, in the right colon of 2 (13.3%) patients, in the transverse colon of 5 (33.3%) patients, and in the entire colon of 2 (13.3%) patients. Loss of haustra was seen in patients chronically ingesting bisacodyl, phenolpthalein, senna, and casanthranol. We conclude that long-term stimulant laxative use results in anatomic changes in the colon characterized by loss of haustral folds, a finding that suggests neuronal injury or damage to colonic longitudinal musculature caused by these agents.
- PMID:
- 9649012
- [PubMed - indexed for MEDLINE]
------------------------------------------------------------
-
Am J Hosp Pharm. 1977 Mar;34(3):291-300.
Use and abuse of laxatives.
Abstract
Colon physiology, the causes of constipation, an approach to management of constipation, and the features of various laxatives are reviewed. The categories of individual agents discussed include the bulk-forming laxatives, stimulant cathartics, saline laxatives, hyperosmotic laxatives, surfactant laxatives, emollient laxatives, enemas and suppositories. Dietary change and attention to proper bowel habits are frequently the only therapy necessary for the treatment of constipation. When laxative intervention is necessary, one of the milder agents should be employed over a short period of time. The chronic abuse of stimulant cathartics, often deeply rooted in family or ethnic traditions, is a significant problem and difficult to treat.
- PMID:
- 324272
- [PubMed - indexed for MEDLINE]
-----------------------------------------------------------------------------------
0 -
Just as any of you who research, you know you have to read allot to get the exact answer you are looking for. THEN there's the diverging........ Well on one quest, I located something else that I just had to follow the breadcrumbs----this is on probiotics. The info of how to evaluate a probiotic and why they are useful is/are good. But the breadcrumb of verifying the evaluator Consumers Guide http://consumersguides.com/ isn't/wasn't easy.
Consumersguide was rated by Alexa. Alexa is a legit business-they just measure business stuff, there's a technical word for it_________metrics. I've used them before in following other breadcrumbs.
http://www.alexa.com/siteinfo/consumersguides.com
and Scamadvisor which is a legit business. They rate CC suspicious because the actual owner of ConsumersGuide is hidden.
http://www.scamadviser.com/check-website/consumers...
They still could be a legit organization, but it does cause one to wonder whether or not they receive behind the scenes money to rate a product. So I'm going to post the info from the page I found but delete the products. That way 1. it follows BCO rules to not try to sell something 2. I can't verify the breadcrumb trail, but I've researched enough about probiotics to know what is being said is true and they are saying it better than I can. This will take a few minutes b/c I have about ten or so browser windows open. Then I will go back to the original question.
Well that was fun-- NOT. I couldn't get the page to copy and paste. So, I will leave this now and continue on the original quest. If you connect to the consumersguide page evaluating probiotics. ignore the info regarding the products mentioned.
0 -
bump
0 -
The question: Can a person become dependent on senna?
In the above three abstracts you will find conflicting statement regarding whether a patient can become dependent on senna. The first two abstracts state that structural changes can occur in the colon. The second abstract defines that it is the haustral fold that are altered. The below link defines what haustral folds are and what the function they perform.
This statement from the wise/geek description "Because the formation of sacculations increases the surface area of the large intestine, this helps the colon achieve its three primary functions of retaining, transporting, and finally eliminating digested material as fecal matter. Muscles of the colon move the watery waste material forward and slowly absorb excess water. Soluble and insoluble indigestible carbohydrates travel down the large intestine.
As material travels from one haustrum to the next, a majority of the water is removed. Digestive remains are mixed with bacteria and mucus to make feces. Next, this material moves to the ascending colon where more water is removed, and the stools become more solid as they travel along into the descending colon. At this point, intestinal bacteria use some of the fiber to nourish themselves.
Haustral churning is the sequential movement of colon contents from one haustra to the next. These contractions are slow movements, during which one haustrum expands as material fills it, causing the muscles to contract, and the contents are pushed to the next haustrum. In this manner, waste material from digestion is moved through the colon. A diet high in fiber and fruits can help most people avoid problems with their colon and assist haustral movement."
http://www.wisegeek.org/what-are-haustra.htm
MY answer to the question of whether senna can cause dependency:
In science unless an absolute connection is made then it's not made. So, technically the answer to whether or not someone can become dependent on senna and other stimulant laxatives CANNOT be stated as yes or no b/c no absolute connection in nerve alteration could be scientifically established . The fact that stimulant laxatives change the structure of the colon by altering Haustral folds is important to consider in long term use. What is agreed upon is that senna and all stimulant laxatives should not be used as a routine long term management of constipation.
I haven't looked at the emollient laxatives---colace was part of the intitial full statement re dependencies a few posts ago.
0 -
These links are to a web based research center. A subject is discussed by the author similar to what I have done with the question re: senna dependency. The first link is on constipation. Generally, it states what I have stated. The second link is to the main page that states what they do, how they do it.
What I like about the site is it reviews the subjects based on evidence based research with links to the research from which the based there article on. AH-HaH---LOL, I just realized I like them because that's the way I do it.
0 -
Not sure these links will be helpful, but perhaps there is something in there new?!:
0 -
Thanks Mods appreciate it
0 -
answer reposted from another thread. This is an editorial opinion by me.
Chevy there are 12 pages of pooping suggestions on the constipation thread. Members had all kinds of suggestions. The most commonly reported effective things, I put into a combined recipe is-- Stewed prunes and or apricots(from fresh if available), taken with a warm glass of water with lemon in it, with senna--either as a pill or a tea. The most common orthodox(Doc recommended) plan was Miralax.
After about page 8, I reread all the responses and tabulated what were the "treatments". The stewed prunes and apricots were number one. I thought this very nice b/c it's centuries old versus Mirilax which is polyethylene-glycol ,a manmade chemical. Manmade chemicals have been found to be a problem many years later. There's some very outrageous damning stuff about Polyethylene-glycol (PEG) on the web. Here's one http://www.gutsense.org/gutsense/the-role-of-mira... But we won't know for a long time if it's really as friendly as the American Society of Gastroenterologist claim or as bad as the manmade invention from 1930 era Margarine was with it's trans-fatty acids. This wasn't identified as a health risk until the last decade or so. The American Heart Association pushed margarine as a better alternative to butter for decades. The system that the margarine hurt the worst was the vascular system. Ironic. GOOD LORD Chevy, it was a simple question about pooping.
I'd go with the centuries old approach. Hmm, hope that statement becomes literal.
0 -
i don't really know what my system is doing. It's different every day. Right now, I am taking colase every night and eating chia seeds and drinking lots more water. That seems to be working. I still have not gotten in touch with gi doc. I call and it just rings and rings. I'm thinking of pushing the number that is for doctors, just to see if someone answers. Weird. I have a ct scan on Friday. Sas--did I ask you this already...would a ct scan pick up on stuff going on in the colon? Not to be to gross, but I only have blood when the bm is a certain size and I think it tears something? But I am concerned because I have read this entire thread and other info you have posted and the other things that I picked up on were that I have always been constipated, always. And now the only time it doesn't hurt to go is when it is pencil thin or not solid. And I feel like I don't have any muscles working down there...like no contractions? Sorry that is tmi. Thank you for sharing your knowledge sas...and for everyone's suggestions!
0 -
Actually, it's not TMI. Pencil thin stools lend toward diverticulosis, the blood streaking is also characteristic because hard stool is trying pass through a space that has narrowed over time trying to deal with the consistent hard stool and pouches that have a change in the mucosal lining b/c of the pouch formation. LIke a weaking in the old tube tires. Pretty sure I described that in page one. I found a WebMD article and slide show that I'll put at the bottom.
Lay off the chia seeds for now. There is no accepted evidence that seeds and nuts are a problem, but you are in a more acute situation.
Kj sweetie, I am going to be dead honest with you and your not going to like it. Also, others my read this and say/think it out of bounds. I thought you wrote to me with the original problem awhile ago, but paged back two pages and don't see a post????? Found it , remembered it was on the Rectal Issues thread. I'm going to copy and paste that post after this b/c it will show a better hx of present problem Which ultimately will help someone else.
Having to revise response b/c I thought i read you were having a CT this week , then missed it on a second read. TOTALLY changes the response so, bear with me if you are already reading.--Because you are having the CT Friday, I took out all the dramatic worst case scenario info. Please, consider though you are a high risk patient---see plan below.
If a CT is ordered for Friday, PCP or MO had to order it. The order should be " CT of the abd and pelvis with and without contrast". Depending on the CT report, it will indicate how fast you get a GI appointment.
At this time a colonoscopy would not be done for the following reason. History of pain & blood in stools &pencil thin stools. Definitive imaging of the abd/pelvis is indicated before a scope is introduced.
My Recommended Plan
1. If you develop fever, even without abdominal pain ----go directly to the emergency department. You are a high risk patient for abdominal diverticular rupture or leak until proven otherwise: Fever could be in response to early peritonitis. Peritonitis is associated with pain, but may not present with pain in the early phase of a leak versus a rupture. Ruptures definitely get your attention and are associated with intense pain at time of rupture
2. Follow up asap with whomever made the CT appointment. There is a list of questions on the pervious page that I wrote for Minus TWO. The questions apply to you too. Try and copy the questions and write the answers prior to doc visit. It will help you cover all bases and focus
-------------------------------------------------------
Kj post from Rectal Issues thread. Placed here to give a complete picture of abdominal problem
Feb 12, 2014 11:36pm Kjones13 wrote:
I appreciate this topic. Thanks for bumping it. I have had two rounds of cdiff so I am freaked out of a reoccurrence always. I think I was more sick with cdiff then with 18 weeks of taxol. Anywho, ever since I got my bc diagnosis my colon has not been the same. With all the different meds it's like a circus with my bowels. Most recently I have had rectal bleeding for 3 months but then I just decided to take colace everyday and now there is no blood...I just really don't want to add another specialist into the mix. With the taxol and perjeta causing the big d, I was taking lomotil like crazy. Then taxol stopped. Got a little better but then started taking oxy for back pain. Then got cdiff 2x's. haven't taken lomotil in 7 months. Not going to let anything get backed up and have a chane to breed bad bacteria! Besides the bleeding I had, I also have pain in my butt...it hurts to sit down and kind of feels numb deep down in my saddle area...? Maybe differed pain from L5 met?
Web MD teaching article http://www.webmd.com/digestive-disorders/divertic...
webMD slide show http://www.webmd.com/digestive-disorders/ss/slide...
0 -
Kj---------HUGS------sassy
0 -
thank you sassy. The ct my regularly scheduled 3 month check up. I have liver mets. But they do a chest, abdomen, and pelvis ct. The ct is Friday morning and then I have appt with mo at 12. So I will ask him to get me in with th gi doc ASAP. I will get all my info together so I can present it to the doc.
0 -
Hi all. Sas asked me to post this, so here I am. On Spoiled Maltese, we talk frequently about the dogs having trouble with their bowels. They recommend a teaspoon of plain canned pumpkin. Not the pie mix stuff. This was backed up by Bluebird. Works for humans too!
So go make a pumpkin pie and enjoy, and see what happens. Tastes better anyway, right?
0 -
bump
0 -
I am so looking forward to my gi appt Thursday! Kind of. Now my symptoms have changed. Maybe my bowels readjusting after a virus I got that lasted 48 hours of diarrhea and nausea and burping? I thought it may be cdiff so a dr prescribed me vanco without doing a stool test...which sent me on my next wave of diarrhea and landed me in the hospital losing 9 pounds of fluid!! Amazing what 3 bags of fluids can do for you! But now I have a fullness/ tightness in my upper abdomen, nausea, a distended belly, and back to the blood in the stools which are now blackish/green and hard as a rock! Augh!!!!! I really hope they can figure something out.
0 -
Kj have hope. Let's us know what happens. HUGS L&H&P's sassy.
0 -
Hey there! Is there room for a newbie in this crapper of a thread?
I have been so uncomfortable even talking about this to anyone but you are all too funny as well as really helpful. So I thought I could give it a shot here.
I have had what I assume are to be hemorrhoids for over a year. Sometimes they seem really painful and burning, other times, not so much. I asked my gyn about it when I saw her last Nov and she didn't seem to think it was anything. Of course, that was also during a "good" time so who knows? But when I look up symptoms and info on the topic, I don't have the main symptoms- no blood, no pain when pooping. And it feels more the skin is irritated. I had a third degree tear when my dd was born and it feels more like my scar is more where it hurts. To top it off,I am on lots of abx for my lyme, but I also take nystatin, probiotics,
and diflucan to help with that. I do get a lot of bloating which makes me have the feeling of having to poop all day long and I end up going small bits several times a day.Yay for TMI!!!!
So this is my question. I feel like I have tried everything-- Prep H suppositories (do nothing to help), FiberCon tablets, stool softener like colace, senna tea, and now I bought Miralax.
In your bathroom experiences, is there something out there that will help? I really don't want to have to see yet another doctor at this point in my life.
Thanks!
0 -
thanks faerywings for the tmi!
I have no advice but hopefully sassy will be along shortly. I felt the same way about having another doc but I have an appt tomorrow with gi specialist. This morning I woke up with the same symptoms as two weeks ago! Augh! I could just cry! I think adding the mirilax to your routine will help.0 -
I swear by psyllium, a tablespoon mixed with juice or water. Also there is an herbal product I've used by Dr. Foster's Essentials called "vibrant colon" which has senna and other herbs, but is blended so that you don't get cramping with it, it is very gentle.
0 -
Kj Imissed where you're doc prescribed vanco without doing a stool specimen and sensitivity. Not good chickie, not good. I'll wait till you post what happened at you visit today--thurs. Then I'll give you my full opinion L&H&P's sassy
0 -
faerywings, you're worried about TMI, and I need more. Have you a GI doc? Last seen by them? Report was? Have you had chemo, new drugs , changes in weight since last GI visit? Scoped and when?
Recommend a GI visit. Remember we have docs now for every body part. Gyn doc may have no clue they are looking at a serious rectal anal problem. Not saying it is, just trying to make it clear, that we do have a doc for every system and body part.
Your description that the pain is in the area of the scar is a good observation. Scar tissue is nonpliable without nerve endings, but the tissue around it certainly has. When scar tissue is stretched it can tear and cause trouble.
But this is why you need a GI doc.---no more looking up symptoms ----get thee to a gastroenterologist.
Please, if I didn't cover everything write back, I'm enjoying some wine sassy
0 -
sas--so yesterday I started again with the burping, diarrhea, and extreme nausea. I managed to make it to my appt today and I have slowly felt better throughout the day. There are about 14 dr's in this practice and I've heard great things about them all. After hearing my history and most recent symptoms AND taking until consideration my cancer and that my brother has a severe case of ulcerative colitis (he was pretty much disabled for 8 years but he now has a j pouch) the dr wants to do a colonoscopy and do a biopsy and also an upper endoscopy. But the first available appointment isn't until April 22nd! What are your thoughts? I did ask him if I could take lomotil or Imodium and he said yes.
0 -
Oooh how nice, wine... can I have some too?
SO GI stuff. No, never been to a GI dr. I have a looooon history of constipation. I wasn't able to be in my first grade play becasue I hadn't pooped in days and I had to stay home and drink prune juice and try to poop. How sad is that? LOL So the constipation never rang any bells to me. I have a lot of nerve issues with lyme and my bartonella can mess around with blood vessels, add in yeast issues from the meds, which is why I figured this was just Lyme related.
Thx for your input. When I get through the next step of treatment (I have an RO consult today) I will have to focus on that.
0 -
OH Faery, there's a name for what you have------erhhh restate----there is a condition where there is poor nervous stimulation to the colon.-----forget what it is, it can lead to or be a thing called megacolon. Unusual a PCP never got you to a GI doc before. But just goes to show ya, that pooping is not given the focus it should be. Try and see a Gi doc soon. Even just making the appointment. The lead time for a first time appointment can be a couple months. Not sure how your pre-existing lyme and bor----sorry your spelling isn't correct and I forget the spelling too. Sorry, you have those bugs, they are truly awful diseases.
Kj
The doc recommending the endoscopy--(upper) and the lower colonoscopy is being thorough. Excellent approach. but try and get him to order a stool for OVA & Parasites, Giardia, C-difficile, Culture and Sensitivity, viral(that would take a long time to get results). When you ask for this ----ask " is there any other stool test that can be done that i haven't asked for."
What was the origin of the ulcerative colitis in your brother?
Using lomotil and immodium----they are appropriate in diarrhea where all bacteria and viral bugs have been ruled out. If they are present and you stop the body from trying to rid itself by the diarrhea, then it can have consequences for the rest of the body. So, call and ask the doc to order the tests. Some docs get their noses out of joint when you ask for stuff like this but it is a safer approach.
0 -
thanks sas--I will ask about the stool tests. When I was in the hospital on march 7,8, they tested for all kinds of stuff, but I didn't really get a complete list...the nurse only mentioned cdiff, rotovirus and norovirus. As for my brother...they have no clue. Colitis runs (pun intended) in our family, but only brief bouts of it. Nothing like his. He was an extremely active, healthy 30 year old. I honestly don't know how he survived. Alone, not able to go anywhere...I probably would have put myself out of misery. Glad he didn't give up. He has a beautiful life now, which makes my heart cry with joy!
0 -
0 -
sassy, thank you, as soona s I get through the rads issues, I will get in to see a GI.
ziggy- hahah!!
0 -
Ziggy hahahah, I just found this one thought it belonged here too
0 -
bump
0 -
Just checking in. After the Big D for 9 months w/chemo - I had constipation with rads - which ended 10 days ago. Finished antibiotics yesterday so I hope that makes a difference. Just upped my colace tonight from one a day to two. Either drinking prune juice in the AM or eating 5 dried prunes, but if I forget a day w/the prunes I have hard, tight problems. Not sure if the Zinc that my PCP told me to add could be contributing. Just bought 'plum light' since I'm really tired of prunes. I know I'm not eating enough fruits or veggies, but my taste is still off. Unfortunately what tastes good is bananas & apples - yup - counterproductive. This too shall pass (pun intended).
0 -
Bump, a common issue hope this helps
0 -
Here's a product that might help, but use caution! LOL! And if what you need is a good laugh (and who doesn't, at times, when going through this stuff??) then just start reading the reviews for this product. I was laughing so hard tears were streaming down my face. :-)
0 -
Jennie, oh thanks for the laugh This is the sh*tiest humor, I've seen in alongggg while. ERh it's humor folks not real.
0 -
Bump
0 -
it wasn't funny then but it is to me now. It was more painful and longer pushing to have a BM than it was to give birth to my third child!!! I had to do my Lamaze breathing to get through the over 45 minutes but I was determined to poop 11 days after surgery. Even though I took the colase, I think the iron pills killed me with regard to being able to poop. I cut back on the iron pills and it's been a lot better!
0 -
NoNips Hi, Iron will do that.plug you up erhhhlike iron balls. Please, never let yourself go for longer than three days. It puts too much pressure on the colon walls. Also, the stool closest to the rectum/anus gets so dry, it's like trying to get rocks out. Talk magnesium citrate with your doc i.e. to be used if you haven't had a Bm in three days. Remember though if you use it, it will clean you out. You may not have a BM for several days. Conversely, you may have the squirts for a day or so. I do. But i'd rather have the squirts , than the constipation.
Just a reminder never stick ANYTHING up the rectum if you are in a low immune state i.e fleets enema, enemas, suppositories.
Review your drugs with your pharmacist and see if they can make a suggestion about your drugs to reduce constipation.
I recently took colace during my radioactive Iodine 131 (pill). I was not impressed at all with how it worked. Now will have this bottle for years. I know it's on all recommended lists.
If you review from the beginning, you will be impressed with all the comments about stewed apricots and prunes
. MY SIL does say colace and stewed prunes finally got her going LOL.Going to PM this too you just in case you don't see this sassy
0 -
bump
0 -
SAS - I always do a double take when you change your avatar.
I seem to have conquered my problem with one Colace every night and a glass of prune juice every 3 days. Thanks for all your advice.
0 -
Ladies, what about ripe papaya? it seems to help me with constipation.
0 -
MinusTwo........ Hi, LOL, I only recently learned how to do an avatar. Now, when the mood strikes, I change it. Very fun. Can you imagine if we all did it---what a hoot
Glad your body is cooperating YAY.
There's a learning experience for us all, from your post.
1.You searched for different solutions to your problem
2. You experimented to see what worked for you
3. You continued doing it.
This supports why reading from the beginning helps here and elsewhere.
"What works for others, may not work for you. Conversely, what works for you, may not work for others". Quoted from FBB 2014-sassy
0 -
Hello soriya that rhymes with papaya
. Re: your post on the pervious page " Ladies, what about ripe papaya? it seems to help me with constipation. ". Raised my curiosity. Off I went on a search. The link to Whole Foods was interesting and fun. They give the A to Z information about each of their topics. As a cautionary, please, make sure to read the part on Papaya and Latex Allergy.http://www.whfoods.com/genpage.php?tname=foodspice&dbid=47
Very often, I look at Wikipedia as a source. I'm not linking it b/c it isn't done well. That's the first time, I've ever said that about a Wikipedia page that was well established.
0 -
An hour ago, edited a few seconds ago by sas-schatzi
Hi, popping in. I was posting with another member. I thought sharing the below information may be helpful to you
.The link www.needymeds.org is to a web site started by a Social Worker and a doc. It is a tricky site to use. The first page leads to a several hundred resource pages. But I think this first page, does not project the wealth that lies beneath. Be patient when following the links within the site. There are sections that are disease and drug specific. The specific page then links to lists of organizations that provide monetary or other types of assistance.
Register first and do the request for assistances form. Reason: the request for assistance form is filed. If you apply to 1 or 20 organizations/companies, the forms don't need to be repeatedly filled out. The system is designed to pull from the original form. There may be a few particulars that need to be added to a companies/organizations form.
All the pharmaceutical companies have patient assistance programs. All the drug manufactures are listed there
The other way to reach drug manufactures is 1. call the manufactuer patient assistance number(goolge keywords: drug name and manufacturer, then to webpage>>>patient assistance. Very time consuming.
There is so much more on www.needymeds.org. It took a bit of time to wander through the whole site. I've shared a telephone walk through with many friends and relatives. I even called healthcare facilities to tell them about this link.
For completeness, there are many ways to get financial assistance for whatever you need. There are organizations that will do things for you i.e volunteers that buy groceries, drive, install handrails, build wheelchair ramps.
How to find the info besides from the link above? FIND the SOCIAL WORKER(SW). It's there job to know these things
Talk to all of the following 1. cancer center SW, 2.hospital SW, 3. Insurance companies SW, 4. County SW. 5. church outreach leader.I requested from my insurance carrier a consult with a SW. That one appointment with the insurance carrier Social Worker, led to grants totaling $10,550. The meeting with the cancer centers SW, led to coverage of neulasta for $4000.00.
0 -
Bump , companion thread Rectal issues, link in topic box0 -
bump0 -
bump0 -
Bump
0 -
Always having struggled with constipation despite doing everything right (exercise, water, fiber supplements, healthy eating) I was very worried going into surgery. And less than 1 day being home from my BMX had to go back to the hospital for a few days due to a bowel obstruction
Since then my doctor put me on Miralax. It is a life saver! It gets a little pricey though, as some of you pointed out. I did some research and found that some insurances will cover it. Also, Walgreens has a sale every so often on their brand of it where it's buy one get one 50% off.0 -
Stepangel sorry you had the problem. Did they use the word post-op ileus with you. Common for bowel to go to sleep with anesthesia and or stressor illnesses. Reason I bring it up is, if you have surgery again do a little reading on post-op ileus. Google "mayo clinic and post operative ileus". Mayo has the best patient teaching info. I would have found a link for you, but I have a new computer. I haven't figured everything out yet. Good Luck, sassy0 -
Thank you for the info. I will look into that for sure!
0 -
I didn't read the entire thread on the subject, but I went from going a minimum of 2-4 times a day pre chemo - to small movements once a day the three to 5 days following treatment. I am going to see if any of the things I did read about help. I try to drink more water (which is getting increasingly gross to me), popsicles, dried prunes/apricots, and watermelon trying to keep hydrated and keep things "moving"
I have Milk of Magnesia from surgery which worked realy well, but the thought of drinking that stuff only increases my queasiness!
0 -
Bump
0 -
Milk of Magnesia is my friend
0 -
Homemom, glad something works YAY. Please, take the time to read the descriptions of laxative and stool softners on page 10. It's a short section, see how milk of Mag fits in
sassy There is a section on the prolonged use of the drugs 0 -
I've only had to use it now three times over the course of the last 4 months. It usually works overnight for me. When I start having normal BM's I feel normal again.
0 -
Homemom GREAT
please, put this in your favs and page ten is in the topic box links. Your usage is absolutely minor as you describe YAY!0 -
BUmP for a better go
0 -
I'm coming up to almost 3 years of Arimidex and I've been fighting constipation from the first week. None of the usual remedies worked to any sufficient degree. You know it's a problem when you're (almost) looking forward to the colonoscopy clean out.
Much to my surprise the last couple of months have been greatly improved by adding a morning cup of coffee to my routine. (I previously drank tea). Now, on most days, about 1/2 hour after the cup of hot coffee I have a productive visit to the john.
Only those of us who have been chronically constipated understand the elation that comes with regular BM's.
I just hope it keeps working.
0 -
I suffered from constipation before the chemo and it's worse now. Going to see a GI doc today prior to scheduling my first colonoscopy. VERY recently I found Ezekial cereal wthat has a low glycemic index and has helped with the constipation. Not too tasty so need. A little honey and fruit to spruce it up.
If the GI guy has any other ideas, I'll post.
Hugs,
Peggy
0 -
Re: constipation. It never was a problem for me until about 6 months before my BC diagnosis. Unless I take a tablespoon of psyllium daily, it is a big problem. I do wonder if the constipation was an early sign that my body wasn't functioning properly.
0 -
bump
0 -
My GI told me to take Miralax on a daily basis. That combined with a high fiber diet(e.g. Raisin bran, cruciferous verge tables, raw fruit) and daily exercise has now made me regular on a daily basis. I have a colonoscopy Sept. 11, so will report back then.
Peggy
0 -
Thanks Peggy
:)sassy0 -
Still wondering what would be better. Docs approved so I take Colace on a daily basis and still get constipated once every week or 10 days. Maybe I should open the Miralax I bought but never used. Right now I'm not changing anything until I finish my last TWO herceptin infusions. When I'm really finished, then we'll see.
0 -
HI! MinusTwo. It's been a while. Every colon is different. That's a VERY important thought. What works for one person may not work for another. AND what works for each of use USUALLY, may fail us at times. That's why I encouraged new readers to look at all the suggestions from page one on to the end(pun).
Which leads to several new thoughts. I'll attempt to organize them, LOL........ran out of coffee so this won't be easy.
When bowel issues either constipation or diarrhea are a problem, have a written plan. I suggest a written plan b/c then when you activate the constipation /diarrhea portion of the plan you don't have to think about what you are going to do. We ALL know thinking for us is an issue in itself LOL.
Going to post this so I don't lose it--------------Need to find coffee------check back for the rest of the response sassy
Coffee's abrewin Basic plan 1.Keep a calendar or a journal to mark daily bowel movements. 2. Keep well hydrated 3.Be aware of what foods bind or loosen your stools. 4. Follow your daily plan to manage bowels. (I recommend the non man made drugs when possible i.e. stewed prunes/apricots) For some people made made product use IS going to be part of the basic plan. But remember all drugs have consequences. Read my analysis on Senna a page or so ago.
Low level plan-Plan B 1. If constipation noted by delayed evacuation or stools are hard and difficult to pass, institute plan B----miralax, laxative, stool softner. 2. Recheck hydration levels. (check urine---if you can see any color to it in the commode, you are not well hydrated enough)
Maximum level plan -Plan C 1. Magnesium citrate
0 -
My doctors also recommend Miralax on a daily basis. I mix mine with a little apple juice. This works for me, and is not harsh like Senna.0 -
Birdlady, Miralax is widely used. Approximately 2, possibly as long as 3 years ago, the American Society of Gastroenterology changed their recommendation from High fiber diet (25 to 30 Gms) with adequate hydration as the proper way to promote normal bowel movements...to Miralax and proper hydration.
When I asked my GI doc, as he was telling me of the change, what he thought of it. He was closed mouthed. He's my doc, but I also worked with him and was taught by him for many years. He then repeated the new guidelines. He did so b/c he was following the guideline. I know what he was thinking b/c he taught me. He didn't agree. He uses/prescribes Miralax when needed, but his belief is in proper eating.
All sub-specialties of the American Medical Association(AMA) have governing bodies that meet every x number of years to produce new guidelines and reaffirm what they continue to support. This does not mean there is universal support. It means consensus ruled.
In a historical perspective, have guidelines always proved effective. No. In the 70's the American Heart Association(AHA) promulgated the use of margaraine(sic) over butter. Less saturated fat. In the 2000's the identification of the evils of trans-fatty acids was identified. So, for decades the leadership of the AHA espoused artery clogging trans-fatty acids as the choice for the populace. OOPS! Kept the cardiologists and cardiac surgeons in business and will for the foreseeable future.
MY POINT
Miralax is a new chemical. It's Polyethylene Glycol. Definition from internet:- a synthetic resin made by polymerizing ethylene glycol, in particular any of a series of water-soluble oligomers and polymers used chiefly as solvents or waxes
Favorite med site : http://dailymed.nlm.nih.gov/dailymed/lookup.cfm?se...
I had more but wiped it out with an errant finger. Thank goodness I saved the rest.
Please remember all drugs are chemicals. Foods are chemicals. Apricots and prunes are chemicals. Apricots and prunes have been around a long time. We know what they do. Don't set yourself up for the "OOPS"
BTW----Miralax shouldn't be used by anyone with kidney disease. If it's not absorbed from the gut and circulated to the kidney, why is that?
0 -
Bird , Peggy, and All. I keep Miralax in the house for plan B
0 -
Wow! Sas-schatzi, thanks for the heads up. I do take a lot of pain meds for bone mets, and was advised that these meds were the cause of constipation, which I am to avoid(apparently at all cost) I have always eaten a pretty balanced diet, exercised, and drank plenty of water. I will up the apricots and prunes, and wean off the the Miralax. I'll keep it for "Plan B" Interesting that you brought up margarine...my brother always refused to eat it, and convinced me at a young age that it was poisonous. Turns out he was right. We have often talked about our great grandparents who ate eggs, butter, pork, beef, and veggies that they grew on their farm. They lived into their nineties without cancer, diabetes, or heart disease. Our modern diet is so refined and processed that there is very little "food" in it.I trust my doctor, but you have given me a reason to look at my diet more closely. Thanks! Birdlady
Also, thanks for the link. I have bookmarked that one.
0 -
Sassy - I bookmarked the link too. Thanks
Birdlady - I never switched to margarine either. Or "I can't believe it's not...". Real butter for me and lots of it. It's probably the only thing I don't consume in moderation.
0 -
Bird and M2, thanks, There are many recipes in the previous pages for apricots and prunes
I did a review of I think the first 8 pages along time ago. The food recipes won hands down as a means to create regularity. I was pleased and surprised. I too felt that margarine was trouble. It was invented around 1930. I figured butter was around for thousands of years.
Ask your docs about adding either fishoil or flaxseed oil to your diets(IMPORTANT see Birds Pm to me below). They contain Omega3/6/9 essential fatty acids. Omega3 is the really good guy. I call it the cavalry.
Omega6 produces about 30 Prostagladins. Roughly half are good. Half bad. Omega3 works on preventing the damage to the body by the bad effects of Omega6.
Not much is known about Omega9, but it is still considered an essential fatty acid. BtW Essential Fatty Acids(EFA's) term means our body has to have them for allot of cell/body functions. But we can't/don't make them in the body. We have to obtain them from an external source.
Omega3 has been processed out of our foods starting in the early 1900's and got progressively worse as time went on. Bird just as you have stated about processed food. The advent of significant increases in cancer, heart disease, diabetes parallels the change in our food production.
I take 2000 mg of fish or flax oil a day. It helps with keeping things moving. Plus, you can't believe what it does for your skin. Once you start taking it, it takes a few weeks to see the skin change. It's affect on every single cell in the body is important.
The benefits of the OMEGA3 have only been embraced by orthodox medicine in the last decade. It's been researched heavily for 60 years. The primary GURU was Udo Irasmus Phd. He wrote "Fats that Heal, Fats that Kill" If you read it, make sure you read the Forward. Irasmus will teach you what sections of the book to read based on your need. The first chapters are very technical. He wrote it that way b/c he wanted the science/medical establishment to understand the serious scientific research that he had done and compiled. For lay people if you look at the first chapter it'd be a "This is not for me reaction" LOL.
Historically, Irasmus identifies that Flaxseeds were found in Egyptian tombs for food in the afterlife. Empirically, flaxseed was used by many societies b/c they noted it 's benefits. Charlemagne decreed that his subjects have a serving a day.
Fish oil gained interest in the 70's when researchers picked up on the reduced cancer and cardiovascular numbers in Norwegian and Japanese societies.
They both entered the general population use in the USA around 2005. Now soooooo many things have Omega3 touted as being added to the food product.
If you use either oil, make sure it's from a reputable source. Heat can affect each one. Refrigerated oil is the most trustworthy IMO. Fish oil should be from a company that certifies that it has been tested for contaminants. For years I wouldn't use it b/c of this, but they're companies that do certify now. Our seas aren't that clean anymore. With the actual Flax seeds avoid commercially ground flax. Research has shown that the benefits are lost in less tin 24 hours. If you grind your own, use them right away.
BTW when I was reading and learning about the Omega's, I had come to the conclusion that Omega3 was the cavalry as I said above. Low and behold, I turned a page in Irasmus's book, there was a pic by Irasmus describing Omega3 as the cavalry.
0 -
Great info post, sas-schatzi. Can you give me some reputable sources for Flax seeds? If not on the forum, can you pm me, please? My skin could sure use some help. Arimidex is rough on skin and hair. Thanks! Birdlady
0 -
Bird
Barleans sassy0 -
Hi Bird has done some research. This is what she PM'd me. Absolutely important here. I did say ask your docs, But will go back and Bold it and Put a note to see Birds post below. Thanks Bird. Good job , you go girl. sassy
PM from Bird
"Hi! I have been looking at flaxseed oil, as you and some others recommended. I have a great friend who has used it for years. When I mentioned it to her she suggested that I read about it, and ask my doctor before taking it, as it can increase estrogen. Here is just one paragraph that I copied.
"Flaxseed may not be safe for women with a history of estrogen-sensitive cancer, such as breast or uterine cancer. A few test tube studies suggest that certain cancer cells can be stimulated by lignans such as those present in flaxseed. 52 Other studies found that lignans inhibit cancer cell growth. 53 As with estrogen, lignans' positive or negative effects on cancer cells may depend on dose, type of cancer cell, and levels of hormones in the body. If you have a history of cancer, particularly breast cancer, talk with your doctor before consuming large amounts of flaxseeds."
I know that everyone is different, and these "studies" are limited, but there were several web sites that mentioned that breast cancer patients may not want to take it. I think I will explore other options to use diet changes to wean myself off of Miralax. I am stage IV, so I take pain meds for mets, and I must avoid constipation. This darn disease offers us so many challenges. I want to try and take good care of myself, diet, exercise, and spiritual health. Thank you for the heads up about the Miralax. You reminded me to be more careful about reading labels.
Best Wishes, Birdlady"
Bird It brought back a distant memory as to why I hadn't put it on here before. If you can please, continue your search. Omega3 is essential to health. How we get there is the question. See if you can find anything on how to add it to the diet. Salmon, sea bass, herring, mackerel are some sources, nuts. I eat seafood. Your source may be why I switched to fish oil from flax oil.
The sentence about "talk with your doctor before consuming large amounts of flaxseeds." What the author of the article assumed was large amounts. All things in moderation. A totally absent or low diet in Omega3 will lead to all kinds of ill health things. It's trying to find a line to live by is the hard thing.
0 -
Thank you, sassy! You said it in one sentence for me..."All things in moderation" I will continue to research. I don't eat much fish, so I need to look more at nutrition to get those Omega3 in. I think sometimes people go overboard with supplements, thinking that more is better.0 -
OH BIRD, you've sent me on a quest. Ohvay!. Someone a few pages back made a simple statement re:Senna couldn't be habit forming. I didn't know one way or the other. It sent me on several Sundays quest of reading to come to a conclusion. I was so tired of reading about poop.
I'm on an Omega3 quest. Do me a favor and link those resources to here, and I'll include them in my study. This is not going to be completed in a short time. It might take me a couple of weeks. So look back to see what I can put together. You can do a look back to see the senna material to see how I put the resources together.
OH GIRL, the outcome will be good. I just know how much work it'll be getting there. Really all I can think of is food right now LOL. Thanks.
Pm from Bird worried about contradicting me on the board, my answer follows
"Bird , Absolutely contradict me. Safety is a huge issue with me AND correct info is absolute. It will create great research. Keeping this short b/c I hate to write long PM's and then have them blocked.
Thanks sassy"
0 -
Under construction --------research articles on Omega's and estrogen
Birds first & second & third links RE Flaxseed oil
http://www.med.nyu.edu/content?ChunkIID=21714
Bird, the above article is very well balanced. It is too technically written for the lay public. I found that interesting b/c it is a fact oriented article for the public made available by a hospital based medical center. Then I noticed at the end something that has lead me to Niravanha(sic). The flaxseed article available from NYU is a contracted publication from a company called EBSCO. EBSCO produces informational articles that are evidence based, peer reviewed, and update on a tiered basis(time sensitive --1 year to 5 years)
At the bottom where it says copyright and ebsco, click on editorial policy. This is the A_Z about EBSCO policies fro article production. It's an important read. It's a tedious read LOL. About 60% through I almost gave up. From a research point of view it takes allot of the work out of researching b/c per their policies they have established very tight criteria over what they produce.
This is sassy's link to http://www.ebsco.com/about
When you go to EBSCO's web site, you can't just plug in your search terms. Makes sense they are selling their product. Nice to know that an article with the EBSCO copyright, that is produced for lay public teaching, has gone through rigorous peer review and update in a set time period based on subject.
http://www.greenmedinfo.com/blog/confirmed-flaxsee...
Bird, the above link is actually an exceptional site. BUT the author has a clear agenda. He is out to prove that flaxseed IS okay. The very first hyperlink goes to a very lengthy bibliography. The bibliography is also hyperlinked which allows the reader to read the original research. This allows the reader to evaluate in the context of the original research what the Green Med author supports. This will take significant amount of time to get through all the reading.
The good part is we don't have to spend time searching for articles that support the use of flaxseed in the breast cancer/cancer patient. The negative is not sure yet b/c I haven't gotten into the reading, is whether he included the flipside position of flaxseed being dangerous for breast cancer patients. I won't know until the reading is complete.
Bird, this link as you know is to the same green med web site. I did take time with this one to read through some of the bibs(bibliography). All that I read, support the authors position which is definitely antipharmaceutical/antiorthodox established medicine.
If I saw more balance on greenmed.com I could give more credence to his conclusions. He is definitely passionate about his topics.
The problem with sites such as these, is there is no balance. But as long as the reader realizes that articles that don't agree with his position aren't present, it's okay. The reader needs to take the next step and study the opposite point of view.
The reader then can make their own conclusion. Eventually that's what we will do.
0 -
Data interpretation or whatever this becomes
0 -
Conclusion re omega search
0 -
Reserved for input from others on omega search
0 -
Bird reserve a couple of boxes below me. One box just put under construction for research links. Another box for data, third box for conclusions. This way we can keep everything linked and work off each others info.
0 -
Under construction for links0 -
Bird, I can't send anymore PM's today. You couldn't post it b/c it was too fast, you just need to wait a few more seconds and it will let you do it.
Birdlady yoohoo We can use thes boxes to communicate, saves using allot of space. Then when we want we can wipe them clean by editing. I didn't want to say delete. Delete will make the box useless. Editing keeps them active.
BIRD are you catching on LOL. I put your link in the box above. See ya off to dinner
BIRD YOOHOOO LOL I"M over HERE------I see your PM's , but I'm blocked from sending any more today.
0 -
Data0 -
Conclusions0 -
Bird in searching we will sift through maybe a couple hundred articles. The first thing to make the work go easier is use this phrase in the search box."Evidence based research Flaxseed oil and breast cancer" That will pull scientific articles/studies. We won't put all articles here way too cumbersome. That's why it will take awhile. Lots of reading. For the subject at hand look at article publication date. It's not that older publications don't have value, it depends on the subject and the goal of the research.
In this case we want to know the most recent research on flax and fish oils with breast cancer, then secondly all cancers.
The second link that I put up above from your PM. Is what's referred to as an anecdotal article. I didn't read the who;e thing. but the bibliography wasn't immediately present. Articles without bibliographies have limited value b/c you can't verify the source that the info is taken from.
I use them sometimes, but only to generate more questions to research. Plus, I like to see what's out there in the non scientific world.
Be patient, it will take a several weeks to do this right. We have lives that we have to work around. Plus, do too much and you will get burned out.
I LOVE the idea of doing this with you -------YAY ------fun ------------studying to the max. LOL. I'm weird.
0 -
I am trying to catch up with reading this thread, and maybe already been covered. The only thing that really works for me is magnesium. Should I be worried about my kidneys? My blood test showed a low GFR count. So, Miralax is hard on kidneys? If I continue to take magnesium, how much should I take? Any information appreciated.
0 -
Stage1, I'll take the fifth on that one. Please talk with your PCP or GI doc. It. is an OTC drug. But as I have said before "All drugs have consequences". You may discuss with the PCP a consultation with a Nephrologists to address your concern re: GFR.
Your Question " So, Miralax is hard on kidneys? " isn't actually what I wrote The drug info says to be used with caution by anyone with kidney disease. It's not defined. Google --keywords. "how does miralax affect the kidney" or use " miralax and kidney" or "Microabsorption of polyethylene glycol absorption and kidney" Keep using a play on those words to pull the info.
Please Stage come back and let us know what you find
sassy0 -
thanks, Sassy. Yes, I must have some further communication with my PCP. What he recommended did not work well for me. I will recheck with him about magnesium. I will let u know what I find out.
0 -
Stage 1---I would definitely ask for a Nephrologist appointment. Do some reading about GFR. If I had a change in GFR, I would not take any drug unless I had the input of my nephrologist. With all the meds that BC subjects us too, protecting the kidney's are important. Good Luck
sassy.0 -
thanks for the advice, Sassy. Gosh, seems we have to do a study ourselves to know what care we need. I would love to rely on my doctors, tho.
0 -
Stage1, sadly not all docs keep up as much as others. Without doing some of our own learning, we don't know if they are up to date or not. I learned that very early on in nursing thank goodness. I study whatever it is I need to know that's the latest in whatever. Look above I just added in the Omega research box what I learned today.
I had uncomplicated what I thought minor thyroid issues until fall of 2012. I did leave trust in my doc of 6 years. Then I started having major symptoms, that I knew were thyroid related. Endocrine doc kept saying all was normal b/c my TSH was normal. May of 3013, routine yearly f/u for BC cat scan, Goiter noted. Long story short, I now know a great deal more about thyroid, thyroid cancer, radioactive iodine, and post-thyroidectomy management. LOL more than I ever cared to know.
I knew the standard stuff about thyroid. Never felt compelled to do more searching than I knew. Odd b/c I love to do mini searches as I call them, to look at familiar subjects just to see whats new. We all make up our own life rules
One of mine was "Just when you think you know something, look at it again". The point being b/c of the seriousness of the thyroid issue. I have now concluded that orthodox medicine hasn't got a clue about how the thyroid impacts the body. This will not become general knowledge for another few years. Could be a few years, maybe as long as ten years. IT will happen though. The hours and days of searching and reading has allowed me to say this. LOL, I could go on for hours discussing this --I won't. As a result of what I now know, my Endocrine doc and I have parted ways. His depth of knowledge on one of the major organs under his specialty, is woefully lacking.
I just didn't presume my learning was absolute. After I learned all kinds of new things, I sought out the best endocrine doc. He is in the top tier of thyroid specialists in the world. He confirmed my new learning as correct, corrected some, raised more questions, smiled at some, admitted what he didn't know. He wasn't dogmatic, to me, that's the trademark of a true scientist.
We had an exchange of knowledge. That can't be done without doing a "learning selfie"(just made that up)
0 -
I admire you Sassy! I, too, have an interest in figuring this all out. I have commented more than once that too many women here, have thyroid disease and become BC patients. There has to be a link between these diseases. I, along with other women in my family have BC and thyroid disease.
0 -
Stage the concentration of my study was on Thyroid function and cancer of the thyroid. But there isn't much written on the connection between the two. BC and thyroid problems may/do have a familial connection. Since I'm past the prevention side of both, I didn't focus on that much. A few points that stayed with me re: BC & Thyroid. With the element Iodine, the thyroid uses the most iodine. The second highest tissue in the body that uses iodine, is breast tissue. Interesting?
Why breast tissue uses iodine is totally unknown. The use of iodine isotopes (diagnostic and cancer treating RAI-131) have all kinds of cautions when breast are intact i.e scans, pregnancy, and breastfeeding. Interesting? An interesting web site is "stopthethyroidmaddness.com" STTM and another web sit by a Dr Rind(use his name for the keyword, I forget the name of his web site).
Since I have to be regulated on a much higher dose of thyroid med now b/c the thyroid is gone. I realize all the things that are now starting to correct themselves at a higher dose than I was previously on. The man made parameters of TSH lab test which is considered the gold standard by orthodox endocrine docs, is not addressing the signs and symptoms(s/s's) being shown by patients. If you study the management of all the symptoms that were treated for a hundred years by porcine thyroid and patients descriptions of improvement where dose was related to symptom improvement, we have a pre mid 70's approach and a post mid 70's approach. The change was the introduction of TSH as a measurement of thyroid function.
If I'm having such significant changes on a higher/different level that I can observe, what was happening within my body that I can't observe?
How much affect did thyroid have on breasts? Was my diet lacking in iodine? Was iodine the reason? How are they genetically linked? Is their a link? LOL, the research raised more questions per usual than it answered
, but it certainly answered allot.I know this is long, BUT many of these s/s's were present for a very long time, even decades for fatigue, constipation, pain, sinus, smell some others. Certainly not improved with the small 25 mcg dose of thyroid med I was put on in 2007. The stark changes that occurred before the goiter dx. Then all that happened after and until the thyroid med after treatment. Plus, the improvements since increased dose from 125mcg to 137mcg. Now the switch to porcine thyroid. I now believe, TSH measured nothing for me. Remember TSH normal value is a man made level determined by a scientific study. I would bore you with how often in my nursing lifetime beginning in 1969, that science has change an accepted parameter. The joke with us that were teaching at one point was "What are we teaching this year".
How does thyroid relate to breast and Breast Cancer? The story hasn't been written yet.
0 -
Okay, I'm done pontificating for the day LOL. Hope you can sift through the soap boxing. Going to go play. BIRD YOOHOOO All things in moderation.
0 -
Sassy, thank you for sharing... I like your last sentences on you post..."the story hasn't been written yet"....just sayin, if doctors just admitted what is not known yet, we would be much more content and not searching for answers that are not there. It's like I must have asked six drs, including a RO, how much radiation is too much radiation?....no one told me the answer until I asked my PCP for the second time..."we just don't know". I like that answer better than no answer. Well, we are far from topic...One question Sassy, with all this studying, do you have any FUN??? LOL
0 -
Stage1, The studying is the fun
LOL-------------depends though if I'm the focus or the searcher for some on else. If I'm the focus , it kind of pisses me off if I think I should have done a more in-depth study i.e thyroid. I took a thyroid pill. Depended on an Endocrinologist. I didn't do a search for myself that I would have done for someone else. But that isn't true for all circumstances related to me. JUST happened I did it with the Endocrin guy. Bummer. Way bummer..............what I have lost b/c I believed in him.............I will never knowAND if I'm right that orthodox medicine has no clue about what thyroid management entails b/c of a man made lab value that doesn't relate to humans.. I'm not going to be happy.
0 -
Hi , haven't been in the mood to research, maybe on the week end.0 -
Nope still not interested inresearching on Omega'sBut for those needing constipation help, please, scan from the beginning. Members have offered so much help
Edit April 14th 2015: I was searching for something else and came across this web page. Dr. Mercola Takes a very confusing subject and does well at defining the Omega's. However, it will take some study to solidly understand the information.
0 -
Me either, Sassy. It's been a sad week. My daughter's friend lost her mom suddenly to bowel impaction. They were unable to save her with surgery, as the intestine had torn and she was septic. She passed during the surgery. I am so devastated for this family.I had my monthly treatment Monday, but didn't get to see my onc...just the FNP. I have never seen her before, and she wasn't good at answering my questions regarding Miralax and alternatives. She told me just to keep taking it and talk it over next month with my onc. OK. I can do that. I still would like to do some research, not just for myself, but for all of us that face the possible complications of constipation vs. it's prevention.
I usually don't feel like much for about a week after treatment, so I will try to focus next week and see what I can find.
Gentle hugs to all, Birdlady
0 -
Sassy - good advice about seeing a Nephrologist for low GFR. Ironically, low numbers can be temporary and not that serious, and easily reversible - OR - a sign of more serious kidney damage. Better to understand WHY the GFR is low. Mine was low due to diuretics, my sister's is low due to dehydration, and DH's is low due to kidney disease.
RE Constipation.... another perspective...
~ ~ ~
I was having my weekly acupuncture treatment on
Monday, and my Acupuncturist (graduated from Eastern Medical School in China,
licensed Acupuncture and Traditional Chinese Medicine practioner, and PhD) was
telling me about a patient she was treating for constipation.She said that each organ in the body has a time of
day where the energy is the strongest, like the tides of the ocean.The high chi/energy period for the large intestine
is from 5 a.m. to 7 a.m. This is the optimum time to move the bowels.She told her patient to get up each morning between
5 and 7, and drink two full glasses of water, either hot, or at room
temperature. She said she would need his participation in order for the
acupuncture to work. (I think he will have his second treatment this week.)I’ve been getting acupuncture for nine months now…. It
was very helpful with joint pain from the AIs, and lower back pain, and now is
resolving the balance issues I have from a head injury.My DH gets acupuncture for his incurable kidney
disease. We don’t expect the acupuncture to cure all that ails us, but we are
committed to “Total Body Health”… in other words, we are doing everything we
can to take the burden off certain organs and body parts, so that they are not
under so much strain. (OT - His kidney function has improved since starting
acupuncture!)Here is a chart of the peak energy times for organs
in the body.http://newdirectionnaturalmedicine.com/chinese-organ-clock/
From the site:
“It is recommended to drink a glass
of warm lemon juice to stimulate the bowels, get the lymph system moving and to
remove toxins from the night’s cleansing.” I think they mean during the peak energy times.May be worth a try…. (note: I do not take Chinese herbs.)
0 -
Hi Blessings, So true about the bowel evacuation. There's a name for the reflex, but I forget it. The wave begins in the muscular portion of the esophagus, the wave goes to the end of the colon with pressure at the rectum. Used to teach patients the same thing as your Acupuncturist. But would suggest that what ever their awaking time was, if they had to leave for work consider waking up a half hour to an hour earlier. Do the water and lemon, then when they felt the signal--GO. Too many people delay the signal and then have trouble going. It does naturally occur in the am, but can be retrained to different times.In nursing school, had a visiting instructor who had a colostomy. Her colon was so well trained, she didn't wear a bag. That's belief
0 -
Oh Bird, how awful for your friends Mom and the family. The hard part is that bowel impaction is very painful and before rupture is very intense. I wrote some stuff on Diverticulosis on page one and then a smattering of posts throughout these pages as it applies to colon problems. With the elderly(actually any age) that can't communicate b/c of altered mentally status, tracking BM's is very important for the reason you describe. In an earlier post I described, if I had patient with new onset behavior change, part of the assessment was determining if they were impacted or not. Condolences to the family.As far as the research here, what's nice is..... if we feel like doing it, we do, if we don't, we don't
Take care0 -
Regretfully, need to add another reason for rectal itch. Eczema. There are several conditions that affect the vulva and rectal area, that fall under the classification of Eczema. Lichen Planus, Lichen dermatitis, Lichen sclerosus and more. Psoriasis can be a culprit too. They present much like a yeast infection. But when biopsied a definitive dx is made. The treatment is topical steroid. I have found bag balm is very good adjunct. There are multiple sources for info on the internet. I'm linking to the Harvard one b/c I liked it the best, but there are many sources.Some predisposing factors: Hypothyroid, autoimmune dysfunction, allergic response, adrenal stress(right up our alley), history of frequent antibiotics, IBD, reduced immune state from chemo, and more. When Jill and I were posting here this wasn't on my radar. Since RAI-131 treatment for Thyroid cancer, trust me it's been on my radar. It's incredibly uncomfortable, but I had a clue right away. I had the DX of Lichen sclerosus from last summer. It was an incidental finding when I asked Derm doc to do a vulva exam. It wasn't bothering me then, but after Rai whew. Wish we'd known about it when Jill was here. Never know, may have been the source of her problem.
Some things I learned. Not all Dermatologist Docs are used to doing vulva/rectal exams. Seems like it should be part of a head-to-toe exam. It may or may not be depending on the Derm. After my Derm doc scared the bejebbers out of me with yet another cancer scare, she tells me it's not her usual modis operandi and suggested going to a GYN doc. Sure wish she'd said that up front. Thyroid and vulva bx's were coming back on the same day. She didn't relate that it wasn't her usual thing, until we were going over the results.
When I first searched it after initial problem after Rai, not much was coming up. Now oodles. A best approach for dx is a GYN doc that has experience. Ask prior to making an appointment. If it isn't controlled, seek out a Vulva clinic. See info in the Harvard link. Asking that a dermpatholigist read the biopsy is within reason. It is mentioned in multiple sources.
Hope this helps Sassy
0 -
Oh my goodness Sassy. Thanks for the new information. I'm seeing my OB/Gyn next month & I'll surely have a discussion with her.
0 -
Hi MT, rather meet at Pinktober than here LOL. I reposted the above from Rectal Issue thread. I have a link in the topic box to the RI thread. But figured it was appropriate here too, not everyone swings over to the rectal issues thread.One in thirty women are dx'd with the problem. We fit the profile so much b/c of the stress related events. I'm just getting real tired of having all this weird stuff, that most never hear of, yet is a bigger problem than we know. When I first searched the computer didn't pull much. Same search terms as later, but the computer gremlins got working. Now lots of info.
But when I first looked at it, it was only pulling forums where women were searching for answers. Many went for years without a proper dx. No DX, no proper treatment.
Nice to see you
0 -
Bump0 -
bump0 -
bump0 -
Bump
0 -
I have read and reread this topic when in my time of need. So far it has never failed me, I can always find something that works. Sas, thanks for starting this thread. Sending good thoughts
0 -
I'm in agreement. Wonderful thread. I keep meaning to bump if it gets too far down the list of my favorites. I'll have to do better.
I actually took Colace for a full year. Once I got past the Big D during a year of chemos, of course I swung the other way. I finally stopped Colace in December. I seem to be OK if I remember to eat a green salad every day, or a plate of raw cauliflower, radishes, carrots & whatever. Of course I stopped all the rest of my supplements too while preparing for a bunch of tests. Wonder what will happen when I start all those back up again?
Thanks SAS.
0 -
Gentianviolet & Minus two------Thanks
What impressed me with members suggestions when I did a look at all suggestions about page 8(?). Was that the the apricots and prunes ---stewed were the most successful. But just as you say Gentian when there's a problem and things aren't working, you went back and took another look. A phrase I coined in the 70's was "Just when you think you know something, it's good to go back and take another look"When a thread is technical, it reaches a "What else can you say point". To often I think newbies, may not realize reading from the beginning on technical threads has a wealth of info. We" bump", and they think it's a dead thread..
When I did this thread in the beginning, BCO didn't have a Constipation thread. They do now for some while, but they are proper, no puns. We, bless us, are irreverent and can make jokes.
Here's to a better go
0 -
Venetian & MinusTwo. There are puns here that I would swear were stolen by the TP industry.this is one------:) Here's to a better go
0 -
Genetian----------Pm me if you have need of help. I'm a retired nurse with 40 years of experience. I bridge the old and new and if I don't know I research i.e about Senna............read till my eyes turned brown.
0 -
SAS - thanks for my Saturday laughs!!!
I agree - There are several threads I started back & read from the beginning and still go back to when I can't remember or want to try something different. This one is a real keeper.
0 -
Sas - this has been in my favorites since you started it. Although at that time fiber pills were what worked, but that only lasted for a year or two. Currently the 1 cup applesauce, 1/2 cup prune juice mixed with Go Raw original granola (my personal granola choice because it has 6 g of fiber) has been the perfect answer. If or when that no longer works I will start all over on page one of the constipation thread and try a new one. I will send you a PM; I do have a few questions. LOL at your comment of your eyes turning brown. Thanks
0 -
I need some help how to control the bleeding from C, I have hemarroids, but the bleeding seems to be inside the passage. I 've been taking colace, activia yogurt and papayas. Should I take more meds, I am scared to turn it into D. Any suggestions appreciated.
0 -
Blueflowers --sorry you have such a problem. NOT comfortable, pain in the patutty.
There are several things that need to be addressed with your post
1. Has a GI(gastrointestinal doc) evaluated you? They are the most qualified. If there are hemorrhoids, that means there is enough pressure within the lower colon to cause diverticulosis. The GI doc would recommend a colonoscopy. To rule out diverticulosis or polyps which can also bleed. I wrote extensively on diverticulosis and diverticulitis on page one.
2. In your case, I suggest reading the entire thread, jot down some notes to talk with GI doc. I'm pretty positive you have already read the entire thread, but now your specific goal is to identify those that are bleeding or have a bleeding history. In the presence of bleeding a high fiber is not good. Reason too much pressure on an area that's weak for what ever reason. This could lead to rupture. You would want to be on a low residue diet until you get direct orders from the GI doc.
3. I would like to give you a suggestion(s), but until I hear that the GI doc has given you the go ahead to use high fiber, miralax, you are at risk for problems.
4. In the short haul until you see your GI doc. Are you taking any drugs that cause constipation? How often do you take the Colace? Papaya, there was something that I wrote a few pages back. Something I hesitated about papaya. See if you can find it
How much water? Did you try the warm water with lemon in early am? Have you had C all you life? Did it start with BC tx.? Blueflowers, you may post back that the whole GI workup has been done. If so what did the doc say to do? I'll keep an eye out sassy
0 -
Thanks sas-schatzi…,
I just saw my pcp for another issue, and talked to her regarding the C - she advised me to have lots of fluids, metamucil or something and colace for now, I am in the middle of my chemo treatment. Once this is done I will see a GI.I have gone through this thread but have to read it again with more attention.
I had the hemorrhoids before but didn't bleed regularly, now with chemo and everything I have to deal with so much stuff.
0 -
Blue, I was afraid you might say the MO and or PCP advised something. Please, get a GI appointment asap. Bleeding during chemo can get you into a mess. C the same. Because you had a history of C with hemorrhoids, doesn't mean these are hemorrhoids.
Don't do fiber. Don't do Miralax with open bleeding areas, questionable absorption through the tissue.
Water you need to flush out chemo --a two for one treatment.
If you can set a morning waking time the same time every morning. Take 2-3 warm glasses of water with lemon. If coffee is a trigger , do that too. Stewed prunes etc. Then wait. Pull out all the stops on getting this under control.
In the early morning there is a natural evacuation wave. If your not awake for it, it goes unheeded. It's a pain to get up early, but this is hard wired into the body from thousands and thousands of years. Mine was always 5 minutes before leaving the house for work. I think my trigger was thinking about working LOL.
The GI doc will give you the most definitive advise. Plus, if you get into anything serious, you have him on board and knowledgeable about your condition.
Ask around about the GI doc. Just as with all docs, reputation is everything. It may work to get you in faster by having the MO or PCP get the referral done. Sometimes it works.
0 -
Blue, your PCP's advise of 'lots of fluids, metamucil or something and colace for now". If that came from the GI doc, I'd be comfortable. Don't want to sound like chicken little, but constipation isn't simple. Wrong treatment can have disasterous results. For example, high fiber in the presence of an acute diverticulitis episode can cause a rupture of the colon and need of a colostomy. Constipation does not have a one size fits all approach. Believe it or not it can be very complicated.Blue at the top of this page Blessings describes the morning period I'm referring too
0 -
Blueflowers - hope you'll listen to Sassy. She's seen it all. A GI doc is critical.
If you post what city or state you are in maybe someone can come up with a GI recommendation.
In the mean time, I think you'll be OK asking for an extra liter of fluid at each infusion. SAS? That made a lot of difference for me.
0 -
Thanks SAS and MinusTwo,
I have another appt with my oncologist in two days, I am going to ask for a referal to a GI. I am in Los Angeles, South Bay, but with my hmo insurance going to any doctor is not an option. I am reading this thread meticulously and going to on top of this now. Thanks ladies for your advice.
0 -
Minus Two
, Great suggestion on the extra IV fluids. If there is no cardiovascular reason for not using it. It may help. OR Going the next day. May help. Or/and when she goes in for lab check and neulasta/neupogen. I know DH frequently had to get fluids. Hmmm. may be a series over the post chemo days.You bring back a memory. Dh besides having to get fluids was always low on Magnesium. No one could answer why at the time. So much was going on the thought fell away. Raises questions. Will try to take a look tomorrow.
0 -
Hi Sas - It is not that I don't have the current problem of constipation somewhat under control. Once I started the fiber/applesauce/prune juice combo both morning and night, things began to move at a normal pace. But what has seemed to happen in the past is that I find something that works and within a year more or less, it seems to become ineffective.
I only had problems on occasion usually related to calcium pills (used several thread suggestions) and it would seem to work. However once I found I had to wear a pessary (my choice of no surgery) solving the problem long term became more urgent. The pessary is the correct size (have gone through 3 different sizes and types).
I guess what I am asking is if one becomes immune to their choice of laxatives? Is it normal to have to change up choices to keeps the body's rhythm? If so then I want to start looking into plan B now so that I don't go through days of the pessary making life miserable.
Again thanks for taking the time to read this and a very big thank you for what has turned out to be one of the most helpful threads at BCO for me. I value your commitment and research.
Edited to add Sassy's response to my PM, with her permission.
"Barbara, Yes it's normal for the body to get used to things. Having a plan B is good. AND a plan C LOL. Plan C for me is magnesium Citrate. But then I have the squirts for a couple of days. Barb think about putting this(your question & my answer) on the board. Never know when someone reading has this identical problem. Plus, the concept of Plan A, B, and C has been mentioned. Always good to hear more than one member doing similar things."
0 -
In terms of a "plan B," I'd like to recommend a product that I have been using recently. Not sure if it is good for long term use, but it really does a good job in the short term.
0 -
Gentian Thanks for reposting. Just when it seems someone doesn't have the same problem, someone does.
BTW I know you know Gentian Violet is an old, but still used drug treatment. LOL or is it a flower? Why did you pick it as an avatar? I'm me and my dog (long story). BlueF. Great on getting the referral. Ask the MO if he has a personal favorite for excellence in the group approved. All medical professionals are cautioned about recommending an individual b/c if something goes wrong then there is a preceived liability question. Most practioners will give you 3 choices. All else fails in the questioning, ask who they go to OR who they would send there mother too?
I thought about you allot in the last couple of days. I thought I should give you more reasons re: my concern.
With a break of the lining of the wall anywhere in the colon, there is a potential for bacteria to enter the body through that break. We generally refer to them as micro-tears. A break in the tissue somewhere in the colon is evidenced by red blood. You know you have a history of Hemorrhoids. Hemorrhoids occur because of pressure created in the rectal vault( above anus) by dry stool that is difficult to pass. This pressure causes the vessels in that area to dilate and sometimes protrude through the anus. Can be very uncomfortable. They also can bleed minimally, or profusely depending on how dilated they are, and how much they tear as hard stool passes by.
In the presence of chemo drugs that lower immunity, these breaks can set us up for a sepsis problem. Sepsis is a infection in the blood stream. The normal immune system can keep this in check. The compromised system may not.. So while bleeding hemorrhoids are common in a portion of the adult population. They are more serious in the immuno-comprimised population.
If hemorrhoids are present, an important rule out (R/O) is whether there are diverticula in the lower colon. The lower colon is the portion of the large colon that includes the left side of the large colon and the sigmoid colon. The higher the problem the danger of complications occur. Rarely Diverticula can occur in other regions of the colon. See page 1 for a full discussion for the new reader.
In a normal patient i.e non immunocomprimised, an enema or suppository is used to soften the stool in the rectal vault. The rectal vault is that portion of the far end of the colon right before the anus. The use of suppositories and enemas ( Fleets/ Mineral oil etc) Is contraindicated( laymen's words---a no no) in the immune-comprimised . The reason is the insertion of either can lead to micro-tears and resultant systemic infection.
Does this make my concerns re: your hemorrhoids clearer?
0 -
Just for some relief of constipation directly to the bizarre funhttps://www.youtube.com/watch?v=8cNRkQJcnUk
0 -
And now to share my lovely journey with constipation. I suffered with it for years and tried everything. My doctors prescribed everything you can imagine and nothing worked. I wish I had remembered black strap molasses because my grandmother gave it to us for years and it worked. But, well you know cancer brain. I began to get sicker and sicker and kept having fever. Went back to the doctors and was told I had diverticulitis and given antibiotics and sent home. Then, while my husband was on a camping trip, something told me to get my butt to the ER. My intestines had ruptured and I was septic. I was in the hospital for 19 days and had 2 1/2 feet of my intestines removed and a colostomy. I wasn't supposed to come out except in a hearse. My family had been called in and the staff told them to prepare for the worst. I didn't know any of this because I was in Demerol Land. Needless to say, I survived and had the colostomy removed 7 months later. My chest and abdomen now look like a Frankenstein experiment gone horribly wrong. But I'm alive. I'm not making light of constipation. It can kill you! If you are having any GI problems, don't ignore them or hope they'll get better. Please don't stop until you've gotten the treatment you need. This was the worst nightmare of my life. Yeah, even worse than BC, but God got me through it and I thank Him everyday. Don't just depend on doctors, do your own research. This thread will give you tons of information and Sas knows of which she speaks! Happy Pooping, Everyone!
0 -
Constipation runs in my family. Also I am taking an antidepressant that is working but causes dryness throughout my respiratory and intestinal systems. I know this is controversial, but my GI doc has had doing Miralax daily in addition to high fiber diet and plenty of water. It doesn't cure the constipation problems but really helps me have a regular bowel movement like normal people about every other day.
Peggy
0 -
Hi Sas - I chose gentianviolet to remind me of my mother (a nurse) who used to paint my brother and me with gentian whenever we needed a scrap or cut tended. Loved the way it remained for days, like a tattoo in the 1940's and weirdly iridescent in some light. I was even told to use it on the tongue of my third baby because he developed thrush. When my boys were growing up I painted tattoos of bunnies etc. (occasionally) on their arms with gentian and I have a bottle in my medicine cabinet now. I do believe it is an herb. Curiosity has me wondering about the long story of your avatar.
flavia - thanks for the suggestion, I have bookmarked the Amazon product. Previously my experience has been that mag. oxide did not work for me but mag. citrate did. But the product sounds interesting enough to save it for plan B.
0 -
I (hopefully) can help with this. Before I was diagnosed (last week), I had suffered from chronic constipation my entire life, off and on. Before a recent two week trip (we all know how travel impacts our bowels), I had suffered long enough. I seriously wanted to die. I finally saw a doctor. He prescribed a somewhat new to the market medication called Linzess. I was willing to try anything at this point. I had mixed success with it and finally settled on the following: 1 290 pill per day + 1 dose of miralax. Works like a charm. This medication is not a laxative so it doesn't tear up your bowels like a laxative. Also, he said you could take miralax up to 4x a day and it will not hurt you at all. This, too, is not traditional laxative. There is also a 145 pill. This combination has literally changed my life. But in reading the reviews on a constipation message board, it doesn't work for many people and I think it is because they are not taking any miralax along with it. If i miss the miralax dose, the linzess doesn't work. If this helps one person, I will be so happy. I don't know about combining this med with any cancer drugs yet since I am new here.
0 -
HI Trvler Thanks Here's the monograph in full
http://www.linzess.com/?WT.srch=1&guid=1SO8FSmX&reference_ID=231&MTD=2&PDS=Y
What is LINZESS?
LINZESS® (linaclotide) is a prescription medication used in adults to treat irritable bowel syndrome with constipation (IBS-C) and chronic idiopathic constipation (CIC). “Idiopathic” means the cause of the constipation is unknown. It is not known if LINZESS is safe and effective in children.
IMPORTANT RISK INFORMATION
- Do not give LINZESS to children who are under 6 years of age. It may harm them.
- You should not give LINZESS to children 6 to 17 years of age. It may harm them.
- Do not take LINZESS if a doctor has told you that you have a bowel blockage (intestinal obstruction).
Before you take LINZESS, tell your doctor:
- If you have any other medical conditions.
- If you are pregnant or plan to become pregnant. It is not known if LINZESS will harm your unborn baby.
- If you are breastfeeding or plan to breastfeed. It is not known if LINZESS passes into your breast milk.
- About all the medicines you take, including prescription and non-prescription medicines, vitamins, and herbal supplements.
Side Effects
LINZESS can cause serious side effects, including diarrhea, the most common side effect, which can sometimes be severe. Diarrhea often begins within the first 2 weeks of LINZESS treatment. Stop taking LINZESS and call your doctor right away if you get severe diarrhea during treatment with LINZESS.
Other common side effects of LINZESS include gas, stomach-area (abdominal) pain, swelling, or a feeling of fullness or pressure in your abdomen (distension). Tell your doctor if you have any side effect that bothers you or that does not go away. These are not all the possible side effects of LINZESS. For more information, ask your doctor or pharmacist.
In addition, call your doctor or go to the nearest hospital emergency room right away if you develop unusual or severe stomach-area (abdominal) pain, especially if you also have bright red, bloody stools or black stools that look like tar.
How to Take LINZESS
Take LINZESS exactly as your doctor tells you to take it. Take LINZESS one time each day on an empty stomach, at least 30 minutes before your first meal of the day. Swallow LINZESS capsules whole. Do not break or chew the capsules. If you miss a dose, skip the missed dose. Just take the next dose at your regular time. Do not take 2 doses at the same time.
Storing LINZESS
Store LINZESS at room temperature (68°F to 77°F). It is important to keep LINZESS in the bottle it comes in. Keep the LINZESS bottle tightly closed, in a dry place, and keep the desiccant (the drying agent) in the bottle. Keep LINZESS out of the reach of children.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.FDA.gov/medwatch or call 1‑800‑FDA‑1088.
Please also see Medication Guide within full Prescribing Information.
Ask your doctor about LINZESS. For more information, call 1‑800‑LINZESS.
0 -
Hi, Trvler, The only cautionary I have is that it's a new medication. There are two concepts about medications that should be kept in mind.
Before market: This is the time period that a drug is in the clinical trials completion phase. It then goes through the approval process by the FDA. The way a drug acts is then written into the monograph as are the other particulars. They all follow the same sequence.
After Market: this is the time after a drug is approved by the FDA. In this time period reports to the FDA may identify problems with the drug that weren't identified in the clinical trials. A drug may be withdrawn from the marketplace if too many serious problems are found with the drug.
I bring this up b/c new drugs are most likely to show after market problems within the first couple of years. All drugs have consequences.
0 -
sas - I agree. I hate taking ANY medication but I was so miserable at the point I started taking it, I didn't care any more.
0 -
Did any of you know multiple states have 'access to private bathroom' laws, allowing those with medical conditions who need a bathroom ASAP access to the 'employee only' bathroom. I had NO idea, but would have loved to know that while going through chemo. Here is a link to a map. If your state is on it, then search to see what the requirements are. Mine, Maryland, has a card your doctor has to sign. http://www.usatoday.com/story/news/nation/2015/01/12/restroom-access-law/21652147/
0 -
Trvler , yes when you got to go and nothings working, you need to do what you can do. Good Luck. Thanks for alerting us to this new drugknw--- thanks " nice to know info"
0 -
Bump
0 -
We've talked about man made drugs, natural God given drugs, plans a&b&c. Now some how, we need to bring everything together. Not sure what the final outcome will be b/c it's a large question. If it were easy none of us would be here. It will evolve. Hope I can do the task justice and that it will help.
These thoughts were started by a member. Actually a couple here and elsewhere. Constipation is one problem of the larger issue of colon problems caused by an even larger issue of cancer. How do we solve the one problem of constipation when the overriding issue is so controlling b/c of the treatments?
We need tools to guide us. I'll try and put together what I can.
0 -
When we contact a new doc for a problem, they take a history. In a well taken history, it's as if the physician is putting together a story. That story is done in a consistent sequence of questions. The sequence done well, assures that all pieces of the story are included and that nothing is missed. Once the history is complete the doc will develop an Impression(s). of the problem. It's not defined as a diagnosis yet b/c the doc has to gather the data to support what they believe to be the problem.
The data is obtained first from the physical exam. From the physical exam the doc determines if further diagnostic testing is needed i.e. labs, scans etc. Once the data is completely gathered then the doc puts it all together by comparing the patients information from the history to what the physical information is saying. When I use the word "saying" in this application, it's as if the information is talking to us and we are talking back.
I'll assume you have seen "House". When Dr. House starts to evaluate a patients problem he writes all the possibilities of the patients problem on a reverse white board. Then he starts to talk about why each is or isn't a possibility. He crosses conditions/diseases off the list based on information elicited from the patient or the tests. This process is called Ruling Out(R/O). Once all the things that aren't possible are ruled out, what is left is/are the possible. Then the possibles are given a last look for completeness of meeting all the historically expected signs and symptoms that meet a condition/diseases. The physical evidence goes through the same last look for completeness. Once this is done then the doc will state a diagnosis. A diagnosis is not entered into lightly b/c from the point of committing to a diagnosis, all that is done from that point on is directed at correcting, stabilizing, curing the condition or disease.
If I have defined this for you well, then you will understand that history, physical examination, diagnostic testing must be complete in order to do the job. If this is not done thoroughly, key information may be missed. One small piece of info may mean the difference.
I'm going to make a form that you can do a history, physical, and diagnostic history. Then a treatment plan form. This will be your tool to help you organize the information for your problem. With this approach of organizing your information, you will be able to communicate better with your doc.
Defintions: Chief Complaint (CC) what the patient states is the problem. All contacts are started with this phrase
Pertinent Past Medical History (PPMH): eliciting facts of the past that are pertinent to the present problem. Also, stated as past medical History (PMH).
History of present Illness (HPI) eliciting the facts of the present Chief Complaint.
Review of Systems: Physical exam(PE) of the body head to toe by evaluating the seven systems of the body
Impressions: development of a list of possibilities of conditions or disease based on the History & PE.
Plan: determining test necessary to confirm Impressions.
Record: tracking plan
Miscellaneous abbreviations :Signs and symptoms (S/S or s/s) A sign is something you can see i.e. red skin, rash, irregular pulse. A symptom is something you feel i.e. itch, heart palpitation.
Will add info here as the forms develop
0 -
Chief Complaint:_______________________
History of present Illness:
1. Onset of CC Date(actual or approximate)__________________________________________________
2. Location of pain associated with CC_________________________________________________________________
3. Radiation of pain assoc.with CC:does it go anywhere away from the center of pain_______________________________
4. Quality: Descriptive adjective to describe discomfort i.e thumping, searing, cramping, gripping, burning, urgency, swelling
_________________________________________________________________________________________________
5. Quantity: Describe how often _____________________________________________________________________
6. Intensity: Use pain scale__________________________________________________________________________
7. Aggravation: What makes it worse?________________________________________________________________
8. Alleviation: What makes it better?__________________________________________________________________
9. Medications used to modify s/s: Drug &dose, frequency--daily, every other day, once a week etc _______________
_______________________________________________________________________________________________
_______________________________________________________________________________________________
10.Additional information: Allergies to drugs--what happened?___________________________________
___________________________________________________________________________________________
Allergies to food--what happened?_________________________________________________________________
_____________________________________________________________________________________
Notes:___________________________________________________________________________________________
________________________________________________________________________________________________
Pertinent Past medical History:
Has this condition ever occurred in the past?_________________________________________________
_______________________________________________________________________________________________
What was done to resolve the issue.__________________________________________________________________
_______________________________________________________________________________________________
0 -
Physical Exam: Thinking about how to use this here
under thought
0 -
Date Test Diagnosis Plan Outcome
___________________________________________________________________________________________
___________________________________________________________________________________________
__________________________________________________________________________________________
___________________________________________________________________________________________
_____________________________________________________________________________________________
_____________________________________________________________________________________________
___________________________________________________________________________________________
______________________________________________________________________________________________
_____________________________________________________________________________________________
_______________________________________________________________________________________________
______________________________________________________________________________________________
_____________________________________________________________________________________________
____________________________________________________________________________________________
____________________________________________________________________________________________
_____________________________________________________________________________________________
0 -
Saved for pain scale0 -
0 -
Bump
0 -
C-DIFFICLE
I was researching something else and came across this article on C-DiF published in 2014. It encompasses all the latest info on C-Diff. I haven't read the whole thing, but I figured I'd put it here so as not to lose it.Medscape is an Evidence Based site. You do not have to be a medical/nursing type to register. It's free too
http://www.medscape.com/viewarticle/820829
0 -
Sassy, what a good laugh I got out of the above, the dogs taking about the movie Constipation.
Thanks for the laugh. I have read this thread from start to finish, since the C is my companion, has been for most of my life, tried the remedies listed in diff. posts, and finally lucked out, we are all so different and what works for one does not work for someone else. I now use Cascara Sagrada and LBS II every other day, just one capsule of each, and have finally found the magic bullet(s) for me.
I also eat a serving of prunes every morning, 4-5 only. Hoping it may help someone else.
dsgirl
0 -
SAS - I've been trying to determine which or how many of my vitamin supplements are causing constipation. So far I've found D-3 and Calcium. I am taking calcium citrate rather than carbonate as I see recommended, but am taking double the recommended dose on instructions from my GYN. Chemo pretty much threw me back into serious osteopenia. We're trying to avoid either biosphonphonates or infusions for the bones.
Any other vitamin supplements that you know of? Looks like if I eat 2 prunes every other day and take colace every 3 days I can manage, but what a pain.
0 -
Oh ah, ran into something else today that might help. But I was crossing topics....I'll see if I can figure it out. tomorrow.
BTW HI
Lost in shit, oops --poop.
0 -
Minustwo. I found a Web MD page the referenced constipation
http://www.webmd.com/drugs/2/drug-6152/cholecalciferol-vitamin-d3-oral/details#side-effects
"Side Effects: Vitamin D at normal doses usually has no side effects. If you have any unusual effects, contact your doctor or pharmacist promptly.
If your doctor has directed you to take this medication, remember that he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.
Too much vitamin D can cause harmful high calcium levels. Tell your doctor right away if any of these signs of high vitamin D/calcium levels occur: nausea/vomiting, constipation, loss of appetite, increased thirst, increased urination, mental/mood changes, unusual tiredness."
\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\
The problem I have with what they say IS they don't define WHY. They don't define at what doses that would reasonably lead to problems. The statement is flat.
I will bring some info related to vitamin D that I gathered on another thread. The recommended amount of Vitamin D is changing. DRASTICALLY. So, drastically, it's almost scary that it could be so different. I was able to locate a researcher from Creighton University. Dr Heaney has made it his life's work. Put links to his web page and read as much as possible that he has written. His writings are written as if our grandfather's were trying to teach us something. I love writers like this.
It may seem off the topic of Constipation, but it all goes together in the end.
With calcium there was a particular reference I saw yesterday. It explained all the different calcium products. I will bring that back when I find it.
0 -
Decided to link to the Vitamin D info on the other thread. Please, take time to read my posts re vitamin d
https://community.breastcancer.org/forum/102/topic/826526?page=4#idx_99
\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\
This is an article related to women taking Vita D and Calcium supplements. God bless you if you can plow through the whole thing. Page 5 has the conclusion which I am putting here, below the link to the entire article
http://www.medscape.com/viewarticle/834982
"Conclusions(Pg5)
In summary, episodes of hypercalcemia and hypercalciuria are common events with calcium and vitamin D supplementation; they are unrelated to vitamin D dose or serum 25(OH)D level. Whether they are caused by calcium alone or by the combination of calcium with vitamin D remains uncertain. Further investigation is needed to better define individuals who are likely to develop hypercalciuria and hypercalcemia, but a high baseline 24-hour urine calcium level is one predictor of hypercalciuria. Before the start of calcium and vitamin D supplementation, it is advisable to measure blood and urine calcium levels and to perform a follow-up measurement within 3 months."
0 -
Found this link re: Omega3 & Omega6 essential Fatty acids. There was a previous discussion re: these esstential fatty acids-EFA's, and overall health.
This is a good description of EFA's I will relook at the pervious discussion and see how it compares to the info from Dr. Mercola's page.
The study of EFA's is just that---study. It is not a subject to read once and think you are going to know it.
0 -
Ran out of brain cells---need to go play
The question: What is the difference between the OTC calcium products? What I'm trying to find is list of names? QWhy use one product over another? Backed up by Evidenced Based Research.
If someone finds this info -----please post
0 -
Whew SAS - great batch of knowledge. Your Dr. Heaney find is great. Thanks.
That said, my gyn & I 'cured' my osteopenia before BC with 4 Citracal w/D a day (split dosage) and an extra 1000IU Vit D per day, along with my regular Centrum Silver. That totals 1480 mg Calcuim Citrate and 2500 IU Vit D. Also lots of weight bearing exercise. Before BC I had scaled down to 2 Citracal a day since bones were back to normal. Chemo pretty much destroyed my hip bone readings on the DEXA scan so I'm back to 4 per day again. Unfortunately not back to the exercise.
I'm also taking 2 Omega-3 (natural wild Alaskan Salmon Oil) 1000 mg each, which I had to quit when I started chemo and have started back again - but I don't think that is causing the constipation. Nor the B-6 & B-12 that the neurologist recommended for neuropathy.
Calcium citrate is supposed to be easier on your gut than calcium carbonate. I'll look for the reference later this week.
0 -
MT glad you enjoyed Dr. Heaney. Take a shot. Email Dr. Heaney and run the scenario by him. His main work was osteopenia/osteoporosisalong with Vita D. Include the constipation problem. It'd be great to hear what his take on it is. Include your age at time of dexa's and your T scores. Without age and T score, he won't be able to give an opinion.
Isn't it odd, all we've been through and the exercise that we have control over, is so easy to procrastinate on. I do it in spurts a few weeks at a time. Get to feeling great and fall off to nothing, till some body part starts screaming at me to do something.
I think his email was rjheaney@creighton.edu. Yup, I guessed right.
What I wish we could find out definitively---- is the exclusion of fish oil a Evidence Based conclusion or just theory. With everything that OMEGA3 does in the body, excluding it in the most critical time seems wrong.
Well, have fun with contacting Heaney
0 -
Thanks for the email SAS. I'll also ask about the infusion my MO recommended for bones which I skipped. No way I wanted more infusions this year. Major extended family doings this weekend for a the first nephew's christening, but I'll put it on my list for next week.
0 -
Cool MT let us know what he says
Ask him what type of oral calcium is the best. That'll lighten up the research
0 -
0 -
bump0 -
Ran across this. Worth a look about poo and normal colors etc.0 -
Topic appropriate I thought
0 -
SAS - what a hoot (no pun intended). I think the picture chart is a riot.
0 -
MT-------------well I did say in the topic box all puns were welcome LOL Chevy actually posted it first, I tod her I had to post it here.
MT have you ever looked at Warm & Fuzzies? Fun place. If you've never been there, you could go for a month and not read all the funnies.. I'll bring the link to the current page. Here you gooooooooooo
https://community.breastcancer.org/forum/102/topic/818346?page=454#idx_13616
0 -
Was that a pun? hahahahah--------------ewhhhh sick mind here
0 -
SAS - thanks for the link, and the insomnia link too. I'm trying really hard to get my sleep schedule back to what normal people do (sigh) so I try to shut down the computer at night, but I'll lurk for awhile.
0 -
Hi everyone! I was referred to this thread because I just had a colonoscopy and was told that I have diverticulosis. Never heard of it until the other day. Since my cancer treatment, I have a problem going to the washroom. It's worse when I travel because I never go until I'm on my way home and can hardly make it. I've been reading the posts and there are some interesting ones. Just saw the infectious disease doctor today for another issue and he told me metamucil. I've drank 2 glasses - one yesterday and one today and notts. Oh, I also had 3 prunes. I'm hoping this works soon as I feel like I'm going to explode. I was truly hoping that this would stop once I stop my cancer meds in Feb. 2016. But sad to say I've learned this is not the case. I'm going to try some of the methods mentioned here. Thanks for sharing!
0 -
Judy, did you read of page 1-2, I wrote pretty extensively on diverticulitis. Stay in touch here until you get some better results. Good luck sassy
0 -
Thanks sas-schatzi, I did read the pages which I found so interesting. This is all so new for me. Not only do I think that the cancer hormonal meds caused the constipation but I also have had a parasite for a few years. I'm trying new medication to get rid of the parasite so will be interesting to see what happens. All I know is that for 2 days I drank the Metamucil and all I had was a few bunny drops! I'll keep reading!
0 -
My wife got IBS from chemo. It kills all the small-cells in the gut, and mucous,etc, as you know. At first she took acidophilis, the ones that need be refrigerated, to build up the natural enzymes again.
Now she takes (we all do) "multihealth fiber supplement/psyllium husk 3.4g/orange flavor" from RiteAid, it's like Metamucil, but much more gentle and natural, a teaspoon in the morning, it really works for her and I know it does.
Also, she/we take "Daily Essential Enzymes" digestive aid, by Source Naturals -Bio Align 500mg 120caps, from Amazon I think she orders it. these two have saved my wife's digestive problems for the most part. She also had to have an emergency appendectomy right after her first chemo because she ate a piece of chicken that didn't pass thru.
0 -
Art you are incredibly supportive of your wife and family in your research and finding things you have a belief that helps. Bless you. Yes all chemicals have consequences. Colon health is so affected by these things that we take to try to kill the cancer. Some colons recover. Some have difficulty for the remainder of our lives. Please, be careful with chemicals that don' go through rigorous testing and validation of use.
We are in a better time for science looking at older treatments. Yay
Please, read here from the beginning. You may be able to add to your plan. About page eight I did a review of what worked for folks. I was pleasantly surprised to see the old ways were predominant. But we need newer ways when the old ways don' t work.
What's unusual here is there's no one saying..."This is the only way".........
Your understanding of the appendix is flawed, but in the space of everything known it doesn't' t matter.
I would be interested in your observations regarding all the info here. I can tell you are passionate about learning. Sassy
0 -
art - welcome. I passed along your thoughts to a friend who has had IBS for years. No cancer, just stomach problems.
0 -
Judi, can you share the name of the parasite? I'm inclined to research things.
0 -
Judi concerned.....pming
0 -
SAS - I think Judi is OK but so glad for your input. She & I bonded on another thread.
0 -
thanks, I did'nt read the entire thread, thanks for the advice, sas. I guess I'm impulsive...
0 -
Art, impulsive can' t say. But I read passionate and curious loud and clear
MT okay, I did PM her before I saw your post. Still a few minutes on the phone might avoid a serious thing.......protective as you know
0 -
Art, you deleted?
0 -
pm' d Art to see why he deleted. I thought he brought as reasonable info here as all have. If I don't hear from him, I'll contact mods.
0 -
Sas-Schatzi, no worries. I picked up Giardia many moons ago while in Mexico and numerous treatments didn't work. Interestingly, I went to an infectious disease doctor as we were heading to South Africa and I was talking with the dr. He made an interesting point re diet and asked if any of the prescribing doctors mentioned a "bland" diet while taking Flagyl. I honestly had to say none had and even the infectious disease doctor I first had never mentioned it. I stop taking the meds after 6 or 7 attempts as sometimes the treatment is worse then the disease itself. So, I saw him yesterday as he swears he can get rid of it and had medication compounded for me. He did request that I don't take any Metamucil or Senokot while taking the meds. So, I took the metamucil tonight - my nieces instructions as she takes it daily. Yikes, I could hardly drink it and didn't. She told me 3/4 glass of water plus 4 heaping tablespoons of metamucil. It was worse then a slushie. So, I ended up taking some Senokot syrup as the pharmacist said it was o.k. We will see. Hello MinusTwo, good to see you here - I feel comfortable talking about this and thank you for all of your support. Sas-Schatzi, I also thank you for your support as well. In regards to the Giardia, I'm a health inspector so I'm pretty up on it but I'm open to all info.
0 -
Judi, I was afraid you were going to say Giardia. Very glad you have this new doc. Very glad you know all the details. Very glad he's now your guide.
Still have to say it even though you have essentially said it.....only follow his instructions. I'm OCD, I know you get that I have to say it.....
0 -
Hate Giardia.
0 -
Oops double post
0 -
off for the night
0 -
SAS - I'd be interested if you hear from Art. I did copy his IBS post for a friend who hasn't had cancer but has battled this for a long time. I'll let you know her response.
0 -
MT, my concern is that the mods may have asked him to delete because he recommended products. But most of the posts on this thread DO recommend something. May not have a name, but even if it's prunes, that's a product. i.e. Dole or Sunkist. He hasn't' pm' d me and he hasn't posted.......
Yoooo hooo Mods?
0 -
I thought I'd share this protocol that I got from my nutritionist recently. I first started with constipation a year or two before my breast cancer diagnosis - and do believe that my overall health would be better with better digestion. My nutritionist has an immune and gut restoration protocol which she recently revised due to new research. I've been doing this for a couple of weeks - drinking a kind of nasty, slushy green drink.... but my constipation is gone. I'm trying to rebuild my micro biome. I had my micro biome tested at "ubiome" - I have a very unbalanced inner ecosystem - I have many more of the kind of gut microbes associated with obesity - not a surprise. My nutritionist told a story of a woman who had c. difficile - and she was treated with a fecal implant from her daughter. Woman was normal weight. Daughter was obese. Within 3 months of the fecal implant the woman became obese.
Anyway, I'll copy this from my nutritionist - there are links to products which the mods can remove if necessary. She talks about "resistant starch" - which in my understanding is that when you eat something like rice, it is digested as a carb.... when it is cold, it becomes "resistant" and is digested more like fiber.
"Works for inflammation, gut, immunity, energy, and more. You need to do the whole thing for 30 days (or maybe a bit more). You will need hand holding in the first week or so and may need the Tribiotic during the first 10- days.
Your microbiome is implicated in your mood, your weight, your immunity (allergy, asthma), and your longevity. It counts. It also alters your response to your environment. You have a living shield that makes life on planet earth wonderful or miserable. J
Before beginning the protocol consider testing your microbiome. http://ubiome.refr.cc/XL3MGSK Link gives a 10% discount. At this time I am mostly interested in the gut microbiome but test away (they offer nose and skin and other sites as well) Your test will show what you grow now. For more information on the human microbiome http://en.wikipedia.org/wiki/Microbiome
The microbes you carry alter your body and brain. Even your mood may be a result of the microbes you carry. The protocol is designed to restore your full, natural microbiome for health and longevity.
Updated Immune Restoration Protocol- Useful to correct IBD (ulcerative colitis and Crohn's Disease), IBS, SIBO, obesity (really), insulin resistance/diabetes, low energy, cognifive decline, mood disorders, sleep disorders, immune disorders. This protocol must be modified (call for help) if your immune system is compromised (HIV, hepatitis, under treatment for cancer, etc). If you try it and it seems 'too much' call for adjustments. In addition consider eating GREEN bananas once a day and roasting potatoes and eating when COLD or making rice and eating COLD. Cooking and cooling results in RS (resistant starch) to feed your gut bugs, the good ones. If you reheat, the RS goes away. Think potato salad or sushi.
In 24 ounces of fluid (juice, smoothie, water if you can handle the taste), perhaps start with HALF a recipe for a few days. It is powerful. If SIBO is present lower amounts of fiber but double amounts of SBO for a week or so, then do as written below.
1 teaspoon Now Foods FOS Powder (prebiotic) use 2 teaspoons if overweight or insulin resistant
1 tablespoon psyllium (prebiotic)
1 tablespoon inulin (prebiotic)
1 tablespoon acacia fiber (such as Heather's Tummy Fiber) prebiotic
1 tablespoons plantain flour RS (resistant starch, prebiotic) http://www.barryfarm.com or amazon (see contraindications below)
1 tablespoon potato STARCH (not flour) RS (resistant starch, prebiotic) Bob's Red Mill (see contraindications below)
1 level teaspoon chlorella powder Jarrow) GREEN
1 level teaspoon spirulina powder (Source Naturals) GREEN
Primal Defense Powder (1 scoop) SBO
AOR Probiotic-3 (1) open in drink SBO
Prescript Assist (1) open in drink SBO
1 packet unflavored VSL#3
After one month on the program drop the three SBO probiotics to just one (just pick one of the types and open one capsule into the drink) five days a week, alternate.
The VSL#3, 1 packet, may be added just twice a week.
Fiber prebiotics (FOS, acacia, insulin, psyllium, potato starch, plantain flour) are ONGOING at least 5 days a week as are the two GREEN supplements.
Call if you have problems. You may bloat or have some digestive distress or gas when beginning, push through. If you have 'odiferous' gas please call. You likely need to take a course of Tribiotic.
CONTRAINDICATIONS FOR POTATO STARCH/PLANTAIN FLOUR (RS2, RAW STARCH):
1: Don't take resistant starch alone; rs2 needs to be taken with other fiber to spread fermentation completely across the entire colon
2: Real food resistant starch (rs3) trumps high-dose potato starch diet to expand the lean and immunoprotective core microbiota (roseburia, eubacteria, f. Prausnitzii, bifidobacteria)
3: Don't take resistant starch if you have moderate to severe irritable bowel syndrome (ibs) temporarily
4: Don't eat raw resistant starch (rs2) if pre-cancerous or cancerous for colorectal cancer, temporarily
5: Don't Take Raw Potato Starch (RPS) Temporarily If You Have an Autoimmune Disorder
Resistant Starch: Not all resistant starches are the same.
RS1 is found in grains, seeds and legumes and resists digestion because it is bound within the fibrous cell walls.
RS2 is found in some starchy foods, including raw potatoes and green (unripe) bananas.
RS3 is formed when certain starchy foods, such as potatoes and rice, are cooked and then cooled. The cooling turns some of the digestible starches into resistant starches via a process called retrogradation
Four sources, Amazon, Swanson Vitamins, Barry Farms, and vsl3.com Sorry but no way to get what you need from one source.
Antibacterial- may not always be needed but good to have on hand. Very effective for food poisoning and foreign travel.
http://www.amazon.com/Nutricology-Tribiotics-Vegicaps-90-Count/dp/B00126333M/ to kill unfriendlies
Probiotics
http://www.amazon.com/Advanced-Orthomolecular-Research-Probiotic-3-Probiotic/dp/B0082DDQH6
http://www.amazon.com/Garden-Life-Primal-Defense-Powder/dp/B000GWLGG4
http://www.amazon.com/Prescript-assist-Spectrum-Probiotic-Prebiotic-Capsules/dp/B00L82H6HY/
VSL#3 http://shop.vsl3.com/vsl3-unflavored---30-pack-p4.aspx
Fibers/greens for drink
http://www.swansonvitamins.com/jarrow-formulas-inc-yaeyama-chlorella-3-5-oz-pwdr#label
http://www.amazon.com/California-Guaranteed-Non-allergenic-Maju-Superfoods/dp/B00NCHXAW8
http://www.swansonvitamins.com/now-foods-nutra-flora-fos-4-oz-pwdr
http://www.swansonvitamins.com/swanson-ultra-inulin-powder-8-oz-227-grams-pwdr
http://www.amazon.com/Now-Foods-Powder-Organic-12-Ounce/dp/B0025OUVPI
http://www.amazon.com/Now-Foods-Organic-Psyllium-12-Ounce/dp/B002N0OFEM
http://www.swansonvitamins.com/bobs-red-mill-all-natural-potato-starch-24-oz-pkg
Plantain flour (get 2 pounds to start, more later) http://www.barryfarm.com/nutri_info/flours/plantainflour.htm even with shipping cheaper than buying at amazon
0 -
Interesting read Flaviarose but I'm concerned with some of the ingredients. I'm definitely not up to snuff on products but are some of these products herbal products. I know my oncologist said "no herbal products" while taking Femara (Letrozole) as it interferes with the drug. Would be interested to know!
0 -
Sas-schatzi, FYI. I saw infectious disease doctor and prescribed 21 Quinacrine hcl 100 mg. Doctor says bland diet, bland diet and this will get rid of the Giardia. He said he needed to treat from the inside and well as the outside so here goes. Start tomorrow. No alcohol for 7 days. Just pills immediately after eating and lots of water 3x a day for 7 days. Then resample only after 3 weeks time. I questioned why not 3 days as normally told to people but he said NO, 3 weeks after. I'm thinking this will work if I follow his advice. No other doctor nor infectious disease doctor spoke to me about diet nor prescribed this med.
0 -
Judi, so hAppy he is competent YAY. Please let us know how it goes.( they're is that pun again)
0 -
Now that I've remembered that a gin & tonic in the evening always worked for me before BC, I've started that again and been able to quit the prunes & the Colace. The magic of Juniper Berries!!!
0 -
Sas-schatzi, day 2 of meds almost over. Don't know if I like this BLAND diet. Seems I'm eating a lot of saltine crackers and Kraft peanuts butter. But on day 1 after 2 pills, no problem with constipation. We'll see what this day beholds!
0 -
MT on kindle typing abysmal
Yay juniper berries, I'm having liquid grapes
Judi go girl......kill those suckers. Euphemism they are bacteria or something not suckers.
Terrible story about suckers- 's. ascaris nematodes. I WAS WIPinG A BUTT IN 1971. This thing wiggled, I grabbed it. Had the other student nurse call the instructor. Instructor Said let me see......duh, I let go it could go back in, I'm just going to pull I out. About ten inches long. Went to pathology. Next day all these big wig docs came in and questioned patient. He'd been I'm a foreign country.
I give up trying to type wi 500th kindle auto correct is a nightmare. I will come back when I have my co.outer back
0 -
Sas-schatzi, Giardia is truly a parasite. I'm feeling good on the meds and haven't turned "yellow" or "brown" like the doc said I might. This med is to treat Giardia that is anti-biotic resistant!
0 -
Judi - do they think you picked it up on your Africa trip? I think I remember you can get it from water contaminated by animal feces. No more drinking from mountain streams.
0 -
MT, I picked up Giardia many years ago while vacationing in Mexico. I truly think that I got it from brushing my teeth with the water. We stayed at a place where a lot of teachers/principals stay at - a family run small inn like place. Obviously not a good choice but my brother-law researched the place and said it was good and cheap. That's the only thing I can think of but I was sick in late August/early September prior to going. I was so tired and run down. Maybe my system was good at receiving the parasite and voila I got sick 7 days after returning home from Mexico. I did many treatments of Flagyl but it was unsuccessful. This infectious disease doctor said that a lot has to do with the diet when taking meds to kill Giardia and no other doctor said anything to me about this including an infectious disease doctor out of a hospital. This doctor used to be the head of a big lab company so I totally trust him. The Quinacrine is used to kill Giardia in those that are Flagyl resistant which I think that's what happened to me. I feel totally fine taking these meds and haven't turned "yellow or brown" yet. This drug was also used in WWII for soldiers who picked up bugs.
0 -
MT in the USA, Giardia is generally associated with well water. I had two patients and a friends kid. All were well water folks. There is a thing that well water should be chlorinated at intervals----there's a routine. In fact from my nursing and real estate days. When buying a property that's on well water, the county were I used to live had to have a county(state) test, but that didn't cover everything. Anyone buying a property with well water should research ---bacteria, metals, other stuff. Just sticking the thought out here. Not into researching it.
Judy heres' hoping this WORKS. time to be done with that buggar. Parasite, like latch on type? That round worm(nematode) I caught out of that poor guys butt. My question to the doc was "what did it mean re: the patients health if the adult parasite let go?" Doc had no answer. UGH. Interesting.......... Judy, keep us up on your situation.
0 -
Sas-sachzi, I will keep you posted. Only 3 more days of these drugs and then "goodbye drugs". The only pill I will be taking will be my cancer pill which I forgot to take the other night. Seems like my brain will only function on one pill a day. But my question to you is that I'm so bloated and haven't had a good, decent bowel movement since Wednesday. Doctor told me "no metamucil". Can you think of anything else I can take?
0 -
Let me look at the drug in daily med, I will ultimately suggest you call your doc--Always the safest. But when I make a call like that I do try to have suggestions ready. Say there's two things that are recommended and I have one on hand. I don't want him to suggest the one I don't have on hand.
ESPECIALLY in your unusual case. It's taken soooooooooo long to find a doc that has a clue. That phone call to him is very important. be back in about 10 minutes or less It's now 9:04 EST.
0 -
Judy, diarrhea is the usual s.e ...No mention of constipation. This source discusses abdominal cramping when used with vaginal instillation. How old are you chickie? Where are you? This drug isn't supposed to be available in USA or Canada??????http://www.drugs.com/mmx/quinacrine-hydrochloride.html
Looking for more info I'll post what I find. But I suggest that you call your doc. This is an unusual drug. Safest to talk to him.
more info
0 -
Judy what other drug(s) are you taking? When you read the info in the first link about sterilization, don't freak. Read the WIKI info . The drug has to be placed directly into the uterus for that function. The drug is actually in clinical trials for sterilization alternative to laproscopy.
It has some weird s.e.'s that are normal for the drug, but could be alarming if you don't know about them. i.e can turn sclera(whites of the eyes) yellow---normal for drug, you should not be alarmed and it's not permanent. Can discolor nails----normal for drug and is not permanent. Can cause some psych problems--tell your DH to let you know if you are acting strange.
Of course, that one will be difficult if you are strange to begin with LOL.
If you read more s.e.'s you want explained. Post.
edit: Sorry judi lame attempt to not have you worry.
0 -
SAS - of course we're all strange to begin with or we wouldn't be posting here. LOL. How about the term "unique". I'm certainly that too & sounds more exciting.
Of course Judi should call her doc, but it's a long holiday weekend in Canada so they're probably out on lake. In the mean time, is there any reason Judi couldn't drink prune juice or eat 3 prunes? I know how terrible I feel after 3 days. Or is there some reason not to use Colace, which I understand is non-habit forming?
0 -
MT & JUDI my lovelies First rule of medicine is: Do no harm. Second rule of medicines is: Listen to your patients and they will tell you what's wrong. Just threw that in because it is the second rule. I'm going to make up a third rule---Don't tread where you haven't got a clue.
Abdominal cramping can be a s.e. of this drug. Constipation is not a usual s.e. diarrhea is. Judy your doc was emphatic no Metamucil. I have no clue his reasoning. I could posit a couple of reasons, but that's way way different than knowing. I.e. metamucil may absorb the drug and prevent it from working. You are in an unusual situation. I agree you need to get unplugged. It may be as simple as prunes or senna. But seriously, you need the doc to make the choice. You make a wrong choice and it blows your colon out, your not going to be a happy camper. That's an extreme example an not likely by any stretch. You have been suffering with this for a long time. Do the right thing chickie.
If you had an ordinary narcotic induced backup, you could take your choice of suggestions here.
Doc's ALWAYS leave someone on call.
Call his number. The answering service will get ahold of him or whomever is covering call. Yeah, they will likely say something simple. But that will be from a position of knowing not guessing. Hundreds of thousands of errors are committed each year for many varied reasons. Doing something without REALLY knowing is one type.
0 -
Ah --hah call the Pharmacist. They have different references available to them, if you can't get the doc on call.
0 -
Judi Hootie Hoo. Where'd you end up?
0 -
Sas-schatzi, thanks for all your research and help. Had a small movement today so I'm not going to stress about this. You are absolutely right, one small error and the drug is nil and void. I only have 2 days left. I loved to tell you that I'm 29 but in reality, I'm turning 60 this year. I live north of Toronto, in Ontario, Canada. I'm probably 1 hour from T.O. and 30 minutes from Orangeville. In all honesty, I haven't had the side effects mentioned other then my urine is more yellow. Isn't this a good conversation. MT is right, it is a holiday in Canada so no one is around. MT no prunes, metamucil, etc. Sas-schatzi is right - doc doesn't want the drug wasting away in my stool. Doc said not to resample until 3 weeks have passed so I'm guessing that I could still be shedding the bugger out. Usually, it is 3 days after and then 3 samples taken 48 hours after. I'm going with this doc's recommendation as if I submit a stool sample and I'm + then I would probably give up. Oh yeah, Sas-schatzi the only other med I take is my cancer med - Letrozole and I'm finished with that in January, 2016. Yippee!
0 -
Judi, glad something moved. Such talk . butbutt here comes some more. That portion of stool right in the rectal vault above the anus is the most troublesome in constipation. It can become so dry it literally is a plug. In normal people who aren't immunocomprimized the suppository Dulcolax or the fleets enemas are a first choice because of this plug. These drugs placed directly into the vault area soften that plug. If a person is prone to constipation, straining to pass that plug can lead to internal and external hemorrhoids. I mention now, only because I've never talked about it before in quite this way. Regretfully, it is ABSOLUTELY the wrong drugs to use for anyone in a immunocomprimised state because of the possibility of micro-tears of the area.
I ran across an article that gave a complete 'everything current in the demographics and management of Giardia'. I linked it then took it out. It truly was icky to read. But I have decided to link it. Apparently, Giardi is a much bigger problem in the States and Canada than I realized. I suggest you read it to assure that there is nothing that you are being exposed to that's causing the problem to continue. Falls under "Make No Assumptions" category that it was mexico. Mexico sounds reasonable. but I think you get the drift?
For anyone else reading this Giardia is a special lab test. It won't be picked up without a special order to do the specific test. For anyone having diarrhea for greater than 3 weeks it should be tested.
I used to work with three GI docs at my old hospital. Only one of the three automatically tested for Giardai on first contact of a patient with diarrhea troublesome enough that a GI consult was made. Since I had previous contact with giardia, I was impressed with his approach.
Judi , the article linked has the most complete description of Quinacrine. Also, there are a few other drugs available. Quinacrine was taken off the market in the USA I believe in 1991(date is in the article). It doesn't say why. It does Identify that it is still available for resistant cases.
The reason I asked about age, the first article, talked about causing sterilization without details. The second article gave a full description of how it is being studied for that reason. The route of administration is totally different-- Uterine versus oral. Big omission in the first article.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC88965/
The article is from 2001. It's old, but nothing else popped that covered all that is included in tis article. It was probably a seminal study when it was first published.
0 -
Sas-Shatzi, I think I have read this article but will do so again. The drug was specially compounded by a pharmacist because of exactly what you said. Drug is not available in Canada or the U.S. I don't know if I would wait 3 weeks if I was having diarrhea but that being said, I did wait 3 weeks because I didn't have all of the symptoms of Giardia and absolutely no diarrhea. All I had was very yellow, smelly stool and being a health inspector, I should have been on top of that has it is one of the symptoms. I'm thinking that after the last of this drug tomorrow (yup 7 days have passed) that I'll wait to see what happens. But I have a doctor's appointment tomorrow to discuss my diverticulosis and what's next. Also, get the results of my colonoscopy.
Yup, just looked at the article and this was the one I read. Nasty little bugger but since Giardia can be resistant to Flagyl in some individuals, I'm on the side that I was one of the those people. I took at least 5 rounds of Flagyl including the super version and no go. I feel really confident on this drug and luckily no side effects.
0 -
Judi, interesting no diarrhea as a presenting symptom. Yet most first world countries, diarrhea is a presenting s/s.
Well... we are hoping that the bug is dead, but a thought comes to mind which is now hopefully only a theory and can't be tested. When you next meet with that wonderful infectious disease doc ask him if the genome of Giardia from different parts of the world has been mapped. Yours was resistant to Flagyl. Was it resistant because it's genome had evolved differently enough to allow it to avoid being killed.
As you know MRSA and the other superbugs in the first world countries developed resistance because of overuse of antibiotics, antifungals etc. But Mexico is considered a third world country. Theoretically, Mexican Giardia wouldn't have been exposed to Flagyl on a significant level to cause resistance. Therefore, should have been sensitive. But it wasn't.
If that thought that the genome is different has validity---then all the treatment you had didn't work because the Mexican Giardia from the backwoods in the hinterland does not have a susceptibility to flagyl.
If this be true. LOL Then it could turn treatment for Giardia up side down because Giardia susceptibility would be closely tied to where it was contracted.
If this be true for Giardia, then it could be true for other bugs. It may be an already proven theory. It still is fun because it's a new thought for me and would then become a learning experience.
Hope you followed what the above is trying to say. It'll be fun to hear what the doc has to say. You may have to print this post out. If it were me I would, trying to repeat what I wrote would be pretty difficult.
Judi when you ask him the question watch his eyes. If you see a flash( momentary brightening) it means his mind has searched the ' brain data' base and he's found that it's a good question.
0 -
MT where's my buddy? Did I say something that sounded not right to you? Hope not, if I did, I apologize.
0 -
Judi, Btw you waiting for a period after developing a change in stools....not unusual. Not unusual for any sign or symptom that doesn't knock us down. If you had been ill with other s/s's like fever , chills, N&V......or combo of s/s's you would have sought care sooner. At the time your stools weren't right, a natural human response is to think things will straighten out in a few days.
Use a completely different condition. Think about the last 30-40 years about all the public education in print, tv spots etc. regarding s/s's of stroke or heart attack. All the s/s's don't have to be present for something to be happening. The teaching has been directed at what to pay attention too.
You did good, you sought care when things didn't straighten out. If your thought was this long term problem with Giardia was due to delayed treatment. Nope......Nope.......Nope. Right treatment was never rendered.
Take a look at page one or two where I wrote about Diverticulosis and diverticulitis. Then let's talk about that. I'm not suggesting I know more than your doc. But I do have both sides of the bed experience on the issue.
0 -
SAS - absolutely not. And I followed your long post about the mutation of giardia by country w/o printing it out. HA!
As a summary - All my life I was on the hard side & stools only every 3-4 days. I had never ending diarrhea during chemo (s) and lost 60 lbs. So I was surprised to be back with constipation once I finished Herceptin as I was slowly working my back to my new normal with my standard calcium & vitamin supplements. Five months down the road, I was having to take Colace 2-3 days a week, in addition to 2-3 prunes daily. As an experiment, I stopped taking Vit E gel caps. No reason to believe these were related - BUT - a week down the road the constipation ended and I no longer take either Colace or prunes. Stools are med to med soft and every day. Weird. So 6/1 I will start the Vit E again. It really seems to make a difference in the fluidity of my knees, and also stops the symptoms of my trigger thumb. I'll let you know if I revert back to Constipation again. It will have to be a first for Vit E use.
0 -
Hi ladies! Sorry was at the doctor's offices today. All good re polyps; benign. Now the Giardia. I don't know if it has been mapped but interesting theory. I'm finished this med and all is good. Stool is not bright yellow/greasy like it should be with initial exposure to Giardia and then being symptomatic. Not all people experience all symptoms associated with a disease. For me right now, I look at say "Giardia" your dead. What I found interesting was not to do a stool sample until 3 weeks time. Normal resampling is after 3 days but you know, it makes sense to me. You may still be shedding. I met with my former supervisor today and we were talking about it.
0 -
Sorry ladies I have to type in two segments as I ramble on, the typing becomes slower and slower. So, my former supervisor did not know there was Flagyl resistant Giardia and he also thought that all the treatment killed the parasite. Interestingly, another health inspector did not know there was a "carrier" state of Giardia. But my former supervisor said that the infectious disease dr. knows his stuff (he was the head medical director of a licensed lab) so we'll see what happens.
0 -
Oh good there's my Buddy -MT--We've both hung in here for so long. Couldn't think about being here without you showing up girlfriend. Weird about Vitamin E---------butbutt we know anything can happen.
0 -
Morning ladies! Today I start watching what I eat again as I lost 20 lbs. and would like to keep it off. But you didn't know this, I added Metamucil to my yogurt and cereal. Not only does it help lower cholesterol levels to promote heart health, promote digestive health it also boots daily fibre intake (all taken from an ad - I'm not that savvy). But I did read in an ad to add to your meals and I don't know what magazine I looked at to find this. When I do I'll share. But I was at my family doctor's and we talked about colonoscopy results and the drug "Constella". Dr. said to do the metamucil as this drug is really new and I don't want to become dependent on drugs. Hard enough cancer med is causing increased cholesterol and constipation. Add metamucil to your meals and so I'm going to do this and see if my bowel movements are daily and pass easily!
0 -
Judy ROTFLOL......"instead of using flour to thicken the gravy, we use Metamucil------going for a that two for one response"...."Surprise everyone at that next family gathering"
0 -
SAS - Baaaaaaaaad.
0 -
MT not funny?0 -
Sas, thanks for the hearty chuckle and smile. I thought it was really cute and I think I'll try it on "certain" guests at my next get together.
0 -
Sas, Metamucil is working great. I'm going to keep this up and add bit by bit each day!
0 -
Judi, Is your doc available by phone? I wish he had given you better instructions. If you can get ahold of him ask if it's okay to resume the Metamucil. It likely is, BUT>>>>> The reason no repeat stool for three weeks is the Quinacrine is still doing it's magic. We know he didn't want any drug that was immediately in the GI tract to be absorbed, I have no clue if the Metamucil has any impact now. Sorry I didn't think of this before.
BTW I have family in Kitchner, Oshawa, and Haliburton, Lindsay, Peterborough. Then way out in Vancouver and Alberta
Glad you survived the winter. I know ya'll got hit hard.0 -
Oh yea - my laugh for the day. Thanks for sending.
0 -
Sas, amazing that you have family everywhere in Canada. Do you see them often. I have only added Metamucil (teaspoon) to my yogurt in the morning. Dr. just said no metamucil while taking the drug. But I've been thinking along the same lines as you so I'm going to stop. I know the drug has worked has I have no aftermath of carrying the parasite.
I didn't experience the whole winter as I left for vacation in South Africa for 3 1/2 weeks, got home then off to B.C. for 3 1/2 weeks. Only when I got home was it "cold" but no snow. Then in late November of this year, I'm off for a month and 1/2 in Florida. Now that's the way to spend winter.
0 -
Judi - How neat you're going to Florida. Where will you be? And don't you have a trip to BC again this summer? I'm sooooo jealous!!
0 -
Judi, I'm In Florida--across from the space center-------Titusville/ Cocoa area---east coast. Spookiesmom is in Dunedin--west cost. We have been known to travel to see folks. My Mom was from Lindsay--------her siblings kids are all over. I haven't been up there since 2004. Where you going?
YAY Quinicarine(sic and I don't care LOL). NO problems after All this time. Tell your infectious disease doc he is being blessed by many people! How many ID doc's didn't get this? Gawd you must be feeling like your in heaven? I've been working a problem from RAI131 treatment for thyroid cancer for one year and I'm either at the final stage of permanent healing or in maintenance phase. It'll be a few weeks before I'll declare healing------time---I must have patience. At one point with this problem I seriously prayed to die. Within a few moments I had a thought of what to do---unorthodox. I did it and healing began.......A prayer answered.
0 -
Sas, I don't know where I'm exactly heading in Florida - dh knows but I'll find out. All I know is that the owners live in a condo on Riverstrand or it is called that. I truly hope that your are in the final stages of healing. Funny how we think, eh? I remember when I got my diagnosis I decided I wanted to live and would do everything in my power to do so. I also remember that I needed to fill my bucket list when I realized it was empty. So I quit smoking, starting exercising and I thought I was watching what I ate but this was a myth. But I've got that under control now. So you must have known that you also needed to fill your bucket list. God bless and speedy recovery. BTW, I've only been to Lindsay once in my life but it is beautiful. It what's we call north/east/west of the City "God's country" as it is so beautiful. I truly can't say south of the City as that would put us in Lake Ontario!
0 -
Okey dokey Judi--look us up if you come our way. Lindsay is the quintessential small town with the town center.0 -
Sas, just want you to know that french fries "work wonders" on the system. Golf today (extremely wind and cold) and after the 9th hole went to the clubhouse for a sandwich and coffee. We all agreed to share some french fries and when I came home "nature called". I guess until I do the stool sample, this should be my "go to food" rather then Metamucil?
I will definitely look you girls up!
0 -
funny judi, just the other day Equate nutritional drink did that to me. I thought I should write about food triggers lol---You GO Girl.0 -
Sas, you should write about food triggers! I know that french fries work for me - must be the grease. After my cancer treatment was finished I was sooooo blocked up from all the drugs. I remember eating a few french fries and I could hardly make it home. I don't need a lot just a few (o.k. more then a few) and voila!
0 -
French fries!! What used to keep me regular was Gin & Tonics, with lime of course. Tried one tonight.
0 -
Not much more to say about food triggers lol. You eat and it causes you to go without having other problems.... put it on the list......
I suppose, avoid eating two triggers at a time.
0 -
MT, hey buddy, maybe beer for me0 -
O.K. you two! Too funny for me - coffee and a smoke first thing in the morning did it for me! Maybe that's why I'm not regular - no smoking! MT, I drink tequila and nothing for me. Maybe I should switch!
0 -
Oh Judi - we need to post this on the smoking thread. Smoking keeps you regular??? LOL
0 -
That MinusTwo and "wine gums". I'm loving that.
No, we can't post my other comment on the smoking thread. We don't want smokers to continue or ex-smokers go back due to constipation. We have Sas for this problem. Thank you Sas!
0 -
Oh well - it is amusing tho.
0 -
Hmm that's a hell of a note. (giggling) 'We have Sas for this problem' A little bit of SAS will keep you regular. Is SAS better taken in the morning or evening. I suggest in the morning with warm lemon water. But coffee will work too!
I posted this on my social thread today, No one commented or got the double entendre. It was too good to waste." I spent allot of time this week on the port& constipation thread. Too much time on the Constipation thread---we got a bit silly. Way silly. Nice to end up that way though with everything coming out well in the end."
I knew YOU guys would get it.
0 -
LOL!!
0 -
Ha, ha, ha! Love it!
0 -
My wife had a emergency appendectomy in 2007 after her first chemo, (IDC/ILC Stage 2B) ate a piece of El Pollo chicken dry white meat, it could not pass, it won't happen this time --after 8 years, she has a new bc.
She's had IBS since-- but 3 things have proved invaluable:
1 .acidophiles capsules (the ones from health food store that are refrigerated )to build up the natural enzyme action in the intestine
2. RiteAid sells a fiber that she said is much more gentle either-way than Metamucil brand here is link:
https://shop.riteaid.com/rite-aid-pharmacy-fiber-s...
3. Source Naturals Essential Enzymes digestive aid 500 mg 120 caps: from Amazon
0 -
Thanks Art for coming back, I was concerned about why you deleted. This is a thread of suggestions.. Thanks for your input. If you see stuff in the future that may help others, please add it. We have been a bit goofy in the recent past or passing. It's just the going of the thread.0 -
Oh Art----------I can't help Myself If there's a phrase that allows a double entendre I'll work it.
0 -
As in "work it on out"....? ha ha
0 -
https://www.youtube.com/watch?v=5CRKnP_gTBIOh well.........................CELEBRATE , CELEBRATE---DANCE TO THE MUSIC
0 -
Oh SAS - where ever did you find that?
We may not be talking about "life changing" solutions all the time, but at least we don't have to remember to come in and 'bump' to keep the thread active.
0 -
Love the video Sas. Just glad you didn't superimpose my name on one of the dancing divas!
0 -
MT, the internet knows all LOL. I think I used keyword Celebration and constipation. I've amused myself at times of just putting in weird combinations of keywords, just to see what it pullsHave a nice day and memorial
0 -
This link is to a thread done by Rock. It's the go to list for chemo
https://community.breastcancer.org/forum/69/topic/706846?page=1
0 -
Hi Sas! Just wanted you to know that I got a call from the surgeon's office who did the "colonoscopy". I told the secretary that I had to get the results from my family doctor as no one call me back. She said she had to check with the doctor first to give the results over the phone. Seems like the right hand doesn't know what the left hand is doing! At the hospital the surgeon says to call the office for the results but the secretary doesn't seem to know this. Like really. But she did say to me that "if I'm still having a problem with constipation" to speak with my family doctor. Seems like the surgeon just likes to give "meds" to take care of a problem but family doctor is on board with me .... Metamucil.
0 -
Judi - and it the Metamucil working to your satisfaction?
0 -
Judi, ---------Not good that the scoper didn't do an office appointment to review results. Bad practice. Particularily in your case. A long term problem as you have had, they should do an explanation about how they perceive your colon has weathered this assault. Plus, he should tell you what the long term plan of treatment is. If insurance isn't a problem, I'd schedule an appointment
Did we know you were getting scoped?
So Happy you are done with this!
Please, read from the beginning. Many member's have offered pearls. MT can attest to that one. She's one of them.
0 -
To keep my bowel healthy, I take smoothie almost every morning. I keep things simple; I just mix water with apple, organic carrot, blue/blackgerries, banana, raw honey, sea salt, and fresh grinded flaxseed. Since I am vegan, I also add 1-2 tbsp of unhulled hemp seeds as milk substitute. I have regular bowel movements, and due to high fiber content, the smoothie keeps me full for hours.
It is also important to avoid diary; it is one of the number ones causes of constipation.
Note: you need a nutri-bullet juicer for the smoothie and a grinder to grind the flax seeds
Let's fight (removed by Moderators) together!
0 -
I was having problems with Zofran in particular. I asked my nurse if it would be ok to try not taking it after treatment (I took three doses every 8 hours) since I had not had any issues with nausea. She approved of trying it out. Now I don't have the kind of problems I had before. I'm not taking any meds now, just what I get before treatment. So it may be worth asking if you can stop taking a medication, or give it a try.
0 -
Bump for a better go, Lot's of info from the beginning written by many members that can be helpful. Pick and choose what works for you sassy0 -
Bump, bumps, it's coming out in lumps, you need too start at the beginning to find something to use or you bottom's going to hurt
0 -
Metamucil
0 -
Bump0 -
What fun science is
Came across this article while searching something else. We have discussed Probiotics--good bacteria. Most people will recognize good bacteria as being found in yogurt. Scientist have made a connection between certain colon friendly bacteria and brain health. Particularly, anxiety. This article is pretty layperson friendly.
http://www.theatlantic.com/health/archive/2015/06/gut-bacteria-on-the-brain/395918/
How and why this is important to our community? Because of the treatments we receive i.e. chemo, antibiotics pre & post surgery, and antibiotics for complications of each, our gastrointestinal ( mouth to anus) flora is altered. Certain antibiotics alter the intestinal flora of the vaginal area. The dreaded 'yeast infection'. For several decades the concentration of thought was to replenish good intestinal flora of the GI tract and vagina. What the article identifies is the brain came be affected by changes in the GI flora. We have another reason to consider replenishing good bacteria of the gut when are body is exposed to chemicals
0 -
Bump-lot's of suggestion from the beginning. if one doesn't work try another one
0 -
Bump
0 -
Hi Sas! Hope your summer is going well. Really hot here in Ontario ..... humidity is the killer. Submitted my stool sample and awaiting results. Don't know how long it takes as I submitted it on Friday and now Wednesday. I'm thinking by tomorrow I should have some something.
0 -
Hi Judi, did I send you a pm or post about the microbiome. Remember when I said that a person couldn't have resistance to a bug in a foreign land or something. It's back there when we were working on your poop. WELLLLlllllllll, I started some reading on another subject, and that lead to something else. They're has been an explosion of interest in bacteria that lives on us and in us. Hours of reading. Anyways, my statement whatever it was, was wrong. LOL That's very nurse like wasn't it. Brain is disconnected. OCD is off.
Summer's been great. Knock on wood, first time somethings not wrong since 2008. Not quite sure how to handle it.
I get to be 65 tomorrow! 7/30/1950
0 -
Happy birthday Sas .... you are at a young age and at great place in life. Enjoy your day! I hear you about the first time since somethings not wrong .... good way to life.
Have fun tomorrow ... do something out of the ordinary since you are in good health!0 -
SAS - Happy B-day. I'm not sure what you said that is now wrong, but what is right?
I've been trying to lurk on the Insomniacs thread which you mentioned to me some months ago. Ii want to follow Rose from Death & Dying, but no way can I keep the pace. I'll just have to drop in now & then.
Judi - hope the sample comes back A+ grade poop & no problems.
0 -
Thank you Judi & Minustwo YAY another year. I'm 6 years out from BC dx. another YAY. Oddly, not worried about the thyroid cancer of 2014 and all the other CHit.
Important, Follow my Toradol thread. NSAIDS are showing up in allot of research as a game changer for cancer. Only found the connection last week or so.
0 -
Bump, Lot's of suggestion form the beginning to the end. We just kind of socialized on the last page.
0 -
Well Sas, how is your BIG year going? Well I hope. I know I'm have the BIG 60th in November. God, where has the time gone? Anyways, I spoke with the doctor's office and sample "inconclusive". Apparently, the lab says I didn't fill out something. I know I did but I'll do a repeat. But going to a different lab this time. Will keep you posted.
0 -
Judi we will meet here in DEc with MT and celebrate. Having some fun on the research page. Right up your alley. It's on the microbiome of the gut. (bacteria of the gut). Hope the test comes out okay(punnnn)
Yoohoooo Waving MT, Are you still lurking? Ready to jump in?
0 -
SAS - of course this thread is on "my favorites". Your post reminded me I need to eat 3 prunes tonight. I am lurking on your Insomniac thread. No way I can keep up but I want to keep track of RoseValley. Everytime I think I might jump in and say something, I read the several new pages I forget what it was or someone else has already responded.
Judi - are you really going to be the big 6-zero? You sure look great. Well then you definitely need to delay the mammo & go to Bangkok. I loved 60. I decided I could do pretty much whatever I wanted since I earned it & paid my dues & deserved it. And this was before BC. So then my Mom died that year, my best friend the next year and my Dad the next. I spent much of my time sorting stuff, calling the Salvation Army, getting houses ready to sell, etc.
Oh oh SAS - sorry I'm off track again. I do hope new people or those in need are finding this thread. There's such good info.
0 -
no, I love catching up.
0 -
Thanks MT. I think we all look great when we get to this age plus. You know what, we own it! So sorry to hear you had to go through so many losses. Mine have all been before this age so keeping my fingers crossed.
0 -
AhHA! Here is where I need to be for answers to my very new problem. I have been on painkillers for several years and NEVER have I had any issues with constipation. But, all of a sudden? Now I find myself chitin pine cones as someone else called it here on this thread. Very hard stool. I drink a lot of water (always have) but have not taken much for this issue except a generic OTC stool softener which gave me cramps.
So, gonna try the good old prune route. Does this work for hard stool? I do go but not all at once. Takes me several tries before I feel done cause it hurts to pass the stuff out of there. No hemorrhoids yet but remember having them when pregnant over 30 years ago and don't want to go through that again if I can help it!
Suggestions?
0 -
Hi April, Long time no see
Hate it when they're is trouble in the end. They're is several parts to your question. Fill in the blank , cut& paste to another box.What do you take for a pain med?________________ How often do you take the pain med?__________
Last dose?______
Have you changed your diet within the last two weeks?_______________________________________________
Do you know how many glasses of fluids you drink a day?________________Coffee/tea?soda?_______________
Antibiotics within the last 3months/ what/why?______________________________________________________
Did you start any new meds within the last month?__________________________________________________
What meds do you take?_______________________________________________________________________
Any Left side abdominal pain?__________? Abdominal pain elswhere?___________Any bloating?____________
Any change in stool color?____________________________________________________
Have you noticed any streaking of blood on the hard stool?____________________________________________
When you were taking pain meds how often would you evacuate?_______________________________________
What's your immune status?_____________________________________________________________________
Do you have grandkids? (just kidding)
I did a review after the thread was going awhile(around page 8. I was pleasantly surprised to find that the greateast success was with the stewed prunes and apricots and other things. Would love to say they're is gin in the recipe like that arthritis recipe, but they're isn't. Take a look at page 10, I did a review of laxatives and stool softners. They're stool softerns/ laxatives, and combo drugs. You'll see in reading that lot's of folks use Miralax. I have concerns about Miralax b/c of micro-absorption.
IMPORTANT: this is a review. It will help Identify if you have had a new onset condition change that will help you decide if you need to go to the doc. Not every episode of constipation needs a physican look, but a condition change does. I can't suggest what you take. sassy
0 -
April, I guess you found what you need --good luck
0 -
0 -
0 -
Ha, ha. Now picture this is me but only 50+ years older!
0 -
bump for a better go!
0 -
hahaha!!! Seriously, lots of good info here.
0 -
Hello, I'm new to this forum and hopefully will see a response. I am experiencing rectal bleeding. I am currently on my 5th week of Taxotere every Tuesday. Last Wednesday night, I had quite a successful BM, well formed but quite explosive. After the BM, I had some severe rectal pain as if something large was pressing on the rectum. I also had bleeding for 3-4 days requiring a pad in panties. After the pain went away, I have had bright red blood passing with the stools. I am concerned of colon mets because of the breast cancer. I saw my onco today with my 5th treatment of tax. She wants me to have a colonoscopy after the chemo. After reading all the great tips in this forum, I am a little relieved because it is most likely internal hemorrhoids. I am going to try the baby food prunes first because I am on a daily fiber/stool softener/miralax regimine with fair results.
My original question to you is; with rectal bleeding/possible hemorrhoids, should I take fish oil? I am afraid to take the fish oil because I remember hearing/reading something about the fish oil interfering with blood clotting. Any suggestions?
0 -
BevJean - SAS will be along in awhile & she is our expert. Have you already had surgery or is your chemo neo-adjuvant?
I think I'd want gastroenterologist or colo-rectal doc to look at the problem now rather than waiting - even if you have to wait for colonoscopy. I will say that my docs told me to stop both Fish Oil & Vit E well before surgeries since both can be blood thinners.
0 -
I have had bilat mastectomy (just updated profile
) I don't think a GI would want to touch me right now while undergoing chemo. I feel comfortable waiting. Thank you for responding so quickly! I had 4 treatments of A/C which were really bad!! The Taxol isn't too bad and I've recently returned to work. I will wait on taking the fish oil just as a precaution. I was taking Vit E and have stopped that too. I have quite a story to tell and I will do so in another area of this forum. (suggestion as to where we share our stories?) I haven't really talked to too many others about my cancer/treatments. I am an RN and work in mental health. I'm sure we will reply to each other more. Nice to know others going through the same trials.0 -
MinusTwo and BevJeanAnn.
Thanks for posting the info on fish oil and possible bleeding. Ever so often I wonder why I am still here at BCO since I am not much of a contributor, always seem like my "journey" is/was somewhat easy and uneventful. so I have nothing to share that would be of value to others, but I have benefited and learned so much here the past 6 years. I have this subject in my favorites because Constipation has been a companion of mine for a long time. I recently had a colonoscopy, my 6th or 7th, lost track, and fish oil is on my list of supplements I take (ordered by my PC doc, to help lower cholesterol). The doc. performing the colonoscopy never did mention not to take fish oil, and for the firsts time ever I had excessive bleeding, blood clots, approx. 12 hrs after colonoscopy, Could very well have been caused by the fish oil, I take 2-1000 mg per day, and did take the fish oil that nite.
On the constipation front, I was told to try fiber supplement and Colace, so far so good. Doc. told me to stay away from the Cascara Sagrada and use Mirilax only f I did get constipated again, although it really was a good remedy for me this past year. Only six days out from colonoscopy, and so far so good on the fiber stuff and colace.
I did not have Chemo, but still have neuropathy in both feet, I only lost 4 lymph nodes, yet got truncal and arm LE, maybe another reason I hang around, there are so many wonderful women on here with good advice for us, and I appreciate that so much.
dsgirl
0 -
hi sad here on kindle.Will check in when laptop is fixed
0 -
Sounds like I need to eat yogurt twice a day! 😜0
-
Minus two-
With my age and previous hx of colon polyps, I will be able to have colonoscopy as far as insurance coverage is concerned. I haven't seen anymore blood with bm's today, so I am happy. Thanks for the input!
0 -
dsgirl - yes I follow the "Grrrrrr" thread about LE and the "VENT" thread about neuropathy even if I don't post much.
0 -
BevJean - hooray, no blood. Hope it's hemorids & things go easy (pun intended)
0 -
MinusTwo. Hi sweetie , i'm here and feeling no pain
Thank you for thinking of me Went to a wonderful party tonight. Had computer problems all day.Bev.....I'm a retired nurse. I started this thread b/c BCo didn't have a constipation topic. BCO since started a constipation topic on the main board.
Several parts to your question Will try to do some justice tonite--
You don't state that the rectal bleeding preceded chemo. You do state that you have had constipation with chemo. Then you do state " After the BM, I had some severe rectal pain as if something large was pressing on the rectum. I also had bleeding for 3-4 days requiring a pad in panties. After the pain went away, I have had bright red blood passing with the stools. I am concerned of colon mets." " After reading all the great tips in this forum, I am a little relieved because it is most likely internal hemorrhoids" " My original question to you is; with rectal bleeding/possible hemorrhoids, should I take fish oil? I am afraid to take the fish oil because I remember hearing/reading something about the fish oil interfering with blood clotting. Any suggestions?" After a member suggestion of a GI appointment you responded " I don't think a GI would want to touch me right now while undergoing chemo. I feel comfortable waiting."
Bev do you want a real response? Please, I will work on a real response. But what I read here is you aren't looking for one. The hardest thing to do between nurses, is to say you are wrong. You are wrong. I can guide you if you wish.
0 -
Bev, As MT suggested, It is a good move to see the GI guy as soon as possible. That will give them a chance to evaluate all the tests you have had done. They can order whatever else they want before the scope. This approach will prevent delays of getting a test that may want done before the scope. PLUS, the GI guy can tell you what to do if bleeding reoccurs. I think that is the best approach. Docs get bummed when they have to say I wish I would have known.
Docs don't want to touch the colon for minimum 6 weeks after bleeding unless it's an absolute problem like an uncontrolled GI bleed. Would you go with a new GI guy in Grand Rapids? If so, you should check and see what there lead time is for first appointments. Also, ask how long after chemo they like to wait. If the lead time for the first appointment is close to the 6-7th week. Generally, they have the scopes scheduled 2-3 weeks after that evaluation. That would put you in the window to schedule a scope at that time. GI docs have to have seen a patient with in the prior month before a scope. Schedule the appointment to meet those two factors. The scheduling gal may not know about chemo just ask her to get an answer from the doc and you'll call back.
Glad the bleeding stopped. Glad the prunes, fiber, and water are working. There is a stewed prunes and stewed apricots recipe near the beginning.
I have a bias against Miralax because of it's warning to not be used by someone with kidney disease. That tells me it's absorbed. Until someone can define what Polyethylene Glycol--Miralax does once it get's into the circulatory system, I'm against it.
Please, get your path reports from the last scope. And take any CT scans of the abdomen &pelvis reports. Any ultrasound reports too of abdomen or pelvis.
Posting this on the board too.
Good Luck. 0 -
Thank you sas! Going to call my family doc and have the appt made. I know there won't be any problem getting in with a GI doc here. Like I said earlier, I am ok to wait since the bleeding and pain have stopped.
My original question was, with rectal (or any) bleeding, should I take Omega 3 fish oil supplements?
0 -
Bev that's a hard question on Omega3. The easy answer is ask your doc. Omega3 is the cavalry that helps to control and interfere with all the negative prostaglandins produced by the Omega6. Say they're roughly 30 prostaglandins produced with Omega6 as the precursor. Half of them have negative affects.
Omega3 has been processed out of our diets. You could try a diet higher in Omega3 and thus avoid supplements. Flax seed freshly ground is a great source for fiber and Omega3. But flaxseed is very high in Lignan. They're has been mixed reporting on lignans and BC. I switched years ago to fishoil b/c of this.
0 -
But SAS - were my docs correct that it does thin the blood?
0 -
MT every thing is relative. Our body is meant to be in balance. In a previous time before 1900 and the introduction of processed foods. Food was home grown or obtained from the land. Soils weren't depleted of nutrients. Crops were rotated. Then pesticides and food processing were introduced. Over time less and less crop rotation was done. Food was produced but with less nutrient value as the soil was depleted. Crop rotation allowed the soil to for lack of a better description to remain strong. Crop rotation allowed for natural resistance to destroying insects.
The need for Omega 3 was observed back to Pharaoh times in Flax. The earliest finding in an Egyptian tomb was several thousand years ago. Those that ate Flaxseed were healthier than those that didn't. Charlemagne decreed that his subjects eat a serving a day of flaxseed.
In the 70's research was heavy into finding out why Japanese and Inuit had less cancer. The conclusion was diet. A diet that was high in fish that was heavy in good fat. That chemical(bad word , but will do) in the good fat was identified as Omega3.
Omega 3 is a essential fatty acid as are 6 &9. I forget what the ratio should be, but in our processed world 6 is predominate. The balance is disturbed. EFA's must be obtained by diet, as they can't be fabricated/made by the body. Interesting that we didn't develop this ability over time.
I first started reading about Omega3 in 1997, with my first episode of diverticulitus. I wanted to do something to protect the bowel. I came across Omega3. I started taking it. Did great things for the bowel. Over about three months I saw a great difference in my skin. Over time I was faithful and then fell off. I' have had my cancer troubles, but think without the Omega3, I wouldn't be here. My genetics are awful as you know. I think the number is 25:53 with primary cancers. I've faired pretty well, considering those numbers. If my twin and brothers were compared on certain things, it would be interesting. One very visible thing is varicose viens. Nada for me. The three of them are quite variable. But you know me I like studies, I've read on it over time, but haven't revisited the subject in awhile.
What is relative? Thinning of the blood so clots don't form--Good. Thinning so we bleed not good. If you are on Omega3 and are cut you will not hemorrhage. Omega3 helps in the prevention of vessel plaque-Good. Omega3 helps in cholesterol balance, cell wall stability, glucose tolerance. Cancer prevention. All kinds of good things. The ideal is to get it from diet. If we can't get it from diet, then we need make sure we aren't deficient by taking a supplement. The reasonable thing is to not take it before surgery, then resume after surgery at a reasonable point a few days.
There used to be two books I recommended. "Omega3" by Rudin. It's what I called a primer. Written for the layperson. "Fats that Heal, Fats that KIll" by Udo Irasmus" . Irasmus spent about 50 years researching the Essential Fatty Acids. I called his book the Bible of Essential Fatty Acids(EFA's).I f you choose to read his book, it's very important that you read the forward. He explains how to read his book. If you were to bypass the forward, and go to the first chapter, you would so fast close the book. It's all chemistry. The forward explains all. I won't try to replicate it here.
The study of the Essential Fatty Acids likely doesn't get much attention in Medical school, just as nutrition doesn't. It certainly, wasn't mentioned in nursing school in the 70's, but that was a very early time in the understanding of EFA;'s. How much is taught today no clue. BUT the fact that so many docs caution about bleeding is interesting. Also, it's interesting the slow , but steady support for Omega3 as a supplement. When I first studied it in 1997, I predicted that within 5 years(2002), it would be known within the medical community and it's use would start to spread. I predicted that in 10 years(2007) that it would be known by the general public. It happened just that way. Now Omega3 is mentioned in so many things, and included in so many processed foods as an additive.
Everything is relative
When docs say don't take it, It tells me they haven't studied EFA's, otherwise they're would be better instructions.0 -
SAS - thanks for the info. I agree, they probably weren't taught or don't know - just like with LE. Anyway, I'm a believer. I take 2 - 1000 mg softgels per day. And I'm going back to Vit E. I ran out a month ago and have been experimenting. Joints are all getting much more creaky and trigger thumb is worse.
Obviously off target. On the subject at hand, I still need to eat 3 dried prunes every 3 days to stay regular. I guess I could do one a day, but they're not my favorite things so I don't remember. They do work tho.
0 -
MinusTwo
Have you tried prune juice? Prunes are not my favorite either, and I was thinking I'd try the juice instead. I eat 3 a day. Thinking to try the juice when I run out.
So far doing good (fingers and toes crossed) on the chewable fruit fiber supplement and Colace, am now now 9 days past colonoscopy and no Constipation.
Dsgirl
0 -
dsgirl - Yes I've tried the juice and it doesn't work as well for me. Takes a lot more to get the same result. I really don't hate prunes. Just have to find a time of day to eat them that doesn't cause a "cross flavor" problem.
0 -
I tried everything for constipation 7 years ago when on pain meds and my onc nurse suggested several things, none of which worked - Miralax was new at the time and it didn't work for four days!!!
Anyway in desperation this nurse suggested WARM prune juice and it works in three hours - I tried 8 ozs. and it worked like a miracle but the last time I took 8 ozs. it worked too well so I cut it back to 4 ozs. I am currently on Faslodex and constipation is my constant companion so I eat 6 dried prunes a day and eat a high fibre diet - I save the prune juice for the few days after the shots when things are tough. I have taken stool softeners at night before bed on occasion (I take 2) but prefer the juice above all - I buy the unsweetened and add the sweetener myself.0 -
208Sandy, I'm going to try the prune juice. If I eat 6 prunes then I have explosive diarrhea. So I going to try 2 ozs. of the prune juice and see what happens. Will let you guys know.
0 -
Just an FYI--I went to our local farmers market and found some prune plums. They are a God-send. I usually eat 3-4 per day and BM's have been normal. I also take fiber with plenty of fluids. Good luck everyone with this plugged up problem.
0 -
Hello! I'm just popping in to say Thank You for starting this thread. I'm on my second week of a 12-week chemo program. I had the opposite problem,diarrhea, the first week. This week I was constipated for two whole days. Then I bought a mega-probiotic with 30 billion bacteria or something crazy like that! I took it last night and although this morning I had a headache and nausea SE's, I think the probiotic actually worked. Also had a smoothie for breakfast yesterday and included in it a scoop of organic fiber supplement and some ground flax meal. It was a tad bit grainy but didn't taste terrible and I suspect it helped too. Good luck everyone with beating your constipation on the way to beating your cancer!
0 -
Hi Mommy2B, I'm a big believer in Probiotics. Started studying the subject in the days of yon. 1970's. The word probiotics was coined in 1995. I take them almost daily. They are bacterial organisms meant to replenish the bacteria of the gut. Many of the chemicals that we take can alter the bacteria in the gut. Even foods.The science behind this has become very strong The word coined in the last decade or so is the biome or microbiome. The science is identifying specific strains as being more beneficial than others.
I did a thread on weight and as part of the learning process we meandered into the microbiome. I will link it an you can read what interests you. The study of the biome/microbiome will be exploding for the next decade or so.
A few cautionaries. Probiotics in a reduced immune state can be trouble. They are bacteria. In a reduced state they're is a possibility that they become a problem versus a benefit. Avoiding them during the week of chemo and the next week maybe two is a consideration. What we need is some evidenced based research on this. If anyone can locate some EBR it would be appreciated.
Buy from a reputable health food store. Not GNC, Walmart, Walgreens. Target. There was a big expose in the spring of 2015 re: these companies and their supplements. Google "New York Attorney General and fraud and supplements 2015", if interested. Buying on the internet can be a problem too. One b/c you don't know about quality and two the product might be subject to heat extremes that may affect the bacteria.
High quality health food stores work with their suppliers to assure the product is protected when shipped. Some companies products need to be refrigerated and are cold packed shipped. Other companies product do not need refrigeration, but shipping still can be a problem in areas of high heat.
On the weight thread I was just getting into the search on diet that best supported the microbiome of the gut. I hadn't completed the search. Roughly. low fructose foods( there is a link), Mediterranean, and Paleo diet support the little buggers. Again I hadn't finished.
Link to weight thread
https://community.breastcancer.org/forum/73/topic/832722?page=1
beginning discussion on diet is on page 3
Additionally, as a result of studies based on the Hygiene Hypothesis, Foods that are obtained from local sources carry more good bacteria, than foods from distant places. Fruits and vegetables from big commercial sources use irradiation and chemicals to kill bacteria to prolong shelf life.
0 -
Please, don't miss scanning from the beginning. Many have offered suggestions. Prunes and Apricots have been the most often identified products for a better go
Thank you to all the new folks offering suggestions. In the end, it will be helpful for a great output.
0 -
Make sure that it is WARM prune juice - makes all the difference!
0 -
Thanks 208 Sandy, I am wanting to try the juice, and will be sure to warm it, those wrinkled prunes in a way tastes OK to me, but I happen to have a bit of a problem chewing the skin properly,
dsgirl
0 -
DSg, That's why I suggested reading through from the beginning, so many had suggestions and different recipes from members. I did a tally of I think the first 8 pages. You will see it if you roam back. Prunes and apricots were the most used. Many different ways and recipes. I didn't do a tally since that time, I don't think.
Stewing the whole prunes will break down the fiber of the skin. The fiber of the skin is an excellent natural source of fibr. Same with the apricots.
Sandy, I remember when we had hotplates that were in the nourishment rooms on the nursing units before they were outlawed b/c of fire risk. Of course, the primary use was for tea, prune juice, and broths. We did have separate small commercial coffee makers, usually Bunns. Warming foods that were allowed from home was just one extra use of the hotplate. The invention of the microwave made it so much easier. LOL. Think of that memory......life without a microwave. Hmmmmm, I'm old.
Also, reminds me of going to The Henry Ford museum in Detroit( my hometown). shortly before we moved to Florida in 1992. Henry Ford believed in preserving the tools of every day life. DS was 7. I was dismayed that many items I grew up with were on display and I was only 42.
MT we always diverge. That's what's nice about we can do what we want(mostly)
As you can see I just diverged off to HF museum 0 -
Thank you Sassy, I did go back and read some time ago, and found some things that worked for others, one was the Cascara Sagrada that seemed to work for me when I was constipated.
Recently I had a colonoscopy (Aug. 20th) and the doc. nixed the C.S, said prunes, fiber supplement and Colace, and knock on wood, so far so good, regular BMs, but it's only been 11 days. If the warm prune juice does not work as well as the prunes, I will stew them and see if I can chew the skins better. I suppose when plums are available fresh in the store, I could stew them as well.
I am sure this thread has helped many besides me, I am thankful.
Dsgirl
0 -
DS, good , glad it's helped going back. Even the camaraderie. Lot's of puns.. I think mixing up approaches helps too. Gawd I'd have to restudy cascara to even have a clue LOL. Haven't thought of it literally in decades. You wouldn't happen to remember what page. Is it possibly in the page where I wrote something on all the stuff pg.10?
0 -
Sassy, it was one person recommending the Cascara because it worked for her, I may remember this wrong, but seems to me it was around the time someone mentioned a product called: Linzeeze- sorry don't remember the spelling of it, and you cautioned us about a new product on the market, but glad it worked for her. Yes lots of puns for sure, since alot of us were full of chit.
dsgirl
0 -
Ds, I went and looked at page 10. I did a thing about all the different classes of things that can be used. This is the section that included Cascara
5. Stimulant laxative: Induces bowel movements by increasing the contraction of muscles in the intestines, and are effective when used on a short-term basis. Examples of stimulant laxatives include aloe, cascara, senna compounds, bisacodyl, and castor oil. Bisacodyl (Dulcolax, Correctol)
http://www.medicinenet.com/laxatives_for_constipation/page6.htm#stimulant_laxatives
-------------------------------------------------------------------------------------------------------------------------------------------------
Their is a distant memory about cascara, It'll probably wake me up some night.. This was on WebMD
cascara Overview Information
Cascara is a shrub. The dried bark is used to make medicine.
Cascara used to be approved by the federal Food and Drug Administration (FDA) as an over-the-counter (OTC) drug for constipation. However, over the years, concerns were raised about cascara's safety and effectiveness. The FDA gave manufacturers the chance to submit safety and effectiveness information to answer these concerns. But the companies decided the cost of conducting safety and effectiveness studies would likely be more than the profit they could expect from sales of cascara. So they didn't comply with the request. As a result, the FDA notified manufacturers to remove or reformulate all OTC laxative products containing cascara from the U.S. market by November 5, 2002. Today, you can buy cascara as a "dietary supplement," but not as a drug. "Dietary supplements" don't have to meet the standards that the FDA applies to OTC or prescription drugs.
Cascara is used as a laxative for constipation, as well as a treatment for gallstones, liver ailments, and cancer. Some people use it as a "bitter tonic."
In foods and beverages, a bitterless extract of cascara is sometimes used as a flavoring agent.
In manufacturing, cascara is used in the processing of some sunscreens.How does it work?
Cascara contains chemicals that stimulate the bowel and have a laxative effect.
0 -
Thanks again, Sassy, my doc. did not say why I should not take Cascara, but I do see in your notes it mentions for short term use for constipation, I used it for 7-8 months, because the Miralax he had recommended worked too well, I ended up with diarrhea when I used it, however it did cure my constipation, lol. I do take calcium with D, to help against my osteoporosis, and I have read Calcium also can cause constipation. I really am on too many meds and supplements, so it's no wonder I have issues. I have several health issues, Low Thyroid, High BP, High Cholesterol, got a coronary stent in 2004, so I do take the BP meds, and thyroid meds too, nothing for the Cholesterol. I ordered the Cascara online, there is only a Chain Drugstore available in my neck of the woods, and I learned here on BCO most chain drug stores quality of their supplements are not too good.
Again thanks for the info.
dsgirl
0 -
MinusTwo and Sassy- Hello again,
Found that the prune juice does not do a thing for me. I tried the recipe for stewed prunes, golden raisins and apricot, it does not look real appetizing, but tastes great, I can chew the skins now, and it works for me. Funny how some things works so well for some, but not for others. I suppose the prunes stewed like Sassy suggested would work too as far as me being able to chew the skin properly, but the combination of the 3 dried fruits, really pleases my taste buds, so I will stick with that. I have my followup visit with doc. that performed the colonoscopy on thursday, and will be able to tell him the colace and fiber supplement plus the prune/apricot/raisin stuff is doing the trick. I do feel very bloated after taking the fiber supplement, but have no pain from it, and it does go away within 1 hr. or so I drink plenty of water, would like to cut down on that but don't dare, because I make a bathroom run to pee 2-3 times every nite, but do get right back to sleep.
PS: MinusTwo, I had purchased the raisins to make the drunken raisins for the neuropathy, and never got the Gordon Dry Gin, did you ever try it? I got sick on sloe gin once, and even the smell of it makes me gag. Does it smell the same as Dry Gin, hope not.
Dsgirl
0 -
dsgirl - funny that the raisins are sitting on my cupboard and have been for several months. And I have no excuse since I drink Gordon's Gin occasionally and keep it on hand. Just never remember to get cheesecloth, and I know if I used a clean dish towel I'd immediately spill the whole mess. I actually got out a nice clean jar a couple of weeks ago so as to be ready, but....
0 -
I found sushi nori seaweed sheets work for me. I got the boxed seasoned (salty) ones from Costco. If you google nori, you can see pictures.
0 -
Has this happened to anyone? I recently increased my use of oxynorm and being aware of its SEs upped my fruit intake and thought everything was functioning normally. I didn't think I was constipated. So I awoke on Wednes morning with a headache and nausea. I took my usual meds and some paracetemol and stematil (anti-nausea) but headache and nausea got worse. Then I took two neurofen,but headache and nausea increased. I rang the hosp and one of the onc nurses told me to take oxy-norm and a different antinausea med. That worked and I thought I had just picked up a virus. Next morning I woke up with headache etc, took oxynorm and antinausea and promptly threw up. Phoned hosp and onc said to come in for ct brain scan. It came back ok. I suddenly thought could it be constipation? So I took a laxative when I came home and after going to the loo that evening I woke on Friday feeling ok. So my question is - can you be constipated and not know it? Also can constipation give you a blinding headache and v bad nausea?
0 -
Aoiba. My two cents is yes.
Yes you can not realize you're constipated until you're miserable
Yes it can cause nausea from being backed up
Yes it can cause a headache if you're dehydrated
Yes it could have been a virus
These meds have all kinds of SEs. You might not have been aware of how potent the new meds were and your body was adjusting. If it happens again, I would definitely call the dr.
My solution besides prunes and beans and carrying a water bottle everywhere is 400 mg of magnesium at night. Initially you may have some belly pains but you will be regular. An SE is that it helps you fall asleep. Finally as good SE!
Hope you are doing well otherwise.
0 -
Yogagirl, thanks for the links and the info.
Zills, thanks for your two cents. You know, I always thought you'd feel blocked up or feel pain with the dreaded constipation. Does your bloodwork show if you're deficient in magnesium? I ask because my onc doesn't want me to take any supplements and I want to check it out before I approach him. How are you doing?
Hugs xx
0 -
Sas, just wanted to check in with you. So I finally did a stool sample and it was inclusive as apparently I didn't put my birthdate on the vial. The vial didn't require it so I had to do another sample. Yay, sample was negative for any parasites. That med that the infectious disease doctor prescribed did the job. After 20 years, I'm parasite free. On another note, I was around my friend's grandkids and I ate out lunch after our labour day weekend. Either one cause me to have diarrhea. Diarrhea for a week. Man I was wishing to be constipated. Finally over it but rear end is sore. I called the doctor's office for a requisition so I could submit a stool sample and they didn't send it. I'll still do one just to see but I hear a lot of people were also having a bout with diarrhea!
0 -
I don't know the answer. I would think it would help with the bones. They sell a cal-mag supplement. I was told to take two calcium pills a day. My PCP okd the magnesium.
Once you start it and you are regular, it's awesome. Much better than those veg fibre pills which I was told by onc to stay on during chemo.
Too much pain pills and nausea pills can make you miserable/constipated. Worst misery I ever had. But it wasn't sudden.
Having ovaries removed next week so I can go arimidex. Tamox stopped working. Three spots in lower spine/hip. Just tired. Some pain but think it's more weak muscles. Chasing kids doesn't help.
0 -
Oh you poor thing. Not easy having an op with two active kiddos. Will you have to stay long in hosp? Hope that you'll have support when you get home. Hopefully arimidex will do the job on thoses spots or will they radiate them?
I didn;t realise nausea pills made you constipated. Must look into getting the magnes as I feel laxatives can be counter-productive (ha ha).
0 -
I meet with surgeon tomorrow but it's supposed to be drive-by, keyhole, laparoscopic. I love all these terms. Just outpatient.
More worried about fatigue the following week than pain. Will rescan in Jan and see if arimidex and xgeva are beating it or try something else. Just happy to have dodged chemo.
0 -
JUdi-----------yeah send that doc a cigar LOL. How did you find him? Shorty story again please?
Zills good luck
Aio---yes, you can be constipated and not know it. On the headache thing, this is related to pressure----the distended abdomen can push on the great vessels (aorta and Vena cava) and the diaphragm. That would create swelling in the ankles from limiting blood flow from returning by the Vena Cava route. It can create a backpressure on the Aorta b/c of limiting forward flow. that could create a headache. Generally, it would create a felling of fullness in the neck, and a sense of pressure behind the eyeballs. The nausea can be from direct pressure on the nerves in the abdomen especially around the stomach.
A simple example is put a BP cuff on your arm. Don't let it deflate. You will sense what I mean.
0 -
Had to share this---too funny---tooo true
0 -
Sas, love the Cat in the Hat post. Found infectious disease doctor through referral as I was going to South Africa. Unfortunately, he is older then me so will likely retire in the next 5 years.
0 -
I have been suffering severe constipation since chemo started, only having a bowel movement about every five days, and then it was excruciating. It was so bad I was going to quit chemo. I went to palliative care and they set me up with their "pooping protocol". It is working for me and is different than anything my chemo nurse said to try. So if you're really stuck (pun intended), here it is verbatim. I am not a doctor so use at your own risk
Hydration! Dehydration is the number one cause of constipation along with pain and other medications. Drink water, gatorade, diluted juices, etc, mix it up! IT WILL BE KEY TO BE VERY REGULAR IN THE TWO DAYS GOING INTO YOUR NEXT DOSE OF CHEMO.
Prevention of Constipation
The medicines for pain and nausea make the bowels slow down, so you'll need to take a stimulant laxative every day to counteract this. This is essential, because severe constipation can require hospitalization.
Goal: You should have a bowel movement every day or every other day. Do not use fiber supplements, get your fiber from foods you enjoy, oatmeal, prunes, green smoothies etc.
Purchase the following over the counter products at your local pharmacy.
- Sennekot 8.6 mg tablets (sennagen)
- Miralax, powder form
- Milk of Magnesia liquid form
- Bisacodyl (dulcolax) tablets
Keep these in your home so that you can stay ahead of your constipation
Prevention of constipation EVERY DAY NO MATTER WHAT
- Please start Senna: 1 tablet twice a day, every day to prevent constipation. You may gradually increase this dose to reach the goal of 1 bowel movement at least every other day. (up to four tablets twice a day)
- Take one dose of miralax (one capful) every day. (My nurse had me start with 1/2 a dose every evening and that seems to be working. )
- You may hold these medications for 1 day if you are having frequent loose or watery stools.
Rescue Treatment for Constipation: IF NO BM BY DAY 2
- If you do not have a bowel movement on day 2, that evening take Milk of Magnesia 1 ounce by mouth at bedtime or Bisacodyl tablets (2 to 4 tablets)
- Next morning (day 3) If no bowel movement Reapeat Milk of Magnesia with 2 ounces by mouth or bisacodyl tablets 2-4
- By afternoon if no results call your doctor for advice. Also call if you have severe cramping or abdominal pain, or you cannot pass a solid stool but are having uncontrolled liquid stools.
0 -
Raven , nice list. Please don't forget to go back to the beginning and read. Many, many members have offered many ways to combat constipation. Not everything works for everyone. It is a trial end response. (nice typo hahaha).
0 -
sas-schatzi wrote:
Cheerleading for BCO. They are our home, our resource, we gain so much by being here. They have costs. Let's help.
They make periodic requests by email. They're is the donation link in the header. An easy way for those that do online banking is to set up a donation on a predictable basis.
We need to do this. They take care of us. Let's make sure we take care of them.
You don't have to send a check. Do it simply in your online banking. But if you are still stuck on checks.........
To donate by mail, please send your check payable to Breastcancer.org to:
120 E. Lancaster Avenue | Suite 201 | Ardmore, PA 19003link to BCO Our biggest advocate
https://community.breastcancer.org/forum/110/topic/834331?page=1
Link to the mainboard donation page
0 -
Sas-schatzi,
I did indeed read from the beginning many times, as I was trying to get some relief, with no results... I just posted the written instructions given to me by my palliative care team at Kaiser Permanente. I've been delighted to start pooping again! If this works for other women, that's great, I am not saying its the only way there is, just sharing information that worked for me.
0 -
Raven, no not indicating anything negative. Just used it as an opportunity to suggest a look see at other ideas here.
The plan your team has put together, gives you a concrete "TO DO" list. A cook book recipe so to speak. I applaud them for taking the time. With all that happens to us--surgery, test, treatments.......it's constipation that can bring us to our knees crying for relief. 0 -
Sas-schati
Amen to that! Anything for relief from the scourge of constipation!
0 -
Raven they're is a companion thread Rectal Issues. Often constipation leads to rectal problems. It's in stage4, but info is universal. No one complains when I bump it. The link is in the topic box here.
0 -
So - I have an unusual re-discovery to share that's working for me - crazy as it may seem. Since I believe in everything in moderation, this will fit nicely w/my life style.
Much of the last 20 years my drink of choice was Gin & Tonic. As long as I had one a day or every other day, I stayed regular. I attributed it to the juniper berries, but it could just as well have been the quinine - who knows. I mostly quit drinking w/chemo, and when I finally felt well enough to enjoy it again, I gravitated to red wine. I recently went on a lovely "leaf cruise" and started drinking G&T again. And voila - regular as clockwork. Absolutely nothing else has changed, so.... It's gin again for me!!
0 -
Ha, ha MT! No gin and tonic for me tonight .... Metamucil it is. Got on scales today and it said I gained 2 lbs. There is no way this happened. Told me exercise guru and first things she asked me "have you had a good bowel movement". Of course my answer was "NO". So nowhere to go tomorrow so gulping it down tonight!
0 -
Does anyone know if eating prunes (and how many?) is more efficacious than drinking prune juice? Or if taking mag. tabs is better than senokot? Am trying to find the most natural long term solution. G&T sounds good but sadly I've gone off alcohol since dx.
0 -
Aoibheann.
What works for one, many times does not work for another person. Even the amount of prunes used, or how many ounces of juice used. I find the stewed prune-concoction of Apricot-Prunes and Sun dried raisins works best for me. it was posted here. I usually eat it on top of some greek yogurt, not a pretty looking topping, but tastes very good and works for me. This is not the only thing I use though, 1 chew 1 or 2 fruit flavored fiber supplement as well, every day. No constipation for approx 2 1/2 months. I'd be tempted to try the gin and tonic that works for MinusTwo, a lot less work. lol. I have no experience with Senekot, sorry, I do take magnesium but not for help with constipation. I take calcium with D, potassium, and magnesium for my bones as I have osteoporosis. I think it was Sassy that suggested to read from page one and see what works for others if what you are trying is not working for you. Maybe you will find something that works for your body. Good luck.
dsgirl
0 -
Aoibheann, I was told by my doctor to use Senekot but to be very careful as it is not to be used for long-term use. I tried prunes from COSTCO and I ate 7 prunes. Man, diarrhea city. I started eating jujubes because I love them and they work but once off of them, I became constipated. Going for the big kill tonight with Metamucil and then try and get back to normal.
0 -
Prune juice doesn't do much for me unless I drink large quantities. And I can NOT do stewed prunes, since they were often served when I was a little kid (before frozen foods when everything was canned) & required eating. No matter what my throat says, my brain would say "barf city". However, I can eat 3 dried prunes a day and usually I'm OK. In fact I found a grocery store to buy some at my first cruise stop - before I discovered the G&Ts work.
My docs all said plain Colace was a first line prevention for all my surgeries. (pain meds often cause constipation) It's just a stool softener, but usually that's enough to get me going (pun intended) after the little hard balls are forced out. And it's not addictive like a laxative. I probably still take one every month or two when the rabbit & deer pellets start to back up.
Judi - I'm going to get some Jujubes. I haven't thought of them in years.
0 -
Dried prunes - each one has five grams of sugar.
0 -
Wow Marijen, I never thought to look at the sugar. Both packages I have say 5 prunes are 15 grams of sugar. I rarely look at sugar in things, only sodium. Thanks for the tip.
0 -
MinusTwo, you know how PetScans work? You don't eat carbs for so many hours, you fast, and then they give you a big drink of sugar water. The sugar goes straight to the cancer and inflammation areas in your body and then they scan. Cancer loves sugar, you need some glucose but not too much. Chisandy can explain it better. Just remember sugar feeds cancer.
0 -
My wife is currently finished with 6 cycles of Carbo/Gem,(2015) before that, in her other breast, she had TAC chemo(2009)....she had gastro-intestinal problems ...
Her constipation was relieved by a fiber supplement from enzyme supplement we buy from Amazon:
http://www.amazon.com/gp/product/B000GFSVPU?psc=1&...
( this is essential enzymes by Source Naturals)
The fiber I can't find a picture of on Riteaid web, but it's not the over-priced Metamucil brand, it is THIS:
RiteAid Multihealth fiber supplement / psyllium husk 3.4gm / net wt. 48.2oz/ 114 doses/ orange flavor.
If you need a picture of it, I will post it. hope this helps
0 -
Marijen - I'm not hormone plus, so the sugar doesn't do much to my cancers. On the other hand, I do believe in "everything in moderation", so I haven't totally cut out anything.
0 -
MT, finally the Metamucil kicked in after I had a coffee. Then I had lots of jujubes to kick start tomorrow morning. Going to a birthday bash so I don't want "no problems"!
0 -
I don't think hormone plus or minus has anything to do with sugar making a beeline for the cancer....
0 -
Thinking(surmising) is not knowing.....................................Please post Evidenced Based Research. Thanks
0 -
Here's one, there are plenty more.
0 -
Marjean didn't say you were wrong. Just asked for backup. EBR is back up. Your link goes to an article. The problem with articles is the author can pick and choose from research about what they think is important. If the article author has a particular bias, the can sway the reader by links connections. The average person doesn't have the time or inclination to read studies in their entirety. Studies can be a PITA. They can be so dense with data, they are unreadable. Seems to me there is an old joke. Dazzle them.......
But, I agree on the sugar to a point. I suggest that you look at this link to a topic on weight. It was my topic. While waiting for any response to the topic, I got to reading on the Microbiome. You will have to do allot of study in reading to add to you knowledge, but I think you will enjoy the ride.
I stopped abruptly b/c the studies got to the point of defining diet. What it lead to was a Paleo diet. Likely, Mediterenean(sic), Japanese were of consideration, but I didn't go that far. I lost interest for the subject at that moment in time, b/c I went onto another thing.
https://community.breastcancer.org/forum/73/topics/832722?page=1
0 -
OK SAS wants research - Of course there are plenty of articles that one could pick to argue either side of any issue. However a couple of those sites that I personally tend to rate highly are quoted below. I did find several articles that surmize that sugar does fuel the growth of estrogen - but again, since I don't have hormone positive cancer - those aren't of interest to me. Sort of like the soy issue. Sorry of that seems selfish but we all have more info than we can possibly understand & remember even if we stick to our own specific cancers.
American Cancer Society: "A myth says: "Sugar feeds cancer." But the truth is that sugar doesn't make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn't make them grow faster and starving them of sugar doesn't make them grow slower." http://www.cancer.org/cancer/news/features/how-you...
Mayo Clinic: "Fact: Sugar doesn't make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn't speed their growth. Likewise, depriving cancer cells of sugar doesn't slow their growth." http://www.mayoclinic.org/diseases-conditions/canc...
CTCA: "There is no conclusive research on human subjects to prove that sugar makes cancerous cells grow and metastasize." http://www.cancercenter.com/discussions/blog/does-...
0 -
Sorry SAS - we were posting at the same time. You are right, this isn't really a constipation issue.
0 -
MinusTwo, Thanks for the info on sugar, I am relieved about that, since I am 95% ER positive, and really am enjoying my stewed prune-golden raisins and apricots, it is very sweet, but I like sweet, it's all fruits, so should be fairly healthy? I use sugar in my coffee and teas as well, love raspberry preserves, more sugar, eat York mints, ok, I better stop, as you said it is a constipation thread. Glad you posted the myths anyway. If I grow tired of the stewed stuff, I am gonna try the easy remedy that works for you, MT. it may work for me too. I used to drink the tonic water as it helped with leg, foot cramps.
dsgirl
0 -
HEY, WE CAN DIVERGE okay by me. Thread starter has lot's of say. Go with what you have
0 -
interesting....................................
0 -
MT I originally thought your posts would dovetail into the weight thread, but they don't. I did find the answers we needed re: the remedy. I took a pain pill so up most of the night.
0 -
The question related to stewed prunes, raisins, and apricots used as a constipation reliever. The basic question is related to sugars. The link is to a list that ranks fructose in fruits.
http://fitnessprohealth.com/high-fructose-fruit/
The following is from above article: "Fruits with higher than 4 grams of fructose are considered high. Common high fructose fruits include all dried fruits(emphasis mine), grapes, apples, pears, cherries, pomegranate, kiwi and blackberries. Consume fresh, low-fructose whole fruit in moderation. Low fructose fruits include: strawberries, bananas, cantaloupe, pineapple, peaches, grapefruit, limes and lemons, avocados and tomatoes, apricots, mangos, and plums."
From the study "Mechanisms linking gut microbiota to obesity, IR, and type 2 diabetes" "Mice consuming high-fructose solution for 8 weeks showed a 27-fold increase in portal endotoxin levels, coupled with a significant increase in plasma inflammatory cytokines, hepatic steatosis, and IR, compared with water controls." Dried fruits would appear to negatively influence overall gut health, but the amount used is small. When put in light of the problem of constipation severe enough to require daily use of a remedy, one could choose the natural remedy or use an osmotic laxative.
YAY, Found an answer first try. Considering it's 5:30 am, that's very nice. The following was copied and pasted from this link. Our constipation remedy is high in sorbitol which is produced in a reduction of glucose.
http://patient.info/health/constipation-in-adults-leaflet
Sorbitol
Sorbitol is a naturally occurring sugar. It is not digested very well and draws water into the gut, which has an effect of softening the stools. In effect, it acts like a natural osmotic laxative (osmotic laxatives are explained later). So, you may wish to include some foods that contain sorbitol in your diet. Fruits (and their juices) that have a high sorbitol content include apples, apricots, gooseberries, grapes (and raisins), peaches, pears, plums, prunes, raspberries and strawberries. The concentration of sorbitol is about 5-10 times higher in dried fruit.
Osmotic laxatives
These work by retaining fluid in the large bowel by osmosis (so less fluid is absorbed into the bloodstream from the large bowel). There are two types - lactulose and a group called macrogols (also called polyethylene glycols). Miralax is a polyethylene glycol.
Conclusion:
Sorbitol is a naturally occurring, but it is also a manmade sweetner. The question under discussion is in re: to prunes, raisins, and apricots in which sorbitol is a naturally occurring sugar alcohol. https://en.wikipedia.org/wiki/Sorbitol . Manmade sorbitol is an entirely independent study from our remedy.
Use the minimum amount to accomplish the goal of a movement. Use with caution in diabetics because of affect on blood glucose. For those that have irritable bowel syndrome, it may aggravate their condition.
Further study would be needed to determined affect on gut microbiota and dysbiosis. (gut bacteria and imbalance of gut bacteria)
0 -
Sheesh, I spend my nights doing such exciting things...................
0 -
Oh no Sassy, up all night, did the pain med at least get rid of the pain although it caused insomnia?
Thanks for all the info above, trying to digest it, no pun intended. I have found that coffee in the am also tend to send me to the bathroom for relief, the other stuff I use to stay regular, are making me feel slightly bloated, I am skinny, 5' 6", 114 lbs, but do show a gut, but it beats going 4-5 days with no BM, and then having to use a laxative, which cleans me out, then diarrhea for the next 2 days Normal body functions just worn out at this stage in my life I think. My blood glucose readings always in the low eighties, actually wake up in the morning feeling very hungry, and a bit shaky, and need food right away.
dsgirl
0 -
dsg mostly it's okay. If I knew I was gonna have pain woulda taken it earlier ---like yesterday morning and then I woulda slept. Worked out well though. I was able to concentrate on finding an answer on why are simple natural remedy works :0 Always took it for granted. It just did. But they're is a real reason. Yup, coffee was the go to drug to get a go.................have a great day
0 -
Let's see a simpler answer on the remedy. It's perfectly designed to do what it does.
0 -
Dsgirl, Have you talked to your doc about how you feel in the morning. A morning fasting blood glucose of 80's is normal(70-100). When you talk with your doc ask him if doing a protein/ and carb snack before bedtime would help the way you feel in the morning. Proteins take longer to metabolize. Would keep your blood sugar more even. Frankly, I would love that. All I'd do is pile on some Lbs.
0 -
Morning Sas! Here's one for you to start you day!
0 -
0 -
Good morning Sas! I posted the above for your morning laugh!
0 -
Thanks Sassy, I never asked any doc. about the urge, need to eat in the morning when I first get up. just figured it's been a long time since I had something to eat, and lived with it.
I do eat a granola kind of bar each day, will have to look if there is some protein in it, know there are carbs, honey usually, could certainly eat one at nite and see how it goes.
Judi, love the poster, don't think I could get in that position, lol.
dsgirl
0 -
Hi dsgirl! Thanks for the love of the poster. I just thought it was so appropriate. I do wish that I would have a regular bm. If I take Metamucil then I go then don't for about 3 days afterwards. Uggggh!
0 -
Judi, it's so trial and error to find something that works for each one of us, I think I finally have what's right for me, but it took a long time, am using several ideas found in this forum. It just seems like such a
"job" to remember to DO each thing every day, miss the days when I did not have to think about what I ate, but they are a thing of the past.Good luck to you finding your "cure"
dsgirl
0 -
0 -
LOL Judi --cute
dsgrl, it's always sumpin...............Have you tried probiotics?
0 -
OK - SAS, I know you saw this on the Insomniac thread, but I think it's relevant here too. Any Judi is daring me to go ahead, so...
0 -
MT I love it! Wouldn't it be fun if eating pumpkin pie really "made you go". I would eat it every day. It's like going to a baby shower and guessing which "melted" chocolate bars are in the baby diapers. Who every came up with this pic as a great sense of humour!
0 -
Well now Judi, since you've been on Insomniacs and we were talking about our dogs eating foreign objects. Twice my dogs have had to eat pumpkin pie filling to help PUSH through something. For my Schatzi it was baggie and a tie. Even my friends stupid dog that ate glass was told by her vet to use pumpkin pie filling after he was released.
So it, might be worth alook.............for us LOL.
0 -
You gals are so funny, but you did find something. This describes it's use in diarrhea and constipation in dogs. Still looking for human info.
http://raisinghealthydogs.com/discover-the-health-benefits-of-canned-pumpkin-for-dogs
Yup, bunches of web sites that have pumpkin in their lists for constipation remedies for humans.
Enjoy your pie
0 -
SAS - how funny about the dog guts. I've forwarded to my son. Guess I'd better buy some canned pumpkin for me. I was thinking about pumpkin muffins this week anyway.
0 -
Isn't life just a bowl of pumpkin.
0 -
Well now MT, you have to invite Sas and I for "pumpkin muffins" or at least Fedex them to us! I'm in!
0 -
Side Effects of Pumpkin Seeds
Last Updated: May 10, 2015 | By Meg Campbell
A close-up of roasted pumpkin seeds. Photo Credit Chunumunu/iStock/Getty ImagesIf you're a fan of pumpkin seeds, you probably don't need to be convinced that extracting them from their pulpy web is worth the effort. Including whole pumpkin seeds in your diet -- chewy white shell and all -- is an easy way to boost your intake of unsaturated fat, dietary fiber, zinc, iron, magnesium and vitamin E. Although pumpkin seeds are undeniably healthy, they can be a source of undesirable side effects.
Pumpkin Seeds and Indigestion
The first thing you'll notice when you pop a few pumpkin seeds into your mouth is just how chewy their shells are. Whole pumpkin seeds are an excellent source of insoluble fiber, the kind that promotes digestive efficiency and bowel regularity. Despite these important benefits, whole seeds can be tough, stringy and difficult to chew thoroughly, which may lead to indigestion. Poorly chewed pumpkin seeds can irritate your esophagus as you swallow and eating too many may cause an otherwise unpleasant feeling of fullness.
You Might Also Like
Fiber in Pumpkin Seeds
Can I Eat Pumpkin Seed Shells?
The Health Benefits of Pumpkin Seeds and Pepitas 
Can Pumpkin Seeds Help You Lose Weight?
Pumpkin Seeds & Blood PressureSalted Pumpkin Seeds Nutrition
Pumpkin Seeds & Prostate Cancer
Pumpkin Seeds Nutritional Facts
Health Benefits of Pepitas Pumpkin SeedsGas, Diarrhea or Constipation
Eating too many pumpkin seeds, even when carefully chewed, can also lead to intestinal gas and diarrhea. Pumpkin seeds are high in fiber -- you'll get just over 5 grams from a 1-ounce serving of the whole variety, according to the U.S. Department of Agriculture -- which means that some of their carbohydrates aren't fully digestible. When these undigested carbohydrates reach your large intestines, they're broken down by bacteria. Gas is a byproduct of this process, particularly for people who aren't accustomed to fiber-rich foods. Eating more fiber than you're used to can also lead to loose, watery stools. If you typically have diarrhea after eating pumpkin seeds, however, you may have a food intolerance or sensitivity. Constipation is also a possible, albeit less likely, side effect of eating pumpkin seeds -- the fiber you get from eating large amounts of pumpkin seeds can also stop you up temporarily.
Preventing Side Effects
Eating the seeds in moderation -- 1 ounce is the standard amount for an individual serving -- and with plenty of fluids can prevent digestive problems. Pumpkin seeds have also been known to trigger migraine headaches in some people. If you're not prone to migraines, however, you probably won't develop one from eating pumpkin seeds.
Avoiding Toxins From Spoilage
Although the unsaturated fatty acids in pumpkin seeds promote cardiovascular health, they also make the seeds prone to spoil quickly. Eating rancid pumpkin seeds exposes you to free radicals, toxic compounds that can increase your risk of cancer, heart disease and other chronic illnesses. Fresh, dry pumpkin seeds can stay in peak condition for about two months in an air-tight container in the refrigerator. Seeds that smell musty, oily or grassy have probably gone rancid.
0 -
Sas, I've taken the liberty of posting the above info on pumpkin seeds. Gonna buy me some .... I love them!
0 -
MinusTwo, Love the "How pumpkin pies are really made". I do believe pumpkin helps "move" things along. My son and his friend ( at age 8-9 or so) managed to polish off a whole pumpkin pie at a Thanksgiving dinner party, they both ended up with diarrhea.
dsgirl
0 -
I am so NOT going to publish about the pumpkin seeds on the smoking thread. We'll just stay w/sunflower seeds there thanks.
0 -
Morning ladies. This is a first for me in such a long time, and I mean a long time. I made Quaker Oat Bran Cream Hot Cereal (supposedly all natural - no additives, no preservatives). Let's see if this works!
0 -
Praying for poop LOL
With the pumpkin seeds.......just don't toast them. I did years ago. A seed broke. It jammed into the gum between two molars. I lost one tooth and had to have a crown on the other. Most expensive snack ever.....................
0 -
Sas, I hear you about the seeds. Once I had a "wine gum" and end up breaking the tooth which resulted in root canal, and then eventually the tooth to be pulled. I like pumpkin seeds on their own but to be honest, they didn't make me go. AND I bought the expensive ones and also "pumpkin oil". I wonder if the oil does the same as the seeds but no damage to your teeth?
0 -
Pumpkin Oil???? How would that be used?
0 -
Sas, I bought it at a store that sells only "pumpkin seeds and oil". You use it to make salad dressings. I'll find the link and post it.
0 -
Currency
Welcome, Log in
- Cart: 0 product products CAD $0.00 (empty)
- Your Account
Categories
Information links
- About Us
- Seal of Excellence
- Origin Protection - P.G.I.
- Health and Nutrition
- History of Styrian Pumpkins
- Seed Oil Do's and Don'ts
- Recipes
- Testimonials
- Terms and Conditions
- Secure Payment and Shipping
- Where To Buy
- Videos
STYRIAN GOLD INC. Canada
Styrian Gold - Pumpkin Seed Oil & Seeds Now Available in Canada
Delightful, Delicious and Naturally Nutritious!
Styrian Gold Pumpkin Seed Oil is prized far beyond the borders of Styria, (Steiermark) a province in the south of Austria. This award winning, unrefined, 100% pure Styrian Pumpkin Seed Oil, is thicker and has a darker green colour, compared to pumpkin seed oils pressed from North American pumpkins. The Styrian oil has a unique, nutty aroma, light, smooth taste and is praised for its palatability and flavour enhancing qualities. It is mainly used as a finishing oil for cold dishes, and is typically drizzled over salads, vegetables, soups and deserts. The oil and seeds are being used globally in creative ways by a growing number of chefs, to entice their customers.
Not a lot of Canadians know about this special Styrian oil pumpkin that is grown just for the seeds. Austrians have been pressing these shell-less and extremely healthy seeds into a beautiful oil for generations. Now we want to bring this great food to Canada so that Canadians can enjoy this unique, healthy and great tasting oil.
And, in case you haven't heard, the health benefits of Styrian Gold Pumpkin Seed Oil are quite astounding! Being naturally packed with antioxidants, vitamins and minerals vital for our bodily functions, particularly our plumbing, (which includes the liver, bladder, urinary tract and prostate) it is quickly becoming the wise choice for health professionals and health conscious people all over the world as a natural, wholesome, versatile and great tasting alternative.
A versatile and wholesome super food, it is a staple of the Austrian diet.
This website contains facts about the history of Styrian pumpkins, about the health benefits of pumpkin seeds, the fine oil, what to look for in the best quality pumpkin seed oils, the therapeutic uses of pumpkin seed oil, a list for further reading on the subject, and a test selection of recommended recipes.
Our Canadian company, Styrian Gold Inc., imports the oil and seeds directly from one of the oldest and most reputable oil presses in the heart of Styria. We carefully package these products at our facility in Alliston, Ontario making this fantastic, one of a kind oil and amazing seeds available to healthy conscious people through our growing number of health food stores and specialty food stores throughout Canada.
To see a list of retail locations where the oil and seeds are availible: click here
See our complete product list: click here.
Visit us on Facebook: click here
That's the information Sas!
0 -
Hi Ladies
Can someone tell me how to get ahead of the horrible constipation that comes with treatment.
I had tx on Thurs and on Sat was so bound up I could not get it out. Horrible. If someone call help me to do something so that it dosen't get to this I would appreciate.
Rosieo
0 -
Rosieo - First of all - tell your MO. The doc will give you drugs that won't contradict whatever else you're getting. Then there are WONDERFUL ideas in this thread. Go back & start at page one and skim what everyone has said. Different things work for different people, so many ideas will be valuable. Good luck.
0 -
Okay you guys..... I've read pages and pages of WHAT to do when someone is constipated.... I wrote down about 10 things to do.....
Now Sass, you know I've talked to you about this before, but transferring all of my knowledge, and I have TONS.... AND yours to my DH, is a problem of the ages!
HOW do you make an older stubborn husband (also Italian, which may explain the stubbornness) realize that his PROBlem is something he has to deal with daily? How can you explain that what he is doing, and eating, is contributing to his .... um .... pluggedupness?
He thinks that maybe 2 little bottles of water is enough fluid intake.... not counting the 3-4 daily beers. He can't stand fresh fruits or vegetables... Will MAYbe eat a couple spoon-fulls of canned mixed vegetables or canned fruits. Maybe once in awhile a small, tiny green salad.... (that's the extent of fresh veggies}
He will eat Prunes, or stewed prunes once in awhile, when he gets desperate. He takes Pepto-Bismol for constipation.... (Yes, I know, and I explain it is for diarrhea).... (I just hid that bottle that he had in the bathroom cupboard...... He rely's on those suppositories when he gets desperate...
I MENtioned maybe a stick of dynamite would be more efficient...
His main problem is getting stubborner and older, and rather irate & LOUD when I try & suggest that he may be doing something rather wrong!
So he doesn't take any medications... for anything.....) Maybe 1/2 of a Tylenol PM at bed-time... To help him pretend he sleeps.......)
Our PC told me to tell him to take that Fiber Therapy, and drink lots of Gatorade.... Well he TRIED it, mixed it up, let it set all day, then when it became the consistency of paste, he refused to drink it, and there it sits........ Said it must have been a "bad batch"
I explained it is supposed to do that inSIDE of you... not in the fridge.
I've exhausted all of my resources... and my knowledge..... It is much easier to deal with a 10 year old......... He will not see our PC unless he has an un-forseen emergency ...... for something like "heart-block" where he needed an immediate pace-maker...
So here we are.... same song, second verse.... It oughta get better but it's gonna get worse.... what now?
0 -
Chevy, sympathies, I think it's men in general. Seldom do they listen. I know you have been dealing with this for decades. The stubbornness. He's ripe for a case of diverticulosis b/c of age and constipation history. Don't suppose he has had a scope? Read the section on diverticulosis and diverticulitis on the first or second page. Worst case scenario if he doesn't take steps to fix the constipation, he's setting himself up for a colon blowout. That could lead to a colostomy(temporary or permanent).
Sometimes with people that won't listen, you have to tell them the worst thing that can happen before they listen.
One time with a GI(gastrointestinal ) bleeder who wasn't doing anything two other nurses were telling him. I asked his nurse if she explained how bad this was. She said "I told him he had taken a turn for the worse". Blood everywhere--bed, floor, him, the nurses, the other bed in the room. Blood just dribbling out of his anus. I turned to him and said "Sir, you are going to die if you don't do what they say". He stared at me like that was a revelation. He became the most cooperative patient from that point on. Only did it that way once in 40 years. He was a lawyer. Used to being in charge and getting his way(well known in town).
"I told him he had taken a turn for the worse" and "Sir, you are going to die if you don't do what they say". One very politely correct did not get his attention like the second message.
Chevy consider talking to him about the worst. His colon ruptures and he has to wear a bag.
0 -
THANKS Sass ! Yes, I so ever not gently told him all this this morning! I know I shouldn't get mad, but I just do.... I TRY and explain things to him... but this morning he was told DO YOU WANT TO BE LIKE YOUR GRANDPA, AND HAVE A COLOSTOMY? OR LIKE YOUR SIL WHO'S COLON QUIT WORKING, AND SHE HAD OVER 1/2 OF IT REMOVED????
So I got out a plastic box, put the prunes, (soaking in water) a bottle of MO.... the stool softener.... and the Fiber stuff, and it is sitting on the washer. NEXT I will pour it all down his throat.....
I told him "I read how serious this can get!"
He says NOW that he will take care of it every day.... I even cooked some apples, with the skin on, with Agave, and 2 hard cinnamon candies and chopped it... He thinks it tastes GOOD! He would buy baby-food, to get his veggies!
I think he is NOW worried! In other words, I'm done.
I told him there is never any NEED for him to become constipated... No excuse... He is better today! I might have won this battle!
He says he can't eat raw cooked vegetables or fruits..or milk products, including cheese..... He SAYS he gets "gas".... Same with beans, nuts, seeds, etc. In other words.... he eats what he wants.... and not much of that.... sweets, chips, cakes, pies and cookies are what he lives on.... Maybe 1/2 of a sandwich, or 1 baked chicken leg... It isn't because I don't COOK anything.... I'm always making homemade soups, stews, Risotto, and other Rice dishes.... He will eat a small bowl....
So next week, I'll let you know what this intervention has done.... Ha!
Rosieo.... after my surgery, and that anesthetic, I came home, and SAME THING! I took Milk of Magnesia, AND drank prune-juice! My advice to you is either do ONE or the other! Not both, unless you want to spend your whole day in the bathroom! You will get back to normal....
Sass will tell you to cook up a few prunes, and eat those every day.... Drink hot liquids.... preferably not Vodka...
Take good care....!
0 -
Oh,Chevy you go girl, erhhh no, husband go boy!.If scaring him is the only way to get him to do what he needs to do and it's works....your job, done it is.(Yoda).
Rosieo I agree with MinusTwo. Let us know if we have to have a meeting of the team.
0 -
Chevy, go gently with the fiber. Small amounts increasing slowly over minimum three weeks. A colon not used to fiber can get into an obstruction if the fiber is introduced to fast. Check back on page 24 and look at what I wrote on why prunes, raisins, and apricots work. The fruits in the digestive process through the gut breakdown into sorbitol in the colon. The sorbitol acts as a natural laxative b/c it draws water into the colon.
Of the cereals, Fiber One has the most fiber. If I remember correctly, it has 13 Gms of fiber in a quarter cup. The goal of fiber in the diet is between 25 to 30 Gms of fiber per day. It used to taste like cardboard. The company finally listened and improved it's taste.
When at all possible try for natural food sources, but when the blasting powder is needed you do what you have to do.
0 -
Thanks Sass! Okay.... too late on the "go gently with the fiber"..... Last night he said I put a Tablespoon of "that stuff" in the bottle... (8 oz.) And if I don't drink it I will save it for tomorrow"..... I said you can't DO that! Remember when you tried that last time, and it got as thick as jello?
Now I have an "exact" little measuring spoon on top of that bottle... Maybe he will get the idea...
He is very happy with the Prunes, and the magical effects of doing the right thing....The gallon size bottle of Milk of Magnesia is waiting in the wings....0 -
Chevy you are so funny. Ill send you a funnel
0 -
Good Morning
Just an update on my "C" trial and error journey, (C stands for constipation), I am one of those that need Coffee right away in the morning, and I remember Sassy mentioning in a post that a morning routine needs to include a visit to the bathroom, which was not on my list of things to do in the morning. I drink my first cup of Coffee, start brewing the next cup, (I brew a cup at a time with Melitta filter holder), get my breakfast stuff out, walking to fridge, pantry etc, and before eating anything I go to the bathroom and make myself comfy, and 99% of the time, I GO. What a simple solution. I am usually so hungry I eat breakfast standing by the counter waiting for my first cup to brew, then get busy taking meds, reading the paper, whatever, and that does not work for starting the day and having a BM. By the way,I do eat a protein bar at nite, and it did help my morning hunger, Sassy.
The things that has worked for me are, fiber supplement x2 daily, stool softenerx2 daily, and my new morning coffee routine. Hope this helps someone. I use the chewable fruit flavored supplement tablets, easier for me to get "down". "Oh, what a relief it is."
dsgirl
0 -
...............................................
0 -
.........................
.................................................
0 -
Dsgrl, congratulations
hope the celebration wasn't too much Can't stress enough that simple routine of leaving time to poop can change everything. After a couple of weeks, slowly reduce the amount of senna, keep the same morning routine and see if you can accomplish the same thing without the senna. Suggest reducing the senna over 1-2 weeks. For those that don't drink coffee try tea. For those that don't drink tea or coffee, try warm water and lemon.
0 -
Sassy, Thanks, love the celebration pictures.
Teehee, now have a question, I looked at the fiber supplement and the stool softener bottles, and don't see Senna as an ingredient, what am I missing. Will try to google Senna, and see what I get.
Thanks again
dsgirl
PS: Did find with Mr. google's help it is an ingredient of the stool softener, Colace.
0 -
LOL dsgirl, What stool softner are you using? Basically, whatever stool softner you are using try to wean off of it. May take a couple or more weeks.
Glad you liked the celebration pics 0 -
SAS - I understand the difference between Sennacot & Sennacot D. I've been using only Colace if "going" gets too far apart. So maybe I take one once a month or every 75 days. My docs don't seem to think that's a problem. I'd like to hear your opinion.
0 -
MT Hi friend
" So maybe I take one once a month or every 75 days. My docs don't seem to think that's a problem." That's odd. Did they give you any rationale? I did a search on senna aways back. Went back and found the page. There are multiple posts on it.https://community.breastcancer.org/forum/6/topics/781867?page=12
I would describe your usage as rare. You're question isn't something I can even surmise on. After you read page 12, tell me what you think the answer is?
0 -
SAS - It will take me some time to digest Page 12 (pun intended). I understand about pooping in the morning. It's a good thing to do. My Mother (bless her soul) spent YEARS trying to make me adhere to a morning schedule. I never could do it. (more puns). My normal - prior to BC treatment - was once every 3 days. I'm 70 and that's been true for more than 60 of those years. The only time I got 'off' was when I was traveling. Hopefully I'm back on track & if I can manage my usual "normal", I feel good. I generally eat one meal a day & snacks in the evening. Since I'm still monitoring, that means I need to eat a salad every few days. I need to continue w/gin & tonics. I need to drink a small prune juice on day 3. If I do these things, I'm usually OK. Page 12 has great recommendations. More comments later.
0 -
MT I went back and read page 12 too. I was on page 14 when I realized I'd forgotten my mission. I'm reposting one of the abstracts. Then what I think I will do is go through the abstract and wipe out all the extraneous info to try and make it more readable. If you see it posted that way then it worked
J Clin Gastroenterol. 1998 Jun;26(4):283-6.
Alterations in colonic anatomy induced by chronic stimulant laxatives: the cathartic colon revisited.
Joo JS, Ehrenpreis ED, Gonzalez L, Kaye M, Breno S, Wexner SD, Zaitman D, Secrest K.
Author information
Abstract
Cathartic colon is a historic term for the anatomic alteration of the colon secondary to chronic stimulant laxative use. Because some have questioned whether this is a real entity, we investigated changes occurring on barium enema in patients ingesting stimulant laxatives. Our study consisted of two parts. In part 1, a retrospective review of consecutive barium enemas performed on two groups of patients with chronic constipation (group 1, stimulant laxative use [n=29]; group 2, no stimulant laxative use [n=26]) was presented to a radiologist who was blinded to the patient group. A data sheet containing classic descriptions of cathartic colon was completed for each study. Chronic stimulant laxative use was defined as stimulant laxative ingestion more than three times per week for 1 year or longer. To confirm the findings of the retrospective study, 18 consecutive patients who were chronic stimulant laxative users underwent barium enema examination, and data sheets for cathartic colon were completed by another radiologist (part 2). Colonic redundancy (group 1, 34.5%; group 2, 19.2%) and dilatation (group 1, 44.8%; group 2, 23.1%) were frequent radiographic findings in both patient groups and were not significantly different in the two groups. Loss of haustral folds, however, was a common finding in group 1 (27.6%) but was not seen in group 2 (p < 0.005). Loss of haustral markings occurred in 15 (40.5%) of the total stimulant laxative users in the two parts of the study and was seen in the left colon of 6 (40%) patients, in the right colon of 2 (13.3%) patients, in the transverse colon of 5 (33.3%) patients, and in the entire colon of 2 (13.3%) patients. Loss of haustra was seen in patients chronically ingesting bisacodyl, phenolpthalein, senna, and casanthranol. We conclude that long-term stimulant laxative use results in anatomic changes in the colon characterized by loss of haustral folds, a finding that suggests neuronal injury or damage to colonic longitudinal musculature caused by these agents.
PMID:9649012[PubMed - indexed for MEDLINE]http://www.ncbi.nlm.nih.gov/pubmed/9649012
/////////////////////////////// My revision
Cathartic colon is a historic term for the anatomic alteration of the colon secondary to chronic stimulant laxative use. Because some have questioned whether this is a real entity, we investigated changes occurring on barium enema in patients ingesting stimulant laxatives.
Our study consisted of two parts. A data sheet containing classic descriptions of cathartic colon was completed for each study.
Chronic stimulant laxative use was defined as stimulant laxative ingestion more than three times per week for 1 year or longer.
In part 1, a retrospective review of consecutive barium enemas performed on two groups of patients with chronic constipation (group 1, stimulant laxative use [n=29]; group 2, no stimulant laxative use [n=26]) was presented to a radiologist who was blinded to the patient group.
(In part 2)To confirm the findings of the retrospective study, 18 consecutive patients who were chronic stimulant laxative users underwent barium enema examination, and data sheets for cathartic colon were completed by another radiologist.
FINDINGS:
Colonic redundancy (group 1- 34.5%; group 2- 19.2%) and dilatation (group 1- 44.8%; group 2-23.1%) were frequent radiographic findings in both patient groups and were not significantly different in the two groups.
Loss of haustral folds, however, was a common finding in group 1 (27.6%) but was not seen in group 2 (p < 0.005).
Loss of haustral markings occurred in 15 (40.5%) of the total stimulant laxative users in the two parts of the study and was seen in the left colon of 6 (40%) patients, in the right colon of 2 (13.3%) patients, in the transverse colon of 5 (33.3%) patients, and in the entire colon of 2 (13.3%) patients.
Loss of haustra was seen in patients chronically ingesting bisacodyl, phenolpthalein, senna, and casanthranol. We conclude that long-term stimulant laxative use results in anatomic changes in the colon characterized by loss of haustral folds, a finding that suggests neuronal injury or damage to colonic longitudinal musculature caused by these agents.
0 -
MT I've never redone an abstract before, but I find breaking it up into paragraphs and some editing makes it more understandable. Tell me if you get more out of the abstract now?
0 -
" Chronic stimulant laxative use was defined as stimulant laxative ingestion more than three times per week for 1 year or longer." As you can see this statement was lost in the body of the abstract. It is very helpful to us.
Chronic use of stimulant laxatives can lead to a reduction in the folds in the lining of the large colon. Those large folds help to trap stool and then propel it forward to the anus when the colon wall contracts. With out the folds the stool can't be propelled forward to the anus.
The outcome is no pooping
0 -
Sheesh, no wonder studies and abstracts are so hard to read.
1:00am and I'm writing about poop. I gotta get a life.
0 -
SAS - Yup - poop research at 1am is not indicative of exciting extracurricular activities in your life.
I'm still sticking to my once a month Colace solution, since I haven't seen that it's a laxative. Only a stool softener. Unless of course I'm crazy - which could be a valid conclusion.
0 -
MT once a month isn't going to affect anything. I'd say enjoy, but doesn't quite fit.
0 -
Okay.....I've been struggling with constipation since before BC and now with Aromasin , vitamins, calcium, it has gotten much worse. I started eating tons of broccoli, kale, spinach, and cabbage. All it gave me was GAS....lots. Tried it all, Miralax and every laxative known to man. Now, You haven't lived until you wake up at 3 a.m. to a hissing sound in your bedroom and the smell of roses. Peeked out from under the covers and it was DH swinging the bathroom spray all around my fat butt. His only comment "you gotta get a room"! MOTIFYING!!!!!! He's the most patient, gentle and kind man so I know he was pushed to the limit. Read all 26 pages of this forum at 3:30 am. Straight to stores at 9a.m.
Here's the list of suggestions for everyone that does not have time to read the whole forum. Fiber One cereal, prunes softened with warm water and little lemon juice or prune juice with lemon, oatmeal , black strap molasses,chia seeds, magnesium citrate, cascara sagrada, colace, Miralax, fiber well chews, smooth move senna tea, Sennocot. I got them All. Ran into a neighbor at the store and pushed that cart right by her like Jeff Gordan NASCAR racing.
So many great suggestions (thank you, girls) so please read when you can and happy pooping.
0 -
Obxflygirl - Thanks for today's laugh. Although we all know it's not funny. Good luck w/your purchases but I do hope you don't try then all at once. You will be "through" with Thanksgiving dinner before any of us.
0 -
MT........LOL.... I'm starting with the natural foods first. Fiber one , chia seeds, applesauce and prunes. Really want to get off the stool softners and lax. hoping for success.
0 -
OMD ROTFLOL!
0 -
Let me add to your shopping list: Prune juice mixed with apple juice and slightly warmed,,, and a warning,,, a LITTLE prune juice can go a long way. Do try a smaller amount first,,, like 3 oz,,, and then go up a little if needed.
0 -
Glennie19, thanks for the tip! I'm going to try this. I need to be regular. I had loose stool on Tuesday and then nothing till tonight. Hard stool. I don't need to plug this toilet as I'm holidaying in a rented condo!
0 -
0
-
Sassy,
I am happy to report that I no longer use the stool softener. Thanks for the tip about trying to get off them, I used it because it and a fiber supplement were recommended by the doc. after my colonoscopy, but apparently I don't need it. Still stew the prune, apricot, golden raisin concoction, and usually eat it when I eat my yogurt, am really getting to enjoy the stew, and eat it daily. I use the fiber supplement once a day unless I missed the morning BM, then I use it twice that day. Unlike MinusTwo, I cannot go just every 3 days, but I eat 3-4 meals a day, plus a snack, trying to add a few pounds as I was down to 109 lbs.
I finally figured out why I so may times lose my favorite topics, I mean to click "back to top" and end up clicking on "remove from my favorite topics" instead.
0 -
DSgirl - hooray. So glad you've found something that works for you. I got down to 106 lbs during treatment so I too needed to eat once I was done. I was happy to gain 30-40 lbs. Unfortunately the rest is creeping back too. I'm vigilant to the point of recording all my "production" so I don't let it go more than 2-3 days w/o adding a couple of prunes. My son ask what I wanted for Christmas. I really couldn't tell him I needed a small calendar to keep track of BMs - LOL.
0 -
I've had wine
Okay my friends, ugh, gonna talk about poop. I've been through hell, as many have here. Talked poop for 26 pages. Our gal Oxflygal summarized the talk of poop. Not that many posts back. She got it right. I laughed so hard, I chocked. Hence the ROTFFLOL. Dsgrl has gotten off the DRUG. The drug is SENNA. Great drug when needed. Has consequences.. The posts in the past clearly define this.
I've had years of problems, did everything recommended here. But I also, had an unusual thing. My poop was different colors. Worried me. I have a long experience with poop with patients. I never saw what I was producing. The poop was different shades. My Gi guy blew me off. Hey, I had close to 40 years of looking at poop. Sumpin wasn't right.
Not a good role model on AI's, I quit them early, Now with what is known in 2015 is my dose perhaps my dose should have be cut by minimum or half.
BUT............ poop wasn't right. .I did make some changes. Probiotics. I did them 3 pills a day all at one time for about a month just recently
The confusing thing on trying to find normal was the Thyroid (cancer). I'm still in the adjustment phase because of removal off the gland. ( 2014). What I've been impressed with is the length of time to readjust to what is consider normal Thyroid levels. Last visit with the Big Wig doc, I heard this "Better to keep her Hyperthyroid than risk a thyroid caner recurrence"
What Was amazing was the adjustment..............and the length of time it took to do it. Then the next blood test said mid range.
my search found that that a higher level of normal can cause mitochhdiria increase within the cell. My doc and I never talked about mitochondria.
Why it's important here is perhaps they're is a connection to pooping regularly. I'm smashed. i.e. smashed. Be back on the next Wabash.
Okay......... could delete this, but I recommend a good Probiotic. More discussion on thyroid.
Bedtime
0 -
SAS - I'll wait for that Cannonball - pun intended - and the continuing saga of thyroid & poop colors.
0 -
MinusTwo, I have a calendar too for just that purpose. Fun (not) to write down size, consistence etc for each "move". Try to abbreviate, I get rid of each month's page as I am not gonna leave a poop calendar for my kids to find when I die. It is alot of work handling this problem that really should NOT be a problem.
LOL, Sassy, I hope no hangover this am for you, I have been on levothyroxine for 23 years, up and down on the TSH lab tests, currently I am ever so slightly hyper, but not enough to make my PCP change the dose yet, just had labs this week, 0.140 uIU/ml. Before diagnosis of breast cancer my numbers all of a sudden jumped to 15+.
I was told by several docs. low thyroid can cause constipation as well. Sorry you had thyroid cancer, double whammy.
dsgirl
0 -
dsgirl
with your prune apricat and golden raisin concotion. Is it just as it sounds. do you just cook all three
of these fruits and then eat them with your plain yogurt.
Thanks Rosieo
0 -
Hi Rosieo
Yes, I just add some water, barely covering all three, let it simmer for several hours, cool and then refrigerate.
I eat it atop of Greek yogurt with honey in it, or even the strawberry honey yogurt, my two favorite yogurts but I am sure it is good with plan yogurt too. which I may try now that I have flavor to add on top.
dsgirl
0 -
SAS - hope you're OK.
0 -
LOL, okay
0 -
Well, I don't think much of Dr. Oz - but passing this along. His column in today's paper was about how coffee keeps 30-40% of the population 'regular'. Supposedly it can be regular coffee or de-caff, but needs to be black & filtered. Here's their "motto" - So the next time you're slow to go, pour yourself a cup of Joe.
0 -
Hi MinusTwo, I agree on the coffee seeming to help, and would hate to face the morning without it, love my 2 cups of morning coffee. However, one time when I had to have fasting blood work done and could not eat or drink before, I was so thirsty before leaving the house, I drank 2 cups of warm water, it was cold, in the 40 degree range outside, therefore the warm water, ( I was told water was ok, and it helps the nurse who pokes you if you are not dehydrated), and it worked just like the coffee does. So maybe just liquids before eating works to get a "move" on. I know you are not in the morning "move" crowd, lol, but works for me.
dsgirl
0 -
Hi dsgirl! You are so right about the "warm water" working. I started drinking hot water every morning and it works 90% of the time. Doesn't work if I have had jujubes/liquorice before hand. However, all of these work really well! I also heard that if you slice lemon in the hot water it is also effective in weight loss!
0 -
Judi - you're eating licorice for breakfast? Darn girl - you're having too much fun in Florida.
0 -
MT, you are so right .... licorice for breakfast. lunch, snack .... loving it!
0 -
0 -
Merry Christmas to all and may you be blessed!
0 -
Bump
0 -
Being new to this problem, just started first round of four rounds of AC and then 3 days of anti nausea meds and steroids, so I experienced this problem for the first time. Plus it was over Christmas which made it worse.... My solution was 2 cups of Traditional Medicinals Smooth Move Tea and 2 capsules of magnesium at night...all clear the next morning....have not tried other meds but will sure incorporate the apricots, prunes with yogurt. Sounds delicious..
0 -
0 -
Mikie, Sorry you are here and all the trouble, Just found out tonight that yogurt isn't the best thing. Unless it's guaranteed to have the probiotic culture. Look at the ingredient list. Always knew it should say culture added. But tonight's learning was that commercial yogurt ain't what we expected. Sugar/corn syrup etc. Both mess with the bacteria of the gut.
Think Probiotics. Really high quality..............Tuffy in todays's market. I get Bluebonnet. But am dismayed on the whole supplement industry re: quality control.
Pop in on the weight thread..............the studies on microbiota----bugs that live on and in us...... a few years from now every doc is going to key in on this. It's exploding(pun)...........
0 -
Mikie, I love Traditional Medicinals.........each tea actually does what it says it's going to do. My first experience with them was in the early 80's. Made the mistake of drinking sleepy tea when I was nursing my son. Very bad. He ended up okay, but never did that again. He loved their Easy Tea.
0 -
I've been reading all these suggestions for quite awhile and now can contribute something.
A naturopath I had recommended Metagenics UltraFlora IB for use after antibiotic treatment. There are 60 billion live organisms. Once my gut got back to normal I switched to Metagenics UltraFlora Balance with 15 billion live organisms. This is an expensive brand and should be kept in the refrigerator. I order them from Vitacost and they're shipped in a cold pack. I also use a prebiotic, Fiber Choice assorted fruit tablets. Be careful, these can make you gassy.
This treatment plus occasional use of stewed prunes and apricots do the trick.
0 -
New to this thread, not new to this problem. After surgery, I just took the stool softener and miralax and did fine. Now that I'm on TC, can't seem to move it all, just bits. Read through this entire thread and will be trying many things to make sure it all comes out right in the end.
Loved this so much, thought I'd repost for those who might have missed it. Five Constipated Men
0 -
Thanks Corky. Our Biome's thank you
Birthael, Yes, everything coming out in the end is our goal from start to finnish. Love a good finnish. Five Constipated men is a hoot. Have seen it before, but it's always fun seeing it again. I had it in the topic box at one point. I'm going to put your link there Thanks.
0 -
Hello all,
Nothing but good news to report from this end, (pun intended), doing the warm water drink upon rising, then before coffee and breakfast I "go", still eating the apricot, prune, golden raisins on my greek probiotic yogurt later in the day, and loving it still, and am happy to report I don't have to even use the chewable fiber supplement, (too bad I stocked up on it, but sometimes in a small town it is hard to find). Throwing away the calendar I HAD to use to keep track of my "moves". Thanks bunches to all contributors to this thead, and a special Thank You to MinusTwo and Sassy for keeping this thread alive.
A grateful
dsgirl
0 -
dsgirl - oh my, throwing away "THE" calendar!!! I don't have a 2016 calendar dedicated to "moves" yet, and it's been worrying me. I think maybe I'll try transitioning to a notebook, but it's just not as visual. After my Mother's stroke, my Dad kept 3 note pads on 3 clipboards 3x5 size with entries for every single day of her life for 12 years listing: 1) what meds were given & what time; 2) when there was a poopy diaper & the consistency & how large; 3) the time the nutrition bottle was changed for the feeding tube. She lived to 90 but was a total vegetable, so his focus was on getting it right. And he kept every single paper for the entire 12 years. After all my jokes about his 'papers', and my grown son's comments about Grandpa's conversations being limited to Grandma's BMs, I'm horrified that I'm still considering keeping a Poop Diary, but...
0 -
//////////////////////////////////////////////////////////////////////////////////////////////////////////////////
How did we miss these stocking stuffers ?
http://www.buzzfeed.com/jameskicksa/12-celebrated-works-of-poop-fiction-b2tp#.sy0wMD12W
0 -
Sassy, love the goat meme, MinusTwo, Wow, 12 year diary in the subject. I was sooooo worried that my kids would be cleaning out my house some day when I am gone, and find these calendars, thinking back, my Mom's mind was alot on keeping regular as well as she aged, she passed away at 84, and it seems our phone conversations involved alot about keeping herself regular her last 2 years. My Dad had passed away 2 years prior to her passing, also at 84 of age, and he passed while trying to start his mower, he had brought it into the bathroom, no less, as it would not start outside, oil was too cold he had told her, and after a few pulls ot the cord, he sighed, and passed on. Aorta aneurysm. They both smoked until the day they died, but enjoyed their lives fully.
dsgirl
0 -
Love the lawn mower story. My Dad was still climbing on the roof of a three story house to remove leaves when he was 88. And he was taking care of my Mother at home - mostly by himself. I finally got him to stop climbing only by telling him that if he fell, I would make sure he & Mother were put in different nursing homes and would never see each other again. That worked, but he still fell down the inside stairs trying to maneuver a 27" TV down around a curve. He broke his collar bone & lay on the floor for 8-10 hours because he couldn't reach a phone & of course Mother was a vegetable. He did just fine for many more years. Sure glad that stubborn isn't hereditary - LOL.
0 -
You guys are making me laugh. My 92 year old dad was raking leaves and fell into the giant junipers and got stuck. Finally my brother heard him and pulled him out. He had juniper bits sticking to his clothes and scratches all over but he was okay. I shouldn't think it was funny but I laughed when my brother told me. You can't stop some of these old men from doing what they want to do--or what they used to be able to do.
0 -
I coined a word in the 70's not long after taking my psychology classes. Lot's of new concepts and words were learned i.e. the word egocentric: thinking only of oneself, without regard for the feelings or desires of others; self-centered. The suffix centric: in or at the center; central, lent itself to be used in many ways.
My dad was centered around his bowels. He could get any conversation to move(pun) towards talk of the bowel. The word I coined was Bowelcentric. To mean: the center of a person's existence was around the working of their bowel.
Loved the stories too.
0 -
Ladies, thanks for the laughs on a Friday night. Best time yet. My mom was always constipated and talked about gm's. My older brother would also sigh as he was so "proper". When he became cancer stricken and couldn't go, he commented that he finally understood what my mom was saying. Funny, tonight as I finally went, I thought of my mom and all her troubles going to the bathroom. Geez, another 20=30 years of this .... oh this should be fun. Hmmm, maybe I'll be in a diaper and won't give a "shit"!
0 -
No no no you want to give a shit
0 -
To anyone that has a serious shitting problem, we give a shit, and want to help you shit. But in the mean time joking about shit, alleviates some of the focus on shit. But we are deteriorating in the use of our language. We usually say POOP. It is more universally acceptable within societal acceptance of the descriptive word for excrement.
0 -
OK - OK ...Poop, Poop, Poop!!!
0 -
Laughing
0 -
OMD what would I doo with out you and judi
0 -
Ha, ha, Sasi .... the word "poop" sounds like I'm talking to a toddler and watching my p's and q's! O.K. clean it is!
0 -
You guys need to cut the crap.
0 -
Ellelou - thanks for my laugh of the day. Actually wishing I could have more - crap that is. Just ate three prunes - my go to solution when things get hard. (I know, my own fault for skipping salads the last 3 days, but i was with my cousin from Phoenix who brought her daughter to MDA for scans)
To everyone who doesn't usually follow this thread and is looking for relief - there really are LOTS of very good suggestions. We know it's a serious issue, and hope you'll read previous posts for ideas. Sometimes we just have to cut loose (of course, pun intended).
0 -
Serious now, really New study links fructose and sucrose to BC an recurrence. We had a discussion awhile back about . I will try and find it. OH VEY it's always something.
https://iquitsugar.com/breast-cancer-fructose-sugar/
Page 24
https://community.breastcancer.org/forum/6/topics/781867?page=24
No clue how this fits into what we are doing with the prunes, apricots etc.
0 -
SAS - since I know you'll research anyway, I'll be interested to hear if 'they' point specifically to hormone positive cancer with their sugar study. From what I've seen, many of the "no-nos", like weight & alcohol consumption, don't seem to hold the same threat for those of us who are ER/PR negative or triple negative.
0 -
Morning Sas .... I know how it fits! Remember, I like to have liquorice or nibs .... keeps bm moving! So fructose/sucrose is probably in this candy!
0 -
I don't believe that mice to human translation works. As Dr. Susan Love stated "We have been curing breast cancer in mice for 50 years." This is just a waste of money and mice.
0 -
I coined a phrase this summer. " When change is occurring try to be on the right side of the change". I agree the research is not definitive. But we are in the situation that we need to be aware more than most of what research is saying b/c of our BC. Love's on my timeline. This is where I got the link. Glad to know what you've repeated what Love said re: BC and mice research. Love doesn't post reams of studies. Would love to know what she feels about this particular study.
What's different is the research going on with mice has taken a new turn since 2001. Accelerating faster than they or us can keep up. NIH has or is completing a whole new housing for research for the Microbiome. New mouse lines. Came across allot of research while working on the weight thread. So, the mouse of yesteryear is not the mouse of today. Would also like to know what Love thinks of the Microbiome research.
What has been shown with the Microbiome is that fats and sugar can alter it. Antibiotics are a big disrupter. Even the manner of our birth. Vaginal versus C-section. Disrupting the Microbiome leads to all kinds of changes in the gut and ultimately the gut wall. When that occurs it allows low level endotoxins to circulate. Those circulating endotoxins affect distant structures. Also, pathology of breast, prostate, and more have shown bacteria to be present. What's unknown is how did they get there i.e in a closed system they shouldn't be where they are. Was the gut the origin of their entry into the closed circulatory system which allowed them to find their way to the tissues? Mice are helping to understand it.
In the discussion on Fructose p 24, they're is a link that divides higher and lower fructose items. Without going back to see if any veggies are in the list, they are basically fruits. In studying fructose, we found that it's converted to sorbitol. It's sorbitol that has the colon effect to promote bowel evacuation. I suppose until something appears to be definitive, we make the best decision we think works for us. Balance, all things in moderation. Looking at diets that are associated with positive outcomes i.e Paleo, Mediterranean, Japanese.
It's going to be so much easier in 25-50 years.
0 -
I and Dr. Susan Love still believe there is no translation between mice studies and women with breast cancer. Real waste of grant money. Money is the reason that they do this.
0 -
Take extra magnesium, until you see digestive side effects:
Cal-mag-Vit d supplements
Epsom salt foot baths - magnesium sulfate baby
Magnesium oil - can be itchy
Electrolyte water - use that sodium-glucose co-transport to push good things into cells
Natural Calm magnesium - mix 2 tsp in a liter of water and SIP throughout the day
Plus magnesium rich foods
Plus--
Extra virgin coconut oil - improved absorption
Resistant starch - improves absorption
I spent the past two years studying this and have restored my own depletion of magnesium. These tips are hard won.
Ann
0 -
Ann-can you explain more about electrolyte water? Would it be good to drink a glass of it while taking meds for breast cancer? If so, brands? Just at the grocery store? Like pedialyte? I used to give that to my kids years ago when they were sick.
0 -
Source: Jiang Y, Pan Y, Thea P, Tan L, Gagea-lurascu M, Cohen L, et al. Dietary sugar induces tumorigenesis in mammary gland partially through 12 lipoxygenase pathway. Cancer Research. 2015
///////////////////////////////////////////////
Couldn't locate the full study above no matter what gyrations I went through. But it's not forgotten b/c it has implications for the use of prunes/apricots/raisin concoction.
0 -
Called Dr. Love's office. Talked with her assistant. Confirmed that DR. Love does not believe that any research on mice translates to anything to humans. I disagree with her, the research opens many doors to the study of things in Humans. If you choose to disagree, no problem with that. I do however encourage you to read the studies before categorically dismissing them. The Microbiome work that is exploding throughout the science world cannot be discounted. But without so serious study you won't get it.
While Dr. Love doesn't believe in mice, they're two articles on her DSLRF web page that refer to the current research of the Microbiome. In the articles it is identified how the Microbiome research has lead too human research. I will also link to the Weight thread that I started this past summer. They're many biome articles linked from in that thread from page one on.
I'm linking DSLRF articles & links here in full. The first article was from 2014
////////////////////////////////////////////////////////////////
Research Worth Watching: It May Be Time to Eat Dirt!
Published November 20, 2014 By DSLRF
The microbiome is all the rage in scientific circles these days and for good reason. We have better tools for studying the bacteria and viruses that share our bodies. We used to just take a piece of tissue, put it on a petri dish and incubate it for an arbitrary amount of time, and then see what grew out. If we didn't get all the conditions right, nothing would grow.
Now, we take the tissue and map all the DNA and RNA, then subtract all the human DNA and RNA to see what is left. By definition, the remaining genetic material has to belong to other life forms; i.e., bacteria, viruses, etc. This research approach is leading to interesting findings related to the potential of an altered microbiome causing diseases we have not traditionally thought of as infectious.
Epidemiologic studies have indirectly suggested a breast cancer link with the microbiome. They show that women who take a lot of antibiotics have more breast cancer and more recurrences, presumably because their gut flora has been altered.
There have also been many studies showing that the microbiome of your gut can change how you metabolize estrogen. In fact, a team at Rush University Medical Center is currently recruiting from the Army of Women® for volunteers to participate in a breast cancer microbiome study. The purpose of this study is to categorize the bacteria found in the intestines and how these bacteria metabolize estrogen and other female hormones in women who have never had breast cancer, women who have been diagnosed with breast cancer within the last 5 years, and women who have never had breast cancer but who have a first-degree relative WITH breast cancer. They still need participants! Click here to learn more about participating in this microbiome study and share it with your friends.
Newly reported research in mice suggests that the microbiome may also affect the efficacy of chemotherapy. In one study done in France, researchers found that cyclophosphamide (Cytoxan) altered the bacteria in the guts of mice, triggering an immune response which then was able to also attack cancer cells. The tumors in mice that were germ-free or had been given antibiotics did not respond to the drug! In other words, gut microbes may affect the immune response generated by anticancer drugs.
A second study in mice showed that the microbiome directed both local and systemic inflammation. Romina Goldszmid from the NIH found that germ-free or antibiotic-treated mice responded poorly to immunotherapy and platinum therapy.
More recently, a study was done in mice on anti-tumor immunity in melanoma. The researchers got genetically identical mice from two different labs that had been shown to have different microbiomes. They injected melanoma cells under the skin and found different results in the two strains. One showed a strong immune response with lots of immune cells in the tumors and less tumor growth, while the other had less immune response and more tumor growth. When they kept the mice together in one environment so that their microbiomes would become the same, the tumor results were also the same. Most remarkable was that when they did a fecal transplant from the mice with the good bugs to the ones with the not-so-good bugs, the immune responses became the same!
Obviously, the microbiome affects not only the local immune system, but that of your whole body. This is definitely research to watch. Before we know it, an analysis of stool samples to characterize our microbiomes and whether they are healthy will become part of our regular physical exam. Meanwhile, we need to avoid extra or unnecessary antibiotics and maybe even eat a bit of dirt now and again!
http://www.drsusanloveresearch.org/blogs/research-worth-watching-it-may-be-time-eat-dirt
0 -
This is from Dr. Love article on The AAR meeting of 2014.
" Finally, and very interesting to me, was the panel on the microbiome. Just as cancer researchers have focused on the tumor cells and neglected to pay attention to the immune system until recently, they have also avoided thinking about the vast numbers of bacteria and viruses that live in our bodies. I have written about the Dr. Susan Love Research Foundation's exploration of the biome of the breast, but this AACR panel focused mostly on the colon. In this session, the most interesting observation was not only that the microbiome is involved in whether you get cancer, but it also affects how well certain drugs work! This area of exploration is just beginning, but watch this space as it will become increasingly important in the future."
http://www.drsusanloveresearch.org/blogs/aacr-focus-immune-system
//////////////////////////////////////////////////
Another link on the DSLRF where mouse studies are identified in breast cancer research
//////////////////////////
Link to the listing of articles related to the Microbiome on DSLRF web site as they are too numerous reproduce here.
http://www.drsusanloveresearch.org/search/site/microbiome
0 -
Dr. Susan Love may say that she doesn't believe that mice research translates to human research, but she has NOT discounted the research that is being done on the microbiome. Much of that research is being done on mice, then research into the human is the next step to see if those concepts applied.
Actions speak louder than words.
0 -
The weight thread.
https://community.breastcancer.org/forum/73/topics/832722?page=1
0 -
Sas, could it be that she doesn't think that mice anatomy in regards to breast cancer don't mimic humans enough? I know beagles are used for some medical research because of their similarities to humans.
This is off topic to this thread but were you able to access the YouTube site I pm'd your about? That along with the research study makes a lot of sense to me. Was wondering about you're opinion.
0 -
Hi Kathy can't say. Didn't ask that direct question. But the Microbiome research is using oodles of mice. Then working studies out to see how their discoveries appl to humans. She's following that, plus she referenced in the several studies things I've already read about human microbiome things that are also linked on the weight thread. Time will tell
Oops need to look at my PM's BBL
0 -
Kathy that youtube link said the video was unavailable. Have some fun and wander through the studies on the weight thread. If you read from page one, you'll see how I kept following the breadcrumbs.
What was the link about?
0 -
Sas, she mentions a feeling that viruses could be the cause of breast cancer. On my newer computer I had to do a search on YouTube to get the video to come up. It's called A Future Without Breast Cancer. Her speech makes you think of how much sense that makes. Not too long ago, I read that UC Berkely has seen a link between a bovine virus a breast cancer with further study on the matter.
0 -
Still couldn't locate it but got diverted. It's probably on the DSLRF web page. The Microbiome is inclusive of viruses, bacteria, mycobacterium, fungi....whatever else that is buggy that lives in us and on us. Please, kath read the weight thread. You will have some fun. Actually, you could help by giving feedback. But please read from page 1. My posts are following the breadcrumb trail.
0 -
Thought this was some interesting shit:
http://www.npr.org/sections/health-shots/2014/10/1...
"And acid-resistant capsules only come in translucent. "So they are sort of brownish-colored capsules," Hohmann says. "Fortunately, because they're frozen, when you take them out of the freezer they sort of frost up a bit and they're not too gross."
Too funny!
0 -
I believe that continuing to do research on mice or other animals is the definition of crazy.
0 -
Ellelou - OMG - I'm gagging just reading the article. Hope I never need them but definitely relevant.
0 -
Aug you now have stated your position twice. It's opinion. Opinions are to the individual as how we eat a meal. Same food in front of us, but how we consume it is different. I have stated my opinion. If you would like to bring some research here that shows mice research doesn't contribute to science, I will read and discuss. Otherwise the food is consumed and dinner is over. No point in remaining at the table.
0 -
Ellelou, thanks for the link. Don't think we've discussed it. They're is a definite ewhhhhhhh factor LOL.
0 -
Kathy http://www.drsusanloveresearch.org/blogs/future-without-breast-cancer%E2%84%A2
"For a Future without Breast Cancer™" DSLRF. Nice. Exciting. I like the very clear statement of what they support in research. Dr Love is an amazing woman. Kathy was they're a particular spot that you want me to look at? I'll add her link on the EBR thread. She has gathered lot's of info in one place that is useful.
0 -
My brother sent me two jars of "pear sauce" for Christmas (he says like applesauce but thinner). Since I've always found pears to persuade my system to evacuate, I'll be interested to see if this does the same. I'll report back. But still, 3 dried prunes when I get backed up works for me.
0 -
Good luck in the end................
0 -
Sas
I know you started a Pain thread but I can't find it. Can you direct me to it
Thanks
Rosieo
0 -
Hi Rosieo The guts of the thread aren't done. Please, add to it. I work in spurts theses days.
https://community.breastcancer.org/forum/6/topics/839123?page=1#idx_11
0 -
Ooooh Pear juice sounds good. I'll have to try it!
0 -
Sounds good to me too, Ice cool with mint
in a crystal glass............everything goes better in crystal.........even Metamucil.........Kathy, ya'll come back now. I think I they'reis something on the weight thread on diseases associated with bacteria, but it may have been viruses. I'll plug it into google again in a minute.
She mention sphymiomas(sic). I have a long section on that, particularly Sphingomonas yanoikuyae. I say S.Yanoiki b/c it's much easier than the true spelling. I think Kayb introduced it initially
A new bug that is a virus that is going to set the virology researchers on a massive change of thought is transmitted by a mosquito. The Zika virus once it enters the bloodstream of a pregnant woman causes the very serious birth defect. Somehow causes microcephaly. Microcephaly is small head and brain. Generally, severe mental retardation. A birth defect caused by a virus. This is big. Huge implications world wide.
0 -
The point being, this is a whole new area of study.
0 -
0 -
OK - here's a question that maybe someone could help me with. I started suffering from constipation a couple of years before I got breast cancer. Recently I read an article that claims that constipated women are more likely to get breast cancer: http://nutritionfacts.org/2016/01/14/bile-acids-an...
But that isn't what I came here to ask. It is about hemorrhoids. Something that many constipation sufferers also suffer from. Recently I had a hemorrhoid flare up and my question is if anyone knows of any effective and safe home remedy or product other than the usual preparation H. Reading that label on prepH it has parabens - which since I was estrogen positive I'm trying to avoid. Thanks in advance for your help.
0 -
I went on to Anastrozole 6 weeks ago and have been gaining weight steadily despite not changing diet. I am now at the point of being so constipated I feel ill and cannot eat a normal meal.....it has been well over a week since I had a pooh and I used to be a once or twice a day person, same time of day...........I have taken laxatives for 3 days in a row and they made no difference. Normally these laxatives, that I have maybe taken once a YEAR before, are very effective for me...........when I thought back I realised I had been poohing less and lesss for weeks before, I now feel FULL FULL FULL of shit!!!
I have decided to give up on Anastrozole......................been getting breathless and having heart symptoms again too................but for now how can I get going again??? I have tried figs, dates, orange juice, coffee, litres of wáter, laxatives, veg soup........very hot tea.........and I am hardly eating anything...as feel so full...........it is horrible..........................
0 -
Sas, love your post! I like seeing Jim and not John! To the other two ladies, Sas and the other ladies on this thread can help you out. My home remedy I wouldn't recommend to anyone but it works for me. I've been having the Metamucil fibre bars and not only do they taste great but also do the job!
0 -
Lilly - sounds like it's getting critical. I'm sure SAS will jump in later, but if you're not taking Colace to soften what's in there, that what I personally do. I take the Colace without laxative pretty much whenever I'm past 3 days. I expect SAS would like to hear what laxative you have taken.
I'll be interested to see what SAS thinks about a Fleet Enema. I'm of an older generation and an enema was what all our Mothers did for lots of problems, even to bring down a fever.
flaviaRose - I was going to recommend Preparation H wipes instead of TP, but sounds like you've already researched that. I've personally never had hemorrhoids but i do sometimes get 'fissures' on the outside. For those I use Mycalog Cream. SAS will have some thoughts.
0 -
Hi, Lily and Flavi, If you read the first or second posts at the beginning of the thread it explains about how the pressure within the large colon causes hemorrhoids and prolonged pressure over time can lead to diverticulosis. Give those posts a read, then see if they help you understand the problem more. Understanding the problem can help you figure out a solution better.
Lily, bad news on the Anastrozole. The first thing I must say is you should check in with your PCP. Because of the length of time since your last bowel movement, this is a serious scenario. You are at risk for serious problems. Dislike telling you that because it will cause you to worry. Sorry. But it is important to tell you this. It, also, clarifies why you should check in with your doc.
Discuss with them:
1. If you are not in a reduced immune state, using a fleets enema. I used to get my docs to order two fleets enemas a half hour a part. The reason for the fleets is b/c the stool in the rectum becomes very dry when it sits there too long. It's like a cork in a bottle. The first fleets moistens the stool at the rectum and the second gets the next portion moistened. That will help things move on down and out. Even with taking laxatives or mag citrate, that really hard stool in the rectum is difficult to get things to pass. Google impaction.
Very important that no form of enema be used in a reduced immune state.
2. Discuss Magnesium Citrate. It's the product that is very often used as the prep for a colonoscopy. That will clean out the whole system. If they are okay with Mag citrate figure on staying home the whole day. Once cleaned out, you may not have a bowel movement for a couple of days b/c nothing's there to pass. Also, not uncommon with Mag Citrate to have the squirts for a couple of days. You have the urge to go and it's just a small squirt. Very inconvenient. But it works.
Lily and Flavi let us know how things work Good Luck!
0 -
I try to avoid constipation by drinking a glass of warm water first thing in the morning, sometimes followed by a kiwi fruit. I try to eat at least 5 prunes daily, drink one strong coffee and lots of water. I'm addicted to bad sugary things like jelly beans but I think they help me 'go'. WARNING - too much info follows ...I have to say that when I 'go' sometimes I nearly give birth and it hurts! Piles bleed and embarrassing major blockage of toilet can occur.
When I'm constipated I try to drink lots of water and start off on laxatives such as senacot followed by ducalax and then increasing amounts of movicol. Movicol usually eventually moves the mountain but it can be painful and unpleasant. Oh and I go for as many walks as I am able no matter how short.
Hope you are able to 'go' soon. It's miserable to feel so bloated and bunged up
0 -
Hi, MT, yup Fleets is a great product. I was typing while you were posting. I can add that some docs use hydrocortisone suppositories -think steroid like prednisone. If you have one of those showers where you can change the flow. Jump in the shower after a bowel movement and rinse with the shower on the single stream setting. warm water. Very soothing.
0 -
Sas, I just want to tell you that I think you are very knowledgeable, warm and wished that you were my nurse. You are fab! I'm on to the Metamucil Fibre Bars .... working like a charm!
0 -
thank you, I dont know what a fleets enema is but i bought an enema kit and used that, it barely touched what i can feel is there.......but has done something so i feel less nauseous.......am taking something to soften stools but still feel very clogged. Worried it may be something more sinister now........really do not want to go to Dr again........., what do u all think? More likely anastrozol yes?
0 -
Lily, sorry, But I gave you the absolute best answer in detail that I could. Except I will clarify " You are at risk for serious problems.". You are at risk for rupturing your colon. Please, see you doc and get his professional advice.
0 -
Judi that was a day brightner, Thank you
0 -
flaviarose - Try Balneol cleansing lotion onKleenex in place of TP - very soothing for irritated tissue there. Available in individual, single-use, portable packets.
keepsake
0 -
Keepsake thank you so much for your private message, much appreciated.......
SAS - I feel told off! But you are so well read you are most likely correct.....
0 -
Lily55 - You're very welcome. Sas-Schatzi just gave you excellent advice. Please contact your doctor now.
keepsake
0 -
Lilly - I don't mean to pile on top, but I'll second SAS about calling the doctor. This may be gross, but I had to watch a doc literally insert hand & pull out impacted stool from my Mother. Really not pleasant, but necessary since she was bedridden. I was horrified by his admonition about what could happen if we didn't keep stuff flowing. Does your doc have a PA that you can talk to over the phone? Or maybe an electronic communication plan like 'my chart' so you could email a question?
We'll be worrying about you. Please do let us know how you're doing.
0 -
Thank you keepsake, I'll get some!
0 -
Hiya - nothing so high tech, no phone numbers to my Doctor´s surgery either, and no appointment until next week. The only way I will get to see a Doctor before next week is if I go to the Emergency Department. I can feel things moving now so hopeful tomorrow will bring results after taking stool softener tonight, if not then I will go to A&E.
I feel toxic..........thank you all for caring.....
0 -
Lily, please, direct opposite of being told off. I'm very concerned for you. I'm much worried that this will get out of hand versus out of butt(pun)
We are prone to punning around here. The subject lends great material for the double entendre, but perhaps not appropriate now.
I just saw your post as I'm writing. The problem with the rectal plug(impaction) is things might be trying to force down from the above the plug. One of the signals for this is diarrhea with still feeling plugged. That means the plug is there. This creates a great deal of pressure on the colon wall. Read the description about colon leaking and rupture in the first page. Oh Lily, I always hate saying worst case scenario. Intestinal contents in the sterile abdomen can cause death from infection. A rupture can lead to necessity of a reversible colostomy or an irreversible colostomy.
Toxic feeling isn't good, but not a conclusive symptom. If you feel a sudden tearing that's real trouble. Also, a fever is a very bad sign with your scenario.
0 -
Oh Lily55 I feel your pain. 2 weeks on Arimidex and I have been suffering too. Thankfully not nearly as badly as you. I have just been to the chemist and he recommended suppositories. The wait is on. Hoping we get some relief soon.
0 -
Lily, Smufrette is right-------Dulcolax suppositories are not bad , not as good as fleets enemas, but better than nothing, But again I have to say seek your Docs counseling. Can't believe that they told you a week with your condition.
My doc is in a practice that also takes walkins. They have one office open 7 days a week and the other office open six days a week. I specifically changed to this practice because of 7 day availability of appointments or walkins.
0 -
hemroids....ok, don't laugh to much after reading this. My hubby's internist, told him to sit in a sits bath ( spelling?). Of....are you ready.....coke a cola. He said it works wonders!!! Go figure
Ever heard of that sas???
0 -
I keep checking back here to see how Lily is doing. We care about you. Lily. Thanks, Sas, for the comprehensive info that's helpful for us all.
keepsake
0 -
Hi All,
I am a "visitor" from CMF message board, and wanted to tell you about what I call a " magic potion" to deal with, and prevent or minimize constipation caused by chemo, meds, IBS.
I came to Chemo with long history of IBS cycles of constipation leading to diarhea, and bleeding hemmorhoids. A friend was adivised to use this by a nurse when she was hospitalized. The great thing about it is you can adjust how much you use depending on the state of your bowels.
Ingredients:
Benefiber
Natural Vitality CALM Magnesium powder ( raspberry lemon is good)
Use anywhere from a teaspoon to Tablespoon of each. Mix with boiling water. Pour little water in first as it fizzes,stir, pour in rest of water, and sip like tea. BMs are not predictable, maybe once a day/night, or more frequent. I have never had to use more than 1 tsp.of each. Day after infusion I have two servings of this " tea", and either that night or next day bowels are moving. I no longer live in fear of becoming seriously constipated. I think I can remove IBS from my medical profile!!
Hope this information helps someone else out there. It has been a miracle forme
Best to all my BC.org sisters,
Windward
0 -
OH that is kind of you......I am ok, I am taking a lot of stool softener and can feel things on the move so cannot be impacted........before it was just totally stationary........I have realised I really am still freaked out by hospitals for some things as prospect of going about this just fills me with horror.......I think the enema released more than I realised and have done some girnormous farts!. So a lot of the pressure was air I think. Before I felt full to my throat and did not eat anything or even feel hungry................now I have eaten a little and do feel hungry..... and feel less clogged......I am monitoring closely but think the crisis is over. Still feel a little worried it may be something more sinister as this is so unlike me ............thank you for caring and I hope I will be getting back to normal soon....giving up on Anastrozole though........breathing and heart rate affected already after jsut 6 weeks and I need to exercise..........anti cáncer and for sanity......
PS Poops are on the move..........no need to go to hospital YEAAY...........
0 -
In crisis I use the senakot that also has a stool softener in it (like Colace). Prunes and prune juice too. If really bad I have in the past used Dulcolax suppositories.
Bur for prevention and maintenance, magnesium every day (600-900mg) works really well. I do have a few prunes too, but not always.
I have not heard that aromatase inhibitors cause this. I have had a lot of joint pain with them but again rediscovered exercise's beneficial effects. Are you sure about giving anastrazole up? Maybe take magnesium every day before giving up the anastrazole-?
0 -
I have been taking magnesium every day.....for over a year, and I used senna based laxatives......when googled it seems a common side effect of anastrozole......I did not have this on Aromasin......after a few weeks I may go back to that and wait til side effects get too bad, i was ok for first 6 months last time.....have been on all 3 now.......plus I have orderedsome more extra strong curcumin as that keeps you going too....still worried to be honest as poop is not normal size at all..........got a real niggle it could be colon cáncer..........but trying not to go there.....................
0 -
Oh Lilly, I surely hope not.
0 -
Thanks for checking in, Lily. Happy to hear you're doing a little better, but you're still worried. I understand you dislike hospitals. Just wondering, if you ever need immediate medical help, does your hospital have a walk-in clinic that you would find more comfortable using than the ER? Or is there a free-standing walk-in clinic nearby? We all need to have some resource we can access anytime we have medical needs requiring immediate attention and need reassurance that our healthcare needs will be met. Hope you will feel much better soon
0 -
Morning all. Sas, just checking in to tell you that I love the Metamucil fibre bars. Went last night and once again this morning. It actually woke me up and it was moving. Easy to eat and taste great (that's the bars girls)!
0 -
YAY Judy, you have been through so many years of trouble, to have found NORMAL, another YAY. Another thing that is happening, I believe, is that your colon is still healing after so many years of insult. It takes along time for the colon to heal itself, a year or more. Not surprised, it's a couple years in your case. Tissue and the Microbiome. Remember to feed your bacteria well
Lily, Again please read the Diverticulosis post on the first page. You will see a description of why pencil stools occur. It's a consideration of origin of that type of stool. Also,Yes, tumors can cause it too. Having a GI doc do the appropriate studies to determine cause and treatment is what you should work towards. Hope you pooped and are OKAY
Susan, looked at the net for Coca-Cola. Saw posts, but nothing based on science. It may show up in later questioning. I have found at times if I looked a few days down the road after a initial search things pop up that didn't before, with the exact same question to the search engine. But I can relate to the unusual. After my only delivery, I was constipated. The resident ordered a Milk and Molasses enema. It was the most gentle thing I experienced. What amazed me was I had been in nursing since 1969, it was 1984. I had never heard of it.
What I thought at the time was how did someone conclude that Milk and Molasses was okay to use? Same with Coca-Cola for a sitz bath? If it does no harm, and feels better, then .....................................
Now I have to go look up M&M enema's OCD ..........
0 -
Smurfette, I reread my response re: your suggestion of Dulcolax. I didn't mean to diss Dulcolax suppositories. They are great. My brain was running in the line of thought, of what was best in Lily's scenario. With the rectal vault so full of hard stool, if a Fleets was allowed, it's oz's of liquid had more of a chance of moistening the stool. Plus, with so much stool, they're is the problem of inserting the suppository into the middle of the stool. Eventually it will work, but will take longer.
It does raise an interesting thought. Hope I phrase this right.
If all enema's are contraindicated in an immunocompromised b/c of the potential of micro-tears in the mucosa leading to systemic infection, can a Dulcolax suppository be safely used?
Previously, many pages ago, I stated that nothing should be put in the rectum of an immunocompromised person. That is an accepted knowledge. But in the scenario of an impaction where the impaction needs to be removed in a different way to get things moving safely, again is it safe to use dulcolax suppository. Sheesh, just going to call the company.
0 -
Looking for info re: above question came across this. Good info. Much is cover in these 30 pages, but nice to have a single page source
Gastrointestinal Complications–for health professionals (PDQ®)
.http://www.cancer.gov/about-cancer/treatment/side-effects/constipation/GI-complications-hp-pdq
0 -
Contacted the company re: Dulcolax use in the immunocompromised patient where it's use is being considered because of impaction. It's being bumped up channels b/c an answer is not readily available. I'll let you know know when I get an answer.
0 -
Okay, found a nice source for M&M enemas. MDAnderson Center.
They give the recipe for M&M .
https://www4.mdanderson.org/pe/index.cfm?pageName=opendoc&docid=31
This is their cautionary on their patient education instruction sheet. Even though MDA is a major world resource, please, discuss with your doc.
Do not use an enema if you are on chemotherapy and your platelet count is below 50,000.
If you have taken a Fleet mineral oil enema, give yourself the milk and molasses enema 1 hour after the Fleet enema.
Recipe6 ounces (3/4 cup) hot water
3 ounces powdered milk (do not use cow's milk)
4.5 ounces (2/3 cup) molasses
The source for this patient education handout is the American Cancer Society. So, even though milk and molasses is not widely known, apparently it is considered a good treatment.
0 -
The Journal of Emergency Medicine Safety and Efficacy of Milk and Molasses Enemas in the Emergency DepartmentGary M. Vilke, MD; Gerard DeMers, DO, DHSC, MPH; Nilang Patel, MS; Edward M. Castillo, PHD | Disclosures J Emerg Med. 2015;48(6):667-670.
Abstract and Introduction
Abstract
Background Increased scrutiny is occurring from regulatory agencies about the use of nonsterile enema preparations in the emergency department (ED) for constipation. This includes the "off-label" use of milk and molasses (M&M) enemas, as there are no reported data in the medical literature to determine safety and efficacy.
Objectives To evaluate the success and complication rates of administering M&M enemas in the ED.
"" frameborder="0" marginwidth="0" marginheight="0" scrolling="no" style="border: 0px currentColor; border-image: none; vertical-align: bottom;">Methods This was a structured retrospective study at two EDs over 8 years. Primary success was defined as the patient having a bowel movement. Secondary measures of success included improved pain score by 2 or more points or lowering of a heart rate initially over 100 beats/min by 20 or more beats/min. Complications included: hemodynamic compromise, increased pain, electrolyte disturbances, bacteremia, bowel perforation, rectal pain or bleeding, cardiac dysrhythmias, anaphylaxis, electrolyte disturbances, dizziness or syncope, or hospital admission for issues surrounding enema.
Results There were 2013 enemas given, of which 261 were M&M enemas; 214 were given alone. Success rates defined only as bowel evacuation for M&M enemas alone were 87.9% (188/214) and, when used after other treatment failures, were 82.4% (28/34) successful. Five additional patients improved with the secondary measures (90.2% success). There were 8/261 complications (3.1%), of which four had an increased heart rate, two had decreased blood pressure, one had an increased pain score, and one subsequently developed a fever.
Conclusion M&M enemas have a low complication rate when used in the ED.
0 -
In the above study abstract from the publication in the Journal of Emergency Medicine, in the 1st paragraph is this statement " This includes the "off-label" use of milk and molasses (M&M) enemas, as there are no reported data in the medical literature to determine safety and efficacy."
Translation: it is not on the (powdered) milk label or the molasses label that it can be used for enema's. I amuse easily.
0 -
Lily hasn't posted today.
0 -
i have been busy, feel bit better but know i really need to go to the Dr but I just cannot face any more invasive stuff, there is no privacy here, toilets in ED have no locks, seriously, and enemas are given in general toilet with no regard for privacy..........
But tonight i had space to eat a normal meal and feel normal afterwards.......first one in five days so think have turned a corner........
I know also i should get colon checked out but am being an ostrich and taking loads of stool softener.........I feel at end of my tolerance rope emotionally
0 -
Lilly - sending hugs. It sounds like a familiar place for most of us -" no more damn doctors." We know what we need to do, but it's just...... Too many doc appointments, too much time sidelined. Hope things start flowing and you get up the energy to face your GI doc, if nothing else.
0 -
Please, Lily, you are at serious risk. Please, You won't like the consequenses
0 -
Lily did you poop?
0 -
Oh lily, you are classic for a blow out. That's what we old nurse's called it. After seeing folks go through it. Don't want it to happen. Just bummed that you aren't getting the message that you are putting your self at great risk. Life risk.
0 -
yes but not as much as I sense is ther
0 -
Okay, Lily, we can only say so much. You are a responsible woman. We all have stressed the need for you to seek care from you PCP, go to a walk-in, or an ER. You have chosen to not do so. Sorry, we must step out of the talk. Beyond this it may put us in jeapordy. Please, recognize I have not made this statement in 30 pages.
0 -
Getting ready to go on a week long trip. I always have trouble keeping myself regular when I'm traveling, and this time I will be staying some of the time in a home w/friends instead of in a hotel. I've already set out a small package of dried prunes to pack.
I've found I have more problems when I don't eat a green salad every day. And darn it, I just don't feel like having that every day in the winter.
Judi - did you have to start the Metamucil fiber bars gradually? Do you eat one a day?
0 -
MT, I LOVE THE METAMUCIL BARS! No, I just eat one a day. Today, I had a BM. I'm hoping that this will do the trick. Only problem, they can be a little expensive. Six bars cost me $9.99 but I get my fibre and a BM so I'm not going to complain. Funny how we can look at the cost of food and some foods you will spend the money, and others no way. I'll have a Tim Hortons coffee everyday at a cost of $1.50 and don't even blink an eye but a Metamucil bar at $1.50 I can have a little heart attack. MT, enjoy your week long trip!
0 -
Oh sas-schatzi I never took your response to mean diss the suppositories.
Thanks so much for all the info and the links. Much appreciated. Having a few days with my daughter and grandson but will read them thoroughly when I get home
0 -
it seems we can't get these bars in Spain......
0 -
Lilly, maybe the bars are under a different name. But Lily, they may not be your answer. Trust me, listen to Sas. I've followed her advice before and it worked. You need to see a DOCTOR and listen to them!
0 -
I am going to the Emergency Department this afternoon as it is not resolving, will probably have to wait 5 hours to be seen if lucky.....
0 -
Lily, don't wait until this afternoon .... get there NOW! Nothing is worth this crap!
0 -
time difference I left just after posting....seven hours in ED....totally blocked, two enemas with tubes did not work, X ray showed clogging but no blockage or reason for it, have to take two special medicines tomorrow with four pints of water and go back to hosp in two days if nothing moves.........there is no lock on door of only toilet in whole ED which is where they do the enemas, humiliation rules, nurses even asked if it worked in front of many other people, no privacy....
Blood tests done and were fine but no idea what they tested for
0 -
Oh Lily, at least you got to the Ed ... but now you have something that may help you. This is not the time to worry about privacy .... the nurses have seen it all. Good on the blood tests but now to get to the root of the matter. Sas can probably fill in the missing gaps here.
0 -
Lilly - so glad you finally got to the doc. I agree w/Judi. After BC & x-biopsies & mammograms & ultrasounds & breast MRIs & 3 surgeries & rads & etc, I just whip off my shirt with no thought for modesty anymore. Do you remember what the two special meds are that you have to take? We'd be interested in the names. Hope everything comes out all right. Pun intended but I'm surely not laughing at you - just sending positive wishes.
0 -
Probably a CBC that will show if White blood cell count is elevated. That would mean that bacteria crossed the line(colon wall into the blood stream). Elevation of WBC can occur with micro-tears & Divertiula in absence of a rupture which trust me if a rupture occurred you'd know it. Elevated WBC's without any other abdominal signs would be an early sign of trouble.
At least electrolytes panel which would show dehydration. Dehydration can be a source of constipation. The body pulls out (reabsorbs) fluid from the large colon as it transits the colon. Normal. But if the internal body is dry, it will pull even more fluid. It's a protective mechanism. Hence, one of the reasons for encouragement to drink fluids on a routine basis.
Lily, totally sucks when medical/nursing personal do not respect dignity. Been subjected to it too. Sucks.
Not bright on their part that after two enemas "with no return" to have discharged you. "With no return" is a accepted descriptive term for documentation. The only advantage on your part now, is they've set themselves up for a lawsuit if you have an untoward(trouble) outcome.
CHIT---SHIT................This doesn't work when people (nursing /docs) don't get it right. We spend several days trying to get you to go there, and then they screw it up.
How many days without pooping?
What drugs?
Are you in an immunocompromised period?
Apparently not b/c they gave you two enema's. Did they ask you about immuncomprimized history? Please not gonna be happy if that's not been done.
Did anyone do a digital rectal exam for an impaction?
0 -
they did enemas before blood test results, my glucose was 94, its normally in the 70s........no questions about immuno compromised anything. Was put on a drip too.
Had physical rectal exam, nothing digital, and Xray of abdo which showed total colon full except rectal area.
14 days without a proper poop.
Some Questions were in full waiting room in front of other patients and families, I was the only one there on my own. Everyone looked at me afterwards. I dont mind nurses in private
Stuff to take is called Casen Lax, then Cintapride 15 mins before ev meal for 15 days, i have to go and get bith from chemist toda
0 -
trying to verify drugs
Casenlax is Mirilax equivalent.
http://www.drugs.com/international/macrogol.html
Cintapride is a prokinetic drug which promotes gastric emptying and gut motility in patients that have a proven motility problem.
Equivalent to Reglan and Zellnorm in the USA Odd use of this drug. Lily you haven't got proven gastric motility problem. That's done by testing. You just haven't pooped in 14 days. One does not equal the other, it may, but no absolute.
0 -
So far its done nothing except make me feel heady and I am drinking loads of wáter, triple what they suggest, I think I need a colonoscopy......am tempted to go and get the prep stuff just to get whats in there out of me
0 -
Hold on Lily, Don't go over board on the fluids. That could create more problems with diluting your electrolytes. casenlax/ Miralax is Polyethylene glycol. Polyethylene Glycol is the active ingredient in Nulytely/ Golytyle. One of the main drugs used for the clean out for a colonscopy. The following is from page 10
"3. Lubricant laxative: Promotes softening of the stool and facilitates passage of the feces through the intestines by its lubricant effect. Some examples of lubricant products are mineral oil, glycerin, Milk of magnesia. The hyperosmotic laxatives are glycerin, Miralax, Nulytely, Colyte lactulose (Chronulac, Duphalac), all of which act by holding water within the intestine. Lactulose may also increase peristaltic action of the intestine. The following link to medicine.net describes mineral oil and it's probems and percautions.
www.medicinenet.com/laxatives_...#lubricant_laxatives".
You have to give them time to work.
0 -
Lily,
1. Please, read the diverticulosis info pg 1or 2. You need to know what signs and symptoms to watch for, to get yourself back to the hospital or call EMS.
2. Call your PCP's office and tell them it's 14 days. That you have been to ER and what treatment they prescribed. Request an appointment ASAP. Document everything. A witness would be nice. What you said, what they said, names, dates and times.
3. Apparently you passed some stool. That's why the rectum was empty.
4. digital exam----did some one stick their finger up your butt to feel for stool.
5. Are you immunocompromised?
6 have you started a new drug in the last three weeks?
7 What drugs are you on and length of time on each drug?
8. Anything unusual happen within a few days of the onset of the constipation?
9. Are you on any pain meds now? (please, stop if possible until this episode is over)
10 has this ever happened before? What did you do?
That's all I can think of now. Going to get a form I did a sometime ago here that has more questions. No sense in reinventing the wheel.
BBL
0 -
Did this awhile back.
Aug 7, 2015 11:43AM - edited Aug 7, 2015 03:36PM by sas-schatzi
Hate it when they're is trouble in the end. They're is several parts to your question. Fill in the blank , cut& paste to another box.
What do you take for a pain med?________________ How often do you take the pain med?__________
Last dose?______
Have you changed your diet within the last two weeks?_______________________________________________
Do you know how many glasses of fluids you drink a day?________________Coffee/tea?soda?_______________
Antibiotics within the last 3months/ what/why?______________________________________________________
Did you start any new meds within the last month?__________________________________________________
What meds do you take?_______________________________________________________________________
Any Left side abdominal pain?__________? Abdominal pain elswhere?___________Any bloating?____________
Any change in stool color?____________________________________________________
Have you noticed any streaking of blood on the hard stool?____________________________________________
When you were taking pain meds how often would you evacuate?_______________________________________
What's your immune status?_____________________________________________________________________
Do you have grandkids? (just kidding)
IMPORTANT: this is a review. It will help Identify if you have had a new onset condition change that will help you decide if you need to go to the doc. Not every episode of constipation needs a physican look, but a condition change does. I can't suggest what you take. sassy
0 -
THanks SAS, but I have been taking Duphalac for the last 5 days already with no result.....
Questionnaires are good.......
0 -
What do you take for a pain med?__Nothing______________ How often do you take the pain med?__________
Last dose?______
Have you changed your diet within the last two weeks?_____No__________________________________________
Do you know how many glasses of fluids you drink a day?_8 to 12 _______________Coffee/tea?soda? 4 teas black
Antibiotics within the last 3months/ what/why?_______no_______________________________________________
Did you start any new meds within the last month?__Anastozole 6 weeks ago______________________________
What meds do you take? Anastozole, thyroxine, aspirin, ramprimil, apart from anastrozole been taking all others at same dosage for years______________
Any Left side abdominal pain?_no_________? Abdominal pain elswhere?_yes right and centre__Any bloating? a little______
Any change in stool color?____Yes paler________________________________________________
Have you noticed any streaking of blood on the hard stool?_blood yes___________________________________________
When you were taking pain meds how often would you evacuate?_not often so never tak pai meds as they not efficient enough to make it worthwhile______________________________________
What's your immune status?_ No idea_________________________
0 -
Lily, Well that bollix' s that. They gave you the same drug different name at the hospital. What happens if you go back to the hospital?. What's also bollixed is, if you had that drug in your drug list, then that tells me either they didn't look at your drug list or they don't know their drugs.
0 -
Are you answering the questions?
0 -
Yes i answered them above, those blank are not applicable...no duphalac was not in my drug list but i told them everything i had taken with no result.....and it was on there..............the only thing it can be is the anastrozole as this is not a problem i normally have....
0 -
Lily, Yes, we have been at this for years it seems. Forgot about the AI. Seems you said you stopped it? How many days ago? Going to take a look bbl
0 -
Stopped taking it 6 days ago........how long does it hang around?
0 -
Lily, Sorry missed that you cut and pasted the questionnaire. Good. If you can answer the other list of questions. I'm going to cut and paste your cut and paste and put what it means next to it in bold.
What is the manufacturer of your anastrozole.
Apparently they're near 40 of them now. Daily med is the one I'm checking now
bbl
0 -
1. Please, read the diverticulosis info pg 1or 2. You need to know what signs and symptoms to watch for, to get yourself back to the hospital or call EMS.
2. Call your PCP's office and tell them it's 14 days. That you have been to ER and what treatment they prescribed. Request an appointment ASAP. Document everything. A witness would be nice. What you said, what they said, names, dates and times. I have their report but went alone, don´t live in USA, can only go to ED again
3. Apparently you passed some stool. That's why the rectum was empty. - this was a few days ago,,,,,,no change since then
4. digital exam----did some one stick their finger up your butt to feel for stool. Yes and hence answered 3 based on that
5. Are you immunocompromised? No
6 have you started a new drug in the last three weeks? No
7 What drugs are you on and length of time on each drug? Tyroxine 75, aspirin 100, Rapiril 2mg...............over 10 years
8. Anything unusual happen within a few days of the onset of the constipation? no
9. Are you on any pain meds now? (please, stop if possible until this episode is over) no
10 has this ever happened before? What did you do? No, never had laxative resistant constipation like this.....
0 -
Apart from eating vegetables to get the fibre, I follow all those rules in the post re divertí.......
0 -
24 minutes ago Lily55 wrote:
What do you take for a pain med?__Nothing___
Have you changed your diet within the last two weeks?_____No
Do you know how many glasses of fluids you drink a day?_8 to 12 (GOOD) Coffee/tea?soda? 4 teas black (looking for how much caffeine, you're in the okay range)
Antibiotics within the last 3months/ what/why?_______no_
Did you start any new meds within the last month?__Anastozole 6 weeks ago
What meds do you take? Anastozole, thyroxine, aspirin, ramprimil, apart from anastrozole been taking all others at same dosage for years( will throw these drugs in my drug checker in a few minutes)
Any Left side abdominal pain?_no (good) Abdominal pain elswhere?_yes right and centre(your still blocked, be very aware of this pain)Any bloating? a little( based on no poop in 14 days amazing it's not more)
Any change in stool color?____Yes paler (how pale is pale? as long as it's still brown it's okay, The brown color is created by bile that is released from the liver and the gallbladder which is the storage bag for bile. White is no good, it indicates a liver malfunction)
Have you noticed any streaking of blood on the hard stool?_blood yes( that can be from hemorrhoids or diverticula )
When you were taking pain meds how often would you evacuate?_not often so never tak pai meds as they not efficient enough to make it worthwhile(okay good info)
What's your immune status?_ No idea( not sure if AI's affect immune status. Will see if it's listed while I look for any connection to constipation. In general constipation isn't listed so far, BUT BUT BUT when nothing else has changed and a new drug is introduced that drug is the suspect for the problem, no matter what the literature says)
0 -
Okay see the divertic post-----------off to look at anastrozole a bit more. Try your MO's office for an appointment while I'm off.
Okay see the other form
0 -
It shows on here as a side effect..........I feel dried out all over........in such a short space of time too
https://www.nlm.nih.gov/medlineplus/druginfo/meds/a696018.html
0 -
I took Bluebird make of Anastrozole for first month then it was changed to Ranbaxy
0 -
11 minutes ago Lily55 wrote:
1. Please, read the diverticulosis info pg 1or 2. You need to know what signs and symptoms to watch for, to get yourself back to the hospital or call EMS.
2. Call your PCP's office and tell them it's 14 days. That you have been to ER and what treatment they prescribed. Request an appointment ASAP. Document everything. A witness would be nice. What you said, what they said, names, dates and times. I have their report but went alone, don´t live in USA, can only go to ED again
3. Apparently you passed some stool. That's why the rectum was empty. - this was a few days ago,,,,,,no change since then
4. digital exam----did some one stick their finger up your butt to feel for stool. Yes and hence answered 3 based on that
5. Are you immunocompromised? No
6 have you started a new drug in the last three weeks? No
7 What drugs are you on and length of time on each drug? Tyroxine 75, aspirin 100, Rapiril 2mg...............over 10 years
8. Anything unusual happen within a few days of the onset of the constipation? no
9. Are you on any pain meds now? (please, stop if possible until this episode is over) no
10 has this ever happened before? What did you do? No, never had laxative resistant constipation like this.....
///////////////////////////////////////////////////////////////////////
Sorry about overlapping questions see next post
0 -
Are you 1.burping, 2 passing gas, 3 do you feel any movement in the belly, 3 cramping? Did they say if you had bowel sounds?
0 -
Okay, anastrozole does cause constipation, documented in three trials
0 -
Come on back Lily
0 -
Are you 1.burping, 2 passing gas, 3 do you feel any movement in the belly, 3 cramping? Did they say if you had bowel sounds?
Very specific reason for these particular questions
0 -
Burping - very Little, twice today, not before
Passing gas - yes but not excessively, when it is though its a lot longer than a normal fart
Movement - no
Cramping - no
No bowel sounds
0 -
Yoohooo Lily
0 -
Okay there you are.
Go back to the ED. You either have an ileus or working towards one. You should be admitted, on IV's, Nothing by mouth except clear liquids. Nastrogastric tube may or may not be indicated yet. Your not completely shut down yet. Burping is the release of gas when it can't go in the right direction. Generally, not a problem and associated with food, but in your presentation it's an early sign. Putting it together with history, they haven't done right by you. No bowel sounds, generally, have to be established by using a stethoscope. On the other hand they're can be sounds associated with no forward movement. You have to have some abdominal distention by this time i.e like you're pregnant? Cramping would be an indication that the colon is propelling forward in that snake like movement. It's not doing it. Passing gas the way you are is a not normal also, but it's better than nothing. If it is an ileus, the next thing to happen is no passing gas, abdominal distention and lot's of burping.0 -
They gave you a drug to help with the motility, but never established why the motility was interfered with.
What I was looking for was a definitive statement about cintapride and it's use without determining cause. Would have been easy if a statement was outthere. But I can't find one right now. But in general the other drugs used in the USA do say not to be used in mechanical obstruction.
Your bowel AIN't moving, unknown reason why.
Lily, I can't see trying any more. I used to teach decision making to paramedics and nursing students. This is a phrase I used to use with them when it was time to hand the problem off to a higher authority.
" If based on everything you know about the problem, you don't have an answer, then give it to a higher authority" May sound simple, but it's huge. It's saying "I don't know". Any attempt after that delays time to obtain care of someone that should know. That delay can be life threatening.
0 -
THank you for all your help and time SAS.......
They told me not to go back til 2 clear days have gone by.......so I dare not do that...........they would simply not see me..but I will if nothing happens tomorrow as I too feel something is wrong........ileus due to medication is my bet........and i think the medication to increase motility shows that......
She listened to my belly with a stethoscope. She just said if there was no gas it would be a danger sign........
I think USA is a sophisticated scared of litigation society, here its the reverse........they are trained in patient shaming here
0 -
Patient shaming Hmmmmmm never heard that one. Not good. Not good. Bad medicine. The shame is on them.
Go back and reread our posts from today. That will allow you to put everything in sequence as we have multiple time cross posted.
If you still feel you can't go till tomorrow, you will at least have done it with more knowledge than you had this morning.
I still suggest clear liquids.
0 -
If your symptoms change or worsen, please, return to the ED.
0 -
BTW I worked for one of the Founding Fathers of the American College of Emergency Physicians 36 years ago. It made him crazy that people would call it Emergency Room. He would go off on anyone that would say Room. He'd say "It's a Department, a department" Very dramatic. You reminded me of that when you said ED. Here the habit of saying ER has never been broken. An the show ER in the 90's didn't help. Likely will always be ER here.
Your English is excellent. Are you anexpat or Spanish?
0 -
I am english living in Spain, and believe me patient shaming is an art form here..... spanish patients treat doctors as God, whereas I ask questions - i do think Ileus is the diagnosis, I have more interest in going but there is nothing there to go, its still higher up, had soup today, will drink more..........
THank you for caring xx
0 -
Good Luck Lily, hope it all goes smoothly in the end. XX back
0 -
Okay , seems like they're is always one last thought. If the passing of the gas stops, and vomiting starts---the line was crossed to complete ileus.
Once the vomiting starts, the stomach still produces fluid. Once it reaches max fill. The stomach well up chuck the contents. Relief will be felt, until it's full again and then vomit again. It's a continuing cycle. That's why the nasogastric tube is put in. Until the colon decides to wake up, then the NG tube would remain in place.
You should get a copy of that report and the film done yesterday. So, it doesn't disappear when the trouble starts.
Ileus's are strange. Sometimes it takes only days to resolve. Sometimes weeks.
0 -
I have a copy of report, the film is only on the system.........I cannot eat a real meal and feel lacking in energy....and really don´t want any time in a hospital but if I stop releasing gas and being sick I will be straight up there. I note that it says common cause of this is colon cáncer...........this is my big worry...........
0 -
Ahh lily, dx by reading signs and symptoms without dx tools, is like cooking with only a recipe and nothing else. Hmm is that a good analogy? Just made it up, may use it again.
How you doing today?
0 -
Lilly - Thinking of you. hope you are OK.
0 -
Lily, Yet another one thinking of you and hope you're OK
0 -
Hi MT
again concerned. Generally, Lily posting times are between 1pm and 7pm. Need to hoot her out
HOOOOTIEHOOOOOOOOOOOOOOOLILYHOOOOOOOOINESPAGNEHOOTIEHOOOOOOOOOOOOO
0 -
hi thank you all for caring......made myself do an exercise class today and two hours later did a poop!! Drum roll please........it was not massive but mre than in last two weeks! Also felt hungry so ate more of a proper meal today, can feel something happening instead if a dead zone, farting a lot more tonight......hope for more poop tomorrow, really din't want to go back to hospital. Have eaten more food that has laxative effect this afternoon......here's hpping.....
0 -
0 -
0 -
Please, Lily limit solid food until the body gets rid of the stuff. The fact that you did poop and are farting means somethings is moving. If you took both drugs recommended at the ED. and things are starting to move YAY. Used to be a thing when patients were farting when standing, we get them to the commode asap and assume the position.
"The importance of a poop is never so valued till they're isn't one" a Sassy Confusius( pretending)
0 -
Many were worried about your well being
blessings for a wonderful & easy passing0 -
Sas
I will say that this constipation thing is really a pain in the a-- LOL
Last Thurs. I had chemo treatment so that day to get ahead of getting constipation I took a dose of Miralax and 2 Sennokat. Next day no bm so that night I took a dose of milk of magnesium. Well of course that worked with many trips to the loo with just lots of watery bm, I was not eating much so next day I only had some little watery stools and since then I really have not had a decent bm. Tonight I really feel like I would like to have a decent bm but I strained to no one end and only had a little bm and seemed like it could have mucous also. I am scheduled for chemo again on Thursday and would wish to get my intestines working right. Any suggestions. I just took a dose of Miralax tonight. I think my intestines are screwed up from taking all teh stool softeners and laxatives to overcome constipation. I dread constipation. Any suggestions would be really appreciative because I know you are quite informed.
Thanks so much
Rosieo
0 -
I am still farting more than pooping and todays poop was smaller, although did not cause bleeding, than yesterday yet I am still so full........and both days are still significantly less than is normal for me, is there anything I should be doing SAS? You are my poop guru now!! xx
0 -
Oh my, I can't legally tell you what to do. That's why the docs need to give you a constipation plan i.e.poop plan. I wrote one many pages ago. Any volunteers to go back and find it? Serious, it was a step by step plan. That I suggested to take and get approved by the doc. Pretty sure there was a post from pdgraham around the time b/c I helped her through a bad constipation time associated with chemo.
Rosieo, I'm a big believer in Magnesium Citrate. It's commonly used for colonoscopy clean out and it's okay in an immunocompromised state.
Mirilax is a less strong form of Nulytely and Golytely. They all are Polyethylene Glycol. PEG. The problem I have with the three is that I can't find why the caution is on the label that says "not to be used if there is a history of kidney disease". It implies that the kidney can be affected. The only way that can happen is if it's picked up by the circulatory system. PEG floating in the circulatory system doesn't sound right.
But what do you do in an intractable constipation problem.
Lily I'm the Poop Guru !, they used to call me the Enema Queen on my old unit. Guess this is consistent. Please, clear liquids until you get cleaned out. You aren't immunocompromised so in your case the Fleets enema is a consideration. Sure wish you had your docs blessing on it. In your case you sound like you have a mechanical problem i.e peristalsis has slowed or stopped. Peristalsis is the snake like movement of the bowel that propels food forward from the lower esophagus>>>stomach>>>small intestine>>>>colon>>>out through the anus.
I have to pick up DBF. Look for posts on here around march to june 2 years ago as a start, to find the poop plan. BBL
0 -
Thanks SAS...........I think I am going to get some magnesium citrate........and take a big dose......
0 -
Oh Lily, the Guru suggested fleets and you go to mag citrate. Ugh the Guru goes unheeded................
0 -
Hope it all comes out in the end....................
0 -
Looking for the constipation plan, found this old post of Jwoo's on the use of molasses, but this is how you take it orally.
http://www.super-crush.com/blahblahblah/my-tmi-psa/ her woe with constipation
http://www.safe-hemorrhoid-treatment.com/blackstrap-molasses.html
0 -
https://community.breastcancer.org/forum/6/topics/781867?page=12
This post was to Minus two on page 12. Lot's of things covered. Constipation plan mention half way down.
Suggest visiting page 12, some helpful posts.
Feb 5, 2014 07:16PM sas-schatzi wrote:
OH MY Minus Two I'm so sorry , I haven't been watching. God lord I hope you didn't rupture something.
First thoughts, check in with your doc...reason you have had a new onset change. I'll think or try to think of what to ask and plan. But I do think wityh any new onset change the safe practice is a doc check in. In this case if you have a GI doc that would be good. But your PCP is good to.I would go first to my PCP, but I also call her Saint PCP. I don't necessarily think MO's are good for this b/c they may not cover all the basics. I'll type this so you can cut and paste or print and fill in the answers to take with you for doc visit
History of present problem: New onset constipation
When did it start?
Description of stools ?
How often? How many days between stools?
Abdominal Pain with stools?
How much liquid do you drink a day?(take a couple of days and actually measure)
Location of pain?
Does pain in abdomen remain after stools?
What cause you to finely evacuate? (you've continued taking colace, but if you don't take it you have large hard stools--did I get that right?)
other things used to promote evacuation?(prunes)
Physical description of stools?
Change in medications?when?what?
Pain meds? Change? How many per day?
Talk to PCP about following plan:
1. Miralax daily.
2.Stewed prunes/apricots warm with some lemon in am..
3.Probiotics-tsp to a tablespoon a day for a week.
4. Colace PRN
5. Emergency plan: meaning what do you do if your regular plan isn't working and you need to poop.
6. Develop a bowel retraining plan: basically using the 1-4 working it through overtime until your bowel functions again on it's own.
This plan is a mix of recommendation from the gastroenterology guidelines--miralax daily. Stewed prunes or apricots-- common SUCCESSFUL method here. Warm water and lemon another common plan----so if you put them together it may make it all come out in the end very smoothly and easily
Probiotics, something may have disrupted the good bacteria that you aren't aware of. Colace the common doc go to med, but you want to wean away from all drugs eventually.Have an emergency plan i.e. no BM in ____days what can you use? My go to drug is a bottle of magnesium citrate, but the aftermath is the squirts for a few days. Sometimes unpredictable. For me severe constipation can occur after I've used oxy for a couple of days when I have a bone/joint/ muscle flare.
The key here is you 've involved your doc. Reread the first page on my posts about diverticulosis/itis. The doc is going to ask questions to assure you haven't got something going on. You said the thread is wonderful---tells me you've read it. Many wonderful ideas here. If there's something from here you like, add it to the plan above.
What I like about walking into the doc's office with a plan, is it causes them to focus on what you are saying, They can see it in writing, this further focuses their attention. They then can say yay or nay to each item.
You're then able to leave the office with a clear plan with all the bases covered. I'll cut and paste this to you in a PM. If you need me in the future and I haven't responded, please, PM.
0 -
http://www.cancer.gov/about-cancer/treatment/side-effects/constipation/GI-complications-hp-pdq
Gastrointestinal Complications–for health professionals (PDQ®)
Did we just do this?
Yup, linked it on page 30, It was good then and I think it's good again
What's nice is NIH confirms what we have been doing and saying. Who was first LOL. I like it so well I'm going to put it in the topic box.
0 -
I dont know what fleet enemas are, the only enemas here don´t blimmin work.......I am on the prunes and did a better poop this morning but still half a ton in there............
Could not get any mag citrate..........feeling a bit fed up as this feels like an alien bowel to me and I am still worried it may be cáncer causing narrowing......as this has never ever happened to me before and I stopped the anastozole 10 days ago now....so is out of my system.....hate it.........
Hugs to you Guru SAS x
0 -
Lily
Also a saline laxative, Fleet Enema EXTRA gives you 70% more volume than a standard 133ml enema. This provides more relief when you are constipated or have had three or fewer bowel movements each week and your stools are hard to pass. Works in 1-5 minutes.
Fleet Enema EXTRA
This is a lubricant laxative. A good option if stools are very hard or difficult to pass or if you should avoid straining, especially if you are recovering from surgery or childbirth or if you suffer from hemorrhoids. Works in 2-15 minutes.
Fleet Mineral Oil Enema
The Fleet Bisacodyl Enema is for occasional constipation or bowel cleansing before a rectal exam. A stimulant laxative, it increases the rhythmic action of the colon to push feces through the bowel. Works within 5-20 minutes.
0 -
http://www.webmd.com/drugs/2/drug-7165/citrate-of-magnesia-oral/details
Known as Magnesium Citrate or Citrate of Magnesia
0 -
Lily how many days?
0 -
16 but I did go today, not enough but more than before and no bleeding. My concern is size of poop is a lot smaller as tho there is not enough space to come out..........and I know most common colon cancer is in rectal area.............
I will investigate those enemas but I think the magnesio liquid will be better...........as its stuck higher up than an enema will reach..
0 -
Lily encouraging to see your doc again. I have to. . I'm trained to do that chickie
0 -
i have already made an appt for Monday at my normal Doctor, not ED, but I did my best and biggest poop for weeks today, its still narrow though but quantity today was normal for me. Am still worried thoug
0 -
what have you use?
0 -
cinitapride three times a day, chia seed with coconut milk puddings, prunes......did second poop today! Still lots to go yet but i feel bit bette
0 -
okay,symptoms change or worsen beat feet to ed
0 -
After weeks of problems I am off to my own doctor tomorrow (normal one not Onc), but feeling very fearful really as have so many symptoms of colon cáncer and my recent problems of total blockage are not resolving fast, better than a week ago but not good or normal for me at all...........feel overwhelmed and worn down by all that has gone on over last 4 years, i cover it well i know but its still there.........................sorry all.
0 -
Lily, hugs I'm with you, it's wearing, but we keep on pushing. Must admit I have an unorthodox way of handling things. Way against anyone's standard i.e politically correct. I get bad news, I do one of two things. Go out for an outrageously good meal or I get drunk. Then push on the next day. In the case of getting drunk , it's two days. We all cope differently.
Until the dx is in, it truly makes no sense to worry. What is right now, is. I can come up with many more diagnoses than colon cancer. For any dx it's a step by step method to work the problem.
Walk into your docs office tomorrow with an itemized list of what has occurred. No narrative. He will get lost. Take the three lists I posted, filter out the duplicate questions. It will allow him to focus.
Always keep the doc focused. You get more done that way.
Hugs sweetie, have faith, you can get through this
0 -
Good luck Lily .... have faith! I agree with Sas .... you don't know what you are dealing with so until tomorrow .... rest!
0 -
Did anyone see this commercial for a medication that helps with opioid-induced constipation? It was shown during the Superbowl.
0 -
Lily, been thinking about you. How did you make out at the Doctor's?
0 -
Aw very sweet of you to remember.........THey changed my medication to get things moving and have ordered blood and pooh tests to check for intestinal and colon cáncer.........have to go back to the Doctor next week for a check up, then wait for blood and pooh results, and then I want a colonoscopy as I think there is something affecting my colon, and it could be a gall bladder Stone that has moved.......
So on two different meds 3 times a day............I still feel full but do feel there is movement, just not outwards!!!!
0 -
https://www.youtube.com/watch?v=X276jp-vvRY
hi corky, made it hot.
Lily, good lord, How can you post that and not post the drugs, silly girl, with all that we've been through
Glad you saw your doc. VERY. Also, glad you have a plan. Hugs. Keep a poop chart. Colonscopy's ought to be in the regular surveillance plan for BC patients i.e baseline done within the year of BC when out of immunocompromised state. They are standardly started at age 50 here in the USA. No clue about the rest of the world. Gall bladder symptoms and work up is different than what you have experienced.Lily, you easily fit the criteria for a scope. Each one of the following will ring the bell for getting a scope. Either by themselves or in combination.
Weight loss unknown reason, blood in stools or blood streaked stools, pencil thin stools, Abdominal pain unknown origin, Constipation unknown origin, Diarrhea unknown origin, Left sided abdominal pain unknown origin, could be more that's just off the top of my head.
Each of the above has a work up before it get's to a scope. A step by step method. But if an answer can't be found then a scope is indicated.
I'm breathing a sigh of relief that you have seen your doc YAY.
0 -
http://www.webmd.com/drugs/condition-13908-Opioid-...
Considering taking medication to treat Opiate Pain Medication causing Severe Constipation? Below is a list of common medications used to treat or reduce the symptoms of Opiate Pain Medication causing Severe Constipation. Follow the links to read common uses, side effects, dosage details and read user reviews for the drugs listed below.
Your search for Opiate Pain Medication causing Severe Constipation returned the following treatments.
Drug Name Indication 
Type User Reviews Amitiza oral 494 User Reviews Relistor subcutaneous 28 User Reviews lubiprostone oral 20 User Reviews Movantik oral 14 User Reviews naloxegol oral 2 User Reviews methylnaltrexone subcutaneous 1 User ReviewsConsidering taking medication to treat Opiate Pain Medication causing Severe Constipation? Below is a list of common medications used to treat or reduce the symptoms of Opiate Pain Medication causing Severe Constipation. Follow the links to read common uses, side effects, dosage details and read user reviews for the drugs listed below. Your search for Opiate Pain Medication causing Severe Constipation returned the following treatments.
Drug Name Indication Type User Reviews 0 -
Tried C&P for a list of the OIC drugs. Didn't work. Heres' a link to WebMD that has the list
http://www.webmd.com/drugs/condition-13908-Opioid-...
Corky what a hoot the super bowl add was. The guy coming out of the bathroom smiling like he won a trophy. Can you imagine what the crew creating the add was going through. I would have loved being a fly on that wall. Can you imagine the ideas that were left on the cutting room floor. How do you talk about poop and not get into details in front of a 100 million people? From that perspective they did a hell of a job.
Thanks for the laugh and the Great link. We've talked about it before, but not in many, many pages.
0 -
Sorry SAS - its Movicol, and Levosulpiride 25mg, have to say I think the latter is a bit stronger as it is generating sensations and action but not enough down the pan...........I am trying not to think about it too much I just want to feel better and to be able to lose the 18lbs I want to lose, although I weigh just 4lbs less than I did when I was diagnosed now
0 -
Hi Sas! Here in Canada, they also start at the age of 50 for colonoscopy unless there is a family history, etc. I had my 2nd one 2014 (ten years had the previous one) and 3 polyps removed. All benign, thank God. My question to you is in regards to your post above. I may be reading in wrong but you state "Colonscopy's ought to be in the regular surveillance plan for BC patients i.e baseline done within the year of BC when out of immunocompromised state". Since I had mine in 2014 they said not another one for another ten years. I'm confused on your statement unless you are meaning for those under 50 years of age.
0 -
Oh there you are Lily
Movicol is: " Movicol sachets contain macrogol (polyethylene glycol '3350'), which is a type of medicine known as an osmotic laxative. Each sachet also contains sodium bicarbonate, sodium chloride and potassium chloride. The contents of the sachets are mixed with water to make a drink." It's the same as our Miralax except it has the extra ingredients. They are both osmotic which means it draws fluid into the intestine to soften stoolThis chart describes and compares the different agents and what to expect with them.
Not familiar with Levosulpiride, but curious. I will see what I can find.
Your weight loss is nothing to worry about. When I used "weight loss unknown origin" Generally, it's around the 20 lb or greater weight loss where someone's eating usual and the weight falls off. I only used it as an example of medical complaints that get's someone a ticket to the colonoscopy theater(room).
Be back later
0 -
Well Lily, I think you need to study levosulpiride, does have a prokinetic affect. It is used worldwide. At the dose you're at, it's used for GI. But there are mentions about it's use in breast cancer. It's a mixed bag. Being studied for it's anti-nausea characteristic in chemotherapy to the opposite end of the extreme saying it should be used cautiously or contraindicated in breast cancer. That's the 180* spectrum.
Levosulpriide's primary use at a much much higher dose(600mg) is as an antiphyscotic. This happens with a lot of drugs when they are being developed or after approval that it's found to have other uses. As a prokinetic the dose is a fraction of the antipsychotic dose.
For example, Valium/diazepam was first developed as a muscle relaxer. After it was approved by the FDA, it was found to have antianxiety use. In just a few years most docs didn't even connect it to muscle relaxation. it was primarily used for anxiety.
So, my dear Lily, I'm stepping back from it's discussion. Hate to create and worry, but better to know what you are taking than not. I'm familiar with the drug class as it applies to the drugs approved in the USA. I don't tread where I don't know my stuff.
I would suggest ringing up your MO and asking them if the drug is any problem for you as a BC survivor. It's what I'd do.
HUGS
0 -
Judi, sorry for the confusion. Yes, if the person is under the age of 50, it's reasonable to discuss getting a baseline scope or genetic testing for the genes that have breast cancer and colon cancer as areas that can turn cancerous.
Cancers have a usual way they mets. BC met's to the liver, brain, bone, and lung. That's because of how the cells develop.
Then there are certain genetic mutations that have a pattern of cancers arising. There is a thread on here that discusses these genes. I'll try and bring the link here.
https://community.breastcancer.org/forum/47/topics/830809?page=1
Myriad
https://www.myriadpro.com/myrisk/why-myriad-myrisk/gene-selection/
Color Genomics
https://getcolor.com/learn/the-science
Probably many companies have jumped into the business. Theses are just two. Myriad has a one page chart. Color genomics you have to click on each one(towards the bottom of the page). Important to review family --nuclear and extended to determine if genetic testing is appropriate.
0 -
THanks SAS - I see it mentions extra piramidal reactions too, which I get with most anti nausea medicines.........but I am only going to take it for a week or two, it does seem to be working better than the Cinitapride as I do still have a lot of impaction, can feel it........
Will watch and wait...........
0 -
Thanks Sas! I didn't think it applied to those who already had a colonoscopy. But I have now another worry to add to my list .... bc mets to the liver, brain, bone and lung. I'm just coming up to 5 years on the meds and hoping I hear the news on Feb. 23rd that I no longer have to take them. I also have to go for a CT scan on my lungs due to the years I smoked and smoking a pack a day (?). Anyways, that is now the norm in Ontario unless I had quit smoking 15 years ago. I'm now scared crapless!
0 -
judi crapless is good, scared is not good. Remember what is , is. You have two weeks. I forgot to say the way I handled things besides getting drunk and outrageous gourmet meal. I pray. In fact, I pray allot. Many unoccupied moments are spent praying. Walking around the house, driving the car. I pray for us. Me, you, all of us. Dwelling on the awful deprives us of the joy and niceness of living. We have control over the fear.
When fear comes or nasty thoughts. Treat it as an obnoxious person. With an obnoxious person you would tell them no. Sometimes you would scream at them no and leave. Scream at them at first and walk away. As that obnoxious person tries to bother you more, each time dismiss them. Each time it will be easier to flip them off and out of your mind. It works. Just worn folks that they might hear you screaming no at first.
0 -
Yes, and I've seen that commercial several other times as well. Remember, this is a drug specific to opiod induced constipation, usually chronic. Treatment related constipation is different and can be managed, usually without prescription meds. Sometimes it is the chemo itself causing the problem but much more often it's one or more of the premeds given before infusion. An example is Aloxi. Wonderful, relatively new drug which can help negate nausea for 2-3 days. But it can cause such miserable constipation some patients don't want it, then suffer with the nausea instead. Zofran is another example. But constipation can be managed. With diet changes, increased fluid intake, exercise and stool softners. If needed, Miralax is the most common drug my oncology practice suggests. I am an Oncology Certified RN, as well as a breast cancer survivor.
0 -
Thanks Sas! I do pray and scream out "cancer get out of my body". But love that you take the time to think of us all. You are so generous!
0 -
Judi Hugs , Heard you screaming from here.
I Leenso, welcome here. Nice info. When you have time read the entire thread and help fill in the latrine(pun). We pun a lot around here. Good Luck with your treatment. About half way through rads?
0 -
Judi - Crapless? Is that like Braless?
I had baseline colonoscopy at 50 and had a couple of non-malignant polyps snipped so had another in 2 years w/a few more polyps. Then another in 3 years, which was after chemo for breast cancer - voila - last colonoscopy had NO polyps and i get to wait 5 years.
My new solution - Japanese food every day while I was on vacation. I've never had so many opportunities to visit the toilet every day. Nice consistency, good color, not hard. Guess I'll have to move to Hawaii or Japan.
0 -
Hmmmm, MT, I used that word to avoid any profanity. But yup, that is like braless.
Thanks for the hugs Sas. Will let you know the results.
MT, really about the Japanese food. Did you have the teriyaki or rice/noodles/meat. I too love Japanese food and only the vegetarian sushi!
0 -
Welcome Leenso! I always love to learn with the information ladies provide and what is weaned out!
0 -
OK well you heard the misery now hear the joy!!
Sorry if TMI but I have just done the biggest most satisfying poop for 5 weeks!!! The relief and joy in my body is amazing......I feel so much lighter and just had to share!
0 -
..........................
0 -
0 -
Lilly - so glad for your relief.
0 -
Lily ... it is a relief, isn't it. Makes you just want to jump up and down for joy. We've all been there. Sas, you are just tooooooo funny. Love it!
0 -
SAS; Love it!
Actually my rads was complete late Feb of last year. And I'm so happy to hear that Lilly pooped! It's like being a three year old toilet training every one cheers when the child poops in the potty! Or did I misread, is the happy person Sas??!!!
0 -
leenso, the very happy person is Lily. I was one of her cheerleaders
Oh, I'm one of those people that have time distortion with the change at the first of each year. I read your rads in your bio and thought you just got done. They're several us that cheer folks on. Judi, Minus Two and I'm thinking Lily will stick around. I think she bonded with us b/c of her binding. Others pop in too as they see something they can help with. Many minds working together can really get things moving Would love to have you watch this thread and jump in when needed. I'm a retired nurse. My retired mission is to help where I can.0 -
SAS you are so funny, I am just hoping its not a one off............your pictures are fantastic and really capture the emotion!!!
0 -
Well Lily, I'm so happy that you are safe. It was a tough go. I was so worried that you were going to have a blow out. So, today we are all happy campers
0 -
Well Doctor has told me I am not allowed to carry on with Movicol (Miralax) as it is not for every day or regular use...........instead I have been given fibre drinks..........to take twice a day then once a day, but my problem is NOT lack of fibre or lack of wáter as I explained..............
0 -
I understand exactly what you're saying, Lily55. I've had a constant battle with constipation ever since I started Arimidex over 4 years ago. I could eat a bushel of fibre (a slight exaggeration) and it still wouldn't get things moving. I know it's the Arimidex because during a one month AI holiday things were perfectly normal.
What's been working for me is fish oil, magnesium (1000mg daily) , a cup of morning coffee and lots of water. And, of course, I still eat a lot of fibre. I have a bran muffin recipe that packs in a LOT.
If I get tired of taking so many pills every day and slack off on the fish oil and magnesium everything comes to a standstill within a couple of days.
I am so looking forward to my 5 year sentence being over.
0 -
Kmpod Welcome here
Would you be so kind as to write your recipe?Lily did your doc refer you to a gastroenterologist?
0 -
No referral, no. The fibre is only ispaghula husk, nothing else. I am no longer taking the Arimidex, the level of toxicity on it is cáncer promoting! I take magnesium daily and Vitamin C........
0 -
Lily, some have not trouble with the AI's but not us. I had to stop b/c the pain was unbearable. Since then, back to old regular pain. We do what we have to do.
0 -
I am going to start taking some activated charcoal to see if that helps, and I need to decide if I am going to try taking Exemestane again.........my AI journey so far is
Letrozole - 10 months
Exemestane - 15 months
Anastrozole - 6 weeks..........
Its been suggested I take Tamoxifen but the cáncer I had was lobular and Tamoxifen does not do so well against that and a 25% of women with ILC are resistant to Tamox.......my intuition screamed at me not to take it even as I was going to the cupboard to get them out so now I am in a big dilema.
I could not breathe properly on AI´s after a few months to the point I was tested for heart disease, all symptoms went when I stopped taking them..........and this meant I could not exercise which lower risk and helps my mood..........so do I try exemestane again for a few months in hope side effects don´t come on immediately? Anastrozole is out of the equation as is Letrozole, due to such severe side effects so its Exemestane or TAmoxifen.......or nothing conventional, I could take Curcumin and Indole 3 Carbinol..............
0 -
Afternoon everyone! Boy, I must have been one of the lucky ones. I've survived Letrozole for 5 years and only been having sore knees the last few weeks. Is it physosomatic? Probably, because a week from today I hear whether I'm off for good or go another 5 years. I found when I was on the generic meds, I initially had knee pain but immediately started exercising and it's gone. Only when I don't do any exercise for a few days then it's back but I switched to the brand name when I was involved in a study. Since then nothing until a few weeks ago. I'm hoping this is the last of it but SCARED AS HELL! Sas, I started taking my probiotic again and movement is good. Off of the bars and I've had no problem. I think when I read about bms then I can't go. Again, physosomatic I think!
0 -
Judy not true. I think your microbiome likes to be fed. Interesting about the difference between the trade and generic AI's. Why were you in a study if you don't mind answering
Lily My total time on the AI's was similar to yours. Lasted the longest on Arimidex 7months, shortest was femara about 4 weeks,. Aromasin probably about 15months,
0 -
Sure I'll share, Sas. I really enjoy this recipe because it can be baked up in batches of 6 so the muffins are always fresh.
REFRIGERATOR BRAN MUFFINS
Makes 24 muffins. Batter will keep in refrigerator, tightly covered, for 3 weeks.
Preheat oven to 425 degrees. Butter muffin pan.
2 cups natural wheat bran
1&1/2 tsp baking soda
1/2 cup boiling water (or apple juice)
1 cup applesauce
2 eggs, lightly beaten
1&1/2 to 2 cups of buttermilk (depending on bran & applesauce)
1/4 cup butter, melted or oil
1/2 cup lightly packed brown sugar
2 Tbsp molasses
2&1/2 cups all purpose flour
1 Tbsp baking powder
Spices as desired - I used cinnamon, freshly grated nutmeg and the grated peel of 1 orange.
1 cup golden raisins
Mix together bran, soda and boiling water. Let stand 10 minutes.Stir together buttermilk, applesauce, eggs, melted butter, brown sugar and molasses. Stir into the bran mixture and let stand for 5 more minutes.
In a large bowl blend flour, baking powder and spices. Stir bran mixture into flour until just blended. Stir in raisins. Batter will be lumpy but spoonable.
Spoon batter into muffin cups, in the quantity of muffins desired.
**upon putting muffins into oven, turn down temperature to 400 degrees**
Bake 15-20 minutes. Cool slightly in pan for 10 minutes before removing. Enjoy!
0 -
WoW, yummy, Sounds like you make a few at a time. That reduces wastage, cool. Also, if you grew weary of them for a few days, you don't lose the batter. Thanks M
0 -
Sas, now you ask an old girl why they were in a study. It was a small group of people to see how they tolerated Femara (Letrozole). I can't remember all the details but it was a month long study. I can't remember all the details but something to do with BMI of 25 minus or greater. I took the Brand drug and I absolutely loved it so I then requested it at all times. I will have to try and find the study. I do remember I decided to participate because others before me allowed me to make an informed decision about the drug. I'll check back with you!
0 -
I may have been under a rock, but here is the first I'm hearing of the differences between the trades and generics. Efficacy is to be measured at no less than 83%, if I remember correctly. Never went to the AI threads though. Thanks Judi. Did you have any problems with insurance covering trade drug?
0 -
Hi Sas! No problem with insurance covering the cost of the Letrzole (Brand name). In fact, the doctor must put on the prescription that only the brand name is to be used. Hence, no problem. My husband is a retired firefighter and has a great plan until age 65. The drug costs $490 but I only pay $1.49. Gotta love it. When I was working, my plan only covered 80% so I paid $49.50 then submitted through his plan. Even though it is expensive I've had no problems with the drug. But I was reading on my hospital's website that cancer meds are going through the roof. How do they think people with afford it. I know when I first met with my oncologist, the first question she asked is "do you have a drug plan". If not, then drugs are covered under our Trillium plan but I truly don't know what is covered nor how much. As well Sas, I can't remember what the study involved which I participated but when I'm at the hospital next week I will ask the oncologist.
0 -
Obamacare
0 -
I went to pick up the Sure prep for a scope. 84$. I said to please call the doc and say I need something cheap. Mag citrate is a couple bucks a bottle, Golytlely is around 35$ Nulytely around 50$.. Since I can't do anything till the shoulder heels. Gonna play with them. CHEAP.
So, irritating. A drug rep goes and gives them a song story, dinners, office staff meals, and perks for prescribing a product in lieu of an actual monetary kickback. The doc says this is a better drug. Poor patients actually believe it. Not knowing the alternatives.
0 -
Thanks for sharing the cost of drugs and the sales rep. It actually is shameful that this is allowed to happen. I agree that poor patients believe it. Shame on the drug companies, sales reps and doctors! Maybe this should be heard by many more!
0 -
Sas
In regard to this constipation issue. What do you think about Chia seeds? I know we should all have more fiber and I really think that is my problem (until my problem now with the chemo and anti nausea meds) because I never really could say I had a decent stool (Oh boy, what a conversation LOL )
Reading up on everything as I do, one article states Wheat Bran is the best fiber to be effective. So then of course I would imagine if you try to add more fiber to your diet you need to add more water! The chia seeds really thicken up when added to liquid. Would we need to also add more water in order to avoid constipation perhaps. Just thinking. Would like to add them to cereal but certainly don't want to do anything to make constipation worse. Thanks for your input.
Rosieo
0 -
Hi Rosieo, sometime ago another member brought up chia seeds. Knew nothing of them. Took a look now on the net. Couldn't find anything EBR. I then went to Wiki. It has been a food source for hundreds of years. Could be a food crop for thousands of years and we just don't know it. We only know Flaxseed is 5000 years old b/c it was found in some tombs. Older cultures that were agrarian I find impressive. Without the benefit of Science, they developed food sources. The fact that chia is very old is good
I'm always impressed by things that stand the test of time.In Wiki, I didn't go to the bibliography and read the bibs. It's composition is known. If it were harmful in the food chain it wouldn't have lasted 100's (1000's) of years. It's loaded with B vitamins and other nutrients. " A 100-gram serving of chia seeds is a rich source of the B vitamins, thiamine, and niacin (54% and 59%, respectively of the daily value (DV), and a good source of the B vitamins riboflavin and folate (14% and 12%, respectively). The same amount of chia seeds is also a rich source of the dietary minerals calcium, iron, magnesium, manganese, phosphorus, and zinc (more than 20% DV) (table)."(Wiki). Omega 3 source.
"The seeds are hydrophilic, absorbing up to 12 times their weight in liquid when soaked. While soaking, the seeds develop a mucilaginous coating that gives chia-based beverages a distinctive gel texture. Mucilaginous " Mucilage is edible. It is used in medicine as it relieves irritation of mucous membranes by forming a protective film". ( both from Wiki) Sounds soothing to the intestinal lining.
Nothing in Wiki negative. Nice nutrient source. Nice very much............LOL, I just became a fan.
What makes me wonder is has anyone tried to develop this along the lines of Citrucel or Metamucil. Never looked at the composition of either product. It's kind of a Duh moment. Others say--insightful moment. Took those things for granted.
If the others are chemical & additive based, this would be a great natural alternative with the added bonus of nutrients.
Thanks Rosie for the opportunity to look at this.
(see next post)
0 -
Still thinking about Chia, but from a gardening point of view.
Diseases and crop management[edit]
Currently, no major pests or diseases affect chia production.[26]Essential oils in chia leaves have repellant properties against insects, making it suitable for organic cultivation.[23] Virus infections, however, possibly transmitted by white flies may occur.[30] Weeds may present a problem in early development of the chia crop until its canopy closes, but because chia is sensitive to most commonly used herbicides, mechanical weed control is preferred.[23] (Wiki)
Chia has a natural propellant property against insects. Took a look on net for products. Didn't find any. Certainly better than DEET. It would seem a little experimenting would work. Create a gel thinned after gelling and put in a bottle. Spray on yourself and see if it keeps the mosquitos away. Odd, seems since this originated in South & Central America they would be doing it. Another use could be on garden plants. If anyone tries this let us know what happens?
0 -
Okay, back to the fiber products. If enough water isn't taken with these products you can cause more blockage than you are trying to relieve.
0 -
I used to eat chia seeds, added them to oatmeal. They were nice and soft. But after walking around for a month with a belly ache I cut out the chia seeds and the belly ache went away. Same thing happened with my massage therapist. Just anecdotal, of course.
0 -
Well Corky, I have some questions, but DBF is pacing to go to dinner Will be back later................. Glad you came here. Welcome
0 -
I make a lovely pudding with chia seeds and coconut milk, they are the only ingredients, plus whatever you want to add to flavour, for instance cinnamon, blue berries, I turned it into a rhubarb fool once. Never caused me any problems.............they are highly recommended by nutritionists. I am not taking the fibre drink or any meds now and all is working fine so for me I think it definitely was the Anastrozole......am going to wait a couple more weeks to check all still normal and then will make decision whether to try Exemestane again or stick with things like I3C...
0 -
After buying a pharmaceutical of constipation meds for chemo, the best thing went back to good ole prunes. I ate a handful of this and not long after...................... yup.
0 -
I have eaten so many prunes i look like one, they did not work alone for me!
0 -
Corky, we are the same and different. What works for one, doesn't work for another. That's why the encouragement here for all to put their experiences. People sift through the responses, try things, work it on out for what helps them.
In regard to fiber. the fiber recommendations made by the Gastroenterologist docs national group has changed many times. The last recommendation I was so very surprised at, they recommended the use of Miralax and dropped the fiber recommendation. When my GI doc of twenty years, told me this I just laughed and asked what he thought of it. His look told me. He and I were both very much into research.
If you've read from the beginning, I have stated many times about Miralax (Polyethylene Glycol-PEG) that it is a chemical. It's warning states not to be used by some one with kidney disease. That's huge. Really. The only way that PEG can effect the kidney is, if it crossed from the intestine into the circulatory system. The circulatory system then would carry the PEG molecules through the natural flow of blood and dissolved particles through to the filtration process of the kidney. The implication is that it effects that filtration process. That tells me it can clog something up. I don't have to research it further b/c I understand the circulatory system. But I did research it.
If PEG can effect the kidney, that tells me it can affect other small vessels and endpoints within the body. Yes, they're is some pretty strange info on the internet about PEG. When I searched it several years ago, couldn't quite find the smoking gun in anything I read. BUT the warning label causes me enough concern that I have to relate that concern.
Remember all the years margarine was considered to be safer than butter. Pushed by all primary docs and doc specialties from the 70's. It was because the American Heart Association promulgated that margarine was safer than butter. Then OMD they recognized trans fatty acids as a component of margarine. What most people don't realize from the time trans fat was deemed to be a problem, they're was a delay of almost a decade.
It's tough to know what to do. I'll give you a guide, but it's the old guide. But it will be in the next post.
0 -
Older fiber recommendation. 25-30 gms of fiber a day. the average USA person gets about 12-13 gms a day. If you choose to increase your fiber, first evaluate how much fiber is in your diet. They're charts on the net. I likely will find some, but not tonight.
We tend to fall into the more is better theory. Too much introduced too fast can cause serious problems That's why first evaluate what you have been doing. You may have enough fiber, but not drinking enough fluids.
Fiber without fluids can cause you to plug up.
Once you have determined your baseline fiber intake and choose to move to a higher level, please, consider your intestinal tract hasn't been used to it. The intestinal tract has a muscular layer. It was used to a certain amount of work. Too much fiber introduced too fast can cause your colons muscular problems.
Think of it this way. You never exercise and decide to start walking. Instead of walking a short distance each day and allowing your muscles to respond to the task gradually, you walk two miles. What is your body going to feel like the next day. The whole body is going to object and not be happy. You likely won't be ably to do anything, but go to bed. Everything shuts down.
It's the same with the colon. Give it 4-6 weeks to respond by adding several gms per week. Allow the colon muscle layer to get in shape.
Fluids are important in this process. Too much fiber without enough fluids will only create a constipation problem. Cement would be a good analogy. The average person without medical problems should drink about 2 to 2 1/2 liters a day. That's 2000cc to 2500cc a day. BUT again we are all different.
AS long as the system is working you are doing something right, but tweaking it must be based on what you know about your system. If a problem occurs, then evaluating what caused the change is important. The most recent post exchanges with our sweet Lily shows how a singular drug caused a major change.
0 -
Yes and I so appreciate all your support and advice SAS, and I can declare that a really good poop is more satisfying than an orgasm these days!! Touch wood I seem to be back to my normal pattern............
0 -
LOL Lily. You are not the first person I've heard say that.
0 -
Thanks Lily
Again, you came through unscathed, and so happy for that. Corky, did my last two posts help to know what to do with fiber and fluids? My attempt was to explain why the chia seeds may not have agreed with you. You may consider reintroducing them in smaller amount and see if the same thing happens. Their health benefit of a natural source of so many good nutrients is a thought. The belly ache without gas production makes me think perhaps your colon muscle wasn't ready for the amount used.
Hi Aristra, thanks for your contribution for a better go
0 -
Results show blood in one faecal occult poop sample, other two were ok......tumour markers were all within normal but I don´t trust those much as never had abnormal markers even with 5cm + tumoration and stage 3 cáncer!!!
So waiting for referral to specialist at hospital, no way to go faster via Oncologist - protocol is protocol..........so waiting for a call with an appointment..........
0 -
Sassy, I get plenty of fiber without chia seeds. What works is a prebiotic (Fiber Choice), Fiber One cereal, veggies and fruits. When those don't work I turn to apricots and prunes and then Miralax if all else fails. The Miralax is perhaps a half dozen times per year.
0 -
I've found a wonderful multi-grain, crunchy, oven baked cracker from Crunchmaster. It's 100% whole grain, cholesterol free, low saturated fat, gluten free and has six seeds - sesame, flax, quinoa, amaranth, millet & chia. For those of you who are ER/PR +, it does have some soy but it's next to last on the ingredient list. Also verified Non-GMO. They are good w/toppings or just out of the bag.
0 -
OH>>>>>>>>>>>>>CORKY, haven't studied "prebiotic" Chit............that has to be looked at......... but much on the plate, remind puleese if I forget. I did a whole lot of study on the microbiome this summer. It's the study of bacteria, viruses, mycobacterium, and fungus that live within and on us. But to have value you would have to read from the beginning. I was into good bacteria in the 70's, but we had to whisper as a nurses about it then. Got better over decades. The word probiotic was coined officially 1995 +- one year. The study of the microbiome took off in 2000. But when something takes off like that they're can be decades of research before trying to prove value, then it get's discovered.
If the orthodox medical establishment had, had more respect for bacteria and other bugs, we wouldn't have Superbugs. What's hopeful about this explosion of research is that many bacteria etc will become our friends in combating disease and more environmental problems. It's exciting.
I'll link to the thread. Please read the topic box to understand why the flow of the thread went the way it did. Most of the time it was just me. With pop ins that didn't stay long. Kinda sounds boastful, but I have lurkers that follow when I go off on a tangent
Love science, but in the phase of doing what I want, when I want. I was having fun learning and sharing what I thought of the subject. Lot's of studies. Can make you crazzzzzy. But if you take the approach of bypassing the statistical data and read for content to get a jist of the message. It's pretty cool.MT, saw where you post to another personon another thread that you abbreviated the greeting to MT. It was confusing for a moment. Loved it my brain did a double take.
Lily, Could have been a diverticula that was irritated and bleed a little. Could have been a hemorrhoid. I know you are worried it's cancer. Don't give cancer that power over your well being. Work the problem. Make sure the docs do referrals, keep appointments, and testing done that needs to be done. Then in the mean time plan and do things that make you happy
0 -
0
-
Hi Sas -
After having success with some remedies and then subsequent failure I finally found something that has been working for me for almost 6 months now. I have added 3 tablespoons organic raw cultured sauerkraut with active enzymes to my other random probiotic schedule and stopped all of my fiber pills. For whatever reason the fiber stopped working for me even though I was drinking plenty of water. So, for now, I am a happy camper
0 -
Hi gentian, haven't heard from you for awhile. Interesting about the organic raw cultured sauerkraut. Does the label say pasteurized, culture added back? Hey if it works and does no harm it's a winner isn't it. I only ask about the pasteurization b/c FDA has rules aaaaaand wondered if it applies to your product. Where do you get it? Any different than regular sauerkraut?
Recently started shopping at Aldi's. LOt's of their products are organic. I swear I taste the difference in their milk. I should get Publix's milk and Aldi's and do a blind taste test.
Nice to see you and thanks for the suggestion
0 -
Morning Sas! White, wonderful and cold here in Ontario. We had a blast of winter this week so I hope this is the end of it. Saw the oncologist on Tuesday and I'm off of the cancer meds. I hate started them and now I hate stopping them. It feels really weird. I'm hoping that it doesn't take too long to go back to my new body. I started taking the probiotics and eating COSTCO "salad topper" which is just seeds and dried cranberries. I take 11 g of this the day before and with the probiotic and hot water the next morning, VOILA! I say my "new" body because I no longer have the parasite, cancer meds .... we'll see what happens in the future bm front! Have a great day!
0 -
0 -
Congratulations Judi, Hard to fathom isn't it, after so much. Be so blessed always, as you feel right now. Hugs.
0 -
Thanks Sas! I will always be a member of this group and it was here that I found friendship, knowledge and solace. Without this group I don't know where I would have been!
0 -
Judi - I'm going to look for the 'salad topper'. Sounds good. In the meantime I bought a 6 pack of small prune juice cans today.
0 -
Sas, I bought the sauerkraut at the Health Food Store, refrigerator section. It does not say pasteurized, just cultured and to keep it refrigerated. The bottle says it is not subjected to any heat process, they say it is raw, live, and cultured saurkraut with no water or vinegar added. I must say the aroma is quite potent when I open the jar for my 3 tablespoons.......so much so that anyone in the room next to the kitchen can easily smell it. But the taste is of regular sauerkraut only much much more so. Why this works so well for me, I don't know, but I am so happy that it is making my life much easier. I am happy to give the company name, if that is permitted. Sending good thoughts to everyone.
0 -
JudiH--That's wonderful!
0 -
Genetian lots of other folks all over the boards give names. Why not..............
0 -
The surerkraut I purchased is called Rejuvenative Foods. They give a web site address of www.rejuvenative.com/ Hope this helps someone as much as it has helped me. Thanks, Sas for keeping this thread alive and full of information.
0 -
Gentian, thanks back at you
0 -
This is scary for me since I have chronic constipation already and am not having my surgery until March 23. I wonder how much worse it will get.
0 -
RET, Okay. you have days to read the past posts. Increase your water intake.
Please, we will be here for you. But it's 11: 30 est and I need to go to bed
0 -
I am so glad that I remembered there was a "trouble pooping" thread! Sas, I have been reading from the beginning and got up to around page 10 and will try some of these things for sure.
I was the "poster child" for regular until recently! All of a sudden, it is like chitting out a pine cone, like someone said in the early part of this thread. Sometimes it is the tiny pellet thing too and sometimes, nothing for a day or two and once it was 3! I have not changed my diet at all and my meds are the same with the exception of changing my AI from exemestane to letrozole in the beginning of January. Could that be it?
I am due for my 10 year colonoscopy (had one ten years ago this month) so once I see my PCP, she will set that up. I do take pain meds for severe arthritis, but have been taking the same dose and same med for years - literally years. Over 7 years to be exact so nothing had slowed me down in the past and now all of a sudden...hard to go!
I took stool softeners, tried prunes and senokot. and now am going to try pro-biotics and chia. Anything you can think of as to why all of a sudden?
And to anyone suffering from this, I am so sorry. It succcccccks big time!
0 -
I was a 2 or 3 times a day regular girl until I took Anastrozole - totally blocked me up for over 3 weeks! Nightmare, now back to better movements since stopping Anastrozole, and chemical composition wise letrozole is very similar
0 -
I'm glad I found this thread! I'm 59, and I have suffered from chronic constipation since I was a child. When I was 20-21, I abused laxatives and water pills to keep my weight down. That really busted my system. I had surgery last July and radiation through December. My MO remembered that I had mentioned being constipated at my last visit months ago. When my RO first interviewed me and was going down the list of illnesses, he asked, "Constipation?" "Usually," I said.
It's really bad. Days go by with nothing or next to nothing. I'm eating fruits and veggies, drinking water, etc. I need to go back to taking Metamucil every night. Bleech. Also back to cereal and prunes. Raisins don't do it.
Looking over the notes, it's all helpful. Thanks, sas-schatzi!
0 -
April, the drug change is likely the offending drug since nothing else changed. Lucky you are seeing your PCP soon. Take a list in of suggestions and see what she recommends. See Lily's post again. Her's started one week after changing AI. Worried for her to the maximum. AI's all have the problem. Very good that you only changed one thing at a time. It can be a mess pinpointing it when several things are done at once.
Start the poo record the is further on in the thread. They're also is a questionaraire(sic). that will help your PCP. Also near the end.
Can't legally tell you what to do. But they're oddle's of suggestions here. No enema's if in a low immune state. You are already passed pg 10 that has all the products described. Many have sung the praises of miralax. Also, a quick cleanout can be done with a saline osmotic. Like magnesium citrate.
It sounds like you have done the usual, but the drug change has changed your condition.
Hugs, keep us up to date. Nothing worse then going through this with no one to talk too.
Cuddy, the way I read your post is the Doc MO & RO asked about the problem and didn't offer a solution. Great. Radiation was where? I don't want to assume chest. Radiation of the colon is a whole different pooper. Cuddy you are in a unique situation. Almost 40 years after the laxative scenario. Study Miralax, and see what you think. Please, look at the questionnaire. Never assume anything with something this important. Check in tomorrow. We will all check into. Several mentor this thread.
0 -
April - sorry to welcome you here. My "normal" was always every 3 days. Now if I let it go that long I have hard pellets. I've been trying 2-3 dried prunes on day three. As you know, currently on vacation and somehow have been missing salads. I went so far as to buy a Fleet Enema after 3 days. Good thing I didn't have time to use it since I had a "breakthrough" the next morning. Now I'm going twice a day. It's a pain in the patootie while I'm trying to hike on the Pacific coast, but lovely that I no longer feel bloated.
Cuddy - glad you found us. Let us know how the cereal & prunes work.
0 -
Thanks ladies and Sas, I will look for the suggestions and the questionnaire you mentioned. I really am tired of this and I cannot imagine going through it long-term like some of you have been suffering. Ugh!! I drink a ton of water throughout the day and always have so I know that my liquids are good. I do take lisonipril for HBP (another "gift" from the AI's cause I always had excellent BP prior to those evil drugs) which I understand has a diuretic in it and I pee a gazillion times a day from that (at least until around 7 hours after taking it) which can explain some of the dryness in stool (but have been taking these for almost 2 years so why now?) so will keep trying to find solution. Thanks again for all suggestions posted here!
Minus, have fun with your son and see you when you get back on our Quit thread xoxo
0 -
be back tonight
0 -
Hi Sas! Hope you are doing well. Popping in to say that I started again on my probiotic; using Dr. Ohhira's probiotics. Take one in the morning on an empty stomach with water and then have my mug of boiled water. I'm not even finished 1/2 mug and the bathroom is calling my name. I have popcorn (Skinny Girl Popcorn, any named popcorn, or air popped popcorn) the day before as a snack. I think all of the fibre from the popcorn (usually have 3 cups) plus the probiotic and nature calls. Plus, I'm no longer on Al's. MT, I still have the Salad Topper as well but not everyday. This is just makes my day. Have a bm, shower and then I'm ready for the day. Hope everyone is doing well!
0 -
I had a cup of Senna tea (called Smooth Move tea at health food store) and the next morning-sure as shit it worked. Seriously-it was effective for me. It's kinda earthy tasting but palatable.
(bump--our poop humor has been constipated lately...)
0 -
Ellelou. soooooo funny..............
Judi. Girl, if folks had a real clue what you have been through for twenty odd years. They would be thankful they weren't you. Well you survived it and are onto a better life.
Had a virus the last few days, Chest, head, sinus, body, but almost normal again. YAY
0 -
NEWS FLASH NEW FORM TWO BOXES DOWN-completed3/13/2016
April Okay I'm now back in working order. Let's get to your problem. Need to find that form. The irony is I made the form for April25 I believe, thinking it was you. But we shall see, maybe it was you. be back in a flash.Well, it wasn't what I was looking for, but maybe it's better. It was from back in 2014. It's a composite of questions & Plan of treatments to ask the doc about. Going to link Page 12 in the topic box b/c this is the second time the info meet the need.
Feb 4, 2016 01:14PM - edited Feb 4, 2016 01:17PM by sas-schatzi
https://community.breastcancer.org/forum/6/topics/781867?page=12
This post was to Minus two on page 12. Lot's of things covered. Constipation plan mention half way down.
Suggest visiting page 12, some helpful posts.
Feb 5, 2014 07:16PM sas-schatzi wrote:
OH MY Minus Two I'm so sorry , I haven't been watching. God lord I hope you didn't rupture something.
First thoughts, check in with your doc...reason you have had a new onset change. I'll think or try to think of what to ask and plan. But I do think wityh any new onset change the safe practice is a doc check in. In this case if you have a GI doc that would be good. But your PCP is good to.I would go first to my PCP, but I also call her Saint PCP. I don't necessarily think MO's are good for this b/c they may not cover all the basics. I'll type this so you can cut and paste or print and fill in the answers to take with you for doc visit
History of present problem: New onset constipation
When did it start?
Description of stools ?
How often? How many days between stools?
Abdominal Pain with stools?
How much liquid do you drink a day?(take a couple of days and actually measure)
Location of pain?
Does pain in abdomen remain after stools?
What cause you to finely evacuate? (you've continued taking colace, but if you don't take it you have large hard stools--did I get that right?)
other things used to promote evacuation?(prunes)
Physical description of stools?
Change in medications?when?what?
Pain meds? Change? How many per day?
Talk to PCP about following plan:
1. Miralax daily.
2.Stewed prunes/apricots warm with some lemon in am..
3.Probiotics-tsp to a tablespoon a day for a week.
4. Colace PRN
5. Emergency plan: meaning what do you do if your regular plan isn't working and you need to poop.
6. Develop a bowel retraining plan: basically using the 1-4 working it through overtime until your bowel functions again on it's own.
This plan is a mix of recommendation from the gastroenterology guidelines--miralax daily. Stewed prunes or apricots-- common SUCCESSFUL method here. Warm water and lemon another common plan----so if you put them together it may make it all come out in the end very smoothly and easily
Probiotics, something may have disrupted the good bacteria that you aren't aware of. Colace the common doc go to med, but you want to wean away from all drugs eventually.Have an emergency plan i.e. no BM in ____days what can you use? My go to drug is a bottle of magnesium citrate, but the aftermath is the squirts for a few days. Sometimes unpredictable. For me severe constipation can occur after I've used oxy for a couple of days when I have a bone/joint/ muscle flare.
The key here is you 've involved your doc. Reread the first page on my posts about diverticulosis/itis. The doc is going to ask questions to assure you haven't got something going on. You said the thread is wonderful---tells me you've read it. Many wonderful ideas here. If there's something from here you like, add it to the plan above.
What I like about walking into the doc's office with a plan, is it causes them to focus on what you are saying, They can see it in writing, this further focuses their attention. They then can say yay or nay to each item.
You're then able to leave the office with a clear plan with all the bases covered. I'll cut and paste this to you in a PM. If you need me in the future and I haven't responded, please, PM.
0 -
April it was you, you were here in Aug, of 2015. I made this form for you but you didn't stay. I have used the form since though. Take a look. If you can C&P into a box and then fill in the answers. That will give us allot to work with. Don't do this form today Sunday. I'm going to incorporate the list from the previous post into the second post. I was pretty consistent, but not perfect. Always striving for perfect LOL.
Well combined tree boxes one from the Pain and Other Things thread. You will find the new questionnaire in the next box. Thanks for the opportunity to work on this April.
Aug 7, 2015 11:43AM - edited Aug 7, 2015 03:36PM by sas-schatziHi April, Long time no see
Hate it when they're is trouble in the end. They're is several parts to your question. Fill in the blank , cut& paste to another box.What do you take for a pain med?________________ How often do you take the pain med?__________
Last dose?______
Have you changed your diet within the last two weeks?_______________________________________________
Do you know how many glasses of fluids you drink a day?________________Coffee/tea?soda?_______________
Antibiotics within the last 3months/ what/why?______________________________________________________
Did you start any new meds within the last month?__________________________________________________
What meds do you take?_______________________________________________________________________
Any Left side abdominal pain?__________? Abdominal pain elsewhere?___________Any bloating?____________
Any change in stool color?____________________________________________________
Have you noticed any streaking of blood on the hard stool?____________________________________________
When you were taking pain meds how often would you evacuate?_______________________________________
What's your immune status?_____________________________________________________________________
Do you have grandkids? (just kidding)
I did a review after the thread was going awhile(around page 8. I was pleasantly surprised to find that the greatest success was with the stewed prunes and apricots and other things. Would love to say they're is gin in the recipe like that arthritis recipe, but they're isn't. Take a look at page 10, I did a review of laxatives and stool softner's. They're stool softner's/ laxatives, and combo drugs. You'll see in reading that lot's of folks use Miralax. I have concerns about Miralax b/c of micro-absorption, but it does have it's pace in the constipation algorhytm
IMPORTANT: this is a review. It will help Identify if you have had a new onset condition change that will help you decide if you need to go to the doc. Not every episode of constipation needs a physician look, but a condition change does. I can't suggest what you take. sassy
0 -
Past history gives perspective to the present problem. Do you have a past history of constipation & how was that resolved?
History of present problem: New onset constipation
When did constipation start?
Physical description of stools? Hard, color, smell, blood streaked, blood in stool versus streaked,
How many days between stools?
Have you kept a chart/record?
How much liquid do you drink a day?(take a couple of days and actually measure)
Have you changed your diet within the last three weeks?
Are you experiencing abdominal pain that you associate with constipation? Abdominal Pain with stools? Crampy. gripping, achy, left sided, right sided, entire abdomen
Does pain in abdomen remain after pooping?
What causes you to finely evacuate?
Other things used to promote evacuation?
Has they're been a change in medications in the last month----when & what?
Pain meds--- identify all by name?
Has they're been a change frequency of taking the pain med within last 3 weeks?
How many pills per day?
How often do you take the pain med?
Last dose?
While taking pain meds what was your routine evacuation time .i.e. daily, every other day etc?
Have Antibiotics been prescribed within the last 3 months and for what reason?
Do you take Probiotics?
List all herbals that you use?
List names of all other drugs on your list(dose not needed)?
List chemo meds if currently in treatment?
What is your immune status?
Is there anything else going on related to constipation that I haven't asked about?
IMPORTANT: this is a review. It will help Identify if you have had a new onset condition change that will help you decide if you need to go to the doc. Not every episode of constipation needs a physician look, but a condition change does. I can't suggest what you take. sassy
Talk to PCP about following plan:
1. Miralax daily.
2.Stewed prunes/apricots warm with some lemon in am..
3.Probiotics-tsp to a tablespoon a day for a week.
4. Colace PRN
5. Emergency plan: meaning what do you do if your regular plan isn't working and you need to poop.
6. Develop a bowel retraining plan: basically using the 1-4 working it through overtime until your bowel functions again on it's own.
This plan is a mix of recommendation from the gastroenterology guidelines--miralax daily. Stewed prunes or apricots-- common SUCCESSFUL method here. Warm water and lemon another common plan----so if you put them together it may make it all come out in the end very smoothly and easily
Probiotics, something may have disrupted the good bacteria that you aren't aware of. Colace the common doc go to med, but you want to wean away from all drugs eventually.Have an emergency plan i.e. no BM in ____days what can you use? My go to drug is a bottle of magnesium citrate, but the aftermath is the squirts for a few days. Sometimes unpredictable. For me severe constipation can occur after I've used oxy for a couple of days when I have a bone/joint/ muscle flare.
The key here is you 've involved your doc. Reread the first page on my posts about diverticulosis/itis. The doc is going to ask questions to assure you haven't got something going on. You said the thread is wonderful---tells me you've read it. Many wonderful ideas here. If there's something from here you like, add it to the plan above.
What I like about walking into the doc's office with a plan, is it causes them to focus on what you are saying, They can see it in writing, this further focuses their attention. They then can say yay or nay to each item.
You're then able to leave the office with a clear plan with all the bases covered. I'll cut and paste this to you in a PM. If you need me in the future and I haven't responded, please, PM.
0 -
Cuddy, brought your question forward. Haven't been feeling well , but now on the mend and would like to try to help. Your situation is unique here. It hasn't been discussed only tangentially. They're was a discussion of whether Senna could be addicting? What you are referencing is the intentional use of laxatives and diuretics for weight control. Not unusual for adolescents and young adults to get erroneous information from each other, do something , and end up with a latter problem. Sorry, it happened to you.
What is the name of the laxative that you took. It will help with my research.?
Mar 8, 2016 06:24PM cuddyclothes wrote:
I'm glad I found this thread! I'm 59, and I have suffered from chronic constipation since I was a child. When I was 20-21, I abused laxatives and water pills to keep my weight down. That really busted my system. I had surgery last July and radiation through December. My MO remembered that I had mentioned being constipated at my last visit months ago. When my RO first interviewed me and was going down the list of illnesses, he asked, "Constipation?" "Usually," I said.
It's really bad. Days go by with nothing or next to nothing. I'm eating fruits and veggies, drinking water, etc. I need to go back to taking Metamucil every night. Bleech. Also back to cereal and prunes. Raisins don't do it.
0 -
Hi Sas, yes, I had a brief time of dry hard stool this past summer. Forgot all about that! I tried stool softners and they gave me cramps so tried taking a tsp of olive oil twice a day and that worked. Prunes were not my favorite so was not so high on those..lol I have since grown more fond of them but still not in love. I don't even like their cousin the plum all that much to be honest.
This newest bout with this issue is much worse than my short lived time this past August. I drink a LOT of fluids and always have so I am not sure what changed other than the letrozole. I eat fiber/veggies/fruit (although less fruit than veggies for sure) and I eat a bag of popcorn a few times a week ( I know, people say microwave popcorn causes cancer but what doesn't these days? smh)
Ok, will do the questionnaire later..thanks!
0 -
UGH down for the count again
0 -
SAS - are you ok? What do you mean down for the count? Hope you are ok............
0 -
Hi lily, three in the house with a virus. It's kicking our butts. It's been 7 days for me. Thanks for asking
0 -
Sas, I hope you feel better. That's why I have a shot of tequila a day .... keeps the doctor away and I don't get sick!
0 -
Plus Judi is one happy girl when she eats her breakfast
LOL...xoxo
As for me, I am doing much better since I started Miralax. YAY for that one! Thanks to all who mentioned it!
0 -
Ha, ha, thanks for the chuckle April. I love it and yes I do eat my breakfast after I make my bed. We read that making your "bed makes you happy"! Like really!
0 -
Good one April, beautiful timing. Glad the Miralax has worked for you. if you happen upon anything else that works, please, post.
0 -
0 -
hahahahahhhhhhhhhhhhhhh
0 -
Good one Zills!!!
I get a colonoscopy and hemorrhoids banded next week.
0 -
Cuddy, I guess I don't need to know the laxative that you used, in order to get started. Ex-lax was a common one. The question you have raised is "Does the abuse of laxatives early in life have and impact late in life?" I did some research on Senna a couple years back. I found that long term use of Senna can be associated with the loss or reduction of haustral folds in the large colon. I'll find the page eventually and link it here. Loss of haustral folds lend toward constipation b/c the folds catch the stool and help it from moving in the wrong direction as the muscle layer of the colon contracts to propel stool forward.
My thought re: your scenario is first your GI doc should be able to tell you if your haustral folds are present.
If you haven't had life long constipation after the laxative abuse, then your present constipation problem is most likely due to present day drugs.
But I was able to find info related to problems created by laxative abuse. The articles reference a thing called Lazy Bowel. That's what I'm getting into reading about now. There are some other post abuse conditions that can be present after the abuse period. They reference immediate years after the abuse, not 30-40 years later. I contacted the National Eating Disorders Association a 501c3 group. But they are mostly non technical or not as technical as what we want right now. The below is from their web site. The last point is the area of concern for you. Sorry if this is the first that you've heard there is a colon cancer risk. But better to know than not know. If you haven't been followed by a GI doc with regular colon screening starting at a younger age, then it's something you should put on your agenda to get done. Going to close this out and concentrate on Lazy Bowel in the next(few)post.
"Health Consequences of Laxative Abuse:
- Disturbance of electrolyte and mineral balances. Sodium, potassium, magnesium, and phosphorus are electrolytes and minerals that are present in very specific amounts necessary for proper functioning of the nerves and muscles, including those of the colon and heart. Upsetting this delicate balance can cause improper functioning of these vital organs.
- Severe dehydration may cause tremors, weakness, blurry vision, fainting, kidney damage, and, in extreme cases, death. Dehydration often requires medical treatment.
- Laxative dependency occurs when the colon stops reacting to usual doses of laxatives so that larger and larger amounts of laxatives may be needed to produce bowel movements.
- Internal organ damage may result, including stretched or "lazy" colon, colon infection, Irritable Bowel Syndrome, and, rarely, liver damage. Chronic laxative abuse may contribute to risk of colon cancer.(emphasis mine)"
- https://www.nationaleatingdisorders.org/older-popu...
0 -
This article clearly defines Lazy Bowel and Sluggish Bowel.(stretched). I'm placing the definitions here for easy review.
"Lazy bowel syndrome is a term that has been coined to describe constipation following the long term and/or excessive use of laxatives. It is a rebound effect (secondary action) of using these drugs but may also just be an exacerbation of a pre-existing problem. Lazy bowel syndrome is commonly seen in those with certain types of eating disorders, particularly anorexia nervosa and bulimia, where laxative use is seen as a means of purging and used in excess even if the person did not suffer with constipation. Subsequent cessation of laxative use reveals a severe constipation.
Sluggish Bowel
With a sluggish bowel, the defecation reflexes and colonic motility are impaired in constipation. This means that the stretching of the colon wall associated with distension does not elicit the reflexes that are responsible for propelling the colonic contents or relaxing the internal anal sphincter. Defecation reflexes associated with food entering the stomach or chyme in the duodenum may also not stimulate mass movements in the colon under normal circumstances.
Eventually the accumulation of fecal matter stretches the colon wall excessively. This degree of stimulation elicits the natural reflexes to promote colonic motility and defecation. The distended colon (megacolon) loses its ability to create a propulsive force of sufficient magnitude for an easy passage of feces leading to straining. At this point, the prolonged time period during which the feces remained in the colon leads to over-absorption of water from the colon. Therefore dry hard feces are eventually evacuated from the bowel with much difficulty."
http://www.healthhype.com/lazy-bowel-syndrome-and-treating-sluggish-bowel-movements.html_____________________________________________________
Lazy Bowel. This article is written for the layperson. Cabot Health does manufacture products. I'm not promoting their products. It's not just that it's against Terms Of Service of BCO, anything they say would have to have Evidenced Based Research behind it. That being said, this singular web page has a common sense approach to bowel care. I placed it here b/c it has a direct link to Lazy Bowel.
https://www.cabothealth.com.au/is-a-lazy-bowel-letting-you-down/
0 -
Cuddy, this is a link to a GI practice that has a lot of teaching info on their web site. Of particular interest is the well balance approach to IBD. IBD is a recognized outcome of laxative abuse.
Has any of this been helpful? Too much? Where would you like to go from here?
0 -
Cuddy, basically, what I've learned here looking at the subject is unless you had a life long problem with IBD, Stretched colon(mega colon), Lazy colon, then the likely hood of a connection to what happened as a 20 year old is a stretch(pun). Doesn't mean that someone wouldn't make the comment that it did b/c it's an easy out. If that happens ask what studies they feel explain the subject. If they can't quote any EBR, then they are blowing it out their arse.
The older we get the lazier the colon gets. Just like every other muscle it doesn't function as well. Then add cancer drugs and drugs to counter cancer drugs s.e.'s , it's a wonder anything works.
0 -
https://www.youtube.com/watch?v=4F-jeIdQwKY
Appropriate to the topic
0 -
SAS - funny.
I fell & broke my arm in 4 places up by my shoulder when I went to see my son. The treatment is just immobilization for now to see if the bones knit. Finally off the morphine, but still taking Tramadol. Started Colace after a couple of days but now taking Senna w/Laxative. Things aren't moving because of the drugs, but also because I'm not eating much. I'm not sure how long I'll need the pain killers, but I'm guessing at least 4 weeks. There's always an exception for laxatives!!!
0 -
MT, Oh so sorry, I'm so with you, my left shoulder is in the 6th week post fall. For me it's a devastating injury b/c swimming the backstroke was my love in exercising. Full rotation for the backstroke, I see a bleak future, but not giving up.
I know you have been diligent in working to combat constipation. Now this. There are new drugs to help. We haven't studied them here. Now would be a good time.
I do suggest that you consider no meds every 48 hours, allow for a wear off of the drug effect on the colon i.e poop, with a hopeful movement. It's tough. Been living it since feb 3rd. Chit, it's always something. Girl love you. Have faith. You have overcome so much.
0 -
Please, not saying laxatives or anything that helps us to poop isn't playing an important role. Cuddy's concern of how what she experienced as a young 20 year old may be impacting her now is a real serious question. I may have not made my comment clear enough. Unless she had difficulty since that time, a slow down now cannot be connected to that previous time unless it is supported by evidence based research. I was hoping to give Cuddy enough information to counter someone "blaming" her for that previous laxative abuse, as to the causing of the present problem.
Medicine likes to blame. It's not a subject that is politically correct to go against the prevailing thought. I'm going against it. Loudly.
As we age, our body parts age. The colon is no different. Drugs are a known problem for causing constipation. Particularly narcotics. Chemo preventitives like the AI's and tamox are a serious problem too.
If a practitioner tries to tell Cuddy her present problem is related to her previous problem, that's an easy out for them. Rather than saying you have a 59 year old colon and you have drugs for treatment that have s.e.'s of constipation, so, we will deal with the present problem.
I rage at the new "Healthy Lifestyles" promulgation advertising that many cancer organizations have adopted over the last several years. The implication for us, is that we are to blame for our cancer. Obesity is a case in point. Not one study makes an absolute connection. It is surmised. It is the darling of those people that control information b/c they want us to be thinner. But it is NOT an absolute connection.
The study of the Microbiome is starting to come closer to the origin of disease problems, but it will be perhaps another decade or more before connections are made. Microbiome study is the most exciting study since the world was determined not to be flat and the earth wasn't the center of the universe.( being dramatic)
In a Pm, I gave Cuddy an example of my own family. A cousin who developed colon cancer was told that his cancer was caused by smoking. I suggested genetic family screening b/c 25(26 , I have lost count):53 blood relatives have cancer. Two generations. All traced to the paternal grandmother link. His sister that has a Masters in Nursing, said "Oh no, The doctors said it was smoking". Smoking may have been a contributing oncogenic factor, but genetics should be explored. Denied. Many of the 25 were not smokers, but no one is interested. DUH.
0 -
SAS - I didn't realize you were just ahead of me on this darn shoulder path, but I do remember reading about your swimming at one time. Full rotation is well down the road for me but I so understand your concern. Have you started PT yet? . For now - just tell me the pain gets less. I've never been a person to take drugs so I hate this tether to continuing pain.
0 -
Minus, as someone who has been taking pain killers for years without a break due to serious pain issues unrelated to BC, I had the only constipation of my life when taking tramadol! Plus, it did not provide much pain relief either. You were better off staying with the morphine and tapering down if you ask me.
My brief problem with this issue seems to have resolved with the Miralax and now with just making sure I get enough fiber and drink enough water (which I always did and still do) but boy was that awful! Hugs and hope that your shoulder heals well. I am dealing with a lot of shoulder pain that is very new and they have NO clue what is wrong with mine. It shows a bit of arthritis (which I have everywhere in my body as did my Mom and my grandmother) but lately it is very painful when I move a certain way. Ugh...always something.
Hope that your shoulder is better these days Sassy.
0 -
Sas
calling in on another problem. I have diagnosed myself with IBS. I have mucous in my very small
bowel movements and always feel like I have to move my bowels which then of course I am straining
and straining. Then of course it feels like I have hemmoroids which I have been taking suppositors. It is driving me crazy. Anything you can suggest? Really just feel like taking a good laxative like mIlk of magnesia tonight.
I really don't want to make an appt with the dr . Any ideas will be appreciated.
Thanks
Rosieo
0 -
Well - tried no meds for only 12 hours and was in extreme pain - and I'm one who can stand a LOT of pain. So much for the 48 hours!!! April - hope the docs can figure out your shoulder pain & suggest an appropriate tx.
0 -
MT & April thanks on the shoulder. It's not fully dx'd, but better than it was. 5th week saw the greatest reduction in pain. :0.
Sorry MT, that you had so much pain trying to interrupt to poop. I didn't have any choice. I either interrupted or didn't go. As soon as it happens, I popped a pill. Tramadol isn't even close as a great pain controller, but better than nothing. NSAIDs elevate my BP, so, I have to be real careful in taking them. But added Naproxyen with the tramadol after accomplishing the deed, get's me back to midrange pain. I love midrange, I'm used to it. DUH. Much better than 7-10. I finally broke down after 22 years and bought a solar system with new pool pump( just less than 7,000$) b/c swimming the backstroke was the one friendly exercise that didn't cause more harm. Needed to expand months of the year to be able to do this friendly exercise. It'll be more than a year before this shoulder is working again. OH well................MT the fractures heal in 6-8 weeks. The soft tissue, ligamnets, and tendons takes months and months and months and more months. But the thinking on stabilizing a humeral fracture is different than it used to be. For unknown reasons the humerus doesn't do well with plates and screws. Stabilizing the ligaments and tendons not much better. As a joint it's not very friendly once hurt---understatement. For me I keep telling myself it could be worse. It could be my dominate arm. Hope it's not your dominate arm? Hugs Chickie, I feel your pain.
0 -
Rosieo and friends, .each subspecialty of the American Medical Association has it's own governing body that reviews the problems that effect/affect their subspecialty. These guidelines below were last written in 2014 by the ACG . By the time a guideline for anything is written the info is already old. Not real old, but old. In the last 16 years there has been an explosion of information occurring in science in the study of the Microbiome. The info published by scientist re : the biome of the gut is going to be a major focus of research for the forseeable future. ( next 100 years)
In the guidelines note the mention of probiotics. Not all that long ago probiotics were spoken in whispers b/c it was considered quack science. Now it's quacking all over science. The microbiota of the gut is being connected to all sorts of systemic problems. A disruption in the flora of the gut directly is connected with IBS, CIC(chronic constipation). Whatever disrupts the flora of the gut causes illness. That statement is taking a flying leap. Science is producing more studies each month supporting that statement. Medicine is slow to respond when science produces evidence that is radical to the existing thought(paradigm). But the evidence is becoming overwhelming.
This summer I studied the microbiome while waiting for folks to post re: weight changes on a thread I did. I will link to that thread. Please, start from the beginning of the thread. When reading the linked articles, read for content. Try to pass by the statistics. Statistics are important to any study, but our intent is to get a sense of what the material is telling us. Drowning in numbers can cause us to loose sight of our goal.
The care and feeding of the gut biome is what we need to do to promote the health of the gut and the other body systems.(see next post)
There are so many chemicals that we ingest that alter the gut biome. Antibiotics are one of the biggest offenders. Doctors indiscriminate use of antibiotics since the modern introduction of antibiotics in 1939 with Penicillin and the subsequent development of other antibiotics has hurt us. The indiscriminate use of hormones and antibiotics in animals that then are ingested by us, has hurt us.
The increase in C-sections has hurt us. Yup, being born by C-section can hurt us later in life. By altering the total body biome which affects the immune system.
The connection to obesity and an altered gut biome is becoming stronger with research projects being produced in the last 16 years. Particularly, since 2010. I said a few posts ago that I rage at the Healthy Lifestyles ad programs of different organizations. Well, what won't be admitted by science and medicine for probably 50-100 years as historians look back at this time is that many of the diseases today were caused by our own interference with the natural function of the human body. Yes, recognition is occurring now, but the overall picture won't be truly understood for many years.
Below is a link to the accepted American College of Gastroenterologist management of IBS and CIC(chronic constipation). Reading this material from the linked page below and then wandering through the links re: the 2014 ACG guidelines will give you an idea of what medicine is accepting as the current approach to IBS and CIC. What you will conclude I think is, for those that have followed this thread from the beginning, we pretty well followed the guidelines. We are within accepted practice guidelines.
In reading the material on the Weight thread, what I hope to convince the reader is that we can carry our actions to the next level. That is again the care and the feeding of the gut microbiome.
http://gi.org/media/current-press-releases-and-media-statements/acg-review-in-ibs-and-cic-2014/
American College of Gastroenterology Releases Evidence-Based Systematic Review on Management of Irritable Bowel Syndrome and Chronic Idiopathic Constipation(2014)
Highlights of ACG's New Recommendations on IBS Therapies
- Special elimination diets may be effective, but existing evidence is weak.
- Fiber may be helpful in relieving IBS symptoms; there is better evidence in support of an effect of psyllium than of bran for IBS.
- Prebiotics and synbiotics have insufficient evidence of effect in IBS.
- Probiotics improve global symptoms, bloating and flatulence in IBS.
- Rifaxamin, a poorly absorbed antibiotic, has moderate evidence in support of effectiveness in IBS with diarrhea.
- Linaclotide and lubiprostone have strong recommendations for IBS with constipation.
- There is better evidence than in the past to support the use of antidepressants and psychological therapies in IBS.
Highlights of ACG's New Recommendations on CIC Therapies
- Fiber supplements are given a strong recommendation for use in CIC.
- Laxatives—including polyethylene glycol (PEG), lactulose, sodium picosulfate and bisacodyl—have strong recommendations for the treatment of CIC.
- Prucalopride, lubiprostone and linaclotide have been given strong recommendations for treatment of CIC.
"This new meta-analysis of the literature on the management of IBS and chronic idiopathic constipation offers physicians scientifically-based guidance to make clinical decisions about these conditions based on a thorough assessment of the evidence," said Lawrence R. Schiller, MD, FACG, who is also a member of the ACG Functional Bowel Disorders Task Force. "However, it is important that patients talk with their doctors about their treatment options, as there is no one-size-fits-all approach to managing IBS or chronic constipation. It's also vital that patients not be embarrassed to talk openly about their symptoms with their doctor in order to collaboratively determine the best treatment plan for their individual situation."
About IBS
For the clinical gastroenterologist, IBS is one of the most commonly seen digestive problems. IBS is characterized by abdominal discomfort associated with altered bowel function; structural and biochemical abnormalities are absent. The pathophysiology of IBS is multi-factorial. Individual symptoms have limited accuracy for diagnosing IBS, and the disorder is considered as a symptom complex.
About CIC
Constipation is a symptom-based disorder defined as unsatisfactory defecation, and is characterized by infrequent stools, difficult stool passage or both. Difficult stool passage includes straining, a sense of difficulty passing stool, incomplete evacuation, hard/lumpy stools, prolonged time to pass stool, or need for manual maneuvers to pass stool. CIC is defined as the presence of these symptoms for at least 3 months.
0 -
The link to the weight thread. Sometimes we by pass topic boxes. In this case it's a must read to understand that there are really two subjects being discussed.1. my hypothesis about weight and cancer 2. the microbiome.
With the study of the microbiome, I followed the breadcrumbs that were identified from one article that was then connected to the next article. Is it absolutely important to read all the links. No. But it does make sense in the overall look at what is happening in the study of the microbiome.
To make a short story of all the reading, I suppose a spoiler alert, care and feeding of the biome of the gut is paramount to health. My study lead me to believe that the paleo diet was what I should work towards. I failed in that b/c it doesn't appeal to me. You can lead a horse to the trough, but you can't make him drink. Secondly, use of quality probiotics is necessary to support the health of the bacteria flora of the gut. Assuring the health of the flora will improve our health.
BBL with a dissertation on Probiotics.
https://community.breastcancer.org/forum/73/topics/832722?page=1
What was fun in the late part of the year, when someone challenged what I was writing. It lead to Dr. Susan Love's web page. She has an extensive section on the Microbiome. Many reference's parallel articles that I or others have sited. I thought that great fun.
0 -
Sorry MT and Sas on your pain. I'm in pain tonight but that's only from boot camp. My butt is sore. On another note, I have another mammogram/ultrasound to be done tomorrow. Hope this is nothing.
Ladies, I hope you heel well!
0 -
Judi, praying
Hugs and Thanks0 -
Thanks Sas. Will let you know the results! Our former "crack smoking/drinking" mayor died of cancer today at age 46. May not have been the best person but no one should die of this horrible disease.
0 -
Judi - yeah i saw about your mayor's death. Do hope everything goes well tomorrow. Will be anxious to hear.
0 -
Thanks MT. Will let you know. I'm going to the local hospital for the mamo/ultrasound as there was so much todo around getting my oncologist to do the test and it would have taken time. They wanted the original CT scan to compare, and then book the appointment. I just want this all done. Sad about the mayor. No one deserves this!
0 -
Judi, will be thinking of you today. Hugs!
0 -
Thanks April!
Will let you know the results!
0 -
Judi - I just hope they tell you something instead of making you wait for a doc to call later.
0 -
Looking good ladies! The person doing the mammas said it didn't look any different from the last mammo (different hospital, different tech, different radiologist). She said that if the radiologist was concerned, he would have wanted a ultrasound so one wasn't done. I've had two tequila shots to celebrate and feeling it. I'm going to lie down!
0 -
Judi - Woo Hoo!! for news that sounds good. I especially like the tequila shots. One think I HATE about these pain meds it that I can't drink. A glass of wine in the evening is so nice.
0 -
Judi, Judi, Judi..........whahoo!
0 -
Thanks Sas. One more to go - see the thoracic surgeon to see what he thinks/wants to do and then follow-up with the family physician. I know the tech wasn't supposed to say anything but I was so glad she did. Makes life a little easier. I'm having no problem going to the washroom these days since off of the Letrozole. But I always wonder if it is "c". God, once you have it you can never get away with it.
0 -
Happy for you Judi,
. I should be working on the probiotics thing, but ran out of steam. They're is so much good info coming out that is evidence based. I'll get to it when the mind gets back from it's walkabout.0 -
YAY JUDI!!!!
0 -
Rosieo and friends. I discussed this link on the weight thread.
http://care.diabetesjournals.org/content/33/10/2277.full
Mechanisms linking gut microbiota to obesity, IR, and type 2 diabetes
My explanation: In this study it showed how gut disruption of bacteria can cause a change in Liposacchrides being able to cross into the portal circulation and then on into the rest of the body. The liposacchrides are related to endotoxins(bad bacteria). This study showed how these LPS's set up housekeeping in the liver and cause physical changes to structures within the liver that lead to Insulin Resistance and T2 diabetes
Those bad endotoxins found their way across a membrane. It described the changes in the intestinal wall caused by complex mechanisms that allowed this crossing to occur. This isn't normal. We weren't designed to have these bad bacteria cross this barrier.
The chain of events occurred b/c the balance of the gut was thrown off by a change in diet.
typing
Sorry, I went back to the study. Ain't up to deciphering it again. I used to have a memory that didn't forget. Well.......not anymore. I'll work on it when my mind is better. If you want to go to page 3 of the thread you can find what my thoughts were at the time.
0 -
SAS - as usual, you are a wonder. Thanks for the advice I read about stopping pain meds for 48 hours to see if the gut would start working. With collace continually & senna w/colace too for several days, I was still unable to go after 10 days with all the Tramadol on board for my broken arm. Couldn't even do a Fleet since I only have one arm. Yesterday I stopped the Tram. Living on Aspirin for now & it's ouchy, but... Tonight finally some production. Funny because I had a friend go get me some glycerine suppositories this afternoon since I was really getting desperate. I guess just holding the bottle worked. So thanks even though I know you weren't addressing me. I'll be able to take the Tram Tuesday for the trip to the doc at least.
Can't believe it's only been 2 weeks so far with this dumb arm totally immobile. It already feels like a month. Broken in 4 places up by the shoulder. Of course no driving. Tuesday they'll do more X-rays to see if this treatment appears to be working or if we go w/plan "B" (surgery & pins). The hidden blessing? Certainly related to this thread... It's my non dominant arm so at least I can wipe once I have production.
0 -
MT, I thought I was addressing you. The 48-72 hours is arbitrary. I find it's about half way through the day after skipping the morning dose that things are accomplished.. If you don't have one of those shower heads that can be taken off and sprayed on your bottom, I strongly recommend getting one. You will feel so much better. One time in a different fall, I broke a bone in the dominant hand. OMD, I have a bidet. Very unusual for the price range of my house. The lady that built the house was Japanese. Bless her. My criteria to return to work was I had to be able to wipe my bum. I was off 6 weeks with it. Boss was very unhappy. I asked if she wanted to volunteer, she backed off.
The things we talk about LOL.
Goole FootSmart. It's a catalog company. They have a foot washer that you put in the shower and you can rub your foot over it and through it. It 39$ I think. I was going to get one and got side tracked. Hard to wash your feet even with balance being thrown off. If you haven't gotten a shower chair. Sit on the toilet, works fine. Just lay a towel on the floor to keep from slipping.
I found the pain really changed at the 5.2 week point. Sleeping's a trip isn't it? It's always sumpin. I see the ortho doc April 1st. I feel your pain sweetie. It sucks.
0 -
0
-
SAS - cute scrubber. Thanks for the ideas. I do have a bath chair from my double mastectomy days, and I have a hand held shower head. I'm so jealous that you have a bidet. I've always wanted one. I love your idea of challenging someone to help wipe if they want you somewhere bad enough. I'm so sorry, is your dominant arm/hand involved this time?
Just got up in the middle of the night with a brainstorm. Well, wasn't sleeping anyway, but I had to turn the computer back on. Somehow it never connected that popcorn is great fiber. For years I've eaten a bowl full at least three nights a week. So looking at fiber charts I apparently usually self select good fiber things, like raspberries & apples & oatmeal & All Bran & rye bread & black beans & green peas & broccoli & Brussels sprouts. I feel better about my self now even if I don't like whole-wheat spaghetti. Maybe I can get comfortable & sleep some. Almost 3:30am here.
0 -
this may be a silly question but when is it constipation and when is it just there's not enough food in your system to move through? I haven't eaten anything solid in 3 days due to nausea so no bowel activity either. I did take a stool softener but nothing happened. Should I be concerned? TIA
0 -
OMG Minus, the exchange between you and Sas had me LOL at my desk at work....especially when Sas asked her supervisor if she wanted to volunteer for the wiping job. Hahahahaha! Love it.
Hope you feel better. When in a lot of pain, the world just seems so dull and not at all vibrant. I do know quite a bit about chronic pain so don't envy someone who is not used to it at all. Hugs!
0 -
April glad to have made you laugh. It is so good for the spirit, not matter what the subject or outcome(pun).
Tia, Hi. Generally it is said in most sources that three days without a movement is the bench mark for constipation. But you have asked the right question. If there's nothing in there, can you expect much to come out.
The body still produces fluid that as saliva, gastric juices and perhaps some juices from the upper duodenum. So even if you don't take much in, those juices travel through the small intestine into the colon. As it transits the large colon it becomes more solidified as it gets closer to the rectum. It's the consistency of watery sand as it enters the colon on the right and becomes solid and formed by the time it gets to the left rectum area.
Knowing how your body feels when constipated is important b/c it will help guide you to when to take 'something'. Bloating, abdominal pain, feeling icky, left sided/ rectal pressure. Hard stool when it exits is an important signal b/c it's too dry.
The body has a natural time that there is a cleansing wave from the esophagus(lower 2/3rds) through the whole system to the rectum. This generally occurs in the am. The trick is to be aware the wave is occurring and respond by assuming the position. For those that are lucky enough to be aware of the wave, they have a movement at the same time everyday. Sheldon's proverbial 7:00 am to 7:20 am. Any trick you can assist this wave to be successful is encouraged i.e a warm glass of lemon water or the Miralax the night before. Avoid laxatives/stool softner's as your aid if at all possible.
Another thing is the first stool out may be a bit hard. That is b/c the job of the colon at the end is to reabsorb water. Once that stool passes it generally stimulates the colon to work. The stool behind it is, generally, formed or even a bit loose. This part of the wave may come in a second stool within a period of time after the first stool .i.e.20 minutes. That is b/c it is coming from higher in the colon and the reabsorption of water hasn't occurred. The reason I say this is b/c some may describe this is more of a diarrheal type stool rather than a normal stool. This can get someone to thinking that IBS/IBD is present rather than this being normal. By definition of these problems, they are alternating constipation and diarrhea when what is really happening is normal. As with anything when we get to the extremes is when we should be concerned.
Know thyself, know thy colon
0 -
Hello ladies! Well, just got power back late yesterday evening. Off since 5:30 p.m. Thursday, March 24th so I've had no contact. Thanks for the laughs Sas and MT. You are both too funny. MT, popcorn works like a "charm". I've been eating 3 cups a day and not only does it's job, it also supposed to be a 'stress reliever". Hmmm, worry about not going, eat popcorn to relieve the stress of worrying about not going!
0 -
Sas, thanks so much! Great explanation and kind of what I assumed. I don't have any constipation symptoms and I'm pretty empty so I'll give it another day or 2. I'm drinking lots of water so hopefully that will aide the process.
0 -
((((((((JUDI)))))))))))) no electricity for 5 days in the far north. You must have an alternate heat source and all kinds of survival plans set up. I know it's off topic. But I love survival planning. Always can learn more tricks. I used to do disaster work, now it's just an avocational interest. Glad you survived
Myra glad it helped
0 -
Sas, just pure wit, warm clothing and cell phone. Had lots of water to drink and as they started opening up restaurants, places to eat. They did set up "warming centres" but only knew this after I got power. Now I know that I have to set up "google" on my cell phone. All I can say is that I'm glad it was not January/February when this happened!
0 -
Ha, ha ladies. I had the worst supper the last two nights. I bought this sweet and sour pork from the grocer's (Sobey's). I made it last night with Rice a Roni and ate it last night and tonight. Tonight I had a lot of gas. Thank God I knew when to go and not think it was gas. Pure diarrhea. Even the wet gas I have to be careful with. Boy, I'd share this gem with you but I live too far away. I'll make sure never to buy this crap again!
0 -
And on that happy note, I've gone from totally plugged to watery explosions just by stopping the Tramadol 5 days ago & switching to aspirin. Panty liners again!!! It's enough to make you want to spit.
0 -
Well, spit is better than pfitt.
0 -
LOL...spit is soooo much better than pfitttt!
Believe it or not Minus, you are in mild withdrawl from the tramadol which will cause loose stool for a short time. Hope it clears up soon.
Judi, you have discovered the perfect cure for constipation! LOL xo
0 -
Mt, you are too funny but I hear you. Enough is enough!
0 -
April - thanks. I didn't know there was a Tram withdrawal. I've been dumb-founded since I couldn't believe that 2 days of 'senna S' 2 weeks ago caused this reaction. I actually ate a normal meal yesterday for the first time in two weeks and it "stuck to my ribs".
0 -
April, yes this is the recipe for "constipation". I've had lots of gas since and worried to let loose and have to pfitt!
0 -
LOL we have a new word pfitt
used twice, makes it a new word. We are new word makers. We are proud Pfitt0 -
I like that better than "squirt", which I used during chemo.
0 -
Any pain killer that you are on for more than a few days may cause a mild withdrawal if you have been on longer than a week or two, you may get a headache and/or have trouble sleeping for a couple of days besides the loose stool.
Even tramadol is addictive as it is a synthetic opioid even though it is not a "narcotic" I have read, but people often think that there is no danger or withdrawal or addiction to tramadol. Not true unfortunately. It is a good drug to treat pain though and it has less of a danger of addiction than say vicodin or percs. It does work for pain.
0 -
Read this slide show on line tonight from US News. Some good tips.
What to Eat, Drink and Do to Relieve Constipation
http://health.usnews.com/wellness/slideshows/what-to-eat-drink-and-do-to-relieve-constipation
0 -
http://health.usnews.com/wellness/slideshows/what-to-eat-drink-and-do-to-relieve-constipation
Made it hot MT, Haven't got time to read it right now, off on a mission
HUGS0 -
Thanks Sassy - I sure don't understand how sometimes the links come out live and other times they don't. Hope your mission was successful.
0 -
Three prunes, three prunes, how I love my three prunes (not). Off the Tramadol for more than a week but still taking aspirin so things are a bit hard. I think the biggest problem is not much volume going in to push things along. I've been eating oatmeal or allbran for breakfast and popcorn & nuts for dinner. Today I had raspberries - supposedly good fiber - and chicken w/black beans & green chili. Tomorrow I'll have avocados. Should probably eat 3 slices of dark pumpernickel toast. Hope everyone else is "going along" - pun intended.
0 -
MT have you been using probiotics. Maybe they need to be replenished? I did them heavily for 3-4 weeks a few months ago and it was nice since. I replenish a bit after drinking my wine. Alcohol messes with the balance. I try to take good care of my bugs(bacteria LOL).
Judi, I asked Loveroflife(Loverly) To come and met you. She had IBS since a trip to Nepal. I gave her a brief rundown on your scenario. I think she needs your Doc
, maybe you could guide her?0 -
Sas, absolutely. Tell Loveroflife (Loverly) to PM anytime. I'm in Ontario, Canada and I don't know if she is too but happy to share the info with her.
Sas, I saved the info on my desktop and tried to insert the file so you could have the info. I can't seem to do it. So, the only thing I can think of is email me at judihishon@sympatico.ca and I will send it to you.
Thanks.
0 -
Hi Judi! Will PM you. Don't want to bore the other folks with my issue. I will bore you instead.
0 -
Loverly, do consider what we write here impacts those that don't feel comfortable writing. Plus, you know I'm the ever willing and able detective. Ready to sniff out problems, erhhhhh, only somewhat literal. You could say that else where, takes on a new meaning here.
Chit, yes there is a reason to sniff poop. But unless necessary, I will avoid the topic.
0 -
Oh SAS - that's over the top. Especially for 2:30 in the morning my time when i can't get back to sleep. But yes, true.
Lover - we're never bored and always looking to learn so post ahead.
0 -
Ladies, I shared my story with Loveroflife but also happy to share it here. Everyone has heard it. Sas, I was again unable to copy and paste the prescription to send to her .... can you do it or were you even able to get it?
0 -
Judi, thank you for taking the time to share your story with me. I'm very grateful for your willingness to help. Yes, sometimes I wonder too if my getting CA was as a result years of malabsorption caused by the stomach ailment. Oh well.
I see a common denominator: foul smelling bright yellow watery stool. Thank God I don't get it often, maybe once every few weeks. Most of the times I have unformed stools. Not very often do I get a "sausage". Always happy to see one....the things that I used to take for granted. I tested negative for Giardia though. Could you get a false negative for G? GI gets very noisy before each episode. When it happens, it wipes me out and all I want to do is sleep. This is a constipation thread. Does it make me an odd ball then?
0 -
Lover - heck no. I've been on the "hard" side all of my life until chemo. Then I couldn't stop the diarrhea for 9 months. I lost 60 lbs during treatment. It's just the flip side. BTW - welcome.
0 -
Lover, no there is something definitely wrong with you but your physician needs to do a stool test - cover all basis - both bacterial and ova/para. Remember, you don't have to experience all of the symptoms to be +ve for something. I knew but ignored it. Stupid, stupid me. When I tried to pinpoint where I picked it up, I blamed it on Mexico because due to course, exactly 7 days after I first visited Mexico I had my first symptom. A really, really sharp pain below my left breast. Then it all started. But remember, different bacteria/parasites have different incubation periods/symptoms.
0 -
Okay Judi
you got her started. I knew if she heard your story, it would help. Thank you thank you.Loverly, need to know what kind of doctoring and testing you have done with this? From the beginning to recent
.0 -
Sas, that's why we are all sisters. I depend on women like you and the others to help me through thick and thin. The only think Sas is I was unable to send her the prescription that the infectious disease doc gave me. Because that's what helped me and maybe she can use this as a starting point when Lover sees her primary doctor. You know we are all here to help each other!
0 -
Lover, you are not an odd ball. What I remember about my stool was the foul smelling, greasy, yellowish, long stool. A health inspector I worked with also had a problem and they said it was his gall bladder but it turned out it wasn't. I'll ask him through Facebook message what they found out what was wrong.
0 -
Yay Sas, I was able to successfully copy and paste the prescription for Lover. I also told her that some people are resistant to Flagyl, and no matter how many times I was prescribed and taken Flagyl, it wouldn't have done me any good. How lucky was I that I was put in the path of this doctor. Lover, now my stool is perfect. This is what Sas likes to hear! Well, almost perfect. Sas, sometimes my stool is hard and I plug the toilet. My dh says we have been in this house for 10 years and has not once plugged the toilet. Me, I can't count how many times I've plugged the toilet - with or without Giardia! The stool has to be soft ... I'll get there one day!
0 -
Sas, if you want me to share the med info on this site, I'm happy to do so.
0 -
Absolutely Judi, Hugs, yes, we are here to help each other. When you first came here we talked about it much. You may forget that I couldn't figure out how the bug you contracted in a far away place, could be resistant to a drug here. Then if you track back and go forward from where we started, I at one point found out why. Had to do with the Microbiome that I studied last summer. I must say I don't remember you responding to that post. Maybe you were on vaca ...
But color and smell can be an indicator for certain types of bacterias. and mycobacteriums. Viruses burn themselves out, but certain viruses can hide and remain dormant.
So, we will work through what Loverly has done and Make suggestions.
Loverly, where were you in Nepal or ______when you got sick? Where is the capital of Nepal. Did you have anyone from the Public Health Department contact you at the time. Add that to you sequencing of the a-z list of occurrence.
0 -
OK Sas, I will post here. I sent it to Lover so hopefully she can get it here.
0 -
0
-
0
-
I truly have to figure out how to do this!
0 -
Judi, we did instructions on Cut, copy, paste and stuff on page 508 of Warm & Fuzzies. The link is in W&F's topic box
0 -
Thanks Sas. I can copy and paste but then when I click to see what I've done - it only a pic. I check this out. Love ya!
0 -
0
-
Begin forwarded message:From: Judi Hishon <judihishon@sympatico.ca>
Subject: Fwd: mixture breakdown
Date: April 7, 2016 at 6:52:46 PM GMT-4
To: Judi Hishon <judihishon@sympatico.ca>0 -
0
-
Judi, sorry you are having technical difficulties. Are you trying to copy and paste what you PM'ed me? I can try at my end if that is the case. Thank you for your effort. And thank you Minus2 for your open arms.
Ms. Sas, we were in Kathmandu (capital of Nepal) Nargakot, and Bhaktapur and the surrounding areas. We treated and boiled our drinking water. I'm thinking I might have picked up the bug from one of the orphanages. My youngest was the only one who didn't have lunch there and she was the only one who was not sick. My husband and I got sick about one week after my older daughter. My daughter had it the worst and I had it worse than DH. Neither my husband nor daughter have had the bright yellow watery stool though. Just me.
0 -
Loverly, what tests were done on the three of you? Does sound like you did pick it up elsewhere with DD2 not getting it. Interesting that she didn't. Anyone else in the household. Did you talk to anyone at the orphanage? Did you see a doc in Nepal?
Describe how long the initial bout lasted? Was the course the same for you three? Diarrhea was common to the three. Vomiting? Blood? Fever? Any other symptoms?
What's been the scenario since you returned home. Testing here at home? What doc specialties have you seen?
Some thoughts for now. Your answers will lead to more questions.
0 -
DH and DD1 have not been tested as neither have chronic diarrhea. No, we didn't contact the orphanage or go see any doctor in Nepal. DH and I got it right after we arrived in Singapore. DD1 got it near the tail end of our trip in Nepal. Diarrhea lasted about 2-3 days. No appetite, no blood in stool, fever for 2 days give or take, n/v initially (don't remember if it was 1 or 2 days). Symptoms resolved without any treatment for all three of us. I'm the only one with on and off diarrhea alternating with unformed stool. Seems to be worse when stressed. DH gets diarrhea too when he is stressed. Sorry I am not a good historian....don't remember the exact details. Have not seen infectious dz doc or GI doc. PCP ordered test for Giardia and worms . Both came back negative.
0 -
Lover, thanks but I just can't seem to copy and paste the email. Gets frustrating. I see from your post that you picked your illness up from food which may have been contaminated with water, i.e., cooking, or through the fecal oral route, i.e., unwashed hands, food handler asymptomatic (not showing symptoms), post contamination of food, or food poorly refrigerated/improperly cooked/not hot held properly. What food did your family eat? It is important for the whole family to be tested whether you are showing symptoms or not. Ladies, up here this is a free service provided by our Health Department. Is this the case where you reside or is there a cost?
0 -
0
-
So why when I copy and paste the info I can see it and when I submit it, it shows a scanned document with no info?
0 -
0
-
Begin forwarded message:From: "Info@skycare" <info@skycarepharmacy.com>
Subject: mixture breakdown
Date: June 1, 2015 at 9:45:12 AM GMT-4
To: <judihishon@sympatico.ca>
Hi Judi: here is the breakdown of your compound...Hope this helps. If you have any questions please give us a call. Thanks, LoriSkycare Pharmacy
540 Davis Drive, Unit 1-2
Newmarket, ON L3Y 2P3
Toll Free (844) SCPHARM (727-4276)
Tel (905) 235-SKY1 (7591)
Fax (905) 235-SKY0 (7590)
www.skycarepharmacy.com
The information contained in this correspondence and any attachments is intended only for the personal and confidential use of the designated recipients named herein. If the reader of this message is not the intended recipient or an agent responsible for delivering it to the intended recipient, you are hereby notified that you have received this documentation and its attachments in error, and that any review, dissemination, distribution, or copying of this message is strictly prohibited. If you have received this communication in error, please notify the sender and return and delete the original message immediately.0 -
O.K. I'm going to have to just type it as the scanned document is "confidential" and won't allow me to copy and paste. Sorry ladies for all of the deleted posts.
0 -
It could be from the water we used to brush our teeth also. But our hosts were not sick though because the water came from the same well. We pretty much atethe same food as the hosts except on two occasions when we visited the orphanage and the handicapped home. Had cooked veggie/lentil dishes prepared while we were there. We had chicken curry(probably prepared in advance) at the orphanage. We hesitated, but only ate a little bit because we felt obliged. Meat is only served to honored guests. How could we say no? Never thought to have family tested. We don't have health care like you do in Canada. We have to pay to get tested, but it's ok.
BTW, we all had Typhoid and Hep A& B vaccine.
0 -
Judi, do you have a smart phone? You can screenshot the doc and post as picture.
0 -
Hmmm, Lover I never thought of that. But I will have to get my husband to do it. Remember, the hosts are used to this water and we are not. That's how I picked up Giardia in Mexico. I was so smart being a Health Inspector that I knew what to eat but didn't think about brushing my teeth. Usually, I brought bottled water with me but not this time. As well, we stayed in a private pensione place that who knows what their filtration system was like. Now, I putting it down to that or when I was at a Mayan village and had a small nibble of corn bread made by the Mayans. Handwashing, hmmmmm? Chicken, could have been but there is an incubation period here - 6 to 72 hours with a average of 12-36 hrs. with a mean of about 18 hours. Difference between Salmonella and Campylobacter is there is blood in the stool but has I said earlier not everyone experiences all of the symptoms. Campylobacter incubation is anywhere from 1-10 days. When I get home I'm going to check my CD book with your symptoms. But has Sas has pointed out, bacteria/viruses can have the same symptoms. Boy, if you didn't have to have your stool sample sent in within 24 hours of taking it, I would say send it here. Come on a trip and visit our local Emergency Department. A lot of people do! But, there is probably a charge which would be high!
0 -
Judi, You are on my wavelength. I'll be doing a diarrhea questionnaire this week. Judi when did you start here? I want Loverly to go back and read from your beginning here.
MT, how's the shoulder? Where are you in treatment? I've almost got full range of motion. For the average person this would be considered full range of motion. The ortho doc gave me a cortisone injection April 1st. He understood why I wanted to do avoidance on the MRI. Hopeful for backstroke range of motion.
LOverly I want you to start a stool diary, please. I brought forward the questionnaire about constipation. You can hold off filling it out until I get the diarrhea one done. Then cut and paste with your answers, so the two questionnaires are in two consecutive boxes. You know I work in spurts any more. What used to take a day, now takes more. You have already started answering questions.
I looked at the infectious disease and morbidity/mortality stats for Nepal last night. Already knew diarrhea is a worldwide serious problem, but wanted to see how Nepal looked. Lot's of bugs.
Does your PCP know that this has been a long standing problem? Have you ever seen a GI doc?
The logical place to start is a GI doc. Particularly, since you have had BC. The Gi doc will likely want to do multiple stool studies and a scope b/c of the diarrhea. It's a two for one evaluation.1. Diarrhea, unknown origin 2. rule out any colon lining abnormality i.e polyps which is a good thing with a hx of BC. Scopes aren't fun, but are an excellent diagnostic tool.
The problem with this approach of GI doc first is it could be a couple or more months till you get to the next step. The next logical step is an Infectious Disease doc referral. That can take another month or more to get an appointment. With diarrheal diseases contracted outside the country a GI doc may not consider something b/c they aren't familiar with the bugs of that distant locale. An exceptional GI doc would though. Whereas, ID docs are very suspicious of bugs globally. Travelers diarrhea is a big deal to them.
Our Judi though can attest to the fact that all docs are not equal to the task. In her case they kept throwing the same drug at her for years, it took that last special doc to look at her history and think of something different. The drug that she was on may or may not be appropriate to your scenario. Testing will indicate if it is. What's very nice about knowing about Judi's scenario is that drug which is very old and very little used is now known to you. It will be on the tip of your tongue to discuss with the doc when the time is right.
Frankly, if you could get your PCP to make both referrals at once it would be great. Two minds working at the same time would be the best case scenario. Insurance though might balk. If you are lucky enough to get both referrals make sure each is aware of the stool studies done.
Obviously, or maybe not so obviously, I think something has taken up residence in your colon. Colonized it. Why you and not DH & DD? Your thought about BC isn't off base. The minutiae being learned about how intricately the immune system works and changes that occur with cancer and disease may have affected you. Are we at the point of understanding, dunno.
The fact that locals didn't show evidence of disease is not uncommon. Their immune systems developed resistance. Think about any society where a new bug was introduced and whole populations were devastated i.e measles and the Maya. Just as you said you had all the required immunizations before traveling, but they only cover a few types of bugs. Anyways this is a start.
0 -
Past history gives perspective to the present problem. Do you have a past history of constipation & how was that resolved?
History of present problem: New onset constipation
When did constipation start?
Physical description of stools? Hard, color, smell, blood streaked, blood in stool versus streaked,
How many days between stools?
Have you kept a chart/record?
How much liquid do you drink a day?(take a couple of days and actually measure)
Have you changed your diet within the last three weeks?
Are you experiencing abdominal pain that you associate with constipation? Abdominal Pain with stools? Crampy. gripping, achy, left sided, right sided, entire abdomen
Does pain in abdomen remain after pooping?
What causes you to finely evacuate?
Other things used to promote evacuation?
Has they're been a change in medications in the last month----when & what?
Pain meds--- identify all by name?
Has they're been a change frequency of taking the pain med within last 3 weeks?
How many pills per day?
How often do you take the pain med?
Last dose?
While taking pain meds what was your routine evacuation time .i.e. daily, every other day etc?
Have Antibiotics been prescribed within the last 3 months and for what reason?
Do you take Probiotics?
List all herbals that you use?
List names of all other drugs on your list(dose not needed)?
List chemo meds if currently in treatment?
What is your immune status?
Is there anything else going on related to constipation that I haven't asked about?
0 -
Loverly, This questionnaire will be tailored to your scenario.
Chief Complaint: Diarrhea, unknown origin. (this chief complaint has it's own ICDM10 code)
Onset: (date)
Location:(country)
Scenario of first symptoms:( take the info that you have already written and organize it sequentially. You are telling the doc your story. Keep the sentence short and factual. It may take a few writings to get it right. Think of this as a puzzle. In a puzzle if you leave a couple pieces out the puzzle can't be completed)
Scenario of present complaint: (describe what happens to you now.) ( since this is now a chronic condition add observations about triggers. If they're no known triggers that's an important observation.
Signs and symptoms: (describe abdominal complaints and diarrhea at original occurrence. In your case you have two separate stories
..........1. S/S's original illness..........2. S/S's Now.
Diagnostic studies:..........1. Original occurrence
..............a. Nepal.
..............b. First doc contact upon return to USA............2. Within last 6 months.
Treatment:...........1. original occurrence
............... a. Nepal
................b. USA after first doc contact
...........2. Last six months.
Associated activity: stool chart: date started and trends
/////////////////////////////////////////////////////////////////////////////////
Going to leave this now and let my brain chew on it. Don't work on this until Judi, MT, April, and you offer input. Lots of minds working together.
0 -
SAS - Shoulder/arm still in the sling. I'm trying to do the exercises he gave me, but am only getting them done once a day instead of 3 times. That's because he said stop if the pain goes over 2-3 and that's resting pain for me now. At least I'm not on any drugs except aspirin. I don't see the ortho again until the end of the month. Thanks for asking. I'm thrilled that you have full ROM again. I can only dream for now.
0 -
MT, sorry to hear about your shoulder. Is it from reconstruction? I don't have full ROM on my MX side....I get spasm on my deltoid if I move my arm at certain angle and I have a big knot on my shoulder. Pain is not to the point where I need med to control. I fogot to tell you that I remember you from Whippitsmom's thread. You asked me an interesting question of why I chose to go with Saline for implants.
Ok Ms. Sas, started the diary (should I add "of A Wimpy Kid" - one of my younger daughter's favorite book) which reminds me to continue logging my nightmares. Had one last night. I'm such a mess. Hah! I was afraid you would mention GI scope. Yuck! Trying to avoid it if possible. Picking my battle. One thing I do notice is when we are on a relaxing vacation, my stool is good most of the time. Psychosomatic??
Glad to hear your shoulder is better. I don't know if I can do back stroke without spasm.
0 -
Lover - nope, I managed to fall & slam into a wall.0 -
K ladies, I looked at my CD book and Lover you have me baffled. You need to fill out the questionnaire before anyone could guesstimate what you may have but in all honesty, spend the money and be tested. Your life depends on it. I do think that with the cancer that your immune system is down and you contracted something that needs to be eliminated. Remember, I spent 20 years before I was finally hooked into someone who could help me and I knew that I was +ve for Giardia.
0 -
Loverly, Judi's so right. Besides I will hex Mitsy to tear the house up if you don't follow through LOL. I just rescheduled my appointment to schedule the scope. I had to cancel it when I fell in Feb.
I looked at the questionnaire again, not seeing the holes yet. Fill it out an post it or PM. If you Pm you won't have the benefit of the collective mind.
Judy, ohhhhhhh so sorry, hugs. What exact date did you fall? Mine was Feb 3rd.
0 -
SAS - I think you mean me about falling. I'm a little behind you. It was a month yesterday on 3/11. I don't see the ortho again until 4/28. Long darn time with only one arm, but at least the pain seems to diminish every couple of days.
The good news is ... ta da... now that I'm off pain drugs the constipation is negligible. I just have to remember to eat my prunes.
0 -
Oh MT, you are just too smart. I read Sas' comment and thought "when did I fall". Glad to hear you are off of pain meds ... had me worried. Always afraid that one can get addicted. Remember, with the use of one arm, who cares about the housekeeping, eh? I'm glad your constipation is negligible .... damm pills causing this!
0 -
MT, you fell and hugged the wall? So sorry. Glad you no longer need the pain drugs.
What questions do you need for me to answer, Ms. Sas and Judi?
I'm a terrible historian. Don't even remember if I had pooped today. Brain on autopilot. I used to have finger size stool with mucus. Have not seen it for maybe 1-2 years, now that I think about it. Sometimes I have mild spasm of upper and lower GI before the big D. If it's explosive, stomach cramps is usually unbearable. I would always sweat and feel like I'm going to pass out. Doc tested me for Celiac, which came back also negative. Had CT scan and everything looked ok except liver had mild fatty deposits. I seldom drink alcohol. Can't seem to pin point which foods trigger it besides high fat. Stress makes itworse.
0 -
Lover - you must have missed previous discussion about our "poop diaries" and how we wouldn't want our children to find them when we die. I had pretty much stopped mine, but I'm back to noting size, consistency & time for every occasion. My normal has always been one every 2 or 3 days, but I can no longer seem to remember the number of days if I don't keep notes. Is this behavior what they call OCD? (used to be anal retentive - pun intended)
Judi - Got your email. I'm hopeless at copying things - especially from a pdf file. The best I can do is type it in. For everyone awaiting the RX that finally worked for Judi, it was Quinacrine hcl 100 mg. I did some poking around and it's also known as Mepacrine - and a brand name of Atabrine. Several sources said it is no longer available in the USA. Here's what I found on one site:
Quinacrine is indicated as a primary agent in the treatment of giardiasis caused by Giardia lamblia. Quinacrine is also indicated for patients with metronidazole-resistant giardiasis and patients who should not receive or can not tolerate metronidazole.Rare resistant cases of giardiasis may require a combination of quinacrine and metronidazole
With that, I'll have to pass over to SAS for any technical review.
0 -
Morning Ladies, glad we work collectively as we are all trying to find our way
Loverly several posts back I wrote two questionnaires. If you can run them off and complete. The constipation form you can likely file for now. Complete the diarrhea one. You will eventually take the diarrhea one with you to the docs. Please, get going on the appointment for the GI doc. It'll take several weeks to get in to one once you have chosen one. Loverly, can you post the link to the Marble machine?
MT loosing my mind, when Loverly posts the Marble Machine, you will see why
Thanks on the Quinarcine Judy when did you start posting? It coincided with the discussion about you being prescribed the Quinarcine.
Have a nice day
Enjoying all the subtleties of life in the end 1 -
Thanks MT. The Infectous Disease Doctor had it compounded so you have to find a pharmacy that does compounding. MT was right - Quinacrine hcl 100 mg - Quantity is Quinacrine Hydrochloride 2.1630. Sure appreciate you posting this for me.
0 -
Sas, I started posting on this thread on May 6, 2015. MT, put me on to it. Yes, it did as I just had a colonscopy and was told I had Diverticulosis and with the cancer drugs, etc. I couldn't go. I had seen the Infectious Disease Dr. and was going over my drug to get rid of Giardia.
0 -
MinusTwo, on the poop calendar, consider a smiley face with a smile or a frown, and size the happy smiley to indicate size. the frown one of course meaning "no go".
I am still doing well on the apricot, prune, golden raisins and cranberry stew I cook up, eat approx. 3 tablespoons a day atop of my greek yogurt, don't even need the fiber supplement. I do drink a cup of warm water before brewing my coffee, and "go" before I have coffee, breakfast and meds. So thankful for this thread that lists solutions to constipation problems.
Dsgirl
0 -
Thanks, MT. Quinacrine is an interesting drug, but I guess no longer available in Canada either.
Ms. Sas, I have not seen a GI doc. What other tests could I ask PCP to run? I have different insurance now so different docs. I have learned to live with this IBS. Sucks at times. The probiotics might be helping me though ( if only I remember to take it regularly). When IBS is active, I have to use the restroom about 30-60 minutes after eating and as soon as I wake up in the morning. I truly believe my stomach issues is stress related. Like I said earlier, when I am on vacation stools are good majority of the times. Maybe I should take more vacations
Here is the link to the marbles machine. Enjoy.
0 -
Oops....technical difficulties. Double posting.
0 -
WEll been on Aromasin for two weeks and guess what!!!! YES, its a no go, at best slow tiny go situation......was not like this before on Aromasin but now, so totally fed up, and full up! Need to plan a strategy, wáter, prunes not working.........................
0 -
lover, I looked up making my own sauerkraut . Sadly I keep forgetting I haven it to eat. Suppose to be best flora for the intestines. I believe it was just cabbage and kosher salt in water. But do look it up. It creates lactick acid...spelled that wrong.....which keeps the cabbage good for a long time. Suppose to be best pro biotic out there. I did real well while I remembered to eat it. Good luc
0 -
LOVERLY WORK WITH ME
Look I wish you could get appointments with both docs at the same time, but it's not going to happen.
Loverly, you have an alteration of the bowel. It occurred at a specific time. Cut and dried. It occurred in Nepal. You need a bowel evaluation just b/c it's gone on to long. You need stool studies. Local ova an parasite testing may not cover your problem.
Outrageous and fun thought take a stool sample to the vet. No joke try it.
0 -
Lover, the drug is available but the pharmacy must obtain it. Obviously, the pharmacy was able to compound it. I think it is not available at all drug stores. You won't know what is available to work on you until you see a GP/Infectious Disease Doctor as Sas as told you to do, and the plan is then put into place on what drug is needed to eliminate whatever bug/parasite is residing in your system. If it was up to me, I would have been there yesterday. We all tend to think we know what is wrong with us as we "google" stuff now to find out what's wrong immediately. Remember "google" can be a good or bad thing but only a GP/Infectious Disease Doctor who order the test will confirm what you have!
0 -
Thank you, Ms. Sas. Started on the diary of stool and food intake. Will make the appointment to see PCP. I guess I am a bit hesitant to go through with the testings again. The thought of it honestly stress me out. I know, dysfunctional thinking. IBShas become part of my life and sadly I have learned to live with it.
0 -
Dear Loverly, you had a start point. That is way different than an unkown. you all had a bug. Not happy, that all weren't tested. Not happy no resolution. The importance of Judi's story is she found a doc that lisented. Again, notnsyingyou have the same bug, Loverly,, your life was altered by a bug. We are going to get that bug;---------yes, sink it,,,,,,,,,,,,,,,,
0 -
Susan, thank you! I can handlesauerkraut.
0 -
Good morning ladies! Sas, you are so right. It is so important to be tested to make sure that whatever is in your gut, that should be there, is properly treated. Lover, it is a big pain what you are going through but trust me, after 20 years you don't want it. Also, you have to be so careful when handling food, etc., so not to contaminate and make anyone else sick. Funny, my last doc asked me if I should be doing my job as a health inspector (inspecting restaurants) being +ve for Giardia. I told her, take me off with a note and I would be happy. She just laughed and didn't give two hoots. As Sas said, I was lucky to find a doc who genuinely was interested in me and loves his job. Get going girl!
0 -
Loverly, I was pretty tough on you in that last post. SORRY. I took the bitchy stuff out. PULEESE pretty puleese............Get doc to do a GI referral. I so would love for you to see an Infectious Disease doc., but the Gi doc should rule out other stuff before you see the ID doc.
Judi can you ask you ID doc if he knows anyone in Sacramento?
Hey Lily, your body definitely doesn't like AI's
0 -
my GI doc has never been extremely helpful. Doesn't go outside the box ever. Just stays with proven, normal, widely perscribbed stuff. Had a ton of tests over the years. Even into my small intestine. Push and pull enteroscopy. I have had I t all done. No polyps, no internal problems, perfect, beautiful intestines. So I guess pain doesn't show up o tests...go figure. The more I exercise, the better I am. Prob things just move better. But exercise is done when feeling better, so not good consistency on that.
Good luck everyone
Thanks for all your research sas
0 -
Susan okay.
0 -
chemo yesterday. Takes a while to get back to normal. Nausea, constipation, then a well relieved blow out. Same old. Not comfy right now. Usually ok by Sunday . Never been able to get on the other side of it. But at least it's only 4 days til normal. And maybe that is the best it can be.
0 -
Sas, done! I will email the infectious disease doctor and ask!
0 -
PATIENT INFORMATION SHEET
CONSTIPATION
Constipation and Cancer Patients:
There are many reasons why a cancer patient may have constipation, such as:
- Some medications, such as pain medications, certain anti-emetics and some types of chemotherapy, can cause constipation. The constipation from narcotic pain relievers occurs in most patients, and should be prevented in advance.
- Reduced activity and poor eating habits, often caused by the cancer and its treatment, can also cause constipation. Reduced intake of fluids and high fibre foods, along with general weakness and fatigue, reduce the body's ability to keep regular bowel movements.
- Blockage of the bowels by tumours or invasion of the bowels by cancer cells. Some of the signs of constipation
- No regular bowel movement for 3 or more days.
- Small, hard stools (bowel movements).
- Leakage of stools, resembling diarrhea.
- Stomach ache or cramps, bloated abdomen (belly), feeling of fullness or discomfort.
- Passing excess gas or belching.
- Nausea or vomiting. What should you do if you notice any of these symptoms: If you have not had a bowel movement for 3 or more days (or 2 days, if you are using regular laxatives), you should call your doctor or nurse. You may need some medication to help you start having regular bowel movements again. You should call your doctor if you have any of the following symptoms:
- Blood in the anal canal or stools
- Abdominal cramps or pain for 2 or more days For more information on this medication, please call your doctor, pharmacist or nurse, or call the Cancer Information Service at 1-888-939-3333.
Constipation
CONSTIPATION DUE TO MEDICATION? e.g. narcotics or chemotherapy
- DIETARY MEASURES – Increase consumption of fluids & fibre-containing foods such as bran, fruits & vegetables, prune juice and figs. Drink 8 or more glasses of non-caffeinated liquids each day.
- NORMAL BOWEL HABITS, e.g. do not delay bowel movements.
Try stimulant laxative, SENOKOT® (senna): 1 to 4 tablets twice daily (in the morning and in the evening), starts working in 6 to 12 hours (maximum dose 8 tablets/day)
AND / OR
Stool softeners:
COLACE® (docusate sodium) 100mg capsules: 1 to 2 twice daily, each morning and evening, starts working in 12 to 72 hours.
SURFAK® (Docusate Calcium) 240mg capsules: 1 to 2 capsules daily (may be taken once or twice daily), starts working in 12 to 72 hours.
If still constipated: increase Senokot® to maximum daily dose of 8 tablets a day AND take MILK OF MAGNESIA (MOM)*: 30 to 60 mL at bedtime.
OR
Change Senokot® to stimulant laxative DULCOLAX® (bisacodyl) 5mg tablet: 1 to 3 tablets aday.
*Consult with your pharmacist or physician if you have heart or kidney problems before taking this medication.If still constipated: add ACILAC® (lactulose): 15 mL (1 tablespoon) two to four times daily.
If still constipated, contact your physician, primary nurse or pharmacist.
Only after consultation should the following laxatives be used to relieve your constipation and they should be used on an 'as needed' basis only:
Glycerin Suppository : starts working in 15 minutes to 1 hour.
Bisacodyl Suppository : starts working in 15 minutes to 1 hour.Fleet® Enema : starts working almost instantaneously.
f
For medication (e.g. narcotics or chemotherapy) induced constipation, avoid bulk
orming laxatives that contain psyllium such as Metamucil® or Mucilax® . For low
fibre diet-induced constipation, take a psyllium laxative 12 to 30 grams daily in 3
divided doses, with plenty of fluids.
Prepared by the Toronto Sunnybrook Regional Cancer Centre Pharmacy. Revised by the Cancer Care Ontario-Professional Pharmacy Advisory Committee- Medication Information Sheets Working Group. Any comments about the contents of this sheet, please email: drugformulary@cancercare.on.ca Date: May, 2005
0 -
Sas, I found the above when I was looking for the Infectious Disease Doctor's email. I was given this was I met with the oncologist at the start of my treatment.
0 -
Sas, this is the Infectious Disease (IF) doctor's office response.
He is back in the office next week so I will ask him
Sent from my iPhone
On Apr 14, 2016, at 8:55 PM, Judi Hishon <judihishon@sympatico.ca> wrote:Hi Sharon
I am a member of a cancer group and one member who is responsible for the "Constipation" thread was so impressed with Dr. Stuart. This member is a nurse and couldn't believe that he was able to get rid of my Giardia. I've touted Dr. Stuart to many.
Anyways, she asked me if I could ask if Dr. Stuart knew of any Infectious Disease doctor(s) in Sacramento, California and could I pass on this info to her if I was successful in obtaining any names.
Could you let me know.
Thanks.
Judi0 -
Thanks Judi. Good docs gravitate to other good doc's. That's not to demean the run of the mill docs. In med school and residency, it is drilled into them the importance of following the accepted practice until science identifies a different way. Then they have a meeting i.e like ASCO. Each subspecialty has a governing body. This is to assure that practice is firmly grounded in Evidence Based Research. BUT what is not drilled into them is the Sherlock Holmes attitude. If a patient falls outside of the normal of the abnormal, the patient can get lost in the system. It's in this abnormal of the abnormal that docs can make a huge change. It takes a different effort.
0 -
LOverly Hootie Hoo. Are you pissed at me. Yes, you have the right to be pissed. I haven't done a good job at communicating. So, I will try to do better. Interesting that Lily popped in. I did the same with her when we were trying to fix her. Then I settled into it and did better. Please, allow me to do better. Ultimately, Lily made the very personal decision to stop a drug. Now finding the same problem with another drug.
I'm going to review each one of your posts and see what I can put together.
0 -
Apr. 9th--you and judi had shared stories. You posted
" foul smelling bright yellow watery stool" Occurrence every few weeks. Watery stools rare formed. GI noisy before each episode. The episode wipes you out. Then all you want to do is sleep.
Tested upon return for giardia, ova parasites---negative.
Discussion about gallbladder might be an origin for foul smelling greasy yellowish stool(combining Judi's and Loverly description of stool)
Judi plugs the toilet. >>>>start flushing when it happens>>don't use paper till all stool flushed from commode.
Apr 10th, Location Kathmandu, Nepal. Suspected food related b/c 3:4 ate the same food at an orphanage. One didn't and didn't get sick.
Of the 3 that got sick. Daughter first to be sick. That was ________days after eating at the orphanage. DH & LOverly sick one week later.
Common s/s's diarrhea 2-3 days, N&V, fever. Neither DD or DH had bright yellow watery stool
Tested upon return for giardia, ova parasites---negative.
Apr 13th: Ongoing s/s abdominal pain upper & lower Gi then explosive diarrhea. with sweating and feeling like passing out " Can't seem to pin point which foods trigger it besides high fat. Stress makes it worse." "When IBS is active, I have to use the restroom about 30-60 minutes after eating and as soon as I wake up in the morning"' on vacation stools are good majority of the times."
Tests: CT mild fatty liver, celiac neg,
0 -
Okay Loverly, went over your posts again. Been holding back about one test. Need to do some research. L
0 -
Hey Sas, no problem communicating with doc. When I get an answer, I'll post it here. Interesting point you made re "the practice is firmly grounded in evidence base research". That is the new norm now. I am not against this as sometimes they just go around in circles but we do need "the good bedside manner, knowledge, and understanding". All go together hand-in-hand. What did you think of my post earlier re what the hospital gave me for "constipation"?
0 -
Sas, I was thinking Lover may have a couple of bugs in her intestine - both S. pylori and Giardia. Can one hide the other?
0 -
Judi, the constipation handout is the usual for cancer centers. Nicely done. It's an a several step plan that identifies action related to severity. Very similar to what we have been doing here for years. Also, very similar to other members that posted plans given to them by their cancer centers. What's nice is it's routine to address constipation as a problem right up front. When I started this thread it was not the common approach. The several step plan is important.
I think the addition of cautionaries about not using suppositories or fleets in an immunocompromised state would be good. A newbie soon learns what that means. It's safer to clearly define it.
They didn't mention Magnesium Citrate. That has always been my go to suggestion for severe known drug induced constipation. Plus, for those that constipation is a real plugger with ongoing chemo, should consideration of a pre-emptive clean out be done before chemo. Way back I had pdgraham post her experience. I influenced her to do that b/c nothing worked. She did experience the pfitt's, but the trade off was comfort in the chemo period.
Susan, ever do a preemptive clean out?
0 -
Loverly Healthgrades does a nice presentation on yellow stools. Healthgrades does nice teaching info. It covers our concerns of Giardia. But you tested negative?
http://www.healthgrades.com/symptoms/yellow-stool
You do have liver fat noted on CT. Liver fat in someone your weight is unusual. Liver fat is associated with certain conditions. Obesity and alcohol are the biggies. You don't have those risk factors. The cause of liver fat should be pursued to a conclusion i.e. diagnosis.
Liver fat can be present up till a certain % without it being noted in the impression. It's in the radiology guidelines. Once it reaches the % and is reported, they're is a fair amount of fat. (I quizzed a radiologist on it one time).
You do describe that when you have an event it occurs 30-60 minutes after you eat and that there is an association with fat. Your s/s's and complaints do fit a liver/gallbladder origin. You don't necessarily have to have stones, all that's needed is sludge. Sludge doesn't show up on imaging.
You note that you haven't identified any food triggers other than a loose(pun) connection to fat as noted above. You have the stool diary going, but to make it really work for you, a food diary needs to be done. So, very very tedious and necessary.
The morning stool being loose falls more in the normal range than abnormal. It has to do with a normal body thing of evacuation in the am. There is a peristaltic wave from the esophagus to the anus. If we pay attention to this we will generally evacuate the same time every day. With the normal BM there is a certain amount of what can be perceived as pain, but it is normal.
I didn't see that the yellow stools are a constant. Are they? I read that it occurs every few weeks.
Who made the IBS diagnosis? Based on what tests?
0 -
nope sas.
0 -
Sas, thanks! Good to know this info!
0 -
Have I told you I am a simple person with a simple mind? And sometimes I have problems focusing. Pissed at you Ms. Sas? I don't get mad easily- not like I used to. A few people whom I have worked with have mentioned that they hardly see me get upset. We deal with people with all sorts of personalities. I have learned over the years to step back and put myself in their shoes (not always easy) and try not to take the things they say personally. I was a bit bruised (I am sensitive), but not angry at you at all. How could I be pissed when your passion is to help? Both you and Judi have spent so much time and effort to try to figure out what's wrong with my digestive system. For that, I am so grateful and humbled. I have to say I am not used to that much attention. I actually get a bit overwhelmed and might have missed answering yours and Judi's questions.
0 -
Phone was getting sluggish. Had to submit the above post before it disappears into lala land. Any way, to answer your question Ms. Sas about the yellow watery sour smelling stool.....no, it's not constant. It's only when my stress is really high. I have to correct that I get it every few months not weeks. Same with the explosive stools. Who made the IBS dx? My PCP did after the stool tests, abdominal CT, and no resolution of symptoms after the removal of my gallbladder.
Judi, do you mean to say H. Pylori? I tested positive for it and was treated. This was a few years prior to the Nepal trip. I forgot to mention that I have also been to Mexico, Thailand, Indonesia, Malaysia, and grew up in Vietnam.
0 -
Loverly, yes, my passion can cause me to not filter well. Plus, if I have some wine, Lordy. So, very happy you aren't pissed at me and sosososososososorry for the bruising. Ah-hah didn't know the GB was removed That is a real avenue to look at.
BBL Donnie bellowing like an old bull to go to dinner.
0 -
Ha, ha Sas. I think we are both "aggressive" due to our professional job we did for sooooo many years. We were so used to telling people what to do that we tend to forget our filters. Thank God Lover knows that we only want to help her so she can get over this problem she is experiencing. Yes, Lover there is also H. Pylori!
0 -
No worries. I think I know you by now and knew you meant well. I can be a slug. That can be irritating. Ha! This is an opportunity for me to bring this up. My turn to be honest. Be careful with the alcohol. I have seen it destroys relationships. We work hard to nurture them. What is life without relationships? I do very much appreciate you being upfront with me. If I have a booger hanging out of one of my nostrils, I would want you to whisper to me "Hey, you have booger in your nose." , rather than letting me walking around with it. One thing (maybe the only thing) I learned from my English teacher is word choice is very important-it can build or destroy relationships. Nobody is perfect. Still love you.
0 -
What is S. Pylori, Judi?
0 -
Loverly, Starting to lean towards a post gallbladder removal syndrome with triggers versus infectious disease or chronic infectious disease. But still seriously wanting to have someone of consequence like a GI doc or ID doc make a definitive dx. What we are doing here is putting the puzzle pieces together to get the puzzle closer to completion. The doc put's in the final puzzle piece and declares it's a picture, but they can't do that when pieces are missing.
One test I would like to see is for C-dif as a rule out. That was the bug I said I was holding out on. C-diff is most commonly noted these days b/c it is usually contracted in the hospital/ nursing home setting. Or it associated with antibiotics. It's become a superbug
Clostridium Difficile i.e c-diff is a bacteria that is present in our normal flora of the colon. It's kept in check when the flora is healthy. Your intestines in Nepal were under assault that upset the normal flora. That could have allowed for and overgrowth of c-dif. C-dif has to be tested differently that Ova and Parasite. Today's standard is a stool culture and a blood test. Previously, it was just a stool culture. It would seem an O&P would cover it, but it doesn't. Your PCP doc may balk, but nosocomial/antibiotic induced c-dif can lay dormant for weeks and months, then rear out the rear (pun, lol, just made that rear out the rear joke, I'm so funny with rear end jokes). The point is it is an important rule out. Generally, the association of c-dif is that it is highly contagious. That is so with the superbug. What is less known these days is it's communicability in a non-superbug scenario of the unbalanced colon after an assault. The rest of the family b/c their immune systems are stronger may not be affected. A C-Dif test is a reasonable rule out.
You've ruled out O&P, H-pylori treated and released after therapy, Giardia negative. C-diff should be ruled out too.
The importance of an Infectious disease doc is....they could look at the total history, tests done, current history till now and they would say......HMMMM we need to do this. Lot's of bugs out there. Their whole job is to know bugs.. Not just local bugs, the world bugs
One gal on BCO that contacted me for help on a wound, was in the process of an ID referral. That doc sent off a specimin for mycobacterium growth. Took weeks to show a growth. None of the other docs thought of this He nailed it. Just like Judi's Super Doc. He was thinking outside the usual box.
Now if you ever get to an ID doc, they may want to repeat all the tests. This wouldn't be unusual. Many of these bugs can lay dormant or think to be terminated, and then they reoccur. What the ID doc in ordering a repeat of these tests would be doing is a cookbook approach to establishing that all the relevant bugs are ruled out at the same time at the beginning of their evaluation.. A Best Practice approach.
0 -
Going to find the latest on post gallbladder removal syndrome. BBL When was the GB removed pre or post Nepal?
0 -
Once as a young one traveling through farm country by car, I asked my Dad about a corn stock growing in the middle of lower plants. Dad identified the lower plants(forget the name he said) and said the corn stock was a weed. I respond with how can a corn stock be a weed. He said " In planting a field with seed, anything that is not the seed planted is a weed and that's why farmers use certified seed". That was a good lesson. Anything out of place or abnormal to a situation is not normal even though it may seem normal.
0 -
Loverly, this list may seem overwhelming, but it is what GI docs are trained to know. PCP's knowledge is superficial regarding it all. The way the list presents on the Medscape page doesn't allow me to reduce it . But it does support why a GI doc should be involved in solving your puzzle. http://emedicine.medscape.com/article/192761-overview#a5
Table 1. Etiologies of Postcholecystectomy Syndrome by Anatomic Location (Open Table in a new window)
Anatomy Etiology Gallbladder remnant and cystic duct Residual or reformed gallbladder
Stump cholelithiasis
NeuromaLiver Fatty infiltration of liver
Hepatitis
Hydrohepatosis
Cirrhosis
Chronic idiopathic jaundice
Gilbert disease
Dubin-Johnson syndrome
Hepatolithiasis
Sclerosing cholangitis
CystBiliary tract Cholangitis
Adhesions
Strictures
Trauma
Cyst
Malignancy and cholangiocarcinoma
Obstruction
Choledocholithiasis
Dilation without obstruction
Hypertension or nonspecific dilation
Dyskinesia
FistulaPeriampullary Sphincter of Oddi dyskinesia, spasm, or hypertrophy
Sphincter of Oddi stricture
Papilloma
CancerPancreas Pancreatitis
Pancreatic stone
Pancreatic cancer
Pancreatic cysts
Benign tumorsEsophagus Aerophagia
Diaphragmatic hernia
Hiatal hernia
AchalasiaStomach Bile gastritis
Peptic ulcer disease
Gastric cancerDuodenum Adhesions
Duodenal diverticula
Irritable bowel diseaseSmall bowel Adhesions
Incisional hernia
Irritable bowel diseaseColon[4] Constipation
Diarrhea
Incisional hernia
Irritable bowel diseaseVascular Intestinal angina
Coronary anginaNerve Neuroma
Intercostal neuralgia
Spinal nerve lesions
Sympathetic imbalance
Neurosis
Psychic tension or anxietyBone Arthritis Other Adrenal cancer
Thyrotoxicosis
20% organ other than hepatobiliary or pancreatic
Foreign bodies, including gallstones and surgical clips0 -
Sweetie, we could go on surmising for a long time. Talk lot's of stuff. But all it will do is cause you harm by worry. A in the box Gi doc can take care of the normal rule outs that should be done. Love you sweet one
Plus, the stuff I suggested
0 -
Gosh, I never thought about C. Diff....something as simple as this bug. I always assume diarrhea related to this bug is consistent and much more severe. I was treated for H. Pylori with Biaxin, Amoxicillin, and Prilosec for 10 days. That could have created a perfect environment for C. Diff.. GB was removed after Nepal. I'm thinking it's possible that when I am stressed, my immune system is not able to handle or fight the C Diff. or whatever bugs take residence in my GI to multiply, hence the diarrhea. Anyway, I forgot to say thank you to you both for pushing me to see a specialist and not letting me settle with the dx of IBS. In other words, thank you for being a pain in the arse (pun intended). Ha! Made appointment to see Pcp next week for a referral.
0 -
Oh goodie
0 -
Care and feeding of the biome
Care band feeding0 -
Loverly, It's a rule out. Don't flip to worry. Worry is an enemy. Get the tests done. Then if positive work the problem. See what worries me is by not seeing the ID doc you may be passing up an easy answer or even a tough answer. ID doc's are mostly special. Judi's scenario proves otherwise until she met the special doc.
0 -
there is also the possibility of amoebic dysentery, does not always produce regular diarrhoea and can mimic IBS
0 -
0 -
Hey, LIly
0 -
They're must a thousand variations on this. Who said it? I missed something..............
0 -
0 -
0 -
OK Sas, I must be hungry cause when I saw the rock photo, I thought they were Cadbury mini-eggs for a minute...LOL
0 -
Funny April. I looked again & you may be right. Haven't thought of those eggs in years.
As I well know, as long as I eat a big salad every day I don't get constipated. (lettuce, tomato, cucumber, cauliflower, radish, avocado, maybe shoestring beets, black olives, mushrooms - what ever else is available). Trading prunes for a salad some days just doesn't cut it, but I get out of the salad mood sometimes. The other thing that is reliable for me is green chili - as salsa or w/enchiladas.
0 -
Well now, I thought it wonderful that you all had come to Warm & Fuzzies. I thought I posted all these there this morning, as happy wake up pics. I now remember my thinking was to post the coffee and it's results thing here and then go back to W&F's..........Well, Happy Good Morning
0 -
MT, so happy it's all working for you. Nothing like a good outcome to a plan.
April used to love those Cadbury eggs. Do you have an opinion about Loverly's scenario.
Lily, glad to have your opinion, my sweet:)
0 -
Thank you , Lily! I thought about amoeba too, now that the ladies got me going. It is interesting how it can cause liver abscess. Wondered about the fatty liver now.
0 -
Unfortunately Sas, I don't have an opinion on her scenario other than to say I hope it resolves Lover! I have not been through anything like that so don't know what to say. I have only had the hard stool and constipation issue which has resolved itself it seems. I am happy happy happy about that cause that was misery. It must be miserable to have the opposite as well, maybe even worse! Hugs to all!
0 -
Sorry, I don't have any thoughts either. I've always been on the constipated side except during chemo when I lost 60 lbs to the Big D. Everything came out immediately and I was never w/o a panty liner (with extra in my purse) for much of a year. The cause was clear, but the cure was the cause.
Lover - glad you're going to pursue new docs & new tests.
0 -
0 -
Kind of quiet. Hope everyone is doing well.
My friend brought me some samples of these muffins Friday. She made them in mini muffin pans & they are so delicious I have to stop myself from warming every one in the microwave and covering with butter & eating them all right now. Seems like a good fit for this thread, especially since you can pop them in the freezer & bring out a couple every day.
BRAN & FRUIT MUFFINS High fiber, low fat & they freeze beautifully
1-1/2 cups skim buttermilk
1-1/3 cups whole bran cereal (she used original AllBran)
1-3/4 cups whole-wheat flour
2 teasp cinnamon
1 teasp baking soda
1 teasp double acting baking powder
1/2 teasp salt
1/2 cup firmly packed light brown sugar
12 pitted prunes, finely chopped
1 egg
3 tablespoons vegetable oil
24 pitted dates, chopped
2 apples, grated
DIRECTIONS:
Preheat oven to 400 degrees F Spray 18 2- 3/4" muffin cups w/nonstick cooking spray
Combine buttermilk & cereal in large bowl & let stand 5 minutes
Meanwhile, in medium bowl, combine: Flour, cinnamon, baking soda, baking powder & salt
Add the sugar, prunes, egg & oil to cereal mixture Mix well w/a wooden spoon
Stir in the dates & apples & the flour mixture until just combined Do not over mix
Spoon batter evenly into cups – filling about 2/3 full.
Bake until golden & toothpick comes out clean Approx20-25 minutes
Cool on rack 10 minutes then remove from pans Cool complete on rack
0 -
Those sound good Minus! Thanks for the recipe. I think I might attempt these.
0 -
0 -
Hey SAS - thanks for the Mother's Day wishes. Hope all is OK w/you.
0 -
Thanks MT, doing good Doing the BACKstroke LOL. How about you? Moving yet? Pain? I Haven't been on much.Enjoying the break from trouble. April and May here in Cocoa Florida has been absolutely stunning. Only had the air on once. Doors open with beautiful breezes and blue skies
Hope all you Mother's have a great day.
0 -
Sas, I had NO idea you lived in Cocoa! I would have tried to get together for lunch or something! I was just there the week of April 23rd! It was very hot most of that week so not sure what your tolerance is for heat, but I had the air cranking in my condo/timeshare at Cocoa Beach almost daily but at night and all morning, we did open the sliders and enjoyed the sounds of the ocean and felt the breeze. Maybe because I am from the Northeast where it is still chilly and I was not yet used to the heat. You live in a beautiful area of FL. I love it there. I go there every year, usually in the fall but this year we went in the spring due to some appointments hubby had to attend with my FIL who lives in St. Augustine Beach.
0 -
April
April in central Florida is stunning. It is the greatest and most predictable month of the year. For Northener's it can seem different --humid, hot. But April is the least humid, least stormy, most consistent in heat. Once acclimated to central Florida, it is devine. So. sorry we didn't connect. Catch you any time in the future. Love BCO visit connections.0 -
I finally had my colonoscopy, that was painful during in places. Result is it is all clear BUT is "tortuous" - ie twisted and believed to be from adhesions.........so this is why I am having problems. Now I think I need to go back to the doctor and get referral to surgeon to get adhesions lasered...........as cannot think of any other option. Does anyone have any ideas?
0 -
Hi, Lily, I think it's worth the discussion. It's a quality of life issue. With this description you would have to correlate clinical findings with symptoms. Ahahah, twenty questions. If you want I can answer these, but the key discussion is with your docs. If I think of anymore I'll let you know. Very glad you went. Nothing like knowing there is no cancer.
Is there abdominal pain at rest? Is there abdominal pain when there are the wave like motions (peristalsis) in the abdomen? Generally, these aren't noticed. But with a tortuous path it could happen. Particularly, with bowel movements. If pain is present, is the abdominal pain interfering with life? Am I more prone to constipation? Should I be on a special diet? Should I use a polyethelene glycol product? (you know I'm not fond of PEG's, but with the description of your colon it may be a consideration).
Questions for the Gi doc and surgeon doc. Am I more prone to Bowel obstruction? How are bowel obstructions managed? What are the complications of bowel obstruction? Can the large bowel tortuous path entrap the small intestine? Are tortuous colons more likely to spin on themselves(volvulus)? What are the complications of volvulus? If during an acute episode of a bowel obstruction or volvulus, how is the bowel put back together? Is there a chance a colostomy needs to be done?
Types of treatment for description of condition
1. Medical management: stool management plan and possibly diet recommendations.
2. Surgical management: Laproscopic Lysis of Adhesions Laser Assisted. Do the benefits of scar release out weigh the risks of surgery? Does scar tissue return after the vaporizing? Is there a risk of perforating the bowel with the laser beam? How would that be managed?
There you go, I love these exercises in brain cells. Hugs Lily
0 -
Hi MT how's the shoulder? I'm doing good. Backstroking
Hi, April and Judi
I had a colonoscopy last week. One hyperplastic polyp. They don't turn cancerous, but are removed. YAY next one in five years.
Learned a lesson. My doc ordered "Sure Prep" my copay would have been 84$. I told the doc I wouldn't afford it. He gave me a sample kit. 0$.
Hope all are doing well
0 -
Oh SAS - you must be so much more compliant than I am about exercising. Backstroking!!! I'm no where close to that. My doc didn't prescribe PT so I'm just doing the exercises at home. Ugh. I go back for another set of X-rays mid June, so I really need to get cracking.
Hooray for your good colonoscopy. I got a 5 years call back last time too.
0 -
Hi MT, well chickie, we had different injuries and I have the nursing background to pull from. I have had life long total (wandering) body pain. My tolerance may be way different b/c of this. I know you have fibro too. What dimension Post Polio adds to it, I don't know. Ironically, I never reach a level of no pain b/c of improved use, it just gets worse. Sounds strange that I still push. When we stop moving, we decline, that decline can lead to a chair only, then a bed only with others having to take care of all our needs. Then the last indignity of being put in diapers b/c staff can't get there fast enough. I have seen patients(too many) that have done just this description. That's why I don't mind the pain much, I know what's coming if I don't keep moving. A bit of Tramadol when I need it and off I go. Plus, I have a staff to take care of the really hurtfull stuff. Lawn guy, cleaning gal(every 2 weeks), two bug guys, and a pool guy. That way my time is just for me. Selfish, but it is good.
LOverly Hootie hoo reposting that info here from Insomniacs. Be back with the Nash stuff. To our group, this info is applicable here as a resource that's why I'm reposting it. Loverly posted a few pages ago. We were attempting to get her to see a GI guy b/c her PCP was not knowledgeable enough to work through her problem. I guess I'll rework the post.
I often dislike saying what I'm thinking, not that anyone could tell............But I'm worried about NASH. This is a reasonable link to NASH explanation.
http://www.niddk.nih.gov/health-information/health...
You are too young for a fatty liver and most if not all the predisposing risk factors are absent. Plus, yellow stools aren't normal. Do you hear that youngin? Tain't normal.
Ah-hah Loverly I found this very good link to describe everything you never wanted to know about yellow stools..
BTW Healthline.com is a very good resource web site. I used to recommend WebMD and MayoClinic.com, but now I will be checking with and recommending Healthline.com as a first resource.
It's very layperson friendly.http://www.healthline.com/health/digestive-health/yellow-stool#Ininfants7
0 -
Hi Sad! Having trouble with the site .... keep having to have my password reset! Ugggh! Thanks MT for the link .... I sent them an email and I'm waiting to hear what's happening. So, I guess I'll just keep having the password reset. Sas, yes I agree with "bearing with the pain". What you described if we don't endure is no way to live. God, I hope that doesn't happen to any of us!
0 -
Hi Judi, I think lots of people "bear the pain". At least the statitisics support that. Whole industries develop products to relieve the pain. Some days are better than others. My thoughts about pain are often driven by the days pain or if there is a recent run of higher pain. It's exhausting and the exhaustion is also on a spectrum. I do look at folks that say they have no pain and it's a wonder too me. What is ...is............
MT did my going off on a tangent upset you?
0 -
Heavens no SAS. Just got involved getting quotes to fix some things around the house.
BTW - I don' have fibro. I was fortunate not to have any health problems before cancer. Well, that's a little exaggeration since I've always had skin cancers. But literally, I quit smoking & drinking cokes 4 years before cancer. I walked 5 miles a day, worked out an additional hour 5 days a week, did water aerobics 3 days a week, and the strongest medication I took was a daily Centrum Silver. Now - oooo-weee. I'm mad that I can't get halfway back to where I was. I'm mad that I can't tell if it's the treatment side effects (like neuropathy & lymphadema & osteoperosis - thank you cancer), or the result of the 5 year difference in age. Ugh!! Sorry for complaining. Just tired today I guess.
0 -
Oh MT, so glad I didn't offend, sometimes I can and am oblivious as I talk on. We have our core team here and that's important. Recognize that to the whole BCO group what we do here is important. 23,000 views last I looked. That's very high in the side effects forum. Hugs
0 -
Sas, as my dh says to me "rate the pain .... is it a 1 or two or 8 to 10. I tell him to keep quiet as the pain is the pain and I can't rate it. But we will find something one day to take care of the pain and not become addicted. I have to admit that since I have been off of Letrozole, I don't have the knee pain anymore. Plus, with my exercising I feel good. I'm just tired but MT I have to admit, I think it is the age difference of plus five!
0 -
Judi, erhum...I did a thread on pain scale :0 It was a sore subject for me
https://community.breastcancer.org/forum/136/topics/839123?page=1MT oh MT>>> I got off the CT table the other day and the Pain Gremlin decided I needed a new experience. Left Spinal Nerve root, maybe L2, went bonkers for about 12 hours. The beauty of drugs helped fix it
0 -
Sas, I sure you you are feeling better and found some relief!
0 -
i was given flagyl this morning for lower abd pain. I have extensive diverticulosis and it have been acting up ever since i started taking aromasin. MO say it has nothing to do with that. I need some advice. I will start the my treatment today and i want to know which probiotic will be best to take with the antibiotic and how many. I know if i take the antibiotic alone i am going to create another problem in my stomach. ty for your help. I hope every is doing well.
0 -
Jesika Hi welcome here .........sorry you have a problem. Who prescribed the Flagyl?
MO, was likely saying that with out looking at the overall picture. All drugs have consequences. All drugs don't work the same in all people. If a drug causes a response in only a very small percentage of the population receiving the drug then they negate the connection b/c it's not known in the general population. But you aren't the general population. You are you. If it happens to you it's a 100%.
Diverticulosis generally acts up with a change in bowel habit's i.e. constipation or diarrhea.
You didn't mention a change. Is there a change?
Please, scroll back till you find Lily's first post. Then follow her history here with here posts. The drugs seriously impacted her course. Impacted here is used in both it's meanings. She couldn't go and it changed the course of her treatment plan.
Generally, with diverticulosis where a bout of diverticulitis is diagnosed the two drugs prescribed together are Keflex and Flagyl. Odd the doc didn't perscribe both. Both as you know affect bowel flora health.
I believe getting your Probiotic from a reputable Health food store is important. The care of the product in transport to the store or you is important. Exposure to heat may kill the good bacteria in the product. Solaray is the product I have faith in. I say faith b/c the neutirceutical market is not controlled by the FDA. You must study a companies method of transport to decide if they are safe. Others may jump in and describe companies they have faith in.
My extended concern for you is whether you have a gasteroenterologist -GI guy-involved with your care.?
Please read the first page here. I did a teaching and an opinion piece on diverticulosis and diverticulitis.
Since this is a long response, I'm going to BOLD questions or words I want you to key in on. Sassy.
0 -
My GP prescribed the Flagyl-500mg 3x a day for two weeks. I did get constipated for a few days and yes i do have a GI doc., involved. He is suppose to to a colonoscopy on July 15. The colonoscopy cannot be done until i am all clear. I am not sure if i should stop the aromasin and see if that is what brought on my pain and gave me a flare-up. I went to the GP because the gastro doc. does not take walk-ins. I would have to make an appointment with him.
0 -
Jesika, Yes, the general rule of thumb is clear for 6 weeks after the abdominal pain or other symptoms. Remember to check stools for bleeding. Keep a stool diary. The tuff part is that the 6 week wait time starts again if you have symptoms again. You should check with the GI guy however you have too. Appointment or phone. The two drugs hit different classes of bugs(bacteria etc). They are always prescribed in tandem when prescribed by a GI guy. It's the Standard of Care.
It's a tough decision about stopping the Aromasin. Maybe reading Lily's story will help. I stopped the three drugs. At each point that I chose to stop, I reached the line that I was not going to further sacrifice my health. I think each person know' s when that time is for them. Follow your inner voice.
0 -
Hi , Ladies !!
Jesika, please take a look at this chart.
There are three bacteria on here that might help prevent antibiotic-induced diarrhea. Not easy to find one that contains all three. So far this is the only brand I found that has all three bacteria in the ingredients:
A bottle of 90 caps costs about $29 dollars on Amazon. I take a different kind made by the same company for my GI trouble ( unformed stool with occasional diarrhea). I have been on the probiotics for roughly 3 weeks.So far my stool is good. The only complaint I have is mild nausea if I take it on an empty stomach. Make sure you take the probiotics at least 2 hours apart from Flagyl. I had the nausea and metallic taste in the mouth(common side effects) with Flagyl. Remember to take it with food.
0 -
Thought you could use a giggle. Fran
0 -
&0, Hahahahahahha, have you seen this one. Amusing
Five Constipated Men0 -
I hope this thread isn't lagging because we are all blocked (pun intended)
And on a serious note - I had my first Prolia shot yesterday. I waded through all the paperwork for both the patient & the doctor that came with the prepackaged shot. I expected most of the possible side effects. But imagine my surprise when I came across CONSTIPATION.
Has anyone else had experience with Prolia being constipating? Or not? That's the last thing I need!!!
0 -
Hi MinusTwo.
Sorry have no experience with Prolia, it has been suggested for me. Hopefully someone will pop in and tell about their experience with it.
I have osteoporosis, was actually diagnosed way back in early 1990ties. I had volunteered tor a trial via Planned Parenthood for the Fosamax trial, osteoporosis is rampant in my female family history, and I was told after a dexa scan that I could not join the study, since I already had osteoporosis. Subsequently my doctor put me on female hormone therapy calcium with D etc. later I took fosamax for 10 years, stopped hormone therapy as well, because there was no change in my -T scores all those years. I still hover around -3.something every other year I have a dexa scan, but so far so good, no fractures except a pelvic bone fracture when I fell on ice, can't blame that on osteoporosis.
I am btw doing good in avoiding constipation by still doing the apricot, prune, golden raisins and cranberries, stewed together with water. I eat about 1/4 of a cup of this stew every day with my yogurt and have no constipation problem. I also drink the warm cup of water before coffee and breakfast in the AM, and "go" right after. I am slightly bored and annoyed that I have to eat the stew every day, but eat it anyway since it works for me.
dsgirl
0 -
dsgirl - "bored & annoyed" captures it perfectly.
0 -
Hahahahah "bored & annoyed" versus roling on the floor holding your belly. YAY boredom.
DS would you write your recipe here again
(Waving) Hi everyone
MT how's the shoulder?0 -
Hi Sassy,
I buy the bagged dried fruits, 6 oz. bag of dried cranberries, 6 oz. bag of dried apricots, the golden raisins come in a box, and I can't recall the total ounces at the moment, but I use 1/4 of what's in the box, last but not least prunes, around 8-10 ounces. Sometimes the ounces varies depending on Brand that is available at the time I am at the grocery store. I add about 8 ounces of water to the pan, let sit for about 1 hr, bring to a boil, then lower heat to simmer and leave it cooking 2-3 hrs. Half way thru cooking, I do check fluid level, sometimes I need to add a bit more water. Let cool, and store in fridge, use about 1/4 cup each day and "go".
dsgirl
0 -
SAS - shoulder is still there. Thanks for asking. PT is continuing but I don't feel like I'm making much progress in getting range of motion back. Although maybe I am...baby steps.
Prolia shot was 7/7. One of the listed side effects is constipation. So far I haven't had any problems and I haven't added any more prune juice or changed my diet.
0 -
MT, Try swimming if you can. There are three types of strokes I do. I have 99% ROM
On the prolia YAY no constipation.
Ds remind me(short memory which is getting shorter) I want to put your recipe in the topic box
0 -
My, this thread is long. This may have been discussed before, but does anyone have an opinion on a "squatty potty." I'm thinking of buying one. Due to constipation, I developed or aggravated an existing rectocel. Using a senna tea and dried fruit recipe that has helped some, but everything seems to want to go to the rectocel rather than out. I have been told a "squatty potty" might help with proper evacuation. Any thoughts?
0 -
labelle, I have the perfect person for you and she know's of a product that can be inexpensively purchased. Loveroflife is the one I'm going to find for you. She may have this in her favs
0 -
That would be great. They aren't especially expensive, but I'd hate to just waste my money on something if it is junk or not likely to be helpful.
0 -
What?! What product are you talking about Ms. Sassy? I'm no expert, but can share with Labelle what little I know. Hopefully, I make sense.
Labelle, I personally do not have any experience with the "squatty potty" because I don't have problems with chronic constipation. The science behind squatting is interesting and kind of make sense. Hope you can read the words in this illustration:
With this in mind, mirroring the squatting position supposedly helps with elimination. In most of Southeast Asian countries, it is not uncommon to find squat toilets:
You just need to make sure you position yourself correctly before you "go"
Not sure if there are any comparative studies out there regarding constipation rate in Southeast Asia vs. western countries. How effective is this squatty potty stool? Who knows? Rather than wasting your money on something that might not work, can't you use a stepping stool that you might already have or rest your feet on stacks of books or something similar to mimic the squatting position? Worse come to worse, you can hop on top of the toilet and assume the squatting position. Hah!
Sorry, I am not of much help. Ms. Sas, I behaved myself and found a picture of a clean squat toilet.
0 -
Thanks Loverly, The stool is what I was thinking of. I was pretty sure you posted pics of it before.
A simple maneuver that can be done while evacuating is raise the knees and rest feet on the ball of the foot with the legs spread. Not as good as the other descriptions like the stool or books, but it can help.
The things we share
0 -
I think it was our dear Mags who posted the picture of the potty stool.
0 -
I had terrible, terrible constipation during chemo. I used Sennokot and RestoraLax without much success. I remembered seeing the squatty potty on Shark Tank and read more about the squat position on their website. But I couldn't find the squatty potty in stores, so I made my own using a short step stool. The squat works for me
0 -
Hi Sas and ladies! Just popping in to say hello. Sas, did you see the Dr. Oz show "Why you Can't Poop on Vacation" - aired on 7/7/16. I can't share it here because it won't allow me to as I'm from Canada and not the U.S. Check it out!
0 -
I found both "Squatty Potty" and GoPro brands on Amazon. Went with the GoPro. Just arrived today. We shall see!
0 -
Labelle, good luck with the go
and the info Thanks,Hi Judi was it on youtube?
Terry, good to know.
Saw a news release from the military. With all the talk of bathroom preferences, the military now requires two slit trenches to be dug by the medics, with a notice that soldiers can choose the trench that they most identify with. My first thought being an old medic and nurse was UGH what a responsibility for a medic. Previously they only had one slit trench. Another UGH. The whole concept of a squat trench, UGH.
0 -
Hi Sas, I don't know if it was on "you tube". I saw it on the Dr. Oz show and if you google it, you can see the show - 7/7/16.
0 -
Hi Sas - yes it is on "you tube"!
0 -
Judy,43 pages on pooping and this has never been brought up, but I know we have all been through it. I tried to access Oz's video it didn't work. There are many articles. I chose this article from Readers Digest b/c it incorporated Oz, WebMD, and others
Readers Digest to you youngers may seem so old fashioned. But amazingly it broke many stories to the public that were kept hidden. That other publications wouldn't touch. RD did and changed history in so many subjects. I've not followed it for a number of years, probably 10 or so. You know I study allot. From the 60's RD was a consumer advocate and got things going on so many subjects. One of the classics was endorphins in 1975.
I remember it oh so well b/c I was in neck traction every night. But I learned how to think "It will be numb, It will be numb" The area of pain got as numb as if it got shot up with lidocaine. The side effect was I got quite high. It was a blessed relief from the pain, but as a nurse I had to go to work. I used it only in the worst pain scenario. I thought the weird highness. Weird. But the pain relief was so nice. No doc could explain what was happening. THEN I was reading my RD and they had the reports about Endorphins and Endorkins. It explained it. So much for journals and docs. Also, what was weird was if I had any pain altering substance on board the self thought didn't work. Anywhooses, of course now one paid any attention. I was so delighted when the RD article came out.
Historically, there is much more. Like the absence of women in clinical trials that article change history by causing all trials to include women. Another story about a female obg/gyn doc identified that her health conscious patients that ate lots of fish lead to discovery that eating too much of the predator fishes had high levels of mercury which was causing birth defects.
But these types of stories didn't get wide press. But RD was read widely. Women demanded answers. I have regretted over the years that RD declined. It once was a great force for the advancement of us as women.
So, back to the subject regarding travelers constipation, this is the synopsis by RD
http://www.rd.com/health/wellness/natural-constipation-relief-travel/
0 -
Hi Sas .... I don't get why you can't get the video .... I can on you tube but I don't know how to add it here.
But I copied this and pasted it here:
Oz Investigates: Why You Can't Poop on Vacation and Other Summer Health Dilemmas
Originally aired on 7/07/2016
Dr. Oz explains the medical reason why constipation occurs when your daily routine changes and guest Susan opens up about what happened to her on vacation.
GUESTS: Gabrielle Bernstein , Hoda Kotb
0 -
I agree with SAS - 43 pages and we've never discussed this. But I have ALWAYS had problems pooping on vacation. As a matter of fact, I often have problems when I'm not pooping in my own WC also, but vacations - oh my. Obviously most of us don't get away often enough. So I'm going to book my trip to Phoenix to see my brother - who is the antithesis of everything I am. And we'll stay one night at the Grand Canyon so I can mark that off my bucket list. I've already been dreading a whole week with him, but now I have to think about pooping too? Oy Vey.
0 -
Judi I kept tryng to load Oz';s video in several ways' Didn't work . So, I went to other sources. What happened was I really liked RD's composite. But I was also, predisposed to RD's presentation b/c of the memories that I stated
The one law that came out of an RD article was that law was passed that all studies had to include women. More specifically came from one women' question to her doc "Should she take Aspirin 81mg" Baby Aspirin. The doc instead of saying yes. Researched it. She found out that none of the research included women. She then went on a quest. It ended up that it all passed research was based on men.
It started with a question "Should I take a Aspirin 81 mg":.Her physician , she didn't know. What she found out with her research was that nothing was based on female studies. Because women weren't studied. That doc based on her research found out that women were excluded from research. She fought to change the law. Her action and the law changed all future research required that all research include women. Sure wish I could say her name. She changed history. She changed our history. Bless her. AND bless her questioning mind.
Of course now Must find her name--------------
0 -
You know what, she's a foot note in history, just a s I am. I changed Paramedic history, No one cares. We are a foot note. We changed the world and how people work, and are on a roll with others that did far less. It's an oh well thing.
But she did change the world
0 -
MinusTwo
I am just back from 2 weeks in CA. and I took a bag of prunes, kept me somewhat regular, but darn, had to eat at least 6 each day. Also ate plenty of fresh peaches, nectarines, pears and did the warm water before breakfast/coffee.
Have a great time visiting the Grand Canyon, I remember on my trip there I also visited the "Painted Desert", maybe you can add that to the sights. If you rarely see your brother, maybe you can have fun recalling childhood memories.
dsgirl
0 -
Sas, you gotta love that today you need "research based evidence" before you can do anything!
0 -
dsgirl - yes I've learned to take a bag of dried prunes with me. And green salad works well for me too. But my brother just moved the trip from early September to the end of October. Thank heavens he emailed this afternoon so I didn't pull the trigger on the plane ticket tonight.
0 -
Update on the "GoPro" (a.k.a Squatty Potty). As a preface to my experience I should note that the nearly constant constipation I've experienced since starting Tamoxifen either caused or aggravated a rectocel. This is sort of a bulge, rather like a hernia, but in the bottom of my colon, bulges into the back of my vagina when it is really bad. A very unpleasant experience. Because of the rectocel sometimes my BM, instead of exiting the body as it should, falls into the rectocel where it sits, dries out and becomes hard(er). I'm doing weekly PT for the rectocel to avoid surgical correction.
In any case, using the "GoPro" may have helped me more than it would others, as it seems to direct everything out properly, thus avoiding the deposit of BM in the rectocel. Proper direction with a rectocel is important. The long and short of it is I do feel the "GoPro" has helped a lot- combined with the PT and daily consumption of "poop paste" (my term for the recipe with dried fruit and senna tea that I'm consuming daily). My own constipation problems are more or less under control at this point and I do think the "GoPro" played a role in this. Hope this helps someone trying to decide if this thing is worthwhile. The "GoPro" comes in several colors and slides under the toilet where it is (mostly) out of the way.
0 -
Labelle, thanks for the update. Any pics of the GoPro potty. Also, we have never talked in these pages about rectoceles.
To all, rectoceles can occur b/c of too much pressure in the rectum. That pressure is created by the constipated stool in the rectum /rectal vault. The area right above the anus. . Just as Labelle has described it's like a hernia in the rectum. In her case it's occurring on the vaginal wall side. if that were to rupture between the two in then is termed a recto-vaginal fistula. Stool will then leak out of the vagina. No fun. It can be surgically repaired. Can have varying success. Infection can be a problem.
Labelle has a plan for a recognized rectocele.
Labelle, I know it may seem ucky to describe the plan. But remember we have better information here than many places on the net. Please, 1. Describe how you got diagnosed 2. Plan options i.e surgery or the intervention you are using weekly. 3. How Go-Pro has changed things. 4. Diet changes? 5. Any other things to guide us.
Thanks. I know it's not a thing we normally talk about, but for every single person that posts a problem, many others may find a solution, that their docs weren't particularly helpful with. Your story is important.
0 -
On a mission regarding bladder control hope I don't get banned b/c of spamming. Love ya'll
Repost from Warm and Fuzzies. not appropriate to the site , but there were a couple of bladder leaking meme's. But this is a serious story has to do with the funny one about bladder leaking. All the docs will tell you about kegels. WELL, I inadvertently found a solution if you are a swimmer.
There is a swim stroke that I can't find the name for which I learned as a kid. It's meant to be a stroke to reserve energy if lost in the water and have to swim a long distance. I have been using it more frequently b/c I had a shoulder injury and was working the deltoids.
LOANDBEHOLD. The stroke increases bladder control. Takes maybe 2-4 weeks, but dependent I'm thinking on how often you use the stroke. I vary 3 strokes for particular reasons. Then I noticed better bladder control.
It's a back stroke. You bring up the arms from the side to the top. At the same time you bring up the legs in a frog position. Then you snap them down and glide. I kept working the movement harder, to get the work out of the deltoids. Then TADA, head slap moment, I noticed I didn't have the run for the bathroom after the pool or the hitting of the air conditioning. It was AMAZING. I know this isn't a funny on a funny page, but I'm posting this in as many places as I can. So, hahahaha. Leaking is no fun hope it helps, spread the word.
0 -
Possible to do the backstroke in bed without the water? How many backstrokes Sas?
Oh sorry, I was thinking of the butterfly. Only took me several days to realize it.
0 -
Ladies, I had to share this. I always have to fight constipation and watch what I eat - being on a low carb diet and having to take opiates for chronic pain due to various side effects from BC treatment. But I finally found the thing that works wonders for me. Might not work for everybody but you can give it a try. Besides, they are so delicious that you will want to keep them in your diet.
Shelled hemp seeds. They have barely a trace of THC (less than 0.1%) so it won't show on blood work in case you have that done and you live in a state where marijuana is illegal. They also have low carb, fairly high fiber content, chockful of all kind of Omegas and other stuff and great for circulation as well.
You can buy them off of Amazon for example, and it's around $10 per pound. Usually a pound lasts me for over a month, at the rate of around 2 tbsp a day.
They look a little bit like sesame seeds, but the texture and firmness is more reminding of pine nuts. As for the deliciousness I already mentioned it. I usually take mine either mixed in peanut butter with some chia seeds added, or in home-made low-carb chocolate (it's more of a fudge than chocolate). But I also tried them in smoothies, sprinkled over salad or even in stir-fry Chinese-style dishes. All worked great.
This is the brand that I'm buying (remember they have to be raw and shelled)
0 -
RE: Physical Therapy for rectocel. I have been going once per week for several weeks now. Sessions involve strategically placed (on my bare bottom) electrodes that are hooked up to a biofeedback machine. More embarrassing than ucky, but the PT is a very nice lady about my age and we get along well.
I am told to do exercises (basically Kegals or variations thereof). The biofeedback machine shows if I am doing these properly/using the right muscles. I'm finding this very helpful as I can see my progress and how well/if I'm controlling the muscles properly when hooked up to the machine and make corrections as needed. I also have "homework," sets of exercises to do at home daily, the Kegal type exercises plus use of a resistance band, all designed to strengthen the pelvic floor muscles. Vaginal weights have been mentioned but the PT doesn't think I will need them as I am making good progress, but has cautioned me that I will need to continue to do these exercises daily even after I am discharged from her care.
My insurance covers this, but I did need a referral from my gyno who diagnosed the rectocel. Because mine is not yet severe, she wanted me to try PT before doing any kind of surgery. As Sas mentioned, surgery for this condition is not always successful and my gyno said lots of her patients benefit from pelvic floor physical therapy and thus avoid surgical intervention. PT also encouraged me to get the "squatty potty" and both gyno and PT have told me I must avoid becoming constipated (easier said than done, right?) and avoid straining. The "GoPro" brand I bought seems to help with both by keeping BM from going into the rectocel where it gets dry and hard and because I find it really difficult and mostly unnecessary to strain when in position on it. Something about having my knees higher than my hips seems to make everything go where it belongs and really does discourage straining. This, along with the PT makes me hopeful that I will avoid surgery on, or more problems with, my rectocel in the future.
0 -
Better than and funnier than pictures of my "squatty potty." LMAO funny, but it does explain the concept quite nicely.
https://www.squattypotty.com/unicorn-c/
0 -
Hi Sas! This is for the thread.
0 -
Thanks Seachain, sounds good
Hi Mari, I vary between 600 to a 1000ft Pool is 30 feet long. It's really nice. It was a duh moment when I realized something changed and then figured out what it was. Each stroke is done about a third of the time.
0 -
Labelle LMAO........... Thank you. I'm going to put the link in the topic box. That advertisement is a hoot. Hard to imagine Howard Stern's glowing recommendation hahahaha. Thanks for the description of how you were dx'd and then how to get insurance, and the PT's work. All for a better go.
Please, talk with your PT about that swimming thing I posted on the pervious page?
If you want to see how childbirth used to be done try some variations on google. Wasn't till the Victorians that women were put on their backs to deliver.
0 -
RE: Childbirth. I know. I delivered my two youngest at home with a midwife in attendance, in a standing/squatting position. Gravity and all that.
0 -
-
Labelle, not a lot of folks know that was the normal mode of delivery. Queen Victoria was the first queen to be attended to by a male obstertrican. He put her on her back and they added drapes so he couldn't see her bottom. Changed history. To our disadvantage.
There also was a thing called a birthing stool. A stool with a hole in the middle. Kind of like the squat potty.
Docs here for years try to discredit Midwives for many decades. I thought about going into it right after nursing school. Should have.
70charger, Hi you are here, How are things going? Just thinking about you today and there you pop in
0 -
Sas thanks for asking. Right stone has passed, left stone will be blasted some time in Oct. Just trying to get the system to work properly after all the morphine, T-3, Toradol etc..
0 -
Charger, any analysis of the stone? I have had I think 6 bladder stones pass. I'm now reaching the phase of loss of count. All mine were NO question bladder through urethra. As you know the pain is horrific for what you are going through. But they need to get to an answer. We haven't talked since you were dx'd with the stones.
Just going to float with questions. Have they done diagnostic imaging of both kidneys? Have then analysed stones's passed? Have they analyzed history? Have they looked at your drugs? What is family history on kidney problems? Any history in the past? Any evidence of hydronephrosis? (important). Any clue why this may be occurring?
70, I remember you well, but I forget what drugs you are on...........drugs can create kidney problems.I was put into renal failure b/c a doc ordered the wrong fluid. Ironically, it may have been the dose dense thing that is being done for some cancers. For me it was a week from hell. Who knows, may be why I survived an "Unfavorable outcome"? Stupid nusrse said to me if "I lost my kidneys's and had to go on dialysis, wasn't it worth it to be alive?"
But repeated kidney stones says that it happening at the kidney level. NOT good. Put's the kidneys at risk. Nothing to risk kidney function. Shortened life span. Lived with my dad on dialysis. Not a nice life -----------sucks.\
So tell me what's up?
0 -
First time for stones, don't know when it passed, maybe they can analyse when they blast. Have had CT scans, x-rays & ultrasounds. No family history that I know of. Only drug I'm on is Tamoxifen.
0 -
Hi team, I've asked Rosieo to come so we can work on her problem. If she comes before I get back, please, watch out for her.
Rosie, first read the links in the topic box. In reading the topic box one item we need to find is the Constipation/poop plan. It's not linked, But if you find it in your reading, note the page. That's where we need to start first after you have read all the sections in the topic box.
0 -
SAS - we'll be alert for Rosie.
0 -
Oh, my blessed team member MT, I have been on since just after 9am. My legs are swelling, I'm now into the wine. I need a chef. AND I need to know where that damn poop plan is? Can't believe I didn't link it in the topic box. I know we have discussed it multiple times. Probably ON PAGE 12. hAHAHAHaaaaaa. whining I don't want to search TO FIND IT.
If any team member has the patience to look--shout out, so others aren't searching for it too. Maybe I'll get that second wind that enbriation gives. Shit versus chit, I haven't the gray matter cells left to search for the poop plan, but this is getting more fun as I write this.
IT is in the topic box that puns are welcomed. Haven't had fun all day, just seriousness.
Have stuff to add to the rectal issues thread, have avoided it b/c who wants to talk about the butt. It's like when I contacted a certain federal agency about RAI-131 treatment for thyroid cancer. I put me on the scope of likely several agencies.. But it ended up changing things, I hope world wide. I was invited to join there discussion at a .gov thingy. BUT decided I didn't want to be entered into the government record talk about vulva problems post thyroid treatment.
BUT WHAT WAS VERY COOL. I identified a worldwide mismanagement of thyroid patients receiving RAI 131. Considering that this has been the management since late 1940'[s and NO ONE SAID WAIT STOP this is WRONG. That's like particularly cool.
0 -
PROBABALY THE BEST TIME TO POST ON THE RECTAL ISSUES THREAD IS IN A WINE STATE. B/C INHIBITIONS ARE LOWERED.AND I CAN TALK TO FRANK OR FRANKLY.
0 -
SAS - I had a Gin & Tonic so I can tell you honestly (frankly?) I don't know Frank. But go for it. FYI - the juniper berries in the Gin keep me regular.
0 -
Hi wonderful friend, I am still awake, Let me fill my glass a wee bit, to pretend a glass has something in it. Comfort during a hurricane. Hurricane isn't here, but the bands are vicious Frank is always nice. He allows for any excuse to have a toddy. No clue, where this caine is going now. Learned many years ago for self preservation of MIND, not to clue in on hurricaine' s. This is the "attitude", is it going to hit us ? Otherwise, ignore. used to do all kinds of prep. Then fixed the house, then laid out a plan. Then learned to buy stuff I'd really eat when opening a can, Lay in 3x's the dog supplies ." They don't get not being fed and hunger".as domesticated friends. I can eat a can of beansand go quit long without food. Hmmmm gone without food for greater than 24 hrs. Going to find some. Choclolate while be the first morsel
0 -
SAS - glad you're OK. After going through several hurricanes in Houston I've learned never to keep too much meat in the freezer and to have lots of batteries. I was without power for 3 weeks after Ike. My only concession was to buy a battery operated fan to add to my lanterns, and a car charger for my cell phone. Hope everyone is safe.
0 -
Hi Sas ... hope you are o.k. What poop plan ... the one posted on Feb. 12th - posts 331-360?
0 -
Ah-hah---Yay Judi, don't know , but now have a post point. Not sure why Rosie hasn't shown up.
MT thanks for staying with me the other night--------love you for doing that. It was such an intense BCO day that once I got into the sauce, I just oh so needed a break in being straight. Then going to the rectal thread which is linked in the topic box. I have much to share. Regretfully, b/c of RAI 131. It's way much more than I could find on the net.
Bottom line(pun) talking about the vulva & butt issues is just a PITA. But the world is averse to the discussions that make our lives easier. I promised to post more there. I ran out of steam/energy and had to much wine. So must go back and complete. Oh vey.................
0 -
SAS - you add so much knowledge to so many threads & we thank you. You are certainly allowed an evening off with some wine.
0 -
MT, dear one, apparently heading there again. LOL. Shouldn't equate, but I'm amazed at some of my best posts under the influence. I so hope you are watching the science thread posts on "attitude" I so need folks weighing in, b/c the discussion caused it to get to the Medical Director of BCO. Changes were made. BUT we need more voices.
https://community.breastcancer.org/forum/73/topics/847566?page=2#idx_45
I think this is the link, but traveled many places since then
Checked and it's the right link. Please, read. Encourage the folks on your usual threads to review and post. This "attitude" study is going to be a severe problem for years. Analogous, to obesity and Health Life Styles, neither have been proved, yet are promulgated in so much cancer info.
0 -
Sass
I am here just so over whelmed with this whole mess. I think the going to the bathroom is playing havoc with me
My radiologic oncologist said to keep taking the SS. I saw him today . He said to take 8 today and Miarlax. I have passed small turds so I guess I am not truly constipated. :-) If I do not have a good bm tomorrow I am taking my old and reliablek M of M which is the culprit that gave me the hemmroids to begin with. but I need a GOOD BM. Any other suggestions. Here's looking forward to tomorrow.
Rosieo
0 -
Rosieo, Oh good, you finally made it here. We have several team members that will pop in with suggestions. They are all very helpful and supportive.
The Milk of magnesia isn't what gave you hemorrhoids. It was the hard stool that was trying to be passed. You were bearing down which put's great pressure on the rectal wall and anus. The area is very vascular. That increased pressure within the rectal/ anal area created the hemorrhoids.
The senna is a usual management, but it isn't working for you sufficiently. Hard small pellet like passings says the stool is very dry. It's as bad as having a big lump of stool and may even be worse.
Remember in your earlier question you asked what the definition of constipation was and I responded that most web sites will say three days without a stool. BUT I said that wasn't a real good definition b/c it doesn't look at what is happening. Important to keep this in mind.
You ARE constipated. Posting this and working on the rest of the response.
0 -
Rosieo, Posts 331-360 on pg 12 are an absolute must read. But the entire page should be read as there are other posts there that are helpful. There is no sense repeating the posts here , since they are written there, I have many thoughts for you, this will take awhile.
https://community.breastcancer.org/forum/6/topics/781867?page=12
You need a good clean out. I suggest go-litely, nu-litely , or tri- lytely.
You would do the clean out on Saturday coming up. You could start after rads if you have rads on sat. It's a gallon of fluid that is drunk over 3 hours(follow direction). Expect to start pooping between 1- 1 1/2 hours after you start drinking it.. Then pooping is generally done after. 6-8 hours. All my thoughts related to why I think this is a good approach in your scenario are on page 12..
The short story is if the gut bacterial flora is not healthy, that can be a cause for constipation. By doing this clean out, it helps to flush away as much as you can. After completing, start with a probiotic to restore normal flora. Continue with the probiotic daily. Make sure to ask your doc if it's okay to use a probiotic. In a reduced immune state, probiotics can cause trouble as much as bacteria can, and shouldn't be used.
I checked with my pharmacy to see how to write the script to get the cheapest product. When you present the script to your pharmacist ask that insurance be checked. With insurance it's cheaper, obviously It may cost between 35-50$ without insurance. If I were in your condition 50$ would be okay for me b/c I know what the outcome would be. But you may think this too much money.
If the RO is willing to give you a prescription have it written as follows
"Golitely MAY SUBSTITUTE LEAST EXPENSIVE GENERIC"
Over 23 years, I have found this clean out, then probiotic replacement the best to get back on track. If you choose not to do this, then I have other suggestions. The other suggestions will not get you back on track as much as this will.
I think this will be all for this post. I see MT has posted re: fluids. She's correct. I have a whole post on that somewhere. Probably page 12.
Being repetitive, but the clean out can make a major change for you. Please, seriously consider it. .
0 -
Rosieo: Welcome. Sorry you have to be here but there's some great info. Since we don't know you, can you go to My Profile and post some of your diagnosis & treatment stats? Also, are you on pain meds - which usually cause constipation? Are you drinking LOTS of water (I hate water so this is a problem for me). SAS is the expert.
SAS - I've started typing long things in MS Word and then copying to post here to ensure I don't lose them. Be sure to get up & take a 'walk around' break every little while. Going out to lunch w/my SIL but I'll check in tonight.
0 -
MT Hi, Thanks I know about the note and word perfect, but prefer to do it this way. I use preview too, but at times have lost posts with preview status b/c of connectivity problems. Had a lightning strike last year and thinks have been undependable since last year. I should just get them to replace the modem.
Have a fun lunch. I love going out to lunch........erh and dinner.....and breakfast.........Hahahaha, I love going out, but also love cooking too.
Thanks, for thinking of my forgetfulness about moving around and the leg edema. I get typing here on BCO or studying, and then look at the clock and rather than minutes passing, it's been hours.
0 -
Rosie, Yup the lengthy reason related to why water/fluids are so important is on page 12.
https://community.breastcancer.org/forum/6/topics/781867?page=12
0 -
Rosie, once you are done with page 12 give us a holler
0 -
OK - SAS, my very late lunch at 2:30pm (technically either dunch or linner) was excellent. I had a delicious omelette with fresh mushrooms, asparagus, spinach & havarti cheese - served with a small salad & blue cheese dressing. Salad greens always work to keep me regular.
0 -
MT
Dunch.Hahahaha, I do dunch allot Rosie, are you ready yet to talk specifics? What are your thoughts about doing a clean out?
0 -
Morning Sas! I tried unsuccessfully to share a video a couple of days ago. So, I'm providing the link here: http://hefty.co/letting-off-steam. The site is heath hacks and this particular video shows us that we haven't been sitting on the toilet properly. Check it out - quite interesting!
0 -
Morning Sas! I've been unsuccessfull in sharing a link. Check out health hacks - sitting on the toilet wrong.
0 -
Judy, Thanks :0 Loverly and labelle and maybe others brought forward the idea of position. I put Labelle's suggestion about a squat potty in the topic box. I found this video That does the visual decently.
We were infinitely designed by a glorious designer to work well. Man in recent times as mucked it up.
Labelle and I shared knowledge that at one time women gave birth in that position. Labelle did it with a Midwife..
What will happen over the next couple of decades is the old ways will be recognized and valued.
The Microbiome will become very valued. The Microbiome is the organisms that live on us and within us in a commensal relationship
We have mucked that up and as a result we have superbugs.
I will do something now that one of my bosses did in 1983(plus maybe a year or so). It was in the early Hiv/Aids time. She stated "Never do mouth to mouth without protection" I almost fell on the floor. No one had the guts to say it. BUTBUT within a very short time it saved a lieutenant firefighters life.
A patient found at the bottom of a stairs, he headed the doc's advice from a continuing ed thing. He used the protective devices.
Autopsy: patient died of ingesting cyanide and had crystals around her mouth. Had he done mouth to mouth he would have died. That story traveled quickly in EMS circles.
There was more than one reason to head the advice. the unknown is the unknown. Work cautiously.
Back to the microbiome: Don't make yourself crazy disinfecting everything. All we are doing is creating a superbug environment.
Hand washing with good mechanical action--to flush away nonresident bacteria is the best.
Next post
0 -
I have put up with multiple skin sensitivity reactions to chemicals and plastics. It's an immune system thing. Started mostly after BC, but some noted before BC.
Most noted after RAI131 for thyroid cancer 5 years after BC. I had to work through a process of the damage caused by the tx.
I don't use soap on the vulva or butt. OMD no SOAP...
It since extended to using soap sparingly on the body, but I use a wash cloth with good mechanical scrubbing. I swim. I use a moisturizer.
I know you think me crazy. I've evolved in my thinking b/c of the damn troubles caused by the RAI- 131. I started a thread of my own on rectal issues, but just reserved space. I'll develop it as the mood strikes
You all know me. I go in spurts these days. Retirement and life now allows for that.
Hmm the original question..............was related to position of normal defecation.
https://www.youtube.com/watch?v=p7pf0uFRfTQ
I'm putting this in the topic box.
0 -
Judi thanks for the direction. I googled and found many sources. The video I thought was a good tie in to Labelle's Squatty potty.
0 -
Well it's 1am and this clip is just about the last thing I reviewed before heading to bed. Hmmm. Never the less, maybe I'll try a stool tomorrow.
0 -
Helloooooooooooooo MT tell us about the outcome LOL
All off work life has goals and outcomes that determine value of the goal and the outcome.
Here we are literal. LOL
0 -
Luckily I didn't dream about pooping. The other thing I read right before I shut it down was about the sod worms that are destroying my lawn. So I dreamed about chemicals that I could spray to kill them.
You know me - I put things off. So I probably won't try the stool until the stools are hard again. Knock wood, right now everything is medium/medium & easy.
0 -
Bumping for new members.
0 -
I don't read this topic very often but don't see Sassy. Has anyone heard from Sassy?
0 -
Corky - my questions exactly. I sent a PM a couple of days ago since I was concerned but no response. Hope she'll check in soon.
0 -
Corky - I sent a PM on 11/6. She last posted on 9/21. I just posted on the Insomniacs thread where she usually hangs out to see if anyone there has heard from her.
0 -
Hi MinusTwo and Corky60,
I heard from Sassy (a PM on October 6th), she said she was taking a break from the boards, but was doing fine. That is however a loooooong time ago.
dsgirl
0 -
Here's a copy of an answer from Magdalene on the Insomniacs threat. Glad to know she's OK.
"I spent 2 hours on the phone with her today, Minus. She is doing well, just taking a sabbatical from BCO for a while. Sends her love"
0 -
This conversation is so valuable that I'm bumping again for new members. And noting that I STILL really miss SAS.
0 -
Thanks Minus Two.
0 -
MinusTwo. I miss Sassy on all her usual threads and here.
Wish she would come back.
Dsgirl
0 -
Thanks ladies. I do understand that Sassy was taking a break, but I hope someone has been in contact with her so we know she's OK.
0 -
I thought I would post this recipe that I received from my palliative care nurse. It is all over the counter stuff in Australia, so hopefully the same for you. The products may have different names in other countries, but google should help.
1 tablespoon of Agarol
1 tablespoon of Lactulose
1 tablespoon of Normicol
Mix together in 1/2 (a half) a cup of warm milk and drink.
It has helped me immensely.
0 -
Hey Freya - nice to see you here. Well that sounded funny - who would be excited by a constipation thread. Still... glad you found us. I don't recognize the names but I will research.
0 -
Freya - looks like it's problematic in the US. But we have ladies on her from lots of other countries so maybe it will be useful to them. I've put the link below that I used to research international drug names. And it's great that you found something that works for you.
Agarol - doesn't appear to be available in the US
Lactulose - is Rx only in the US
Normicol - doesn't appear to be listed in the international drug list
https://www.drugs.com/international/
0 -
Normicol - Information
NORMACOL® Plus is a product for the treatment of constipation. It is made of a combination of sterculia, a natural fibre, and frangula bark, a traditional herbal laxative. Together these two ingredients act by providing natural relief from constipation. Sterculia is not fermented by bacteria in the gut and is less likely to cause wind than fermentable fibres.
Agarol, it seems you can buy from Canada - http://burlingame.mykansaslibrary.org/buy-agarol-l...
How strange it all is, what you can get and what you can't in different countries. I will leave the recipe up, but it seems it wont be much help to the US ladies.
0 -
Thanks for the details Freya. Yes, do leave it up. Someone from the UK or Canada or other far flung places may find it useful.
0 -
Colace helps. and taking three Lasix and one metalozone a day is enough to make anyone a brick factory.
0 -
Cliff - everyone is different. There are some really good tips in these 45 pages. Not to mention some funny jokes. It's a job to find a method that is not too strong or too weak for your situation. And one that becomes a permanent part of your life w/o continuing laxatives. If anyone is having trouble, I suggest you read the header to this thread, then dip in as many pages as you can (and since our founder says puns are welcome) so you can hit the can.
0 -
Organic Baby Prunes, Start with small amount to see how they effect you.
0 -
Thanks Honey. I've been eating two dried prunes every night. That seems to take care of the times when I don't have a salad for a few days. I know I need to take dried prunes on vacation.
0 -
for me, the fix it lots of fluids every day.and a colace every morning. I actually have to watch my fluids, one doctor says reduce fluids( cardiologist) the other says drink more fluids.having congestive heart failure and cancer meds kinda confuses things.
the diarrhea, / constipation cycle lets me know if my fluids are right.
0 -
Bump
0 -
And one more bump. Good to see you SAS.
0 -
MT, Hi my friend. Missed you. Hope all is well...........
0 -
It will be interesting to see if people start having problems "going" again now that you're back. lol
0 -
OMD,(OH MY DOG). How funny. I was surprised how far it had fallen in the actives. Seriously. It was off the first page of the forum. Never since I started it was it off the first page. I just needed to take a break. Then the break, needed to take a break. Then heard something negative was happening. Had to come back. it's been a couple of weeks since I've been back. Then bumped things. I'm ready.
0 -
Question for you ladies.... I am on Femara and having whole breast radiation concurrently. Can either cause constipation?
0 -
Hi 6cats, Everyone is different with side effects (SE), that's why when you look at a list of SE it seems everything in the world is on them. Think of a SE spectrum of 0_______________________180 degrees. You can be anywhere on the spectrum. One member here had incredible constipation, really obstipation, that lasted a couple weeks. Others sail through without a problem.
In some cases, I'd look at that answer and say "Hrmphh, that didn't help", but the bottom like is you won't know until you take the drug.
Try and read from the beginning. Pass a post if something doesn't seem to apply. I do suggest the section on how to keep a poop diary will help you keep track of the goings, plus what you did to resolve it. Also, you can make up your poop plan by writing a plan at the beginning of the poop diary. That way you will know exactly what you are doing and what step you need to take next to get things moving.
This is a link to a SE list. They're many on the net
http://www.rxlist.com/femara-side-effects-drug-center.htm
sassy
0 -
SAS - oh the famous poop diary. You won't believe but I really, truly did keep one for 3 years after treatament. It was in code, like lge/med/small/tiny, and hard/reg/soft formed/mush. I looked at it this January and thought - oh my, what will my son think if he finds these?? We used to chuckle that my Dad (his grandpa) wrote down every 'movement' w/the exact time & quantity for my Mom during the 12 years she lay as a virtual vegetable after her last stroke. (yup - twelve years of poop records that he wouldn't let me throw away after she died). My son (age 25-35) used to go down to help his Grandpa with chores (I live in a far away state) until he finally said he just couldn't deal with my Dad talking about nothing else but the color & consistency of my Mom's stools. Turn about... I remember that's what I talked about when he was my first & only baby, since like most of us, I had no clue what I was doing. But even then I wasn't quite so (pardon the pun) anal retentive.
So now, my 'diary' is just a check mark on a separate calendar if I "go". Or more check marks if it's more than once. For 70 years, my personal habit was only once every couple of days. (in spite of my Mother sitting me on the pot when I was young every single morning & telling me I HAD to 'go'). So if I don't keep track, I seriously don't know when it's time to have more prunes. TMI? Of course but this is a "going" thread. Soooo glad you're back.
0 -
Oh MT hope you didn't mind me chuckling. My dad was anal too. I coined a word for it when I took my first psychology class 101. Let's see if I can remember the words, I played off of to coin the word.
Egocentric is the only one I can remember. But the key was the suffix or root word "Centric"
MY coined word was "Bowelcentric" My definition: The bowel becomes centermost to thought. Each day the thought surrounds bowel movements. Even to the extension that the bowel movement is discussed with anyone who will listen. Generally, confined to family, but concern about discussion to the wider community can cause alarm to the family. i.e the guys in the bar or to boyfriends brought home.
But as I grew older and grew as a nurse. This function of the Gi system can lead to much illness and disability. As a young nurse, first job 1974 after graduation. My own floor after only four weeks. One night 11pm, coming down the hall I look into a room, I see an old guy in restraints screaming and confused. He was normal when I left in the morning. After report which insufficiently described any intervention to explain his change in mental status, I went in and checked him head to toe and then for an impaction. Dug it out. His mental status returned to normal. Lesson. Yes. But I'd already worked as an aide for 5 years. Since I had listened to Dad so much, I always watched for pooping in my patients.
Always tried to stress with the aides and young nurses at the first sign of mental status change always do the basics. Blood pressure, oxygen sat, blood sugar, palpation of bladder & check catheter flow if present, do a rectal check, check for restricting garments i.e a rolled TED hose, check the bed for foreign objects. Basically, a head to toe.
By the time I relieved that poor guys impaction, his hands and feet were incredibly swollen b/c he was fighting the restraints. He needed to poop. He went through two shifts, without anyone caring to figure it out. "Just put him in restraints". Laws and rules came latter. But in the 70's mental status change meant restraints. Yeah, I can be seen as the good nurse, but it so saddened me that that guy had to be so degraded and ignored b/c all around him had no clue.
So, it gladdens my heart that Dad taught me about being Bowelcentric
0 -
Bump
0 -
Hi SAS - so glad you're around even if we aren't usually on the same threads.
0 -
MT I'm so glad you are around too!. I've always thought of us as a team.
I noticed that Judi hasn't posted in awhile. Any idea?0 -
This is reposted with permission form native Mariner. I thought it was quite a nice recipe. Never can have enough recipes.
It incorporates everything we have talked about in these pages, but with it's own recipe.May 27, 2017 08:45AM NativeMainer wrote: Suems--what laxatives are you taking? It sounds like the bowel regimen piece needs to be readjusted.Does the morphine manage the liver pain? If so, then the laxatives need to be changed.If the morphine is not managing the liver pain it would make sense to talk about another pain med, but be aware that all pain meds except Tramadol cause constipation, and Tramadol may not be strong enough to manage liver pain. Call your doc's office and explain what is going on and get some help with this.As a hospice nurse I like to recommend that people take a dose of polyethylene glycol 3350 (MiraLAX) daily, and take senna (1 tablet = 8.6 mg) one tablet twice a day. If constipation still happens, go up to 2 tablets twice a day,and go up by one tablet twice a day until you have regular bms while taking the morphine.If you start having diarrhea, stopthe senna for 24 hours but continue the polyelthylene glycol, and restart the senna at 1 tablet less than when you stopped. Everyone needs a different amount of senna, some people as little as 1 tableta day, some as many as 6 tablets twice a day. It's important not to stop the morphine because then all the laxatives will kick in suddenly and make you miserable that way.
0 -
SAS - Judi has been inactive for awhile but she promised me she wouldn't totally go away. They have been migrating from Canada to Florida the last couple of summers and & I'm not sure what her connections are down there. I need to send her a PM.
0 -
Mt, it seems that she's on the west coast. Tell her I said Hi and send my love
0 -
Judi's last posts was last october. Hope she still has her email set to get notices of PMs.
0 -
I wonder, I may have her phone b/c we talk about her problem. I'll check my stuff tomorrow.
0 -
Bump
0 -
MT I looked for Judi's phone number. Couldn't find it. Bummer
0 -
Oh no - and she didn't answer my PM. She PROMISED me that she wouldn't disappear. Let's hope she's just in FL for the summer. And that she is OK.
I just had a THS test on my thyroid and was reading on the Mayo Clinic site about some of the symptoms. I've always been cold and we know chemo caused the fatigue. I've written the dry skin down to aging, I have no weight gain and my hair came back ridiculously thick. What surprised me is that one of the symptoms of an underactive thyroid is....yup.... CONSTIPATION. Hmmm. There's something to think about.
My "original normal" was to go every 2-3 days. Supposedly I'm now back to my "new normal". Generally I do OK as long as I eat salad at least every other day. Or like I do on vacation, eat a couple of dried prunes every day. At least I stopped keeping a log of every poop & the size & the quality. OK - yes I'm still "anal" so I do make a check mark on the calendar when I go so I don't get too far out of whack.
0 -
MT, bowelcentric (my made up word) Much fancier than "anal".
Actually, that is a major advancement, if now, all you have to track is a check mark. YoooHooooPooooooCongratulations!
The thyroid is an absolute bugger. The list for hypo (low) thyroid is endless and hyper(high)thyroid is endless. Then with Hashimoto's that fluctuates up and down. All the symptoms are like ping pong balls bouncing everywhere. The thyroid can mess us up big time.
The TSH is Thyroid Simulating Hormone produced by the pituitary. It stimulates the thyroid to produce T4. T4 converts to T3 which is the active component of the hormone. The gold standard for evaluation since 1975 has been the TSH alone. But that's not the whole picture. Can be. But if there are lot's of symptoms measurement of the three can tell a big picture story.
Minimum acceptable once a year testing is TSH. Usually this is included in the yearly well being exam along with a Complete Metabolic Profile abbreviated CMP or CMET, Complete Blood Count --CBC, HBA1c --3month look at blood sugar, Urinalysis. These tests done together yearly can pick up early problems that we are not aware of yet.
MT perhaps a note to the Mods to send Judy an email? I have often done this in the past. They are very cooperative about doing this
0 -
Have to recommend Equate stool softener and laxative. My infusion center RN told me you really need both to be easier on your system and for it to work. Worked very well for me and after 2 days of my poor dad being stopped up post surgery, he was instantly relieved when prunes and other things failed. It's much cheaper than Peri-Colace and works just as well.
0 -
I bought Target's "up & up" brand - senna laxative. Compare to "Senokot S" - stool softener plus laxative. Once you get the blockage under control, the plain stool softener may be enough, but while you're on pain drugs, the constipation is pretty standard.
0 -
Talk about a timely thread to show up for me. I just went through 2 weeks of constipation hell. Tried everything under the sun. Ended up in the ER for a day for some intervention. Learned a lot this week for sure. Finally got some relief but a now paranoid that it will start all over. So I cannot express how much I appreciate all the "tried and true" suggestions. Will definitely stay on top of things now.
0 -
YaY Artista, good luck
0 -
Bumping for new members & a new week.
0 -
When I ended up in the ER I could not get over how stumped they seem over this issue. I really stressed to my Onc's office that it was SEVERE and they were so "ho Hum" about it. Then the ER doc says he hasn't really dealt much with the issue. I asked him what I do next if it continues. He shrugged and said it could take a week or so to completely resolve. Well it hasn't. I've been battling this all week trying all suggestions and it seems to be backing up again. I am trying not to get confused on what remedy to take when. I don't want to overdo anything. But this is miserable. Guzzling water, easing in fiber, Miralax, Milk of Magnesia last night. Still nothing....
0 -
I know how miserable you feel, artistatheart, and am so sorry you haven't found relief yet. I went through this big time after my hysterectomy nine years ago. I called my DH and told him to bring me every product on the grocery store shelf! He was on the verge of taking me to the ER when I finally.... I think what did it for me were the laxative suppositories. The doctor did not prescribe a stool softener with the pain pills. I was so pleased that my BS did. Despite taking them faithfully - and not taking many Norco - I still got a bit backed up. I found those suppositories - expired but still effective!
Post-surgery and in the midst of rads I find myself not exactly my usual self. Won't it be nice some day to be back to "normal?"
Sure hope things get moving soon
MJ
0 -
artist - Hope you are taking Stool Softener PLUS laxative at this point. In the Target brand, the stool softener is Docusate sodium; stool softener is Sennosides. This is what the Peri-Colace box says: The active ingredients in Peri-Colace®Tablets are docusate sodium and standardized senna concentrate. II think you'll find the WalMart brand similar (Equate) Sounds like you're past milk of mag and the fiber is just adding to the jam.
Also, yes, I would go ahead and get a suppository for quick relief. Hopefully one of those will break the log jam. Just plain glycerin worked for me, but you can ask your pharmacist what the next level up w/laxative included. On occluded bowel is something you do NOT want.
Once you get 'clear', we all have different methods for staying that way. I'm usually OK if I eat a green salad every day - which I don't. And I'm better if I eat bread - which i love but try not to do because of the calories & carbs. If I start to feel 'full', I pop a couple of dried prunes or drink a small can of prune juice.
Do let us know how you're doing.
0 -
Aristahea, Hi, Sorry you are still having problems. The key to my answer is whether you are in a normal or low immune state
Normal immune state---platelets normal, WBC's normal, and neuts normal
Low immune state--platelet abnormal which can lead to bleeding. Low WBC's can lead to infection, Low Neutrophils immature WBC's aren't being produce properly, indicates the body is not responding to signals of infection. Neuts are the back-up for the WBC's.
You are in a very blocked state. You have already checked in with your doc. This is part of your emergency plan. (all plans should be cleared by your doctor.)
Plan for normal immune state--enema or suppositories (check in on page 10 for a description of all products).
1. Fleets mineral oil --This is an over the counter product. Can be used in many ways. Remove cap and place tip in rectum and squeeze. Can use one bottle and wait for response. My two favorite approaches are a. two fleets at the same time b. two fleets 15 minute to 30 minutes apart. OR
2. Tap water enema. Warm water 1000cc's--1 quart. Difficult to do your self, but can be done. Doing it sitting on the toilet is difficult and can traumatize the rectum. OR
3.Saline enema tablespoon of salt added to 1000cc of water OR
4 Milk and Molasses enema - 8 oz. of warm milk and 8 0z of molasses. Pour warm solution into enema bag and use.
5. Dulcolax suppository, remove wrapper and place in rectum. My personal thing even on myself, is to use gloves.
Plan for low immune state--nothing in the rectum. Micro-tears can lead to a systemic problem. Generally, micro-tears are managed well by the normal immune response.
1. Mix and drink. 1 -2 tbl of molasses followed by 8-16 ounces of warm water. (UGH). Works like a charm. OR
2. Magnesium citrate I btle You can't take to many "treatments" at one time. Dangerous b/c if the blockage is not relieved from below it could create too much backpressure and hurt the colon above the blockage. OR
3. 1 -2 Tbl. of molasses followed by 8-16 ounces warm water hahah I must like molasses as I wrote it twice.
Artista, there are so many recipes and plans throughout this pages. Very worthwhile to read from page one once you get this under control.
0 -
Tappermom - I am forever grateful that my BS proscribed the stool softener WITH laxative for the first few days while I was on the pain killers.
0 -
Hey MT just rolling on out.....................Hahahaha..........sick poop humor
0 -
When I packed my bag to go to the hospital to have my daughter, I added a box of dried apricots because I knew from my neighbor I wouldn't be allowed to go home until action had happened. Worked like a charm and they're delicious! So they may help as a maintenance tool (I should take my own advice).
MJ
0 -
Yes you must have stool softener WITH laxative, not one or the other. Worked like a charm for me on first try and for my dad post surgery who was plugged up for 2 days. One time try for him and he was so relieved.
I got Equate at Walmart. Much much cheaper than Peri-Colace.
0 -
Not sure if anyone has already mentioned sorghum? It's probably only regionally available but it's another folk remedy with science to back it up (like molasses.) It's a great source of dietary fiber and minerals. It's a little tastier than molasses in my opinion. I thought I might add some to my morning regimen, can't hurt!
0 -
Tapper - yes to the dried apricots.
Meg - even if somebody did mention sorghum, it's probably on page 17 or 28 or 39. There is a wealth of information on the preceding pages if you all have time. Most of us need urgent solutions before we dive into ongoing assistance.
In the mean time, glad to see new people posting to get this thread "going" again. (back at ya SAS)
0 -
Artista Did you see my post to you
Meg, I just posted about Molasses a few posts ago too. Artista. I'm familiar with molasses . but not sorghum. Not a clue. Teach me
Heard of it when I was young, now decades ago, but not since. Tapper thanks for the thought on apricots. It is a favorite throughout these pages. Many recipes/approaches to pooping
Have a read from the beginning. Perhaps during a certain sitting time. That would get your attention. Thanks again for sharing your thoughts
0 -
Organic Baby prunes, they come in a foil packet sold in baby food section, they work wonders
I had a terrible problem while doing chemo and it was the only thing that worked . It took a couple packs but once they started working I would eat them every couple days and never had another issue .and they are actally good
Good luck
0 -
MinusTwo- I read it when I was in chemo, its been awhile, I re-read through the pages pinned at the top of the thread and didn't see sorghum mentioned and just thought about it as I was cleaning my pantry this weekend. For me, I had issues during treatment, but continue to have issues during ongoing surgeries and then also just periodic blockages when I travel that I am trying to manage. In addition to travel for work, I travel for treatment, so its an ongoing battle. I revisited this thread because I have an upcoming surgery and want to try to prep for it as much as possible and thought I'd see if there was anything new people were talking about. Non-drug things that I can add into my diet or habits ongoing are great because going in with everything functioning as smoothly as possible and prevent the going issues as much as I can. I'm already doing bran, probiotics, prunes, and supplements, etc etc but sorghum is sweet so easy to add to smoothie, toast, etc. If it isn't helpful for you, then please just ignore it. Not trying to side track the discussion, will gladly go back to lurking.
sas-schatzi It is similar to molasses but from a different plant (the plant is sorghum) and its a sweet, syrup made from it. I live in the south and when I was pregnant my husband's family (from here) told me I had to take it every day. I had lots of constipation issues when I was pregnant and low-iron (and iron causes constipation.) When I ate sorghum consistently it helped both of those issues (a couple of tablespoons a day.) We always have some in our kitchen, but I hadn't been in the practice of regularly eating it, my husband just has it around and uses it like honey. But I have a daily smoothie that I throw a bunch of stuff in now, might just start adding it to the mix. Its also a natural sweetener without the strong flavor of molasses, so can be good in baking or other things without adding sugar. I actually have a whole cookbook that uses it, its great in marinades and other things as well. And it is supposed to be tolerated by wheat/gluten intolerant people but is a great source of fiber.
0 -
Meg - heavens, I didn't mean you were side tracking. You are right on target. I just meant that anyone might benefit from reading the previous pages. I'll keep my eye out for sorghum. Good luck with your upcoming surgery. Please continue to post & let us know how your surgery goes.
0 -
meg ditto to MT, one or the other of us always put a plug into reading from the beginning. Since you have already read you know there is lots of stuff from so many. I was looking to see if I had written an answer that would be good for Aristista, I was bummed that many of the funny pictures are gone.
Just a thought about daily use of molasses or sourghum. I'm glad you identified that it was high in iron. There is a genetic condition that is really common in the US and the western world. It's called Hemochromatosis(HC). Iron storage disease. It's one of those sneaky conditions that can cause maximum problems b/c of iron buildup over the years. Liver, heart, diabetes type 1) , dementia, and more. But those are the major ones. Many docs associate it with alcohol. The rabid effects on the liver can occur in teatotalers. The gene for HC can be tested for and then if present there is excellent treatment management. By serendipity my family found out we carry the gene. I have an Iron panel yearly. Also, other things are monitored too, but they are part and parcel of a normal wellness exam. Liver function and HBA1c. A diet low in iron is part of the management.
Impaired Iron storage can go on for years before the tissue saturation doesn't allow for more storage and the blood levels start to change. By then damage has occurred. A simple management if one carries the gene is to donate blood a few times a year. Women generally, don't show up with the effect to the late fifth decade or after b/c of decades of menstruation. The iron carried within the red blood cells are passed. Men show up in the 4th-5th decade. My son hasn't been tested, I suggested he donate blood 3-4 times a year. I will suggest that they be tested before babies arrive. A double hit on the gene (from mom and dad) are real trouble. The child can show up very early with problems. This covers the highpoints on HC. The most educated doc on the disease and management is the gastroenterologist GI doc or Hepatologist (liver) docs. Other docs would have a superficial knowledge of HC.
Sheesh, I forgot two of the nasty HC problems. Cancer and arthritis. I will have too look to see the list of cancers, it's been awhile since I looked at it. I took a look and hepatocellular, pancreatic cancer are the only two I came up with. My long memory of HC is there were 5 or 6, but couldn't come up with a decent list now.
If you look at multivitamins, senior vitamins don't carry iron. That's b/c of HC potential. But again, that's late in the game. I started my son on the donation route in his early 20's.
0 -
Yes sas I just saw that. I have trouble working full time and keeping up here. Lots of great suggestions here. I tried the CVT Senna stool softener with laxative and have had some moderate success! Plus I am finding out which foods help me move it along too. Today I had a can of V8 and 10 minutes later had some action. The bloating is way down. Saw my MO today and we talked it out. She said I can do the Senna for awhile until I feel the issue is resolved completely. So things are improving. Smaller more frequent meals, TONS of water, V8! juice for me, prunes and Senna! Thanks everyone!
0 -
Artista, You are the first with V8. Too funny, who would figure V8. But whatever works GO(hahah) with it. It's a pun thing. The subject is so easy to mock. Glad you have a plan and glad you talked with your doc as they are our resource always. Good luck.
0 -
Hmmmm - I love V-8 but would never have thought of it as 'go juice'. I'm going to do a test & watch for results.
0 -
Hello again,
I have this thread in my favorites, no pun intended, and I love V-8 juice too, wanna try that. The prune/cranberry/golden raisins/apricot concoction does do the job for me, but I am slightly sick of eating it daily. Would love to be able to "go" with the help of V-8.
dsgirl
0 -
dsgirl, so happy to see you it's been quite awhile. I know go figure, V8. Of course, I always question , is it the direct or the indirect thing. Is it the vegetable juice or the preservatives.
The bottom line(hahah) is it doesn't matter, if it causes the go, goooooooogirl!
I will give a serious example from the opposite point of view. A friend when we were young had diarrhea in the first trimester that she was hospitalized twice. The docs did all the tests and couldn't identify anything to stop it. My friend had a doc go through the many question routine. One of the queries was "has anything constipated you in the past?" In the past she had a couple of experiences with codeine that caused severe constipation. She was given one or two doses of codeine and it stopped her diarrhea. Badaboom. She was fine for the rest of the pregnancy.
We each respond to stuff in a different way. If it works and does no harm.......Badaboomandpoop.
0 -
I'm wondering on the V8 if the sodium or potassium helps? It has a lot of both...It is also pretty acidic.
0 -
I think I need to test it this weekend with a little Vodka & a lime.
0 -
Oh haha! I had my acidic with a glass of wine this weekend. took a trip out of town and overindulged a little so now I am back to a SLOW system AGAIN. It's becoming chronic and my MO seems less concerned than me.....
It's wearing me out. I just downed a V8 hoping to recreate the "magic".0 -
Good Monday Morning. YAY another week.
MT so, how does V8, Vodka & lime work? Did you test different amounts? Hehehehe
Artista what other drugs do you take? and any prns.
I tested Sutter Home Chardonney and two Cosmopolitan martini's this weekend. Everything came out well in the end.
0 -
Buggars lost a post --try again
GOOG MONDAY MORNING Yay another week.
MT how did your test turn out? Did you test more than one? hehehe
Aritista, What meds are you taking, inclusive of pain meds and benzo's?
I tested Chardonney and cosmo martini's. Everthing came out well in the end
0 -
Sorry to report I didn't test the Bloody Mary w/V-8 theory over the weekend. It was too bloody hot, so I had a gin & tonic instead. Gin has always worked well for me. If I occasionally switch to bourbon in the winter, I have to do something else to keep me going. I always thought it was the juniper berries.
0 -
sas, I am just on Afinitor and Aromosin. no pain meds. I get an Xgeva shot once a month but just started that after the big C started. I usually take Vit D and calcium but quit the calcium for now. I keep rotating around to different remedies including prunes with limited results. If this doesn't resolve in a day or two it's back to the DR
0 -
As someone who has had to deal with constipation my whole life (my mom said I was born constipated!), I will be a frequent flyer here! I had TERRIBLE problems after my surgery in spite of my usual habit of taking 4 stool softeners, 2 senna tablets, 4 fiber gummies and 2 probiotics DAILY! Even after adding Milk of Magnesia, glycerin suppositories, prunes and ExLax, I still ended up impacted to the point of being ready to go to the ER. Pardon how graphic this is, but I could feel a large thick stool about the size of a baby's head in my rectum. No way that was ever coming out on its own. I know this sounds really gross, but I was so determined not to go through the indignity of going to the ER for help (since i still had drains in and knew I couldn't lay on my side or stomach too). So I gloved up and manually had to "dig" it out. It was NOT fun and took a very long time to get unblocked, but it was worth the effort. I ended up with some really bad hemorrhoids but the relief I got was worth it. I quit the pain meds even though it meant sleepless nights and have worked really hard to stay on top of things since.
One trick I learned a while back from a YouTube video is to massage your bowels through your lower abdomen while lying on your back, before you get out of bed in the morning. This can help break up hard stools as well as stimulate your lower intestines to move things along if you massage in a clockwise motion from your lower right, upward towards your navel and then down to your lower left which is the direction your bowels move. This has helped me also stay a bit more regular, especially when I remember to do it!0 -
Thanks ready, I am about to try ANYTHING. I have done all the meds, enemas, suppositories. I can tell it has moved downward as the uncomforted has moved. I am like you, very resistant to go to the ER. It is the ultimate indignity......I'm going to buy gloves......Been fasting a bit to help only eating watermelon with a piece of toast this morning.
0 -
Caution ladies, digging out or dis-impaction should never be done in a low immune state. i.e,. your numbers aren't normal. Not done correctly can lead to infection.
Did you both try the enemas mentioned a few posts back?
Aritista the AI's are infamous for causing constipation
Ready is there any food in your life that causes diarrhea? Cabbage soup, Beet juice. I'm glad the message works for you. It's a standard treatment for babies. We tend to forget it for adults. Check the topic box for the link for squatty potty. I strongly recommend you get one. Also, consider a gastroenterologist exam. You may have a lower motility problem or another end colon problem. rectocele, mega colon. Mega colon doesn't have to be like the one identified at birth. It can be acquired over time as the walls of the colon are presented with life long constipation. Sorry you are going through this without pain meds, but it was a smart move on your part to stop them. What drugs are you on?
0 -
Well, I am more than happy to report that I finally got some movement going. I went on a mostly watermelon diet for 2 days with a little chicken noodle soup for dinner to replace some salt, kept hydrating like crazy, did another warm water enema then followed up with a dose of Senna. I feel 75% better than I have for 3 weeks. I hope I am finally back on track but plan to be extremely carful what I am putting down the hatch. I was 2 inches from going to the ER last night. I am sooooooo relieved. It's amazing how good you feel when you feel pretty normal.
0 -
WHOOOOOHOOOoooooooo aristata
0 -
Hi sas-schatci, I was out of town so missed your message. I don't have lowered immunities, no chemo, but I certainly understand the risk of digging out. In the condition I was in, I don't think the ER could have done it any differently unfortunately. An enema wasn't possible at that point since the large blockage was already fully down in my rectum so nothing could have been inserted.
I had testing done about a year ago to see if I have any "kinks" in my plumbing and that didn't show anything. I've talked to doctors all my life about my issues with constipation but no one takes me seriously and just says to eat more fiber, etc. I do have a Squatty Potty but it doesn't really make any difference. I believe my bowels just don't move the way they should, a muscular or nerve problem. I haven't found any foods that give me diarrhea, and once I've already taken several doses of stool softeners, laxatives, glycerine suppositories etc, and still don't get relief, I get scared that a blockage could cause a rupture if I continue to add anything more that could build up pressure . So I try very hard to be proactive and stay on top of things. Lately drinking Smooth Move tea daily has kept me somewhat regular so that's been good. It's also good that it doesn't cause me to swing to the other extreme like multiple doses of the other stuff does.
0 -
Interesting snippet from a Time article titled "The Drug Cascade". It is about OIC - Opioid-induced constipation. We've certainly seen first hand what the pain drugs can do to our systems.
One thing it discusses is drug makers huge price increases. "Three years ago, there was only one drug that treated OIC; by 2019 there will likely be eight. 'It's a case of the pharmaceutical industry creating a disease (...opioid addiction..) and then selling a drug to treat it.'...In recent years, as the customer base has ballooned, so has the price of these medications." In 2014 global revenue from OIC drugs as $1.9 billion. The projected revenue for 2022 for OIC drugs is $2.8 billion.
New term to remember OIC - Opioid-Induced Constipation.
0 -
MT I was right about the drug class, shouldn't have sold my stock. Oh well.
0 -
Ready, Bummer. Regretfully, it has been easier for docs to say just eat more fiber and drink more fluids than seek out the real cause of your problem.
Below is the Clinical Practice Guideline for colon care in neurologically injured patients. This one happens to be from the UK. But it's a universal guideline. If you care to find the guideline for the USA it could be found. This popped up first and it's an A-Z everything you need to know. Pathophysiology for different conditions and then management.
What you know is that you have a life long problem, that hasn't been given a proper diagnosis. In the end you don't care so much about a proper diagnosis, you are interested in everything coming out in the end without experiencing complications. i,e. colon rupture, diverticulosis.
Once you've read this 60 pages, you may be able to identify your problem, be able to go to your doc and say "I need this and this study to rule out these disease conditions". At that same visit, ask your doc to review what you want to do from the manual. Remember this is going to be a treatment and all treatments should be approved by your doc.
There is a multistep treatment plan to manage constipation defined within the manual, plus, a record keeping guideline. more sophisticated than what I've recommended.
This treatment plan components were developed for spinal cord injured patients. In their situation, literally, there is no colon movement. With that thought in mind you should be able to glean a plan for yourself, since you are above that level i.e very slow movement documented over decades, unresponsive to other modalities.
If you have a Regional Spinal Cord Rehabilitation or Acute care facility near you, you may be able to talk them into giving you a copy.
"Guidelines for Neurogenic Bowel Dysfunction in Individuals with Central Neurologic Conditions."
https://www.mascip.co.uk/wp-content/uploads/2015/02/CV653N-Neurogenic-Guidelines-Sept-2012.pdf
0 -
Ready, This link lists spinal cord injury facilities by state.
http://www.sci-info-pages.com/rehabs.html
Plus, you could ask for a consult with an "Ostomy" nurse they are specially trained at Emory University in Georgia. You don't have an ostomy. But the ostomy nurse is the nurse trained in the therapeutic modalities in the manual in the last post.
The doc's order should read like this "Consult with Ostomy RN for Evaluation and Recommend Treatment Plan for intractable constipation". The word intractable in medicine means "we can't fix it" or "unresponsive to treatment". Make sure insurance covers the referral before seeing the Ostomy nurse. To get it paid for by insurance, you may have to have a better diagnostic word than intractable
It would be very cool to get the ostomy nurse, b/c you would have a resource for problems and troubleshooting after that. You will likely find her/him more knowledgeable than the docs that you have had in the past. Highly recommend them.
0 -
Sas-schatzi - Thanks for the posts and links - I read them all, and it was quite informative. I don't know that I have any particular neurological problem - none of the ones specifically listed anyway. But obviously I have some motor issue, and massaging does help, so that seems to make sense.
One of the parts that stood out to me was the description of a "soft impaction" as being clay or putty-like in texture and just sitting in the rectum getting more and more impossible to get out. That's exactly what happened to me and happens way too often. So, that led me to google that in particular and guess what the main cause of that is?!! TOO MUCH soluble fiber! So all those doctors who kept telling me to keep increasing my fiber could have been making the problem much worse! It makes sense when I think about it. Duh!! It's like it absorbs too much fluid like a big wad of absorbing gel that actually stretches against and blocks the colon/rectum rather than making things a good consistency to keep moving.
So, I will give it a try decreasing fiber, especially the fiber supplements, for a couple of weeks, while increasing fluids and continuing the massaging and see if that helps0 -
Ready, Great that you have a plan to work on. With the motor thing. Think of it on a spectrum of
0(no motility<-----------------CS----------------------<Normal>--------------------------->180(diarrhea)
There are conditions that are related to low motility, but until you reach a clinically significant Constipation(CS)point the docs ignore it as a problem. Whereas, we may be quite uncomfortable with it.
I know you are reading the microbiome material on the weight thread. Seeking out a high quality probiotic from a reputable source is very important. I use Superdophilous that needs to be refrigerated. Consider Omega 3/6/9 Barleans. 2000mg a day. Neither should be exposed to heat.
But you may want to wait with those until you run your experiment with the lowering the fiber.
I mess up my microbiome every time I drink wine, but I don't want to give up my wine
Please, let us know how your experiment works, thanks sassy
0 -
Is anyone aware of this? There are more recen studies on bile and breast cancer...
Why do constipated women appear to be at higher risk for breast cancer? The results of a 1989 study out of the American Journal of Public Health suggested a slight increased risk of breast cancer for both decreased frequency of bowel movements and firm stool consistency. Women who had three or more bowel movements a day appeared to cut their risk of breast cancer in half. This could be because constipation means a greater contact time between our waste and our intestinal wall, which may increase the formation and absorption of fecal mutagens--substances that cause DNA mutations and cancer--into our circulation, eventually ending up in breast tissue.
The concept that more frequent bowl movements decrease breast cancer risk dates back more than a century, where severe constipation, so-called "chronic intestinal stasis," was sometimes dealt with surgically. Figuring that the colon was an inessential part of the human anatomy, why not cure constipation by just cutting it out? After the surgery, they noticed that potentially precancerous changes in the breasts of constipated women seemed to disappear.
It would take another 70 years before researchers followed up on the clues by those distinguished surgeons who claimed breast pathology cleared when constipation was corrected. A 1981 study published in The Lancet investigated the relation between potentially precancerous changes in the breast and the frequency of bowl movements in nearly 1,500 women (See Breast Cancer and Constipation). The researchers found that the risk of precancerous changes was four times greater in women reporting two or fewer bowel movements a week compared to more than once daily.
We know that even the non-lactating breast actively takes up chemical substances from the blood. We also know that there are mutagens in feces. It is not unreasonable to suggest that potentially toxic substances derived from the colon have damaging or even carcinogenic effects upon the lining of the breast. Toxic substances like bile acids. Bile acids were first shown to promote tumors in mice in 1940, but subsequent experiments on rats led to the mistaken belief that bile acids just promoted existing cancers and couldn't initiate tumors themselves. However, there is a fundamental difference between the rodent models and human cancer. Rats only live a few years while humans can live dozens, so the opportunity for cancer causing mutations may be at least 30 times greater in humans. We now have at least 15 studies that show that bile acids can damage DNA, strongly suggesting they can initiate new cancers as well.
Bile acids are formed as a way of getting rid of excess cholesterol. Our liver dumps bile acids into the intestine for disposal, assuming our intestines will be packed with fiber to trap it and flush it out of the body. But if we haven't been eating enough fiber-rich whole plant foods, bile acids can be reabsorbed back into the body and build up in the breast.
Carcinogenic bile acids are found concentrated in the fluid of breast cysts at up to a hundred times the level found in the bloodstream. By radioactively tagging bile acids, researchers were able to show that intestinal bile acids rapidly gain access to the breast, where they can exert an estrogen-like cancer-promoting effect on breast tumor cells. This would explain why we see 50% higher bile acid levels in the bloodstream of newly diagnosed breast cancer victims. These findings support the concept of a relationship between intestinally-derived bile acids and risk of breast cancer. So how can we facilitate the removal of bile acids from our body?
Slowed colonic transit can increase bile acid levels. Therefore, to decrease absorption of bile acids, we can speed up the so-called "oro-anal transit time," the speed at which food goes from mouth to toilet, by eating lots of fiber. A diet packed with plants greatly increases bile acid excretion.
Fiber can bind up and remove other toxic elements like lead and mercury as well as cholesterol and bile acids. But plants can bind bile acids even independent of fiber. Vegan diets bind significantly more bile acid than lacto-ovo or non-vegetarian diets even at the same fiber intake, which could explain why individuals eating vegetarian might excrete less mutagenic feces in the first place.
I touched on this in my live presentation From Table to Able: Combating Disabling Diseases with Food, but what I didn't get to discuss is the relative bile acid binding abilities of different foods. I cover that in my video Which Vegetable Binds Bile Best?
What intestinal transit time should we be shooting for? See Food Mass Transit. That may be why Stool Size Matters. Also, How Many Bowel Movements Should You Have Every Day? We can improve speed and size by Bulking Up on Antioxidants and eating lots of whole plant foods (Prunes vs. Metamucil vs. Vegan Diet).
Fiber may also help women remove excess estrogen from their body. See my video Fiber vs. Breast Cancer. For more on the wonders of fiber, see Dr. Burkitt's F-Word Diet.
0 -
Send to
Int J Food Sci Nutr. 2009;60 Suppl 6:116-25.Bile acids as possible human carcinogens: new tricks from an old dog.
Author information
Abstract
Bile first attracted man's interest long ago. The actual tumour-promoting effects of a bile acid were reported in 1939 for deoxycholic acid. Ever since, much evidence has accumulated that supports an important role for bile acids as cancer promoters in humans through DNA damage and selection for apoptosis-resistant cells, both of which can lead to increased mutation rates. The evidence reviewed here indicates that, in humans, bile acids are likely to be implicated in the aetiology of a number of different important cancers in terms of morbidity and mortality, such as cancer of the colon, oesophagus, stomach, pancreas, gall bladder and cancer of the breast.
- PMID:
- 19499433
- DOI:
- 10.1080/09637480902970967
- [Indexed for MEDLINE]
0 -
nice Mari good stuff
0 -
Foods that increase bile flow
Your liver manufactures bile primarily from the breakdown products of excess cholesterol, known as bile acids. Bile also contains lecithin, a substance that emulsifies, or disperses, fat particles, and waste products that the liver filters from the blood. The gallbladder stores bile and secretes it into the small intestine when you eat fat-containing foods, where it breaks large fat globules into smaller particles in preparation for the action of fat-digesting enzymes. Healthy, unobstructed flow of bile helps you digest foods and removes excess cholesterol and toxins from the body. Certain foods promote production and flow of bile.
Bitter Foods
Bitter foods offer particular benefits for enhancing bile secretion, according to a study published in a 2011 issue of "International Journal of Food Sciences and Nutrition." Taste receptors for bitter substances trigger your pancreas to secrete digestive enzymes and your gall bladder to release bile. Bitter artichoke, Cynara cardunculus, also known as cardoon, traditionally recommended by herbalists to stimulate appetite, relieve nausea and improve liver function, increases bile secretion by up to 150 percent. Bitter artichoke has also been shown to reduce abdominal pain, bloating and constipation. Native to the Mediterranean, bitter artichoke is related to the globe artichoke and has a mild, artichoke-like flavor. However, instead of the flower bud, the stalk of the plant is eaten.
Whole Grains
Whole grains improved bile flow in an animal study published in the May 2012 "Journal of Hygiene Research." In the 8-week study, a group that ate a diet supplemented with a mixture of whole grains showed significantly increased bile secretion compared to a group that consumed a diet supplemented with white rice flour. A study published in the December 2005 "British Journal of Nutrition" demonstrated bile-stimulating effects of oat bran. Animals that ate diets containing 500 grams of high-fiber oat flour per kilogram for 6 weeks showed higher bile acid secretion than a control group that ate an oat-free diet.
Fruits
Fiber in some fruits might increase bile production, according to an animal study published in the June 2009 "Journal of Agricultural and Food Chemistry." In the study, researchers modified insoluble fiber found naturally in starfruit and orange. The resulting smaller-sized fiber particles increased excretion of bile acids by 133 percent in a group of animals that ate diets supplemented with the fiber compared to a control group that did not receive fiber-supplemented diets. Additionally, the modified fruit fiber was 4 percent more effective at stimulating bile flow than unmodified fruit fiber.
Dandelion Root
Dandelion root, a highly regarded food and herb for supporting liver health, contains a compound called taraxacin, that promotes bile flow and helps to decrease liver congestion, according to nutritionist Jonny Bowden, author of "The 150 Healthiest Foods on Earth: The Surprising, Unbiased Truth about What You Should Eat and Why." You can prepare dandelion roots in similar ways to parsnips or make a beverage from dandelion root by drying then grinding it and brewing as you would tea or coffee.
0 -
Have you al tried Miralx? Our dialysis patients on peritoneal dialysis had to keep Bowels clear or their Pd catheters wouldn't drain. Our docs would recommend the Miralax ( or generic) the same as the bowel prep for colonoscopy.......a dose in a cold glass of water hourly....usually after 4 doses even the most constipated would have a bm.
Now that I'm on fentanyl patch...it is constantly at war with the Herceptin diarrhea. It is so hard to find a happy medium. Constipation vs diarrhea
0 -
It is so hard to find a happy medium. Constipation vs diarrhea
Beatmon, you think they would counteract each other and we would be normal
That would be too easy. I am constipated for days on end, and then diarrhoea for a couple - that is my normal these days.I was given a recipe by the palliative care nurses that works a treat for constipation. I have posted it on another thread, but it was pointed out that some of the products, which are OTC here, are not available in America unfortunately.
0 -
Freya - would you mind re-posting here or sending a link to the thread? Thanks in advance.
0 -
Yes Freya, I would like to see it too! Thank you.
0 -
Hi Minus, actually it was on this thread (page 45), the mind just isn't what it used to be LOL. It turns out it was you that pointed out it wasn't possible to get all the products. For what it's worth I copied it below. The discussion we had about the products is on page 45.
1 tablespoon of Agarol
1 tablespoon of Lactulose
1 tablespoon of Normicol
Mix together in 1/2 (a half) a cup of warm milk and drink.
It has helped me immensely.
0 -
Freya - well that means my mind is gone too. Sigh. Sorry I didn't remember. Thanks for re-posting.
0 -
Okay, my fiends this will likely just gross you out. But you mentioned diarrhea. Diarrhea can get to the point that your poor anus is just burning like hell fire. Been there. You will never see this anywhere else . until it's plagiarized.
Poop as much as you can in the commode.. But if you are pooping so much that your anus is burning, Step into the shower, use the hand held shower unit. Spray it at your anus and poop in the shower as the poop is coming out. It will be relieving of that acidic pain. Then Clorox the shower.
Then protect the skin. Computer is Marjorly malfunctioning. . Sorry.
0 -
Sas, I think most of us are well past anything "grossing" us out unfortunately. I have a friend with IBS who has told me the shower thing before.
I'm still trying to get over bacterial pneumonia, even though I am sleeping 16hrs a day (sleep for a couple of hours, wake up for an hour type of thing) I am so tired. Found a new word that is so apt, I thought it kind of fitted on this thread.
Exhaustipated - when you are just too tired to give a shit!
0 -
I needed that chuckle today. Thanks.
0 -
Good one, Freyya,
0 -
mari, would you do me a favor and find two simple definitions of soluble and insoluble fiber and examples of each? I promised Readme I would do it. Computer is making me nuts because the b&n don't work. Using the screen keyboard is irritating beyond belief.
0 -
Soluble and Insoluble Fiber: What's the Difference?
By Amanda Gardner Share on FacebookShare on TwitterShare on PinterestSaveEmailPrintFiber does way more than just keep you regular. The rough stuff can also help lower cholesterol, keep your blood sugar stable, make it easier to lose weight,, and even help keep you alive longer.
To get all those benefits, there are two types of fiber that your body needs: soluble and insoluble. Both come from plants and are forms of carbohydrates. But unlike other carbs, fiber can't be broken down and absorbed by your digestive system. Instead, as it moves through your body it slows digestion and makes your stools softer and easier to pass.
Most foods contain both insoluble and soluble fiber but are usually richer in one type than the other. The easiest way to tell them apart: Soluble fiber absorbs water, turning into a gel-like mush (think of what happens when you add water to oatmeal) while insoluble fiber doesn't (think of what happens when you add water to celery).
Soluble Fiber
Foods rich in this type of fiber include oatmeal, nuts, beans, apples, and blueberries.
The health benefits include:
Heart protection: Inside your digestive system, soluble fiber attaches to cholesterol particles and takes them out of the body, helping to reduce overall cholesterol levels and the risk of heart disease. Oatmeal may offer the most heart protection.
Diabetes protection: Because soluble fiber isn't well absorbed, it doesn't contribute to the blood sugar spikes that can put you at risk for type 2 diabetes and heart disease. If you already have diabetes (either type 1 or type 2) soluble fiber can even help keep your condition under control.
slideshow
High-Fiber Super Foods
startWeight loss: Soluble fiber can also help you get to -- or stay at -- a healthy weight by keeping you feeling full without adding many calories to your diet.
Healthy bowel movements: Soluble fiber soaks up water as it passes through your system, which helps bulk up your stool and guard against constipation and diarrhea. In fact, most fiber supplements contain mostly soluble fiber.
Insoluble Fiber
This is found in the seeds and skins of fruit (so always eat your peels) as well as whole-wheat bread and brown rice.
The health benefits include:
Weight loss: Like soluble fiber, insoluble fiber can play a key role in controlling weight by staving off hunger pangs.
Digestive health: Eating lots of insoluble fiber also helps keeps you regular, and if you do get constipated, adding more of it to your diet can get things moving. Insoluble fiber can also improve bowel-related health problems, like constipation, hemorrhoids, and fecal incontinence (problems controlling your bowel movements.)
0 -
Thank you Mari
0 -
Anytime Sas. If your order a new keyboard, I'm going for an illuminated one next time
0 -
****************plus, type etc.
0 -
Here are several memes for exhaustiped. Thought you would like them. Sorry for the size but the downsizing isn't holding.
0 -
Whooopoophasdevelopedsomefuwordsyay!
0 -
ump
0 -
Just came across this thread re constipation. I had my first Prolia shot a few weeks ago and am experiencing this as a side effect, it is an issue I NEVER have trouble with so I am relating it to the shot. dsgirl, can you please share the recipe/proportions for this stewed fruit concoction so I can try it?? Thanks!
0 -
cbaird99. Sure.
I use 1/4 of box of golden raisins, 1 bag of prunes, 1 bag of Apricots and and bag of cranberries. The bagged dried fruits are the small size, around 8-12 oz I think.
I cover dried fruit with water. stew om low for 2-3 hrs, stir to mix fruit, cool, and store in refrigerator. I eat 2-3 tablespoons a day, and have been regular ever since. It can be boring to eat this every day, but I don't dare not to, lol.
Hope it helps you too, let me know.
dsgirl
PS: next time I purchase the bags I will make a note of the oz. per bag of each, I am due to get more this week.
0 -
I am suffering through constipation again after my second infusion of TC. About a week after my first infusion, it was so bad that when the Senokot took effect, I felt like I gave birth to a baby through my rectum, and then suffered with diarrhea for the next few days. AARGH!! I thought I could avoid it by starting Colace as soon as I had the next infusion, followed by one of the senna teas (called (Dieter's Tea), which helped a little bit but not enough. I think I'll try dsgirl's dried fruit recipe. Any other ideas for me? I heard people sing the praises of Miralax, but how is that different from Senokot? Will it also leave me with diarrhea? I appreciate any
0 -
Tiny Dancer, Miralax is polyethylene glycol. it is the same chemical that's in all the pre for colonoscopy. it's abbreviated PEG. It is widely used. Way back here ,I did a couple of posts on it.
What I don't like about it is that the warning says not to be used by people with a history of kidney disease. That tells me there is a potential for absorption. PEG shouldn't be circulating in the body. Have I used it since, I learned that? Yes. But just for the scope prep.
Peg Mirlax is highly recommended by the American Society of Gastroenterologists. The bigwig docs of the GI system that establish national guidelines for that specialty.
BUT when possible use a natural product like the recipes here. They have been around centuries.
Think of do a clean out the day before chemo or prolix, or surgery. That way you are entering the situation empty.
Consider reading from the beginning, so, as to not miss any pearls(ideas). The thread has gotten long now, so, it may take some time
0 -
Sas, I have been asking about polyethelene glycol. It's a filler in some of our Letrozole pills depending on the manufacturer. What to do?
For instance - Breck/Breckenridge and Accord.
0 -
mari, just as I said, shouldn't be used by those that have kidney problems. I'm attuned to that b/c my dad was a dialysis patient. His End Stage Renal Disease- ESRD was as a result of non compliance to blood pressure meds. He was opposed to conventional medicine. etc. etc.....I read labels as a result.
It surprised me how many OTC drugs had that warning.
The only way that warning can be made IS, it indicates absorption. i.e. through the GI tract or through the skin.
Next time at the store, read the labels of the deodorants. I didn't find a one that didn't have that warning. I rarely, have used deodorant since. Just normal washing daily. Hahahaha Used it for the sons wedding
How it's used in drugs, I'm ignorant at this point. Chit.
0 -
bump never know when pooping advice helps
0 -
Modern life is making Americans constipated: Western diets and desk jobs are slowing down everyone's bowel movements
- At least 16% of Americans - including a third of people over 60 - experience chronic constipation
- The number of people admitted to hospitals has more than doubled since 1997
- It can have major complications including anal fissures and hemorrhoids when not treated
- The huge uptick can be linked to the high-fat Western diet and lack of fiber
- It can also be linked to Americans' sedentary lifestyles and lack of exercise
By Abigail Miller For Dailymail.com
Published: 16:47 EDT, 22 August 2017 | Updated: 21:50 EDT, 22 August 2017
View
commentsThe American lifestyle is making more people constipated than ever.
For many the condition is just an aggravation, but to others it's daily agony that in some cases can be dangerous and deadly.
A recent survey conducted by the American Gastroenterological Association shows that 16 percent of Americans - including one third of people over 60 - experience chronic constipation.
Constipation is defined as an individual passing fewer than three stools a week and straining to have bowel movement to a point as though there is a noticeable blockage.
It can be considered chronic when individuals experience symptoms multiple times in a three month period.
A recent survey shows that 16 percent of Americans and one third of people over 60 experience chronic constipation, and that it can be linked directly to the American lifestyle and Western diet (stock image)
THE WESTERN DIET EXPLAINED
The Western diet is loosely defined as one full of fatty and sugary foods, such as burgers, fries and soda.
People often eat foods that are high in
- Saturated fats
- Red meats
- 'Empty' carbohydrates
- Junk Food
And low in
- Fresh fruits and vegetables
- Whole Grains
- Seafood
- Poultry
Health effects have been linked to things such as hypertension, heart disease, diabetes, obesity, colorectal cancer and dementia.
A study conducted at Harvard Medical School shows that the number of people being admitted to the hospital primarily for constipation has more than doubled since 1997.
In the US there are more than 700,000 emergency department trips every year due to the condition.
Dr David Dunkin, a pediatric gastroenterologist at Mount Sinai in New York, told Daily Mail Online that when chronic, constipation can have major complications including swollen veins and torn skin.
Swollen veins can often result in hemorrhoids in older adults that can cause discomfort and bleeding.
And when untreated he explained it can also cause an accumulation of hardened stool in the intestines, or a rectal prolapse, meaning that a bit of the intestine protrudes from the anus.
When that happens it often requires surgery.
Dr Dunkin also said that occasionally the accumulation of hardened stool can cause encopresis, which means that impaction is so severe it causes an overflow of leaking fecal matter. This happens most often in constipated children.
'And occasionally children are so constipated that they aren't eating enough food and so they aren't growing as well. It's not that common but it does happen and can be serious,' he said.
The huge uptick in the United States has resulted in billions of dollars spent by individuals both out of pocket and in taxes on a problem that can often be fixed by simple lifestyle adjustments.
0 -
No shit!
0 -
Good article Mari. I couldn't resist. this subject lends it's self to being loose at times.
0 -
Sas, you're on a roll!
0 -
Hehehehehehe
0 -
LOL!!!
0 -
Oh my goodness, I don't want to go to ER for that! Thanks for the laugh Sas, the more laughter the better!
0 -
0 -
Don't delay . It' get's hard after that
0 -
Serious, not on drugs, .poop humor is just so much fun.
0 -
Amusing
Five Constipated Men0 -
I don't get the one about Noah
0 -
Who knows... I missed a lot, but still found it funny
0 -
Just got my new Costco savings ads for the next month. They have a two pack of SQUATTY POTTY TOILET STOOLs on sale. Regular price $29.99. Sale price $19.99. Limit 10. Ten?? Who would need ten? There's even a picture of a guy in 'long johns' sitting on the toilet to show the position. Since this item has been discussed here before, I thought I'd add the description:
Get a better bathroom experience by comfortably putting yourself into a squatting position. Comfortable, ergononic, easy to use.
0 -
Hahhahahahahhhhhhhhhhhhhhhhaaaaaa
0 -
9 for Christmas gifts
0 -
OMD, that's soooooooooooooooo funny. It's like getting socks and underwear for Christmas, but funnier
0 -
Remember it's as pack of two. So if you buy 10 packages, you get 20 stools. Certainly enough for all your Christmas needs.
0 -
Yuk Yuk! Don't forget, one for each bathroom.
0 -
My husband made a stool (the word seems apt) for me to put my feet on in the toilet, it helps a lot. Now for some things to make you smile, and some to scare you.........
0 -
Freya, always nice to have someone handy
Funny memes0 -
Some GI docs prescribe Miralax+Gatorade (yellow, green or orange varieties) for colonoscopy prep. I used to be a regular gal—not the big D, but 3-5 well-formed movements a day after that first difficult one in the morning to get past the 'rhoid. Then my doc noted a gradual decline in my hemoglobin, from 12.5 for my pre-lumpectomy bloodwork in Sep.'15 to 11.5 a month and a half ago, when my ferritin had dipped to 12. So I was put on a tab a day of 27mg ferrous gluconate (the strongest they'll sell OTC, and some pharmacies will sell even that low-dose by Rx-only), supposedly to increase to two a day “as tolerated." Well, even one stops me up to the point where I have to take two Colace at bedtime and use a suppository and hot black coffee in the morning to combat the constipation, not always successfully. Then a week before my colonoscopy (an EGD had failed to reveal any source of an upper GI bleed) I had to d.c. the iron—I quickly went back to normal and lost a pound and a half! Then my colonoscopy prep took off another 3 lbs. Now I'm back on the stupid iron and my abdomen is distended again and 2 days post-procedure I finally passed a little “rock" (not black enough—so I'm on enough iron to cause side effects but not enough to be well-absorbed, besides following dietary restrictions & meal timing, plus taking chewable C).
The colonoscopy was also negative for any source of bleeding (just a small 'rhoid and a couple of mild diverticuli). GI doc said go back on the iron, drink Miralax and use a Prep H suppository if the 'rhoid bothers me. But I'm afraid that unless I drink enough water to feel bloated, that soluble fiber will sit there like a lump of silicone and not make it out. Found some Ideolaxyl (aloe/senna) tabs I got in Germany when during a river cruise I had such a bad temporary obstruction that I thought I was dying—the homeopathic pharmacist in Rothenburg suggested it. It worked then, but I'm not sure if it's safe to take if on letrozole. Have a workout in an hour, so I don't want a, uh, “breakthrough" in the gym, but maybe when I get home…
I take several probiotics: Perfect Biotics (regular and Extra Strains), Perfect Flora, and Vital Biotics. Until I started iron, they worked like a charm and kept my weight steady (or even helped me lose a little).
I can't even contemplate taking two iron tabs a day, what with the constipation from it and the GERD from the Vit C or OJ I have to take it with. But after my workout, I think I'll go buy a couple of Squatti Pottis.
0 -
Hi Chi, very nice to see you, but alas not for the problem you are dealing with. A true pain in the patuty. Your case has many interesting conundrums. I know from our previous contacts that you are a very good researcher. We are hunkering down for hurricane Irma, but perhaps I can come up with some ideas.
My first thought to check was what was the normal hemoglobin range for age. I found a nice page that had a chart with discussion on Hemaglobin.
http://www.medicinenet.com/hemoglobin/article.htm
Your Hemaglobin is 11.5 The reference states that 11.7-13.8 gm/dl for women after middle age.
Your Ferritin level is 12 with the normal range of 12-150 ng/dl for women. I decided to stick with medicine. net b/c it follows the same format for each discussion. This link is to medicine net's page on Ferritin.
http://www.medicinenet.com/ferritin_blood_test/article.htm
So, you are slightly below the bottom range for Hemaglobin and at the bottom normal for Ferritin. Your doc did the rule out work differential for anemia. Upper endoscopy and lower colonoscopy. Both were negative for bleeding. Generally, it's the usual work up and his treatment would seem right on mark.
I do have five thoughts.
First, is check in with the hematologist/ oncologist in your oncology practice. Many oncologists are also hematologist as blood changes are so intergrated with many cancers, or drugs used to treat cancers. So your oncologist may be hematologist and you don't even realize it. OR your onc may have been the one that discovered the low levels and sent you to the GI guy. What should be easy if your onc isn't a hematologist is getting an appointment with the onc/hematologist.
Secondly,the question for the onc/hematologist is, now that the GI tract has been ruled out as the source of your anemia, is there anything else that can be ruled out as a source. This is important for any patient, but for you particularly important b/c of the long history of constipation.
If the onc/hema doc, says no ask if there is a different way of managing your care b/c it's putting you at risk for diverticulitis b/c of the constipation. On the first page, I have a post about diverticulosis and diverticulitis, so I won't repeat the info here. I think it would be a fair question to ask to be followed with serial CBC and ferritin levels for say x amount of months. The x amount is arbitrary. Could be 3-6 months. In that time period abstain from Iron supplements and attempt to increase ferritin levels by diet.
The only page I looked at was Livestrong. Generally, I would look at several pages, but it's 12:30 am and in 24 hours Irma will literally be at my door. The point being is diet may be a winner for you. I learned quite a few things on this page i.e. the difference between vegetarian and non-vegetarian needs.
http://www.livestrong.com/article/82436-increase-ferritin/
Thirdly, you could study your drugs yourself by going to dailymed.nih.nlm.gov. Just b/c no one is seeing obvious problems with your drugs doesn't mean that YOU aren't experiencing something with the drugs. I have one friend on BCO where we did the drug search and two of her drugs had her symptom(s) and they were 1:1000. Medical folks study their drugs, but 1:1000 gets into the obsure range. I use her as an example, but over the years the number one thing I have done with folks is the drug check on daily med and YouScript.
Fourth, you could go to YouScript. It used to be owned by Genelex, but they spun it off to it's own entity. I haven't used it in awhile. YouScript is a drug checking site based on your genetics. But you can still use the drug checker function without the genetics. Of course, your checking won't be as accurate, but it will be closer than anything else on the market. The subscription at my last contact was 24$ yearly. I'm probably lapsed now, but if I'm not blown away by the hurricane, I have no problem renewing by subscription and then meeting you on the site under my user name and password. We enter your drugs and we can see what's up. Then we can play games by substituting drugs until better results of interactions play out. Done it oddles of time with folks. The realtime work with you on your computer and me on mine, with both of on the phone, can work some magic.
If you want to, you could pm me your list of drugs and If I'm bored and have electricity during the Blow. I could play with it.
Polypharmacy is a huge cause of problems for patients.
Fifth, you mentioned a worry about letrozole interacting with the aloe/________I can't see the drug now b/c of saving while writing the post. My suggestion on that is to contact the manufacture by the 800 number. All pharm companies have a help line. They have a help line for professional and another one for patients. You can have them even check all your drugs for interactions. BUT the best is YouScript.
Iron is a bugger of a drug.
Okay, that's all I have right now, if I think of something else I will post.
0 -
Thanks! I read your PM and will elaborate in a second answer. The constipation is no longer a problem (and it was one only for a day or two after colonoscopy)—it’s the GERD that’s driving me nuts now. Think I’d rather treat it and have mild anemia, because un-remedied GERD will cause a GI bleed and aggravate the anemia anyway.
But priority one is getting out of Irma’s way if you can—my cousin is a Daytona Beach cop and has to stick around as a first responder. I’ve got plenty of time to figure out what’s happening & why. You, OTOH, have a limited time window to prepare and evacuate to a safer location. I remember how long it took before my mom got power back after Wilma, so I can be very, very patient.
Stay safe!!!!
0 -
Bump
0 -
I havent read through the whole thread so forgive me if this has been said.(probably has). Magnesium citrate in capsules from Vitamin store does it for me. Found out because I had been taking it for low mag levels for years. Magnesium oxide also creates loose bowels.
0 -
Magnesium oxide doesn't do a darn thing for me
. 0 -
Bonus bebefit of CALM ( ionic magnesium citrate) powder: One morning in a fit of desperation caused by a horrible shin and foot cramp, I made a quick mix of this stuff with water and slathered it on the cramped leg and got INSTANT relief! I really mean instant. It blew me away. Not even a sore muscle the next day. Of course it was a disgusting dried up mess later but washed off easily. I called the company to express my thanks and amazement and they told me they had it in cream form for cramps and other aches and pains. I have been asking doctors about cramps for years and they just shrug their shoulders. I have tried magnesium supplements in pill form at bedtime to ward off cramps but it never worked.
0 -
As soon as I feel a cramp coming on I take a magnesium with a tall glass of water, and it stops pretty fast but your mixture sounds even better. All my doctors shrug too.
0 -
We use vinegar for cramps. Swallowing a tablespoon of vinegar or mustard can relieve cramps. Don't know how it works but it does! Not for everyone, of course.
0 -
Bump
0 -
And I'll bump this one too. GREAT information. So many women have posted their remedies that one is bound to work for new people.
0 -
I read this entire thread. The past few days pooping was literally worse than giving birth. The answer, for me, was Miralax. And lots and lots of water. I tried stool softeners, prunes, warm water with lemon... but Miralax did the trick. I also had a cup of coffee this morning even though doctor said no caffeine, and thatreally helped. I will drink extra water to make up for the coffee. Thanks for the awesome thread. I know to get ahead of it now.
0 -
rdee - Thanks for reading & for posting.
I have a friend who swears the best thing for her is a cup of coffee in the morning. If I eat a mostly green salad every single day, I'm OK. Don't get me wrong, I like salads but every day gets to be a bit much. When I was younger & before this became a major topic in my life, I never had to worry if I drank a gin & tonic every day. Something about the juniper berries I guess.
0 -
Hi MT
The roughage--fiber in the salad is good, but being creative on salads can get old. My Dad had a restaurant we could eat whatever we wanted. His rule was that we eat a salad a day and 12 oz. of Carrot juice with whatever he mixed in it, apple, cabbage, alphalfa, onion, celery. I HATED IT. Still have trouble eating carrots Hahaha. The oil in the salad dressing is also helpful. It keeps the gallbladder happily ejecting bile. Happy gallbladders are nice.
rdeesides. glad you found a routine that works for you. You might consider asking your doc why he said no caffeine. Good Luck
0 -
SAS - What a story about your Dad's carrot juice. I guess it's safe to say you don't "juice"? I like V8 - with or without Vodka - but I'm sure that doesn't count.
My Dad worked with canning companies during & after WWII, so we always had canned vegetables. He picked up cases of 'seconds' or 'dented' at the canning plants. Of course there was no such thing as frozen when I was young & we lived in a city so no fresh farm produce. Canned was the norm. This was way before the advent of farmer's markets. Anyway - there was nothing worse than slimy, canned asparagus. It took me years to try the fresh & of course it's delicious. Well there was one thing worse - slimy okra, which i still won't eat.
My son has pondered why I never served anything but boring Iceburg lettuce salads when he was growing up. Well again - that was the main if not the only lettuce in the store. Wrong - sometimes there was butter lettuce but I sure couldn't afford that treat.
0 -
MT, Dad had a thing of not using canned vegetables. I guess I just carried it on. BUT iceberg lettuce was a thing of the 60's and I suppose before and many years after. I forget what year they came out and said that iceberg lettuce had no nutritional value. I thought Poor Dad, He was trying to do the right thing. Thinking salad was good. Then when it came out that celery has no nutritional value. It was another bummer. But at least celery has and added value in cooking for flavor.
Actually, it was the reverse. I bought a juicer. I juiced for awhile, but it was too time consuming. I even bought the least time consuming juicer, yet, it was still to time consuming. Dad's problem was he mixed the carrot juice with everything else. UGH. Carrot juice freshly done by itself is wonderful. I can say that now Hahaha. But he was convinced to add everything in the world of produce to it. Juiced onion OMD.
I complain about carrots, but truth be told. If someone handed me a glass of straight carrot juice in the morning like my dad did on the way through the restaurant to the bus stop. I'd be happier than a duck in a pond. Again it was never just carrot juice. But I did convince him at times to do straight carrot
Two things----------dad would at times overdue his own intake of carrot juice. and his skin would get yellow. That's overdosing. We'd tell him Dad you have to back of some.
Our complexion(twin and I) was wonderful.
Another truth be told when I had to Cheer, I'd ask him to make some, except please, let it be just carrot. Great energy boost.
Another truth be told. I was a twin. My twin always followed the rules. Therefore, I broke all the rules. If I had to sit in front of the house a half hour, to come into the house after curfew I would. I never got grounded. EXCEPT for the time that Dad caught me pouring the Carrot juice down the drain. Ah such sweet memories ..........
0 -
I recently went to my survivor-ship meeting where I asked about this because it is such an ongoing issue. She said many patients report prune-lax works well. Active ingredients to me looked like Senna, but I bought some anyway and tried it, it really worked! I'm not sure why it worked differently, I had already been taking another senna product for a couple of days (this was after surgery so I was pretty backed up.) Morning after 2 Prunelax, relief.
0 -
Based on your reccomendation, my prune-lax is on the way. The reviews at amazon are amazing. Thanks meg
0 -
Amazon reviews on pooping Ahahahahahah,
Mari can you link the page it should be good for a few laughs
0 -
0
-
Oh Mari - I checked the link. Prunlax Jam? Jam for your toast? Interesting.
0 -
I was hoping for some punning like we do.
I am very happy we have another product. The more choices the better it is.
0 -
Here's a good review:
rsgood product easy to carry around last a long time
ByAmazon Customeron March 24, 2016
Size: 60 Count|Verified Purchase
Dose what it says but don't just go for the max amount cause that S×@t!! Will come out hot af uv been warned...don't forget to drink lots of water an give your self plenty of time to do ur business might need a good hour or so once it kicks in I also noticed moving around helps to
0 -
AMAZON CUSTOMER REVIEW:
My suggestions - Make sure you take them on a Friday night or any day where you don't have to go out the next [just so you don't get yourself into an embarrassing situation]0 -
It will be interesting to hear from BCO members that are blocked b/c of pain meds which is the number one reason folks end up here, to see if the getproduct or something close to eat.
While Miralax is a lot of folks dependable friend (drug) here. Prunes have been mentioned throughout, either alone or in combination with other fruits or senna
Thanks Mari for working on this.
0 -
I hadn't even seen the Amazon reviews for it... lol, love a good humorous Amazon review. I've continued to have issues since my surgery (its been a couple weeks) and still prunelax seems to be the only thing thats working. Jam??? Hmmm.
0 -
Bump
0 -
Hi ladies ... yes, I was "inactive" but think of you often. In Florida now and set to go home on Tuesday morning. S@#t .... just when I get my routine down and it will plug up again. Will take me a few weeks to get me going normal again. Ladies, hope all is well with you and life is good. Busy in Florida as we are thinking of buying a place. Have to sell Canada and move to a smaller property to be able to afford it. We are definitely not like some of the snowbirds that are here .... chachingchaching, etc. Anyways, popping in before I head north and just wanted to say "hi"!
0 -
JUDI JUDI JUDI. Hooray. So good to see you. I'm going to send you a PM so we loose touch again. Where were are you looking in Florida?
0 -
MT, I got your PM earlier and did respond. Funny, it was so long ago. We are looking in Bradenton, Florida but I'm being a stickler about it. DH wants to be in Riverstrand and I like Lakewood Ranch. Lakewood Ranch is an upcoming area and we can make some money. We will see who wins this one. He likes to golf and I try but I absolutely hate golfing with him. Sucks the life of the game out of me. K, I will wait for your PM.
0 -
OMG JUDI JUDI JUDI, (Cary Crant overotne) MT and I have so worried about you................Bummer Bradenton. 2 3/4-3 hours from me. But maybe we can meet. DS is in Tampa., but I don't go there often. I hate to travel...........But girl do not leave MT and I again like that we were so worried about you. God Bless that you are well. Also sending a pm
0 -
Sas-schatzi .... I needed just to be away from CANCER. So that's why I was MIA. Maybe a bit too long but very busy at home. We came down to Florida Nov. 12th and have been busy. Won't be be back until January/February next year. Everything in Florida is such a drive being away 2 to 3 hours. But I will definitely let you know my plans. I'm not giving my home phone number out as we have the very basic service now and we don't even answer it. But I will definitely keep both of you in my world. Will be checking threads more often. Good to hear from both of you and I love you both!
0 -
Judi just very glad to SEE you YAY. Over the years I have taken breaks. It's good for the whole being. Now I don't come every day, sometime it's every 3-4 days
0 -
Super Blue Blood Moon. The first in 150 years. This link has a fairly good explanation. Plus it has a chart where it can be seen in the different times.
0 -
Bump with a poem.
0 -
LOL for sure!!!
0 -
Well, that's joke stinks hahaha!
0 -
Bump!
0 -
HI. Looks like I'll be moving in here for a while. Mildly constipated, SEVERELY bloated after first Abraxane IV.
Oof.
>Z<
0 -
I feel your oof. Xeloda did that until I adjusted. OTC gas relief did wonders. I used it several times a day. Taste nasty. Good luck.
0 -
bump
0 -
Smooth Moves tea helped a lot and it's licorice so tastes good. Also hot baths. And now 5 years out, celery juice really helps!
0 -
Interesting - celery juice? Thanks for the reference.
0 -
Bumping
0 -
My doctor prescribed miralax once a day and senocot-s.
0 -
JoE - thanks for chiming in. This thread has so much valuable information it would be great to keep is going. Not to mention some very funny moments.
0 -
I'm glad I found this topic on here. I am grateful every day for my prune juice but am glad to find the other suggestions for what works, just in case. I have to add, after my surgery in July (on a Monday), I was actually kind of glad I couldn't "go" until Saturday because I couldn't have reached to wipe myself. Yep, there's that silver lining!!
0 -
Vermonster - I love your 'silver lining'.
I'm now more than 3 years post final treatments. It's interesting to me that I now consistently have very soft movements as my new normal. Prior to chemo - for more than 50 years I had solid & firm movements and only went every couple of days. A little harder product is so much easier to wipe & clean.
SAS - hope you're lurking. I think of you often.
0 -
Minus2, I don't think she realizes how much she is missed.
0 -
Bumping again since once again I read on these threads about constipation.
0 -
I am always concerned when I hear BC patients say they are using Miralax. Please do some googling before you decide if Miralax is your best choice. My MO recommended it for me and I refused to use it. I have close friends whose children's bodies were damaged beyond belief by Miralax, and it has taken years of vigilantly following protocols of healing measures to restore these children to health.
My surgeon and my PCP will not prescribe it, nor will my grandchildren's pedi.
Surgeon recommended Colace for an OTC option. I find magnesium very helpful, and also a few prunes soaked in water to cover overnight... eat the prunes and drink the water. Works.
0 -
My surgeons recommended Colace to start softening. If that wasn't enough (since pain meds often cause constipation) I was to take Senekot S - stool softener with a mild laxative.
0 -
Can't believe I'm posting now( a friend is dieing), but I agree on Miralax. And anyone reading back will pick up on the fact, I did try to stear folks away from it. EVEN though at one point it was the recommended treatment of the parent body of Gastroentrologist's had it as their primary recommendation.
Read the label. It says it shouldn't be used by anyone with kidney disease
Why is that important?
It's a supposedly an intra-gastrointestinal tract product. i.e. in the stomach, small intestine, colon. That's a closed system. BY saying that someone with kidney problems shouldn't use it ----it implies versus openly states that it can cross into the circulatory system and then is filtered by the kidney. Which by implication means, it is traveling throughout the body until filtered.
Traveling through the circulatory system, where else do these plastic molecules lodge.0 -
Can't believe I'm posting now, but I agree on Miralax. And anyone reading back will pick up on the fact, I did try to stear folks away from it. EVEN though at one point it was the recommended treatment of the parent body of Gastroentrologist's had it as their primary recommendation.
Read the label. It says it shouldn't be used by anyone with kidney disease
Why is that important?
It's a supposedly intra-gastrointestinal tract product. i.e. in the stomach, small intestine, colon. That's a closed system. BY saying that someone with kidney problems shouldn't use it ----it implies versus openly states that it can cross into the circulatory system
0 -
SAS - sorry about your friend. Keeping you in my thoughts.
I remember several discussions on this thread about poop stools to place in front of the toilet to keep your knees up & body in more of a squatting position. I was just looking through a catalog and there was the EZ GO. "allows muscles to relax...helps with constipation, hemorrhoids, IBS & bladder problems".
0 -
I just had my 4th chemo and this was the best one, in terms of constipation SEs. I did a "fasting mimicking" diet for 3 days prior to chemo, day of, and day after. This is a low cal diet of certain foods... low enough in cals and protein to give your body the same effect as a fast. You can look it up online, Dr Valter Longo at USC is the expert.
Essentially, when your GI track shuts down, there is not very much in there... so, while I was constipated for a few days, there was no discomfort or pain. Plus I did not take Zofran for the first time and was fine without it. A further benefit is that fasting primes healthy cells to be stronger and weakens cancer cells, as you head into the chemo.
On top of fasting mimicking, I take Magnesium citrate at bed time. For my first three chemos it was my worst SE and this time it was no biggie.
0 -
Bump
0 -
I am reporting back on constipation problem and "cure" that I started using years ago. It was the prune, apricot, cranberry and golden raisin "stew". I really got to the point where I dreaded having to eat it every day, but skipped rarely. I had a BM every morning so it does/did work. About 2 weeks ago I did not eat the "stew", but had a normal BM in the morning anyway. Same thing the next day and the next, so far for 2 weeks no "prune stew" but every morning a normal BM. I have no idea what happened, but am very happy about this new development. I did place the current container of prune stew in the freezer, just in case it is needed someday.
Is it just a habit thing about when one "goes?
dsgirl
0 -
Oh - I love your story. Congrats. How nice to get rid of the stew. It would be a treat to be "regular". I've never been able to pin down times. And I never used to be able to go in 'strange' places, like school or restaurants or motels. Since cancer, as long as I eat green salads several times a week I'm much more regular than I think is needed. But I know my process slows down if I eat bread or rolls.
I have a friend who has a cup of coffee every morning so she can "go" before she goes out. My Mother was insistent that you could train yourself to "go" every morning. A male neighbor heads to the bathroom after every meal before we start home from a restaurant. So maybe you can make it a habit.
0 -
magnesium citrate at night is a great way to have a morning bm
0 -
Minus Two,
Maybe your mother was right. It's my new habit.
I do also have a cup of coffee in the morning with breakfast, and that's my call for the bathroom.
dsgirl
0 -
Helllo old friends Bless you. Stews work, consistency works and Bowel training works.
First of all I must say, I had to be away. I lost 6 BCO sisters in a short period of time, I was grieving. It is hard coming back, b/c .santabarbar…HMmmmm we need to look into this further. What you are describing is a low residue diet pre and post. I don't have a problem with that at all ---solid erhhh not solid. It's the same thing you would do before a colonoscopy.Whoooo I should go off and find his site, but I will let you do that, please, please, bring his link here. then I'll take a look and comment-----sounds great, but wee need a look.
0 -
dsgirl You did two things, you used a combo of natural elements. Ah a better word food. Really nice elements in all the foods. You used it at essentially the same time every day per your post. Am I right? Then you stropped? But you continued with the same movement every day.
The bowel is trainable. Isn't that just a funny statement. But it is trainable. UNLESS there is something that interferes with how you have trained it. Basically drugs, can mess up the works, and foods, alcohol, caffeine, cigarettes.
What I hope is folks go back and read is how you did bowel training. It can be searched. and maybe info added to what they want to do. But I think your description should give others great hope that they can control the scenario0 -
The first thing my nurse navigator recommended was miralax once a day. It uses the water you drink to keep the gut hydrated. Great if you have opioid constipation. Senecot S softens stool. Both recommended by my onc. I was so ill for 5 months that I couldn't even eat enough to have a bowel movement with the meds that compounded the the problem
0 -
Sassy, yes and yes. Same time every day for a long time.
My bowels got used to the every morning routine and the prunes I had left over went into the freezer, just in case.
BTW: Welcome back
Dsgirl
0 -
SAS - So glad to see you back. And that you're basically OK. We all understand & hate grieving the losses of our friends. What you contribute is so valuable that you were sorely missed.
0 -
Sheesh a whole long involved answer ----into the nether world ugh!
MT HUgs glad to see you too.
dsgirlHugs to you too.
0 -
JoE, the long involved answer was for you. Maybe next trip
0 -
bumping for the great info
0 -
Recipe for constipation courtesy of my chemo nurse (always check with your doctors):
3/4 cup warm coffee, add spoon full of butter (stir to melt), add 1/3 cup prune juice. Drink andEnjoy!
I have all three but never thought to combine them. If I'm able to drink it without throwing up, I'll let you know. 😜
0 -
Melmax - LOL. I like them all separately, but... Waiting to see if you can gag it down. And ;how it works.
0 -
MinusTwo - tried coffee and prune juice minus the butter and it didn’t work for me. Will be brave and add the butter today and see what happens 😁
0 -
I had major constipation on chemo that defied all medical advice....only one thing actually helped: Smooth Move tea....available at most drug stores. Amazing stuff. The senna is combined with herbs that reduce intestinal irritation that senna can cause. It is not for daily use but if you are in a real jam...it works!
0 -
On another thread, HappyAnyway suggested Dr. Schulze's Intestinal Formula #1 capsules. I bought it on Amazon and have taken it for a couple of days. Seems to work well, along with the whole other routine I have developed. Miralax in my morning coffee, strong probiotic in the morning, Colace before bed. I'm hoping I can leave off the Miralax soon if the Dr. Schulze's continues to help.
0 -
I'm 5 years down the road past chemo, but noticed something interesting the last few months. Prior to cancer treatments, I've always been on the 'slow' side - like one BM every couple of days was normal for me. And the 'product' was large & hard. Then chemo brought constant Big D for two+ years. After that I started taking magnesium for calf & foot cramps - 250 mg per day. This spring I stopped all supplements for a month as a test and didn't resume the mag. Hmmm - back to my old normal, but it still didn't connect. When the leg cramps started again this summer I added magnesium again and voila. BMs are daily and smushy (TMI???) I plan to discuss with my PCP next month.
0 -
update on the butter coffee and prune juice- it worked like a charm. I would rather take a pill because although it didn’t taste bad, I still had a hard time drinking it knowing what was in it
0 -
Just wondered over here again, as its6time to break out the Smooth Move again! I just described the butter coffee prune juice recipe to my sister and she looked at me in completely disgust😁 I tried to tell her that when something really works, you tend to stick with it!
0 -
This started up again when I switched to Arimidex less than 2 weeks ago. ..hope it goes away
0 -
I'm on 30mg morphine slow release as well as other meds plus oral. Morphine every. Few hours, before my diagnosis I sometimes got constipation but didn't make.me uncomfortable does now.
I think last week it was, I had gone out with my friend for a meal and drink. I came back and the stomach pains was rediclous it was there but couldn't pass so I had one laxido and one senna which both prescribed for and went to bed passed out and had bowl movement at half. One that morning the relaif was amazing
The next morning after discussion witb my mum and dad I'm going to have laxido a day I'm. Prescribed 3 a day of needed.. But I'm. Going to have one a day regardless of been or not and drink plenty of water. After the pain I was in last week and has been time before I'm not. Putting. Myself through that again..
0 -
Daylight - Yup - pain meds will do it every time. When you get a chance, if you'll read through this thread you'll see lots of ideas for daily additions to your diet that will make all the difference. Good luck
0 -
Bumping for Pesky
0 -
Just wanted to say how much I miss SAS. Her knowledge of this subject and humorous cartoons made my journey much easier.
0 -
bumping to make active for those reading the new "poop" thread
0 -
Magnesium citrate at night 2-3 capsules of 400-500 mg... agreeing with above... it works very well.
ALSO fasting before chemo really reduced that horrid fealing of a cancelled digestive tract full of food. I ate very spearingly (Fasting mimicking) beginning 2 days before chemo day and lasting 2 days after. That plus magnesium took care of my constipation.
0 -
I too ate sparingly during chemo, but mostly because everything tasted off. On my way to the infusion center in the early mornings I did stop and pick up a breakfast burrito - potato/egg/cheese. Those were a real treat. And for dinner the night after infusion I usually had a large french fries with lots of salt. Another unusual meal for me since I rarely eat fried foods.
I did have constipation off & on during treatment - mostly after surgeries or with pain meds. I took Senecot-S, a stool softener + laxative. I still take 250 mg of Magnesium every day. Started it for leg cramps. It is working for that but also keeps me regular.
During chemo my problem was the opposite. I actually lost 60 lbs with the big D - only 10 lbs of which might have been a good thing.
0 -
bumping for those in need
Weird story. I've been taking 250 mg magnesium for several years and it really seems to keep me regular. Last time I had a problem finding it, but finally spotted a bottle of 200 mg - same mfg. Well I got ready to open it last week and was amazed to find that it's "Vegan magnesuim". It's capsules rather than tablets, and recommended is 2/day instead of one. Guess I'm showing my ignorance, but who knew there was such a thing.
After a week I have to say it's not working nearly as well either to keep my bowels moving freely OR to ward off the leg cramps. Both are magnesium oxide but the Vegan is magnesium biglyscinate chelate buffered. Guess I'll add prune juice for awhile since I'm not ready to brave the stores yet.
0 -
bumping for Mel who is dealing with opioid constipation. Been there
There are so many good ideas and solutions here - in addition to some funny jokes.
0 -
Bumping for those suffering from constipation
0 -
I have found that taking 400mg of Magnesium. It is very helpful.!!! I take it at night and it also helps me sleep. I wish my Doctor or nurses would have told me that my libido would not be coming back. Not only does it hurt but with the pituitary blocked and the adrenal glands. I notice I'm having lots of thyroid issues. It's up and down. I'm in a new marriage. My husband has lost 2 wives to ovarian cancer. I feel so guilty not being able to find any comfort in sex. I don't even think about it, It is totally opposite of who I have always been and enjoyed. It's making my marriage tense. Went through chemo 2013/2014 with her/2 + and ER+. I am so sad that I have lost a desire to be intimate and really don't like to even hold hands. I hate the way my breast look and have had a reduction because I had a lumpectomy. I wanna feel it when or if It comes back. I highly recommend not having any female parts. Ovaries, fallopian tubes. Uterus etc. It loves the female body and. it seeks out those places to come back to and harm. I had everything taken out 15 years before my diagnosis. What is the answer to this dilemma? Why is no one talking about it? What are my options other than position and lubrication? Those have nothing to do with my emotions. If I would have known this would be the outcome I would have stayed single. It's not fair to my husband. He's since had a stroke and that also complicates everything. I miss me. Does anyone else have thyroid issues once the pituitary loses hormones? It's just weird and crazy. If you take the drugs to eliminate estrogen it shouldn't come as a surprise...But it's a huge surprise. At the very least the could have told me that this is a common side effect, Feeling defeated for sure... Ittlbok.....
0 -
400 millsgrams of Magnesium. Everyday... I take it at night. It also helps me sleep. It takes a few days to work, but I take it every day and it works very well...400 is the only one that works for me. 500 doesn't do it for me, I buy it at CVS and have been using it for quite sometime. I also take it in the morning with all my meds. wither way works wonders...
0 -
itti - I take one 250mg magnesium every day for leg cramps and it keeps me regular. If I double that to 500, my bowels are too loose.
Sorry about the sex problems. There are several threads on BCO about sexual problems as side effects - like "I want my mojo back". There are several discussions about lubrication & painful intercourse. Those threads could probably relate better to the issues.
Edited to add - here's the link for the 'sex & relationship matters' forum
https://community.breastcancer.org/forum/150
0 -
Looking for advice...this is a shitty situation 😉
I had a bmx last Friday. I’ve been on a high protein diet before, and carb loaded prior to surgery. I had a great bm morning of surgery... I was in the hospital overnight, and because of some nausea did not have a meal for 48 hours. (I ate Thursday night before surgery, and then Saturday night when I got home, with just some broth and fruit in the hospital).
I’ve been taking Tylenol and oxy, and 3 colace per day since I’ve been home. They had me taking colace at the hospital too. My appetite has been getting better, but I’m still only eating small meals, with fruits and or veggies at each meal. I’ve been drinking tons of water... I also had probably 3 large bags of fluids in hospital.
I’ve been at home 4 days. And I haven’t had the urge to go.......shitty situation. I don’t want to get plugged up. (I had some constipation issues during chemo, and it might break me now after surgery) Should I be concerned yet? Is it still too soon for things to get back to working? Or should I start taking something else along with the 3 colace daily?
When I was constipated during chemo, I had the urge to go, it was just hard (in more ways than one) But I haven’t even had the urge...yet...Will I need to take something to get the urge?
0 -
mtspace - two thoughts: Nothing in - nothing out. But everyone's "normal" is different. Pre-cancer, my normal for 40 years was one BM every 3-4 days.
If you are on pain pills, those will definitely make you constipated. Are you talking the collace that is just a stool softener? Or are you taking one that includes a stool softener AND a laxative - like "Senekot S"? I don't think you'd need 3 of those. You might check with your doc after you read some of the links in the header about "normal" and questions to ask.
There are some great "recipes" and tips in this thread. Some favor prunes, others are more inventive. Good luck 'going' and let us know so we can cheer.
0 -
I am taking 3-colace per day that is just a stool softener. I did purchase some Mira lax to have on hand...but haven't used any. My “normal" isn't daily either...and during chemo I would go a week, then take one colace and have a bm. I'm still drinking tons of water, and haven't had the urge...yet. Maybe I'll have some prunes and see if that gets something going....
edit:We’ve had liftoff. Snacked on a prune this afternoon because I figured it couldn’t hurt, and a friend brought over some Modest Mix “Juicy Ass” tea. (I could never find smooth move tea in town). Had a cup of the tea after dinner and voila! It was time 😆. P.s. The tea was really tasty
0 -
BUmping to the active list for new questions
0 -
This is for some who may have severe constipation problems...Basically 6/1/2017 I had partial mastectomy for ILC Stage 11A, Grade 2. Doing workup for this surgery my doctors found a GIST tumor in my stomach! GIST tumors can be cancer too so they needed to biopsy it or remove it. So I asked if both could be removed same time so I didn't need 2 different surgeries. They agreed. My oncologist in AK screwed up...I asked for ONCO test and she never sent tissue in. After a month I insisted she send tissue which she did..but she didn't expect my results to be high from my tumor stats. I had radiation. Then 2 months later my ONCO came back 27!! My onco was shocked and said I should have chemo but it was already 2 months out. So I went out of state to Virginia Mason Breast Cancer Clinic in Seattle WA and got a 2nd opinion. My new Oncologist ran some stats and found chemo vs an aromatase inhibitor for my age and tumor stats...came out with the same results. I've stayed with this oncologist. So instead of doing chemo we decided I'd begin Femara right away. It made me so constipated and I threw up weekly! I stayed on it 6 months and had lost so much weight she put me on Aromasin which I tolerated well. But at the same time I was experiencing constipation on/off from this partial gastrectomy for my GIST tumor. I've tolerated Aromasin really well now for 3 years, except for some reason I've increased with constipation n/v despite using miralax, 250mg Colase daily and Sennakot every day and an occassional fleets enema. I eat plant based. I can now only go poo with a Fleets enema - 3 years post op and 3 years on Aromasin. I've had many days/nights throwing up with basket in front while sitting on toilet and being so constipated I've cried.
I've tried psyllium, flax, lots of fiber, fresh coconut, lots water, prunes, senna, miralax, colase, and more...nothing worked but Fleets enema and I can't live like this. So I contacted a Functional Medicine MD a few months ago!! He started me on supplements to calm my stomach and gut which were so inflammed (found on EGD and colonoscopy Follow-up after partial gastrectomy). The supplements helped me stop n/v!! Then he put me on Vit C 1000 daily and Magnesium 950mg daily to help my constipation,with no effect...then he upped my dosing of Vit C to 1000mg twice day and 1500 mg Magnesium Citrate daily. Finally with the upped Vit C and Magnesium the last 2 weeks, finally had a normal poo. Hope this continues. Rather worried about this high dose of Magnesium Citrate but my Dr assures me up to 2000mg daily is ok to do. I am still doing plant based high fiber diet, My Functional Medicine Dr had me stop all sugars except for coconut sugar and maple sugar and honey. I think the combo of the Aromasin and my partial gastrectomy (for GIST tumor) just did my gut in. My GI doc had nothing to offer and didn't think the surgery had anything to do with it. I'm so thankful for my Functional Medicine MD!! He checks all supplements he adds to my diet with the medications I am on for interactions. My breast CA is still in remission. About 3 years ago I began using the squatty potty and LORD it is such a helper. But it didn't even help once I had the partial gastrectomy. I hope everyone else with these problems can gleen some helpful info. I continue on Aromasin and will continue the high dosing of Vit C and Magnesium for now and then eventually ween with the help of my Functional Medicine Dr. Good luck to us all.
0 -
AK - thanks for sharing your story. Glad that you found something that works - large dose of Mag. I didn't have such serious 'back ups', but that worked for me too.
Interesting - I'm mostly vegetarian too. If I eat two slices of bread (any kind), I gain two pound - but it's also enough bulk that I have happy poops.
0 -
bumping again.
0 -
I am just now joining this thread. This is a problem I have never in my life had and it is quite frustrating. Many years ago I had my gallbladder removed. So my issue has been the exact opposite of constipation. This is....well.....ugh....I am at a loss. A daily prune has worked for months but doesn't seem to be enough. I added a prune. Still not enough. Time to try other things.
Treatment for breast cancer is the gift that keeps on giving isn't it?
0 -
cm - great to see you. Hope you find something that works in the previous pages. Lots of "home remedies" - and some funny jokes.
I take 250 mg of magnesium a day, mostly for leg cramps but it seems to help keep me 'regular'. I recently switched from Magnesium Oxide to Magnesium Citrate since it's supposed to be absorbed more easily. I usually do OK if I eat a salad at least every other day. But I expect I'll always have to watch it.
0 -
MinusTwo... Thank you. I may try the magnesium (i think it helps with sleep too) once I get closer to finishing the bottle of miralax. I haven't been able to eat salad since I had radiation. I was eating a giant salad every day when I was undergoing radiation. Well radiation did a number on what tasted good and what didn't (even though it was only to my breast and lymph nodes). Even the thought of a salad turns my stomach now. I struggle to eat even most raw veggies. In order to get veggies now I make veggie soup and eat it every day. Hopefully one day I will be able to eat at least raw veggies, if not salad.
The miralax and smooth move tea worked initially but I am not convinced I am in the clear. I didn't take miralax today, but did drink the smooth move tea. I should have taken miralax too (i will tomorrow). I am also going to increase the number of prunes I eat.
0 -
Good luck. Let us know if it works.
0 -
MinusTwo..thanks. This journey isn't over yet. You'd think being on 1500mg magnesium citrate daily and i'd be regular. I've not had to use a fleets enema in a week, YEAH! But still not yet having normal poo...moose pellets and hard or lightly loose. Can't find normal yet. I've been told I need to eat daily salads...That seems to help when I have salad material....just normal veggies don't do it. I'm still taking 250mg colase daily and 50mg Sennekot daily!! Sheeez.This aromasin is rough stuff but better than Femara for me. No more N/V. so that is good. I'm going to add the Smooth Move tea...I've been downing a cup of prunes every couple days.
0 -
AK - let us know. I think I read the preferred method is stewed prunes, but that was too many memories of my canned vegetables from my childhood. So I just popped a couple dried prunes every day.
Glad to see this thread active again. There are some great tips.
0 -
I am now 6 weeks out from my last Kadcyla, started with the HORRIBLE constipation (which lead to a fissure and terrible hemorrhoids as well) during TCHP. Of course most folks getting perjata get horrible diarrhea, but I had to be different. The constipation has continued. I use loads of colace and mag citrate and dulcolax daily, and miralax mostly only on weekends, but sometimes multiple times a day. I eat a generally high-fiber vegetarian diet, lots of homemade yoghurt (no sugar) and kefir. Drinking prune juice and eating dried prunes and apricots.... and still need glycerin suppositories. Even those sometimes don't work! This week had two days doubled up in pain with bloating. At what point do we say this is not just a side-effect, and sign up for a colonoscopy? I am not even sure if I could get myself cleaned out enough for one!
0 -
I tend toward the constipation side of any meds. It’s miserable. I had to switch from zofran to compezine that I take every week as premeds before my infusion. Ive used most of the OTC meds and agree that enemas and suppositories are not a long term solution
I didn’t know I could take two of the senna every night. That’s made a difference plus the magnesium. I also eat a couple of prunes and a handful of almonds as my nighttime routine. This seems to keep me regularish.
Otherwise I’ll add baked beans, broccoli, bran cereal or more prunes. They make a difference. My intestines after chemo don't seem to move. There is a senna with a stimulant.
I have a gf that takes 4 colace and 10 prunes a day.
As a side note. You can swap a cup of soaked bran flakes for a cup of flour when baking. I make this swap when making banana muffins.
And as always drink, drink, drink. I find it harder to drink a lot in the winter.
0 -
Zills & Yeslama: Thanks for your thoughtful posts. I too find it hard to drink water - but for me it doesn't depend on the season. I just don't like water. Sigh.
As I said earlier this month "I recently switched from Magnesium Oxide to Magnesium Citrate". My immediate reaction was that I had less constipation with the Oxide - but now 2 weeks in, I can't make that definitive statement. Jury still out.
0 -
Well poop. Lost my post twice. My MO recommended a probiotic. I read about one and found it on Amazon. It swung me the other direction. Back door trots for a few days before my infusion.
https://www.amazon.com/Day-Supply-Probiotic-Prebiotic-Effective/dp/B00N1G17GG
0 -
Zillsnot4me...Did you dr give you any guidelines on which probiotic was better/what to look for in one? Did the one you linked keep giving you "too good results" or did things stabilize?
1 -
she said any OTC would work. I picked that one because of the reviews. My system is so wonky. The trots weren’t all the time but it was mushy almost all the time.
0 -
Zillsnot4me..Thank you!
0 -
Stumbled on this thread. I have been using a product called SHINYALab, Intestinal Youth, recommended by another Piqray taker. It has botanical ingredients, probiotics and prebiotics. Bought it on Amazon, it has been really great in keeping my gut stable.
Best
Stacey
0 -
Thanks for the recommend Stacey. Always good to hear about things that are working.
0 -
OMG! I found something that works! I’ve had a bag of chia seeds in my cabinet for awhile. I didn’t know what to do with them. I made a milkshake the other night and added them. I prefer them crunchy. They remind me of strawberry seeds. I also added a scoop of protein. I feel so normal. No cramping. No wishing for poop. No in/out/in/out etc of the bathroom.Just normal.
0 -
ZillsMeNot - thanks for the report. I'm going to add Chia to my arsenal.
0 -
minustwo, Hey old friend. Popped into retrieve Egads007 post on Keto. Hope all is well with you.
I can't remember if I popped in to post on a product called C l e a r R e a r. It's a bidet you put on your toilet. I purposefully did the spacing so not to draw outsiders. There are likely other products. Saved me. I had a vulva condition caused by radioactive iodine for my thyroid cancer. It was horrible. Bad enough I had to have surgery. A couple of months post op, I found this product. Heaven hahaha.
Anyone wandering by these 50 some pages have alot of info on all things pooping and lots of funny stuff too!0 -
The down and dirty about a bidet on the toilet. You always feel clean. I would have loved this in the period years. Great for after sex or to freshen up pre-sex. Yup, still bumping the uglies as FuzzyLemon used to say. And if you aim just right it's like a mini fleets. Great for when your plugged, it can uncork things.
0 -
Hey SAS - soooooo good to "see" you. I've missed you in all the reconstruction of this site. Thanks for the bidet info. I'm going to look it it up. Hope all is well with you.
0 -
MT YaY, Glad too hear you!. I know change isn't easy, but my goodness. I can't retrieve anything.(most). Was stuff wiped? Give me details and scuttle butt(HAHA)
0 -
I haven't kept up with the scuttle butt (pun intended) - but many of the people I enjoyed interacting with never came back after the huge, long upgrade mess. And those that did have certainly changed their habits. For example - several times a week I would read all the posts by "newbies" and try to interact or point them in the right direction. Sadly I no longer do that. Not that I'm any great expert, but the feeling of the site has changed. I have two or three threads I follow, but they are mostly social threads.
Living through the summer in Houston is my main challenge. It's been over 100 for several weeks now, with no change in sight for the near future. And no rain - only hot winds. And because it's Houston, the lows at night are mid 80s - which is actually beginning to feel cool (sweater weather at 84??)
But pertinent to this thread - I have been keeping a 'poop diary' for some time now trying to regulate my emissions. Sadly not much luck. If I take two magnesium pills, I end up with loose stool and squirts & dribbles. If I take only one, the production is hard and delayed by several days. New trial this week will be to switch from 100 mg COQ10 to 200 mg. I quit the 200 mg that my doc recommended last year because I thought it was causing the BIG D. Maybe it wasn't that?? Always something new to try.
Hope you are well.
0 -
MT frankly, I'm bonkers happy that we live. As I wandered trying to find things, missed names, missed finding things. Phew! Sadly, climate change is a manipulation, but not to be discussed here.
The issue is all chemicals. The body perfectly wonderful in design is messed up either by us or by our docs, or outside those two i.e., everything that we take in our surrounds us. We are amazing folks to survive those three!
I'm sure some will scream.
Oh well.
I had a thread about the microbiome that I studied in 2015 here with many posts with links. It appears to have been wiped. It was a great basis for understanding the microbiome. The microbiome of the gut is the basis of health. Bold. Striking. Big Deal.
The problem is everything we take in and our genetics define outcome (Hahahah). On a poop thread, it's all comical.
Recently came across this article, when in search of Prilosec and chronic liver failure. What the article doesn't state is when a new study is done to establish a new relationship between a drug or drugs, the "Novel" new drug is always the Test drug. Because the research was based on that drug. SOOoo, the conclusions of the study can have application, questions, concerns about any other drug in that new class of drugs.
This study review shows that the microbiome altered by a Proton Pump Blocker the novel (new) drug Prilosec, alters the gut microbiome by reducing acid.
WHEN the microbiome of the intestinal tract is altered, it changes the whole of everything.
Care and tendering of the garden, meets care and tendering of the gut.
In the 70's we couldn't talk about probiotics, even though it was in our textbooks. Then as time advanced it became more main stream.
Whats important about this article based on astudy is that the relationship of a widely accepted drug and drug class for acid reflux. WELL yay it controls acid, but changes the Flora of the gut. That change in gut flora can lead to leaky gut. Leaky Gut can lead to micro endotoxins circulating in the blood stream. Those damn micro toxins attach wherever. Over time they cause disease. It's a BITCH.
I only pulled this article in a search recently b/c of my twin. It sucks, she passed. She lost her liver about 11 years ago. But there was this rare occurrence that some cells were still there and regenerated. She lived till now. But the question for me is we are twins? What is the difference between us.
Why am I still here. I drank. No clue how much my story is related to hers. But a big believer that you put two or more drugs together they can create havoc. When she was in Hospice we went through he drug stash. You know the bag or box that have drugs that have been discarded, but you may need them in the future. Besiedes you paid for them.
Hence the Prilosec question. After reading this I wrote DeSantis and Lapado as I am in Florida. I asked why isn't this a public health issue initiative.
Issue: Does the public know that taking drugs that alter gastric acids can alter the intestinal microbiome which can lead to many diseases? That this alteration can be affected by alcohol? TOO THE NEGATIVE
It's kind of a duh question that explodes in a massive explosion of WTF. How many people do you know that have alcohol and take a pill to recover from the acid?
0 -
MT there are microbacteria that are important to the health of the colon. We can take pills that support their growth. Yes, we can. How? So much info on the web. I have not found a comfortable solid approach. Recently b/c of review, I thought Kefir was an answer. BUT it tastes so awful. Reason for Kefir is its fresh vs pills. Pills may have not be stored properly. I know there is yogurt , but Kefir has a better micro profile.
YAY MT0 -
MT - whew. You are so knowledgeable. Thanks for all the info. Interesting about the twin question. Agree about the Kefir. I've found that gin keeps me fairly regular. Must be the quinine.
Did you ask the mods what happened to the microbiome thread? Frankly I haven't really figured out how to contact the MODS anymore and get a response on a thread.
0 -
Hi ladies!
@sas-schatzi, would this be the discussion you are referring to?: Breast Microbiome Different in Women With Breast Cancer. We've found it using the search on the discussion forums.
@minustwo, mentioning other community members or us, @moderators, is a great way to ask others to respond to a post. To mention another user, you simply add the @ symbol followed by their username. After typing the @ symbol and the first letter of a username, a list of users displays, and you can choose from there or continue to type. Once you have chosen the user you would like to mention, simply click Enter and continue your post. Depending on their notification preferences, members who are mentioned receive a notification.
Hope this help!The Mods
0 -
Thanks Mods. Is there no longer a 'glitch' thread or a 'question' thread that goes directly to you? If there is, will you please send the link? As you may have guessed, I don't do Facebook or Twitter or any other social media and am resistant to new things.
0 -
@minustwo, the "glitches thread" is no longer active. You can contact us directly by sending a private message (in our signature, you will find a direct link) or by sending an email to community@breastcancer.org. In any case, if you encounter a problem, there are several ways to report it. Here are some examples with the links:
- Having a technical issue? Report a problem.
- Have an idea or constructive feedback? Share with us.
- Reporting Issues
- Learn how to send a private message to the moderators.
Hope this helps!
The Mods
0 -
Mods thanks for the welcomes. Where is my Pain and other things thread? The other missing thread is something like —-Can't remember! $@#$%&. Poop, page here is appropriate for this comment hahaha. But it had a huge amount of info, that the curious who read the links, it was a good thing, OMG. Hells bells, Yanki S. Article, huge, to breast cancer. The history of the last 25 years of the explosion of knowledge about the microbiome. The name of the thread had to do with weight gain pre cancer. But I know ya'll can pull stuff from the computer.
Seriously, not talking shit (remember where we are) Omg I tried to make a joke!!~!. I would like to have access to the thread. That whole thread was a QUESTION, that was followed by studying the microbiome and PAH (polycyclic aromatic hydrocarbons), and other stuff0 -
@sas-schatzi let us dig a bit! Is the pain thread in THIS forum?
0 -
Mods Thanks for the response :) The thread was kind of like the Lucy thing "The nurse is in". Then there is the thread about the Cytochrome 450 system. Have a nice day :)
0 -
0
-
MT, you have always been so kind. What can I say we have been the stalwarts for poop. There are some seriously funny pages here. I swear some of our "lines" have been used for national Toilet paper ads i.e. "Enjoy the Go".
I remember when someone said that the bowel couldn't become _________(permanently affected by Senna or something such) It's back there somewhere. I spent 3 sundays reading the list of pub med articles about senna and poop, after reading about 60, I was done. There were many more. It's a serious subject, butt too much reading about poop just gets odorous after awhile.0 -
Omg sputtering blow out here, this is some of he most unfettered discussion of poop anywhere. Serious;y, go back to the beginning. Ideas on how to make it all come out well. About page 12 or so I did a survey. Steeped prunes and apricots were the best. Striking thought nutraceutical v pharmaceutical. Recently I wrote about the use of a bidet. All clear Rear . Yeah, if yo aim right it can clear the block at the opening. I know impolite
1 -
SAS - so glad to see you posting.
I now have to eat at least one sun dried prune every day. They're not my favorite, but I've been forcing myself for the last couple of months. A back up is really not worth it.
0 -
Okay, need to admit, I won't go anywhere outside my sphere, b/c of lack of a clean toilet/bidet. If you are OCD, a Bidet certainly bleeds into your brain. I know odd statement. That was the thought of the moment. Think of it as a shower ten twelve times a day. It's great pre- sex, post -sex, post urine, post poop. ALWAYS clean. The idea of using it when menstruating OMG….
MT :) :)0
https://www.youtube.com/watch?v=X276jp-vvRY
