Life on aromasin
Comments
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jennie the hot flushes are worse at the beginning, try taking pill with food or at night, avoid alcohol and high sugar foods, and drink lots of water, these all help sometimes, alcohol definitely makes them worse, hope this helps
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Hi kirstensmum. I get a hot flash occasionally on aromasin, but not like you are describing here! I know there is some type of drug they give you with it to minimize this but hell if I can remember what it is. Maybe evista? (I blame it on the aromasin brain fog that I can't remember stuff lately...lol) I know there is something they can prescribe for you is what the jist of this post is. Best to you and I am also sorry about your mets diagnosis. Hugs and cool breezes to you!
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jennie these seem to be different to normal hot flushes, can you go back to your doctor about them?
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Kirstenmom Hi, U'r sound brutal--I agree about calling the Dr. and u never know what these little tiny evil pills can do. And I'm sorry about the mets--Hope this all works for u.
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i was at Onc today, talked about Aromasin, he said 80% women get stiff joints, exercise is best thing along with calcium and vit D. Tiredness is normal, and bone loss so inevitable they dont do density scans ............
I asked about my recurrence risk - 50 to 60% on other side and local recurrence......
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Hi everyone. Thanks for replying. I think I will ask the Dr as I am not sure I can put up with this side effect, I see him early June. I am still coming to terms with the stage 4 diagnosis and would like to thank you for your kind thoughts.
Lilly, I don't drink as I have a severe fatty liver thanks to the tamoxifen but I will try taking the pill at night.
Take care everyone
Jennie
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ohhhh the joys of the SE's of aromasin.. not liking this one at all!! Has anyone had nausea from this drug?
Thanks Ladies!!
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I've not had nausea from aromasin, but from the OTC NASAIDs I was using to manage the aches and pains. Aleve was much worse then chemo nausea.
I"ve switch to the home remedy of 9 golden raisins soaked in gin. Amazingly it works. Thank you Ruth!
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I get nausea from aromasin if I don't eat something. I take it in the morning and then have my oatmeal when I get to work and it is fine, but if I get busy and don't eat the oatmeal, you can bet that I will be queasy. Try eating something substantial. It works! I tried eating one piece of toast but that was not enough to calm the tummy. The nice bowl of steel cut oats works every time.
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do not get nausea although I do make sure to eat before the dang pill
today I am heading to the foot doc for a stress fracture. bones were fine when I started the dang pill but betting the cause of the little breaks in my feet are due to one loss
dang it all
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Proud I bet it's from this evil pill--I started out with actually strong bones in this crap, now they're now all messed up being very breakable and degenerating discs and spine plus other bone problems all within some months of this pill. I t just so much out of us (well most of us) it's hard to feel good, even when u go to PT after u feel like chit--the only thing I can do comfortably is in the water, altho I feel it after but at least I move.
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Camille, yeah I agree. I did work out with trainers these past 5 years and switched my gym time to include more weight bearing shit....ut when the back or foot hurts, that is on the back burner
will be interested in if he has any thoughts though..have to ask!
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yes,I eat a big breakfast, and then take the pill!!
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well foot man says foot now broken but recommends Tums for the best calcium absorbtion
hmmm think I will chew them from now on~~
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Proudtospin - my MO recommends Tums as well. So I chose those and/or Fiber Choice with calcium and vitamin D - helps counteract some of the constipation from my drugs and they taste good too!
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Bayou, well cant hurt and may help. Foot surgeon not the norm person to ask about all this stuff but hey, he is a doc and gets it about osteoporosis so, tums will e added~~
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U'r foot is actually broken. Oh what did he do, like what are u wearing cuz everything is so different. I hope u'r not in a lot of pain. And I have heard Tums is good for calcium, but now I take nexium so I haven't been taking much for a while.
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To me, Tums is an odd suggestion as a sole source of calcium, because it has no Vit D and that is so important for calcium to be effective. My MO did recommend Tums only if I had certain symptoms after a Zometa infusion since the drug pulls calcium out of your bloodstream. Maybe they suggest it because it tastes like candy and they think people may be more likely to take it?
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I was told by my naturopath that if I take calcium I must take half as much magnesium too otherwise it can result in constipation. She also said that calcium citrate is more easily absorbed than calcium carbonate. I try to get calcium from almond milk or Citrical Petites with vitamin D. Most other calcium pills are huge and harder to swallow.
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ok, so some typos on my part....no break is showing up on the xray. So he is saying not broken but I know from other docs that a stress fracture does not always show on xrays. I was the one who mentioned that I think I likely have osteo from the meds but I have not been tested sinced before my dang 5 years. Bone density was good then but now....
foot is feeling better, still wearing the OTC ace bandage when I am at the gym. Not ready for treadmill yet. But realized how old my shoes are so bought a flashy new pal of athletic shoes and boy do they help the feet feel better
sorry for any confusing info. I am going to continue with my calcium +D but will also plan on chewing a tums as well!
dang if all this is crazy~~
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proudtospin,
I would insist on a bone density scan. Even call you PCP or MO requesting it before seeing one of them, so they can follow up with the results on your next visit.
I'd go easy on the calcium. Too much is not a good thing. Too much calcium builds plague in arteries.
The calcium in Tums is not the best one for absorption in the bones. It's meant to calm an upset tummy. When my MO suggested it after a Zometa infusion, it was to quickly get calcium into my bloodstream, not to the bone. Basically to replace what Z pulled out already to the bones.
Many gals who go to specialist for osteoporosis are told to cut their calcium supplements. Seems counterintuitive, right?
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doxie, I just retired so my insurance has changed to medicare. I do have a script for a bone density test (Had one before the dang aromasin and all was ok).
I really do not want to do the Fosamax again as I did it for about 6 years before the BC stuff arrived in my life. I doubled my exercise program the last few years but not sure that any amount of weight bearing stuff can prevent the bone loss~~
My next mamo is set for June and MO and I decided to do the bone density at the same time as same place.
It is on the board along with a skin check and colonoscopy~~~
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I started out on Arimidex and the SE's were horrible. It didn't start though, until the 3rd month.
Onco put me on aromasin in Sept I believe, and it was much better until now. My hands and arms are falling asleep in the night and often times I feel like I'm so swollen in my fingers and toes that I have PMS type bloating. My knees hurt too.
I do boot camp 4 days a week and run or walk everyday so I'm wondering if it's the aromasin or working out to hard? Or my pillow? I'm trying to figure it out.
Anyone notice these SE months after being on Aromasin?
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Swollen fingers could be lymphedema (LE), but maybe not with the toes, too. Hands and arms falling asleep may be LE or neurological. It might be helpful to ask this question on the Lymphedema forum.
You may be exercising too much. I find that I cannot overdo and I have to find ways to correct whatever is triggering the pain. Like for my hip, run clockwise around the sloping loop instead of counterclockwise. Hip pain has almost totally disappeared.
edited to add: The low estrogen caused by all the AI is really hard on our joints, tendons, and other related tissues.
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you may not be letting your body rest between workouts
my trainer gives me 2 exercise programs, one focuses on strength trainer and the other is focused on cardio.
rule is to alternate the programs and also, stretch completely before and after
do you have anyone giving you guidance or are you just winging it?
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Erin, yes. I have all those side effects. Not fun!!
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Erin I have the same side effects as you. I am better when I am off gluten, dairy, sugar and alcohol.
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Hi Everyone,
Just wondering if anyone has spotting as a SE from Anastrazole. I've been on it for 4 months and for the first time I'm having the spotting. I do get the aches also.
Anyone have any tips about managing the aches and pains?
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Regular spotting should be checked out by a GYN. I have a polyp so bleed sometimes. Each time I've had complete gyne exams, with ultrasounds and a biopsy.
But I also bleed externally in the pelvic area if my tissues get too dry. This always happens with exercise, like running or walking. Heavy moisturizing helps.
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