Life on aromasin
Comments
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I have had a significant increase in joint pain since starting Aromasin. I have some neuropathy and pain that was residual from Taxol, and when I started Arimidex it got progressively worse and in more areas. 6-week vacation from Arimidex and it improved quite a bit, then I started Aromasin 6 weeks ago and every day it gets worse. I have pain in my hips, low back, ankles and wrists, as well as right knee pain. I go back to MO on Monday, so will see what he says. I take Claritin when I have it, and Advil once a day or so. Moving helps once I get past the stiffness, and gentle yoga helps a lot.
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rettemich, go to "my profile" in the upper right of this page, then go to the "my treatments" tab in the upper right of that page. At the bottom of each section, there is a button that says add new surgery/chemo, etc. Then you can add your new treatments. If you want them to show up on your page, you have to make sure they are marked public. Hope that helps.
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Just wanted to check in and let you know I'm doing much much better.
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Hi Iago, glad to hear you are doing much better now:)
x x
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Great, lago. Chicago weather has not been much of a help this month. We need some morning sun here when exercising.
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absolutely!
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Hi Y'all
Warm Santa Anna winds in SoCal! Nice blue sky
See the MO tomorrow with a few questions on Aromasin...did I eat enough prunes to offset the drug, raised cholesterol...Zometa infusion already scheduled.
Happy Holidays!
(((Hugs)))
Cindy
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Thank You Bren, I wasn't changing the public setting.
It's been about a month and a half on this and so far doing much better than the Tamox.
Had to do a bone scan and they found a spot on my left hip that is Osteopenia -1. Dr. said no meds yet just up the calcium and vit D and do some weight training.
RMlulu, if you don't mind me asking how much did your cholesterol go up? That was the only thing that was good on my last blood test. I'm so not looking forward to dealing with another issue.
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anyone else got acne on this? After taking it for 18 months I have acne around hairline, forehead and both cheeks.....and it seems to be getting wors
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My occasional blemish has occurred less often on AIs. So no increase.
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Hi everyone, I am joining the crowd here. I am 32, and I am using Aromasin and Trelstar. So an AI and ovarian suppression. I have been taking Aromasin for 17 days now, and had my trelstar injection last week. Chemo put me into chemopause, and we wanted to maintain it. So I already had the symptoms of menopause, and have been on Effexor to manage them.
So far, so good. I do not feel particularly different, although chemo brain has been slow to lift.
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Welcome Violet
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Thanks Lago! I am taking extra calcium and Vit D. My Dexa scan came back with great results, so I am starting out on a strong note. So far I feel great on this routine, so I do not wish to change.
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Hi Violet, glad it's going well so far.
x x
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Oh, Violet. You are way to young for this. We are sometimes a quiet group, but will help you the best we can if you need it.
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Violet, good for you. I started on my AL with good density but had been on Fosamax for a time in the past. But when I went on my AL I also changed my work outs to include weight bearing so you may want to buy your self some hand weights~
When I ended my 5 years, me density was dandy but have continued my new exercises
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Rettmich - my cholesterol went from 150 to 216 and now 206...I eat a cup of oatmeal everyday, lots of veggies&fruit&prunes. Good to have the dexa scan to give a baseline...my good cholesterol is high too. Best Wishes to you
Violet - welcome! You are too young to be going through all this
(( good to be strong while taking AL. Be sure and have a good baseline for bloodwork and bone scan. Key is exercise, pound those bones, weight lifting 2-3 X a week, supplements, lots of veggies&fruit&prunes. I work out, Zumba, yoga, tai chi, line dance, and walking...movement. Notice today that my Aromasin is from a different manufacturer...humm.
(((Hugs)))
Cindy
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What manufacturer? Mine says Roxane. I wonder if it makes a difference who makes it?
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I tried Claritin for knee pain. I thought it helped but I think I only hoped it helped. I am off the Meloxicam cuz my kidneys didn't like it, I am off the Clairitin cuz I don't think it really helped. I am not taking any meds for pain.
I read that you need to do a minimun of 6000 steps a day for improvement in knee pain. Guess that will be next goal - - - - but it's kind of hard to walk cuz of the knee pain.
It's a new year - I'm going to figure this out somehow. I am not young but I am not old. I have a cane I use on occasion but I want to put it in the closet for the future if needed, I don't want it to be part of wardrobe today.
And the hot flashes!!!!!!! Wow, those have increased in the last months.
Okay - enough whining. Thanks for listening.
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Yeah, this completely caught me off guard. I have no family history
When I found my lump it was 1.7 cm0 -
I have been aromasin not quite 2 months. I am depressed over the fatigue. Before the BC I was taking hormone replacement and frankly I felt like superman. My energy was the same at 55 as it was at 25. Then BC hit. Off the hormone replacement and now hormone suppression. I feel like sh*t on a shingle.
Will I ever get over the fatigue? I work full time. I have to push to the end of the day. When I get home, I have supper, bath and off to bed I go. Everyone says that exercise will help but how can I do that? I am done-in at the end of the day and waking up even earlier is not an option.
Ok, thanks for letting me vent.
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BC101 - now alvogen..hate when they switch..knew fillers...ugh
Violet - bamm...yes did not see this coming..lout now pressing forward. Sometimes it's a good thing not to know...just don't look back...
Ohio - stepping up...use FitBit to ensure 10,000 steps a day. I get up every hour and do at least a 2-4 minute walk...movement...at home there's always something to chase around the house or store. The hot flashes...cool house, journal what brings it on..,days more movement better.
RaiderGirl - look for times you can sneak in moving...watch on TV office with no chairs...they walk or stand behind desk...little steps at first. Does improve fatigue...watch your food...some slow down...hydration is key!
Pound those bones and stay hydrated...uses one means to sneak in movement during the day..lance in the restroom to your fav tune.
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Raidergirl,
I've been on AIs coming upon 3 years. Now 3 years since my last chemo. I always was high energy when I needed it. Multitasking and amazing memory. Still can multitask somewhat, but memory and energy levels are worse. I think I recovered from chemo and rads after a year, so blame the loss of estrogen caused by AIs on current memory and energy levels. We are getting older, but severely reduced estrogen levels hits hard. Like going through menopause twice, but not a natural menopause.
Still, regular exercise helps increase my energy. Just getting over a hip injury and I've missed my runs and walks. My body was crying for aerobic exercise. Also getting out for a walk lifts my spirits and nabs a few rays with Vit D. So glad to finally be able to get outside.
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I noticed before my dx that my memory was slipping a little and that I was really really tired. I attribrute that to the cancer. Since starting AIs, though, my memory and ability to multitask has gone out the window! I miss my brain! I read somewhere that studies show hormone brain is a real thing. And being on AI's is like a second deeper menopause, according to my NP. Thankfully I don't have joint pain, but the insomnia and mood swings were a total surprise.
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I too have noticed that my mind is a little fuzzier than before CA and chemotherapy. The BIGGEST thing for me is finding the words I need to say. It is inside of my head, I know what I need to get across, it just will not come out of my mouth. AAAACK.
TMI ALERT: Sex is a touch painful unless I use a lot of lubrication. I have never had an issue, but *now* I do. I try to explain to the husband that it is not "him", it is menopause and lack of good ol' estrogen!
I miss Estrogen. :P
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I miss oestrogen too, I feel really old and dried out without it.....................
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I do, too. But I don't miss breast cancer...
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I'm with you girls about missing estrogen, but I certainly don't miss breast cancer! After having the BMX I have lost the sensation that I had there which was always helpful, if you get my drift. So no I have no sensation there and the lovely effects of menopause accentuated by the examestane. Usually a setup for failure! I just have to keep reminding myself that it beats the alternative!
Stay happy!
Martha
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I may have asked this before, but is anyone on Wellbutrin and Aromasin? I always fear that other drugs will reduce the effectiveness of the Aromasin. I know this is true with Tamoxifen and some antidepressants, but I asked my NP if there were any studies done with antidepressants and AI's. She said no. That in itself makes me pause. I'd hate to take them only to find five years from now that antidepressants contribute to bc recurrence. I've been exercising and doing mind-body practices, but it's just not enough. Feeling really really depressed, so I'll probably cave and just pop the damn pills!
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Check with your pharmacist. They actually know more but I do believe many antidepressents are OK with Aromasin.
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