Life on aromasin
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Maybe you did too much? Try an epson salt bath.......
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I did to much today as well planting flowers, but at least I have a hot tub and crawled in it. I soak in it or my tub when the paiin gets to bad. When I was on Femara my MO And I tried me on Celebrex to help with the pain, but I ended up with a severe reaction of a bad rash and hives. Got so bad I had to leave work and go to his office and let them run an IV with some steroids and benedryl in it. I wanted to cry (I think I actually did) as it was relieving the pain. It may help some of you.
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I was going thru my medical stuff, cleaning out old stuff, and found my pathology report from the lumpectomy 2 years ago. Yikes! I was 100 percent ER! Maybe I should re-think my decision to forego an AI? I guess I could try Femara---
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I was 100% also - that's the reason I stay on Aromasin. I don't have the difficult SE's like some, so far I have found ways to make life tolerable.
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Also 100% - but have yet to read any studies that Aromasin guarantees any chances of having a recurrence. Im off it 3 months now - and almost glad my SEs were so severe I had no choice but to go off of them. Made my decision very easy.
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The crazy part of the aromasin SE's is that they may hide real recurrences. How can we tell the difference?
My leg still hurts,
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Tim do you have access to a good massage therapist? Might do you some good......
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Thanks. Have been increasing the amount of fiber and water so that should help.
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Thanks Shayne. Actually today the pain is almost gone. Sigh... now I'm worried about having the test for nothing. I hate radiation! But if it comes out ok it will be worth it I guess.
I've never had a massage except from my husband. The thought of anyone else touching me gives me the willies!
I went to a dietician today and we spoke for an hour When I told her that 3 oncologists told me that diet didn't matter her eyes bugged out. She said there are tons of studies that say it does. I can't believe how the drs and the scientists can't get together on anything! Three doctors all said there was no special food to eat to prevent recurrence. She said, cruciferous veggies, tomatoes and tomato sauce for lycopene no red meat, cured meats, alcohol. I'd heard all of this before but dismissed it because of what the drs said. Basically, a plant based diet is best. No guarantee of course.
Half hour of excercize a day is important too
It makes me feel good to think that there is something I can do to help,,
Then after the bone scan it's back on the arrimidex!
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Absolutely diet matters! And on the slim chance it doesnt, it will make you feel better! I completely overhauled my diet and have so much more energy, and feel like yes, I am doing something!
thats too bad you dont like massage - it can really help.0 -
OK as usual I'm confused---I think diet does matter when it comes to helping u feel better daily and giving u more energy and it's very important. But as the Drs. said nothing specific can stop cancer--look at perfectly healthy natural food people who excercise religously and truly take care of themselves--they get cancer too. So I understand that all the drs. said was they don't know because it's not known how these stupid cancer cells come into our bodies. There also are people who really have a bad diet and no exercize and live to be 90 never having cancer. So I'm not disagreeing about healthy choices and living, but cancer doesn't care the cells are there when and if they choose they go on to destroy. Of course I'm going on my theory cuz I seen it all in my family--who took care of themselves and who didnt the cancer was there anyway--in'laws too. It's a shame.
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I know cami. Nothing about it is predictable. At Sloan they told me basically I was born with it.
The dietician says that a lot of the research has been done on mice so maybee they dont want to say it definitely will work on humans. But there are a lot of correlationaly studies too.
In one way it makes me feel good that there is something I can do and in another way it makes me feel bad that I didn't do it from the beginning! Cant win.
I guess, bottom line, what they say is good for preventing recurrences is also good for preventing heart attacks, strokes, diabetes, the whole ball of wax.
But it is confusing.
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This is the preface to the sheet I got from the dietician. She works at the kellogg Cancer center of Northwestern.
"Decades of research tell us that good nutrition is important for lowering risk of cancer. But what about the role of nutrition for preventing cancer recurrence in cancer survivors? Much less research has been done in this area, but fortunatley, this is beginning to change. Researchers now are turning their focus to looking at the role of nutrition for good long term health in cancer survivors. With the illions of people alive today who are cancer survivors, this is a very important question!
The good news is that what research is available is very promising. The studies that hae looked at how diet and nutrition affec the health of cancre survivors have found that the same approaches that reduce cancer risk in the first place, also may reduce risk of recurrence in cancer survivors.
l. Maintain healthy body weight.
2. Abundance of vegetables and fruit.
3. Keep fat below 30% of calories.
Eat a healthy plant based diet.
I guess it's not all that definitive. The dietician was more certain.
Who knows what's true?
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Oh Tim eating and excercize can't be wrong that's for sure--It's the best thing we can do all I was saying is who knows--it's a crapshoot. I watch that commercial on TV about the strongest woman in the world and now she has breast cancer and I think of all the training and her eating habits. Of course she has said she never did steroids but IDK--but she not that old. Tim don't look back u'r doing everythin that is as right as can be now. So have that attitude remember Stress is the worst thing for us.
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aMEN TO THAT!
I think of Nancy Reagan...is anyone thinner? lol
Olivia Newton John. sheryl Crow.
You're exactly right, it's a crapshoot. They talk of risk and statistics, not cause and effect.
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Hi girls, I have not really been MIA just lurking while I've been attaching all of last years paper work related to tax. This has always been my job but the past year I had much more important issues whether the government realizes it or not. Oh well it's getting done now and there is a ton of it.
Tim and Cam I do believe in good nutrition in "decreasing" the risk of cancer as well as all those other little nasty diseases lurking out there but at this point I don't think it's the key to prevention. The other nite I sit talking (and crying) with my best friend (who lives over 1000 miles from me) drinking margaritas and contemplelating the cause, effect, tx and cure of cancer (she to is a RN). We've come to the conclusion that it is not in the best interest of the drug companies or the medical community to find a cure, therefore if there is a cure they are hiding it and if they are looking, not very hard. Of course you have to keep in mind that this comes from a couple of blubering almost tooted women over a 4 hour period. Can't tell you how good I felt after letting it all hang out.
I agree that exercise and nutrition are essential to decreasing the risk of reoccurance but that the damage "stress" does to us over shaddows all the good we obtain from exerccise and nutrition. I have really tried to live my life healthier throw diet, exercise and weight controll but I just can not get a handle on this stress crap. At this point I'm probably just doing a dance of 2 steps forward, 3 steps back.
All of you, I love you. and just keep hanging in there and doing what ever it takes to feel better and stronger because that is where the answer lays.
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Yes, people ate crap, didnt exercise and lived to their 90s. That was before our food was GMOd, sprayed with pesticides and all the other pollutants that are in our world. Its to our advantage to keep our bodies as healthy as possible so our immune systems act appropriately.
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Couldn't hurt!
My grandmother had 7 kids and lived on potatoes until she was 86. I don't think she was ever sick.
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I agree with Shayne. Out parents and ancestors did not have all the GMO's and pesticides that we now must cope with. If they would leave our food sources alone we would be better off.
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It's called $$. I always wonder if these people eat the same crap we do?
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On the sloan utube they explained that there was less bc years ago because most girls were half starved, ie. less estrogen. Then they had a lot of infectious disease which also kept them thin. Because of that they didn't get their periods until they were about 17. They got married early and had a bunch of kids and then died early. Less chance for bc!
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OK I'm back with another discussion that seabeal actually started in their drunken stupor LOL
Years ago before BC I read an interesting article in a medical journal. Probably at one of me check-ups cuz I don't read medical stuff. But this was written by a research Dr. that was working with cancer. And he quit, just quit. Because the companies (ama, Pharm) would not allow some of the things they were researching that had promises to cur cancer be done. They were shut down whenever they seemed to be going in the right direction. Don't u remember when Herceptin came for HER+--The drug Co. didn't help it was private people that did all the donations so Dr. ? could finish the research that they let him start but shut down. So u have to wonder who's really in control of any of this--well we're not but someone is. When Dr. Saulk came up with the polio vaccine it was kind of a fluke only because they didn't thik he could do it. He was totally unknown as a researcher then so he got under the radar--and that's how I remember it. I have never read about it I lived thru those years and fremember it was a surprise--in the books it might not be written like that but things in history have been rewritten to fit the times. For those day polio was a big money maker, even thos aot of children lived they still had a lot of problems healthwise.
OK I'm done with my rant. LOL
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the government is no better. My son is a researcher. He was working on finding the cause of schizophrenia, a disease that effects one in a hundred people and destroys their lives and the lives of their families. Not much money was allocated and he had trouble getting funded. There is a tremendous amount of money to research alcohol and drug addiction. So he switched and got a huge grant to study drunken mice. It's our money. The politicians allocate it.
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Tim I'm sorry I did mean to mention the government---yes they had to prove alcholism and drugs are diseases--OK I won't go into that.
But I understand why u'r son would have to change ways here, My dgtr was first diagnosed that at 16 and I was told that's it for her and at the time 25 yrs ago they new not one thing basically and it was try this, try that etc. So u'r son was trying to do what he wanted and got halted because of grants and yet they give grant to sororities on campus. So how does that work into the scope of diseases.
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I'm sorry I get on some subjects and I go to town. I write the President and the governor how grants are allocated, of course they've asked me to stop but I see no reason to. My kids think I'm going to end up in jail as some kind of crazy terr. But I do end my letter with this is not a threat this is a fact. hahaha My brain is really out of the loop since I retired and worked for the government.
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I think that the government is corrupted through the lobbiest, particularly those dealing with health care, as paranoid as that sounds. I gues the next questions is what and how much of our tax dollars go for silly research such as duck genitals and so on. These are not research that will advance medicine or find cures, these are government supported dissertation.
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Ah! cami, you worked for the government! My entire family has and does work for the government. Why shouldn't you write to the government? They are supposed to be our "public servants" right? I wish more people made their voices heard.
Cami are you saying your daughter has schizophrenia? If so I'm so sorry. People just don't know. I don't see how they can equate alcoholism with it.
I'm thinking also now, of Susan Komen "for the cure". So many people working their hearts out "for the cure" and they were giving money to planned parenthood? I'm not making a judgment on planned parenthood but they are not looking for "a cure".
I once mentioned to an onco at Columbia University that I sure hope they get a cure soon, She said "lots of people are cured all of the time". Hopeful thing to think about but I think we all here know what it is we really want, the magic bullet,
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Seabeal, i don't think you sound paranoid.
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Tim that why I said don't get me started on that disease (alcohol or drug) cuz more money goes into that than for mental illness. It took about 10 yrs to stable her---I couldn't give up and she the one that I live with now with her husband and my grandson. When she had my grandson she had to go off her meds for a while,well she spun into insanity and too about 6 months after he was born and 6 months after to get really stable.. So I took a fmla leave and took care of my grandson for all that time, that's one of the reasons we're so close hahaha and I'm so broke. Then a few years later I took another fmla to take care of my mom for a few months, then my dgtr took care of her for 6 months (same dgtr) cuz I had to go back to work. What a world.
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Cami...I don't know what to say. You gave me goose bumps. You are a hero. I'm truly speechless, which is not normal for me! I'm in awe and yet so so sorry! God bless you!!!!
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