Life on aromasin
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I get thirsty a lot, but drinking water is really, really good for us. So bottoms up!
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Thanks for the input. I can try Biotene. The gym sounds good. Maybe after PT for the other problems I can try that. It's a juggling act for sure.
Camillegal I see your information. Why are the ribs pushing up? Hey girl you should take take all the pain meds you need. High five to your dr. for giving them to you.
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Thanks claireinaz. I figured it was nasty. You saved me some money! lol
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Corky my stuff is as goofy as me===first my colon changed shape goin up my side, pushing my liver over so my liver is not where it should be, part of my colon is, but now my liver is being pushed into my ribs--upward, now my one kidney is like floating so I have the flying organdas for my insides--I have 3 hernias that who knows how I got --maybe using the remote to much iI have degenerative disc and lower spine with scoliosis and severe arthritis in that area and other areas. I started PT but had to stop because the pain was worse for my side with my organ just walkin' around doing what they want. I have chronic diarreha for 6 yrs now--no one knows why so there are times I can't leave the house cuz it's like Mt Vesuvius but upside down. So pain is pretty constant and occasional fever with lots of UTI's now I was absolutely fine when I did get cancer so who knows --oh and some kind of heart malfunction which I take meds for and LE and more hahahaha so that's why I really couldn't work anymore cuz I planned on working a couple of more years, that's why I'm always complaining about aromasin, I blame it all on that hahaha
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Oh another thing is I'm somehow allergic to anestesha (sp) after I had a few operations so to put my insides back it order they can't cuz I have to be really put out and it an old fashion type of operation which is long and laborious and for me very risky (according to 2 surgeons) so I see another Dr. to see if they can help at all.
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Oh Carmill, sending you a big bear hug.
So sorry you have had to go through so much.
Know we're always here for you.0 -
I've been off Aromasin for 11 days and my pain level has gone waaaayy down.
Am going to have to wait and see what Tomixifin throws at me. But I'm so happy to have been able to live these days pain free.
I had forgotten how much energy the pain takes out of you!0 -
Oh Eve really it just is-- wow I can't believe in just 10 dys u feel better that wonderful--Oh I do hope that Tammi is so much easier on you--u'r right constant pain makes u tired--It one of my latest reasons for being lazy. LOL Good Luck Eve
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I have the pain with the Aromasin and my BS told yesterday my bones are becoming a mess. He wants me to continue the Aromasin for 6 more months and then go on Tammie; however one major side effect possible is cancer of the uterus? I said really and you want me on this? Anyone else switching been told this?
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God love you, Camillegal. Lots of prayers and warm thoughts are headed your way.
Bgail84, have you raised this question of possible uterine cancer in some tamoxifen topics? I bet someone there would know about this.
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I am having luck with the Ekezial (sp) low fat bread. It is also expensive, but so filling that I only eat two slices a day with peanut butter. It also seems to stop my craving for more. You know how a lot of foods just make you more hungry? Well, this bread doesn't!
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Dogs, we've been eating that bread for years. It is very healthy. My DH is pre-diabetic and this is one of the few breads he can eat.
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Good to hear. Several people have commented on the bread and how they like it. I am sure my cardio NP will approve also.
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Yes Dogs, my Oncologist said a possible side effect of Tomoxifen is utrerin cancer. But I had a complete hysterectomy in the late 1990s so my an issue for me. Scary nonetheless.0 -
sorry, I meant bgail.0 -
My understanding about the soy (as a nurse and in reading about it the past 16 months) is based on the type of cancer. I am a triple positive and am avoiding soy as soy converts to estrogen. That is not saying I do not eat a few soy beans in asian food. But I do NOT eat soy patties converted to "taste like" beef or pork or chicken. I avoid that at all cost. I do not drink soy based milk or eat soy based ice cream or eat tofu or soy based cheese, etc. For about 2-3 years prior to my diagnosis i ate primarily soy burgers. Did not drink the milk or eat the cheese. Did it lead to the cancer. Who knows. But avoiding now.0 -
Soy is hidden is so many items. I am 100% ER+/PR+ and was never into soy. However, I did not realize how many items have soy somewhere in the ingredient.
There is a book, Keeping aBreast, by Khalid Mahmud, MD (oncologist, hematologist, internal medicine) where he states soy consumption is the reason Japananese have less incidence of breast cancer. He says soy acts as weak estrogen and can block estrogen receptor on the cancer cells, thus keeping estrodiol and estrone away from the cancer cells.He references a study buy Cancer Epidemiol biomarkers from 2000.
I'm still gonna look at ingredients and may sure soy isn't one of the top five on the list. Those foods will be in moderation.
I did give up alcohol so I a little soy on occasion isn't going make a difference in the long run - I hope. Will I ever know if it did? Nope. I started at Stage IIIc.0 -
I've been avoiding pure soy as you have but am interested in your reference to giving up alcohol. Is there a big correlation btw bc and alcohol? I'm so wound up I do drink wine, 2-3 glasses, 4X a week.
I know it's the HRT that gave me the bc and my Oncologist concurs.
I was on very high doses of estrogen and progesterone for a good 12 years. After the hysterectomy, including ovaries, the put me on it bc the hot flashes were unbearable. Then, when I complained of zero libido, they added the progesterone.
Had I known then what I know now I would have looked into naturopathic options for the bad fibroids and cystic ovaries. Then I never would have had to go on HRT.0 -
Eve, we all try to do the best we can. So much info and who knows what to believe. I have not given up my nightly wine...got some stress to deal with and all.
I do not get crazed on the soy but only rarely have soy beans in salads etc.
What I do believe in is exercise, after finishing my rads 5 years ago, found a trainer at my gym to help to motivate me and also to up my weight bearing workouts. Spin, not so much now, more on weights and treadmill. I do know that combined with lots of stretching, I do have the aches and pains that many complain about.
Not to say I am not counting the months till I get to end the AL....Dec!0 -
Alcohol (except red wine) increases aromatase which increases estrogen....the estrogen we don't want. That is referencing the same book, Keeping aBreast, as above.
At the beginning - the onc told me to stay away from soy and alcohol and I (pretty much). I did my own research to discover the whys. My knowledge is based on the one book above, I am looking for some other good sources just for my own education.
I'm not going extreme one way or the other, just want to know.0 -
I guess because in comparison to chemo....it is considered easy.
don't assume you will have problems, many of us really do not have issues
I really do not have achies that I can blame on the meds....just old age~~
stay positive and remember it is an important piece of the whole treatment~0 -
Deb, I've been on Aromasin for almost 2 years and am doing fine. 80% of women do not have serious SEs from anti-hormonals. Even those who get serious SEs can frequently find ways to deal with them.0 -
it can be your reason to join a gym! your reason to have a personal trainer to keep your joints moving!
Those are good things, massages are your freind as well
stretching and yoga also0 -
Deb, as Spin said, compared to chemo, the AI's are a walk in the park. I think some of us were shocked and disheartened, though, when we realized that, after surgery, chemo and rads, we weren't through, and that the AI's side effects would keep us from feeling as we did pre-bc.
Still, we know it's our best defense. After a rough year on Arimidex -- severe joint pain -- I switched to Aromasin and have found it much kinder to my body. I'm moving more, myntrigger fingers have resolved themselves, and I'm back walking and riding my bike. I still have monster hot flashes and insomnia, but.,,0 -
Wavewhisperer,
I'm glad you are doing better on Aromasin. My SEs have calmed down after the first 8 months. Of note still are dry eyes and dry vaginal area. I doubt these will go away. The severe aches and pains are now almost nonexistent.0 -
Eve as u gals know my sister Is Stage IV--she has never given up her red wine in the evening or when she goes out and some times she she drinks a reg drink if she feels like it. But also we grew up on red wine literally so maybe our bodies have a different feel for it. I mean when we were young and sick we would get a shot glass of wine, now our parents would be thrown in jail
Deb don't worry about SE's some women get very few and they are manageable but of course u'r going to hear more of the ones that get crazy SE's but that doesn't mean u will have them. I don't remember u--so Hi to you--my memory like my body is shot LOL0 -
That reminds me: When I was sick as a child my mom would give me diluted wine with lemon. Sure did the truck for a sore throat.
My dad drank wine (2 glasses daily) and also cognac from time to time. He lived to be 93--0 -
My mom gave us honey and brandy when we were sick. Probably really helped us sleep, lol. Not sure about any real medicinal benefits.0 -
Oh, forgot to say that honey was added to our drinks too. LOL0 -
Hi there, boy does this bring back memories. For a bad cold Grandma gave us hot water with whiskey, honey and lemon. It made us sleepy and helped quiet the cough. An old remedy back from the day when doctors made house calls.0
