5 year survivors, post your screen name here!

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Comments

  • flannelette
    flannelette Member Posts: 398
    edited July 2013

    Congrats, Leggo - what an amazing story.

    For me, it's exactly 5 years ago July 30, 2008, I had my MX. I consider that my date. I had a 9 out of 9 on the ? cell hooliganism scale, and a 10 cm tumor. My breast surgeon came the next morning, very early, to tell me what he saw looked like a big mess  of DCIS, in other words, it didn't look too bad to him. it was so sweet of him to come by.

    A few weeks later, the day I went to see him for my results (and for him to suddenly grab & rip the drain out of my chest while he said "these things have a tendency to grow roots" while I yelled) - well, that morning I woke from a dream that my mother (long dead, but a br ca survivor from 1951) and I were sweeping like crazy - we were sort of batting big yellow balls away at a frantic pace, that were coming down the street which was covered in what looked like a flow of pinkish water. When I woke up, I knew I was going to be ok. Can your immune system communicate to you in your dreams?

    Still, that day, as I waited for the surgeon to come round, during his clinic, i could not stop crying. Suddenly a young intern bounced in, sat down, and before I knew it he whipped open his folder & said "no nodes, no lympho-vascular invasion, margins clear" I jumped for joy and yelled, pumping my fists into the air. when the surgeon came in my tears were all gone, it was smiles all around, and he said "i heard you were having a bad time". He had sent the intern in, so i didn't have to wait any longer. Just love that man.

  • ruthbru
    ruthbru Member Posts: 47,786
    edited July 2013

    Congratulations ladies!!!!!

  • lago
    lago Member Posts: 11,653
    edited July 2013

    leggo AWESOME! Now for the next 19 years what do you plan on doing!

    flannelette I see you're like me. Big tumor with no nodes (my total tumor with DCIS was 6.5cm but only 5.5cm was invasive). Like you I knew after my surgery I was going to be fine… but still did the chemo and still doing the Anastrozole. I'm at 3 years.

  • katyand4
    katyand4 Member Posts: 32
    edited July 2013

    Congratulations Leggo that is really fantastic news.  Wishing you many more years of health and happiness.  We should all stick our tongues out to that doctor who told you get your affairs in order!!!

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 188
    edited July 2013

    I needed to hear these stories and it especially helps to see some 5+ year sisters on here who were Her2+, with nodes, and grade 3 like me. My sister is 56 years old, 10 years NED and a 20 year survivor - stage IIa IDC - ER+, PR-, Her2-, one node right and left.

  • moderators
    moderators Posts: 8,739
    edited July 2013

    Wow!!! You are all so incredibly inspiring! Please keep up these posts for all who need that touch of hope!

    CONGRATS to all!

    --Your Mods

  • GatorGal
    GatorGal Member Posts: 750
    edited July 2013

    26 years since first diagnosis with lymph node involvement, 5 years in May since stage IV diagnosis (mets in lung). Feeling very blessed!

  • JennaJMU
    JennaJMU Member Posts: 22
    edited July 2013

    Glenna you are so inspirational!! How old were you at initial diagnosis?

  • katyand4
    katyand4 Member Posts: 32
    edited August 2013

    Wow, wow and wow thank for coming back and sharing Glenna.  Congrats!!!

  • GatorGal
    GatorGal Member Posts: 750
    edited August 2013

    Jenna,

    I was 37 when I was first diagnosed. Prognosis at the time: 15% chance of surviving 5 years! Ha! I fooled them!! Went through a trial at Hopkins - 16 treatments in 16 weeks. Nasty cocktail. But it worked, at least for me. It hasn't become a standard protocol so guess it wasn't a successful study. Also had a separate lung cancer in early 1989 when I was 38 .... Nothing to do with the breast cancer but had a section of my right lung removed. I still see the same oncologist! Living each day like there's no tomorrow (unless I'm tired and then I rest!). They really can't tell us how long we have!!

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 188
    edited September 2013

    Since no one has jumped in for a while...I will - 18 months since my diagnosis yesterday. It's not long-term but for me it is celebration-worthy. Last week my Onc said I'm still NED.Kiss

  • moderators
    moderators Posts: 8,739
    edited September 2013

    Mariasnow, you definitely have cause for celebration - 18 months and NED deserves a party any time. Congratulations!

    • The Mods

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 188
    edited September 2013

    Thanks mods. Today is also 30 days since reconstruction and I don't look too bad. Definitely celebrating. 2 boobs is better than one!

  • soriya123
    soriya123 Member Posts: 384
    edited September 2013

    Mariasnow congrats on your 18 months. Yay!!!!! I can't wait!!!!

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited September 2013

    5 years cancer free as of July 29, 2013!! Wishing I could be there with my September '08 girls!! We'll Skype, for sure!! I couldn't have gotten through it without my girls!! 

  • Viji
    Viji Member Posts: 89
    edited September 2013

    Hi Lexi,

    You are the first ER/PR-/HER2+ that I saw as I scanned down the names! May I please ask what your treatment plan was. Just starting next week and so wanted to see a survivor on the list-thank you!

    Viji

  • Viji
    Viji Member Posts: 89
    edited September 2013

    Inspirational! Thank you...

    Viji

  • DragonGirl
    DragonGirl Member Posts: 68
    edited September 2013

    EIGHT years with Metastatic Breast Cancer, diagnosed at age 39.



    ;)



    DG

  • moderators
    moderators Posts: 8,739
    edited September 2013

    Congratulations, DragonGirl, and every one of you who join this list!

  • pip57
    pip57 Member Posts: 7,080
    edited September 2013

    Excellent!

  • kipperdipper
    kipperdipper Member Posts: 1
    edited September 2013

    Metastatic Survivor!!!

    Kipperdipper

  • Hutchins2
    Hutchins2 Member Posts: 5
    edited September 2013

    >I wanted to thank all of you for posting such inspirational stories! I am 39 with a little girl that just turned 6 and just started kindergarten. I often panic that I will not see her grow up. I was diagnosed in March out of nowhere, and am triple positive. I just finished chemo three weeks ago and still have herceptin, and reconstruction to get through but find that I am even more nervous now that I am no longer seeing my onc every three weeks lime I was during chemo. Thank you for your stories. When I feel down, I am going to come back to this thread. xoxo

  • Laylalooo12
    Laylalooo12 Member Posts: 1
    edited September 2013

    I'm not diagnosed just in the waiting room but oh my you guys are an inspiration!! Well done everyone xxx

  • maryannecb
    maryannecb Member Posts: 74
    edited September 2013

    Maryannecb...8 years this week!! Yeah!!Smile  ER /PR neg 2/14 nodes postive , 9cm...yes 9cm tumor!! Cancer bites...but treatment bites back!!!

  • lago
    lago Member Posts: 11,653
    edited September 2013

    Hutchins2 Just sent you a PM (private message).

    Congratulations to all you long term survivors out there.

    Laylalooo12 this first part is the worst. Hang in there.

  • [Deleted User]
    [Deleted User] Member Posts: 8
    edited September 2013

    I hit my nine year mark in August.  My diagnosis is below.

  • hbcheryl
    hbcheryl Member Posts: 4,164
    edited September 2013

    September 11 was my 5 year anniversary.  Have to say I have made some amazing friends here and consider myself very lucky to have found BCO

  • soriya123
    soriya123 Member Posts: 384
    edited September 2013

    Congrats to nomore n HB...many more years to come!!!!

  • katyand4
    katyand4 Member Posts: 32
    edited September 2013

    Thanks for coming back and checking in ladies.  Congrats to NoMore & HB on your anniversaries.  Wishing you many more years of health and happiness.

  • ruthbru
    ruthbru Member Posts: 47,786
    edited September 2013

    AWESOME! Congratulations to no more and to my dear friend, Cheryl!