Another Navelbine Success Story....
I walked into the onc office this morning and my onc was speaking with the receptionist and I said good morning and his words back wre Good News!!! I asked "how good is good news?" and he said it was excellent and better than he expected.
Apparently all the nodules that were lighting up last time no longer light up. Those nodules in my lungs have decreased dramatically. In fact any other spots that had lit up on my bones even last time is no longer lighting. The only downside of the scan is there was on node that seemed to look like it was trying to do something but it is just something they will loook at on the next scan to see what it is trying to do.
We are going to continue with the navelbine (even though I hate it and makes me feel like crap) for a few more cycles. He wants me to stay on it until perzubatab is released by the FDA. I said that I wouldn't pu all my eggs in the basket of the FDA,. I said I'll give it another mogh or rwo then we are going to figure out sometthing else.
Comments
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Success! That OHC sure know how to get regression!
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This is really wonderful. You must be just thrilled with this news.
*susan*
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LuAnn, I am so happy for you! If the SE's continue to be a serious problem, talk to your onc about reducing the dosage.
Jan
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LuAnn, that's definitely Good News!! Congratulations!
Your Mods
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I'm so happy for your news, LuAnn! Navelbine's your nasty friend all right!
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Congrats!
Hang in there. Navelbine put me into NED for the past 3 years
. FYI, Navelbine dosage, if I recall my doc's words correctly, is based on a person's weight.
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Yay! God is so good!
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LuAnn, that is great news. Keep on stamping out those crummy cells! Wahoo.
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Sucks it comes with SE but hey regression is the best words a cancer gal can hear. Except "your all clear there's been a mistake you never had cancer".
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Congratulations! I hope the other is approved soon as the SE's of navelbine suck.
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Fantastic news LuAnn!
Dawn
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Great News!!! So happy for you!
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LuAnn
Wonderful news!! Navelbine is one bad boyfriend!! I know you will look forward to dumping him when something easier to deal with shows up but for now it looks like it was well worth putting up with him.
Come on FDA.!!!!!!!!!!!!!!!!!!!!!!!!!
Jennifer
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Terrific news!!!
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YAY! Wonderful news!
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YAY, LuAnn!!! Navelbine might be hard on you, but it's been hard on those crummy cancer cells, too. I hope the SE's get easier! LOVE to read this good news!
Peggy
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Congrats on the good news LuAnn but sorry about the SE's. Sorry about that
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That is fantastic news! It certainly helps the se's be more bearable when you know it's actually doing something!
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That is Wonderful!!!!!
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Sorry that the chemo makes you feel like crap, but so happy for the good news!
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Love the good news!
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Excellent news! Congrats!
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Great news, thrilled for you
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Yay!
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Wonderful news. I am happy that Navelbine has knocked the crap out of your mets. Good luck with your tmt and may it continue to bring you awesome news. Hugs. it is so great to hear that something is working. Dawn
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Im really Delighted for u.
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Hey that is hopeful!!! I will be starting this treatment tomorrow trying to kill my liver Mets that have been resilient to treatments. Let’s keep up the fight!!!
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Thriver, I just had my first dose of Navelbine this afternoon. There is a "Navigating Navelbine" thread that I have started to follow. It is not too active as this is not a widely used drug but I hope you will check out the thread and post about your experience there. I have been trying to get the thread going again. I really do not know too much about Navelbine but have heard about a few people that did very well on the drug for a long time. I have also been told it is pretty tolerable. Hoping that will be the case!
Below is a link to the "Navigating Navelbine" thread:
https://community.breastcancer.org/forum/8/topics/790520?page=15#idx_430
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JFL thanks for the thread ! Treatment was 10 minutes, feeling tired the usual chemo day effect. Will definitely keep the thread informed. Faith
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