Weekly Taxol group
Comments
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CMP106, if they lowered dose, it would be lowered for the remaining doses and I don't believe they would add more infusions but they could. My opinion is, that some chemo is better than no chemo. You can also research yourself and see if there is a big difference of having the dose lowered or not and efficacy. Do you ice at all during infusions? I do and I think it has helped to keep my neuropathy at bay as I have had some symptoms but nothing too irritating. I have just the tingling in my fingers and toes sometimes, that's it. Now my face, yeah, it experiences more neuropathy. LOL Also, some women swear the supplements help them and for others, it doesn't. Just be aware that there is controversy over the glutamine and whether it helps tumors to grow or not. If it's believed that yours have been removed with surgery, then I wouldn't be concerned. Otherwise, I would research that as well. However, B6 and B12 won't hurt you and those are the additional supplements some ladies take to help as well.
I hope this helps. I know my MO was concerned as soon as I mentioned the possibility of neuropathy to her. However, because mine seems very minimal we have kept my doses the same but every week she always inquired to ensure it hadn't changed. Seems to her, neuropathy is a big concern and issue and I appreciate her cautious attitude towards it. I go in tomorrow for my last infusion. I won't see my MO as she's out on vacay. LOL
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cmp106…I seem to be just ahead of you on the Taxol. I started getting the Neuropathy in my feet at treatment 9. I've been doing neuropathy massage (weekly) and acupuncture as well as taking a B complex supplement. It doesn't seem to be worse, but it does seem to be fairly steady. I am ok as long as I stay off my feet as much as possible. Up until that point, I was pretty consistently walking a few miles 4-5 times a week to continue exercising. Since this has come up, I'm no longer able to walk for exercise but I'm exhausted anyway. My MO is aware of the neuro and has also said he can reduce my dose if I want to, but same deal, may not be as effective, etc. I'm going to try to make it through - I just have 11 (tomorrow) and 12 next week, to get through. If after tomorrow I notice it's worse, I'll stop there, regardless. I even had an extra week off between 9 and 10, but it didn't really make much of a difference in my feet. Not sure this is especially helpful, but it's my experience.
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Jhodro, good luck tomorrow with #11! Almost at that finish line!! Woohoo!!
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Thank you!!
I cannot wait!!
I just returned to my desk from the restroom where I was sitting with my wig off. I had a hot flash - had to rip that thing off. LOL.
Hope you're doing well, Sinsin!!
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#9 in the books for me. Three to go.
My NP said that I should continue my supplements (b6 and glutamine, and to add biotin if I want) for four weeks PFC. She said to expect the fatigue to increase, with each of my next treatments but that I probably won't see any new side effects. She said PFC, I should start to feel better after about two weeks, but that it takes SIX months for the meds to completely leave me...
Scheduled a pre-op appointment with the gyno-onc for an oopherectomy, waiting for results on my pelvic and transvaginal USs that I had last week. Looking at taking ovaries out two weeks PFC, before rads start.
Trying to make an appointment for rads consult now... been on hold quite a while....
That's it for today. Benadryl starting to wear off, will enjoy the steriod high until I try to go to bed tonight. Expect to crash by tomorrow afternoon.
Have a great day one and all!
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Jhodro, it's been pretty warm and hot here in the Seattle area lately so I've been going "Topless" every where. Don't care. I mean even with a hat or scarf on people can tell I'm bald and notice the elephant in the room. So I might as well be comfortable. 😉
Jenwith4kids, I want to get my ovaries out before rads too. I have already seen my apB/GYN about it but she's worried about performing a surgery on me so soon after chemo. Doesn't want me to get an infection with my immune system down from chemo. So I'm suppose to fax her the results of my CBD totals from today. Hopefully, she's still willing to do it once she gets them.
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Woohoo! Can't believe it!
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Sinsin - CONGRATS! Love the T-shirt too! hmmm cupcake.
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Sin Sin Congratulations!!!0 -
SinSin, You did it!!! Congratulations!!
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Thanks ladies! Feeling pretty happy right now. Now onto rads. . . sigh.
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Congrats Sinsin!!! So happy for you. Enjoy the celebration today - worry about Rads later!!!! Great picture!!!
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congrats Sinsin must be a great feeling. Number 41 for me today. So grateful that Taxol has been extremely kind to me.
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congrats to all of you finishing up! So happy for you all and can't wait to join you in September!
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sinsin~
Cograts to you! You look great!! You did it!
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Sinsin - WOOO HOOO!!!! Congrats!0
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Yay Sinsin!!!!!!!! Congrats!!!
My last one is 7/18. Only 3 days but it seems like an eternity!
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Thanks everyone! Went out and celebrated with a close friend last night. Was great! I hope one day that every one with cancer gets this feeling and we best this nasty beast!
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Sinsin-Huge congrats! Awesome! Great pic!
Ladies- thanks for the feedback on Taxol induced neuropathy and lowered doses. Appreciate all the feedback. Talk to NP yesterday and they are inclined to keep my doses as they are but want me to call right away if anything changes this week (i.e., I notice it getting worse). My MO was out yesterday so they (infusion nurse and NP couldn't confer with her). I will see my MO next Monday anyway.
To those who have asked- I have not been icing at my MO's request which has been hard especially when I see it seems to be working for those who are doing it. Def. going to talk to her about the supplements (B6/12 and glutamine next week). At this point, I have 3 to go and I'm inclined to just get through it and hope for the best.
Thanks again!
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You can do this CMP! Hang in there!
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Sinsin, you are beautiful and Congratulations.
CMP, gotta love the different philosophies of these docs. I am icing at the request of my doc, or I should say onco nurse in the office. Finished #3.
I am in awe of Shazza and the number of consecutive treatments she has had. How do you do it? I have found that starting 2 days before treatment I am a basket case and overly emotional, irritable and a blubbery mess of tears. I have to assume some of it is hormonal from chemo pause because I am not normally like this. I cried all the way to the hospital this morning. I find weekly taxol so much more of an emotional burden than the AC or TC. I seem much better now. Can't wait to have a full day of feeling like "me" again.
Nurse had to double check to make sure she could give me the infusion today. WBC low. They have been hovering on the low side even with neupogen boost. We went through with it but hope it is not a sign of problems down the road. We had to stop the IV at one point today because of vision problems. Had the same thing happen on my very first round of chemo during Taxotere. Classic signs of aural migraine with jagged lines, prisms p, light that eventually went away after about 30 minutes. No pain or headache. Anyone else ever experience this?
Had a beautiful nap when I got home and now ready for the steroids to finish there thing with some energy into the night. I hope I do something productive, lol!
Best to all!
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mmtagirl, I sometimes experience some weirdness (as I can best describe it) at the start of the Taxol too. No headache but just feel weird and out of sorts but it goes away in a few minutes. I don't experience at every infusion, just sometimes and I did at my last one.
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thanks, Sinsin.
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sinsin: amazing pic! congrats again!!
mmtagirl: I had a migraine with the first taxol the next day. But I'm prone to get migraines with the aura - I take Frova to get rid of it - it usually takes about 15 minutes to kick in. That was the only time I experienced it. I attributed it to the lack of sleep the night of treatment. My docs advice against icing. And we are in the SAME state! lol.
cmp: I am trying to get through these last few infusions with the neuropathy. I talked to the PT person I've been seeing and she mentioned that it won't resolve immediately, but most people she has seen have it go away completely within 2-3 months. I'm going to continue the supplements, acupuncture and massage through rads if I can. Hopefully by fall I'll have my feet back 100%. I think the acupuncture and massage is helping me not get worse - as I was able to walk today and didn't really feel worse until afterward. Last week I couldn't have walked at all, exercise-wise.
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Jhondro, if you tell me that your doc is in the U of M Health network then I will have a very big lol at the inconsistencies. Just goes to show how much more research is needed on this disease.
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I've been really weepy lately. I am kind of glad my Taxol treatments will be every two weeks for four treatments but I'm so emotional right now. I just don't' want to do it anymore. I want my hair back so I will look like me again. It makes me sad for some reason.
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no, lol! He is at beaumont. That would be ironic. However my 2nd opinion was U OF M and he felt the same way. I saw him at karmanos and decided I would definitely not go there for treatment!!
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HomeMom, hang in there! The emotional roller coaster is completly normal!! If you want, inquire about an antidepressant to help balance you out some. It helps for sure!
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So, somebody told me today that I look puffy. (gee thanks, I needed that).... I KNOW I've gained weight - and I HOPE it will come off once I get some energy back and can back into a routine. What I'm wondering if if the steroids I'm taking can be blamed at all.... I am only taking them twice a week. 8 mg the night before treatment and then whatever is in my infusion.
It doesn't really matter, I'm just curious.
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I was told I will gain some weight in the middle. Just what I needed.
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