Weekly Taxol group
Comments
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Awww - those nails look very painful. I hope whatever it decides to do it does it quick so you can get on to healing. Lots of healing thoughts your way!!!
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Clarn - Awe that is awful what happened to your nails. Your MO could recommend a Dermatologist Oncologist.
Jaime - I too am dealing with a rash! It started on my legs (non-itchy rash) which went away completely with a cream. Then I got an itchy rash on my hand. Ugh - hydro cortisone helped the first few times. Then the Dermatologist gave me a stronger cream. That helped. Now I have it on my forearm - below my elbow. Putting the stronger cream on and hoping for the best. My MO recommended me to a Dermatologist Oncologist. You may want to ask her to recommend one to you. Over the counter stuff doesn't help. Good luck!
Happy and SE-free Labor Day weekend!
Hugs
Mary
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clarrn! Just awful!!!! One more to go , my friend, and you are done!
Jamieh, I have random stuff going on with skin- onc says perjeta- going to see derm in 2 weeks . Did you see derm yet? It's very frustrating to have to continually run from one specialist to the next isn't it?
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jamieh - hope you get that rash figured out soon! Nothing worse than being kept up all night
Sharon- That pic is amazing! And yippee for energy!
Thanks to everyone posting what they feel like PFC. It is so encouraging to hear that slowly but surely things are headed in the right direction!
Giddy today.... I think it just sunk in that in 48 hours I will be hooked up to my last chemo!
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clarn - T minus 4 days for me! Friday can't get here soon enough
I can't believe I'm already at the end when at times it seemed like it would be an eternity. Then one week of getting over the fatigue and taste bud issue........ whohooohoooooo!!!0 -
rash still there oncologist said it will go away but I am going to ask again tomorrow because its making me miserable. It's down a bit but still driving me batty. I go tomorrow for herceptin and perjeta only.
. My hair seems to have grown this past week BUT its still white (clear). 
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Good afternoon ladies,
I have my first infusion tomorrow at 11. My doctor prescribed 20mgs of steroid to be taken 10 hours before and another 20mgs 4 hours before. Is that a really high dose? I don't do well with steroids so I am really concerned. Also, am I supposed to wake up at 1 am and take the first dose? I'm just wondering how precise this all needs to be - especially when the nurse suggested my infusion may start closer to noon. Thanks!
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Hi Daniella - My first infusion I took 20mgs at midnight the nigh before and then at 6am the morning of. I asked the doctor if I have to take them exactly at midnight since I have to set the alarm to do so. She said since I didn't have a reaction to the first day, I could just take the 20 mgs at 6am. Yes if your MO wants you to take it at 1am that is when you take it. I would ask about just doing the morning dose if everything goes well for you. Did you mention to your MO about your issues with steriods?
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Thanks HomeMom! I hope there are no reactions and they reduce the dosage. The nurse said I probably won't sit in the infusion chair until noon bc of how busy they are expected to be. But if I did actually start at 11, with the premeds and then herceptin infusion for 1.5 hours, then I guess I should really take the steroids at 2:30 at the earliest.
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Daniella - I got 50 mg of the steroid via infusion as part of my premeds on treatment day. I had no bad reactions to anything, but the steroid made it impossible to sleep the first night. After my 3rd infusion I asked for the steroid to be reduced or eliminated; my oncologist reduced it to 25 mg but wouldn't go any lower. I had a lot less trouble sleeping once it was reduced. And it gave me a very rosy complexion and lots of energy for a day!
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My MO does 10 MG at 6 and 12 hours prior to chemo but he did mention that many MOs do 20mgs. I do set an alarm and wake up at like 3 am sometimes to take it.
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I forgot, I do get the steroids in my pre meds too. I take 5 little pills at 6am and that is it.
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I on,y got the steroid with my IV on taxol. Not sure of the dosage but did fine
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ps. One week PFC today! Yay! Very tired, though, which it did not expect.
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Good for you mmtagirl - last one for me this Friday - can NOT wait. It is cumulative so it is to be expected even though we go with what we have experienced. Can't believe the chemo will be finished.
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mmta, home mom- congrats!!!! Mine was today! Clarrn is tomorrow as well! Jamieh- yikes!!! Not what my skin stuff looks like. What did doc say?
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hi is there somewhere in this thread that talks about l-glutamine and dosage for weekly taxol? One member told me what she did and I might go with that but just wanted to check everything out. My onco said I could use it but said she didn't know the dosage and wanted to refer me to integrative medicine. I do have an appointment there later. Thanks
Nancy
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Nancy, I used it and think it helped. I was told 10 g 3x per day for 5 days. Was two heaping tablespoons of the powder I had per dosage. Ordered it on amazon. I sometimes cheated and got two in per day.
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I know I am becoming personal when I ask this, but is anyone in their early 30's? My Oncologist does not wish to do weekly Taxol, he wants to do Carboplastin/Taxotere instead. His reasoning was that since I am so young, he really wants to hammer this thing away.
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violetkali-I just turned 31. I did DD AC then weekly taxol. It is a third gen chemo and I am very pleased with everything I have read. My MO specializes in early age breast ca and does lots of studies also. I am not Her2+ but there are always specific reasons why each picks the chemo regimen. I know mine sat down with me and explained why he wanted me to have mine and also why not the others. There is no one size fits all 30 yeas
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mmtagirl yes thanks I pm'ed you a while back and it's your dosage that I think I will go with. I was surprised my onco didn't know the dosage but oh well. I asked about using vitamin b6 and she said no. Oh well I was more wanting the glutamine which she was fine with
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Mine is involved in studies as well, he is the best in my city. He is the one everyone comes to for their 2nd opinion. I was mostly curious, and I was kind of hoping for something a bit less intense.
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VioletKali, I am much older than you, but a young woman in my "starting chemo in September 2012" group here on BCO was treated with weekly taxol/herceptin. She was in her late 20's at diagnosis, and was stage 1a as I recall. My oncologist told me recently that since publication of the study results earlier this year, weekly taxol/herceptin is now "standard of care" for early stage HER2+ cancer. I didn't ask him at the time if he would qualify that for younger patients. Can your oncologist show you statistics on disease-free survival for carboplatin/taxotere vs. weekly taxol?
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I would think that weekly taxol would not be used alone in someone as young as us with aggressive forms. I think it is more often used after another regime like DD AC. Your MO sounds like a good one too! Good vibes sent your way. So many days I felt like I couldn't do this and now tomorrow is my last dose! You will get through it too.
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With the Her2+, my MO couldn't use Herceptin without doing chemo first, so I got two opinions. The first was do TCH for 4 rounds. The second was to just do Taxol for 12 weeks, weekly, a week off after every 3. His opinion was that the TCH was like using a machine gun to kill an ant, given the early stage. But I'm slightly older than you guys. When it was decision time for me, I decided that what ever choice, I was going to go for it and not look back. Either way, it sounds like your MO is knowledgeable in the area and you are in good hands. And, like Clarrn said, you'll get through it. It's awful in the midst, no question about that. But here I am 6 weeks PFC and in the middle of rads, and I'm starting to feel more back to normal.
Best of luck!!!
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Hi Ladies, I posted here a few weeks ago when I was first diagnosed with Taxol induced clogged tear ducts. So, I'm posting a follow up in case there are others out there in the past or in the future who are unlucky enough to develop this SE. Three weeks PFC my eyes started excessive watering and my ophthalmologist confirmed that I have clogged tear ducts. I had to wait a few weeks to get an appointment with a ophthalmologist plastic surgeon who this morning was able to drain the one that waters far less than the other. The procedure was painful. He would not do the same procedure on the badly watering eye today, as he could tell it would be too much for me. To quote him, my eyes looked as if they'd been rubbed with sandpaper, and the procedure on the one eye was painful because the chemo had "fried" my eyes! I'm coming back in 10 days to have an operation on that eye, where he will Novacaine my eyelid to numb it first. He admitted that part would hurt - no kidding!!! All he will do at that point is drain it as he did the other one today. He said about 20% of the time, simply draining it will solve the problem. He didn't talk about what happens next if it doesn't, but I already know that stents can be inserted. I do not want it to get to that point! Since he has to novacaine the eye next time to perform the procedure, he refers to it as an "operation." I called my MO's office to keep them in the loop and the nurse said she would get this doc's report and give it to my MO. I'd been told previously that none of her patients had required surgery for clogged tear ducts. Oh - the opth. plastic surgeon told me to use preservative free eye drops 4 x a day.0 -
Sitting in the chair for the last time - one hour to go! They said the DO have a bell and we are going to make some noise!
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way to go home mom! Congrats!
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Woohoo home mom! You did it!
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Thanks everyone!
Got home at 3 and I took a one hour nap in the chair, rang the bell and got the hayel out of dodge
I have a follow up appointment with the MO on the 26th - blood work and talk RO. I talked about an RO closer to me and she just wants me to make sure the equipment is new. The other doc has a down town office and they just opened this one in the hospital closer to me. Not crazy about a 40 min drive during rush hour and $6 in tolls.
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