Weekly Taxol group
Comments
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Taxol hates me. I'm supposed to talk with my doc this week about switching to abraxane. Rash puffy face anaphylaxis during infusion.
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Kerry - No. My rashes itch like crazy. I have a benadryl lotion that I put on everyday sometimes several times a day. It takes my rashes about 2 weeks to clear and then come back again. My MO already checked them out and wasn't concerned. Good luck.
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KBee - I'm so jealous! Can't even keep up the housework or gardening on my own. I get my infusions on Friday and not till Tuesday would I even drive. Maybe the combo of the chemo drugs (drug sensitive here) and the Hydromorph Cotin slow release 12 hour and fast release for severe pain may also have a lot to do with it. I can't take a Demerol nor morphine due to reactions and vomiting.No rash here thank goodness! Hope the get that worked out for those of you who are getting it.
Cathy
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Cathy, I am thankful to not have any trouble driving. I am surprised my energy us decent so far. Last weekend was rough, but I improved by Sunday night. I hope your energy returns soon.
Taxol 6 today... Halfway there (as Bon Jovi blared to me on my way home on full volume) as far as Taxol. Past halfway for total infusions, but I chunk things into segments, so.... Halfway it is. Hemoglobin up into the 10s, WBCs and lymphocytes lower and below norm... All important neutrophils lower, but still ok...thankfully! I want NO delays! Feeling good, but would love to ditch the daily bloody noses... Odd since my platelets are great.
Hope everyone does well this week. One week closer!!!!!
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K, I wonder what all those bloody noses are about? I have them too but I attribute them to the blood thinners. I have them about once a week though.
I do the same thing as you on the treatments. Halfway through Taxol! I don't really think about the fact that we are 2/3 of the way through the whole thing.
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KBeee- glad to hear your still good on energy. WTG!I also get bloody mucus and slight bloody noses. I too attributed it to the blood thinners but I guess not. I wish I was half way through. #4 on Friday and not getting Fridays off yet so will have 6 in 2 weeks from now. I was just told 5 months on Taxol weekly. Will ask more Tuesday as it is my first MO appointment since start. I do however still have bowel movement issues. Went a week again without one and had to take huge amounts of Restoralax (prescribed by on call MO) and Docusate Sodium 3 x daily by my own MO. Hope that doesn't mess up things.
Cathy
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Try: I am taking magnesium supplements because they are supposed to help with hot flashes, sleep and I guess they can also help with constipation. I have had big issues with constipation in the past and I am not having much of a problem with it now. I don't know if it is the Taxol, another drug I am taking called colichine or the magnesium is helping. Just a thought.
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Trvler
I too take magnesium, as I was told mine was too low. I am on low dose now. Thanks I will ask my oncologist if I should increase it again.Cathy
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I also take magnesium and use a stool softener 2-3 times daily for the first few days of Taxol. I also often eat Cracklin Oat Bran for breakfast. It is a favorite cereal (even though I cannot taste it) but usually cannot eat it because it gives me the big D. It does not give me the D now, but does seem to help keep things moving in the right direction. I think walking a few miles a day helps too.
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Maybe I will try the crackling oat bran. Can you tell me how many g of sugar it has, just out of curiosity?
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6 g fiber, 4 g protein, and 14 g sugar. More than I'd like, but it does seem to do the job digestively right now. I also often eat Oatmeal squares...does the same thing. I just am out of them at the moment. My kids ate them all!
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I'm also halfway there! I've been eating VitaTops - anybody else? Several different flavors, between 4-9 g of fiber and 100 calories.
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I'm not on blood thinners, but was getting bloody, crusty nose too. I think it's the Taxol thing.
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Ladies, While I was on Taxol, I had issues with dry and bloody nose (not full on). It does go away pretty quickly after Taxol. I think it may also have something to do with the lack of nose hairs. A humidifier in my bedroom helped a lot with the dry nose and throat. For me the Taxol really worked so the SE's were worth it. Good Luck, MJ
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I had the dry bloody nose on Taxol also and I wasn't on blood thinners. I kept a log and it got a lot better by 2 weeks PFC and was totally normal at 3 weeks. I still don't have nose hairs so I think it's the drug being hard on our mucus membranes more than the hair issues.
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I had bloody noses all through Taxol and they go away pretty fast . I've been on herceptin alone for the last 2 1/2 mo and no more bloody noses
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I keep a bottle of saline nose spray handy for when my nose is dry at night.
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Thanks to all weighing in on the bloody, crusty nose thing. I'm on Herceptin (but not blood thinners) and I'll be thrilled if this nose situation is Taxol and not the Herceptin (as I feared.)
Finished #3 of 12 yesterday. Hair is definitely thinning, but not enough to shave yet. Having it fall out is psychologically tougher than I thought it would be – I thought I would be fine with it. I'm not, not really.
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Cloudy: We get it. I too thought I was ok with it…until it happened. AC also made me depressed, which Taxol doesn't seem to be. Hugs.
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my ENT prescribed a nasal spray to help with the endless herceptin runny nose... Which was what replaced the bloody nose once taxol stopped
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I have a bloody crusty nose too. I assumed it was the taxol. I'm feeling pretty frustrated today. I keep having an allergic reaction to the taxol. I was supposed to either switch therapies OR start taking a steroid the night before treatment to see if it helps. I called my MO on Monday to discuss switching therapies. She never called me back, and never called in the steroids. So now I don't know what to do and really not looking foward to tomorrow.
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Ugh, Tresjoli2: That's awful.
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Tresjolie, I had took Decadron which is a steroid in pill form the night before and day of Taxol. When I was on A/C I had pill form and they did intravenous. Maybe they can do it intravenous this time. Hope it goes better this time for you. MJ
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my MO kept me at a higher level of Benadryl and steroids through all my 12 wkly Taxol/ H treatments, not because I had any reaction to the Taxol and needed it but because the steroids gave me such a wonderful lift that the 3 days after chemo each week were my best. I loved having my old energy back just for a few days a week
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tresjolie2 I thought if you have taxol reactions they can switch you to Abraxane because it supposedly doesn't have as many side effects. But I think it is more expensive which is why it isn't used first. I don't know for sure, but that's what I have read on these forums
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Italychick - that's what happened to me. Abraxane is more expensive and I had to skip a week while they got authorization from the insurance company.
Tresjoli - maybe that's why you haven't heard back? No meds are required the day before.
I hope this gets sorted out for you
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Thanks everyone. My doctors office called me at 8pm to let me know they had called in the steroids. I had an hour to get to the pharmacy and had already put my three year old in bed. But I have the med. I take it tonight, then tomorrow morning, then in my iv. Fingers crossed. I will be talking to them about Abraxane tomorrow for sure.
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Tresjoli, I hope you ask why it took them until 9:00 the night before to call in the steroid. That is very disrespectful of you and of your time. You need to call them out on stuff like that; it is unacceptable when you called a few days ago. I hope all goes well today with no reactions.
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Tresjoli, I am in the chair with you today!
I had a reaction to Taxol the first time too. The 2nd time they gave me the premeds then let me sit for 30 minutes then ran the Taxol slowly and I didn't react. Hoping it all goes as well today!0 -
Fingers crossed for both you ladies, today.
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