Weekly Taxol group
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thanks Trvler. I have a whole foods near me that I will check out.
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I take 2 tablets (100 mg I think) daily and 30 mg of l-glutamine. The brand I got on Amazon is the same brand that Natural Grocers carries and recommended, for what that is worth.
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how about the b12 dose?
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Vicki: They might advertise that they are selling the same brand but the level of ability to counterfeit products is amazing. I once bought some hair stuff that I couldn't find because it was a summer product. It made my scalp itch. The packaging was identical. Just because they say it is a certain brand doesn't mean that it is. A good clue is that they price is significantly lower than the normal retail if that is something you can check.
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Heading in today (my sister's going along as well) for #11 of 12!!! Last treatment is next Wednesday. Quite a thing to be Thankful for on Thursday!!
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Yeah, Justmax! It's great when you are in the homestretch!
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awesome justmaximom!!!! such a good feeling to be almost done and ring that bell LOUD next week!!!
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Hi everyone! My name is Ruska. I also wanted to join this group. I'm 38 and was diagnosed with stage 3. I recently had AC and now on weekly Taxol. I've done 4 out of 12 rounds.
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My MO put me also on Zoladex injection. Anybody else has Zoladex same time with Taxol?
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Ruska, I had zoladex all throughout chemo and my MO just stopped my injections a month after finishing taxol. Glad to see you're done with AC! I found taxol to be a lot more bearable!
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Trvler - Yikes! That is scary. I guess it's back to Natural Grocers or Whole Foods for my glutamine.
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Yeah, Vicki, I know. I saw so many people buying supplements throughout my cancer experience and it worried me how many of them were possibly not getting what they thought they were getting. It's one thing if you are just taking them as prevention but when you have cancer and you need them for side effects or something, it's a whole different thing entirely.
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My oncologist put me on Zoladex injection as well mostly for ovarian protection stand point not much for oncologic purpose. While your ovaries are suppressed, the chemo shouldn't target the ovaries because they are not considered fast growing cells. I'm 32 years old and I will start my 1st taxol (my only chemo tx for my cancer) on 12/3.
Ruska: did you have Zoladex with Taxol not AC?
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Tesla, I didn't have Zoladex with AC , but the thing is that I changed my MO when I started Taxol and my new MO recommended me Zoladex.
StefLove, I'm happy to be done with AC!!! Taxol is easier on me. 7 more to go.
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Thanks for all the well wishes. 11 down and only 1 more to go and I'll be finished with chemo. I stilll have radiation and also have to get my port removed but finishing this part is just great!
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LUSTMAXIMOM, congrats on getting close to a finish line of this hard road. My MO said the radiation will be much easier! So almost done with the hardest part.
Talking about the port...Doesn't look like My SO will be removing the port right away. I guess it's because of the stage 3. I should ask him next time. What about you everyone else? Any thoughts?
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Ladies - Just finished radiation #10 today (of 25 whole breast, then 5 tumor spot only ones) and it is MUCH MUCH Easier than taxol! Hang in there!!
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Ruska, Thanks! My MO seemed to think that I would get my port removed prior to radiation but when I saw my BS she said that my RO preferred it if patients kept their port until radiation was over. However, she did say that if he said if he's okay with it just to call her and set it up, she says it's a pretty quick process. Honestly, I think everyone does it differently. I'm fine with leaving it in until after radiation since the infusion center is located in the same office area as my RO. I'll probably only need it flushed twice and that shouldn't be a big deal.
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I can't believe we are almost there, justmaximom!!!! Be in the best health this week, see you at the finishing line!!
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I have a question. Now that I'm on a weekly Taxol I noticed that on day 3and 4 I have pain in my scar( after bilateral mastectomy ). When I mentioned it to my MO she said it's probably related to weather changes. I had to disagree ... It was not any weather changes lately. Just curious if anybody else experience this scar pain?
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Hi everyone! I have 1 AC treatment left next week and then I move on to weekly Taxol. The mouth sores are the worst part of AC for me. Horrendous pain. Please, please tell me none of you have experienced mouth sores with weekly taxol.
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No mouth sores on Taxol for me.
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I haven't experienced mouth sores with either AC or Taxol.
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No mouth sores on AC or Taxol. Taxol has been easier than AC -- I feel pretty normal.
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Had mouth sores pretty bad when I was on AC only a few small ones on Taxol. Knock on wood, I have had very few side effects on taxol it's soooo much better than AC!
I'm going for #10 on Wednesday, hellooo home stretch!
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I guess I need to find someone tat had mouth sores on AC and hopefully didn't get them with taxol. My MO seems to think that I won't have a problem with them then. I almost had to delay my 2nd ac because the sores were so severe. They are that bad again with round 3. Thankfully, I have an extra 5 days to heal because of Thanksgiving.
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Run, do not walk to your nearest Whole Food and buy some lysine. Pop 2 or 3 and them take them periodically throughout the day for your mouth sores. I used to get them all the time and now I never get them. Never had any during chemo but I had my lysine standing by. Of course make sure your MO is ok with it.
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Ruska: I didn't notice pain only in my scar area (my whole body ached), but someone else posted that they experienced scar pain during Taxol a while back...can't remember who though.
Homeschool: I had a few mouth sores with AC, none with Taxol. During AC I swished with salt/baking soda water mixture several times a day and that helped. I didn't keep that up with Taxol and never got any mouth sores. Taxol was overall much easier for me than AC. Good luck!!
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GingerChi: thank you for such a quick response , I was worried. Now I know someone else had the same experience
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I have not posted on this forum but have been following along and I am wondering if anyone experienced neuropathy in their calf. I have numbness in my hands and feet despite using ice each time but after my first does dense treatment I experienced a feeling of squeezing in my calf. They switched me to weekly taxol after that and also check for a blood clot which I did not have. It has continued to get worse along with my hands and toes. Today was my 10th treatment and my doctor said no more that she was afraid the neuropathy will not go away. My concern is have I had enough of the taxol based on my DX and should I just move forward with my next step with is a MX because the Lumpectomy did not get clear margins and they want to remove more lymph nodes. Or she said I could wait until it gets better and then do the three treatments or do 2 more. Any info would be appreciated. Everyone on here goes through so many decisions and it is always hard to know what is the right one. You are all so strong and I commend each and everyone of you going through this together.
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