Weekly Taxol group
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I get Benadryl first, then Decadron, then Zofran and Zantac. I usually nap right before or after Taxol then awake for Herceptin.
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Sawyer-- CONGRATULATIONS!!!! SO HAPPY FOR YOU!! How emotional with your daughter coming in! Sweet smell of victory. My friend!!
Sue1966- I have had a drypatch on the back of my hand and my elbow. I put a cortisone cream to relieve it. I heard that it is from the Taxane group of drugs...killing the fast growing cells in your body
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I had Taxol # 9 last Monday = It definitely was a killer - It's Saturday am. and only now feel I can get out of bed for small increments. Extreme bone pain, exhaustion, my teeth hurt, even my little wisps of hair hurt.
Oncologist is sending me for a bone scan to check
I just want it over ... and here I thought I was getting through relatively unscathed ... this is brutal
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Sawyer big congratulation!!! Fantastic news you did it!!! :-)
DFWFLYGIRL: many thanks I just ordered L Glutamine powder 2 days ago and will take 30g asap. Im also taking B6. Bone and joint pain is ok now (its D6) but still can feel. I have energy today but has pain in my tummy randomly....
LilNutmeg poor girl wish you get better soon. Im gonna get my #2 on Monday. I was told that its gonna be easier than AC and I should not worry about it as I did very well with AC but the 1st week was very bad especially with the pain in my joints, bones and muscles. I could get up from Friday only but was so exhausted and my tummy hurts too. Just hope that its gonna be better later on.
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Thanks you...I meant is there a week in the middle where I didn't get a dose?? Or they always consecutive weeks..
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Mama3M--Oh, ok, mine were scheduled consecutively.
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Mama 3M I'm on dose dense which means every 2 weeks. Only 4 doses though. My AC was the same. They wanted a concentrated dose in me as fast as possible due to my diagnosis.
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Same Val. This is why I cannot have anything invasive done. My Taxol starts April 19 and although my MO says it should not be as hard on me as the AC I am still quite nervous. Seeing as I end chemo on June 2, it isn't weekly though. I still wanted to join the discussion.
Piper
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LilNutmeg--I hear you, it's brutal. I was also told Taxol was easier than AC but I'm finding it's the opposite. I'm on #6 and wondering how I'm gonna get through another 6. Today I had to go to the hospital to get a shot of neupogen due to white blood cells being too low. They told me "this shot can give you flu-like symptoms and bone/joint pain lasting 2-5 days". I have to get them twice a week on top of the chemo! Congrats on making it to #9 though, you're near the finish line.
Mama3M--Mine are consecutive weeks, 12 weeks with no break unless something happens like getting sick with something unrelated to chemo or blood counts being too low in which case they can postpone.
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I just finished #10 of 12. They had me skip last week due to neuropathy in my hands and feet. I am handling taxol much better than AC.
Question for others, the MO said if neuropathy comes back, he did not have an issue skipping the last one or 2 doses of taxol. Has anyone else done this? Are there risks....
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Thank you for all your quick replies.
Dp I need to ice my hands or color my nails blue like in taxotere??
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Mama3M, I iced my hands and feet and still have terrible tingling and numbness. Followed directions to the letter on the icing gloves and boots. Still having foot and hand problems, MO said I would as they are not convinced the icing helps everyone. Nurses said the same thing. Depends on the person. There are about 10 of us that have the same chemo, some used gloves, others frozen vegs, and a large group of us still have the tingling and numbness.
I have not had any nail problems, I have dark polish on them and nail strengthener the entire time.
Piper though my side effects for Taxol are grueling the first few days, I seem to recover better than I did on AC. On AC i felt awful the entire time. It was doable, but awful all the same. Had to take round the clock meds for nausea and that helped while on AC. Taxol has been gentler if there is such a thing for me.
Taxol seems to be bad for me for 4-5 days then day 6-7 are recovery and after that it's like no chemo at all. Can't say that for AC. Though I did do a a lot outside the home when on AC. I did have the bone pain, and extreme fatigue on Taxol those first few days. I call them in and out of the bed days. Bed to couch to bed. Then it's gone. Yes I take the Lglutamine, b6 and claritan. Hate to think what it would be without those aids.
Just my experience. Everyone is different. As you know.
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Thanks Val. I am so sorry for all of that. I guess I won't know until I get there.
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Piper33: I agree with Val. So far I have the same experience. AC was tough for me. I was very sick on the first 5-6 days the most horrible was the nausea. From day10 I could live my normal life like I dont have chemo at all.
Taxol is also tough but not as much as AC was. I dont have nausea at all but have bone and joint pain. Day3-5 the worst, energy level is low almost zero. Day5 is better though and D6-7 are fine. I was told that Taxol is easy, most people dont feel any SE but its not true. Its SEs are different but defo there. However everybody reacts differently. I have #2 tomorrow and curious how Im gonna feel as Im having more and more.
To be honest I believed what I was told that Taxol is easy. I was not prepared for SEs of Taxol and when it happened I thought thats just me. I joined to this forum and realized that there r so many issues with Taxol.
Its still not as bad as AC
fingers crossed for u Im sure you will be ok but be prepared with lglutamine and b6;) hugs for u! 0 -
Should I arm myself with Claritin and Benadryl at home? I suspect I should ask my MO if I can use first?
sounds like this is a good aid
Piper
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Piper I would ask if ok, but I definitely took the claritan and benydryl with my MO's ok.
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Is Taxol affecting anyone's skin? I keep breaking out in hives, only on my face, and I have extremely dry skin. Nothing seems to help. Anyone else?
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Veronica, yes!!! Taxol is destroying my skin. It's particularly visible on my face but also, I get blisters on my feet just walking in my normal comfortable shoes, nose bleeds (NP says that's from skin changes and losing nose hair that normally protects the skin), gum bleeds when I brush my teeth, and dry skin everywhere. Can't offer any solution since I've tried many and nothing works for me either.
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Girls, Im using raw shea butter for my skin and that helps. Also you can apply it in your nose. My skin is very dry also. It started with AC and shea butter helps a lot.
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I have #6 of 12 on Tuesday. Over the weekend, I started having foot and hand numbness. I know a lot of people get this with Taxol, I'm wondering at what point does the Dr delay a tx for this reason. Does it have to be "bad" or would they delay it just based upon the fact that the SE is present?
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My nose stays really dry and bleeds because of my cpap machine and allergies. i try to put medicated ointment or aquaphor up my nostrils.
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my skin breaks out in a terrible rash on days 5 and 6 then it gets each better each day
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Day 4 of #5 Taxol. Fighting a cold and cough. Is it okay to take cold or cough medicine? I did and while it helped the cold...I overall feel lousy:(
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lawyer180.......they delayed me on the taxol, and I didn't think it was all that bad. The neuropathy can become permanent, and they want to avoid that at all costs.. I was on #9 , then 10 was delayed 1 week. They are having me see the PA before my next infusion to see how the numbness is.
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Glad to hear I'm not the only one with skin issues. I have treatments on Mondays and my skin is okay, but still dry until Friday-Sunday, when it itches like crazy and I get hives. I'll have to try the Shea butter
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DFWFLYGIRL--I also am suffering from cough/cold/congestion. My MO said it's fine to take OTC cold meds to alleviate the symptoms.
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Thanks Lawyer180! I went ahead and took some. Hope we both feel better soon!!!
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3 weeks post Taxol and a few things to share:
Noticed when I stopped taking the Claritin, the knee/leg pain improved in leaps and bounds. Researching Claritin showed it can cause leg pain. Bloody/scab nose is almost healed. Still very tired- naps are still part of my routine Losing the water weight from the steroids. Don't have an appetite- anyone else with this? Tightness of the chest, which causes coughing- not sick, just coughing a lot.
So happy to be done and seeing improvements! Staring radition tomorrow- this soon will be done!
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FYI for those with skin problems, might be worth mentioning to your MO. Saw mine today and she said I had folliculitis, caused by chemo destroying cells in the skin that keep bacteria in check. She gave me a topical antibiotic prescription.
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I'm on my 5th week of radiation, and I'm getting blisters now. I had a huge blister develop this past saturday. I have very large breasts and the blister on the underside of it almost to the crease where my bra hits. It was just hanging there! I put a bandaid on it, then when I removed the bandaid, it took some skin off
dont use bandaids or tape.....so b4 radiation yesterday, I asked to see the Dr. He said its normal, and told me not to pop it, and keep aquaphor on the area. If it pops, keep aquaphor on it with non-stick gauze covering. He also let me skip my rads for 1 day.I'm trying to keep moisturized with aloe, aquaphor, coconut oil, but maybe I'm not doing enough?? Ladies, just be sure to moisturize!!! Its really uncomfortable, glad im close to the end!
Jodi
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