Weekly Taxol group
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Just found out I will be doing Taxotere instead of Taxol, is there a Taxotere thread?
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KDT- congratulations 😎. Does Herceptin cause hair loss?
I have had a naphostomy tube for six months because the cancer was crushing my ureter. Went six weeks ago to change the tube out and they put dye in and it still wasn't going through. Went yesterday to change out the tube(has to be done every 6 weeks) and I was so shocked when he said it was working. He capped off the tube and if by chance it doesn't work I can connect the tube and bag myself. If I go a week without issues the tube can come out. Thank you God and thank you Taxol. Was weird to have to get up in the night twice to pee but I am not complaining. Nice not to have a bag strapped to my leg
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Dianarose, I'm happy for you that you get this improvement in your routine. You really deserve a break.
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OG56,
Sorry that you're going on Taxotere , instead of Taxol. Did your oncologist discuss that hair loss may be permanent? There's a lawsuit pending on Taxotere, regarding permanent hair loss. I don't know much about it - but best to check it out the side effects. Good luck with your treatment and that it works. I'm on Taxol. Last set of scan were good and praying that the next of scans are equal to or better than.
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Follow-up 1,5 week post last taxol
I developed an awful chest pain before the last taxol session. I got hospitalized with 2 big vit B infusions and contramal drops to see how the pain goes. They also took immediately an ECG and chest X-Ray. They told me they could postpone or even cancel the last dose. But the pain was manageable the next morning so I got the last taxol.
After that I had several days really bad chest pain. Contramal drops caused migraines and I was not allowed to take ativan simultaneously (have chronic anxiety). Was just crying in panic for 3 nights. Now it's better... hope it's not permanent!
1 week after taxol numbness in 1 foot started and all my nails are hurting. Most foot nails changed their color as well.
Hope this is the end of chemo for me. It's really so bad we need to deal with so many bad side effects.
I wiseveryone a good recovery, no side effects and a cancer free, happy long live!
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Hi Elvin, I hope you continue to improve. How many Taxol rounds did you have?
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Hi Elvin, hoping you begin to improvement since your last Taxol. I have another 3 rounds before the next set of scans and am praying for good results and that they will be my last round of Taxol for a long time. My nails are in bad shape and the neuropathy in my feet and hands are manageable but each week that goes by, I think it's getting worse.
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Hi all, I wanted to post in here for new people reading that I have done 4 of my 12 Taxol. I have experienced nothing except some tiredness. AC was much harder. This feels like nothing to me. I hope it will stay that way but I will see. They only thing I do to help with things is I take B-6. It feels like sometimes I don't want to talk to much about feeling okay but I like to hear about the people that are having low syptoms because it helps understand that everyone is different.
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Marigoldgirl--So glad you are having a smooth experience with Taxol. I agree, AC was much harder. When I had my first Taxol treatment in November, I asked the nurse, when it was finished, if that is all there was to it. It felt like I didn't even have chemo. I had a very similar experience as you throughout Taxol, which I finished on Jan. 20. It was pretty uneventful. It was told that the effects are cumulative, and that is definitely true, but still not bad. About halfway through I started experiencing leg, hip and back pain about the 3rd or 4th day and it always lasted 2 days. I did get more tired towards the end but not like I did with AC. Are you getting any neuropathy? My MO told me that 60% of people get it and I was lucky enough to be in the 40% that didn't. Please post as your treatments progress as to how you're doing. Take care.
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Marigoldgirl....thank you for posting your experience. I have done 3 of 4 AC treatments and am starting to read up on what to expect with Taxol. My oncologist told me that in her experience patients handle it better than the AC, so I was a bit disheartened when I was reading all of the challenges some are facing. So far I am tolerating the AC very well with minimal side effects. I recognize everyone's journey is a bit different but I am more hopeful about my 12 rounds of Taxol having read your post. Thank you for sharing.
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this is my second go around with chemo and I'll be starting taxol on Valentine's Day. I'm really hoping for easier side effects like you guys are describing.
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Hi All, This is my 10th month on Taxol. In the beginning, the only side effect was hair loss. As I continued with the treatment, the neuropathy began to settle in. I didn't experience any pain in my joints and no loss of appetite, no nausea, so I consider myself lucky,
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Hi, I didn't see this weekly Taxol group either. I just finished my 6th Taxol on Wednesday. I am low to recur.. it's at 20%. My hair started shedding on Taxol 4. I've had mouth sores starting on my 2nd Taxol...but taken care of with prescription mouthwash. Heartburn.. I take tums, does the trick. Had a headache on the 2nd Taxol too, but not since then. The steroids were making my face puff out, but after telling my Oncologist on last visit, it seems to be better. He must have adjusted it.
It's humbling to say the least to go through this. Losing ones hair is traumatizing. Three months, 12 treatments feels like 3 years. The waiting in between weekly treatments is hard as well. I did put in my treatment on the setting page. Hope that is how to do that?
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I had 12 Taxol treatment.
I got maybe too soon too active (running and core exercises) now have again more pain in my chest by the way. Mybe it's true that the body needs longer time to recover.... nevertheless I have still the chemo inside me......
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My hair is actually starting to grow back since my Taxol treatments started. My MO told me it would. I've done 7 of 12.
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pinkninja9560, I wish you well with your second go-round with chemo. I see you had Taxotere before. I've heard that it is rougher than Taxol. I hope Taxol is a better experience for you. I see you have Herceptin and Perjeta, too. I have no experience with those because I'm triple negative.
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bravepoint--my hair also started growing back on Taxol. I started seeing it about the 6th or 7th treatment too. I finished on Jan 20 and the hair that started growing during Taxol is now about a half inch long but there is no other new hair coming in. What I have is very fine and very thin, like a newborn baby's hair. I still have lots of bare scalp showing. It can't come back fast enough! The last of my eyebrows fell out yesterday with no sign of them coming back. Lashes are gone too. I hate looking in the mirror.
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Seg24, my hair began growing back after my 12th treatment. It was like peach fuzz and then it was gone but now my hair is growing back. Like you, it is very fine, with no color. My eyebrows and eyelashes began to fall out after I was into my 3rd round of Taxol. No sign of them coming back. I've been using temporary tattoo eyebrows from Curve Diva. It hard to tell from a distance that they aren't real. For my eyelashes, it's makeup - eye shadow and liner. Both my dermatologist and ophthalmologist said I could use Latisse to help my eyebrows grow back.
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OG56
I did taxotere my first go around in 2014 but since I was her 2+ and er/pr - I also had carboplatin, Herceptin And perjeta. I know there's a lawsuit about permanent baldness but all my hair came back as you can see. It actual came back wavy which I was happy about. I'm not sure if there's a thread for taxotere but you can always start one 😉
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pinkninja - why were you stage 2B with first diagnosis? And how did you learn of your recurrence?
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seq24, My hair is is really coming in on the top of my head but white! The sides are thinner. My eyebrows are coming back too but again white so they don't really show much. I never lost all of my eyelashes or eyebrows. My hair had some gray in it before but I'm going to look older than my mother the way things are looking now!!
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kdtheater-I was stage 2 cause the monster was growing so fast. I was laying in bed one night and ran my hand along the top of my breast for some reason (I think I had a weird chest pain or something) and omg I felt a huge lump, it was really wide. I went for a mammogram and ultrasound and it was around 3 1/2 cm wide. they did a core biopsy and I was diagnosed her2+, er/pr-. When I went to the breast specialist 2 weeks later she did another ultrasound and that thing had grown one cm!
Within 1 week I was doing neoadjuvent chemo (before surgery) then I had bmx and several reconstructions. December 2014 when they did the bmx, they removed 3 lymph nodes and they and the margins were clear, I was ned.
Fast forward to now, actually several months ago. I've been having a lot of rib, chest and back pain but I'm so used to it I just sucked it up. then I got really sick after Christmas and couldn't shake the cough. Finally after about 5 weeks, I went to an urgent care for medicine and a breathing treatment and they took an xray to rule out pneumonia. The radiologist called me and said I had several lesions on both lungs and to follow up with my dr.
I called my onco, had a cat and petscan last week and found out Friday that I'm stage iv. It's spread to both lungs, both kidneys, one of my adrenal glands, my liver and a few bones.
I'm sorry if I keep repeating myself on these forums but I am so overwhelmed my brain has slipped right back into chemo brain. Funny thing is, I still had it!
Can anyone tell me about the dose dense Taxol? I'll be having that every week indefinitely and Herceptin and Perjeta and Zometa for my bones every 3 weeks. I had my chemo class today and the PA told me side effects are minimal and my hair may only thin, not fall out all the way. I need to know this before I go get my fohawk so please help!!!!
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hi pinkninja, sorry your going thru so much. My prayers are with you. I am going for #6 of
my weekly taxol treatment. I have short hair and it is now starting to shed, but I still have hair on my head. I don't know how much I will lose. Im waiting to see before I do any head shaving. This is my 2nd go around with this horrid disease, all we can do is march on
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dp1
that stinks for you too. Is this your first round with Herceptin and Perjeta? That's cool about the hair, maybe I'll wait. I actually kinda liked being bald the last time because I saved myself so much time not having to wash and dry and style it...but I was bald. I did enjoy the free Brazilian, bahahahaha. I spent $800 on 2 wigs and hated them, they made my head itch and were hot. on chemo days, I work crazy wigs and most other days I wore a pink ribbon bandana or cool hat. I'll look for some pics. I consider myself pretty funny and my humor helps me deal with life. When I broke up with this guy back in my single days, i asked him if there was anything I should work on myself (I have no idea why!) and he said and I quote, "maybe be more spontaneous and I don't think you're as funny as you think you are!" WTH?!?! BYE!!! The nerve....I'm hysterical...
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12 days out of PFC, left hand neuropathy seems slightly better but the feet are still the same. Hair that had grown during Taxol are growing a little longer but not much new hair growth, especially the front, i see only a few strands and can feel a few stubble.
I am feeling more tired, maybe no more steroids and also out of breath easily if i walked too fast. I do experience some muscles aching now, wonder if this is normal.
Tomorrow i will be going for my CT scan to prepare for the rads.
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pinkninja35 - I've been on weekly Taxol. Each one of us is different. Some lose hair, others is just thins, and the lucky lose nothing. I was told it would happens between week 2 and 3. I was not one of the lucky one. My hair began falling out week 4. Good luck.
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Pinkninja, Don't worry about repeating yourself, tell your story in what ever way works for you. Good riddance to that boy friend. I don't know the difference between dose dense and regular Taxol. I'd ask your MO or your infusion nurse. You have a lot to deal with so it's no wonder you're feeling over-whelmed. You deserve to get some better news. I've read that stage is more important that grade but my tumor is grade 3, also, and it seems to me that the aggressiveness of the cells is a big factor.
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I just started chemotherapy. My first four treatments (one is done) are Adriamycin and Cytoxan. The last four treatments will be Taxol, if I choose to do them. I've read some research stating that Taxol doesn't have much data backing the benefits of it for my type of breast cancer. Anyone else out there making or having to make this decision? Please let me know your thoughts.
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Hi all
I read your posts and send all of you positive thoughts. I get my port on March 1st. Taxol starts week of March 23th. 12 weeks 1 x week. Herceptin every 3 weeks. Then 35 radiation. It is overwhelming to think about. All the unknowns of SE that might happen. I'll just be glad to get it started. I'm sorry if I've repeated myself. Hard for me to find my way around this forum. Thanks for suggestions of things that might help.
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Started Taxol Feb 6th. This is my 2nd dose. I started taking Herceptin and Prejeta with the taxol last week. This week was just Taxol. I am broke out in pimply looking bumps. Did anyone else break out like this? Could it be from one of the Pre-meds?
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