Weekly Taxol group
Comments
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DodgersGirl. Tomorrow is Taxol #8 for me and I also have the stuffy/snotty/sinus nose.
I went from my nose dripping like a faucet on the AC to this with the Taxol!
I agree with all your advice to Weendeez414 and would add try to walk/exercise as much as you are able too.
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Bmac16 - are you taking anything for the stuffy nose? I find it hard to breath thru my nose with this SE
Thanks
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I had a stuffy nose the whole time I was taking taxol. It never went away. An nothing cleared it up. It was very annoying. Now that i am done with AC I hope my nose stops this constant dripping. It feels like a faucet!
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I too have the stuff/snotty nose with the taxol. Have started using saline nasal spray and putting lots of vaseline inside the nostrils at night. This has been the most annoying of SE for me. But if thats the worst it gets, I will deal with it. Taxol #4 tomorrow.
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It's so gross, but I had blood clots in my nose for weeks that awakened me every night far more than my usual Fibromyalgia awakenings. Saline spray helped a little, but Breathe Right strips were what saved me. I'm allergic to some adhesives (painful, red welts); however, as long as I used plenty of water in the morning to aid removal, pulled them off slowly and varied the position as much as I could from night to night, I never suffered more than a reddened nose.
Lyn
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lyn,
I use Breathe Right every night, too. And now use saline spray whenever I get up to use the bathroom. The mucous gets so dry I feel like I can't breath thru my nose at all and now spray my mouth with ACT dry mouth spray. Hate this SE
Thanks for sharing
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Thank you so much for taking the time to reply!! Yay! You are at the half way point! I get my Port next Tuesday and start Chemo on Thursday. Nervous, scared, sad... so many emotions... I love the fighting spirit and support I see here.
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Wendeez414- best of luck on port installation and your first chemo. Please know you can post your questions and experiences here. These people who are a part of this community are strong, sharing, and caring people.
You can do this. It will seem less scary once you get thru your first chemo infusion.
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hi everyone been a bit tomorrow is #7 out of 12 and my left side hurts all the time. That's my worst side effect so far. It's gradually been getting worse I have taken pain pills a couple times seems like it's lasting more days than before. I did ask my doc and he said he thought it was inflamed digestive track. Anyone else have this? Any remedies you can recommend?
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MJPow- AC 4 left me really sore on my left side. I was worried it was my spleen from Neulasta but NP said it was most likely my intestines. I don't have diverticulitis but imagined pains were similar. I had been eating nuts as a quick source of protein and popcorn as a snack. I stopped both and got better in a few days. I now eat nuts more sparingly but do still eat popcorn. Don't know if diet could be contributing to your issues or not but thought I would share. In my mind, the intestines are suffering from chemo and so can be easily inflamed by food.
I sure didn't sense the nurses were too worried about my left side pain but then again they did ask the following week but my pain was gone.
Please let us know if you do find a resolution as I am sure we can all benefit.
Good luck with Taxol
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Weendeez414, welcome to a great community of support and information. I am sorry you have to join this group, but it's a group of great people who are all at different phases of their cancer experiences, so very helpful. I was diagnosed recently and will be receiving my 9th dose of Taxol on Friday. My side effects have been pretty minimal and I am so very thankful for that. I have joint, bone and muscle aches and have had very little nausea, have had headaches, mouth pain and tenderness all over my head, but still have hair (it;'s thinned a lot), but all of these side effects have been very tolerable. My biggest issue has been fatigue, which has been a big challenge for me as I am usually a high energy person who lives a very busy life doing many things I love. What I have found that works for me with fatigue is diet and exercise. I have changed the way I eat and eliminated all carbs (except from fruits & veggies), no sugar, low fat, no dairy except eggs and eat veggies at every meal and snack. I have a vita mix and drink power packed veggie smoothies 3 times a time. Here is example of a drink: Collard greens, (I rotate my greens with different ones) spinach, fruit of choice, hemp or Chia seeds, almond milk, plain Greek yogurt, vegan protein (no soy) and L-Glutamine. I love these drinks and have found that when I don't have them my energy goes down. I have eliminated soy from my diet as well. The cancer center I go to has a dietitian who has been a huge help and has battled breast cancer herself. Exercise has also been a big help. I go for 2.5 -3 mile walks a day, but I also give myself permission to do a few brisk 15 mins. walks on days I am physically exhausted and just can't do the longer walks. Everyone of us are different and our bodies respond so differently from the next person with the same diagnoses and treatment plan, so find those healthy ways to cope that will work for you and communicate with your doc. Best of luck to you.
I am laughing at the nose issues, because I am dealing with the annoying pipeline myself. A friend of mine went to an allergist when she was going through chemo because her nose was such an issue and the doc explained to her that our nose hairs also fall out and the hair in our nose play such a crucial part in working as a filter that protects us from all the junk in the air. Makes complete sense to me, but there is nothing to help. Sorry all, sniffle away and invest in some Kleenex stock
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Hello ladies, I'm so pleased to have found this group, and I've been lurking for a few weeks, learning a lot. In fact, I must have come here back in 2013, because, unfortunately, this is not my first weekly Taxol rodeo. Yes indeed, the crap came back. Tiny, local, hasn't spread, but there's no getting off the hook. It's back to the chemo chair with me. The good news is that I don't have to have "the red devil" again, because you can't have it twice. The bad news is that it seems I can't assume my experience with weekly Taxol will be a repeat of last time, which was reasonably easy. Right from the first treatment, despite all the premeds, I had a reaction. Damnit. For my second treatment, they "titrated" the infusion over almost 2 ½ hours and, thankfully, no reaction. The note on my file from my oncologist said to repeat the extra steroids from the first time and run it over the standard time. To which I strongly objected! Doesn't it make more sense to avoid a reaction by slowing down than by shoving me full of more chemicals? Then, to throw another wrench into the works, my WBC was too low for the third treatment and it was cancelled. Grrrr. Consequently, I've been introduced to the world of self-injected Neupogen. So far just a few headaches and a sore jaw in the morning. Fingers crossed that's all I'll have to face. Oh, and I had naively hoped that I might keep my hair this time because last time, though I lost every last strand on FEC, it started growing back on weekly Paclitaxel. No such luck. I've got about 1/3 left and it's falling out fast.
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I understand completely. I'm on taxol herceptin #10 tomorrow. I know family and friends mean well but some days it's just so hard still . It's always a comfort to check in here and know I'm not alone in my feelings
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Not good, in ICU
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tonyaberryman, you are in ICU? I am so very sad to hear this.What is going on? I wish you lots of strength and a very quick recovery.
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Helenfaith - I passed out Sunday night at the supper table and my blood pressure was 58/??. My Mama and BF called 911 and they transported me by ambulance. The doctors at first thought it was an infection, a UTI, but after further testing it was found I didn't have either. They believe it's from the Taxol treatment, of course my MO doesn't. I'm not taking another chance with Taxol, I'm refusing it, she can either listen to MY body or I'll go somewhere else.....period. I'm tired of this Taxol already, 2nd treatment went into anaphylactic shock and now this! I'm tired of being sick and having these issues. If my BF hadn't insisted on me going to eat with him at my Mamas restaurant, I would of died . Pretty scary, but I'm still here by the grace oh God
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tonyaberryman- oh I am so sorry to read your post. I sure hope they get you better very soon!! Prayers coming your way.
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tonyaberryman,
I am very sorry to hear you passed you. I hope you are feeling better. They are sure it is not a virus from something? What were your blood counts?
Taxol for me was way easier then AC. I just finished AC last week and it was horrible.
Good Luck
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They have run so many tests and tested so much blood, they all agree (except MO), that's it's got to be the Taxol. I'm feeling better, I'm just ready to go home. I'm anxious about my next treatment and anxious about my biopsy for my abnormal pap. That has been rescheduled for Tuesday..... I'm just ready for all this to be fixed and figured out and over.
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Tonybeeryman you must have an angel watching over you. Thank God you were at the right place at the time! Sending you healing vibes
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tonyaberryman,
Prayers for your recovery. Listen to your body and your intuition.
Mimi
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Good Evening - I am starting Taxol/Herceptin (I hope 7/7). Both plastic surgeon & oncologist are looking to 6/30 then I can go to VA to visit my 20 month old grand daughter, DIL and go to a 1/2 way through deployment party. As I am reading these posts I think I am getting more nervous and I think I will push back on the 6/30 start date. The plan is to start it even though I still have a wound pump as my LB (radiated a year ago) is refusing to heal and it's been since 4/20. It seems like nothing has been even a tad easy from the start of this path. Yes, I just want to hide and scream. I know I should feel blessed that it was caught as early as it was and I am, but damn I am already tired of this crap and I have a long way to go. Thanks for listening.
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Oh dear tonyaberryman, I am so very sorry. This all sounds so scary and you are so right to advocate for yourself to do something different or find a new doc. Stay strong and demand what you deserve. Sending you good thoughts and prayers.
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had Taxol #4 today so halfway thru chemo now!
MO told me to try Ayr Gel fo dry nose. Said it's like the saliva spray only in Gel form so it stays longer on the surface to help moisturizer. Supposed to apply to a q-tip inside the nurse (just don't go up too far!). So going to try that night along with Breathe Right.
And MO told me to take 2 Aleve twice a day (with food) for 4-5 days for bone pain.
So feeling pretty good going into the week. Hope these help with my SEs
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tonyaberryman -so sorry to hear of your troubles, stay strong, listen to your body. Will be thinking and praying for you.
Completed taxol#4 today, no ill effects, same as the previous ones. The nurse today got blood return right away, I didnt need to do any gymnastics. Husband and I met some friends for supper tonight. The hair is dropping pretty quickly, thinking we might have to cut it this weekend.
As I read the posts, the people having SE, I feel a little guilty. So far this trip has been quite easy, I undrstand things could change. Always feel unsure if I should share how good I feel, how few SE I have had, and the ones I have are easy to manage. I pray everyday that the journey continues to be manageable.
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Pvsue, reactions to taxol really vary, so it's hard to predict. My reaction to the first treatment of taxol and herceptin was diarrhea - I definitely would not have wanted to travel during that week. So I would recommend starting after your trip if possible.
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dodgersgirl- I will let you know if I find anything for the side pain. I was in the ER with AC with vomiting 3 out of 4 do I'll take the side pain in taxol! They finally got my premeds right on AC and have continued through taxol to be safe so lucky for me nausea and vomiting are done!! My pain seems to come after a few days on injection. I take a pain pill if it gets too bad just praying these last 5 will fly by and all will be better!!
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ref stuffy nose/dry nose- used Ayr Gel last night and slept all night without stuffy nose bothering me!! Will definitely continue to use this product as I continued tobreath thru my nose which prevented my mouth from drying out over night. If this pattern continues, Ayr Gel and I will kick the dry stuffy nose SE!!
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Thank you PatinMN. That is what my husband and I were discussing as well.
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TonyaBerryman so sorry to hear what you are going through. Let us know what you decide and remember you are your own biggest advocate so don't think twice about asking for a second opinion from a different MO.
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