Weekly Taxol group
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I have finished my 4/12 taxol. This week the side effects are starting to pile up. I have developed itchy sore facial acne, my hair is falling out and fatigue is increasing. How do I know when I should shave my head? I've switched face wash and lotion to hypoallergenic, now my skin isn't as dry but still sore. I also feel guilty because I crave and eat EVERTHING. I know it's not healthy and it's making me fat..
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Hi Mucki1991 , where were you getting random pains? I hate TAxol more than A
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My MO said no scans either ... she cited some clinical research that had a group of BC patients who were scanned regularly and a group who weren't. There was no difference in survival between the groups, and there were numerous cases of "things found" that weren't anything but caused more anxiety and medical intervention than necessary. So ... no scans, but regular visits and bloodwork.
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Mucki - where is your pains? Fingers hands and feet?
Big - only you start getting tired of seeing your hair falling that’s the time to buzz out your hair. It was more emotional to use roller to pick up hair from my pillow.
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What dosage is normal for weekly Taxol
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I started weekly taxol herceptin and perjeta last week. Started projectile vomiting during infusion. Gosh I was so hoping this would be better. I'm also in a lot of pain and don't know which to contribute it too. I threw up for 3 days after treatment even with zofran on schedule. I hate this. I think ac was better. At least I got a week of feeling fairly ok between. I don't want to do anymore and feel like a huge wuss. Also feel like I did something wrong cause my mo was so sure I may not even need zofran. I don’t understand this, why do I feel so terrible if this was supposed to be the “easy chemo”?1 down, 11 to go. Yay! Next infusion I'm gonna try some steroids
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frozentoes, I thought it was based on your weight... I started at 155 (ish) and had my dose reduced to 135 (ish) after week 9 due to the neuropathy. Mind you, I have no idea what the dose means (i.e., ml per something) but only know the range because the nurse mentioned it the week I got the reduced dose.
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I'm now getting the slight numbness in my feet but my pain was every where from back to feet legs neck side it's really random does not last long but moves around a lot. It can be intense. I'm on a weekly schedule and dosage goes by weight. I'm considering asking to go lower dose but hate the thought of not hitting cancer with all I can. AC was pretty tough but so is taxol just in different ways. I used to feel wimpy about the chemo being tough but everyone is different and we react in very different ways. Chemo sucks and I hate it I will be so glad when I'm done.
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mucki, if it helps, I felt the same way... did my own research and the MO said the same thing... reducing the dose helps avoid injury, reduces pain, reduces chances of long-term damage, etc. And clinically, they can reduce the dose to 85% of the intended amount without impacting the clinical outcome.
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oh wow that's nice to know I'm too young to have these symptoms become permanent quality of life matters. I know my treatment needs to be aggressive i guess it's just hard to find the balance.
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I'm glad I did it... the two weeks following the reductionwere "good" ... and this week (11/12) has been awful. I couldn't imagine if I was at full dose. Thankful to have just one left.
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I have reduced my dose and even stopped on #9 because my neuropathy got so bad. Sometime we need to think about long term damage. I am at two weeks PFC and neuropathy has decreased a little but still numb.
Mojo - make sure you have food in your stomach, sorry you vomited on taxol, must be rough for you. Can you hold down any food?
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Jen, my #11 was awful too. It has been total misery. Plus my dose was reduced for the 2nd time before #11. I was not doing too badly before that reduction. so weird. It kinda takes the thrill out of the final chemo when you have the side effects to look forward to.
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Paulette, I can now. But for the first 3 days I threw up when I ate. Or drank a lot of water. I’m on day 6 today, But those joint pains are still pretty intense. I switched to Wednesday’s so I have an extra 2 days in my cycle this time.
So I should eat before infusion?
So I’m not alone that this weekly trio isn’t a breeze? I was really expecting to feel fine with it.
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LOL travelhound... that actually made me snort ("the thrill"). I figure it's because I was getting cocky about chemo... walked in the 3-Day for the Cure last weekend (managed 11-13 miles each day!), have been chugging along at home/work... yeah, the chemo gods were not pleased.
All joking aside, I'll be so damn happy to be done... last infusion is Tuesday. I keep telling myself that I have one lousy weekend left....
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Jen. good luck to the two of us. I'll be thinking of you this week. I go on thursday.
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Paulette. are your fingers actually still numb?
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Jen - will pray for your last infusion then you need to ring that bell loud!!
Travel - yes my fingers are still numb so does my feet. After my last chemo, 2/3 my feet were numb now I might say 1/3.
Mojo - let your MO knows about your vomit from what I heard they have patches for it.
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bjquilter....I had my hair buzzed when it started coming out in chunks....that was depressing! I've been using CeraVe products for hydrating and moisturizing...well worth the expense, and recommended by my onco. I will have my 2nd Taxol infusion on Thursday. Not looking forward to the cumulative side effects.
Frozentoes...I don't know what the dosage for Taxol is, but my infusion is about an hour with about 15 minutes of premeds prior to the Taxol.
Mojo...Wow...what a horrible experience for you. Hoping the next infusion is not so bad. Hopefully, they will add some meds to prevent this from happening again.
Jen...I think I do remember my NP say that the dose is based on your weight...forgot about that.
For those on "weekly" Taxol infusions....did you have them every week??? I will have them for 3 weeks and then be off a week.
Wishing all a good week!
Hope
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nona, yes I will have mine every week for 12. But I’ve seen others skip a week due to low counts. I never can decide if it would be great to have a break or if I just want to get these done!
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Mojo...I was just curious...but, I see you are getting other drugs along with the Taxol. I am getting Taxol only. Supposedly, I will be on this schedule for six months.
Hope
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Nona, I had weekly Taxol with no interruption - 12 weeks. (Did A/C first for 8 weeks.)
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I do 4 weeks on, 1 week off. Just finished up Round 2 and this is my off week. Blood work has remained fine throughout, I've been on this schedule since the beginning because my MO believes it is better for my body to have a break in between. Also probably since I'm Stage IV, my treatment isn't as aggressive as what some of you are going through.
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I was curious about mouth issues. My tongue is red and sore. And Inside my lips and cheeks. If I get salt on it it’s like getting it in a cut. It burns when I eat. Today it started bleeding but I don’t see any like obvious areas that are ulcerated. Unless it’s my whole tongue. Anyone else experience this? What do you do? I tried baking soda but that burned like salt too
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I kinda sound like a negative Nancy! I promise I’m not on the other side of my phone feeling down and sorry for myself! I’m perfectly happy, I mean as happy as you can be when you feel crummy
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Jen...Taxol (only) is my current treatment after a failed Ibrance/Letrozole treatment for almost five months.. I never had A/C treatment. My initial treatment for BC was Cytoxan/Taxotere...that was 7 years ago.
Lori...How have your side effects been? I had miminal side effects from my first infusion. Will have my next infusion on Thursday.
Mojo...I've never had any problem with mouth sores from day 1....I brush my teeth (with a very soft toothbrush) after each meal and then rinse with warm salt water. If I eat anything in between meals, I rinse my mouth with salt water. One thing I was told regarding flossing....if you don't ordinarily floss your teeth on a daily basis...don't do it during chemo. There are prescription meds you can get if you have a problem with mouth sores. Don't hesitate to ask.
Hope
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Hi all,
Does anyone have 9 weekly taxol instead of 12? It seems 12 is standard as it is comparable to 4 T given every 3 weeks.
Thanks.
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I thought i was gonna miss the mouth issue boat. Been vigilant with brushing and rinsing. After every meal and every time my mouth feels dry I use the biotene.
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Mojo, I think you should call your MO on the bleeding, my mouth got very sensitive especially my tongue so I use Baker soda and salt a lots.
Through out the chemo I flossed I just made sure I don’t push it hard. But I used soft toothbrush, just recently I changed to regular toothbrush. I’m going to wait another week before I go back to electric toothbrush.
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Paulette, I quit Taxol after 8 weeks with my MO's blessing because of the neuropathy. It did go away after I quit. Still have another 2 months of herceptin and my daily pill as I'm TP.
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