Weekly Taxol group
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Taco - I quited taxol after #9 because of my neuropathy, now I’m two weeks PFC my fingers and feet are still numb but they are getting better. Will start radiation in couple weeks and hope everything will go fine.
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Wow...I hope I get through all my Taxol infusions my onco has ordered. When did the neuropathy start? I never had neuropathy the first time around, so hope I escape this time.
Hope
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Paulette, I have some nerve damage in my right hand from a horse falling on me. Years Before chemo. I had been seeing a pain management specialist for injections. Anywho he told me to take 1000 mg of vit c a day and Alpha lipoic acid. can't take that during chemo but it’s an option for after chemo. Also My mo explained to me that once the chemo induced neuropathy gets painful it means (I’m gonna butcher spelling) there is demyelination going on which is when they stop chemo. The vit c is said to aid in something to do with the sheeth. I would have to look it all up again.
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I’m new to this thread and community, hello ladies!!
My neuropathy started after Taxol #8. I will hopefully be receiving Taxol #11 tomorrow. My oncologist said the timing on my neuropathy was quite common. Remember though, not everyone is affected with it. I was prescribed gabapentin for it, but have not taken the medication yet. They cut my doseage of Taxol slightly and it has helped.
Wishing everyone minimal side effects and positive outlooks!!
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Mojojennijo,
I had the exact thing happen on taxol. My tongue bled and was swollen, and the least little bit of salt or spice was like eating fire. My MO prescribed Magic Mouthwash, and I rinsed with salt water often. Also, I spent a few days eating soft, bland foods (bananas, mashed potatoes etc...). Yogurt seemed to be especially soothing. Hope this helps.
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Vslush...I find it so interesting about side effects from the same drugs affecting some and not others. Knock on wood, I've never had a problem with mouth sores...even years ago when I was on Cytoxan and Taxotere chemo. Hoping I get through this Taxol without issues. That has to be a horrible side effect.
CBK...Welcome and thanks for the info on neuropathy....hope I can escape that side effect, too!
Hope
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welcome to the thread CBK, my neuropathy started on #5, it was mild in the beginning then 2/3 of my feet were numb. Now I finally can feel my feet. Hands still numb, but it gets better each day.
Vslush and Mojo - my tongue got really sensitive and I can’t eat any salty and spicy food . Salt turned into bitterness. Even 2 weeks after chemo I still can’t eat any spice, I used to like coffee now it turned bitter. So I can’t even enjoy a cup of coffee.
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hi
Just wondering how other people on Taxolare doing PFC? I finished 3 months Taxol in June. Now 5 months ago. Didn’t lose any of my hair thanks to cold cap and have eyelashes and brows back - yay! People say I look well.On the minus side, still have tingly/painful feet sometimes. Also lingering fatigue, and a bit achy sometimes. Of course have had rads and Tamoxifen since.
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Tinker-bell...That's great news about not losing your hair. Glad the cold cap worked for you! I will have my 2nd infusion of Taxol tomorrow. So far, so good...only a bit of achiness and a bit of fatigue with the first infusion. If all these infusions result in such few side effects, I will be a happy camper.
Hope
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Nonahope, the taxol was WAY better than the A/C ... I just had my last infusion yesterday (#12), and have started feeling like myself again (mentally and physically). I have awful neuropathy at the end (I believe Taxol SEs are cumulative), but in the big scheme of things, it's manageable. Not nearly as life-altering as the A/C was -- I was holed up in my home for three or four days each infusion. With Taxol, I can do what I want, for the most part.
Best wishes for you as you move through your infusions!
And with that, thank you ladies, for being an incredible wealth of information and support. I was so grateful that this thread existed -- I read every page and searched often to help get through the past 12 weeks. Now, I'm outta here ... on to radiation ...
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yay for finishing chemo!!!
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Thought I'd quickly share my best "taxol tip" -- I was worried about my nails. With a commitment to a regular regimen, they look great after 12 taxols (even my MO asked me what I was doing!). I used a cuticle oil every night, and regularly trimmed my cuticles with a clean cuticle cutter (once a week). The big difference, I think: I applied two coats of OPI Nail Envy every Sunday, and as time went on (around Taxol 5 or 6), I would add a coat every two or three days. When I went out of town for a long weekend and forgot my polish, my nails were beat to hell when I got back. They rebounded quickly though when I resumed the routine.
I had some minor peeling, and a few nails broke. But they healed/rebounded quickly. (My tips are naturally white ... what you see below is just the clear coat of the Nail Envy.)
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Jen...Thanks for sharing your experience with Taxol. I was told the infusions would be manageable and nothing like the CT combo. And...I do have some cuticle balm that I will start using immediately. I've never had good nails to begin with....yours look great! Thanks for the tip. I will look for the Opi polish.
Hope
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I have done acrylic nails for forever (and I mean since 1986!) but switched to "gel" when I started chemo. My nails did fine. My nail guy was fantastic to work with and his saloon is spotless. I also got a couple pedicures during my 8 weeks of taxol but did lose two toe nails. Now, my hair on the other hand...is coming back VERY slowly. I was much more OK with it when I was completely bald.
I do wish I had my eyebrows done with permanent make-up before I started chemo. I missed them a lot and wasn't very good at penciling them in.
But this too shall pass.
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Taco - I wished I did my brows before chemo also, now I have a tough time to draw my eyebrows also.
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Taco1946 and PauletteK- I hear you both on hindsight wishing on the permenant makeup for the brows!
I tried many eyebrow products to create my lost brows. I found Brow Power by It Cosmetics the easiest to apply and most natural looking.
PauletteK- Thank you for your Welcome! How is your neuropathy? Did you do dose dense Taxol treatment or 12 week regime? I’m also curious if you took any medication to alleviate symptoms.
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Taco...Never even thought about toenails. Guess I'll be using my cuticle cream and polish on my toes, as well.
CBK...I haven't lost all my eyebrows and can easily make them look ok. But, who know what a few more infusions will bring. I will keep your brow product on my list of "maybe" for the future.
Having my 2nd Taxol infusion this afternoon...will check back later.
Hope
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Nonahope - Good luck on Taxol 2. My toenails and fingers grew like weeds during Taxol, here’s to the catchphrase many of us are probably sick of, “everyone’s different”.
I’m here, just finished Taxol 11 yesterday. Things shifted for me all over the place during this treatment, good and otherwise But to be expected, it’s a cumulative regime.
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CBK- I did 12 weeks taxol and ended up only did 9 because of the neuropathy. I’m also trying 3 weeks post chemo, my neuropathy is getting better on my feet, hands are slowly getting better. I don’t have any pains it’s the numbness and I take vitamin B6 and 12. You should be finishing soon, do you need to do radiation?
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Checking in...
Had my 2nd infusion of Taxol. All went well. With waiting, seeing the NP and having the infusion I was there for 3 hours. Came home and took about an hour nap. She was happy with my blood results -- hemoglobin up, and platelets had dropped, but are now up and good...so that was a positive. She said they like to do 3 infusions in a month. The onco said I would be having approximately 6 months of Taxol...guess that means 18 infusions total. One thing she said that was of utmost important was to drink, drink, drink - water, that is! Said that will help alleviate a lot of the side effects. One suggestion from her is to keep my water bottle with me while watching TV and every time there's a commercial, take a few swallows. It will be amazing how quickly the water bottles empty. So that was my day, my friends.
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PauletteK- Whew, no radiation for me. My nodes were clear and margins on tumor removal. I'm brca2 positive. However,my grade was high and oncatype. So why such aggressive surgery and chemo. Told proactive. But super scary.
My last Taxol 12 is scheduled next weds. I had number 11 yesterday, Neuropathy is not a.huge issue. Crossing one finishing line but so manymiles before I sleep!
Thank you for your note.
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Did any of you ladies run low fevers on taxol? This is the the 3rd Thursday in a row I'm running a fever. My chemo nurse first thought this was a tumor fever but I'm nor even going there. Temp is running between 99.6 and 100.5. My normal range is 96.0 to 97.8.
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Hi Mucki.
I did run very low fever around 99.7 at highest. But always at day 4 to 5 after taxol chemo. My normal temp is low as well. Keep us posted on your progress.
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CBK Thanks for the info., This is my day 6 so it's prob just from the taxol.
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CBK,,,,I never ran a fever. If it hits, 100.5, I would call the onco.
Hope
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HI all - Taxol #9 was yesterday and knocked me out. I seem to get more tired after treatment every week. Came home and napped for two hours then just watched tv.
I feel blessed not to have neuropathy. I get nosebleeds and post nasal drip. My bone pain is gone once I figured out it was really just severe heartburn and started taking medication.
My hair is growing back, but white - yikes!
Eyebrows struggling to hang on.
3 to go - I thought I'd be more excited to have the end in sight, but the truth is I'm just so tired.
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VL2...Hang in there. You will be chemo free by Christmas!! Now, that's the best gift ever!!
Hope
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VL22, thanks for the tip on pepcid AC, although the right side pain is still there a bit, it’s a lot better than it was! Does anyone know if you can get neuropathy in your intestines and colon? Like little explosions every once in a while?
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Hi everyone! I just finished 4 rounds of AC and will start 4 rounds of Taxol (every 2 weeks). My oncologist says Taxol will be easier to handle, but I had very little side effects with AC, so now I am nervous that Taxol will hit me harder. What can you all tell me about Taxol? I am nervous for the first dose since I don't know what to expect.
Thanks!
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Hello everyone,
I hope you all have had a good week and I hope y'all had a great Thanksgiving. I had my #9 Taxol today. Somehow I got thrown off of my regular chemo day which is Tuesday but it was ok it gave my body a few extra days to rest. A couple days ago I broke out with a rash on my hands and arms and it just doesn't want to go away so my doctor put me on more steroids....yuck. Hopefully that will clear it up. I have unfortunately started to experience neuropathy....yuck again. It's not bad it's just in my fingertips and as the week goes on it lightens up some so hopefully I can get these last 3 in and move on to surgery.
I hope y'all have a great weekend0
