Weekly Taxol group
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Lily55, how was your first taxol chemo? I hope you're okay, without SE. Send you kisses
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Yndorian - I also have 4 left and I am so ready to be done!
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Kber_ Tengo muchas ganas de terminar la quimio pero, por otro lado, tengo tanto miedo de la cirugía que soy un desastre. Cuando estaba esperando mi primer AC, conocí a una joven que era dx IV de novo, con un solo hueso encontrado. Ella no recibió ninguna quimioterapia o cirugía, solo en palbociclib. Me avergüenzo de decir que pensé que ella tenía suerte ... Así me siento
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Yndorian... to me other women who have been on this path ahead of me look so brave and I don't feel so brave. But in reality we are all brave and strong. Finish your chemo as 1 part of beating your cancer, then move on bravely to surgery. We are stronger than we think we are! (((hugs)))
~Nanette
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I have my 11th Taxol this week. Cant wait to get to the last and final week. My legs feel so heavy. For those who finished. How long after did you start feeling better? did the dry/metal mouth, hot flashes, fatigue, tiredness, shortness of breath, brown nails, etc start to diminish within days, weeks, months?
They scheduled me for surgery on May 7th but doesnt seem like a ton of time to be off chemo to feel better. What are some of your outcomes off chemo?
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Hi Hope I found metal mouth was the first to go within 2 weeks and it was nice to eat again. But be warned I had no sense of taste for another 2 weeks. The tiredness goes next in phases but by 1 month out you'll find lots of energy! I think my hot flashes got worse and them better and now I hardly have them at 6 weeks out.
I had concerns about lingering side effects and I was told it can take up to 6 months for them to totally dissapear. My nails had red marks on them by last taxol and as of last week (5 weeks out) I found that I may lose some fingernails and toenails. It's the gift that keeps on giving lol
Laugh you just have to laugh otherwise we'd all be sobbing messes wishing we'd taken out stock in Kleenex or puffs tissues!
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It’s been so helpful to be able to talk to other women on the same journey.
I have had 9/12 treatments. Since treatment 7, I’ve had a rash on my wrists and now it’s spreading to my arms. The MO prescribed a steroid cream but it doesn’t seem to be working. Has anyone else experienced this? If so, what did they give yiu
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Nanette, thank you for your kind words. I'll trie to find the way to walk this path step by step. If other women can do it, I can do it. It is not like I have another option. I send you a kiss
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Hi everyone I had my first weekly Taxol last Fri and had the dreaded hypersensitivity reaction (felt I couldn’t breathe etc), they stopped it & gave me hydrocortisone & waited 1/2 hour then started again very slowly.
I just really want to know whether anyone else has had this reaction more than once? I have to go back for #2 tomorrow and I’m really quite anxious about it happening again
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I have quite a few allergies, and one episode of anaphylactic shock, so they never gave me a chance to have a reaction. If once you have a reaction, they will give you more meds to prevent another. They don't want people to die in the infusion clinic, and they certainly don't want lawsuits.
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@nanette7fl - thanks for your response it was helpful. I am feeling positive about the hot flashes, hoping they do subside. Just want my body back. Hopefully Ive recovered enough from chemo before surgery.
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B74- MCBaker is right. Don't worry. They will give you the premed in order to avoid another episode. You will be fine. Good luck!
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Penny K - I have skin toxicity. My MO is having me use Aquaphor first, wait 15 minutes then use the steroid cream, three times a day. I am also on oral steroids and have been for weeks. Mine was so bad, I had to skip a week of treatment. I still have the rash, after four weeks, but it is not as painful. Hot water is very painful. My rash looks like a cross between measles and a sunburn. I have four more treatments. I don't think this will clear up until I'm finished. My dose of taxol has been reduced.
I, too, had a reaction to Taxol, twice, and then to herceptin. I now have to take Ativan before treatment and then I get a another shot of it during the treatment right before I get the Taxol. I am knocked out, but have had no other reaction.
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To those of you with neuropathy...I feel your pain. I have been dealing with severe neuropathy for almost a year since ending 15 Taxol infusions. It got worse after I was finished with the Taxol...it is a cumulative drug. Initially, it was the horrible burning - to the point I couldn't even put a sheet over my feet at night.. I used Lidocaine, Bio-Freeze, and cool socks (bought at Amazon) throughout the day....they all helped for a few hours. For some reason, it was worse at night. I was up most of the night in pain and couldn't sleep. I finally went to physical therapy for 6 weeks...that helped so much for my balance. I still cannot drive. My right foot is the worst. I use a cane when I'm out and about. I can hobble through the house without my cane, but I have to be really careful. I'm hoping each day gets better. I wish I could give you gals better news, but this is what I've been/am going through. Oh, the burning did subside after a few months. Hang in there!!
Hope
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I have taxol #9 of 12 tomorrow and, for the first time, I'm feeling a bit anxious. For the first 6, I bounced back OK by Monday. Then I took a week off, due to low WBC. Session 7, it took me an extra day to feel normal. Session 8 (last week), I don't think I ever really bounced back. Now I go in tomorrow and I'm still feeling weak and fatigued - no rebound.
I was resting in bed after work one day this week and my teenaged daughter and husband were just going at it. Not yelling, but damn they were pushing each others buttons, and all I could think was "I cannot die and leave these two alone together!" Whatever happens, I absolutely must make it another few years until my girl is out of high school or they are going to kill each other!
I know I'm being melodramatic as I'm responding well to chemo, thank goodness. But please, God, for my husband's sake, give me at least until that child turns 18 and goes off to college.
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Kber, maybe is the way they're letting out the stress. Since my dx, my 21 years old son acts like he was 13. I'm also getting my #9 tomorrow! Good luck!
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Nonahope, I'm sorry to hear that you are still suffering so much from the neuropathy. I've still got mine, too, but it was never as bad as yours. I'm now cane-free, but still slow and clumsy, and in the morning when I get up, the brain has to send a message down to the feet to say "WAKE UP!" I think the fact that I had some sort of neuropathy years ago really helps me, because I learned that recovery from neuropathy is S-L-O-W. So slow that it's imperceptible from day to day, and even from week to week. Which is maddening, of course. Sometimes I still lose my balance because I've tried to move too fast, and it makes me so frustrated! Here's hoping your nerves, my nerves, and the nerves of all the other people with neuropathy will get bored and decide to recover faster!
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Yndorian - for sure they are letting out their stress. It's also normal teenage stuff that I take in stride and my husband does not. The issue is they are so similar that they can really get under the other's skin. It would be the same whether I'm healthy or not. I just need to be a buffer for the next few years.
It was the same with our son, who is now 22. I'm convinced that if I were not around during our son's teenage years, neither of them would have made it out alive!
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I felt ok when I arrived home after first TAxol......did loads of cleaning and all sorts...first day after also felt fine...but today, just horrible.......my feet and ankles are badly swollen....I am very nauseous and exhausted, horrible mouth, wobbly and tihs is only day two......I have not been told how many sessions I am meant to have and cannot see how I will makeit to the end if its like this,,,,, Sorry to sound so dismal but I am really only in touch with all that I have lost, my independence, physical mobility, my husband, shared things in the future,
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Kber- don’t worry! You’ll be fine and see that child graduate college, get married and have kids. Relax and take it day by day and one done you will done from all this hassle
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Taxol day was sleepy for me because of all the benadryl they gave me.
Lily, day one is usually very good because of the steroid. Days two and three are often pretty bad. Days 4-6 get pretty normal (until late in treatment), then it is all over again on the roller-coaster.
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Lily55, sorry about your dear husband, cancer sucks. I hope this treatment work for you. Send you a kiss
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Neuropathy is really hateful, I thought I was going to skip it, but mine started around week 10 of the Taxol. It’s been over a week since finishing the Taxol, but my feet feel like they are getting worse.walking has become difficult. I need to hold on to my husband to keep from falling. My hands don’t feel as bad as they did, but my feet are terrible. My nails are in the process of maybe falling off soon.
Keep up the good fight everyone
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Thank you for the info, I do feel bit better today, less nausea...... its the not knowing that makes it hard.....I have been in a void for weeks not knowing about treatment plan and just getting worse....I have to focus on the fact that I am actually not getting additional pains now or ribs clicking with new fractures......and I do feel the Taxol is doing something as had pain where the vertebroplasty was and the other fractures.....I am visualising and working with the chemo seeing it as a friend helping me to get rid of the cancer cells.......but its hard. Last year was all about my husband´s cancer and it was meant to be celebrating reconstruction, now I was just about to finish reconstruction and I am in active treatment again.
The implications of a Stage 4 diagnosis also really hit me yesterday.......its hard to keep going isn´t it when you feel the finger of time over you.......
I asked the Oncologist about using ice packs and she said neuropathy usually only comes along much later on and that icing and cold makes it worse.....certainly I have never seen or heard of anyone doing that here but then they don´t seem to do cold caps either......do they over your way Yndorian?
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Lily55, I just had my #9. I'm not icing my feet or hands because in my hospital don't alows this practice. I take msm, vit b complex and ALA complex. I have some neuropathy in my feet, but it doesn't too bad so I think it helps a bit. My worse SE is right now the diarrhea. It is out of control no matter I eat. But only 3 to go. Wish you will better soon. I send you a kiss
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Un beso para ti tambien......xx
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How many weeks of Taxol is the norm? I have seen people refer to 12 but I have not been given any information about how long I will need it for........?
I am struggling with so many things at the moment and find every area of my life seems to be a blank space or sheet......I am trying to live minutely in the now...but that is not easy when you live alone and it will be my wedding anniversary next week......and its not even six months since my man died.......
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Does having a PICC line put in hurt? I have that joy next week followed by Taxol 2.....
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I think the two most common taxol runs are 12 weeks every week, or 4 of dense dose, every other week. I’m doing 12.
I haven’t heard that a picc line hurts, but I don’t have one. I had a port put in under general anesthesia and I’m happy with it. But my full chemo regime was more than Taxol and will be 5 months total. I think a picc line is less invasive and often used for shorter chemo treatments.
Day by day is the only way I’m getting by butonce I had treatment plan details, it got easier, tho stay strong! You got this!
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Lilu, I have read elsewhere that Taxol for stage IV is longer-term than for stage I or II.
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