Weekly Taxol group
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Hi - there is a very informative thread on hair here - for those interested.
https://community.breastcancer.org/forum/69/topics/707348?page=858
Kber
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kber...thanks for the link...good stuff in there 👍
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kber, that's sad that Griswald is gone for so long 🤔... 😁😁
Yndorian, I believe your new hair stays with you 👍 My hair grew through Taxol, albeit slowly and feather-like.
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I lost my hair when I was going through Taxol infusions. I finished 15 infusions 11 months ago. I still have to wear my wig.
Hope
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Thank you for the hope JaBoo! 👍👍😘😘
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Today I had my first Taxol (out of 12 weekly treatments) after finishing 4 x AC. I was soooo anxious about starting a new drug... not helped by several attempts before they could get a cannula in, then an allergic reaction to the Taxol so they had to stop, give me more drugs, wait for things to settle down then try again. All up I was in there for 4.5 hours! I came home and slept for 2 hours but still feel really tired. I’m not looking forward to another 11 weeks of this! AC was tough but at least there was a break between treatments.
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Your MO needs to adjust your allergy medicines. Next infusions will be better. First infusion is always like a test of allergy. Good luck
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Anyone ever have a reaction to all the steroids they give you to pre ent an allergic reaction? I am on dose dense bi-weekly taxol and had my first infusion yesterday. I got very hot and sweaty about two hours in to Taxol. They stopped Taxol, did vitals, gave me an ice pack, and restarted thinking I had a reaction to to 60mg of steroids which I luckily don’t have prescribed for next time. I’ll only have 20 mg. Then last night I got very red in the face and upper chest (looked like a sunburn) and felt tingly around my eyes like I was going to break out in hives. Called on call doc and came up of a plan of more Benadryl and if it got worse around eyes or mouth to go to ER. Luckily didn’t get worse. Still red this morning and a little tingly still. Waiting for follow up call from MO, already spoke to nurses.
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A lot of women get the flush the day after Taxol. It should clear up quickly. FWIW, I found my reactions to the premeds lessened over time. By about halfway through I didn’t even get the hunger/energy bump from the steroid. It’s like my body adjusted.
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Update on steroid reaction— it has my blood sugars over 300 so have to see primary doc to get a plan for that and that is what they think is causing eye discomfort. Still look like I have a sunburn but hoping that goes away in a day or two
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Taxol 8 of 12 complete - 4 left. So far so good. Had to start Neupogen shots to boost white blood cells, but they aren't bad.
Biggest thing is no signs of neuropathy so far, which I'm relieved about. I figure if it shows up now, it won't be as bad as if I got it earlier. Maybe I'll dodge it altogether, which would be lovely.
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Kber, i'm in taxol #8 too. I had neuropathy in my feet almost from the beggining but it isn't very bad. I think you are in good form to not have it, or have a mild one if it appears. Good luck!
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By the way, I have been in a vit b complex and ALA. Someone says it helps with the neuropathy, I'm not shure if it really worked for me.
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The nurtrtionist recommended both supliments to me as well, plus I've been icing my hands and feet. I'll keep my fingers crossed.
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good luck to you both. My neuropathy has good days and bad days. Today the fingers started hurting around 6pm ... like I hit all off them with a hammer and then plunged the tips into boiling water 8( I didn't ice during taxol as I had frostbite as a child and can't take the cold on my feet or hands.
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Nurse told me the 2100 mg gabapentin I have been on since long before BC probably prevented me from getting more neuropathy than I have.
Nanette, the neuro pain may be partially because of the stress you are experiencing.
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I refused the gabapentine because MO said it is just for pain, but not improves nerv damage. He don't want to reduce my dosis untill see a hard neuropathy progress. I hope it doesn't come to that. Finger crossed too!!!
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Yndorian + kber - - I had neuropathy from about Taxol no. 4. I iced my hands and feet from the start. quite a bad case of feet burning and tight-socks feeling, with needle pricks. My MO + my neurologist + another MO I know all recommended Vit. B6 and ALA in a supplement. I bought it and took twice the day's dose. It's a supplement for any nerve damage, also for diabetics. My MO even spoke about stopping Taxol after no. 6. I freaked out. I bought shoe inlays for diabetics and epsom salt to bath my feet in. I put an urea cream on my feet afterwards. I refused Gapapentine many times. Somehow, the neuropathy even diminished while still on Taxol. I had a feeling I got used to the weekly Taxol dose. I did not ice my hands and feet for Taxol 11+12, because winter came in with heavy snow and I just couldn't. I am now almost 4 months out from Taxol and the neuropathy is gone, I notice something lingering maybe like twice a week. What a relief.
Regarding hair - I stopped wearing scarves/wig around week 7 PFC. My hair came in during Taxol and after about a month PFC it started to grow really quickly. I used a Biotin supplement, but started it after Taxol finished. And I am a firm believer in scalp massage - I massaged my scalp under warm shower for about 5 minutes, but not on the Taxol-days and for 2 days afterwards. My hair 2 weeks post Taxol here, the first post on the page Topic - Hair, hair
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Doris,
Congratulations on your last Taxol! I hope you feel better soon
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Gigi,
Congrats on finishing Taxol. What meds did your doc prescribe to help with side effects?
I’m happy you don’t have a long wait for your w change surgery. I will have to wait until the end of July because my surgeon is booked out. I finish chemo in three weeks.
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I had my 9th Taxol yesterday. My blood work is still good. I’m using a cooling cap on my head and I try to ice my hands and feet but I’m not consistent with it. I’m so cold from the cap on my head, it’s very hard to make myself colder. I haven’t had more than fleeting tingling in my fingers and toes. Still have my hair although I am shedding. I can tell my ponytail is thinner. Still have eyebrows and eyelashes. But I’m told they’re the last to go andcould even come out after treatment. Did anyone else experience that?
My biggest issue is my abnormal ECG from the herceptin. Otherwise, my side effects are now just bone and joint pain and restless legs for a few days after the steroids where off. And nose bleeds. Seasonal allergies aren’t helping.
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Jaboo this is a lot of hair! I hope to drop my wig and scarfs so quickly too!
PennyK sorry about your troubles with herceptin, but the damage is reversible. My bone and muscle pain 2 o 3 days post taxol is brutal for a few days, then it calms and taxol again! Just 4 for the end, we should hang on!
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Sorry about my english, i'm from Argentina. Thank you all kind ladies!
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My feet are driving me crazy, as are my hands. The feet still feel like I’m walking on marbles & fingertips are pretty sore. My fingernails have a red stripe across the middle of the nail, not attractive. My husband says I’m rushing as it’s only been since Tuesday since my last treatment. He says give it time which I know he’s right, but I want this done ASAP!
Doris
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Doris... sorry we all want to be done. As for the red stripe I had that too noticed it the week after my last Taxol. I hope your nails will be okay. I cut mine way back earlier today in hopes that they won't come off... I also started back on my nail oil thinking maybe nourishing them might help too.
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Everyone has said Taxol is easier than AC, but boy oh boy, not for me. First I had reaction to steroids, now I’m actually vomiting, didn’t do that at all on AC. Anyone else out there who seems to be different from the norm
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Mncteach- I'm sorry to hear that Taxol is not compatible with you, but I hear that the SEs of taxol do not last long and you easily bounce back.
-I'm wondering did anyone tried weekly taxol withcarboplatin (carbo) ? And was it tolerable?
My mom will have 12 taxol/carbo after her DD AC.
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Mncteach, I had nauseas on my first taxol, never again. I hate taxol SE more than AC's too but somehow it is doable. The steroids sucks but your MO should adjust your dosis to be comfortable. Hang on!
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Hi Ladies, I'm triple negative breast cancer and Taxol its the best treatment for it. Which means I'll be on taxol until the cancer outsmarts it.... I'm heading into weekly treatment #17 on Tuesday. Nueropathy is bad, started with skin rashes this week and day #4 & 5 I crash... Anbody else out there doing indefinite taxol?
I asked my doctor at one point how long I'd be on it and he said "until....". That was it.
Hanging in there, in Upstate NY.
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Tina...I had 15 infusions of Taxol due to cancer cells in my bone marrow. I am not triple negative. I finished Taxol about 11 months ago. I had no side effects, other than severe neuropathy. I now take a combination of Cymbalta and Gabapentin which helped a lot...but, nowhere near normal. I can't imagine being on it indefinitely. I wish you the best.
Hope
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