Weekly Taxol group
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Thank you everyone, I am feeling your support, and I really cannot change doctors or centres......
Its the way I was made to feel to blame.......I know I can sound a bit tetchy if I am not being heard but even so they did not even give me basic information or reassurance. I went to my primary care doctor yesterday, who very kiindly has told me I don´t ever need to make an appointment if I need her just turn up. She took one look at my legs and feet, which the Oncologist was not even interested in doing, and said your legs are really inflamed you need to take pills......! The skin could not really stretch much more........then we discussed changing pain medication and so I feel better on that front and she said just come and see me if you want to make any changes to medication and I will look after you. I just sat there crying...I told her what had happened and she said just go with your phone in your ears and dont even listen to them, no one should judge or comment unless they are in your shoes and none of them are....
I feel exhausted all round today and I am dreading going back to chemo in 2 weeks time now, I am really really struggling emotionally and with my hair coming out.......
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(ooops - previous post deleted! sorry guys! The fault of too many tabs open & I posted in the wrong thread!!!! )
I finished Taxol in July 2018, had some neuropathy from about taxol 6 but with icing and the B6 supplements it all eventually dissipated and I have no lingering side effects from it.
Hang in there everyone! You can do it.0 -
Lily55 - I' m glad you finally finded an oncologist who cares about you. Listen to her advices. You have 2 weeks for resting before your next taxol. Depression and sadness are SE of paclitaxel, I' m feeling it too. Clonazepam help me a bit, do you considered to obtain a prescription?
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Hi Yndorian, not an Oncologist just medico de cabecera...........tomo Sertralina......nunca em mi vida antes pero ahora mismo estoy desbordada, gracias y besos
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Si, acabo de ver mi error. Ojala todo vaya mejorando, te lo deseo de todo ❤
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Today I finished my final Taxol. Due to the neuropathy that started about week 10, they cut my last 2 doses by 20%. The neuropathy is better. And the chemo rash is nearly gone. My MO is giving me a 3-week break. Then I move to herceptin every 3 weeks and an estrogen blocker. It feels good to close a chapter on this disease.
This website has been so helpful in making it through. I am so sorry we all have been given this diagnosis. But I’m happy this resourceallows us to support each other. Only we truly understand what we’re going through.
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Mncteach-I was wondering if you got your reactions to the pre meds worked out. I am on number 6 Taxol and was added hydrocortisone steroid infusion. And I have had reactions to each of them. First it sends me to the bathroom quickly, by the time I come out my face is swollen and red. Today it was just a 3 inch strip of red in the middle of my face that ended on my chin and my bottom lip was numb. And last I get one raised bump on my left arm at my wrist. It looks like a wasp bite. Same place both times. Once they slow it down it starts to get better and eventually totally clears up. But I feel pretty crappy bc my nurse said she has never seen this before. People don’t have reactions to this med. I was trying to research itand found your post.
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Nanomom11– I have only had one more Taxol since the initial reaction. Since I only had a lower dose of the steroids, it was better. My blood sugar still spiked, but not as high and I did get the red face and chest again, but not as bad and only lasted a day. I didn’t have any symptoms at the cancer center and they gave me a stronger long acting anti nausea med, so only had slight nausea this time. Are they giving you any Benadryl as well? If not, ask if they can since it will definitely help with any reactions. I hope they can figure this out for you
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Congrats PennyK! Wonderful that this part of the journey is behind you.
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Congratulations PennyK! I' m glad for you! 😘
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Congrats Penny!!
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Congrats Pennyk! Hope the rest of your journey is positive.
AFM-I had my first taxol yesterday. I am grateful it seemed to go smoothly. I did the steroids, Zyrtec, and Pepcid. They did not give me Benedryl at infusion. They slowed the drip to at first, and monitored in 15 minute increments. Once they could see there was no reaction, they finished the rest of the drip in 45 minutes. They said I would do the same next week, and if I still don't have a reaction, they will remove the steroids all together. I am hopeful that becomes the case. I was surprised that I didn't need any anti-nausea meds yesterday either. I am apprehensive about day 3, as that is when I expect to feel the true weight of this chemo. Does anyone take Claritin to help with the flu-like systems? Does it help? My nurse said that the reason for the flu-like systems is because that is when the body is creating more white blood cells.
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notdefined--you might find you do really well through the first few Taxols. The SEs tend to be cumulative. I didn't ever feel like I needed the anti-nausea meds but took them for a day or two following tx each time just as kind of a prophylactic measure (plus I had them so why not?, particularly the one that can make you drowsy). There are lots of women on BCO who take Claritin a lot--think it helps with all kinds of things and there isn't really a downside.
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hi ladies. I'm wondering for the ladies that did AC, how long did you wait after the lastac to start taxol? Did they continue the neulasta type shots for taxol?
Mom finishes AC on Monday!!!!!
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I started taxol for 12 weeks - I have 2 to go - after a 3 week break to heal. I only get the shots if my counts are low. This has happened only one time.
Annie
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I started Taxol 4 weeks after last AC. The schedule was 3 weeks but my wbc still low at that moment made my MO to decid to wait one week more. I never had Neulasta
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My nurse practitioner floated the idea of a blood transfusion to address worsening anemia. Anyone have any experience with that?
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kber, do you have anemia because of taxol? Did you had #11 yet?
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yes and yes. I had 11 today and the Anemia is a direct result of the chemo. I have Neupogen shots, various supplements, and other treatments. A transfusion would be the 5th or 6th thing we’ve tried.
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I'm sorry this happens to you at the end of the treatment. IV iron is not an option? I had it and I've not developed anemia. Come on, one more left! I hope you can do it
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ucfknights- no Neulasta with Taxol! I kept on my regular biweekly schedule, but have heard of others doing differently.
Kber- I have been anemic the whole time, they did say that a blood transfusion was a possibility if it got worse, but I’ve been able to stay consistently low by adding flintstone vitamins with iron.
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For my Taxol tx they added an iron drip as well to address anemia in about 5 of my txs. They also told me to increase my red meat and spinach consumption - though that wouldn't resolve it on it's own. Anemia resolved btwn the two approaches and my final 2 tx they didn't give me the iron bag. I was glad bc the iron bag added about 45 min to the infusion time.
No neulasta for Taxol for me, my WBC's were fine thru out. They did reduce the original dosage of Taxol several times in my last few infusions due to neuropathy and hand/foot syndrome. I did icing throughout Taxol tx during the infusions and at home as well (more periodically at home). My last taco tx was 3/15 and I'm happy to note my neuropathy is nearly completely resolved and my hand/foot syndrome is getting better.
Best of luck to all of you! MB1
(Edited for apostrophes where they shouldn't be....re- read it catching up on you ladies and it just drove me crazy)
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Hi ladies!
Hope you're all doing fine!
Just wondering if any of you experienced pain in the tumor while on Taxol?
Does this signifies that Taxol is kill the nasty cells?
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Kkmay - I had small punctures and a feeling of contraction from the inside, not painful but I felt clearly that something was happening in that area. The tumor almost do not exist. 2 taxol to go
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I had twinges on taxol. I mentioned it to my MO and he said lots of women get that and some used that thought to believe it was the cancer cells dying.
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Thank you ladies for your responses!
My mom describes her pain as “ something that’s walking on the tumor downwards and poking through it” sometimes she feels something different like something is pulling the tumor from inside.
I just hope that this means that chemo is killing cancer cells.
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hey ladies! I was wondering was supplements you guys are taking to Prevent your neuropathy?
Thanks!
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Hi. I'm taking a B Complex and Alpha Lipoic Acid. Plus I ice my hands and feet during treatment. That said, I have mild tingling in my fingertips, so I would not say it's been 100% effective. I have my last Taxol treatment this Friday and did not develop any neurppathy symptoms until after Taxol #10.
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I was taking turmeric and glucosamine & chondroitin before diagnosis. After chemo, I started taking fish oil, vitamin c and b-complex. I am waiting for an order of Alpha Lipoic Acid + Acetyl L Carnitine. That is about the full list of OTC supplements. Actually, vitamin d is also recommended, but I hope to get enough through sunshine. My onco says that the neuropathy often starts being felt after the Taxol is finished. I had a gap of ten days between #11 and #12, and that is when it started for me.
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I had my #11 today, my veins collaborated, thank to God! (Only one puncture) now in bed with my dog taking for a yonqui nap. Send kisses for all of you!
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