Bone Mets Thread
Comments
-
Hey Dunesleeper. Now THAT was funny...almost made me forget scans tomorrow....almost. Glad that your check issue has been taken care of....it is the old thing about the"squeeky wheel gets the grease".
0 -
Dune - my first MO, now on maternity leave, was very nurturing. The current one is more speedy and clinical as well and at first I was not quite sure about her. But since she has 25 years experience in oncology, I figured I'd give it a shot. I'm glad I did - she's very focused and competent and well respected. The more I get to know her, the more I trust her. I agree that if you don't feel comfortable with your new MO - go for number 3. As for my nurse, I think I will follow your example with Shirley. Next time I see my MO, I'll ask her to switch me to another one. I take Pantoloc every day as stomach protector as I cannot live without ibuprofen but didn't know it had an effect on bones. Will bring it up on my next appointment.
Linda
0 -
This MO recommrnded ibuprofen, said it had a significant effect on bone met pain. I took some hours ago but didn't notrs pain reduction until. about a half hour ago. She also prescribed a lidocaine patch. I'm hoping it will ne effective. I asked her for something to help me sleep. She prescribed ambien. Didn't work. Took it around 6. It's now 10:35. I took a xanax and am finally nodding off. I'll just hsve to keep experimenting. Take care y'all. Have a good day.
0 -
Dune, I really understand that disorganized thought process. Recently in order to correct the mattress issues that disrupt my sleep...I went shopping. I wandered around the shop tried a few and one or two clerks asked if they could help me. No I answered..but they persisted..."What are you looking for in a mattress?" I really don't remember...I added to allow me some time to just browze. The clerk then popped in with "How about a Memory Foam?.....then the fight started. .....
Just kidding.. That..came out of one of my support groups. Peg
0 -
LOL @ memory foam! Maybe that's what I need!
I work for a company with the initials ASL. I had booked a conference room at a business centre, then needed to cancel. When I called I told her I was with ASL and had an 11 am booking. She said "Oh, the Alzheimer's Support League - you're with Alzheimers!" I said, "no, but I have been accused". She didn't even crack a smile let alone laugh. I thought I was funny.
Annie - hang in there - almost done! I have read in these boards about esophagus issues with sternum rads. Be sure to tell your doctor; I think they can prescribe stuff that may help a bit.
Dune - you crack me up almost without fail. And I agree with the others. You need someone you feel like you have a good rapport with and where there is mutual trust.
Hugs to all,
Terre
0 -
Romansma - funny Sr. name. Did you get cortisone ?
Dunes - glad the bank is sending you the money. Yea ! I agree is there a 3rd mo to talk to ? Hope you got some sleep.
Mom6. - hope your scans today are easy with great results.
I got a full body bone scan yesterday (which I get every 3 mo). finished almost 3pm. This am I seen they had it on my electronic chart. The final impressions said : Stable breast cancer mets to bones woohoo. Good news
0 -
Patty,
Hooray for stable!
0 -
Yes, 3 cortisone shots in my hip. I think it's already working. I slept through the night for the first time in a couple months! Patty, great news!!! Got a call from my MO yesterday about my tumor markers. They never worked before, but now they've decided to work. They almost doubled since August. Right in line with our most recent scans. Dang, dang, dang!
0 -
Romansma - dang dang dang indeed.
0 -
I'm sorry to hear that Romansma. That's what mine did back in August, but then the meds cut them in half, for which I am thankful.
Great news from you Patty.
0 -
Patty - great news!
Romansma - glad you're feeling the benefits of the cortisone. Have you started Xeloda yet?
Had prep scan for rads to pubic bone today. Treatment will be Tuesday.
Linda
0 -
Hello everyone,
Linda and Patty hurray for your good news, so so happy!
Linda best of luck with your rads treatment and prayers for successful pain relief.Momonana6, thanks for your thoughts, prayers and kind words. I did speak to them about my esophageal issues and seeing the rad onc before my treatment in the morning. Hope your scans show good results!
KiwiCat, I read the same about rads to the sternum so I kind of figured this might happen even though they told me it probably wouldn't. Of course they always downplay everything don't they?
Romansma, love your new picture, you look so good. Really hoping they get things under control for you real soon. Happy you got some pain relief with the shots.
Dunesleeper, you crack me up, you and KiwiCat are my comic relief, thanks for that. I like your comment about me kicking cancer's butt, I pray you're right. I hope your pain is improving.
Well guys 7 down and 3 to go and I'm feeling pretty tired tonight. Back at it in the morning. Stayed at my friend's last night to shorten the trip today which is so helpful.
Hugs to all, Annie
0 -
Ok wait for it....wait for it....LAST CHEMO TODAY!! Yea believe it Sista's... I'm as the OC docs said...(STABLE CONDITION!) And I'll be starting up on a once a mth drug shot in the butt called Faslodex...Oh Wahoo! Thank You God!
0 -
Congrats on Last chemo, freebird! xxoo
Just wondering if you gals all had to do chemo again after being Dx with bone mets? Seems to be so many different protocols!
love to all xxoo
0 -
Need some advice. Seems as if I now have some progression to the spine and questionable spinal fluid per the MRI. This was from my radiology report. Anyone have any experience with this? Everything I read online makes me want to run the other way. Started the faslodex and Zometa this past March and started with the back ache about 2 months ago. Seems like it comes and goes but overall I guess I don't feel that bad. Just concerned and a little scared.0 -
Woo hoo on chemo-free!!!!!!
0 -
It's hard to remember what everyone writes when you can't scroll back or respond to each post
. Freebird - CONGRATS for being done with chemo, that is great! And I love football and that is my main fall entertainment. Both College and NFL. And now its Bowl Season, yay!
Annie - so great that you only have 3 more to go, you are almost there. Will be thinking about you!
Patty - my onc and the hospital now have a patient portal also. I got the e-mail, but haven't signed up yet. I need to move that higher on my list, I waited till today to get my PET scan report and I could have just logged on last week. Didn't even think of it.
I hear all of you on the chemo brain, never went away that is for sure
.I had chemo today and saw RN. My jaw is hurting so I did not get my monthly Xgiva shot (right after I posted I had no SEs!). She will move the shots to every 3 months, which I see some of you have that timing also, which is comforting.
DuneSleeper - would love to hear more about your cutting back to 2 days, I have to log off now, but I hope I can send you a PM tomorrow. I still work full time and am the sole wage earner. But my company has been very understanding and I am working almost fully at home so I don't have to do long commute to NYC. And I nap every day, so I'm not really working full time hours, more like 6-7 hours in the two weeks of chemo.
Cheers,
Meegan
0 -
WooHoo, Carla! So excited for you!
Romansma, so glad the Cortisone shots helped so much, and that you can sleep again! But Dang!! on the TMs!!! So sorry...
Annie, you're almost done! YaY! Counting down each day with you, and hoping the remaining zaps go extremely smooth & easy for you. Hugs to all from Las Vegas.
0 -
Well, Dee is being most unpleasant this far this week. So I offered to work Thursday. This will be basically a 4 day work week for me -- and on Friday I have to be present for their Christmas luncheon. It may be difficult to get the work out, but I will be sure she understands that I will absolutely work 2 days a week only. She's had plenty of notice.
0 -
Freebird, Hooray for you. "Our Stable Girl". What great news. I have been taking Faslodex since last January....very little side effects....easy/peasy.. There is apage on this site that has some great hints re administration helps. Peg
0 -
I think I've decided to change to the MO closer to me. I was struggling terribly with the decision, but i stepped into the shower and things cleared up a little. If something should happen to me, I would be hospitalized much closer to home and would be far less worried about my mom getting in an accident on the way to see me. Now I just have to make all the arrangements. It feels good to have made this decision.
0 -
sounds like you have made a wise decision. Now I can't remember is that the 1st or 2nd mo that closer ? Convience is very important to me. ESP considering driving to mo appointments, tests, hospital stays etc. I hear ya loud and clear.
0 -
Romansma - have you started your new tx yet ? Hoping you are have a pain free side effect free day.
Well actually I wish that for all of us. :-).
0 -
Nope, not yet. This all took place on Thurs and Fri and then the insurance company took a couple of days to approve it. Probably start thechemo tomorrow or Friday. How are you?
0 -
I am over all the crazy vomiting and big D I had.
Yesterday ds1 stayed home sick and ds2 came home sick. Ds2 Ben running 103.2 and sleeping most of the day. He rarely gets sick but when he does his fever always spikes. So pushing Popsicles and cold water on him. Cold wet cloth on his head and belly. Ds1 no fever but stomach bug. Laughingly told dh he may have to get a motel room So he doesn't catch it.
0 -
Sorry, no fun! Be careful yourself
0 -
DAMN!!!!!!!...now i heard why my treatment is changing and why they told me it was my last chemo on Tuesday...My tumor markers are going up slightly for the last couple chemo treatments...so that is why they are changing up...my treatment...cuz the chemo is working anymore....now I'm depressed again....scared that yes I'm STABLE...but what happens if the Faslodex doesn't work...for my Bone METS....UGH...now my mind and thoughts are wondering tonite...when will this nite mare end...
0 -
OH, so sorry Freebird, that is quite a change of mindset to have to digest. Are they basing the decision just on the tumor markers? Or did you have a scan also? I didn't think tumor markers were that reliable to be used as a sole decision maker. A component yes, but not sole.
0 -
Yes Tumor markers...is what they say...my PET scan is good...that's why they say my disease is "STABLE" at this time...but because the tumor markers are raising slightly...from 55 to 60 and this week a little more 67....they are concerned...so they brought my case to the board of OC"s and discussed it and this is what they came up with...so maybe it's a good thing....I just couldn't handle Xeloda at all...plus I have my Bone booster mthly...
0 -
Hi all! Unfortunately I'm still feeling so ill.... Doc today told me he didn't know why I'm having such gastro-intestinal problems & the pain in my back is way worse than it's ever been. So I'm just going to keep taking Imodium & hope that keeps working. I'm scared to eat anything & have lost another 5 lbs. Anyone else have this? I've had this for 2 weeks now & my onco appt is a week tomorrow. Thx, Dee
0
