Bone Mets Thread
Comments
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Carla, hang in there, It is frightening, for sure, but you have our prayers and the chemo offered by your onc to deal with this. Get with a nutritionist to help you eat well, while not feeding the cancer. Also, when things are happening too fast, the best thing is to focus on the next thing. One step at a time.
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Dunes, great advice!when things are happening too fast, the best thing is to focus on the next thing
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Carla - checking in on you. How are you feeling today ? I am hoping that chemo will kill those cancer cells everywhere with minimal side affects
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Leah- your description of skiing is perfect.. I had to laugh.
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Can anyone tell me there side effects they had on Adriamycin...Give me suggestions on deal with them when they come up...
I made it through the first treatment I was really scared getting the treatment yesterday...but my OC nurses our wonderful with the patients...at least I see it for myself....... I woke up tired...feel like I am hung over a little this morning...Have my caretaker here helping me with chores..not much cuz I live in a 5th wheel...so she helps with dishes...sanitizing etc...
The sun is shining today...Wahoo...!! maybe get out in the cold and enjoy a short walk with my Bubba...(Dog)...
I don't know all of you by username or name...but I want to thank all of you that respond to me for the support and love....it means alot...when your going through this alone..Carla
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Carla - so nice to hear from you - you made it through the first tx! I'm glad you have someone helping you. Can't help with Adryamycin but I'm sure someone will come along with feedback. Did you go for a walk with your dog? I try to go out with my dog every day. I've had him for 10 years now - my faithful companion!
Hugs - Linda
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Carla. Yea. Glad the first tx wasn't too bad. And really glad you got some help around the home. Can't remember much about A but surely someone will come along with helpful hints. Hang in there. You can do this !!
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Good to hear from you, Carla. Day one down, good for you. I don't know a thing about the drug you're on, but this place is full of knowledgeable women, and I'm sure someone will give you some info. Stay strong, sister. We are all rooting for you, and you are not alone.
Just a shout out to all you wonderful women -- hope you've had a good day. It was sunny, and not terribly cold here today. Warm enough for us to take the dogs and ourselves out for a walk. They're small dogs, and one is a little senile, but she loves a new adventure, and every walk is a new adventure! Rebecca is recovering well from her surgery and I'm feeling great, so it's been a good day all the way around. I hope you are having one, too.
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Carla, I would have to say that I felt like I had the flufor about three days after each treatment. So I would recommend eating 6 small meals a day and tons of water! Good luck!
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Carla, glad to hear from you. My first A/C tx was the worst in terms of fatigue. I tried to go for a walk around the block and could barely make it a few houses down. I guess my body adjusted as it was better after that.
I mainly remember being very nauseous and tired. And using the ice chips to prevent mouth sores. Sorry I don't remember more.
Hugs to all.
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I think about you everyday Annie and the mind numbing/rattling effects of this disease. Just know you aren't alone. My heart goes out daily
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Valerie thank you for your thoughts and kind words. How are you feeling now with the rads, any improvement? I hope so and I'm praying for you. It's tougher than I thought it would be but for me I was thinking the most horrible effects would be during my treatment but other than extreme fatigue and nausea I felt relatively well. It's the after stuff I wasn't expecting and of course they told me none of this would happen. I am very limited in using my left arm, it's so so painful I can barely lift it, even hard to drive my car, wash my hair, pretty much impossible to do anything. Patience I guess, just started Meloxicam yesterday, hoping it helps. We just have to keep on keeping on!
Carla, you've been through so much but I'm happy to hear your first treatment went well. I am visualizing adrimyacin (sp?) kicking your cancer's butt and all of your mets shriveling away! Positive thoughts and healing energy going out to you.
And to all the other wonderful ladies, I can't name you all as there are so many of us now, praying and visualizing brighter days ahead for us all.
Hugs, Annie
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Sounds like a lot of us had good weather yesterday. We had that 3 year old boy. My gosh he was a whirlwind of energy! Wr tried to use up some of that energy by walking around the block. It only exhausted us. He was still wild. Nevertheless, it was a great day for wandering around looking for a saber for me and a hook for me captain. I also found a dagger, but we never found a good hook for me captain. He found an adequate one, but we must continue to search for the right one, which only me captain can discern. We discovered some puddles that we really could have used our pirate ship to cross, but with a big hop me captain landed direct center of the water. Aye. We returned to the ship where captain put on dry shoes and I took 2 pills to make the pain go away.
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Carla-hopefully you are feeling not so bad today. When I did AC I would get it Thursday morning and then go into work for the afternoon. Then once home I did absolutely nothing but enjoy TV and drink a LOT of water. Friday I would feel a bit off-crusty and dried out, but I would go into work for the day (take my neulasta shot at noon) and then go home and enjoy TV and drink a LOT of water. Saturday morning was where I felt the most off-I would get up and take an anti-nausea pill and take it easy for the morning and drink a LOT of water. By early afternoon I would be rebounding and just get better from there. I hope it goes as well for you. As you can see, the theme is.......drink a LOT of water.0 -
hey carls. Hope your feeling pretty good. Maybe out and about ? Hugs
Love and hugs to all.
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Carla - glad you made it through Round 1. You go girl! And glad you got some help.
Dune - hope you find the perfect hook for your captain soon! I love your posts - you make me laugh.
Annie - I am so sorry to hear of your continued pain. That's awful. Going through radiation is bad enough, but to end up with more pain afterwards is the pits.
Sharon - glad Rebecca is better and you two got out a bit.
Patty - hope you're doing well.
It's a bright sunny day here today in Otaki. We're having a spectacular summer, I must say. Last summer was crap, so this year is making up for it and I am truly grateful. Have to go pick poor Romeo (aka Big Dude) at the vet at noon. He's been acting like something hurts and the vet originally thought bad tooth, but it turned out to be a bad ear infection. So they've kept him overnight to monitor him. Poor kitty! And when we get back, I am determined to get some of the plants I've bought put into the ground and to go out and destroy some weeds which are threatening to take over. I must say that my optimism is much higher when the sun shines! May have to go stalk the big bunny rabbit down the driveway with my camera...not to mention the baby quail. We'll see how my energy level holds up.
Hugs to all and a shout out all - hope you have a great day!
Terre
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I do believe that later I shall raise a glass of Guinness to the glory of the sun, the Spring, bunnies, flowers, and even weeds!
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summer sounds wonderful.
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Summer is wonderful. I am not a fan of rain, snow, or cold. The year I was diagnosed (2 years ago), the summer was amazing. Just a stunner - no wind, very little rain, blue skies, nice and warm. And I spent most of it in hospital or on crutches. Last summer was a wash-out - rain, wind, chilly. It never got up to 70F even. Just crap! So my biggest resentment toward cancer is that it made me miss one of the most amazing summers ever. This summer is helping me get over that resentment.
Too funny Dune!
On a bit of a less light note, I think my ONJ is trying to come back. So back to antibiotics and vile nasty icky dreadful tasting mouthwash in the hopes of clearing it up before it gets worse.
Otherwise, things are good!
Hugs to all,
Terre
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I can't wait for summer. Enjoy KWC.My back is hurting like heck. My tolerance to pain is not what is used to be. Celebrex + Tylenols + Dilaudid and still pain! Anyway, it will pass. I can't believe a small met on rib can cause so much pain all over my upper right back and arm. Not a good day. Seeing my MO next Tuesday. Enough ranting....
Linda
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Hope you feel better soon and get some pain relief, Linda! It is amazing how something small can hurt so much...and it sucks!
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Annie, Carla and Linda (and anyone else in discomfort) - I hope the pain goes away soon.
Dune, the pirate adventure made me want to read Peter Pan again - I read it last year for the first time, and I was surprised at how much I enjoyed it.
It's Friday here, and I'm about to go get a pint at the faux Irish pub by my office. And celebrate my victory over the insurance "misunderstanding." They finally agreed to accept the referral for the original M.O. after I switched to a new M.O. at the same practice. The phone reps acted like they weren't going to, for about two weeks, but they finally caved, so all is well for now.
Monday I go in to my once a month Zometa treatment alone. Had someone with me the other four times. It's not hard, it just feels a little lonely. I count my blessings, though, that the treatment is pretty easy as far as they go.
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Congrats on the insurance, NineTwelve! Glad you got them to listen to reason!
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Dunesleeper your post earlier cracked me up, you're too funny
. Yay to the glass of guinness, my dh's favorite!Terre, so glad you're enjoying summer. I'm dreaming of it but temps here are -10 and lower and with the windchill brrrr! I'm praying it's not your ONJ coming back. If it is hoping those antibiotics take care of it right away.
Linda, so sorry to hear you're in so much pain. Praying for some relief for you. I started the Meloxicam, hasn't helped at all, maybe it's a cumulative effect, not sure. Of course I've been waiting 3 days for my radiologist's office to call me back and as soon as we left to go out for supper they call. I'm so frustrated! This pain is bringing me to tears, I don't understand why this hurts so bad
. I thought I was going to get pain relief not worsening pain. NineTwelve thank you for your well wishes. Do your mets to your sternum bother you and if so how? Good news about your insurance!
Screech, good advice for Carla, a friend of mine just finished that chemo and she said drinking alot of water really helped her.
Patty, how are you feeling? I hope you're doing much better.
Wishing all of you a pain free weekend.
Hugs to all, Annie
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Hi, Annie. Yes, I feel an intermittent dull ache in my sternum, but it isn't very bad (yet). I get acupuncture weekly, and sometimes twice a week. It actually helps.
And I read, some time ago, about a technique to manage pain. You think of the pain and make a picture in your mind of its size and shape. Then you breathe, and with the breaths, you imagine the shape of the pain getting smaller. Weirdly the pain gets smaller, too. I've been doing this for some time with my arthritis pain.
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NineTwelve, thanks for replying. For me it's not so much an ache but a pressure, like I have an elephant sitting on my chest sometimes. Rads gave me some esophageal issues which seem to have settled down with Pantoloc. I have often thought of trying acupuncture. I am going to try that technique tonight for my arm pain, glad you are finding it's helping you.
Hugs, Annie
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Annie, do you have a pain patch? Just wondering if that would give you additional relief exactly where you need it. There are several different types. If you don't already have one, maybe ask your onc when you and he connect. Other than that, are they going to do any further testing? I just can't help but feel they may have missed something, for you to be in so much pain.
Linda, so sorry about your continuing pain. Same thought -- maybe a narcotic patch directly on the spot? When my rib pain was at it's worst last Spring, I got some pretty significant relief with lidocaine patches, which aren't even as strong as the narcotic options.
Carla, glad infusion #1 is behind you, and hoping you continue to sail through these next few days without a hitch!
Hugs to everyone! Deanna
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just dropping in to say hi all
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Hi Patty! How are you doing?
Went out and shot some stars tonight. No great photos, but a couple of ok ones. Got to see the Orion nebula with the big scope, which was cool.
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Terre, wow alot of stars in the sky, we have so much cloud cover here I can't wait for a night where we can see them again. And it's so freekin cold that I don't want to be outside!
Deanna, I'm not sure what they could have missed. I just had the bone scan on Jan. 5th and an x-ray by my ortho on the 20th. The pain is in the exact area where my tattoo is for the rads, shooting, unrelenting pain! I just started Meloxicam, hoping it kicks in soon so I can get some relief. I don't see my onc now til Feb. 6th when I have my next infusion. My rad onc will call me back on Monday as I missed his call yesterday after waiting for 3 days. A pain patch sounds like a great idea, going to ask about it.
Patty, hello and glad to see you posting regularly. How have you been?
Wishing everyone a nice relaxing pain free weekend.
Hugs, Annie
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