Bone Mets Thread
Comments
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Linda, I think of the song every time you say you're going to Cuba! I figure the song is guaranteed to give a smile.
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Thank you for telling me of your experiences and feelings. It helps me feel much less like a drama queen.
Linda, I hope you will be able to take pictures there. There is so much we don't know about that country. To me, it would be super exciting and interesting. It's great, in my opinion, that we stopped the stupid embargo.
Terre, I'm going to grab those antibiotics right now.
Unbelievably, I am falling asleep again, so I guess I won't fight it.
Have a good weekend.
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Looks like the link to the song was taken down. Oh well. It's April Sun in Cuba by Dragon if you want too look at it on YouTube. Dune - I agree, would be fascinating to go and about time they stopped the embargo.
Saw this on Facebook...thought it was worth sharing. Hope the moderators don't take it down!
So, take that nap, Dune! Rest is the best medicine.
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Dune, I am so sorry you are in such bad pain. Why are they jerking you around with that awful jaw pain? I am with Linda and Terre, I would be a lunatic. Don't they have emergency slots instead of making you wait 3 more weeks to see someone and find out what is going on?
I totally sympathize with your sad feelings and general achyness. You guys have had a hell of a winter up north. When we get our wimpy fronts through, my whole body hurts. I often tell my DH I could be a much better weatherman by how my body feels than these people on the news.
Good luck to all! I have a very good friend who is a pharmacist who is looking into good pharmaceutical payments for Ibrance. He thinks he may have found a really good one. Will keep all posted.
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gm ladies. Still in hospital. Think this is day 10 or 11 can't remember. Had 2 ct's last night and waiting on MRI given plenty of blood for lab etc. Friday night I got do dehydrated ( even with iv anti nausea med) that I was seizing. Scared the poo out of me and dh. But now a little better getting iv fluids on top of everything else
I've been keeping up with what's going on with each of you but still to tired to respond to all. So hugs for all who want or need them.
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Patty, Hugs to you! I am truly hoping that things really get better for you soon!
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oh jeez Patty, I hope they get you on the road to recovery soon. I thought I had just missed a post about you being home. ((Hugs)) Dee
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Patty - Big hugs to you.Linda
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Patty, big hugs to you, thinking of you always and praying you're feeling better very soon.
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Geez Patty. That sounds awful. Does this mean you are still vomiting, etc? I just can't even imagine. I don't want to imagine it, but I feel so bad for you. I pray that you will start getting a lot better really fast.
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Thanks for pointing out the weather factor, Myra. We have sleet now, and last night was awful. The pain woke me up and then kept me awake. Then I read about Patty. Now that's terrible. As for the oral surgeon, I just let it be. I don't know what I'm doing but I know I have radiation the next 2 weeks. I don't know the schedule yet. Plus I'm going back to work where I know my supervisor is aggravated with me missing work. So I would feel stupid pushing to be seen as an emergency only to tell them I can't come at that time. I guess I'm leaving it in God's hands.
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Oh Patty, so sorry you're so sick! That's awful. Praying for your recovery.
Weather sounds awful, Dune. And here I am, whining that autumn is approaching and summer wasn't long enough. I do know how lucky I am to live here. And the weather does affect my joints. Hoping you'll get some relief from the radiation.
Good news on the Ibrance, Myra. Fingers crossed for you.
Hugs to all,
Terre
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Hey Dune, yes Myra may be onto something for sure. Never even considered the weather factor but I've been really hurting the past few days. We've had a bit of a warm up, -5 and snow today, night before last it was -30 so I don't think that is good for us. I don't think winter got the memo, enough already! I'm longing for Spring, sure hoping it makes us all feel a little better.
Hugs to all, Annie
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The days are sliding past us swiftly, Terre.
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I know, Dune. The days get short here really really fast. It's like one day you wake up at 5 and the sun is up and the next day, it's not up until 6. Bit of an exaggeration, but not much. And it's March already. I want January back.
We ended up not going to the kite festival, which was a bit disappointing. But I blew most of Saturday at Quick Care and DH was ill yesterday. He's had flu or food poisoning or similar and was not feeling to flash yesterday.
Oh well, there's always next year.
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ok last update about me. I am so ready to be an encouragement To each of you instead of a constant baby.
Ct showed a fluid filled cyst where they froze that tumor off a few weeks ago. Said infection is leaking in my body. That's why I get to feeling better get home without antibiotic and it comes back with a vengeance within a couple hours. Tomorrow at some point they are going to squeeze me in and drain it ( super easy procedure ). They'll collect the liquid and send it to lab to see what the best antibiotic is for it. In the meantime staying on rocephin. Still lots of vomiting , chills and big D. Probably stay here Til wed on iv antibiotic then go home with oral antibiotic. Yes. Finally a light at the end of the tunnel.
Thanks for the encouragement and I can't wait to be on the other side of that fence again. Hugs to all
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Kiwi, Our daylight hours are increasing.
Patty, I am so glad that they figured out was is causing all the trouble, finally!
(I always find some sort of typo in my posts...)
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I'm glad they found the culprit and have a treatment plan, Patty. I think you have been remarkably brave throughout this ordeal. I appreciate the encouragement and support people give here. However, the things I learn from your experiences help me understand this disease. That gives me strength when I face various difficulties.
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Oh Patty - what an ordeal. But at last they will get to bottom of this. Hang in there!Linda
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Patty, glad to hear they found the problem and will give you the appropriate treatment now! I hope you get feeling back to normal soon. What an ordeal you've been through. Hugs, Annie
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I've been thinking about you Patty. Glad to hear there is a treatment plan in the works
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I start rads tomorrow. Apparently I stored up all my anxiety about that until now. How long do they zap you? Is it 15 minutes and does it feel like forever? I also start back to work in the morning. I'm hoping that goes well. I'll be thinking of all of you as I lay here. Terre, I'd love to see a picture of Australia in the Autumn. Dusty is getting all worked up, running back and forth over his food dish, kicking the food out onto the floor. He's kind of like a kid who doesn't want to take a nap. Be well.
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Patty,
Hope you recover well and get home soon.
Terri
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Patty,
I'm glad to hear that they have a handle on your problems and I hope the antibiotics do their job swiftly.
Dunesleeper,
I am no rads expert, but when I had rads to my femur, the actual time on the table was very short, less than 10 minutes I think. They had these nice illuminated ceiling panels that showed soothing nature scenes (I was on my back). Carefully slathering aloe vera gel on the radiated area and getting dressed took longer. I also had to meet with my RO once a week to make sure things were going well and answering any concerns/questions I had. Best wishes for an easy time
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when I had rad tx, I was in and out in less than ten minutes also. Wear leggings or sweatpants makes it much easier. I found the whole process pretty easy. The rad techs were lovely young women. I hope it goes as easy for you.
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Yes, my rads techs, both male and female were great. They totally got my irreverent sense of humor
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thanks ladies
Dune - good luck with radiation tomorrow. I've had it a couple times. The first time was a breeze like laying in a tanning bed the next time part of my stomach and esophagus got radiation which irritated both of them. But compared to chemo , for me , it was a walk in the park. Will be thinking about you tomorrow
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Aw Patti, So sorry that you are still waiting for it all to get figured out. Special prayers that it will all take a turn for you.......hugs Peggy
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Wow, Patty. Happy they are figuring it out. Feel better soon
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Dune, I had rads to my chest wall and axillary my first time around, and as others have said, it was no big deal. You don't feel a thing while it's happening, and it's usually pretty quick -- a few minutes of getting you positioned, and a few minutes of flashing lights. My rad center had an awesome constellation on the ceiling, but I also let my mind go to beaches I've loved. Someone in the rads support group I was in here on BCO came up with a mind game I also played, where you pick a color and then name everything you can think of you're thankful for that's that color. Whatever you choose to think about, the time will go fast, and you'll do great!
Oh, Patty, you have been through the ringer with that infection! Hoping the additional testing they're doing will be the winning ticket to get you past this once and for all! I can only imagine how exhausted you must be from such a prolonged bout with whatever this is!
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