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Bone Mets Thread

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Comments

  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited April 2015

    Thanks, Annie!

  • cjanet
    cjanet Member Posts: 288
    edited April 2015

    dlb, I just posted out a whole reply and lost it :(. Anyways, docs are making an educated guess after looking closely at an MRI w contrast that it's a tumor. I saw it too and it looks funny. The bone doesn't look normal. And it feels in my gut like a tumor, a pain that is unusual. A Neurologist also showed me 2 shaded areas of 2 verterbrae that look to me more mets and I feel a sensitivity/mild pain in those areas. Guess what? Being made to wait the whole damn weekend so the onc can take her sweet time looking at my PET to drop the shitty news. Well at least that's the way I feel. Hope she has a good weekend. Can you tell I'm angry?

  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited April 2015

    cjanet - that sucks! So sorry you're going through this!

  • dlb823
    dlb823 Member Posts: 2,701
    edited April 2015

    Arrrgh!!!! That's really crappy that you have to wait for your results, cjanet. Sorry. Hopefully, you'll get good news on Monday! But I feel your frustration!

    Terre, I bet your kitty will still turn up. Keep the faith. Have you put up posters and all that kind of stuff?


  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited April 2015

    Thanks, Deanna. We have posters up, have done a letterbox drop of fliers, alerted vets and SPCAs in the area, and put up ads on "pets on the net" which is a nationwide site for lost and found kitties. We're keeping the faith.

    We do have some foster babies which is helping lift my spirits a bit. Here's a short video of them. https://youtu.be/AHvlq5Ei4x8

  • freebird53
    freebird53 Member Posts: 141
    edited April 2015

    I've been in the hospital off on for the 3 mths...it's either fever of 103.5 or abdominal pain from my colostomy...And the fear that something may happen when I"m home alone...They talked alot to me this time in the hospital about assisting living...I just got this 5th wheel and love living here...I have a caretaker a couple hrs during the week..but not on weekends...I think I'm going down hill...I can hardly eat...walking is difficult...I NEVER FELT LIKE THIS IN MY LIFE...IT FUCKING SUCKS...I WAN'T MY LIFE BACK NOW!!!!!!!!!!!!!!!! Just give me some strength God!!!

  • ibcmets
    ibcmets Member Posts: 312
    edited April 2015

    Freebird,

    Praying for you. I hope your health turns around.

    Terri

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,300
    edited April 2015

    freebird,

    Wish I had more to offer you besides my thoughts and prayers. Would it be possible to get more in home help?

    Caryn

  • annieoakley
    annieoakley Member Posts: 653
    edited April 2015

    Carla, I wish there was something I could do to help you. Praying for your health to turn around and sending you healing hugs, Annie

  • dunesleeper
    dunesleeper Member Posts: 1,305
    edited April 2015

    Same here Carla. I'm sorry you are feeling so poorly. I hope you will feel better soon.

  • teacher911
    teacher911 Member Posts: 152
    edited April 2015

    Carla, sending strength and gentle hugs to you. Hoping you begin to feel better very soon.

  • dlb823
    dlb823 Member Posts: 2,701
    edited April 2015

    Oh, Carla, I hope you can figure out how to have someone available when you might need them, but not have to move. So sorry you have to deal with this. (((Hugs))), Deanna

  • Romansma
    Romansma Member Posts: 650
    edited April 2015

    Shoot, Carla, I'm sorry! I hope something happens to turn things around soon!


  • leggo
    leggo Member Posts: 379
    edited April 2015

    Freebird, sorry for barging in. I'm so sorry for all you're going through. I wonder if someone has let you down in your care. Problems with chemo are one thing. Problems with chemo and a colostomy is quite something else. Has anyone at the hospital explained the special ostomy care required during chemo? I can't help but think your fevers and abdominal pain are connected. Please know I'm not trying to be condescending and by any means imply that you're not capable of caring for your ostomy, but there are several protocols that have to be followed when having chemo with an ostomy. We all know that doctors aren't always the best at pointing out all the problems with our treatments. I wonder if someone hasn't overlooked this. Again, apologies....I've seen patients not being informed one too many times. I feel so bad for you and just wanted to make sure someone has talked to you about it. I sure hope you feel better soon. Hugs.

  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited April 2015

    Carla - so sorry to hear you're going through this. Sending prayers, hugs, and good thoughts your way.

    Leggo - I can't speak for Carla, but I appreciate your advice. I don't have a colostomy, but good to know just in case the day comes.

  • 3-16-2011
    3-16-2011 Member Posts: 279
    edited April 2015

    freebird

    I just wanted to send more support your way. It does sound like it sucks. I wish you find some pieces of your old life and some peace.

  • GG27
    GG27 Member Posts: 1,308
    edited April 2015

    Carla, I'm giving you all the strength I can spare.... I am hoping you can get this behind you & get back to your 5th wheel that you love! Have you asked palliative care about getting a medic alert necklace in case something does happen while you're alone? I don't know much about them but would think it may give some peace of mind. Hugs & know we're thinking of you, cheers, Dee

  • Myra1211
    Myra1211 Member Posts: 532
    edited April 2015

    Carla, I am so sorry to hear you are having such a horrific time. I don't know how how old you are, but have you considered assisted living arrangements for a short while until all this crap straightens out? My mother, who I am sure is quite a bit older than you, is in a beautiful assisted living facility. It is both assisted and independent. She has a terrific one bedroom apartment, and it has been a G-d send! She is taken care of, food, laundry, cleaning, doctor's appts. Etc 24/7. She is checked on several times a day and night and believe it or not, there are younger people, 50s, 60s, who are living there who just need an extra level of care.

    I can not imagine how frightening it must be to be going thru this alone, especially at night. All those rotten demons come out in the dark.

    Please take this advice as it was intended with love and caring, just in the short term until all gets better and you can return to some semblance of your life. Myra.

  • Sharon8
    Sharon8 Member Posts: 81
    edited April 2015

    Carla, I'm so sorry you are feeling so crappy and that your life seems so out of your control. I agree it would seem helpful to see if you can get a little more help at home, but it also sounds like you need a bit more than that in the short term. It would scare me to go into assisted living, but maybe your quality of life would improve if you had more attention paid to you right now. In any event, I, too send you hugs and healing energy to get you through this rough time. I know it's hard to stay strong, but hang in there. You can do this.

    Sharon

  • aoibheann
    aoibheann Member Posts: 259
    edited April 2015

    Thinking of you Carla. Nothing new to say, just I'm so sorry you are having to go through this. Sending you healing thoughts and hugs. xx

  • freebird53
    freebird53 Member Posts: 141
    edited April 2015

    Myra...can you tell me what the name of the place is and I'll see if we have something like this in my area...Carla

  • Myra1211
    Myra1211 Member Posts: 532
    edited April 2015

    Carla,

    Here is the website. Hope this helps. Let me know if you need anything else. Myra

    Five Star Senior Living: Senior Living Communities

    https://www.fivestarseniorliving.com/Five Star Quality Care, Inc. is a national senior living communities and services provider offering: Independent Living, Assisted Living, Memory Care, etc.
  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited April 2015

    Carla - please don't let what I'm going to type freak you out. Here in NZ, the hospices have respite care. It's not going into hospice to die; it's going in for a few days to get some rest and care. When I first heard it, it nearly did my head in, but now I'm kind of used to the idea and have seen people here check themselves in and out when they just need a bit of extra care.

    Sending hugs,

    Terre

  • annieoakley
    annieoakley Member Posts: 653
    edited April 2015

    Hello to all,

    This thread has been quiet. Just popping in to check on how everyone is doing?

    Carla, I hope you were able to find some help in dealing with your situation. Thinking of you always and sending you hugs.

    Terre, any luck with your missing kitty? I know how hard it must be for you and I pray he/she returns.

    Hugs to all, Annie

  • Myra1211
    Myra1211 Member Posts: 532
    edited April 2015

    I was just thinking the same Annie! I thought bro was having problems again.

    Have a good day all. Myra.

  • annieoakley
    annieoakley Member Posts: 653
    edited April 2015

    Myra, that's what I was thinking too. Nice to hear from you :)

  • LindaE54
    LindaE54 Member Posts: 1,379
    edited April 2015


    Me too.  How is everybody?

    I'm renewing my mortgage today for 5 years (ambitious?).

    The sun is here this morning - at last!  The summer doesn't want to kick in around here.

    My pain is well controlled.  At my entourage's suggestion, I lowered the dose this week end.   Not a good idea - so went back on the higher dosage and feeling good.  I should not let myself be influenced by others but at least I know these meds are necessary for my QOL.

    My last TMs were higher.  Will see what the trend will be.  I have some new pain - keeping my fingers crossed.  I'm seeing my Onc on Monday.

    Linda

  • JustJean
    JustJean Member Posts: 170
    edited April 2015

    I have good news. I had a PET scan last week and got my results yesterday. They show that there is no progression on the bone mets and that I am stable.


    I'll take that. I hope it means that the exemestane is working well. Yay!


    And...14 days until Ileave for the cruise !


    JJ

  • LindaE54
    LindaE54 Member Posts: 1,379
    edited April 2015

    Justjean - Awesome!  And enjoy your cruise!

    Linda

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,300
    edited April 2015

    just jean,

    What great news and what a great way to prepare for your cruise.Where will you be cruising to?

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