Bone Mets Thread
Comments
-
Terre,
We've had our share of flooding in upstate New York with rain 15 out of the last 21 days and more to come. My sons in Texas have been hammered, too. It's too bad we can't donate some of our deluges to California!
0 -
No kidding @ deluges. View from our house. Normally, the "lake" is filled with cows, sheep, and grass instead of water and ducks. We're lucky though; high and dry. Some have lost buildings and animals. And the highway to the north of us is indefinitely closed. Bit of a wash out at the bridge.
0 -
So in case having flooding, ducks swimming where sheep were grazing yesterday, and continuing rain, now we had an earthquake epicentered directly west of our house by about 1.5 km. It was a little one, but still. Enough is enough.
0 -
Terre, oh my goodness, enough is enough is right! Glad you guys are high and dry but so sad for those who have lost buildings and animals. I hope things improve quickly. My thoughts and prayers are with you and everyone dealing with this. Hugs, Annie
0 -
Wow Terre, those pics are amazing! I love the one of the kitties looking for ducks. It looked to me like there was a car or 2 stranded as well. I wish we could have some of that rain, we're so dry here. Take care, Dee
0 -
Thanks Annie and Dee. Happy to send you some rain Dee. It's all perspective though...saw a thing from my home town (Rapid City, SD), and there's grapefruit size hail and tornadoes. Guess the rain isn't so bad after all.
0 -
It is all perspective. If I didn't have a garden & wasn't on a well (had city water) I would probably think this was the best spring ever! It's been warm & dry. We've never had forestry shut down in June before. It's not even summer yet, oh boy, it's gonna be a dry one! Dee
0 -
I am sorry you're going through a drought, Dee. Especially when you have a garden and well. We're on tank water (from the roof). Our water tank is really happy these days! I do hope you get some (moderate) rain. We've had a month's worth of rain in under 24 hours twice in three weeks now. It's a mess. Sure wish I could send you some! Wouldn't send you our earthquake though.
It's still raining here, but not as hard as it was. The paddock to the east is more grass than pond now, which is really good. Several people lost livestock and their homes are flooded. Hoping it dries out more today - there's almost a glimmer of sunshine and clearing going on. Fingers crossed.
In an act of sheer will and determination (and heroism), the highway guys got the nasty bridge washout (see photo in previous post) repaired enough to drive over, so the State Highway is open. For those of you not familiar with NZ, the State Highways are the major two lane roads up and down the country. We don't have much infrastructure - the whole country is the size of Colorado in square area. Anyway, SH1 goes from Wellington to Auckland and is the major trucking transport route. Normally from our house to Levin is a 25 km drive, straight up SH1. With the bridge gone, you had to drive almost to Wellington (about 60 km), across SH58 to SH2, up SH2 to Palmerston North over some very dodgy roads and then back to Levin - about 250 to 300 km total. Then even more roads closed so that wasn't an option either. So, it was a mess!
The storm has now moved west and north, so other towns are copping the mess. If you're interested, there more info here: http://www.stuff.co.nz/
And yes, our national news is on a page called "stuff".
On a happier note, my foster failure kittens are settling in well. And we had planned to do some house hunting today, so having the flooded areas is actually a bit of a bonus because we can figure out where we don't want to live!
Sending hugs to everyone, and a kitten picture (sorry dog people!).
0 -
I love that "foster failure" not because they did, but they get a fab life with you & DH.
I have cisterns from my roof for my gardens too, but it's just been so darn dry here & it's funny because we live in a rain forest! Everyone talks about how much it rains here, well certainly not in the last few years! Luckily I have a wonderful neighbour who brings me water when my cisterns are empty but we do worry. Take care on those washed out roads.
Hope everyone is doing ok. Cheers, Dee
0 -
LOVE the kitten pictures!! How can anyone see those sweet kitties and not smile
0 -
This thread has been very quiet, hope everyone is feeling well and busy enjoying life. Terre, have things improved there with the weather? We had a pretty terrible storm last night that scared the crap out of me, and it was nothing compared to what you went through. The entire household was awake at 3 am and my cat was hiding under our bed just petrified.
Haven't heard from Patty, we miss you, let us know how you're doing.
To all the beautiful womem on this thread, hoping you're all having pain free days and having some fun.
Hugs to all, Annie
0 -
Hi Annie,
Weather has improved with regard to rain. Now it's just cold. I know...complain complain complain!
What part of the country are you in Annie? They had an horrific storm near my home town - grapefruit sized hail and tornadoes. Ick!
Hope everyone is doing well and out having fun!
Terre
0 -
Hi all,
Just checking in and saying hello. Been away for a few days and catching up on all the threads.
Linda
0 -
Hey Terre, glad the rain has improved but sorry it's cold, we're never happy are we? I live very near to Niagara Falls, Ontario in Canada. We're having a weird start to our summer but I'm not going to complain right now because it hasn't been overly hot, I'm not a fan of intense heat, it affects my MS very negatively.
Hey Linda, nice to hear from you too, how have you been feeling? Are you still being able to get around without your cane? I hope you're having some pain free days.
Hugs to all, Annie
0 -
Annie - I'm not a great fan of intense heat either. I'm doing well, still without a cane, except for longer walks. We've had a few nice days here and enjoying it on our pontoon and a nearby beach. Although heavy rain night before last with thunder and lightning - very impressive on the pontoon. I must say we had a hard time falling asleep and were anxious for the rain to stop. Luckily no winds. I wish my energy level was better, I get tired easily and had a couple of migraines but can't complain. How are you doing? Is your MS stable?
Linda
0 -
Linda same here last night, storm was so bad I was awake at 3 am, the whole household was so I'm dragging my butt right now. The lightning was so intense it was like someone turned all of the lights on. I'm glad to hear you enjoyed a nice few days away but sorry about the migraines, they can be debilitating. I am doing well with my MS. I saw a new neurologist a few weeks back and she was amazed at how well I am doing considering I was diagnosed in 1999. She sad it's too bad I had to have all these other troubles with breast cancer because my MS is quite indolent in nature even though I've had some serious relapses in the past. I guess I've had a little good luck in my bad luck. Sleep well tonight!
Hugs, Annie
0 -
That's very good news Annie - very happy for you.
Linda
0 -
Thank you Linda, I guess we need to appreciate every little positive.
Hugs, Annie
0 -
Hi, all ~ I was also out of town for a few days -- in Las Vegas to catch Reba with Brooks & Dunn at Caesars -- a Fathers Day gift for my DH. It was a fabulous show, and we had a really great time in spite of the excessive heat (109-112 range) -- something we've been dealing with for a few days throughout Southern CA, AZ & NV. Too bad we can't somehow combine and normalize all of our crazy weather!
Nothing else new to report. I tried to keep up here while we were away, and I'm concerned not to see any news from Patty, Carla or Dune. Hoping all is well and that they too have just been busy. I know Carla was going to OR, but I'm still concerned.
I see my UCLA onc on July 2. Still trying to sort out if I'm suppose to have a CT or labs before then. Sometimes it's confusing using 2 oncs. Deanna
0 -
Hi Annie, Good to see your post and hear that you are doing much better and your MS is "behaving". You are an amazing person....slugging it out with all that comes with MBC and then your MS issues and always such an encouraging voice for all of us. Big hugs, Peggy
0 -
hi all
I think I may have poated sometime ago on this thread but mostly read it. I am so impressed by the positive support that is here. Linda your good news brings us. all hope and celebration.
I do have a question for you wise women. I have had. bone mets dx since 11/2014. It still feels so new. My follow up pet scan in April was great all suv levels shrinking considerably. So it looks like a good response to extemestane. Now I have new aches and. pains in ribs and pelvis. This. is not bad pain very. manageable but hanging around for a week now in a come and goes kind of way wose with activity. I know I should bring it up at my onc appointment 6/30.
Do you ever figure out what is paranoia and what is real??????
0 -
Hey Deanna, welcome back and wow sounds like you and dh had an awesome time! That heat would scare me away though, you'd have to scrape me up off the pavement. I hope you get things sorted out at your appt and I agree it would be confusing using 2 oncs. Wishing you all the best!
Peggy, thanks for your beautiful words! I hope and pray I deal with MBC as well as I have with my MS. Nice to hear from you and I hope you're doing well.
3-16-2011, I'm not sure we ever figure out what is paranoia or what is real but I know we do have to realize that we can still get other normal aches and pains just as we did before cancer. I think Deanna said once any pain that lasts for 2-3 weeks without relenting should be checked out, that is a good rule of thumb. I've had pain in my ribs and pelvis that comes and goes too, and it always boggles my mind, not sure what it is but it never sticks around so I'm happy about that. I would mention it to your onc just so you have some peace of mind. Sending positive thoughts that it is nothing to be concerned about.
I second what Deanna said, Patty, Dune and Carla hope you are doing well, thinking of you always.
Hugs to all, Annie
0 -
good morning ladies. Been out a few days. Catching up on everyone.
I've been in a fog of depression. Didn't want to bring it here. When on when will it get easier ? Been missing my DSS like crazy. They are still in Tx with meme. This is their 3rd week there. They are supposed to come home sat but meme is saying she may have to wait til Monday. Boo. I am fighting this cancer like crazy for my DSS . not having them here makes it harder to continue. I do talk to them on the phone and by text several times a day. Depression sucks. Never experienced it before stage iv DX. I used to think it was mind over matter. Suck it up and push on. But finding out depression is so much more than that. I do take something for depression but ma need to call nurse. Obviously its no longer working. Been in such a funk thinking they are doing great without me. Thinking if I am going to give up and die now might be a good time. While they are away. Certainly better time than when they are at home to find my body. Seriously I am not doing anything stupid but it sure haseen an unshakeable thought.
Hugs all around
0 -
Hi ladies,I want to say hello and I love all those photos coming in!!
Patty, please don't stay away because you are depressed. This is the place to bring it because I think we all have those thoughts. I do get those feelings when I am in bed and my kids are playing outside just fine, like they don't need me, maybe it would be good to go now. But I'm still going to keep fighting even when they tell me they don't love me and I don't understand them. I think getting a meds adjustment just might help. And w your sons gone you probably have too much free time to think think think which is never a good thing. Can you plan low key activities every day for yourself? Go to a movie, go to the bookstore, take walks with your husband? I definitely understand the depression. It's been coming and going for me since childhood, before I ever had cancer, so I'm now a little better able to fight it.
I have been having a new pain in my back, below my shoulder blades on both sides of my back, like a strong ache. I am wondering lung mets? I do have some nodes in my lungs and I had a pleural effusion on my left side when I had my PET scan in April. I put in a call to the oncologist and I do have an appointment with her anyways next Wed. If it's those nodes getting larger or some other cancer, I want to start chemo already. Just on the arimidex and xgeva and Lupron for now. Just don't feel like I'm using enough meds to fight this thing. Has anyone with lung mets had this sort of pain?
0 -
pattyepper
Sending you support. Yes deression is so much more. than the blues. Wishong you good. medicine and peace.
0 -
I've also been having hiccups for the past 3 days as well. I somehow think the pain and hiccups may be connected, maybe a new tumor pressing on back and diaphragm and causing pain and hiccups? I hope I get a scan soon.
0 -
Patty, so sorry you're depressed. I agree with cjanet. Please don't feel you should stay away if you are feeling that way. We all know and understand those feelings. Your boys being away I'm sure adds to those feelings and I bet you can't wait for them to be home to give them hugs and kisses. This disease makes us go places mentally that we would never do otherwise. I find myself trying to make my kids not need me so much in anticipation of the future, trying to take some kind of control of this madness. I think all kinds of things that are probably not healthy, but that's where my mind goes sometimes. We can't blame ourselves. I would talk about a change in meds with your doc if you continue to feel depressed. Hang in there. Prayers and hugs. Joanne.
0 -
Patty, I just PM'd you. In the mean time, I hope you've reported what's going on to your onc or PCP or other doc. Meds -- even ones we've taken for awhile -- can actually worsen those thoughts beyond your control. I'm as concerned that you may need to get off (with your doc's guidance) any anti-depressent or anti-anxiety med you're on now, as I am about you hopefully finding something that works better at keeping those black thoughts, which we all have, to a minimum. For me, music can be a great mood elevator, but I sometimes forget that when I'm feeling down. So if you haven't already, maybe try blasting whatever music lifts your spirits.
cjanet, the back pain you're describing sounds like the aching my bone mets causes (back ribs), especially if I'm out and about and on my feet too long. And as far as the hiccups, since you're in pain and afraid of lung mets, I'm wondering if shallow breathing could be the culprit?
0 -
Hi all,
Wow, lots to catch up on! I think what I want to say has already been said by others, so I'd echo their thoughts (how lazy am I?).
Patty - hope depression isn't contagious and I didn't give mine to you. I know exactly what you're talking about. I feel into a horrific depression; started in April and just finally shaking it now. And I think what Deanna said is definitely correct in my case. I have been on Prozac since day 1 of dx. However, it wasn't touching this most recent depression. That "might as well go now" feeling is all to familiar. My thing is that I feel (still, but not as bad) that I'm a failure on every level of life. So why bother? Not suicidal, just kind of apathetic about living.
Anyway, I need all my prescriptions renewed as I'm out of almost everything. Ran out of Prozac about 2 weeks ago. I knew I was running out, so had gone to one pill every two days, then three. No I've been off for 2 weeks, I finally feel less depressed. So I'm wondering if the Prozac was actually contributing to my depression. Seems counter-intuitive, but I know it can happen. I still feel like a complete failure, but I'm coping with it and finding reasons for continuing the fight.
cjanet - hiccups for three days. How miserable! I get aching bone mets in my back and ribs too. My back was sore for about a week, and it's better now. Of course, my leg hurts like hell instead, but oh well. At least my back doesn't ache!
Annie - glad the MS is doing well. Linda - glad you're doing well overall but sorry to hear of migranes. Misery!
Deanna - I'm jealous. I do get homesick for Vegas; even for the heat.
I lived there for over 20 years and you do get used to the heat. Sounds like a great time!3-16 - I think everyone else has covered it off well, but I'll toss this in. I had some intense long-lasting pain so told the MO. Told him I was afraid it was progression, or maybe I was just being neurotic. He said "A neurotic American? Never heard of such a thing!" And he laughed. And got me a bone scan. All neurosis. No cancer. That's still one of the hardest parts for me - when is it paranoia/neuroses and when is it real? So far (touch wood), all mine have been paranoia. But still worth checking out and discussing with your MO.
Sorry if I've missed anyone...
Hugs to all,
Terre
0 -
Anne - how horrific! Glad they gave you good meds. Sorry you went through such a crap time!
0
