Bone Mets Thread
Comments
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Deanna thank you for that article. Fascinating. Patty, your boys are adorable!! I so pray for the women with young children to live to see them grow into their adulthood. I personally have been blessed to see my boys reach to 27 & 31. Now I am praying to see my first grand daughter be born in August. G-d I hate this disease! 
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Myra,
My older dd found out that she was pregnant just a few days after my dx. I am happy to say that my beautiful granddaughter turned 3 this past March and is the light of my life. I also walked my younger dd to the chuppa two years ago. Stage IV still stinks, but G-d willing, you will live to see much joy.
Caryn
PS: my daughters are 25 and 31, so just about the same ages as your boys.
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Well from Arimedex to Exemastane to Abraxane in three short months. Starting IV chemo next week wish me luck.
Aur
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Aurora - GOOD LUCK with iv chemo. I hope this new tx is kind to you and shrinks all those mets. Prayers your way as well. Will your Mom still be with you next wk?Myra - Beautiful family and you look darn good! I can see that your granddaughter is gonna be quite spoiled. Enjoy! and may it last for years and years. Your husband is handsome too.
My hot water tank is installed. It was quite a job because it was originally installed in a kind of small wardrobe. Not brilliant to say the least but was like that when we bought the house. Had to demolish a wall - UGH the mess. Anyway, now waiting a couple of hours to have a long overdue shower.
Linda
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Aurora, best of luck with your new chemo. What is it?
Myra, I'm so sorry you felt dissed; but I'm so glad you brought it up and feel better about things. My excuse is that I haven't been feeling all that great. I get tired and then fall behind on my reading and then there is so much going on that I don't know where to start with my comments. So I've been lazy. I stopped taking notes and have basically commented on the most recent posts. I'm truly sorry for contributing to any bad feelings you had.
My scan did not give us the results we hoped for. I don't know yet how bad it is, but apparently it is bad. I go in tomorrow to see the doctor and discuss the next treatment. Taxol did not work. I'm pretty bummed out about it, but then again, maybe the next thing will do the trick. I will do my best to stay strong, to keep a positive attitude.
Patty you are a trip! You keep up with everyone and manage to express yourself so clearly and gently.
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Dune, so sorry. I hope things turn around for you. Everything seems to be moving so quickly with your tx. Could it be time for a second opinion? Are you at Johns Hopkins? I have heard so many great reviews of Dana Farber, UCLA and MD Anderson. Good luck, love and prayers. Myra.
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Dune - Bummer - I'm sorry. Will be thinking of you tomorrow.Linda
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Oh, Dune, I'm so sorry. I know how devastating it is to get that kind of news. Big hugs & prayers that the news isn't entirely bad, and that whatever comes next will do the trick!
Myra, I love your photos. Thanks so much for posting them! You have a beautiful family!
Linda, YAY for hot water and hot showers! It's funny how wonderful those little things become are when we've been without them!
I see my UCLA onc tomorrow. First time in quite a few months. I'd be surprised if she doesn't order a CT in view of my rising TMs, but I'll keep you all posted. For now, I'm heeding her words that this is a marathon, not a sprint, and am over my initial panic about my CA27-29 going in the wrong direction.
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Good luck Deanna today. That shower was good!Today, blood test for infusion next week. They come around very quickly.
To all, a beautiful day.
Linda
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Hi All, I'm also an infrequent poster, but read the thread almost every day & am thinking of all of you needing extra strength & celebrating with those getting good news.
Went in for first Zomedron IV today since finishing chemo - felt so good to be in & out in an hour & back at work!
Off to the mountains for a long weekend with the family tomorrow, will raise a glass of wine in front of the fire while enjoying the view to all of us!
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Thank you Ladies for you kindness and condolences.Annie you sure deserve a wonderful trip. Hope you enjoy to the fullest.
Myra - I don't think I have been on this thread long enough (newbie to the group) to have seen your posts however I still want to say this is NEVER our intention. I have received nothing but kindness and support since I joined and hope I can give the same back. I am finding these ladies more and more sweet and supportive as I get to know them. You only need to give them a chance and I think you will agree with me.
Patty- beautiful pics. You have lots of reason to keep up a hard fight looking at those boys.
Hugs to all.
Cathy
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Good luck today Linda and Deanna on your appts. I am having a PET scan today since my TMs went up 50 pts. Last month. They have been a roller coaster on Ibrance and some right sided pain. I have known there were mets in that hip, they are just on and off painful. We shall see, no results til Monday because of the holiday. Scanxiety big time, fingers crossed. Myra
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Dune，I am so sorry that you thought your scan result was not as hoped. Hope it is not too bad and your Onc will settle it with a new plan.
Auroaya, good luck with your chemo.
Lynnwood, has someone answered your question how to load pictures? I wish I knew.
Patty, your sons are fabulous!
All, have a bright Thursday (it's sunny here after two days' rain, cool and fresh)！
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Karz 72, I related to your post. I read this thread often but post little. I must confess it is due to a sense of feeling I dont messure up. to the wisdom and grace with which you all support each other. I will be in. the mountains this weekend as well and will think of everyone while taking a refreshing swim.
Myra Good luck with your pet scan.
Dunesleeper So sorry about your recent scans. I am sending positive energy your way hoping doctors find just the right next step for you.
Enjoy the weekend all!
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Lynnwood - I posted pics only one time and am a bit computer illiterate LOL. But I think it goes like this: find the icon above that says "insert image" and you can then browse and find your pics. Hope this helps, if not I'm sure others that post pics regularly will come along.Caryn - I looked up your pics - WOW.
Myra - keep busy till Monday (easier said than done I know...)
Karz and 3-16 - your contribution to this thread is important. Come any time you want. I have to admit I lurked around for months before I started participating.
Linda
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good morning ladies. Thanks for all the compliments on my boys. I'll have to post some pics of the whole family. Everyone says my oldest looks exactly like my Dh and the youngest looks like me. Pretty cool since they are adopted. God is good ! We had some great family time last night - lots of snuggling and laughing. Today Dh is off t work and the boys are next door fishing with neighbor kids. Surely they will all be here to jump in the pool soon. They look hot. Thankfully meme washed all their clothes before returning them. Yea ! Figured I would be buried in dirty laundry today. Now I just gotta decide which of their favorites to cook for supper. My sister is coming from Alabama early next week for a weeks visit. Can't wait to see her. She has been the most supportive of all my family. She has visited like 5-6 times in the last two years. We usually see each other only 1 time per year. Guess I better start thinking of a grocery and cleaning list. She is bringing her gd, my great niece, with her and she is almost 4. I def don't have that kind of energy to keep us with her. Lol
LindaE - glad you got a hot shower. Funny how we miss those little luxuries.
Dune - good luck tomorrow. I hate it when the Dr won't tell me over the phone but instead have to wait. Hoping your new tx is hugely successful with minimum side affects.
Karz - welcome glad you posted ! Hope you enjoy your long weekend with family. Post anytime.
Cathy - glad you feel the love. Hope you continue to come back and be a part of us.
Xavo - enjoy your sunshine today.
Lynnwood - posting pics: at the top of the page when you are commenting you will see a line of options like bold, italics etc. See it ? Click on the one that looks like a portrait. Then a box pops select choose file. That will take you to your pics ( if you've downloaded them to your computer already ) choose your pic and hit enter. Hope this helps.
Myra - congrats on your upcoming new grandbaby. Love your pic. Everyone is so cute. Thanks for sharing. Good luck on your pet scan today. There is a thread here regarding scan anxiety - I think its called waiting room open .
Exbrngirl - what's a chuppa ?
Auroaya - what kind of chemo are you starting next week ? Hope you are able to get out and enjoy this holiday weekend before you start.
Deanna - its hard to remember this is a marathon not a sprint. I needed that reminder thanks! Thanks for sharing that article. 4.1 million $ grant for MBC research yea ! Old luck at your appt today is this the 3 hour drive ?
Hugs all around.
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Linda E - we must have posted at the same time. Sorry for the duplicate pic posting info. Oops
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Oh quite all right Patty - you gave a much better descriptionLinda
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Hi Patty,
A chuppah is the canopy that the bride and groom stand under at a Jewish wedding. 👰🏼0 -
exbrnxgirl - thanks for explaining. Learned my new thing for the day. How awesome you go to walk dd
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Found it PAtty! But when I clicked file, there were no pictures to choose from. I know they are in the computer but I am using an IPad. I will have to ask one of my sons how to get them! I am VERY computer illiterate, lol.
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Myra, your family is beautiul. Congrats on your upcoming new grandbaby!
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I post occasionally and due to chemo brain I don't bother with names half the time. Welcome to the newbies,,as the others have said this is a great place to find support and info. I find myself lurking here since the Gilda's Club here closed temporally . Can't wait for them to reopen
As my cousin the rabbi told me the chupa creates a sacred space for the ceremony. Since my daughter married a wonderful man (he was raised Catholic) we did have a canopy, but I never said he word chupa. The kids also attended a pre cana (not sure of the spelling it is when the couple meets with the priest to discus how they are going to hndle their marriage.From what she told me it sounded like a good thing for them) The grooms brother saved the pieces of glass (breaking the glass symbolizes the destruction of the temple in Jerusalem) and had the pieces encased in a lovely xmas decoration which had Mazel Tov (congratulation) written on it. My DD had her first xmas tree this year.. I do like the melding of traditions,
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Interesting stuff NYCchutzpah. It is a nice melding of traditions.
Hello and welcome to all the newbies.
Gosh, I just can't remember what everyone said. I know Patty is enjoying her boys. Several people have appointments or scans today. I sure hope they went well.
Deanna, thanks for reminding me that this is a marathon, not a sprint. My cancer is winning for now, but maybe this new treatment will be more effective. It was actually quite bad news that I received today. She said the cancer had become more aggressive. It was already grade 3. How does it get more aggressive? It sure is discouraging. She is replacing the Taxol with Carboplatin and Gemcitabine. It spread more in my bones, lymph nodes, chest, and lungs. It also went to my liver.
Myra, I don't think I'm going for another opinion. I will give it some thought though. I'll admit to having a lack of confidence in this doctor. I just don't know.
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dune - bummer news . so sorry . I hope this new tx works . great to "see " you
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while my sons were away one of ds1's classmate texted him and said. " this is your mom. I am in the hospital. I will die within 2 days". Ds1 knew it wasn't true and who sent it but it still really upset him. I don't know the boys parents at all but having a hard time letting it go. I really want to call him and ask for his parents and explain the situation but afraid when school starts back it might only make the problem worse that his mom came to his defense. Ds1 is super sensitive about talking anything about cancer.
What should I do ? What would you do? Opinions please
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OMG Patty, my heart is breaking for your DS!! My older son also had a bullying episode in middle school, although it never came out until high school. He was being attacked by boys on the school bus. He told me he never said anything because he knew I would confront them. At the very least I would have driven him to school. Where do these kids learn such horrendous behavior? But I am afraid it could be worse if you confront and speak to the parents if the child gets in trouble or the parents are similar. Kids usually act out at what thet see in their homes. My suggestion would be to see if you could find out about the family, if they are kind or not. If you find they are, I would speak them privately and explain the situation. I would also ask them to speak to their child and ask him to deal with your son with the compassion he deserves (as well as all people). Good luck and hugs. Myra.
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wow patty, So sorry. It sounds upsetting to say the least. I wonder if your son has any idea how to handle it. My son has unfortunately had. some difficult bulling at school. I learned so. much by asking "what do you think should happen." When I listened he had awesome ideas (he is 14). Good luck and I hope your son is ok,
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Patty, that is truly horrible. I like what Myra said. Also 3-16. I know I would say something, but I'm frequently a victim of "open mouth insert foot." If it should happen again, and if I was you, the country would be hearing about me on the news. LOL. It's so sad that children find it necessary to be so cruel.
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Good Evening Ladies,
I just finished reading over 100 pages of this thread and can't believe I've never posted before this. The information and camaraderie are invaluable. Thank you!!!
I've only been around since February 2013 and haven't posted a lot but you have no idea how comforting it is to hear from others experiencing the same things. Dunes I've been tempted to get a cane because my left hip is killing me, even in bed. I mentioned it to my Onc on Monday but she doesn't seem concerned given my blood work, besides my next PET/CT is in in two months so I guess this can wait.
Caryn, I have 6 grandchildren that belong to just two DD's - the other four kids are unmarried so I hope to be able to meet a dozen or more littles ones in the not-too-distant future.
To the rest of you lovely ladies here in the US, I do hope you enjoy the Fourth of July. It's the holiday that makes me feel like a kid again. My father used to be the biggest kid on the block when we were growing up. He bought hundreds of dollars of fireworks and would have his own display for the neighborhood, even before the sun went down. My parents are still both alive, although my father has been forced to slow down due to a recent hip fracture. My mother runs circles around me however at the young age of 80. We went grocery shopping together when I was visiting two weeks ago. She took off in the store and I had to yell at her..."mom wait up" as I limped along trying to catch her.
Anyway, have a wonderful weekend and again, a safe 4th for our US friends.
Amy
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