Bone Mets Thread
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Welcome Orlandoan, I have found this thread to be a place of hope, shared fears, a wonderful base of knowledge and for celebrations in our lives. We are all in this together.
I'm writing this from my friend's hospital room. She was 7 years out with bc and now mets to her lungs. She thought the cancer was encapsulated but it has spread so her lung was removed. I need to be here right now, and I'm so sad for her and her family. Her son grew up with my son and he is falling apart. She is out of ICU so that is good news. I hope she eventually comes here for support. You are all the best.
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welcome Orlandoan, sorry you are here, but we are here to help, listen,and caress.
Good luck, you've come to the right place.
Dune, glad you are coming over to Ibrance. I will be happy to support and help u with any questions
Good luck to all awaiting tests and scans.
Thank you all for all your good wishes and loving responses.
Oh, BTW, Terre, so sorry about your friend.
Myra.
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Oh Lindalou, big hugs for you. So sorry.
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Welcome Orlandoan this sight has been a godsend .. The woman on here are so knowledgable and caring really you found a great site. Sorry about you being here but you are not alone. Hugs
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Thanks for all the support. I hope I get a long run from the Ibrance, but I've calmed down about the situation and am ready to get back with the program. I simply MUST give up these daily sweets, and I think I will go to a naturopath again to see how I might be able to help myself better (with the Ibrance). Also, especially now during this chemo break, I need to get more exercise. Life and its curve balls. I gave away my baseball stuff for crying out loud. lol
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orlandoan sorry you have to joins but still welcome to our humble abode. Sending prayers of comfort for you, your friend and her family. This disease is horrible but here I've found the support we all need. Are you from the Orlando area? And hence the name? I'm in Orlando as well as some of the other ladies in this site. We actually met for lunch a few of us last month and are planning on doing it again in case you're in the area and you're interested pm me.
Again welcome and (((hugs))
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Orlando girls. I'm jealous. My aunt and uncle live in Orlando. I wonder if they would like a visitor.
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Oh. I finished the day with lots of chocolate (grrrrr) and some retail therapy: Samsung Galaxy Tab S2 8.0" (32GB, Gold. I really needed a new tablet, but oh my. This seems like an nice one. Not the most expensive, but very very nice. I must remember how fortunate I am do be able to do that.
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Check in to say Hi to everyone! Welcome Orlandoan! Leah I am very sorry about your TM jumping. Do you have any symptoms other than the jumping TM? Hope your upcoming scan find nothing but tumor flares. Auroaya thinking of your upcoming Friday big surgery. Take good rest tomorrow! Dune wish you great result with Ibrance. Good night everyone!
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Thank you for the warm welcome everyone! :-
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a quick note to say welcome to Orlandoan. Sorry you have to be here but glad you found us. I have found wisdom and support here.
Leah sending pisitive thoughts your way.
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Welcome orlandoan, you have found the best site on the Internet. The ladies here are a real blessing! I am fairly new to Mbc. Was diagnosed on sept 10. They have helped me get thru the worst of it. They are a wealth of knowledge, and certainly we all understand each other, as no one else can. Finding this group,of ladies has been an answered prayer. Once again welcome, we will get through this together. Lindalou, so sorry about your friend!! Terre, you too! I am praying for us all. I have an onc appointment today. Not sure why. I will try to write tonight. Hugs to everyone! Have a beautiful pain free autumn/ spring day!
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Good morning to all,
Linda, feeling a little better but still very tired. I guess Thanksgiving dinner and a concert were too much for me.
Dee, pouring cement? Wow don't think I could do it but please be careful.
Myra, hoping the fact that you're feeling well means more than the rising tm's. Praying your scan shows you remain stable! I'm with you, I hate this disease!
Cristina, thanks for checking in and letting us know how you are. I hear you about long car rides, I can't do it either. I admire you for being able to work through all of this.
Terre, I'm so sorry to hear about your friend. Damn this disease! I have lost 3 friends to breast cancer and know at least 10 more who are diagnosed, what the heck?!!! Your friend is lucky to have you, you'll definitely be a positive influence for her.
Leah, I'm praying the rising tm's are tumor flares and nothing else. I'll be praying for you on the 21st.
Momallthetime, you and Dani are always in my thoughts and prayers.
Orlandoan, glad you found us, this place is a great source of comfort for me. I hear it all the time too about looking good, most people just don't understand.
Lindalou, prayers for your friend and she is blessed to have you to support her!
Aurora, we'll all be with you in spirit on the 16th, sending positive thoughts and healing energy.
ChelleG, good luck at your onc appt. Please let us know how you make out.
Hugs to everyone here, this post is long and don't want to leave anyone out but I'm thinking of you all!
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Good morning all,
Orlandoan - a warm welcome to you. Sorry you have to join us but glad you found this thread. It was truly a lifeline to me when I was dx'd almost 2 years ago. The ladies here are wonderful and so helpful.
Leah - boo on those TMs. There is always an exception to the rule and I hope this time will be the one for your TMs. I don't think mine can be reliable - they went down after starting tx and have been stable and yet I have 5 new spinal mets.
Lindalou - Sending healing vibes to your friend.
Dune - I also have to stop those sweets. But my niece gave me a belated birthday cake that she baked herself...
Wishing you all a good day!
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good luck today ChelleG
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Chelle - I missed your Onc's appt in your post. Will be thinking of you, good luck. Keep us posted. Hugs
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Annie and everyone else thank you for keeping me in your thoughts. One way or another this surgery will mean the end of pain from my hip and so I'm anxiously awaiting October 16th. Terre and Lindalou praying for your respective friends. To those facing scary tms hope you soon turn that page over. Everyone else sending (((hugs))) and wishes for pain free and se free days.
Auror
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Orlandoan, welcome! You will learn so much from these wonderful ladies
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I am back, and my iPad is fixed. It will take me a while to catch up on everything going on.
Welcome, Orlandoan. There are many wonderful people on this thread who will give you support and advice.
Auror, I will be thinking of you on Friday. I hope the surgery provides you with the pain relief you need.
Terre and Lindalou, I have no doubt that you will continue to provide comfort and support to your friends. Sometimes it is more difficult to see the suffering and pain of those close to us than it is to live through our own experiences with this disease.
Leah, I am sorry to hear that your TMs have risen. I hope it is just a fluke and that those darn TMs are just inaccurate for you right now.
Linda, 5 new spinal mets? Ugh, I don't know what to say. I hope you see regression very soon.
I know that I have missed many, many of you. I will try to catch up on everything tomorrow. This MUST be the fastest, most active thread on the discussion boards.
I will keep all of you in my thoughts and prayers. I wish you relief from pain and stress and good test and scan results.
Lynne
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Thanks for the good thoughts for my friend and her family. It's heartbreaking to talk to her son. We've had some long talks.
LindaE, Just wanted to wish you well on your C-spine scan tomorrow.
Auroaya, touch base with us when you can. We will all be with you on Friday. The surgical suite will be crowded!
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Thank you Lindalou! I am at peace and actually looking forward to the surgery. I have high pain tolerance but it's starting to wear me down. Today I went to the cancer center just for blood work. My hemoglobin level has been low the past month due to chemo and is still low so I had a shot to try to raise that. I had a transfusion 3 week ago and that help. I plan on bringing the results of the lab work from today Friday to the hospital so they're aware of the low level.
I'm sorry I don't post often, I sometimes don't know what to say but I always read the posts and send good vibes prayers and hugs to those in pain and suffering from se's.
I'll try to post again tomorrow.
Aurora
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It's been 2 and a half weeks since Romansma/Hope has posted. Is there any way to get in touch with her? I know she wasn't feeling so good.
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txmom, I've been really worried about Hope too. I'm not sure if she has contact information, I wish we would hear from her.
Patty, thinking of you and missing you again, check in if you can and let us know how you're feeling.
I've also missed posts from gaia0132 and wondering how she's doing.
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Gaia0132 posts consistently on the Crazytown thread. I checked and she posted yesterday.
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Welcome, Orlandoan!Thinking of you on (your) Friday, Auroaya, and sending healing thoughts you way. So hope it goes well and gives you pain relief.
Lindalou - hugs to you and your friend. It is harder to watch someone else go through this than to go through it myself. Especially since my friend is in the US and I'm in NZ.
LindaE - good wishes/thoughts/hugs on your scan. Hope it goes well.
Leah and Myra - hope the TMs are a fluke and the scan is good. Fingers crossed. Sorry you're going through this.
Chelle - hope the oncology visit was good today
Dune - you don't need sweets! You're sweet enough already!
Lynne - welcome back!
Thanks for all the good thoughts about my friend everyone.
Xavo, Hydranne, 3-16, Annie, and everyone else - sending hugs.
Would be great if we hear from Hope and Patty.
Terre
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Hello everyone, thank you so much for asking after me. My appointment was sort of a dud. It has been only a month since beginning tx. Onc did say that he felt that the tumor certainly had not grown. So that's good! He also scheduled a pet and labs for December. So I will be spending the holidays in the waiting room. Still have hope that tamoxafin is working. It would be so wonderful to have some good news in December. It was a really good day, warm weather, quiet lunch out with Dh. I love the autumn in Colorado. Hugs to everyone!!!! Love Chell
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Well that's good news ChelleG I'm always concerned with how well the Tamoxifin is working on me too. But you haven't been taking it to LNG right? I noticed a big difference in my tumors size after three months on it. So your in the right direction seems to be working. I was never in Colorado but I've seen loads of pictures and it sure is beautiful Enjoy those fall days big hugs from north of the 49 th.
Wendy
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Wendy, not but a few weeks. But I have all of the hope a girl could want! And of course the moments of dreadful, weighted, heart wrenching doubt. Gosh this is scary! I'm so glad that I have found all,of you. Otherwise, I would be scared and alone. My family is wonderful, loving and caring, but I need all,of you, everyday, to lift my spirits. And you do. Thank you!
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hello all! I'm down in Victoria for rads, but just before we left my MO called to confirm that I am indeed stable. This is after telling me a month ago that my mets were more prominent. So thank you Annie and Linda for being correct! She confirmed that I am having rads to my rib and hip on Friday, yay!
We got the cement work done without me injuring myself.
I sent Hope a PM a couple of days ago and haven't heard anything and I hope Patty is ok too! Cheers, dee
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Whoo hoo yahoo and yippie Dee!
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