Bone Mets Thread
Comments
-
Good morning Ladies on and all. I wish you all a pain free day with positive results for all.I'm so happy for you Dee! I guess gardening is good for you after all eh?
0 -
Awo SOME Dee! I've got ants in my pants! Let's dance! Such great news. Keep up the fantastic work. Love, Charlene
0 -
Terre, I wish I could give you a hug to try to comfort you about your friend. Geez. I wish I could give you all hugs for all the support you have given me from the very beginning of my Stage IV experience. There is no way to adequately express my gratitude. I don't mean to be sappy, but I have had depression/ anxiety issues since I was a child. With your support, we have really only seen its ugly head a couple of times. That's a big deal.
0 -
Good morning all,
Chelle - sounds like your Onc is on top of things. And great news that tumor is stable! And you're right about this thread. It has been and continues to be a lifeline to me.
Dee - I am thrilled to be right LOL. It's awesome! Good luck with rads.
Dune - You're quite special to me and as Terre says, "sweet enough". In the midst of your hurdles, you always continue to give support. You rock girl.
Thank you for all your good wishes.
0 -
Great news Dee and good luck today Linda. Still have heard nothing from Hope, many women are looking for her. I am praying she is ok. Myra.
0 -
Great news on being stable Dee! Thinking of you all ~ Karen
0 -
Romansma/Hope logged in on 3 Oct the last time. I checked our Central Address Book and her personal info is not there. She's also on caringbridge.org and no update there either. I hope and pray she's OK. Does anybody have info on how to reach her?
0 -
Hope has written an update on her Adrogen... thread please go on and read her update.
I am always praying for all of us but I have a difficult time keeping up with busy threads like this one. Hugs, ML
0 -
Dune - you inspire me and you always make me laugh. Sending you tons of hugs back, dear one.
Sending good thoughts to all!
Terre
0 -
Dee, stable is great news! Congrats
0 -
PET finished. And now we wait.
0 -
Sending good thoughts for great results Stefajoy
0 -
Ditto Stefajoy
0 -
Prayers for good scan results Stefajoy! The waiting is the WORST!!
0 -
Where is Deanna? Hey I miss you.
Dee so happy for you.
LindaE54 are you havind rads to that area, or they hope tx will take care of it.?
Wendy Chelle, Dani was on Tamoxifen way in the beginning but when she was dx w mets, she had a ovariohysterectomy, I was very worried about it, due to all SE's but it gave her many more options in tx as time went by. The surgery itself was not bad, well she was very young and had no other physical issues JUST the monster C. Anyway was laparoscopic surgery, the hot flashes were the bummer...and they told us w this surgery she'd have less to worry about the estrogen... Chelle, how often do they do Pet/Cts where you are. My daughter had it every 3 mos for sure.
orlandoan the ladies here are irreplaceable, warm hugs to you.
Aurora hope your surgery goes well.
Let's hope for a calm weekend.
0 -
Hello all, hoping everyone is well. Dune, I am in complete agreement with Terre and Lindae. You are wonderful! Dee, awesome news! Stay there! Stephajoy, we are with you! Have a wonderful evening and pain free sleep! Hugs Chell
0 -
Mommal- I don't know yet. I had a neck scan last night (Onc forgot to include it last time) and will see what's cooking with cervical mets. I'm seeing my Ortho Monday to get his input on Sept CT & bone scans as well as yesterday's scan, and seeing my Onc on 2 Nov. I suspect no rads because I don't really have pain in that area. Last time I saw Onc last week, she said no change of tx if neck is stable (compared to May) and because of improvement in other areas. She says she considers the "global picture stable". Still trying to wrap my head around that "stable".
Aurora - your big day tomorrow! You can be sure I will be sending you good vibes and will be with you in spirit.
0 -
thanks everyone for the cheers! I'm down here in Victoria awaiting my rads tomorrow, hopefully I can put this pain behind me. Hope everyone is doing ok, cheers Dee
0 -
Hello to all,
txmom, thanks for letting me know about gaia0132, was missing her posts here.
Dee, yay on being stable, and like I said I knew it because I went through the exact same thing as you. Good luck with the rest of your rads.
Aurora, you're in my prayers for a successful surgery tomorrow and a speedy recovery!
Stefajoy, sending all my positive mojo for good scan results.
Linda, praying scan shows your neck is stable and you can continue with your current treatment.
MusicLover, thankyou for letting us know that Hope posted on the Androgen thread.
Hugs to all, Annie
0 -
Well I didn't have to wait long. Scan showed stable. Now ONC wants MRI to try to get more info, since my TMs are still going up. So, stable is better than progression, of course! But, more waiting.
0 -
Stefajoy - that sounds darn good! Hoping MRI shows stable also!
0 -
Aurora,
Holding you close in thought tomorrow. Sending best wishes for successful surgery and healing. Your great attitude is bound to help you.
With gentle hugs from your fellow lurker,
Jo
0 -
Stefajoy, awesome news! Hoping to hear the same for LindaE! Aurora, you are in my thoughts and prayers! I will be looking for you on the threads, to hear that all is good! Mom, I missed your post earlier. He is scanning every three months. It's nice to know what things look like on the inside, but the waiting will be torturous! This has been so stressful! Love to everybody!
0 -
Stefajoy - congrats! That's wonderful!
Aurora - sending good thoughts to you tomorrow (and today)
Musiclover - thanks for the info on Hope.
Hi Jobur - nice to see your smiling face!
LindaE - fingers crossed for your results too.
Dune - hope you're hanging in there and that you're feeling better with the chemo break.
Annie - how are you doing?
Sending hugs to all,
Terre
0 -
Aurorya, you are in my thoughts & prayers! I hope you'll let us know how things go as soon as you can.
Stefajoy, hooray for stable scan results!!! That's great news!
Terre and Linda, I'm so sorry about your friends. I can't imagine having a lung removed. I pray it helps your friend, Linda.
Leah, so sorry about the increasing TMs. I'll be thinking of you on the 21st, praying for stable results. I also think of you whenever there's been another headline about the horrible violence in Israel this week. I pray you and your family are safe and not anywhere near those tragic incidents.
And a belated welcome to Orlandoan. I'm so sorry you have reason to join us, but as others have said, this group is a lifeline, and I couldn't imagine going through mbc without it.
Hope, glad to see you've posted! You've had us all quite worried! Thanks for checking in!
I've been very busy this week getting ready for a party we're hosting on Saturday night -- something I've done in the past and wanted to do again, but dealing with less energy than last year, and some general malaise probably due to all the Pinktober stuff I've been reading and posting this month -- about how little actually goes into mets research. Thankfully, I believe the tide is turning, but the reality of mbc has hit me hard this month, especially with so many activist-friends posting about it.
Hello & hugs to everyone not mentioned by name. Deanna
0 -
Hugs back at ya, Deanna. And best wishes for a successful party!
0 -
I haven't posted for a while to you amazing ladies but I need your advice. I have no se's from Tamoxifen and I am worried. Femara healed my bone mets which I was diagnosed with in July 2014. But my TM 15.3 rose to 120 in May so my onc changed me to Tamoxifen, then the TMs rose to 240, but my onc could not explain this. He said to keep up the Tamoxifen until I see him in two weeks. With femara I had all kinds of se's but nothing much on Tamoxifen. I feel really good , but am worried about my TMs rising again and what will happen if they do. I am terrified of treatments running out. I don't know how to post my diagnosis, but I had ILC stage 4 22/29 positive lymph nodes and ER and PR + HER2- with left mastectomy
0 -
Hi Sarah!
I don't have any advice for you, unfortunately, but wanted to say hello. TMs rising is scary but I've seen several people recently who had increased TMs and scans were fine. I also know that Femara has nasty side effects - I had none on Tamoxifin, but every SE you can list I've had on Femara. I've also read in several posts that people have switched from Femara to something else because they couldn't handle the SEs. No SEs does not mean it's not working. And SEs doesn't mean it is.
There's a lot more treatments out there besides Femara and Tamoxifin, so if the TMs are indicating that the Tamoxifin isn't working, there are numerous other options for you. Keep the faith.
Sending hugs,
Terre
0 -
Good Morning All,
Dee, Thinking of you as you start rads today and that healing is on the way.
Sarah31, Terre gave you good advice and good that you are feeling well on Tamoxifen. Sounds like your onc is staying on top of it.
Annie and Jo...Hi ........and hi to all I'm missing.
Stefajoy, Glad to hear that your PET showed stable and hopefully the MRI will do the same.
LindaE, It will be interesting to get your Ortho's opinion on Monday. Always good to get a second perspective.
Lynnwood, How is it going back to work?
Dune, do you or anyone else have some nice fall pictures to share?
Sorry not to get to everyone. I gave my speech last night in front of 400 or so high school parents and students. My friend's daughter spoke before me about how hard it is to lose a mom to mbc. She was trying so hard to fight the tears, and I was trying to be strong for her and trying not to think about the friend I lost, and my friend who just had surgery. Emotional night. I did have quite a few people come up to me after and ask what mbc was. So it's a start in educating.
Terre, I need cat therapy so heading to your cat site.
Wishing all a good weekend with sunshine ( always helps) and less pain.
Linda
0 -
Linda, thanks for asking about work! So far, so good! It was very emotional going back, and I was welcomed back with balloons, posters, pizza, cake and fruit basket! Many tears that day! I am glad to have my mind busy. Of course there are always the well meaning people who come right out and ask me what my prognosis is, or tell me that if I change to a vegan diet it will cure my cancer! Physically I am holding my own, a lot of time on my feet and many steps during the day. My family has taken up almost all of the household chores, so I am basically just working. Gotta keep that health insurance
0
