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Bone Mets Thread

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Comments

  • LindaE54
    LindaE54 Member Posts: 1,379
    edited January 2016

    Good morning all,

    Rachel - congrats on TMs and good luck with echo!

    Suems - good luck with the antihistamine. I agree with Lindalou that you should report those SEs. I remember the first 3 to 4 infusions were hard and got easier with time. Hoping the same for you.

    Cristina - good luck with brain MRI!

    Dee - wouldn't that be the irony! Let's hope not. Will be thinking of you tomorrow!

    Lindalou - happy teaching!

    Last but not least, Lalady a warm welcome to you on this thread. I find the combo ibuprofen and Tylenol very good as well. I also take a long lasting narco (hydromorph contin) with that combo. You have to find what is best for you, don't hesitate to talk to your MO or a pain specialist. Keep us updated!

    Wishing us all a good day!

  • momallthetime
    momallthetime Member Posts: 1,375
    edited January 2016

    Dee what about an open MRI? Some places offer it. good luck

    Rachel happy dance! it's so good to hear these things actually work

    Terre fascinating and scary, I put it on my bookmarks to review

    Deanna glad that you are doing what you like and telling the pain to shove it...

    Besides dear Pearlady I got no responses on the triple+ w mets using Ibrance. I wonder if i have to post it in a dif matter to get responses, Pearlady said prob not too many ppl in the same status taking Ibrance, one of the reasons would be approval from Ins for a not dedicated drug to Her2+

    Lindae thx for the bump on the site...

    Myra haven't heard from you...

    Aurora how are you coming along with the walking...



  • 3-16-2011
    3-16-2011 Member Posts: 279
    edited January 2016

    welcome lalady, sorry you are here but I know you will find wisdom and support. I am struggling with pain in the last few weeks and try to use a well planned nap (when my son is at school), and heat to supplement the pain meds. Wishing you find the best answers for you.

    Lindalou good luck with the trial and let us know how it goes. Your students are lucky to have such a compassionate teacher.

    Momallthetime I would not be surprised that Dani was trail blazing because you are such a strong advocate. I am wishing the combo brings her some good news.

    Christina you have been on my mind. I am sending positive thoughts for your mri.

    Happy Thursday to all

  • cjanet
    cjanet Member Posts: 288
    edited January 2016

    did someone from Australia send me a birthday card? I'm so bad w names and I got a birthday card from a Megan in Australia?

  • babs6287
    babs6287 Member Posts: 1,619
    edited January 2016

    Hello all,

    Just wanted to share my good news with you all.

    For the first time since I was dx with MBC, my TM's (which are always indicative of what's going on for me) went down! I'm so relieved and happy. They went down 14 points-the Xeloda is working for me! My hope is that everyone here experiences similar results on whatever they're on.

    Babs


  • moissy
    moissy Member Posts: 371
    edited January 2016

    Woohoo, Babs!!!

  • dlb823
    dlb823 Member Posts: 2,701
    edited January 2016

    Thrilled for your news, Babs!!!!

  • Wendy3
    Wendy3 Member Posts: 872
    edited January 2016

    That's great news Babs happy for you.🎉🎉🎉🎉

  • Bluefrog76
    Bluefrog76 Member Posts: 250
    edited January 2016

    Babs: thanks for sharing your great news. Congratulations!

  • GG27
    GG27 Member Posts: 1,308
    edited January 2016

    Wonderful to read about your TM's Babs! Thank you for sharing your good news. Cheers, Dee

  • Purplegurll
    Purplegurll Member Posts: 89
    edited January 2016

    Happy day Babs! That's great news.

  • babs6287
    babs6287 Member Posts: 1,619
    edited January 2016

    Thank you all for your good wishes. It's so good to share good things with you!!

    Bab

  • 50sgirl
    50sgirl Member Posts: 2,071
    edited January 2016

    Babs.Congratulations on those TMs! It is good news. Time for my happy dance for you.. Woohoo! I hope you continue to get good news after good news.

    Lynne

  • LindaE54
    LindaE54 Member Posts: 1,379
    edited January 2016

    Babs, congrats! Love reading this!

  • 50sgirl
    50sgirl Member Posts: 2,071
    edited January 2016

    I didn't receive a response to the PM that I sent to Kendrasue. Hopefully, she is okay and just needs to take a break from the boards.

    Lynn

  • babs6287
    babs6287 Member Posts: 1,619
    edited January 2016

    Lynn and Linda

    Thank you. My DH was so cute last night. He was crying with joy and refused to let me make dinner- took me out. My dtr called from Paris crying too

    I am so blessed to have all of my family friends and my BC sisters supporting me

    Bab

  • iwrite
    iwrite Member Posts: 746
    edited January 2016

    Great news Babs! Enjoy the lower stress that comes with a good report :-)

    Welcome Lalady! This is a great group with helpful advice.

    Sending good wishes to all. I'm off to Florida tomorrow for a week of thawing out. Hope everyone has a pain free weekend!

  • cjanet
    cjanet Member Posts: 288
    edited January 2016

    Congrats Babs! Mine are trending downwards as well, not such a huge jump and still abnormal but a little lower.

  • cjanet
    cjanet Member Posts: 288
    edited January 2016

    I have an open MRI Tuesday afternoon for my brain. Hoping it's just headaches, nothing more. I wasn't really thinking much of the headaches but onc wants the MRI.

  • 50sgirl
    50sgirl Member Posts: 2,071
    edited January 2016

    Cristina, I am sending you good vibes for Tuesday and hoping that nothing bad is found on your brain MRI. It is best to have the testing done even if it just rules things out. At least you will be able to relax a bit if the headaches are just headaches.

    Lynne

  • hawksfansarah
    hawksfansarah Member Posts: 41
    edited January 2016

    I had a terrible reaction to Zometa as well (102 and above fever for 10 days). Tylenol and Advil did NOTHING. Then, the tenth day, it magically disappeared.

    The doc changed me to Xgeva.

  • hawksfansarah
    hawksfansarah Member Posts: 41
    edited January 2016

    Yay!!!! I'm so happy for you!!

  • hawksfansarah
    hawksfansarah Member Posts: 41
    edited January 2016

    Ladies, I have a question for you - I am on Ibrance right now, but was on Abraxane before this. It worked (until the side effects became really really toxic). Now I can't feel my toes (it's like there's cardboard in them), I have trouble sitting on the floor or getting up, and my two middle toes (after the big toe) no longer touch the floor.

    It's nerve damage for sure. Umm.. has anyone had these problems? Is it reversible?

    The neurologist I saw said if it didn't go away by Dec 2015, it would be permanent... :(

  • auroaya
    auroaya Member Posts: 784
    edited January 2016

    Im on Abraxane as well and the ball on the sole of my feet are numb. I've accepted it as long as the Abraxane works.

    Aurora

  • LovesMaltese
    LovesMaltese Member Posts: 551
    edited January 2016

    Babs great news !!! So happy for you!

  • iwrite
    iwrite Member Posts: 746
    edited January 2016

    Hi Cristina,

    Hope the MRI goes well. I have headaches every morning when I get up, but they usually dissipate during the day. They scanned for brain mets, but there was nothing...just random headaches. Hoping the same for you!. So glad it's an open MRI to help with the claustrophobia...

  • lalady1
    lalady1 Member Posts: 530
    edited January 2016

    Congrats Babs! Thank you GG27 and LindaE54 for suggesting tylenol/ibuprofen combo. I need non-narcotics to work at a computer (mostly) at my job plus commute 39 miles each way in LA traffic. ugh 3-16-2011 I will try some heat relief. Just microwaved a lavender sachet pillow to see how that works - at least it smells good. Ibrance is causing some nose bleeds and gum bleeding, I hope that can ease up. On the plus side, I have less neck pain than before. Wishing all a pain free evening. We are expecting a big rain on Sunday.

  • babs6287
    babs6287 Member Posts: 1,619
    edited January 2016

    Thanks Cristina and Kathryn. Christina I hope your test results show nothing of concern

    Babs

  • sqrlady
    sqrlady Member Posts: 9
    edited January 2016

    I have a question about tumor markers and XGeva. My tumor markers (CA27-29 and CEA) both went down drastically with chemo. After my last chemo in Sept both were within normal ranges. I started the Femara right then but I had a wound from the failed reconstruction so had to wait to take the IBrance. I started XGeva four months ago. With each XGeva shot my markers have done different things the CA27-29 rose slightly with each shot while the CEA dropped. This last blood test two days ago showed my CA27-29 is now at 43 (normal for this lab is below 38). The CEA dropped yet again to just over 3. I am wondering if the XGeva can cause a rise in CA27-29? I have read that some treatments do but can't find anything that says that happens with XGeva. I was sent for a scan of my chest yesterday (no results yet) because of some congestion in my lungs. I know tumor markers can jump around and can indicate other things but of course, because it is above normal again I am concerned. When I began my journey it was nearly 480 with the CEA over 50. I am supposed to start the IBrance but until they know what is going on in my lungs for certain they don't want me to start it. I am going to be taking a round of antibiotics since I am coughing more. Has anyone had a rise in their tumor markers with XGeva?

  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited January 2016

    Babs - congrats!!

    Sqrlady - no experience with Xgeva, but wishing you good luck and good answers soon!

    Cristina - sending hugs for your MRI.

    LALady - I feel for you with the commute. I do the train now and it's lovely. People here in NZ generally don't commute, but I'm so used to it taking an hour to go 10 miles, that an hour on the train is no problem at all. :)

    Sorry to hear about numb feet and toes. Not fun. :(

    Just got home from a day of driving and kitty cuddling. Picked up a mom and 2 kittens to take to Kitten Inn, loaded up the car with stuff for the market tomorrow (kind of like a flea market) to sell on behalf of KI. We'll see how it goes. I think it's going to be a long day. I am taking a chair!

    Here's a few of the babies I got to cuddle today...

    image

    imageimage

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