Bone Mets Thread
Comments
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Thanks for the feedback on the biopsy. My specimen was processed at a smaller hospital, then sent out. My DH was the histology/cytology supervisor there when I was originally diagnosed in 2014. He's the one who called me from the Pathologists office to tell me. He explained how bone biopsies are difficult to process because of a decalcification step, it is very likely there wasn't enough specimen left for a true diagnosis. I didn't think the procedure was too bad, so I'll probably repeat it after my first scan. I just wonder how much will change in 2 months or if I should just start Herceptin now. Still ER and PR +, Her2 was ++. My MO wants me to think about it before I go back on the 21st. MO offered radiation for the lesions on my left femur. I have several small ones. I don't have any pain anywhere. Ugh... I don't know if I should do it now or wait. This is just more than my brain can handle right now! I hope it gets easier. Thanks again0 -
Last nights dinner at a restaurant that was a bank. Another great meal!!!!
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thanks for the welcome I'm feeling ok at the moment. Spent Easter it's my sister and my newphew in Brisbane.
The family came together for my newphew a first birthday. He got lots of toys and clothes. The party went off really well. Starting spine radiation next week. Some people have said it does a really good job on spinal tumours so hope it does really well and kills my tumour for Good!!
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Melp
Glad you got to spend some fun time with your family!!! Hoping the rads does its trick!
Babs
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Babs love the pictures I have a good friend in the south and she wants me to come for a visit after seeing your pics I may just do that. Keep them coming.
Melp aren't family gathering great nothing gets your mind off cancer more than a big crowd of great people. Good luck with your radiation treatments.
So first day of trial is over don't need to go back for two weeks. Two whole weeks of somewhat normal looking forward to that. The Faslodex injection were painless and so far ( knock on wood) no SE might be a little soon to tell. My oncologist actually told me not to play rough with my cat because of fear of infection because of the placebo drug. Ribilcon is very immune suppressing so we shall see, part of me hopes I got the sugar pills.
Beautiful spring day here in Vancouver so off to the gym . Wish everyone a fantastic day.
Wendy
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Wendy, How did your first day of tx go? How are you feeling today?
Melp, Good luck with the radiation next week. What day is the appointment? I will be sure to send good vibes your way. First birthday parties are fun. I think the adults enjoy them even more than the kids.
Babs, Your pictures are wonderful. Are you using your phone or a camera? The quality is excellent. I really do want to visit Charleston. You have me hooked. Youcould work for the city's tourism office. Don't worry about the calories. Vacations are exempt from all the rules of healthy eating.
Cristina, I am glad you checked in. Thank you for posting the picture of you and Rachel. It is so nice when people from the boards have a chance to meet face-to-face. I know you are busy with work, home, the kids, and everything, but take care of yourself.
Patty, I am thinking about you. I read on another thread that you were in hospital outpatient dept hoping to avoid admission. I hope you are resting at home. Sending hugs and prayers your way.
Lindalou, I hope your DH gets good news at his appointment next week. I understand why he is nervous. The right words make us so happy and relieved, but it doesn't take much to shift things. I will be thinking of both of you. My DH is doing well. I want things to progress more quickly, of course, and I have to keep reminding myself that he just had surgery two weeks ago and he has been through many major health crises in the past several months. So here are my fears. I am afraid that the two bouts of sepsis caused permanent damage and he might never fully regain his strength. This is when I remind myself that it is still early in healing process. One of his legs has some weakness that has been there since first round of sepsis. When he sees PCP in a week and a half I will ask if PT will help. His appetite hasn't returned. He eats, but not enough. This is when I remind myself that he is still recovering from surgery. He needs to regain some, but not all, of the fifty pounds he lost while hospitalized. I am afraid that I am not emotionally strong enough to bring him through all this. I think this hormone thing is a hindering my emotional stability. Even if he has a slight headache, I start to think that something bad is happening. Ugh!
Monday I have an appt with onc, including blood tests and Zometa infusion. It will be the first time I see my onc in the "new to me" office. I have talked to people from the office a couple of times, and they seemed very nice. I will have TMs checked, and I am more nervous about them than usual. I will find out if 3 1/2 months of poor eating habits, very little exercise, and extreme stress have had any impact on my bc. I feel okay, so I am hoping for good results. I would love to get those TMs down to double digits.
Enjoy your weekend.
Lynne
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Hi to all
Just about 6 hours after my last post my mother passed away. She was surrounded by love and very comfortable thanks to wonderful hospice care.
She had many health concerns in the end of her life dementia, heart disease, and bladder cancer. Bladder cancer was the listed cause of death. I am saddened that this crazy disease takes another life.
Thanks to everyone for the support through this.
Peace to all
Mary
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Mary, I'm saddened to hear of your mom's passing. Hold her memories close to you and find comfort in your family now. My condolences to your family.
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Oh Mary I'm so sorry may she rest in peace sad news for sure....
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Mary.
So sorry for your loss. Cherish the memories of her. Condolences to your family!
Babs
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Good morning all,
Mary, I'm sorry. My heartfelt condolences to you and your family. I'm glad you got to see your Mom and that she passed peacefully.
Wendy - Congrats on your first shots!
Lynne - With all you and DH have been through lately, it's more than enough to hinder your emotional stability. You are handling this with so much grace and courage. Praying your TMs come back in the 2 digit.
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Mary,
I am sorry for your loss. It is good that your mom went peacefully surrounded love. I too hate the disease. Too many good people are victims. I pray for comfort and peace for you and your family.
Love and hugs,
Lynne
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Mary, my thoughts are with you and your loved ones
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Mary, so sorry for the loss of your mother. I lost my mom a couple of years ago & it's very difficult. Kindest thoughts, Dee
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Very sorry for the loss of your mother Mary
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Mary, heartfelt condolences to you. I'm so sorry.
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Mary, So sorry about the loss of your Mom. Wishing you strength and comfort in the days ahead. Losing your mom is especially hard.
Wendy, Glad the trial is finally underway! Wishing for pain free and fast acting good results for you!
Babs, Charleston looks lovely! Thank you for the photos
Dee, The photos of the lakefront were amazing.
Rachel and Cristina...how cool to finally meet!
Patty, hope you start feeling better!!!
Lynne, hoping for good test results! If "good deed doing" counts for anything, you should be completely healed!!
Milaandra, Enjoy your vacation!
Everyone I missed...thanks for all the advice, support and common sense friendship you offer here. Going through this together helps!
Right now I'm so thankful that it is Spring...the daffodils are blooming and the tulips are about to pop. (Loving the 50 mph crosswinds, too.) It's time to shovel out the decorative gravel around the patio to make room for flowers and veggies. Then time to stain the deck. If work can keep my mind off cancer, I'll be getting some blisters on my hands by the end of the day:)
Driving up to Chicago for a Blackhawks game tomorrow with friends...and then overnight with my DD and her family. Initial six month scans are scheduled for Monday morning. Wishing for good news, but maintaining low expectations...still such achy bones with new pain just under the ribs. Is it ok to say I hate this?
Time for Vitamin D therapy here in Illinois! Have a pain free weekend!
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Mary, I joined the others in offering my condolences May God send you peace and comforts during these sad times for you and your loved ones.
Aurora
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Kathryn we all hate this and wish we weren't here!!!! I do hope for good scans for you!Leaving Charleston today. It was a great trip that I recommend to all. Ate way too much!'! And walked way too much ( I didn't plan this well came here on my week on Xeloda. Dumb!)
Final pictures. Thank you all for coming with me!!!
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Hello to everyone! I took a break from the boards but wanted to check in and say hello!! I had both cat and bone scans with healing results and I'm very happy. TM's took a 20 point jump up so I didn't like that but MO is not concerned. Inflammation can be a factor she said ? I also got really sick with fever and congestion and took a 2.5 week break off of Ibrance but remained on letrozole. I learned during the time off that Both contribute to bone pain, but Ibrance is the bigger culprit especially with scalp tenderness. Found that out and had to share. They are keeping close watch on thoracic area. Rims of the lytic lesions there are showing sclerotic which is great. I always am concerned with the burning pain that I feel, but now I can contribute most of that feeling to bones that are healing rather than progressing and wanted to share that for anyone else that has that type of uncomfortableness. I am Taking 200 liquid Advil twice a day and to be honest I really don't think I need it. I may try and wean myself off but I get scared . My Ibrance was lowered to 100 from 125 because my numbers were on the line. I am in my 6th cycle and my TM have never gone down.Always go up a few each month. If I overdo it I pay the next day I certainly have learned that. I have also done a vegan diet since October and to be honest I think I'm sick of it but I can't stop now!! I have had some fish and chicken here and there but absolutely no processed sugar. I rely on beans for most of my protein. I dream of Banana coconut cream pie and I just may treat myself to some soon. Everyone is always in my prayers have a great week! Carol
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Carol. Welcome back. We all need a break sometimes!!!! So happy your scans are good- they count much more than the TMs
Babs
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Thanks Babs you are always in my prayers. Hugs
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Carol, Welcome back. I have missed you. Thank you for sharing your scan results. I am glad that the results were good. It sounds like you onc is keeping close watch on you and making adjustments to your treatment when needed. I admire you for following the vegan diet. I do not have the willpower to do it, and I think that I would really miss certain foods. I do have to get back to a better eating habits very soon. If you do give in to that craving for banana coconut cream pie, enjoy every bite. Who knows, maybe you will find out that you don't like sweets anymore. I have heard that sometimes happens when people give up sugar for an extended period of time.
Lynne
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Lynne, I always think about you when I go to Dana Farber ! Maybe someday we can meet up. I never was really one that was big on desserts although now that I gave up processed sugar that banana cream pie just cannot be forgotten. I do miss all the things that I loved to eat so much, especially macaroni and cheese which was one of my fav's. Pizza with beans on it for protein really doesn't cut it either. I can't imagine being a vegan for any other reason than to hope this is helping with my cancer. Being a vegetarian is much much easier than vegan!!! I'm going to treat myself to some really good fried clams soon!!0
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yeah i enjoyed the party!! Rads start thursday of next week. Trying to grab the good moments that are happening now rather than focus on what i will miss later on..
Condolences for the loss of your mother mary. Glad it sounds as if she passed peacefully.
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Mary, I'm so sorry to hear of your mom's passing. My most heartfelt condolences to you and your family.
Carol, welcome back, you were missed! I'm happy to hear of your good scan results.
Babs, the pictures are all gorgeous, Charleston looks like a beautiful place to visit.
Cristina, love the picture of you and Rachel, how nice that you got to meet.
Momallthetime, how are you and Dani doing? When will she get her tm's? Thinking of you both always and praying for good results.
I saw my orthopedic surgeon on Thursday about my humerus and after it being radiated over 15 months ago the bone has completely filled in and has consolidated. He dismissed me from his care which made me feel good but said if I ever get pain there again to just give him a call. He printed me a picture of the xray showing my bone which no longer has a big black hole! It's amazing how killing the cancer allows the bone to regrow.
Hugs to all, Annie
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Such good news Annie - sometimes it feels that once cancer has attacked, there's no turning back but you are proof we can be healed.
Amy
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Annie that's great gives us all hope thank you
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Annie thank you and great news for you as well.
Mary- my sadness for the loss of your mom. I'm so sorry. She sure is watching over you.
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Annie. That's great news. Gives us all hope!
Bab
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