Bone Mets Thread
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Your most recent diagnosis sounds like my diagnosis last November. Bone mets everywhere. I was taking faslodex with Ibrance, but my third month of beginning the Ibrance I had extreme problems with Pulmonary Emboli in 4 lobes. After two months off the Ibrance we are starting Afinitor with the Faslodex. I will say my last PET scan showed no progression while taking the Ibrance. I think the most important thing to understand about these drugs are what the side effects are and recognizing them. I walked around a full week wondering why I was struggling so with breathing. I thought Duh, I knew that a side effect of Ibrance were PEs.
The biggest thing I noticed when coming off the Ibrance was how much energy I had again. Praying that you find your combo that works for you. That's the problem with cancer. No two people are alike and you may do great on Ibrance. At least try it.
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Babs you have a very beautiful family I hope the rest of your time there is just magical. Also good weather helps.😊
Patty I thought now they know what the deal is they would have you fixed up by now😏 We are all there with you . I'm hoping they let you out for Thanksgiving.
Wow Susan that gives me hope I'm responding well to Faslodex would love to get five years out of it. I was told last week by my oncologist that it's good when one responds to hormonal drug makes things easier. They will get you onto the next thing and it will work😊
I wish all of you are very happy Thanksgiving🦃
Wendy
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Babs- hope you are enjoying Paris!!
Zarovka- thank you for the excerpt from Bestbird! Great information and so helpful for us as we discuss with ourMOs.
Wendy- Hope Fas gives you a long long time feeling good!
Sail away- yikes! Glad you caught that and got the meds adjusted! It's hard to get a balance between aches and pains bs serious SEs.
I'm so thankful that Stephanie was here to help us all and happy that she is free at last. I hope to be able to pass on what we learned from her...Grace and dignity...knowledge and some humor! She was one of a kind!
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Loving Paris so much. Dds boyfriend was sick all night throwing up. Obviously he had to cancel tonight's dinner. We felt so bad for him. All the planning he did but as I always say man plans and god laughs!DH and I went to musee d' Orsay and then dd joined us for lunch. She wanted to wait until after bf saw the dr and was asleep. We shopped and did some galleries. So wonderful to make these memories with her
Babs
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Lovely pictures Babs! Thank you so much for sharing your vacation with us. Sounds like DD's BF came down with a case of food poisoning. Hopefully he will get it out of his system quickly. cheers, dee
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Oh, Babs, it makes my heart sing to see you in Paris.
When did Stephanie die? RIP
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I didn't know of her passing. So sorry but I know she was so ready. Will miss her
Babs
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Sattiepearl - Stephanie passed on Sunday evening (Nov. 20)...
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Patti - I am hoping no more fevers and you are out of the hospital at 11:01 tomorrow. Thinking of you.
>Z<
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Thanks, Cathy. She was brilliant! So glad I got to be imbued with some of her brilliance.
Godspeed, Stephanie
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Happy Thanksgiving to you all. I am grateful you are here for and with me, as I am for and with you.
Much love,
Patti
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Happy Thanksgiving to all my wonderful BC sisters. I'm grateful for all of you!!!!Patty hoping you get out today!
Babs
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As I reflect on the many things that I am thankful for, all of you are included on my list. Thank you for being here for me, for giving me support when I need it, for understanding how I feel, for helping me through the good times, and for celebrating the good times with me. Happy Thanksgiving.
Lynne
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No turkey 🦃 for us today but sending lots of hope for all of us to have easy holidays with those we love!!!!
Babs
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Babs, I am absolutely loving your photos! What a dream to be in Paris right now!
Happy Thanksgiving, everyone! I am so grateful for the support and friendship here.
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hi all!
Just wanted to come here & wish all our neighbours a wonderful & very thankful, Thanksgiving. cheers, dee
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DDs boyfriend was finally over his stomach virus!!!!
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Babs, you look radiant! Loving the pictures, thank you for sharing. Your daughter is beautiful and you all seem to be having an amazing time. I'm so glad you were able to take this trip.
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So thankful for all of you here and your big hearts and great wisdom.
Babs, please keep the Paris photos coming! Are they engaged yet?
Patty, hope you are headed home soon.
Love to all
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Jen. No. not engaged yet. We're hoping that happens soon. Today we're taking the fast train with them to Strasbourg to meet his entire family. Tonight we meet his Mom and step dad and natural sister with her husband and 2 children, 4 step sisters with their boyfriends for dinner at his moms. Tomorrow we have lunch with his Dad and step mom his natural sister and her family and his 2 half brothers!!!! We'll be on family overload. It was important to him that we meet and get along.
It's the opening of Christmas festival in Strasbourg today which is supposed to be amazing. Will take plenty of pictures!
Babs
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I just wanted to say how thankful I am for each and every one of you.
Patty I hope you made it home for Thanksgiving😊
Babs you all are so beautiful and surrounded by the lights of Paris breathtaking.
Wendy
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Babs - Thanks for sharing your pictures of Paris and your beautiful family! You look fantastic!
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This is the place we all come to share the good, bad and the ugly! I'm so happy to be sharing one of the happiest moments in my life!We arrived in Strasbourg late this afternoon and took a walk around. Spectacular!!! Tonight we meet the Mom and family!
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I've been out of the loop for a while, but I hope everyone had or is having a lovely Thanksgiving.
Babs, as someone said- the pics of Paris are making my heart sing too!! My family tree goes back to Paris, I certainly feel my roots there!
Patty, I saw on another page that you made it home! Yay!
Cheers to all.
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Deanna how sweet of you to send the link, so I could try to understand the reason for certain scanning or not. It is very interesting. And you are right, there is no easy explanation. I started reading it, but I wanted to let you know that I got it, and how thankful I am that you are there for us, and appreciative of how you went out of the way to get this info. I might add, how you took this inquiry seriously, more than I could say about the Onco. I am thinking in reminding her how she told me the first time we met, that we will be working together. Yeah about that. Definitely has to do with me being always skeptical of what the docs motives are, I can't help it much. Docs don't practice the way they used to. Thank you so much.
Patti so happy you are home. Hope you get some rest, away from all the infringements of the Hospital.
Babs just fantastic all these pictures you shared with us. I had a chuckle with the one with the tefilin, cute.Glad BF is feeling well.
Stephanie?? I just heard about it, with tears in my eyes, oh, she was such a good friend,always giving me advice,us, we mattered so much to her. What a wonderful soul. Stephanie, you will be missed so much.
To all, meaningful Thanksgiving days.
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wondering if I could join you lovely ladies. I am an Aussie girl just been diagnosed with stage 4 bone mets to spine ribs back of skull no organs. Just had my first radiation therapy this week now have terrible heart burn from muse afternoon onwards I have been put on letrozole the doc tells me he will know in a few months if it is going to work can anyone please tell a little bit of the journey or what to expect and am in terrible shock and feel like I am going to die
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Delvzy - welcome to this thread but sorry you had to join us. It is a shock to be diagnosed with Stave IV. The first few months are the hardest, it can be a roller coaster. You will settle in a new normal. I've been on letrozole for 3 years now and doing fine. I also had radiation therapy right after dx. Give yourself a good 2 to 3 weeks for the side effects to disappear. Jump in any time, ask anything you want. This thread is a wealth of information and support. It's been a lifeline to me. We are here for you.
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Delvzy, Welcome to the bone mets thread. I am sorry that you have reason to join us, but you will find a wonderful group of people here who are ready to support you and help you. The initial stage 4 diagnosis has been a shock for all of us, and we all know how you feel right now. It is easy to become overwhelmed and think that yourlife is almost over. I thought I would be gone in a matter of months, but I now realize that I will likely live for many years. My life has changed very little since my dx last year. I feel good, remain active, travel, and make plans for the future. Like most people here, I have chosen to focus on living and enjoying life. Our disease is treatable, and life goes on. It takes time to adjust to the diagnosis, but we can help answer any questions you have. We all have our ups and downs with this disease, and the support here can help us through all that. Hormonal therapy, such as letrozole, is quite effective for many people with hormone-receptive positive breast cancer. I hope it works for you for many years. There are many other options available, too. Let us know if you have any specific questions or concerns.
Hugs from, Lynne
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Welcome Delvzy. Anti-Cancer a New Way of Life is a good read particularly at this early phase. The lifestyle an complementary elements of the treatment protocol tip the balance in your favor, and give you your sense of control back.
We have good options and many here are doing really well. However, the response to the radiation and the adjustment to letrozol can both be hard to get through. Let us know how it goes.
>Z<
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Welcome Delzvey. Sorry you're here but this wonderful group will be here to help and support you. They are amazing!
Babs
Ps some more Strasbourg pictures
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