Bone Mets Thread
Comments
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I used to put ice in my Chardonnay all the time too. I did that to dilute the alcohol. Never enjoyed the occasional hangover or buzzed feeling at all.
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my wife that Radiation to spine from D12 to L3 as she was having unbearable pain in that area .she took -5 sessions that ended on 6thDecember -16.Now even after 2 weeks she would have pain in radiated area if she bends or exerts her spine or sits for longer periods.what would be reason for this pain ?PLZ HEL
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Many, I answered you in your other post.
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Merry Christmas everyone and I wish you all the best in the New Year may all our meds do what they are meant to and may they please please find a cure for us all
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many,
As others may have said, radiation healing is gradual and slow. In fact, my RO says slow healing is a good sign.
She needs to vary her positions and keep moving as she can.
It will get better.
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Chrissyb, I have seen lots of your comments on here and they are always so helpful and informative. You give me such hope!
I go today for my screening of a clinical trial I am to participate in. I pray it goes well. I am going to discuss a port since it is weekly IV treatments for as long as I tolerate or I would progress. I did not have a port with my chemo and it has damaged my veins. Now I'm a hard stick!
I also was told to get radiation on my left pelvis area but my back has been achy so I'm going to ask about the spots on my spine too. They had told me initially they would wait but if it would help with the aching I think I would be best to have it done now?!?
Misty
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Hi Apg, the way I see it is that all these things are harsh on our bodies and our immune systems, so I'd only do what's absolutely necessary. But that's me. If there is a chance that the spine lesions will heal on their own during regular therapy, why put yourself through more radiation than you need?
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I got the results of my latest scan...my romance with the stable boy is still on!
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Kathleen, WOOHOO for stable boy! I hope he sticks around for a very long time.
Lynn
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Milandra - Keep the flame of that romance going! Best Xmas gift.
Misty - if the pain is "just achy" and no other requirements for RT, I wouldn't have it just now. You can always change your mind if the pain worsens but I'd give the systemic tx a shot first.
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Hi Milaandra,
Great news on the test results! A romantic Christmas with the Stable Boy...the perfect gift :-) Now you can enjoy the holidays.
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Misty, LindaE54 is absolutely right. Only do radiation if the pain is unbearable and the mets are threatening mobility. I HAD to have RT when I was first Dx'd b/c I was about 2 wks away from paralysis. A bone met on my T3 vertebrae was strangling my spinal cord. ((Never experienced pain like that ever in my life - 46 hours of BACK LABOR was a picnic compared to that...)) I still have pain in that area even after 10 sessions, but it is bearable.
I also have lots of pain in my lumbar spine b/c of mets and bulging discs (thanks again, Mr. Cancer), but my RO says not to do RT on that area until it gets worse. One thing to remember is that you can only get so many RT's on an area. You can't go back again or it will actually damage the bones and tissue. Systemic chemo might help the pain. There will also be some pain as the area is healing, so keep that in mind too.
Keep up the good fight, everybody.
Lita
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Arrrghhh!!!! After days of thinking everyone must be too busy with the holidays to post on this thread, I suddently wondered just now if I'd deleted it from my favorites, as I occasionally do when I post from my phone. And, yep, that's exactly what happened. So I'm just saying, "Hi," and I'll be back when I catch up from page 516!
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Deanna,
That has happened to me too! Welcome back :-)
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Lita, thank you for all the advice. That helps me a lot! I had an appointment today and my Dr also told me I should wait till I had pain too. I am doing a trial and it would also make me postpone starting the treatment longer. I don't want to wait any longer to start. I am just going to try and enjoy Christmas and New Years and then start this after the new year. I will have new scans on January 3rd and start medsand the trial on January 9th.
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Milaandra, Whoot Whoot, awesome news and gift for you for the holidays!
Hugs to all, Barbara
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Hi Everyone,
Just popping in a bit. My son and finacé are home from NYC and dh and I are enjoying every minute! Lots of talking, cooking, eating at great restaurants etc. Simply wonderful. I've done a lot of car traveling including one 9 hour roundtrip to the airport in a bad winter storm and then some additional smaller road trips and a lengthy dentist chair appointment, so I managed to cause 2 new stress fractures in my already worst fractured part of my spine. So OXY is my buddy now and I'm doing pretty well with that. Coffee alone with my son this morning at a local coffee house. It just doesn't get much better than that!
Lita, I have been in your exact situation and had 2 separate radiations to spine and then spinal fusion surgery.
Amy, the wedding photos were so beautiful.
Anyone heard from Patty?
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Kathleen that's so great wow great Christmas gift for you. Have a very Merry Christmas😊
I would hold off on any treatments as well unless they are absolutely needed. My back and rib hurt a lot last year at Christmas I was then scheduled for radiation , However it went away on its own so I cancelled the radiation. Haven't looked back yet.
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Wendy3, I had really bad pain in my back a fractured hip and my ribs hurt bad before I realized what was wrong this summer. My MO didn't want to do radiation because he said that if I took Faslodex and Xgeva with Ibrance things would improve and they did. It took about 4 shots of the medication and my pain was almost all gone. I'm almost back to normal now. I think radiation is a last resort and they like to see how the meds work. Good luck and have a happy Holiday. Thanks for all of your support. I really appreciate it. ((Hugs))
Anita
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Lindalou, It must be wonderful to have your son home. How long will he and is fiancée be staying? Not long enough, I bet. Two more stress fracture? That is terrible. Is any further treatment planned? I haven't had any fractures, but I still have pain if I sit or stand or bend too long, so I can only imagine how painful things are for you. I am glad that the medication is helping. Are you cooking Christmas dinner? Take it easy, please. I have not seen any news from Patty for a while. I don't take that as a good sign since I know she was experiencing a lot of pain and had fallen. I do hope that she finds someone who can reign in all her symptoms, side effects, and pain and get things under control. I worry about her.
Did you hear that , Patty? I am worried about you. Waving and sending hugs and prayers for you.
Apt,Waiting to start treatment is difficult, but sometimes it can't be avoided. I know that It feels like January 9th is a long way off, but it will be here soon, and it will be worth the wait. It's just 18 days. Start counting down. We were all nervous and scared, and frankly, sometimes I still am. In the meantime, enjoy the holidays. Take in all the wonders around you. Smell the crisp winter air. Take a ride to see all the holiday lights. Stand back and watch all the crazy people as they rush to the stores to buy those last minute gifts. Enjoy time with your friends and family. Think of the things you are most thankful for, and concentrate on those. During all of that, if you need support, we are right here for you.
Hugs to everyone, Lynne
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I texted Patty yesterday but she hasn't replied yet. I too am worried about her. I will let you all know as soon as I hear from her. I hope she's just too busy to answer. She usually responds quickly.
Happy Holidays to all! I hope we all take some time off cancer. My sister, niece and bf and of course my precious great nephew are coming today until Monday. Here's one of the latest pic of Raphael.
I'm so grateful to have all of you in my life. Couldn't do it without you all! Hugs to all.
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Patty are you there please answer us we are very worried about you. Maybe she is on holiday and has no wifi reception? I'm hoping
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LindaE, Raphael is getting so big! He is beautiful. Will you be hosting Christmas dinner? My DH and I will have three of my sons and their families here for dinner. I am really looking forward to it. This year is particularly special for us since my DH was in ICU during last year's holiday season. This year here he is here, healthy, and helping with everything. I feel blessed.
I, too, am grateful to have everyone here in my life. You have made a difference, and my life is richer with your presence.
Lynne
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Lynn, I remember your DH was in ICU last year. So happy to hear he's doing well. I will be hosting dinners from tonight to Sunday or Monday lol! And those young people have a healthy appetite. For once, I'm ahead of things. Baked some good stuff, fridge is full and keeping it simple. Raphael is 3 1/2 months but looks like a 6 month old. Doesn't want to sleep in my arms anymore, Mr. Raphael needs to be entertained all the time!
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I am sure you like entertaining Raphael. Holy cow! You will be exhausted by Monday
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Lynne - I will mostly be good for the garbage! Oh and I forgot to say that 3 dogs will be in the house as well. Quite the ménagerie!
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Thanks again! I am very hopeful that my treatments will take care of my spots. It makes sense now after hearing all this to wait on radiation treatments. I am not in pain anyway. My one spot they had told me needed it now is in my pelvis and where my femur meets but I will also wait on it because the clinical trial I am going to participate in does not allow me to do radiation now anyway. I spoke to the doctor about it yesterday.
I am coming to terms with this more each day as crazy as that sounds. This is what I am dealing with and I have to accept it and do what I can to beat this as long as I can. I am determined to be here for my kids as is everyone else on here. I am not thinking about the bad things as much and I know it is because of reading everyones positive comments. It has made such a difference for me. I am going to live each day and be thankful for it. Happy Holidays to everyone!!!
Misty
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Lindalou, new stress fractures...that sucks! We have to be so careful. I have a special bar that hooks under my mattress just so I can get in and out of bed and even turn over. We have to dismantle it and take it with us when we go on vacation. The stuff we have to deal with...geez.
But glad your son is there. Sitting here at Starbucks waiting for Sofia to get done at the groomers. The sun is out, and I got about 4 hrs of sleep last night, so I'm grateful.
Enjoy these days, everyone. Sending good thoughts to Patty.
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Hi all!
Back from all my scans & TM's. Trial RN says I probably won't get the results until the 3rd of January. Her exact words were "don't worry about your results, just enjoy the holidays & we'll see you on the 3rd" Talk about not getting it at all. DH & I just looked at each other, she was talking to us on the phone while we were in traffic, not much we could do or say.
We live in an area which rarely if ever gets snow, but this year I guess because I've had to travel so much, Mother Nature has decided that she has other plans for us. This is what we arrived to on Monday in Vancouver.
My wish for all of you is as lovely a holiday as possible. I know that our issues don't take a holiday but I hope each of us is able to take some time out just for ourselves, not feel that we have to be everything to everyone.
We have decided to stay home for Christmas this year, no traveling, no other people's drama. We are going to spoil ourselves with a good bottle of wine and a extra special meal in front of the fire with candlelight. (hopefully not because the power went out! LOL!)
Merry Christmas & Happy Holidays for whatever you celebrate! cheers, dee
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I forgot that I wanted to add that it was exactly 8 years ago this week, that I was devastated after my original diagnosis, I had finally finished all the testing & was to have a BMX, but they could not fit me in before Christmas, I had to wait until the first week of January for surgery.
It was not a very good Christmas for us. Both of us moped around the house thinking that I was dying. In fact, I was positive that I was not going to come out of surgery.
But here I am 8 years later, feeling really good, hope I didn't just jinx that, hoping for at least another 8, 10 or more.
cheers, dee
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