Bone Mets Thread
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Happy Birthday!!
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Happy birthday Beatrix! Have a wonderful day xxx
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HAPPY BIRTHDAY BEATRIX! Lifting my glass to many more.
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Happy Birthday Beatrix! 🎂 Treat yourself to something special!
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Happy birthday Beatriz !
Aurora
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thanks thanks thanks!
Sorry that I didn't answer but I prepared my party. Now is midnight and I have to cleaning , eeeh:)
Hugs!!!
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Happy Birthday Beatrix🎂🎂🎂🎂
Babs
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happy birthday Beatrix! Here's to many more
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Greetings from Kona! This marks my one year since diagnosis and was telling a friend yesterday that I had initially booked this trip to mark that occasion and start of treatment, to get some travel in while I feel good (and of course to show my volcano-loving son some real volcanos), and to wrap up what was really a craptastic year for me with cancer, divorcing my husband and him getting remarried. But then I realized that 2016 actually wasn't terrible. My treatments are doing a great job beating back the cancer and I've had true transformations in my relationships with family and friends. So instead, I'm looking at this trip to celebrate me and Luke making it through the past year pretty well and to kick off 2017 with things I love-natural beauty, adventure, QT and bonding with Luke, and the ocean.
Sending everyone here lots of love. Hope that your holidays and start of 2017 are terrific. I have scans early in January to see if I'm still "dating the stable boy" --who is always referred to as that sexy beast--but until then I am not focusing on anything but joy.
Much love- Jen
J
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Jen, enjoy every single second of this trip with Luke! More pics to come I hope.
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What a gorgeous picture Jen with an even more beautiful written post. Congratulations on living this last yearwith strength, hope, love and gratitude. Inspirational for us all xx
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Happy Birthday Beatrice.
Jen - I am also wrapping up my 1st year with MBC. Craptastic and transformative indeed. I wish change could have been easier, but things are better for me in many ways as well. Enjoy your trip and your new and better life.
>Z<
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As always Z - so well said!
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Fantastic Jen! Moving on and living life! You are a great example of courage and grace under fire. Have a WONDERFUL trip!
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So lovely, Jen. Picture and words! Enjoy every second. Soak it all in for all of us.
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Hi everyone, I am way behind on reading posts. I took a much-needed break, but I will catch up.
Jen, I did see your picture from Kona. I am so jealous. It has been bitterly cold and snowy here in NH as well as in most of the country. I would love to be sitting near you under a palm tree on the beach. Enjoy every minute of your vacation.
Dee, I hope your scan results are good and that you continue to respond to treatment. Is the weather going to return to a more normal temperature soon? It's bad enough to have cold snowy weather here where it is expected but there? Not acceptable.
Amy, I loved your pictures. Will you be starting a new treatment plan soon? I have been out of touch, so maybe I am wrong.
Rachel, Thank you for posting the link to the the interviews. You did a wonderful job and are as photogenic as ever. That reminds me, isn't it time for more of your family photos? They always make me smile.
I received the results from my latest CT scan. The liver mets are less visible than they were, and no new ones were seen. The bone mets are stable. No progression anywhere else. YAY! I was supposed to start cycle four of Ibrance last week, but my counts were still too low, neutrophils were only 0.6. I will be retested on Tuesday. Hopefully, they will be high enough then. If not, my MO wants to drop me down from current 100 to 75 mg. I understand why, but it would not make me happy after just 3 cycles. I am optimistic that neutrophils will take a huge jump by Tuesday.
Hugs to all, Lynne
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Glad to hear good news for you, Lynne! Jen, enjoy every minute of your trip with your son. I so wish I were there! I just love Hawaii. Happy Birthday, Beatrix and fellow Sagittarian; mine was on the 13th. Rachel, wonderful project you were involved in and thanks for posting the link. I enjoyed watching it and you were great!
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Lynne - wonderful news. After 11 cycles on Ibrance, I wouldn't hesitate to drop down. I am on 125mg and seriously considering dropping to 100mg even though my counts don't drop below 1. They get close (1.4) but not below 1.
I am tired of the side effects. If it's hitting your neutrophils, its hitting the cancer. It seems to me that people do well at the lower doses. We're seeing that more is not better with many drugs and we're in this for the long haul ...
>Z<
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Lynne:this one's for you!
My daughter's first semi-formal last week. 
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Z, you're right about the lower doses. Xeloda is the same way - less can do just as good a job, and other drugs are that way, too.
Incidentally, I did isotretinoin (Accutane) for my cystic acne back in the late 80s. When Accutane first came out in the early/mid 80s, my friend (who is a dermatologist) said to wait a couple of years b4 I started b/c the SEs were very severe, and they were still following/watching people to see how they did. Some people's eye sight was really affected. When I started in 1988, I was put on a much lower dose than the earlier people were. I'm telling you, that stuff was a miracle! I had huge boil-like cystic acne on my shoulders, back, chest (as well as face
) and it went away completely. Nothing else ever worked....topicals, antibx's, diet, etc. Some people told me that my acne would go away when I hit my late 20s...NOT! But Accutane was the only thing that took it all away, and I've NEVER had a recurrence. It even cleared up most of the previous scarring I had. Lots of people have claimed Accutane causes depression and suicidal tendencies. Not for me...it was a godsend! You look at my face now, and you can hardly tell I ever had acne. The other thing I question is: Were the people who committed suicide depressed and suicidal BEFORE they started treatment? If your face and back look like hamburger, you're definitely going to have some self-esteem issues for sure. (It pissed me off when people tried to sue the company that makes Accutane...do your research, ladies and gentlemen, b4 you take ANYTHING!) I did a lot of research on the drug b4 I took it, and my derm. friend recommended another great dermatologist to prescribe it and monitor me on a monthly basis. (She wouldn't treat me herself b/c that's part of her code: Drs should not treat family and friends; one needs to maintain professional distance.) My derm was a great guy and made sure to do regular blood work b/c Accutane can affect your liver, and he always asked me how I was doing emotionally at each check up. He also started me gradually and took me off gradually. The only SEs I had on it were dry eyes, dry lips and a little moodiness now and then.
Back to baking Christmas cookies...and the dreaded clean up - I always get flour everywhere. Such a messy cook......
Lita
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I'm new to this as I was just diagnosed a few weeks ago stage 4 with mets to spine and pelvis. I had no symptoms. I was originally diagnosed in February this year 2b-3. Had chemo, rt mastectomy and radiation. Finished this 10/18 and 11/22 had a bad scan! I have been devastated. I have 3 kids 14,9 and 7. I'm 37 years old.
Misty
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Hi Misty,
Hold on...the early weeks are tough. Things will even out as your treatment plan comes together. Many of us do well for a long long time, feel good and live normal lives. Sorry you are joiningthis club no one wants to be in, but you will feel welcomed here. You'll get great information. A number of ladies are in their 30s with families so you'll find good support, too.
Ask questions any time! We are here and listening.
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Lynn - Am I ever happy to read to your results!
Misty - a warm welcome to you but sorry for the reason that brings you here. The first few months after a stage IV diagnosis can be a roller coaster. You will learn more on these threads than from any doc. Jump in anytime and ask whatever questions you may have. You'll find a lot of info, knowledge and support here. We're a great bunch!
Rachel - Beautiful pic but someone is missing! Where's Mr. Doggy?
Dee - Looking forward to hearing good news from your scans.
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Misty,
You will find warm, caring women here who are eager to help and listen.
Happy dance, Lynne.
Beautiful picture Rachel!!
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Misty,
It gets better. For me it was a combo of getting on a treatment plan, an in person support group where I could cry and say the scary things, researching the heck out of the medical side so I could ask lots of informed questions of my doc, these amazing women and men on BCO of course, and specifically seeking out people who are in the 10+ year thriving with this MBC. Also having full confidence in your doctor team is crucial. Oh and I started on an antidepressant.
Know too that the statistics are outdated and not disaggregated by receptor type or account for the introduction of new treatment options.
The first weeks or months are hell. Reach out to us with your fear and questions. You'll find a lot of women here lead very busy, full, delightful lives.
Sorry you're here but glad you found us.
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Misty, I meant to add that I'm a single mom (age 42) to a seven year old son. Diagnosed a year ago and have gone through chemo, surgery and rads. He doesn't know the stage 4 bit and my choice is not to tell him about it until my treatments are failing, but he knows about the breast cancer and that it's in my hip bone. Every mom makes her own choice on what and when to tell. And there are ways I'm preparing too just in case - I write letters for the big life occasions and about my life that will be given to him if I'm not here. I'm also buying gifts for the big lifeoccasions like cufflinks for graduation, etc...it makes me feel better.
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hi Misty
I am new to the board too. "Joined" last week.. and have a similar story. Was diagnosed in April and re-diagnosed in November to stage IV. I am 36 and my daughter turned 2 yesterday. It's been a roller coaster ride for sure. But I am finding this group to be very helpful and very welcoming!
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Man, I HATE this damn disease!!!
So many YOUNG women getting diagnosed...it's NOT fair!
It infuriates me. I'm only eight months out and I'm still angry about all this.
We're all going to get through this together!
Lita
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Thanks so much for all your kind words. It helps to communicate with others who understand! @ jensgotthis I haven't told my 2 little ones about the stage IV diagnosis but my 14 year old knows. I too find that seeing the 10+ year survivors give me hope that I may see my kids grow up. I have thought about writing a journal for them also to be given someday. I am married but my husband is not the father to my oldest. I worry he will grow apart from my other two when I am gone. I am trying to not think of those things but my mind goes there at times.
I will be starting treatment the first week of January because I am doing a clinical trial. I will do ibrance, letrozole, zolodex(already on) bone strengthener and the trial is gedatolisib. I had a second opinion at the Cleveland Clinic and he wished he had the trial that I was offered at Ohio state so that was encouraging.
I'm glad I found this forum as reading it brings me comfort!!!
Misty
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