Bone Mets Thread
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Happy Birthday, Micmel! Enjoy your lunch.
Does anyone have any experience with Kyphoplasty to the vertebrae? I read that it's mostly used in the thoracic spine, but some have had it in their lumbar spine.
This may be an option for me as cancer continues to "eat away" at my compressing vertebrae.
Thanks!
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Hi everyone,
i hope everyone is doing well! I'm quite new to the forum, and I'm here because my cousin has bone mets 3 years after her primary breast cancer. She's only 33 year old now
and I have been feeling very sad since the PET-CT came out and showed multiple bone mets. Coming to the forum and learning make me feel better.She had symptoms like ministroke yesterday. She said her right body was numb for a few minutes. She has low blood pressure so I'm not sure if it's a ministroke. Has anyone have similar symptoms before? was it caused by bone mets? Thanks a ton!!!!!
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Micmel, Happy Birthday! Hope you have a wonderful day!
Wendy, right there with you on scans next week. Now to remember to breathe!
Lita, so sorry you continue to have some problems with your back. Praying they are resolved!
Haven't felt much like typing lately but I do keep you all in my prayers! I'm having a horrible time with lymphedema in my right arm. Am going to have to get some massage and be taught how to wrap because I've forgotten how. My son threw me for a total loop last week, telling me they are talking about moving away, which would leave me with no family here. That plus losing a few friends, and people here on the board has me questioning just why I'm in this fight! So...just taking one day at a time, sometimes one hour.
Blessings to all of you
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Kidman,
I had numbness on my right side starting last November. First guess (I was out of state) was a mini stroke. That was based on symptoms and CT scan. It has turned out to be brain mets (lining/fluid). BUT. That doesn't mean that is true for your cousin. I would think an MRI would be needed. You are very nice to be helping your cousin.
Lita, I had vertoblasty with ablation to the lumbar, but not thoracic area. Hope you can find help.
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Kaption,
Thank you so much for your response! I will make sure that she will bring it up to her doctor!
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Happy belated Anita!!! Hope your day was filled with family and love!! Hugs ! Thank you all very much, may we all have many many more!! ~M~
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Happy Birthday Micmel. Lita I pray that it helps your pain. Gracie I hope your lympedema gets better. I am sending prayers and positive thoughts to you. Gentle hugs to all.
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Gracie is the lymphedema in your entire arm ? Do you have a pump machine ? I was having such issues and then I got one and it works great. They are amazing and helped me tremendously. My insurance paid for it. But if not they can be gotten for free . It works wonders. Let me know if you're interested. I'm sorry about hearing your son wants to move away. Big hug. One day at a time. ~M~ prayers as always
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GracieM - praying for some relief for you, hang in there. Lita I hope the surgery helps relieve your pain...
Was wondering if any of you get blurred vision and dizziness as a side effect of either the METS or prescriptions you are taking? The last few days I have had blurred vision and the feeling of passing out at random times..
Ronnie
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Wendy - I was also wondering how you're doing on Taxol? That next scan better be good! I had my second infusion on Tuesday. Fatigue seems to be my worse SE for a good couple of days after tx. This week I have some gastric issues and nausea. Liver enzymes went down slightly. How are you coping with Taxol?
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Happy Birthday Micmel! I hope your day was wonderful! I have had 4 birthdays since dg. Having the 5th in August.
Happy belated birthday Anita! These are so much more special!
Lita - I hope you get some pain relief soon!
Thanks for the giraffe pic! It gave me a big smile.
Hugs and prayers to everyone
C
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I can't count obviously, I am going on number 6!
C
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Ronnie~ yes almost everyday at some point and my vision changes daily, blurry at night , sometimes during the day. No pattern. I've had every test possible. I don't think its the mets, for me. It's all the medicine and bad hormonal issues. Especially when it's accompanied with a huge heat flash. ~M~ feel better! Hugs
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Happy Birthday Micmel! I hope your day was wonderful! I have had 4 birthdays since dg. Having the 5th in August.
Happy belated birthday Anita! These are so much more special!
Lita - I hope you get some pain relief soon!
Thanks for the giraffe pic! It gave me a big smile.
Hugs and prayers to everyone
C
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I can't count obviously, I am going on 6birthdays.
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Lol at bighome. That's ok. I thought I was 46 again today until my son was like no mom ,it's 47!! Let's enjoy every day or year!!! Thank you all so very much ! Hugs ~M~
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Happy birthday Micmel! And Anita, I think your giraffe picture brought a smile to everyone's face! Thanks for sharing
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Ronnie it could be the treatment, but it would be wise to do an MRI of the brain I think, if nothing else you will have a baseline.
Gracie that is really hard, your son moving away. It would be hard on anyone, more even when you could use some support. How far would he move?
LindaE hope you feel better soon.
Wendy crossing finger for a gr8 response!
Kidman sometimes it's possible that something is pressing on a nerve. So this is def worth a follow up with docs for the right scan.
Lita is you could get someone good to do it, and if it's finally going to give some relief what other choice you have? You've been in pain long enough. I just saw that Bens_Mama, Maria had kyphoplasty done. She posted on the liver mets, maybe you could ask her. Good luck.
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Yes, Gracie- hugs and prayers.
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Hope everyone is doing ok. Have you ever felt your at the end of your rope? I do and then I just say, well I will just keep swinging! Have a great weekend. Hope you don't mind the photos. I took this on the Okavango River in Botswana, Africa. Good luck on all of your scans, meds, etc. So far my second round of Xeloda isn't too bad. Hope it works for a while!! Remember we all need to keep swinging!! Hugs to all!! Anita
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Anita~. Pictures make the soul smile and the heart remember. I love photos!! Thanks for sharing some cool pics!! Happy Friday everyone! ~M~
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Thak you Micmel, I sometimes relate these wild creatures to myself but there is some comic relief in them.
Have a great weekend, Anita
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Micmel, I don't have a pump and haven't had it swell like thus in years...and always before when it has I could get it down with massage and elevation. Not this time. I will have to travel 60 miles to get treatment. There's no one around here qualified.
Momall, about four hours away by car. My daughter is a full twelve.
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Gracie~ I sent you the information. Get yourself that pump. I pray it gives you relief. Hugs ~M~
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Linda good to hear your liver values are going down. So I've had now six infusions next week no chemo😜Yippee need to build myself back up good food exercise etc. I really don't have any side effects anymore. The third day after the infusion kind of sucks but then I get outside and try and think of other things. I always think if I'm not suffering is it still working. Scan will reveal this I guess ...I'm thinking of you and hope this treatment does it for both of us for let's say hmmmm five years wouldn't that be something. A friend at my stage four support group had Taxol and is now in remission. So never give up dear Linda we got this
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Linda good to hear your liver values are going down. So I've had now six infusions next week no chemo😜Yippee need to build myself back up good food exercise etc. I really don't have any side effects anymore. The third day after the infusion kind of sucks but then I get outside and try and think of other things. I always think if I'm not suffering is it still working. Scan will reveal this I guess ...I'm thinking of you and hope this treatment does it for both of us for let's say hmmmm five years wouldn't that be something. A friend at my stage four support group had Taxol and is now in remission. So never give up dear Linda we got this
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Wendy - Thanks for the update. I've been watching for it. I see you are in a good place ... awesome. Enjoy.
>Z<
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I can't get in to see anyone about my arm for about two and a half weeks. Ugh....
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Gracie in the meantime wrap it and massage it. I get frustrated some times when my arm flares up and I also can't get in I did find someone local to me who does lymphatic massages so if I have a long wait to see someone at Mskcc I go to her and have to pay. Ugh is right!!!!
Had my gemzar infusion late yesterday. It really burns as it goes in. That's even with saline at the same time. I do hope it kicks in and starts to work! My TMs are still going up. And my WBC are tanking!! I'm off next week and going to Fl to see my folks. Then 6/8 I see my mo. Will have TMs taken and if they're still going up I'm sure it'll be early scans.
Hope everyone is doing some fun things this weekend. Seeing Hello Dolly with Bette Midler today, spending tomorrow with good friends, and Monday lunch with my DH cousins who are in from Atlanta and dinner with dd and her husband who's in from Paris for a few days. Love packing my life with family and friends!!!!
Bab
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call for the pump immediately to get that started Gracie, then, decompression wrap it. I do it weekly , if you have the supplies I can walk you through the wrapping. I thought you said you had forgotten how. But the specialist would massage and wrap it after. It's not that hard and once you do it once, you'll remember. I think there may be a you tube tutorial you could watch. Either way. Let's get that arm wrapped like now!! You can't have that flaring up for two weeks. ~M~
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